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Is there an open forum for people to speak about their experiences?
Hi there, I’m Jen and my daddy has vascular dementia after suffering a stroke last year. I would like to find a place where I can talk with people in similar situations so we can share our experiences and support each other. Does anyone know where I can find such a forum please?
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Product for missing the toilet?
hi all, my dad has moderate/advanced ALZ/Dem and is in AL. He is consistently missing the toilet when he urinates, and then becomes extremely irritated because he thinks the toilet is leaking. I see on Amazon there are many disposable “pee pad” products for around the base of the toilet, has anyone had luck with these?…
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Teaching dad to care for mom
My dad believes he is ‘caring’ for my mom (who has mid-stage dementia) but I disagree. He/They want to stay at home but his version of care and conditions are deplorable. I want to educate him on what true care actually is. Any recommendations on organizations or services to do so? In home help has been vehemently refused…
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what does this mean & what are next steps
Hello, my LO is starting to exhibit physical challenges that I think are related to her ALZ diagnosis. I noticed maybe a month or 6 weeks ago that every now and then I would see that she would shake. So we bought plastic plates and cups for the house but she refuses to use them. Well this morning she couldn't manage a…
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Tax prep
My dad just called me and asked me to help with filing his taxes. I'm going to gather as much tax paperwork and see a tax preparer who might do it for free, if possible. I knew it was a matter of time that he would admit he needs help.
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Lacanemab experience + Patient Experience
Hello valued forum -- we are looking for existing lecanemab users and families - who can share their experience. my mother is approved and considering treatment. we have plenty of medical input and data - but looking for human stories and lifestyle comments. welcome a discussion here or offline too! tx, jennifer
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Risperidone for ALZ
I'm seeking advice about starting my 76-year-old mother, who has Alzheimer's, on Risperidone. I’m aware of the many risks associated with this medication, and I’m struggling to make a decision. From my research, it seems like Risperidone can be a gamble—it can either work as a miracle drug or potentially cause…
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Advice on death
Mom has some Dementia, and is moving into ALF in 2 weeks. She is very stressed about this so her dementia is pretty bad right now. We took her cat for shots, vet said he will pass any day now. I am so new at this on how to communicate. I know when it happens she will know, but what about 4hrs later when asks. What do I…
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CBD gummies
so I’m caring for a mother that has Alzheimer’s and if anybody use CBD gummy to help with anxiety, not the kind with THC and if so, any success and if so, what kind?
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Dad doesn’t like any new doctors
Have any of you also experienced your ALZ/Dem parent disliking anyone new caring for them? My dad has moderate/severe ALZ/Dem and is saying “I don’t like them” (and unable to give a reason why) for every new doctor, nurse and/or CNA he meets. I know it is common for folks with ALZ/Dem to feel uncomfortable with anything…
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Dealing with my mother’s delusions and anger
Hi. I am new to this group and fairly new to caring for my mom who was recently diagnosed with dementia. A couple of months ago, while on a day trip with her husband and sister, she sort of snapped. She was riding in the backseat while her husband was driving and her sister was riding in front. My mother became withdrawn…
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How do I handle the pets?
Hi, I’m new here. My husband and our 3 small kids moved in to help take care of his mother 3 years ago. She has dementia, suspected to be Alzheimer’s, and she had a stroke last year. Recently we have see a big decline in her ability to take care of herself and her pets. She maintained a lot of autonomy at first. With cues…
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How to manage with a caregiver
My mom is 79 years old and is in advanced stage of dementia. She has urine and bowel incontinence and hence needs to be cleaned very often. I have kept a caregiver, but my mom refuses to accept her ...for cleaning her, bathing her and nowadays is so agitated..always screaming n asking her to get out. The caregiver is very…
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How much to share with loved one
Hi. I am new to this group, and I have recently realized my aunt is farther along with memory decline. She has been diagnosed with Mild Cognitive Impairment. She has allowed me to assist with a lot of her healthcare needs and some bills (like internet/phone). But she told me I absolutely could not do anything with her…
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new to this forum
Hi! I just discovered this forum and wanted to introduce myself. I live in Maryland and coordinate care for my mother who lives in Florida. I spend one week each month (for the last 14 months) in her home. She has 24 hour care by 4 amazing caregivers. I have constant questions about optimal care and how I can help. No…
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Just need reminding that I'm doing the right things for dad
So, based on the advise of this community and my own ability to see things more clearly, I have moved forward with holding a spot for dad at an AL community. I picked this place, as it has AL (which I feel is most appropriate for dad currently), but also has the MC part of the building where he can be transitioned to when…
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Dementia vs ALZ
Hi! Are there any behavioral or communication differences between the two? Is it possible to have a little of both? My mom hasn't been formally diagnosed with ALZ, just dementia, but apparently, her doctor thinks she's having some crossover symptoms. My 90-year-old mom has pretty much decided over the last couple of weeks…
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mom thinks I'm her sister etc.
