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My timeline taking montelukast
This February marks nine years that I have been taking the anti-inflammatory asthma drug montelukast multiple times a day for treating the extreme mental fatigue that I was experiencing. Here is a timeline of events. 1995 - My mother was diagnosed with early stage Alzheimers. 2009 - I retired from the the Department of…
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Bringing him home for now
Those of you who were on this site last year may remember my distress at putting DH in memory care in February. I have never been so desolate and could not accept that he couldn't be at home. I entertained the idea of having him half-in, half-out (thanks to all of you who told me this was a bad idea) and thought about…
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Wife will not help herself
my wife of 57 years has AD, MMD and high anxiety. She refuses to take walks, exercise of any form, stopped doing anything around the house, because of hip and knee replacements, cannot cook anymore because she can’t remember how. She constantly picks at me for how dirty the house is when I’ve cleaned it and how bad my…
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Over Stimulation
My DH son and girlfriend recently visited with their 2 year old grandson and he was SO loud and rambunctious. The next morning my DH didn't feel well, said he was cold (no fever) was stumbling and talking completely out of his head about something we couldn't understand. I think he lost most of the day. Later in the…
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From Maybe to Reality
Just need to share with someone who won't have to carry my burden…i.e. the kids. Twice within this week DH has told me he isn't thinking very well. It is possibly because he has been working on the taxes. I thought that he would be able to gather all the necessary paperwork this year and we planned on filling out the forms…
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F&$! Dementia
I sometimes have a mouth of a sailor, but seriously, to hell with this cruel disease. Woke up at 5am with poop all over the bathroom floor and it all over my DW’s legs. She’s so confused and doesn’t know why it’s happening. So bowel incontinence has started. I wish I could pull dementia out of her and kick its awful, mean…
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Social security disability claim denied
UPDATE 2/20/25: the local office was closed because of a snow storm (no more working from home I guess) so we called the national line and waited on hold for 2 hours (yes that’s right, can’t wait to see if AI decreases wait times in the future) just to find out that the person on the phone didn’t seem to be able to find…
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APHASIA the sadness of not being able to communicate
My DH is stage 5 or 6 dementia with very advanced APHASIA. Within himself and between us we are very happy but it’s so sad we often only communicate by touch, smiles and often single words. He was always a great talker and during the night or early morning he will have a great conversation with me and I often can’t…
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New to group any advice
don’t know if I’m even at the place I need to be🤷♀️. My husband was told 8 months ago he had Alzheimer’s. He refuses to talk about it or tell anyone. Actually he’s in denial and says he just missed a couple questions. Spend most of his day away from me,,, he can’t relax never could,, and it’s like he gonna show people…
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Compassionate Allowances Act (faster payment for SSDI)
I’ve noticed some people believe they have to wait the two year period to received SSDI for Alzheimer’s. This is not true. If you are denied, please contact social security and make sure you are being reviewed under compassionate allowances. Read below. Thankfully, since 2010 Social Security has helped by adding…
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My 93 Year Old Mom With Late Stage Dementia Broke Her Hip Yesterday
My 93 year old mom is in late stage dementia and broke her hip yesterday. She’s lived with me for 6 years and this is the first major issue that requires a hospital stay and potential surgery. I’m waiting to speak with the orthopedic doctor and get his recommendations on treatment. I feel so guilty about what has happened.…
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Mom broke her hip two days ago
This past Sunday, I got a call from my Mom's Memory care. She had fallen and they thought her hip was broken. She was sent ambulance to the nearest trauma center and it was determined she did indeed break her hip (femoral head). They did surgery the same day and replaced the femoral head. My Mom was fully ambulatory, and…
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Time for Part-Time In-Home Help?
My DH is stage 5 and digressing. I am looking for part-time in home help. I have Osteoarthritis in left knee and my stamina is not what it used to be. How do you determine when is the proper time and how much time? Does the in home help clean house, etc? I'm in the information gathering stage but realize it will be in the…
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What really happens to someone who has no family and alone with Alzheimer’s???
