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Activity, shadowing, and denial...
Hi! My husband is in moderate stage dementia. We don't have children and nor do we have a large network of friends or family who are able or willing to help much. Once very social he is now shying away from people probably due to word finding challenges. I know I am early on in my caregiving journey and these problems may…
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Colonoscopy Brings Complications
I am 81 years old, but active, strong and healthy. My DH is 86 and diagnosed in 2021 with Alzheimers. He has remained gentle and sweet, very helpful and in good physical condition otherwise. Just doesn’t remember 5 minutes ago. I am his anchor and he tells me that all the time. So now I have had a colonoscopy on the…
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In home care dilemma
a few months ago my DW was having hallucinations and confused about who I was. We now have her on meds to help. There has been major improvement in the hallucinations and confusion. Her memory is not good and doesn’t even remember going to the Dr yesterday. Because of the tough times in the last few months our sons…
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Hygiene, Meds, Diet
DW diagnosed with MCI 7 years ago. Initial vehement denial, everyone out to get her into a home. Neurologist prescribed Donepezil to start. Very shortly she refused to take any med. As condition worsened, tried to add memantine with no luck. After first 2 1/2 years of her believing everyone "knew" about her diagnosis (not…
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When did you give up on doing errands with your LO?
Hello, fellow travelers. I am wondering about something I have been thinking about for a while, and it’s this: At what point in your LO’s disease progression did you stop taking him places with you? DH was diagnosed with mild dementia 6/21. Three years later, we seem to be sliding into stage 6. I have continued to take him…
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Hearing Aid Guidelines posted under Caregivers
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Perfect circle, epic fail
My husband had his welcome to Medicare visit today. When it came time for the clock test, he drew a perfect circle, then nothing. Just a blank look when we reminded him he was supposed to put the numbers on the clock. He had no idea what to do. Pretty good description of life at our house. He can complete some tasks just…
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I’m angry and resentful!
The past few weeks I have been angry! I’m angry at my husband for having a disease he didn’t ask for I’m angry at myself for losing it and being frustrated and thinking I have a handle on things and realizing I don’t! I’ve been very short tempered and sad. Both of which I’m not!Our marriage has been one where he was never…
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New diagnosis
Looking for some bedroom gymnastics with curvy delights or pencil thin babes? We'll sort you out. They're all here strutting their stuff in lehenga, sarees stripping down to nothing as they get drilled real good by eager studs who can't wait to spice things up. Get front row seats to sweaty, moaning romps that hit all the…
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Brown Bottom
My BF 45yo EOA has stopped wiping his butt after #2. Which leave marks in his boxers. He says he doesn't know how it gets there. Any suggestions??? We are all in this together 💜
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Not a good day, steeling myself
My partner hasn't had a bath in a week and she is only eating if I'm there to feed her. She was very combative about a bath yesterday and wouldn't even let me help her get clean clothes on, so i left her standing half naked in her bathroom. I did tell one of the aides what a state she was in. I think I need to let both of…
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Caring for a healthy Spouse
My wife has Alzheimer's, 84 years old with a history of ALZ for 5-6 years. Her memory and cognitive skills are almost gone. She is totally dependent on me for daily living. She takes care of her personal needs. Otherwise she is very healthy. Can handle many tasks given close supervision. Even mows the lawn. She thinks she…
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My DH wants my undivided attention
Please give me your advice here. My DH wants my undivided attention. He can be doing nothing, but if I get on the phone to talk to a friend he always seems to “need” my help. And many times he says that me being on the phone is just when he thought we were spending time together. The truth is we are retired and spend most…
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Memantine
My DW's neurologist increased her donepizil dosage from 5mg to 10 mg and she was experiencing nausea. We reduced the dosage back to 5mg and the nausea stopped. The neurologist has now prescribed 5mg memantine twice a day to supplement the 5mg donepizil. Do any of you have experience with memantine and possible side effects?
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Just need a hug today
My DH is in Memory Care since January. I have been going thru chemo & had surgery 4/25. I'm just now getting where I can drive & go visit him on my own. They had to medicate him due to agitation & aggression. The last 3x I visited him he slept except to wake up to eat, then went right back to sleep. The doctor is gradually…
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Seeing things
My wife has been seeing things for a few weeks now. Sometimes she knows they aren't real, and other times she insists they are. It's sometimes hard to know which it is sometimes, and I sometimes say the wrong thing. Any suggestions or comments?
