-
Over it!
I am in the worst mood today and I just can't shake it! I am so angry, and just sick and tired! I don't want to do anything. I am so unmotivated. I just want to lay in bed. I don't want to talk or smile or even try. I am trying so hard to get past it! I am wasting my whole day 😢
-
Death watch
I think my partner has given up and is starting to actively die. She sleeps the vast majority of the time, will wake up briefly to eat now and then if I feed her (makes no effort to feed herself that I’ve seen). She must get up a little bit at times that I’m not there because things are still moved around in her room a…
-
Are my feelings normal?
My DH is in mid-stage 6 of Alzheimer's disease. We've had a wonderful 22-year marriage. My emotions and attitudes towards him these days are all over the place. When he is ornery, refuses to take a bath or swallow his pills/eat his meals, accuses me of controlling his life, twists my wrist because he is mad at me (only…
-
maybe just a late night vent??
I think I may have finally snapped. I called my son this morning to come over and try to help calm my wife. For over a week now, she has been telling me everything is hers, and if I don’t leave, she will call the police. She doesn’t know who I am and insists I get out.” I know this will sound super selfish, but for those…
-
New normal
This is my first post. I’m 54 yrs old caring for my DH who has EO. We are three years into his diagnosis. He has been told many times he has Alzheimer’s by the drs but each time is like the first time. I’m scared of what the future holds. He is definitely not the same person. Mood swings are the biggest struggle right now.…
-
I guess it's really time
My husband has FTD with delusions and hallucintaions. He thinks I'm different people throughout the day. He is disoriented and never knows where he is. Several times a week he wants to ride around in the car to go "home" or to the office. Twice last week we rode around for hours until he finally got tired and agreed to go…
-
Butterfly wings
Just thinking of you and realized i haven't seen a post from you this week. Hope you are okay.
-
FIRST TIME PARTICIPANT: My AAIC code did not work.
All last week I tried to log into ALZ.org online to view sessions, but the staff wasn’t answering emails during the conference and is now in vacation until the 12th of August. Can anyone explain to me how to use the code I was provided to log in online? I learned today from a YouTube presentation that the videos only…
-
Early stage, waiting for the other shoe to drop
DH was recently diagnosed with ES Alz. Looking back, there were definite signs 5-6 years ago. A few weeks ago, he totally missed the toilet in the middle of the night, twice. Since then, nothing. Lots of good advice from this group on that. Most of the time, he seems perfectly normal, except for his choice of word…
-
Life in the Alzheimer's Warehouse
Good morning Dear Friends. I sometimes find it helpful to write down my thoughts. I am sharing what I wrote this morning in hopes that it will offer a perspective that while we don't have control over our situation, we can and do choose what we think of each day. Let's all fight with every fiber of our beings to stay out…
-
Short Film: A Marriage to Remember
Lovely. https://www.youtube.com/watch?v=PZu51MnqfF4
-
Scared and unsure
Iam so new to all this I apologize I just don’t know where to turn. My husband is showing signs of memory loss and it’s scary. I’ve got him to go to his pcp but I have no idea what is ahead. Iam having anxiety attacks and can’t seem to function well myself. This is a hell. I am just reaching out because I have no one to…
-
No signs (I don't think) but had father and grandmother die with the disease
Hello- I'm new to this forum. Today's paper had a very interesting article about the new testing which is becoming available for early onset of the disease. I'm 57, healthy and I eat properly and exercise 5-6 times weekly. I'm retired so I don't have the "stresses" of a job. I recall my dad being concerned about not…
-
Medication Reminder App Suggestions
Today was one of those "I cried, he whistled" days. He was really upset at something I did because it wasn't the way he wanted it. It really hurt my feelings, and he went on like nothing happened. Only to find out, he did not take his meds for yesterday afternoon, this morning, or this afternoon. Even though I try to…
-
Introducing myself.......
