-
Should I or shouldn’t I?
Should I involve my DW, early-mid stage, in planning for later stage care? Thinking about things like bringing in a hospital style bed and sit down shower, other changes to make the home safer. On one hand she will object, now, for aesthetic reasons, on the other hand I feel it might not be good to “spring” such things on…
-
Sorting
My gal likes to sort stuff. This is mostly making piles according to some mysterious logic. This has a soundtrack that goes with it: "this goes here, and that goes there, and this goes here, and....." and then a resorting. it can be magazines, or picture books, and unfortunately anything i leave in plain sight. Bills,…
-
SSDI for Early Onset
for those of us who are still working while on this journey and your significant other has had to stop working and applied for SSDI. I have a couple questions. At what point did your loved one stop working? It is my understanding this disease is considered a compassionate allowance under SSDI. Since we are officially…
-
In -home Care, Topanga, Ca. sources
-
“I don’t belong here. I don’t belong anywhere.”
My DH has started saying this on an almost daily basis. He was DXed June 2021 with mild mixed dementia (ALZ and vascular) and has progressed to what I estimate to be mid-to-late stage 5. I started him at a day program two days a week and on citalopram 15 months ago. Three weeks ago, via a geriatric psychiatrist, we added…
-
Hospice timing with Alzheimer’s .
Hello, My husband is 71 with vascular dementia and was also diagnosed with early onset Alzheimer’s about 8 years ago. He also has diabetes and coronary artery disease , along with a couple of other things He is mostly in stage 6 Alzheimer’s, and has declined a lot in the last 2 months. He can no longer be alone, tries to…
-
One success, one scare and one funny
Success—took my HWA to an adult day care for the first time today and he loved it! Scare—have an appointment with an oncologist tomorrow to investigate some odd blood test results. Funny—getting ready for bed last night and my HWA looked at me and asked, "Just what is your purpose here?" 🤔
-
Reading post
How do I read someone’s full post?
-
A good Geri psych is hard to find and even harder to get into
The quest for psychiatric help for my DH continues. My husband came home from 2 weeks in an acute care Geri psych unit not much better than when he went in. I’ve been trying to get him into one of the two non-acute Geri psychs in our state so that all his psychiatric meds can be adjusted. Apparently the acute facilities…
-
Dementia
My wife was diagnosed in Feb of this year and she has asked why she has that problem, I have told her why but she denies she has dementia. It has been hard to but I have gotten better which consists of listening and being patient. Things have changed. Is there any suggestion?
-
Heartbroken
I know I'm not the only one but I am just so sad. I make myself get up and go through the motions of life everyday but it takes all the energy I have. Knowing I will be without him someday is breaking my heart. The tears won't stop.
-
I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
-
Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
-
New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation
-
Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
-
Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
-
When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
-
This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…
-
His words - so true.
DH is silent most of the time now. He sleeps a lot too, but lightly. Catnapping around the clock here in early Stage 7. At any time I may realize he isn’t fully asleep, but eyes are closed. He may open his eyes, semi-smile and make clear eye contact. He may or may not say anything - well at least not in words. I sit next…
-
Extreme anxiety, fatigue, apathy in DLB
I have done a lot of internet searching but can't find these as major symptoms. After about a year of testing my spouse was diagnosed with MCI, probably caused by DLB and secondarily by Alzheimers. Most days she awakens early worrying about something, then when she gets up about 10 she immediately feels tired and lies down…
-
New to the community - First post
Hi all - This is my first time on the site and my first time posting. My DW was diagnosed with MCI but no definitive diagnosis of Alzheimers yet. She is most likely still in the early stage but when she is stressed or in an unfamiliar environment her symptoms get much worse. She was diagnosed with MCI by a neurologist at…
-
Trouble Redirecting
Hi all, My poor DW. She's spent the last several days crying, asking about why there is such distance between us. Like our relationship has changed and I don't love her anymore. Of course I do, it's that she is moving further along and away, but she can't grasp that. I can't seem to get her off of it. She's a former…
-
Agitation and anger and a couple of questions
My DH is starting to have angry outbursts when things don't go his way. It's intermittent but noticeable. For example, he gets easily frustrated around tasks that used to be easy for him - the TV remote is the most recent source of frustration- he has replaced the batteries several times in the last few weeks, blaming…
-
Help locating text
I have not been able to find a post that was a very good point by point summary of advantages of MC vs home care. It was not an account of the writer’s experience but was in response to someone else’s. I believe it was 2-3 paragraphs. I’ve had no luck finding it with the Search function and am hoping someone remembers it…
-
Anticipatory Grief resources
Does anyone have any idea on where I can get help with this? I will soon be in a Grief support group due to my mom passing. But the grief of seeing the changes in my husband has been so difficult. As I see each new thing, he cannot do it hurts. He knows I am an important person to him, but I am not totally sure he knows…
-
Funny- “ The Calvary Isn’t Coming “
About 3 am DH comes busting in my room and tells me in no uncertain terms that “I will never be the Queen of the Castle and that this is his house and I’m a squatter.” I was so darn tired that I started laughing uncontrollably. That didn’t sit well with him. I still can’t keep my mouth shut. When I think he’s downstairs,…
-
just placed in memory care
Just placed my DH in memory care 2 days ago. He was diagnosed with Alzheimers in 2021. I spent the first day with him getting him settled and talking to the staff. DH doesn't understand why he is there and is very sad, tries to argue that he is fine and wants to go home. The second day, I went to visit, took him for a walk…
-
End of life
My husband is close to the end of this terrible disease. I live in Broward County, Wilton Manors. He is not on hospice what happens when dies? We have cremation paid for. Will they take him to do an autopsy or will I just call the funeral home? I want to bath him and dress him in his army uniform . I want to be prepared…
-
Change in handedness
My husband is right-handed. Recently I noticed he is using his left hand and not his right. Has anyone else seen this happen? I was curious why he is doing that now. He is in the later part of the middle stage. I tried looking it up but could not find an answer.
-
Primary language
My DH's father was Mexican and mother was hispanic from Texas. My DH was born in Juarez and grew up in El Paso and his primary language was Spanish. He learned English threw the years and was fluent in both languages. As the disease is progressing he is speaking more and more in Spanish to me (which I understand very…