My sister and I are adopted. So the latest focus for my mom is asking everyone where her kids are. She knows I'm Jennifer, but thinks I'm a different Jennifer than in all the pictures. She thinks her kids are still little girls. And she thinks I'm her sister. Yesterday she called my aunt and cousin to ask who took her…
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Not sure how to answer.....
My mom has LBD and she is constantly asking me if my dad is her husband. There are times I say yes he and she says well nobody told me. I know that you are suppose to meet them on their level, but everyday she asks me if the "man that takes care of her is her husband" . I am afraid if I say no that she will get scared and…
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Bathroom issue
My dad, is double incontinent. if he goes out, and we have to bring some pull-ups in case of accidents, which bathroom (men or women's) should we go to change him at if we (mom and me) are women?
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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Looking for advice
Hi, I am new here. My mom has dementia/Alzheimer's. Dr told me to come here and try to find some support. I am 1 of 4 children, main caretaker of my mom. 2 brothers don't bother with her and 1 does when I beg for a break. She has been having hallucinations and I could always focus her on something else. Now it is none…
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Elder Care Law Input
My mom was diagnosed with dementia a year ago, most likely Alzheimer's. She has been exhibiting dementia symptoms for six years or more, so the official diagnosis was not surprising. The doctor has asked us to not leave her home alone for more than an hour or two. She is still pretty active physically but has little to no…
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How do we know what is right?
Mom lives with me full time now, she was going back and forth between myself and my sister until about 4 months ago. We have caregivers coming to the house while we work, and she is on a waiting list for memory care. I just wonder… when a place becomes available, will it be right to say yes we are ready? Mom is generally…
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Moving to ALF
I finally convinced mom to move to ALF with a little help from her dr. It was not without a battle. That said she moves in 3weeks. I am so new to this dementia illness, I am learning what to say and not say. She is so stressed now and doubly confused. She putting the things she wants to take in bags and cleaned out her…
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Covid “Vaccine”
My mom was living in senior apartments and thriving until the covid “vaccine.” She was cooking for herself, enjoying life, visitors, going on outings, etc. Then she got the covid vax and soon after got covid, hospitalized, survived remdesivir, and everything went to sh*t. Anyone else experience the same?
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Mother not cooperating with maid
My mother ,aged 66,is not able to go to washroom by herself We have maid,who helps her, recently she is not cooperating with her as well. Other than my sister,she does not allow anyone else to be with her. Need suggestions....to deal with mother Also,she is hallucinating....she looks at herself in mirror and gets hyper...…
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Mum accusing me of stealing
My mum is accusing me of stealing various things which is obviously very upsetting. She doesn't want me to go to her house any more, is nasty to me when I speak to her and convinced I'm a theft, which is hard because I go to visit, take her and my dad out and now can't support my dad .Any suggestions ? X
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Mom Recently Diagnosed
My 82 year old mother was recently diagnosed with dementia. Her primary care doctor diagnosed her. My brother and I are at a loss with what to do next. Her doctor doesn’t want to prescribe any type of medication because she says the side effects are too great for my mom. She has a history of frequent falls. Do we need to…
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Mom getting scammed
My mom has been dealing with dementia for a couple of years. It has progressively gotten worse. Supposedly the more times they have gone under anesthesia it can speed up dementia. She went under 3 times last year. But even before that she had issues with scammers. She lives in an AL. I have had my hands full from time to…