-
Quetiapine
I have mentioned here before that my DH has been taking Quetiapine at night only. This past Sunday, I noticed that he was restless so I gave him a pill in the afternoon. It seemed to work in the reverse. Made him more delusional and very agitated. On Monday and Tuesday, I gave him dosages in the afternoon and the delusions…
-
Memory loss in my husband and change in personality
I am new to the group. My husband has not been diagnosed, he refuses to talk to his doctor, but he forgets things right after we spoke about them. But my biggest concern is his mood changes. He becomes so angry with me about anything and everything I seem to do. And the next minute he is back to his old self. I really just…
-
Mental health service for caregiver
I am noticing that developing or picking up some of my Maggie dementia related behavior. Where can I find mental health professionals who specialize in dementia and caregivers?
-
Incontinence help!
My DH has been urinary incontinent since December 2023. I have tried everything, every overnight product on the market (yes parentgiving as well), doubles, extra pads, 5 washable bed protectors for leaking. I have pretty much stopped the leaking to the bottom sheet with the 5 washables BUT the top sheet is wet every day,…
-
Absent wife
Hi everyone! I'm having great great difficulty coping with my precious wife of 61 years being in a memory care facility suffering from dementia
-
Does aggression and agitation fade as the disease progresses?
My DH is 68 - Alz diagnosis after PET scan and MRI and testing - has been highly agitated for months. I had locks on all our doors and gates as he was constantly trying to get out and would become very angry with me as his "jailer". He could have moments where he was sweet, but after needing 911 to help get him inside…
-
#2 and and AM confusion
My 44 bf who has eeoa for the last few weeks has been super disoriented in the mornings. I have to help him fine the bathroom and tell him to go to the bathroom. "Pull your pants down and sit on the toilet". Which takes a while as he will go in and out of the bathroom. Also he has stopped wiping his bottom after #2. I tell…
-
Posting in both forums - Staging Tool and (shocking) Caregiver info
-
Showers
Why does husband always refuse to shower? We live in assisted living they will help but he refuses.
-
When is it Time to Move?
Good Morning, What are the signs that indicate it is truly time to move a parent who is in late stages of dementia to a Memory Care residence?
-
I feel like I'm constantly giving in...
Maybe this is the way it needs to be, but I find myself constantly giving in to DH's requests/demands just to keep him content and prevent him from getting irritated. Example…it's VERY VERY HOT right now but he wants to go for a walk. I suggest waiting until after dinner when the sun is not so hot. He says OK. He asks me…
-
Bidets
I read the old discussions on bidets from 2021, and found some good suggestions. I'm wondering about brands, updates, current suggestions as I plan to buy one and have it installed. DH and I have discussed before, he is not interested, but since I have ongoing bowel issues myself I think I can fiblet an explanation he will…
-
NYTimes.com: Learning to Love My Father as His Mind Unraveled
This article is free for everyone to read: https://www.nytimes.com/2024/06/15/opinion/father-dementia-family.html?unlocked_article_code=1.0E0.jqBS.sBINCeGly_Zg&smid=em-share Lots of things in the article will resonate with many of us. The experience of living with my father’s dementia ranged from tragic to tragicomic to…
-
Stages of Alzheimer’s
I am not familiar with the stages of Alzheimer’s. My husband is 81 years old and first exhibited signs of dementia about 5 to 6 years ago. Now he would not be able to live alone. He sometimes can’t find the trash can, the bathroom and other things that should be familiar. He thinks he is still working and sometimes needs…
-
From The NYT: The Ethicist- Spouse with Dementia
I have so many thoughts on this starting with "has this columnist ever lived with a PWD?" https://www.nytimes.com/2024/06/14/magazine/husband-dementia-divorce-ethics.html?unlocked_article_code=1.z00.2GoA.8KLGpmxh2ufJ&smid=url-share
-
Shout out
Every morning I come to the forum before my day starts. i read, learn and try to share when my experience might be helpful. If I have nothing to add, I still respond with the buttons below the posts (Insightful, Like, Care, etc). This morning as I read your posts I was filled with many emotions: Gratitude, empathy,…
-
Another Step in the Progression
