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Lots of ‘Pams’
Looking for some feedback on lorazepam. Hospice is suggesting (for nighttime when it gets very difficult) getting off of temazepam, increasing serequol and start using lorazepam as needed. Anyone been through a similar path? She sleeps well on temazepam it’s just getting there that’s the challenge.
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Well Meaning Friends
My husband is losing memories. It’s funny, how we’ll be at a dinner party, or run into old friends at the supermarket, and he tells them he is getting forgetful. In most cases, they immediately respond with, “Me too!” and then go on to tell of forgetting where they put their glasses, failing to remember the name of a prior…
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Possible diagnosis
Waiting for the diagnosis to come in but considering what it’ll take to just admit it’s Alzheimer’s. The Amyloid score was 44.3 and he is clearly symptomatic. (Been about 2years) This waiting phase is hard - I want to start reaching out for help and notifying family. But the neurologist follow up isn’t for another month.
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What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting with him has become such a mentally exhausting task. I find myself thinking "oh, I'll just tell him about this" and then I realize I…
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Quick question
My DW is in late stage 5. The past month or so she has begun to shadow me wherever I go in the house. I tried daycare last couple of weeks which was a disaster. After about 2 hours there she began to cry uncontrollably saying that I left her there and wasn’t coming back. Today DW,s aunt came over to watch her while I got…
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Palliative care
Hi all it’s been awhile since I had trouble with my password 🤦♀️ my daughter keeps wanting me to get my LO on Palliative Care. He is diagnosed Alzheimer’s stage 4-5. Our biggest problem now is getting him to eat. He just says I already ate or I’m not hungry. He talks to himself ALL day, I just don’t know if he would…
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seroquel
Hope everyone has survived the day. I'm searching for a solution to my newest dilemma and hoping you fine folks on here can shed some light. My DH is experiencing some hallucinations (people in the house, vehicle, etc), as well as ever increasing agitation, temper tantrums and fractured sleep. I've scheduled an appointment…
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I Want To Live With Someone Else
My spouse with nearly complete aphasia has managed to pull out that full sentence for a couple of weeks now. She is soooooo sick of me being her caregiver. I now represent the person controlling her life and keeping her from driving to go see friends, etc. Which I am, though I'm providing her a safe, loving and comfortable…
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Do I let go or keep going?
My SO who is 46yo EOA is on hospice but thus far it has been more of palliative care. This last week has taken a HUGE turn. The week prior he was up and walking around during the day and would be resting/sleeping when I got home after work from about 5pm till bedtime (8pm/9pm). This last Thursday he lost balance and fell…
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Hospice and new strategies
Good morning. Some off you know me. Briefly DW diagnosed in 2019. Clearly in later stages. I tend not to use the stage number because it gets confusing but she's clearly in stage 6 area. Non verbal except jabbers all the time in a sort of distressed manner. I think it would be classified as global aphasia. Not totally…
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Husband has dementia plus OCD
I hardly know where to start! My husband has a physical disability and has had symptoms of OCD (never officially diagnosed) for many years. The first signs of dementia started about ten years ago. I don't think it is Alzheimer's but three different providers have called it dementia (frontal-temporal or even Lewy body are…
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Loved one is too restless, won't sleep or rest
Hello, my wife will only sleep a few hours a night, and when she's awake she cannot sit still or lie down to rest for more than a few minutes. Then she wants to walk around the house, again and again and again. She needs assistance walking, so this need for constant attention puts a strain on myself and even our 24/7…
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Tired and Sad
I thought I was handling things quite well. But short of sleep for the last couple of nights then this morning started at 5.30 with DH saying come on get up, I mumble back, 6 o’clock is get up time and then we’ll have a cup of tea. DH was agitated thinking we had a doctors appointment and we had to get ready. It’s Saturday…
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Agitation emotional swings
My DW is in the moderate stages. She had been sleeping well through the night. But lately she has been waking in the middle of the night or very early in the morning with wet depends. She is then very emotional, often crying uncontrollably, and refusing to let me help her get changed. Her mood swings have become frequent…
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general anxiety
hello-I am new to this group and discussion forum as my husband is now in a group home/assisted living facility and I am on my own. The more time away from each other, the more memories pop up that now seem 'weird' and signs of the dementia beginning, but I had no idea and just shrugged it off. Over and over agin, doctors…
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Another UTI
My husband has yet another UTI but we were able to keep him out of the hospital this time. He is non-symptomatic when he has one. He was hospitalized a few months ago for 3 days with a UTI, pneumonia and sepsis. He was so disoriented in the hospital, trying to leave, get out of bed, pulling out IV tubes, etc. He doesn't…
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Dentist appointment
Have an upcoming dental cleaning appt scheduled for this Tuesday and not looking forward to it. The last appt, 6 months ago, was uneventful. However, in the last 6 months, my DHs patience level has disappeared and his agitation levels have increased. I will be bringing his new sitter with us, but any insight as to managing…
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What next?