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This is TBE checking in from Stage 8
It's been a long time since I have posted on here. It's 15 months since dw passed, but never forgotten. Today I walked by a craft section and she was there, grief, just not as bad. So I would like to recap for some who may not have ever read any of my posts. Dw had alzthiemers for 15 yrs the first 9 were not very bad. For…
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Financial crisis in the making
My dh was diagnosed with early onset Alzheimer’s in May 2024. He is 52. He was a partner in a law firm. He made a lot of money….then. Due to his disease, he had to leave work and now he has nothing to do but spend money. He gets daily deliveries of things that he doesn’t use. Sometimes , he doesn’t even open the packages.…
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Poem - When I am older...
I read this poem today and it touched me. I know my husband Lonny knew he loved me and that I loved him until the end. The last sentence he said to me before he passed in August was "I love you too Babe"… When I am older I might not remember I might get confused And I might lose my temper And there may be times When I…
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DH Died Last Night
My beloved husband died last night. Roger was a kind, gentle soul and was well loved by the facility staff, residents, and our hospice team. His hospice nurse and I thought he had a few more days, but his progression accelerated very quickly, and he was gone within an hour. I was there, holding his hand and talking to him,…
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Moving to Memory Care
I have been agonizing over how I will move my wife of 65 years to memory care. I know it will come unless I die first. Friends of ours live in an assisted living apartment. She needs assistance with many things but he does not. This is expensive but they are still together. I've been thinking this could be a solution for…
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Planning for Future Young moderate Early Onset Alzheimer
My DH was diagnosed with young moderate early onset Alzheimer's at the age of 57. He lost his job one year ago. He was also diagnosed with LADA Type 1 Diabetes at age 55. Needless to say, it has been devasting. We have been fortunate to finally secure Social Security Disability. We are now planning for the future. I am…
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DH in nursing facility
I haven't posted for awhile. A lot has happened. My DH is in a nursing facility due to falls at home. After being in the hospital for two days I received a call from his Dr stating he needed 24/7 care which I was unable to do. The decision was made for me that he needed to go to a nursing facility. He has been there 2…
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Need advice on companion care
My DW is 60. She was diagnosed with EO ALZ several years back confirmed with a PET scan. She is deep in stage 5. I work from home. I would like to hiring some companion care so I can go into the office a couple days a week and get some time away. I need to prepare for a future in which I am not doing this alone. However,…
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I'm too proud to ask....
Hi y'all. My bf 45yo eoa is my person. I love him with all i got. He has 2 sides of family. His adopted mom (aunt) and his uncle have been a blessing for me. His mom will take my bf maybe once a month or every few months for a few hours so I can go do some errands. I try not to ask too much tho as she is older as well and…
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Reversed sleep patterns
My DW was diagnosed in 2021 and at our last visit with the neurologist he said she was at Moderate/Severe stage. According to what I have read that would be Stage 6 somewhere. She has always been a night owl and almost always went to bed long after me. There was a period where she was overdoing the wine so she would stay…
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Starting incontinence
I know this has been discussed many times before but I am hoping for some suggestions. My DW is still very functional. She does almost all of her ADL's alone. She was diagnosed 4 years ago and the progression has been slow so far. Recently however, she has had a couple random episodes of urinary incontinence. This is after…
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Watching TV is a challenge
I know this is the least of our problems, but since we stay home a lot we watch TV, all the time 🤦♀️problem is he absolutely cannot follow any new program, so we continue to watch all the old shows we’ve seen a dozen times. They are new to my LO but I just can’t continue to watch them. He says turn on anything but then…
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walker suggestion
Does anyone have a suggestion for a walker for a 6'2 person? Looking online there doesn't seem to be much. I think it would help with the very arthritic knees and bad alzheimer's balance!
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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What if I get sick?
DH was worried last night about what would happen to him if something happened to me. He asked who would take care of him? Honestly, I don't know. Do others have a plan in place? If so, what is it? We have no family to call upon. Friends can only do so much. I'm hearing about flu outbreaks and even that could take me out…
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Financial assistance
Hello Everyone, my husband (82) was recently diagnosed with Alzheimer’s. I (57) have worked most of our marriage but am no longer able to as I have to be home to take care of him. It is a significant drop in our monthly income. Can anyone tell me if there is financial assistance available. Thank you in advance for your…