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Loss of social media = loss of community
Hi, I'm wondering if anyone else is experiencing this: In the years before my dad was diagnosed and began showing symptoms of Alzheimers, he became a social media power user. He's an artist, and he began posting to Flickr and instagram, establishing strong bonds and connections with artists all over the world. His decline…
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What does Ptau 712 mean for Lecanemab?
Hello. My mother was diagnosed earlier this year with MCI and we just got to a neurologist last week. Her Ptau 712 came out at 1.7. I am having a hard time understanding this except that it is an "abnormal" score — but from what I can tell online it seems quite high. Can anyone offer any perspective here? Do people stop…
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support for having a parent with dementia
hello! i’m not sure if this is the right place for this, but i’m just looking for support and guidance in my current situation. i’m 20 years old, and my mom received a dementia diagnosis a few years ago, during my high school years, after persistent memory issues. as anticipated, years after this diagnosis, her mental…
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New here need help took moms car away
hi I am new to this and our family is new to the whole Alzheimer’s. Dementia. I would say my mom is a stage five . We disabled the battery on the car November 1st and told her it needed to be fixed and every day she asked me about the car. So now I had it towed so that it can get fixed (fib) and even out of sight she still…
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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New to this and seeking guidance
I’m new to this whole world and the challenges it presents! Mom is showing many signs of Dementia/Alz and in the process of additional health tests. No official diagnosis, no cognitive testing. Limited healthcare in the area and PCP is generalist. We are trying to get her to Geriatric Dr in a few months tho haven’t brought…
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A toaster oven in AL
Mom asked her doctor that comes to see her at AL if she could have a toaster oven. The doctor talked with AL they decided it was fine and told her she could have one. I as DPOA was never included in the conversation. I am so mad. I know she can’t actually have a toaster oven unless I buy one for her or bring her to the…
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Need guidance Mom with Alzheimers
Hi, hoping someone can give me some guidance. My mom that is 77 was diagnosed after the blood test, MRI and spinal test that she has Alzheimer’s. Her neurologist told us she is in the early stages of the disease so she can get Leqembi injections every two weeks. She is supposed to get her 12th injection tomorrow and almost…
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Sudden changes
My mother's birthday was early November, and that's the last time she seemed almost like herself. She soon became verbally aggressive and anxious. After a false negative test result, she was finally diagnosed with a UTI. It was treated. Since then she's changed. She's not keeping up her appearance now. She looks…
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My mother is dying and taking me with her!
Hello All, I’m new here, please bear with me as I figure things out. My mother who will be 85 yrs old on 12/16 is in the late stages of Alzheimer’s Disease. Mom had 3 kids, 2 boys and me the only girl. The guys have since departed this life leaving me as the sole caregiver for our mother who was once a strong, independent…
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Looking for next step in care
hi. 2 weeks ago we had to admit my dad to a hospital (he showed aggressive behavior towards my mom and recommended by the dr). A few days later he had a uti but a few days after showed aggressive behavior towards staff and they had to call security. They started him on meds there but now looking to move him to a nursing…
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The angry phone calls but good news
Well despite the angry phone calls I get from Dad each night, 9 pm sharp, the staff assures me he is going to activities, and classes, is social and friendly. Those phone calls are so hard. Anyone else have a coping strategy for the anger? I moved him from his home he misses his garage, lawn mower etc.
