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Running out of money and no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
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What a great story
I read this posting on another site and thought I would share it. It was written by Tony Copeland-Parker. The Long Goodbye The protracted period from diagnosis to death from Alzheimer’s disease. My wife of 26 years was diagnosed with Early Onset Alzheimer’s 11 years ago at the age of 53. Our initial response to the…
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Frustrated
Just need to put this out there… I got mad yesterday at DH who has AL. I didn't say anything but he knew (stomping out of the room is pretty obvious), but I bit my tongue until I was out of hearing range. The "why" is irrelevent. It could have been anything. The point is that I cannot reason with him because his thinker…
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H.A.B.I.T. Program
Has anyone participated in the HABIT program offered through the Mayo Clinic? Was it valuable? My husband has MCI and I am considering applying for it. I think that the training may be worthwhile, at least to have him interact with others going through the same thing…
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Closing up the house
My DH starts “closing up the house” as he calls it around 6pm every night, while it is still light. He wants everything locked up and all the blinds down. He likes it dark inside. This is really not a problem but an irritation. I’m just curious if this is a typical response from those with Alzheimer’s.
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Dr. Dean Ornish’s Research- Worth the Read!
https://nutritionfacts.org/video/can-alzheimers-disease-be-reversed-with-a-plant-based-diet/ I have been reading about Dr. Ornish’s research and program for slowing up Alzheimer’s disease. I thought it was worth sharing with you. If you google his name, you will find more information on this program for heart and brain…
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Sleeping Issues: need advice
Hi everyone, I’m looking for some advice and to see if anyone else has experienced something similar. My dad has been living with Alzheimer’s for about 10 years. He’s still fairly active—he can ride his bike and we go on walks together—but recently we’ve been struggling with sleep. When it’s time for bed, he just can’t…
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Grief! - Vent!
I am having a very hard time coping with anticipatory grief ! I have been caring for my DH for about 14 years. He is now stage 7 on Hospice. I have help almost every day for his care. I am trying so hard to keep myself in shape and fighting this depression. Today the grief and sadness seems overwhelming. The tears keep…
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A New Chuckle
I guess I need to post these to desperately try to keep my sense of humor. I thought I may have escaped the hyper-sexuality phase, and maybe I still have since this has only happened once. We shall see what tonight brings, but last night brought me this thought. Nothing is sexier in this world than your spouse with…
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Forgetting her brother died
Last week my wife told me she was worried about her brother because she had not heard from him in awhile. He died in 2019. I dreaded telling her and, of course, when I did, she was grief stricken and surprised. I comforted her as best I could and she forgot about it within 30 minutes or so. Then last night she again told…
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Hearing aid use
My DH got hearing aids about 2 years ago but hasn’t worn them much bc he says they are uncomfortable. His hearing is not too awful as he can hear me if I talk fairly loud. I don’t know how much I should push him to wear them because his wearing them is more work for me. He spends considerable time everyday looking for lost…
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Futile?
My wife has FTD. Her neurologist has ordered new PET scan and new Psychological testing. They are repeating the tests which gave us her diagnosis. Since there is no treatment for FTD, I question the need to keep testing her. The supposed purpose is to determine the rate of progression of the disease. I just wonder what…
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Another hit to my heart
I posted a couple of months ago regarding my DW not remembering our anniversary and how it really hurt me. Well guess what, today is her birthday and she had no idea that she had a birthday. I should be used to this but it still hurts. That’s all
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Type 1 diabetes, vascular dementia - stage 8.
I have told bits and pieces of my DW's story. I will tell her story now for the chance that we may be able to help others in similar circumstances. She developed type 1 diabetes when she was 8 years old. In 2012 (age 56) she suddenly developed dizziness and lost excecutive function. She underwent physical therapy and her…
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30 day respite
I just placed my DH/alz in memory care for a 30 day respite. It was a lot of prep work but it went ok. The staff took him to the dining room and I set up his room. I told him the doctors and nurses wanted to monitor his medications for a few weeks. A year ago he would have fussed about it but he just said “Ok”. He does…
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Feeling Vulnerable and Grieving
I am a newbie here, been "lurking" at posts of interest and pleased with what I've been seeing as a supportive group of caring individuals experiencing life as caregiver for LO's. My LO is my DW of 60 years. We have a long history together starting as a military family stationed overseas in the Vietnam era. We had three…
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DH in hospital
Not sure what happened Friday night, but, something went horribly wrong and I had to call 911 for my DH. I knew immediately that vit wasn't normal morning alz confusion. It was more like delirium. They admitted him and so far all tests have come back normal but he has become even more delirious and now aggressive and…
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Sex
Ok all of a sudden, my DH is so interested in sex. Its not like sex was a priority adter all these years being married. He never even talked about it. Whats up with this.
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Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
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Expat living in France caring for DH know nothing of French system
Im 67 my husband of 39 years is 79. We have only lived in France for 3 years come December. My husband is awaiting scan and the start of the formal process. I wondered if anyone here is in France and can tell me what the care/support/system is like over here for dementia patients please. I’m a Doctor (now recently…
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Lumipulse pTau-217/Beta Amyloid 42 Ratio
Has anyone here read anything about this dementia test? If I ever show cognitive decline, I think I would like to get this test. Then maybe have an exit plan.
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My husband is lucid much of the time
My husband is not so far gone that I could not leave him in memory care or nursing home but when he gets into a rage there is nothing I can do And he is still having trouble walking What should I do? Guilty ridden
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Just need to talk to my friends (209)
We just had a nice shower, just before my groceries were delivered. Still sprinkling a little and it's nice and cool. Wonderful weather for the first day of August. Another six weeks and our hot summer will be getting cooler. I'm ready. Need to finish putting away the groceries but wanted to get 209 started. Back later.
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Just need to talk to my friends (210)
Thanks for reminding me. Time goes by so fast. Partly cloudy here with rain around. I wouldn't mind getting some more. Before I got up I was thinking about snakes. What a subject! I remembered that a woman we worked with was going down the street in her car and felt something on her foot. She looked down and it was a…
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Moving
This is the first time I have posted… My husband is 66 and has EOAD. We are moving to be near our son and his family (6 hours away) so I can get some help. They have graciously offered to help as my husband's dementia is getting worse, and requires me to be with him pretty much 24/7. We don't travel anymore as it caused…
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Yes, I'm back for a visit, and need a little input
I hope you are all holding up well. It's been a while since I've visited. As always, make sure you somehow get a little time for yourself, away from caregiving, if possible. Do something nice for YOU. About 2 years ago, I knew of a woman in her 20's or maybe 30s who was working at a local Target store as a cashier. I don't…
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Gas stove knob locks
Looking for recommendations for gas stove knob locks. I have a GE Cafe gas stove with the knobs on the front. My DH has attempted to cook for years but I want to be safe. There are alot on Amazon but mostly geared toward children. Any recommendations?
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Is Zoloft any good?
My DH just got out of the hospital and was sent home on Zoloft for anxiety. I had hoped they would have given him Klonopin or something similar to use PRN. Nope, it’s addictive. He went in for chest pains and my thought is that it’s more anxiety related. All tests were thankfully negative for a heart attack. I told them…
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
I will try to keep this shortish. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth. Since May she has been manic, paranoid, delusional,…
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Caustic Behavior While Traveling in Our Car
My DW and I used to travel extensively all over the US to visit parks and botanical gardens. With her increasing dementia episodes travel in our car is limited to no longer than 15 minutes. My DW tells me very caustically I drive too fast (as we travel at less than the speed limit) that there are cars always right on our…