-
Traveling with AD, asking for help, lonely journey, how to cope?
Hi, I am new to this group. I am actively looking for help now. For the past 6 months, I have been struggling to care for my partner who is in moderate stage AD. Prior to that I was caring for her, but I was not so stressed about it. We are on a vacation now out of state after staying home for about one year, since the…
-
New Diagnosis - Vascular dementia
Hello Everyone, Glad to have found this group. My spouse was recently diagnosed with vascular dementia. Can you suggest any resources or experiences? Thank you. Hope4Tomorrow
-
Where to go from here?
I don't post often anymore for my own mental health. DW is her 4th year of late stage 7 14 years from diagnosis. She is 72 and in memory care since 2017. Cost is $150,000 a year. We have it due to a lifetime of hard professional work. Most folks don't and I know that. We just gave out the national award honoring DWs…
-
Ambulance ride alone?
I've been thinking that another fall from a standing position is imminent with a serious injury. I hate those 1am calls that she fell out of bed again but what really concerns me is her falling standing up. If she breaks something or is seriously injured and an ambulance is called, she will be terrified being alone without…
-
Significant Decline
In the past month, my DH has shockingly decline - confused most of the time, getting up at night and fully dressing, somedays not able to shower himself, fell once, lots of dozing during the day, language challenged and cannot follow a simple one-step request. I had a urine culture done yesterday and I am waiting for the…
-
Bathroom Help
My husband had begun getting to the bathroom just in there and will urinate on the floor. His walking is bad so I bought a bedside commode, put puppy pads under it since he doesn't always hit the pot, sat it on a computer chair mat so he wouldn't hit the carpet and this morning he stood up, did not even get close to the…
-
Medicare and caregiving
I thought someone else might have started a thread on this, but I don't see one. Evidently Medicare is ready to test the waters on finally helping.
-
Hoarding
My DW with Alzheimer's will go into any room and start picking up random stuff and walk around with them. She will then fuss with them and sometimes put them where I have to hunt for them. This can be frustrating if it happens to be a remote control, our check book, or my Iphone. Does anyone else have these issues?
-
And so it goes…..
DH just asked me if I know where our daughter is. I told him yes, she lives in Colorado Springs. He then asked if she has a husband. I said yes his name is ….. and then he asked does she have any kids. I said yes but they are grown up now. Going, going, gone. And so it goes with dementia.😢
-
Mixed Cortical and SubCortical Vascular Dementia
My DH was diagnosed with MCI May, 2021. He has progressed to what I think is late stage 4 with some early stage 5 symptoms according to the Tami Cummings chart. Since his Mother plus 4 Aunts all died from Alzheimer’s and his sister is currently in hospice with Alzheimer’s, I just assumed his was Alzheimer’s. We started…
-
Making stuff up
My DH is constantly making stuff up, from what I understand it is his brain trying to fill in the blanks. He was diagnosed with dementia caused by Alzheimer’s in March of this year. It has been a long journey to get to that diagnosis. Anyways, back to making stuff up, for whatever reason it bothers me that he does that.…
-
Seroquel
Anyone have experience with how long Seroquel will help with hallucinations and delusions? DH has been on it now for about 2 months and it has worked great with hallucinations but he is beginning to have them again. I’m almost at max dosage for him (can still add half a pill or 25mgs). I really don’t like how it makes him…
-
How long on Namenda?
Hello, fellow travelers on this painful road. We as a family have reached the torturous decision to place my DH who is in stage 6 with mixed dementia, in memory care. He has been approved for Hospice although he is not fully incontinent, can feed himself and go to the bathroom, buy needs assistance with most ADLs. His…
-
Thanks for the help as I go through this
It is so nice to see others are going through what I am going through. Here is what is hard today: 1. I feel like I am talking in circles, explaining and re-explaining things. Sometimes we talk about a subject just to find out that he has completely lost what that subject was. 2. I was asked where his glasses were no less…
-
Every moment seems to be a challenge
I think I’m just needing to share what I’m feeling. I know there are no answers. My DH is stage 6 Alzheimer’s with PPA as well. He’s 73 and I’m 62. He is still sweet most of the time but of course gets frustrated with me sometimes. I try so hard to follow all the rules regarding just answering questions over and over again…
-
How to make time for calls etc. that involve talking about his dementia when he's always listening.