My wife is somewhere in stage 7 and still at home with me. I tried her in a memory care facility 6 months ago for a short time. She suffered a bad fall so I brought her home. Her condition continues to deteriorate. She is able to walk with me assisting, but she cannot get out of bed or a chair. She is barely staying awake…
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Drained
It has drained our pockets dry. Pray for us.
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Book: The 36 Hr Day
Greetings all. If you have read this book, what things seemed to stand out or "jump off the page" to you? I have been cherry picking my way through the book and know I have so much to learn. Thank you. Take care.
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Keeping a loved one at home vs nursing care
My husband has early onset Alzheimer's, do many people going thru this same thing, keep there loved ones at home vs nursing home??
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Just as my DH is forgetting who I am, I am also forgetting who he is.
It is so hard to remember the old DH - the one who made me laugh, who took care of my car, the finances, and the heavy-to-lift things. He is quiet now, very suspicious of my "boyfriends" who seem to be everywhere, and rarely smiles. He has to be fed and has a hard time swallowing, and most meals have at least one incident…
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What can I do?
My DH is somewhere around stage 6 and we’re dealing with a repetitive behavior which I can’t seem to break. He goes through hours long periods at different times of the day where he constantly gets up to pee. Usually he just goes through the motions and doesn’t go. This happens every 2 to 5 minutes. He’s has other…
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Just need to talk to my friends (211)
Carl. I remember George Gobel but hadn't thought of him.in years. My sister had a fig tree in her back yard and she really enjoyed them At the VA Hospital there was a big fig tree between two.of the.buildings across from the main hospital. We called them the quarters where Doctors used to live. Eventually the doctors moved…
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progression question
Hi all- I have a question for those of you that have spouses who have advanced from early/mid to mid/end stages and this may sound dumb. Can you share how that change happened? Currently, my DH is in early/mid where he is still driving and technically still working even though the walls are closing in and he will be let go…
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You Might Be A Caregiver If...
My morning got me thinking of that old comedian who used to do the, "You might be a redneck if…" If anyone listened to the things I say, agree with and do on a daily basis, they would surely think I had lost my mind. Most of the time, I don't even think about these responses anymore. The simple agreement with odd phrases,…
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How much is too much?
My DH is in early to mid step 5. I still work and he is at home by himself all day. I recently installed cameras so I could keep an eye on him. I’ve noticed he sleeps a lot. Today he told me he had slept most of the day and he doesn’t understand why. He’s wondering if there is something physically wrong with him. Should I…
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New member
I’ve been following this forum for some time now & finally figured out how to join. Having the real experts so handy with experience & suggestions is a Godsent help! My DW is 75 and been declining for about 5 years. Have to help her with about everything, but happy to do it after 51 years married. Biggest challenge us how…
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General housekeeping, found a little money
I took over responsibility for bills a year or so ago, credit cards and all. We have various loyalty accounts from banks, from credit cards, and from traveling, points with American Airlines, Southwest, etc. Over the past year I have combined/closed various accounts. Closed a checking account at a bank we no longer use.…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.