Hello everyone, Like many others, I've been lurking on this site on and off for months. It has been both knowledgeable and comforting to have you all as a resource. Thank you. I no longer feel alone. I am caretaker of my DH of almost 30 years. His symptoms have gotten progressively worse over the past 3 years. Same old…
-
Intelgenx montelukast clinical trial
I posted a few weeks earlier that Intelgenx Technologies in Canada has completed its clinical trial using its film version of montelukast to treat early Alzheimer's and MCI. A brief preliminary report indicated that participants taking the highest dosage of 30 mg twice a day have shown cognitive improvement. A final report…
-
Side effects - Rivastigmine or Leqembi
Mornin, first post here. Wife,53, diagnosed with AD not long ago. On rivastigmine after terrible time on Donepezil and has had one infusion of Leqembi week before last. She’s had a couple days of “ just feeling like s**t” , but not too bad. Question is, has anyone witnessed a tightening of calf and lower calf muscles.?…
-
Help! I am exhausted and depressed
I just feel I can't do it anymore. I cook, clean, pay bills, manage rental property that my HWA refuses to sell. He believes I conspire with the renters against him. I am just so beaten down. My HWA wanted me to pick up apples that fell from the apple tree in the backyard. I said I was too tired. I have been working all…
-
I'm feeling whiny
My husband's aide has been out since Wednesday and the agency hasn't found a sub. Wednesday was awful - he had been up most of Tuesday night (meaning I had been up most of Tuesday night) so I struggled. We got through it. Yesterday was rough. We got through it. This morning I'm mainlining coffee and he's removing the…
-
New to forum and newly diagnosed spouse at 56
Hi all. I'm not good at sharing, but finding this new life journey difficult. Not sure I should have pushed for this test as I wasn't really ready for the truth and outcome. My kids and I noticed the changes in my spouse over 7 years ago. I tried back then for doctors to figure out what was happening. Hit road block after…
-
And the Packing Up Continues...
Again, my DH got up 3 times on Wednesday night, pulling out all of his clothes and putting them on the bed. I got him back to bed each time and put back the clothes. Then he proceeded to do this two more times during the day. I have decided that this is like shoveling feathers in the wind. I left the clothing where it was.…
-
DH is currently independent in self care
My DH was officially diagnosed with early stage Alzheimer’s. I find it’s easier to talk less and less since most things I say are doubted, challenged, questioned and I have to explain and repeat.His talking about what will probably go wrong, like when our daughter plans to meet us, saps my energy and spirit. Also wearing…
-
Geri-psych saga continues with hopeful news
For those if you following our story, after two weeks in a medical bed, my DH with aggression problems was transferred to the hospital’s Geri-psych unit on Monday. I was very pleased because this unit has a good reputation for not discharging patients until they are really ready. I am finding out that my husband’s issue…
-
New Group for Middle Aged Caregivers
Please join! Go to the GROUPS tab on the home page or copy & paste this link (sorry that I can’t get the hyperlink to stick!) https://alzconnected.org/group/43-middle-aged-caregivers-support-group
-
Frustrated with finding Geriatric care
Three days ago, I called the memory clinic to inquire about practitioner that was scheduled with DH today. The receptionist said there was only 1 geriatric doctor and she only works one day a week. She said the practitioner was very good and could prescribed medications. She would give my DH a short test…. So I decided to…
-
New Here - Looking for help for brother
Hello, I've been lurking and reading discussions for a few months now. Our family became concerned last fall. The ball got rolling after I scheduled the PCP appointment my brother had been procrastinating. That was in Feb. A few weeks later we got in to see the neurologist. He scored 22 out of 30 on the assessment that was…
-
memory care
What is exactly memory care? How do you know when it is time? When they don't recognize you anymore? hard to handle?
-
Picking up the pieces
where do you start when you don’t know how or where to start? My husband has been my life for 30 years. I just don’t know what to do with myself. I had to place in a MC facility & I just can’t believe it’s been 3 months and I still haven’t left my house except to go visit him everyday.
-
Hygiene issues because he hates being wet
For a while, I could get my DH to shower every few days and he had no trouble doing so on his own. I just needed to remind him to use soap and shampoo. A few months ago, he just absolutely refused to go into the shower. He said he didn't need that anymore, it was too small, stuff like that. So I bought some microfiber…
-
Anniversary #47
It's our wedding anniversary today. I'm just really sad because nothing about our marriage turned out the way I thought it would. As background, we found out after we placed my DH in MC that he had (seemingly) been unfaithful, was deeply into porn, and even had pictures that may have been illegal (or borderline). Even…