My DH is 86 and was diagnosed with Alzheimers in August 2021. He remains gentle, with a sense of humor, and in good physical shape for his age. He still volunteers at a community garden which he has done for 17 years. His fellow volunteers know him well, are protective and caring, so I know he is safe while there. The…
-
I'm finding respite to be hard on me
I took my husband to the facility hospice found for 5 days respite care. Red flags as soon as we arrived. I won't tell the drawn out story, but it was dirty and didn't feel safe so I took him right home. I spoke to his social worker and she made arrangements at one of their facilities (it was the backup option because it's…
-
Things are a little less terrible
My DH is on his second Geri psych hospitalization this month at a facility about an hour away. I’ve been trying to get him help for his agitation and aggression, as well as for his anxiety and depression. Thanks to all of you on this forum who’ve provided support and great suggestions for our situation. The APRN is trying…
-
Very disappointed so just venting
Just lost a bid for a house that's closer to DH's MCF, under a mile. I've been looking since last November and finally found one that was almost perfect. Although bids were the same amount, seller chose the cash offer—who has $2million cash?? I even wrote an impassioned letter along with my bid as to why I wanted to buy…
-
Cameras
Can anyone recommend cameras that are simple to set up and operate? thank you
-
Hospice and end stage Alzheimer’s
UPDATE and RECAP: My husband with Alzheimer’s, diabetes, etc started hospice care March 8th, 2024. He is 71, and was diagnosed with MCI 8 years ago, which quickly progressed to an Alzheimer’s diagnosis through a spinal tap done to check for biomarkers. I am 62. Anyways, hospice gave him 6 moths give or take when he was…
-
Going out coming to an end?
My dh has been living at assisted living and has now been moved to the memory care unit where he gets more support (help showering, making sure he changes clothing—I don't think he's incontinent). Every Sunday I take him out for lunch and to take a walk somewhere—the mall, a store, a park, a variety. But I'm afraid that's…
-
Seroquel and now he’s showering again
The neuropsychologist increased the seroquel to 25 mg twice a day and now my DH is showering again almost daily! (Happily!) Before he would give in and shower maybe once every 5 days. And -he is so much more manageable in the evenings. For weeks he was incredibly agitated about going “home”. He would go back and forth to…
-
antipsychotic meds and dementia
Others are likely very aware of this, but I just saw an article on a new study from the United Kingdom about adverse reactions in people with dementia from antipsychotic drugs. If anyone is interested, the article I saw was in "Worst Pills, Best Pills News" June 2024 issue. Perhaps someone more tech savvy than I can post a…
-
Just need to talk to my friends (196)
Amazing how fast we got to page 20 this time. We are good friends and we like to talk. We almost had more rain this afternoon but ended up with only thunder and a sprinkle. The weather man just said there will be bad weather all through the south tonight. Prayers for everyone in the path of the storms. David, it's May…
-
Stuck on going to CVS to demand drugs
My DH does many things repetitively, and I can usually deal with it because it's just me. But now, he insists on going to CVS to ask for medication but he has nothing to be filled. If I try to redirect or explain, I'm a bitch who wants him to suffer. I even got an old prescription refilled hoping he would be satisfied, but…
-
I feel like I’m in another country and don’t understand the language
Today my DH had a follow up Dr appt for his last ER visit. He told the doctor he didn’t remember being in ER and feels his memory is getting worse. After the visit, driving home, he seemed worn out. He turns to me and says “I think I have it” and I asked what does he think he has and he says I have “it.” It is what his…
-
Should I or shouldn’t I?
Should I involve my DW, early-mid stage, in planning for later stage care? Thinking about things like bringing in a hospital style bed and sit down shower, other changes to make the home safer. On one hand she will object, now, for aesthetic reasons, on the other hand I feel it might not be good to “spring” such things on…
-
Sorting
My gal likes to sort stuff. This is mostly making piles according to some mysterious logic. This has a soundtrack that goes with it: "this goes here, and that goes there, and this goes here, and....." and then a resorting. it can be magazines, or picture books, and unfortunately anything i leave in plain sight. Bills,…