Hi there. My DH has dementia and I"m finding it difficult to make arrangments / schedule appointments and give those people background information on what is going on when my DH is always within earshot. He is usualy glued to my side. I feel guilty making up an excuse to get out of the house to make calls or even to start…
-
Today is my birthday
My Dh wish me happy birthday this morning :) The rest of the day has been all about him. Dh is pretty cognitive. Suggested we go out to eat,no. Was more worried about what he wanted Sounds very petty to complain but is this what it's going to be like? Very how can I say it, self absorbed or like a kid wanting to do what he…
-
How do we know the best next steps
I’ve reached a point where I’m withering under the strain of my DH’s disease. He’s in stage 6 Alzheimer’s and has PPA. He can do nothing for himself. I bathe him, shave him, pick out clothes and help him put them on correctly, cut up his food and feed him, make sure he has water and takes his medicine which he doesn’t even…
-
waste of time and energy
Hardly know whether to post this, I think I am just venting and looking for validation from people who understand. Right after my partner fell in early June, there was another attempt by her old "frenemy" to visit her without notifying me first. Fortunately the password system at the front desk worked and they didn't let…
-
Rivastigmine impact on bundle branch blockage
Yesterday my DH's doctor evaluated three successive EKG's (done in under 18 months) that indicate my husband has developed blockage in the conductivity of the heart in all but one branch. Dr. says it is likely due to rivastigmine. Dr. still believes the usefulness of the drug outweighs the risks. Does anyone have any…
-
This morning’s bathroom disaster
I just need to complain for a minute.DH, now dipping a toe into stage 6, announced this morning that he had to pee. When he came out, he had clearly done more than that. The toilet plunger had been used, and it didn’t smell good in there. Everything looked ok, though. His towel had been hung up and looked reasonably clean.…
-
DH in the hospital for 3rd time in 10 months
For the third time in less than a year DH has been admitted to the hospital for a skin infection. This time is the worst so far, I'll spare you the details but he's looking at at least 6 weeks with a wound vac. Since he has no clear cognitive impairment diagnosis in his records no one is listening to me about anything. I…
-
EO Stopping Work
for those whose LO had to make the decision to leave work. How did you help them through the depression? My DH is struggling with making that decision even though he knows he should. He has been a workaholic his whole life. I think he is worried about not providing that income and feeling like he has nothing left if he…
-
Support Group in Las Vegas
We are a gay couple, and recently moved to Las Vegas. We've been together 27 years and my husband has been diagnosed with Alzhemiers last year and he has started Leqembi infusions (9 times) for far. We are hopeful that his condition would improve. He is not as sharp as before. I've done everything that the doctor suggested…
-
As caregivers what do we do with all those feelings.....
As I look forward to going to work this morning after a long weekend with DH, I feel guilty leaving him home. But at the same time relieved I am leaving to go to work. DH is still able to be by himself for periods of time and between a combination of home health and my ability to telework he is taken care of. I have to go…
-
I want out!
Most of this is just a vent, but I really don't want to do this any longer. My HWD (I can't even call him my DH now) has become so mean. We recently visited with my sister and her husband along with other family members. My HWD has been telling me that he married the wrong sister! He says my sister is smarter, thinner,…
-
Rough Week
Another rough week. I thought I had all the documentation to apply for Medicaid for my DH. The lawyer told me I still needed more. Now I have everything except two documents an I am waiting for them to be mailed to me. If they don't come soon, I will be paying Another $6,530 to the MC facility. Since I've already done the…
-
Any Gay men out there?
I am a Gay guy living in the Southwest, taking care of my husband who has moderate memory issues. It would be helpful to communicate with another person in my situation. Thanks.
-
Should I Tell His Family?
My DH (61) was recently diagnosed with MCI most likely due to ALZ. There’s family history and his IQ has plummeted. He had the full neuropsych work up and that was the conclusion. He’s somewhat in denial, but is coming to terms. He doesn’t want me to tell anyone. I’m seeing declines monthly. I have no clue how fast this…
-
Medicaid (MD)
Trying to understand. When an individual gets to a certain point in paying for medical costs, they can approach Medicaid. From what little i have read, there is a provision where they wil require the individual to spend their own resources until they reach a certain limit. In MD 2500 (?) for individuals and a higher amount…