-
Financial questions related to care
Hello. I'm sure this comes across as ignorant. I'm not, and probably just looking for affirmation of my expectations, but if anyone has any feedback - without judgement please - I would appreciate it. DH has been diagnosed at age 62. I work very part time. Young teens. House is not paid for and definitely don't have even…
-
Learning to be patient.
Hi, I'm 74 and my wife is 76. How does everyone learn to hold their tung? My wife has had Vascular Dementia for almost 2 years. She contently for what day it is. Our Daughter is now making up her pills. I have to dress her am/pm. Help her shower, bathroom needs. I'm now cooking all meals. I have hired a person to clean the…
-
Federal Alzheimer's Research Defunded
The Roy Blunt Alzheimer's research center at the National Institutes of Health has had its budget slashed as part of the ongoing random cost-cutting program. The center does research on what now-retired Senator Blunt (R - MO) called "our most expensive disease."
-
New to this group
Hello, I'm new to this group and Just looking for support I guess. My husband has been recently diagnosed with what the doctors are calling "Alzheimer's-Like" dementia. He's due to have NeuroPsych testing in late May. So maybe we'll have more answers after that about his condition. He's been having memory difficulties for…
-
What is the function of a neurologist after Alz diagnosis
I have searched for this topic and can't find anything related. My question, more exactly, is what can a neuologist do for my DH other than prescribe varioius meds or give him experimental meds? We have been through the non invasive meds and DH has had a reaction to each. We will not do the newer intravenious meds. So, is…
-
Blood Test for Alzheimer’s
My DH has a test last week- Quest Ptau 181. It came back at 1.19 where anything higher than 1.07 indicates Alzheimer’s. Was wondering if anyone else has experience with this test?
-
Rx question for the medical folks...
DH has knee arthritis, pain in the knee and back from his back, and now apparently arthritis in both his feet. The foot pain seems to be even worse than the other and sometimes so bad he can barely walk. The ortho doc prescribed a compounded cream for the knee, and several months later the podiatrist has prescribed a…
-
Understanding the number system ?
Hi, I see numbers discussed like 5-6. Are theses years or stages of disease? Thanks , Sandi
-
Same meals
My DH who is 45 ye EOA. He is stage 6 transition to stage 7. He is starting to not like lots of foods he used to love. Is this normal? He will eat cereal, pb and j, chips, salad (sometimes) or meat sandwich It is also hit or miss if he will eat anything in a day. Or skme days he will graze all day on chips and trail mix.…
-
How to tell your teenagers
my DH was just diagnosed with EO at 57…we have three teenage kids (20, 19 and 17). Any recommendations on how to tell them?
-
Just need to talk to my friends (202)
Iris, cutting ice is a really important chore when it's freezing, otherwise either the cows won't have water or they'll walk out on the ice and break through into the icy water and freeze. I remember Charles cutting ice on the pond and when he would cut a big piece he would slide it under the unbroken ice. Usually would…
-
ECT
Docs are suggesting electroconvulsive therapy. I’m old school and I don’t hear any news flashes. Concerned but cautious about going to Oregon for treatment.
-
Memory card financing
hi community, just wanted to get advice on how to finance your DH staying at a memory care facility. Does insurance cover that?
-
Steps to take legally
Caring for DH. Have wills and standard forms. What do I do in case I pass first. dH unable to carry on. Legally should I change titles now, rewrite my will, move finances immediately to sons? Will currently states goes first to spouse, should i change that? Worried.