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Automatic Stove Shut Off Device
Hi all, My DH left the gas grill on all night, luckily, with no damage. I’ve ordered an auto shut off timer for it. While I’m at it, I’d like to get one for our electric range as well. I’m seeing a CookStop advertised, that looks like what we need, but I can’t actually find it available anywhere. I also see an Iguard…
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Looking for a group of active early onset people in Seattle/Issaquah area
Hello, I am hoping to find other people in my community with early onset that are still active. My husband is a very active 62 YO with FTD who desperately wants to be out in the community helping and socializing to try and preserve, as best he can, his speech and communication skills. He hates being alone and I work…
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Guilty, Not Guilty
I sit here this morning, thinking about guilt. My DW will maybe hop into a car with her sister tomorrow and drive up north to visit with her giant family over the 4th of July. DWs anxiety has really ramped up the last few months and travel gets her super anxious — she can't figure out dates, driving around curves scares…
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DH in hospital, update
Now that I have a minute to sit down I thought I'd share the rest of the story surrounding DH's hospitalization. I have thought about not sharing the following information but I've decided to share it, maybe for support or to hear someone say that they have experienced something similar because my hands are tied legally…
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Neuro/pyschiatrist test
DH was tested late January early February. Still waiting for results to be sent to neurologist and myself. We did have a quick meeting which he explain Dh had had moderate alz. But nothing since then. Is this normal?
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Contacting psychiatrist / psychotherapist
Thank you for responding to my post last week about sending a portal message to my DH’s PCP in advance of his appointment with her. I am sending it today and will try to hand a copy to the nurse day of, as well. I also reached out to our retired trust advisor (now a friend) for some advice and now have a good idea how to…
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Travel with spouse in middle stage
We have been planning a trip to France for several months. My husband seems to have more pronounced symptoms lately. To be honest, I'm worried that an extended trip (3 wks) , with the traveling to several locations, may be too stressful for him. Has anyone travelled with their loved one? How did you manage the confusion…
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Can Seroquel cause cognitive decline?
My HWD's neurologist prescribed 50 mg of Seroquel at night to help calm down his aggression. He is also on Cimetadine for hyper sexuality. The aggressive behavior has calmed down a bit, but I also feel like he has declined cognitively. Is this what happens? I am much better able to handle him now, but he can't remember…
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My wife's kids live across the country.
So my wife has early onset Alzheimer's, and it's not getting any better. She was previously married and has 2 adult girls and an adult boy from that marriage. We live in NH, and her kids are in Va, Az, and IL. They are all aware of the situation, and they try to visit once a year. I appreciate that they make the effort to…
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Trying to get diagnosis for resistant DH
This is my first post, though I’ve been lurking for a while. I have many questions, but right now I need advice on how to handle the portal message I am sending to our PCP prior to my 69 yo DH's appointment next week. First, some background: My DH is 69 and has been having noticeable issues for 3-4 years (noticeable to me,…
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Obsessions
Hey dear people, again, new to this and can't imagine this journey that I'm on and how long it will last without losing my mind... I'm not being disrespectful, it's just where else can I voice my frustrations and worries~ so my DH seems to find a topic (finances, an old worry, etc.) and fret for hours on end, going into…
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Memory Care and Cancer Diagnosis?
Friends, I am about 3 months out from placing my husband with Alz in a memory care facility. We recently found out that he probably has a blood cancer and will have a bone marrow biopsy to determine type and prognosis. The oncologist said it could be 9 months to 8 years for the type he has (MDS). I am wondering if he will…
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Memory care facility. When is it time
I’m sure just about every one on here has either delt with this issue or will at some point but I’m beginning to do something I never thought I’d do. I’m considering a memory care facility for the future. My heart is breaking even thinking about it. I’m 62 and still work full time as an insurance broker. At times during…
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Always tired
hi everyone hope all doing well. Question my wife ,if you met her, is very hard to pin as having dimentia as she hinds well but it’s there. What I’m asking is she sleeps 8 hrs straight through nite but at times tired by 10am. Always tired by 4 pm. Anyone have this issue