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Behavioral issues
Hi, I am new here and really need some advise. I am taking care of my 83 year old father with middle stage Alzheimer's. I actually live with him. He obsesses over everything, anxious, won't leave my side (hates being alone), paces, etc. He also thinks most of the time that I am his dead wife instead of his daughter. He is…
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Elder Lawyer/Planning
Hello all I'm sure this has been discussed at some point, so I apologize if this is repetitive. Having the input of this community would be greatly helpful. My father is in the ES Dementia. My mother is completely overwhelmed and (as an only child) I'm doing my best to navigate this for her and take as much as I can off…
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My parent with dementia's Exboyfriend
My parent with dementia was living out of state and in a relationship with a man who as it turned out hid or did not reveal her dementia symptoms to family supposedly out of reapect for her privacy. I knew for the past two years that she had dementia due to observing her symptoms but she was not receptive to my concerns. I…
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New to the Group Dreading the Holidays
The holidays are hitting hard this year. In the last couple of weeks my mom has gotten noticeably more anxious which coincides with her not recognizing members of our immediate family. Thanksgiving was very difficult this year. She’s still physically doing pretty well it just breaks my heart to see her so upset and the…
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Length between appointments
My mom is in the back end of the moderate stage. Since she's been seeing her neurologist (maybe 3 years), the length between appointments is 6 months. Is this typical/normal? Thanks. Hugs to you all.
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My young dad is gone but still here
My father is 65 and in the late stages of Alzheimer’s. I just got guardianship and conservatorship of him after discovering his wife could not care for him properly. I just got him into an assisted living facility with memory care, but after only two weeks they can’t handle his behaviors and we are seeking for a new…
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Feeling sad - Missing our mom while she is still with us
We are lucky. After a number of hair raising, exhausting, heartbreaking years we finally got our mother into a safe situation. (for the moment) But now I am really missing her. I think of things I want to tell her and that she would have enjoyed talking about a few years ago and of course she can't. When she goes, I am…
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New to the group
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up…
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New here / 1 month into caring for mom at home
Hello everyone, I am grateful this forum exists. I am 35 and my mom is 72, about to turn 73. I’m not sure which type of dementia she has, perhaps mixed, but she appears to be in the beginning side of severe dementia. It’s also worth mentioning we really didn’t have a relationship before I moved her to my city last year to…
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Bible Verse to Lift You Up 12/1/24
GOD IS WITH YOU AND ME Psalm 139:16-18 New International Version “Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. 17 How precious to me are your thoughts, God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand—…
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Feeling hopeless & overwhelmed
Hi everyone, I’m new to this forum and I’m reaching out because I’m feeling overwhelmed and hopeless. My family lives in Louisiana and have been struggling with my dad’s Alzheimer’s diagnosis since 2018. He’s now in stage 7, and at this point, he no longer recognizes my brother or me. The only person he seems to recognize…
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How do you 'unhear' the mean things that are said to you?
I live out of state and have been caring for my Mom from a distance since my stepfather moved out because he could not handle her dementia and refusal of getting medical care in June 2023. In April 2024, I moved her into MC as she was unable to live on her own and after 5 or 6 emergency trips to help ensure the house…
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What to do? Mum has been diagnosed with Dimentia
Hi, I am based in Australia and my mum and dad are based in India. Mum has been diagnosed with Dimentia and she could not recognise me. Dad and her are now in care home in India, but for me it is very upsetting to accept that she cannot recognise me. My work is getting affected and I am now becoming very sad ☹️. I don’t…
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Memory care concerns
My mom has been in memory since 2022. She’s had a moderate decline since going in. Few issues but seems content. Went to visit her Tuesday. I got told the other night they saw blood in moms pull up. Maybe a uti. Head nurse calls me just now and says Dr sees red pimples on mom’s private and red lines and thinks squamous…
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Thanksgiving
Just wanted to say, all of you are on my list of what I am thankful for this year! I learn so much from your experiences and I love how supportive everyone is with others on similar journeys, even when we make different choices in our care for our loved ones. I wish peace for all on this holiday.
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Feeling Very Alone
Hi everybody! I hope everyone is having a good day/night. I am 24 and the main care taker for my mom who is 59, she was diagnosed with Alzheimer's back in 2022. The first year since her diagnoses had been pretty uneventful, no huge changes besides getting her disability approved. She had already stopped driving and working…
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Intentional bladder retention
Hello. Foster mom has some form(s) of dementia that is currently remains undiagnosed even though doctors are certain of it. .. Foster mom has been quite frequently in and out of emergency diagnosed mostly each time with an Uti. They give her antibiotics and send on her way. I live with her and everyday a large amount of…