-
NIH funding update- the truth…
I saw a post on social media this week that there were cuts being made at the NIH. My husband died in August from Alzheimer's and I have been fighting cancer since 2017 so this worried me greatly. Also my daughter works for a major cancer hospital that receives funding for cancer research So I decided to look into it…
-
Bible Verse to Lift You Up 2/23/25
GOD’S GRACE AND DOING GOOD Ephesians 2:8-10 New International Version 8 For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— 9 not by works, so that no one can boast. 10 For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in…
-
Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
-
Cooking doesn’t get much easier
Super Easy Mexican Chicken 1 can cheddar cheese soup 1 can cream of chicken soup 1 can chicken breast small or large can (I don’t see much difference) 1 can Rotel tomatoes 1 small can diced green chilis Flour tortillas About 4 oz. Mexican cheese Mix first 5 ingredients together Lightly spray PAM in 8X8 or 9X9 baking dish…
-
Your humor for the day...
I posted a few days ago a question about men's briefs and it was suggested that I purchase male "guards" as a way to combat the beginning urinary issues….several people answered, and then, today, we had this new turn of events. I thought folks might enjoy…. Well, a chuckle for those who answered my initial question…..DH…
-
Transition to MC Planning
We have had a really tough couple of weeks leading to a MC move decision. I am looking for insights from those who have done the MC placement. I think I have a fiblet that could work for the transition - I am not well, too fatigued and I have to go in for tests and likely TCU and the medical folks arranged for him to be at…
-
Are PWD capable of any kind of understanding of consequences?
My DH is probably in stage 5. Recently he has been accusing me of having a boyfriend and going out on dates when I am not visiting him. He is very crude in his description of what I am doing with this boyfriend, and does not believe any of my assurances that this is not true. I can't seem to get him off the subject and he…
-
From Maybe to Reality
This past week, I poured out my feelings of guilt about being impatient with my DH to our pastor. Ignore any lack of compassion for the caretaker here, I wasn't looking for that. The entireity (sp?) of his response was who was treating him, was it a local doctor and how I needed to take him into the nearest large city to…
-
Incontinent briefs
I ordered 3 pair of incontinent briefs for DH, trying to find an interim solution for the drips and dribbles. I am pleased with the quality but surprised by one thing…the width of the crotch. I wondered if anyone considered this: the crotch from edge to edge is over 6" wide, exactly between the legs. Surely that is going…
-
It’s Time to Get Help In the House
Hi Everyone- it’s time for me to begin to have some help here at the house. My wife will hate it but I can’t safely leave her alone anymore. Ugh! I have several options that I know of, and they go from high end to “not sure”. $48/hr to $15. Highly credentialed to more of a crap shoot (which this whole thing feels like no…
-
Bible Verse to Lift You Up 2/15/25
Caregivers, the rules I no longer allow me to post on each discussion, so each time I post, use the search option to look for my Bible Verse to Lift You Up for the Caregiver. Peace always. BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid;…
-
Looking to connect first time . New
Hi names Tom , caregiver for wife , she has Alzheimer little over 3 years , middle stage and struggling . We both are . Finally reaching out . I am turning 80 in May , this is the hardest thing I have ever done in my life . And saddest . Married 63 years , who would have guessed . Don't know what else say right now , but…
-
Scared and unsure
Iam so new to all this I apologize I just don’t know where to turn. My husband is showing signs of memory loss and it’s scary. I’ve got him to go to his pcp but I have no idea what is ahead. Iam having anxiety attacks and can’t seem to function well myself. This is a hell. I am just reaching out because I have no one to…
-
Thank you all!
In my last post, I told how DH had the car key. That night, he left the key in the car while he was packing to go home, again. He asked me if I had the key, I reminded him that he had it last, but I knew the key must be in the car if the doors were unlocked. So, I told him I would help him look and sat in the driver seat.…
-
New here and overwhelmed
Hello I am currently caring for my husband and am overwhelmed. The Doctor just confirmed he is in the early stages. Presented some approaches to dealing with this including the infusions. I shared this with my husband today and he didn't express much interest. Said it sounded like it wasn't safe and just not worth it. I am…
-
Not taking it well...
Hi, I am totally new to this...writing and my husband behavior. I also have a hard time with sharing about our life but my daughter told me...mom find some group for your self I can't help you. My husband developed sings of dementia last year in february which we didn't noticed right away. It has been getting slowly…