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My partner and her head
Hello there I’m new to this world of TBI and 19 years later I’m faced with my partner who has not been diagnosed yet but I’m seeing some major changes in her behavior especially over the last month and a half. Just a little back story in 2005 she fell down a flight of stairs and cracked her skull had 3 brain bleeds. Fast…
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Family counseling for transition to assisted living for L.O.
Experiencing conflict and resistance from family and spouse, who is in middle stages of dementia. What are the best resources for this.
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Emotions all over the map
I am new to this. DH has EO. We are in the 6th since diagnosis.In the last year he has really declined I am helping him with everything feeding,dressing, it is so difficult watching your spouse of 47 years wither to nothing. I feel like I have been in mourning since day of diagnosis. I feel so alone. I now will have a…
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Medication alarm
I’m looking for a dispenser that will allow pills to be dispensed at a certain time. If the pills are not dispensed, I want a ringer or alarm to ring again and continue to do so until the medication is dispensed. Like the alarm on my cell phone. Any suggestions. Thanks!
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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Having a bad delusional episode
So, is it true that I can take my mom to the ER if she's super bad and tell them I want them to check her vitals and make sure she's not having a stroke and then say I can't take her back with me because she won't be safe? I've been told I can do this and that they'll help make arrangements for a facility, even if it's…
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Update
As I posted last week, DH is now in a greipsych unit about thirty miles from here. I haven't gone to see him as I think it would just upset him since he would want me to take him home. They have been very good about keeping me updated. So far, the Dr. has increased his Depakote, taken him off Trazadone and put him on…
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How to honor parent wishes
Hello. My mother is living with Alzheimer’s and her primary caretaker is my father. He is a high functioning alcoholic, and struggles to care for her properly. my mother‘s behaviors have escalated to the point where I question if she can remain home even with in-home support a few hours a week. my mother and father have…
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The Move to ALF - missing anything?
So we have decided on an ALF for my mom. She can’t afford it all on her own even with Medicaid so my siblings and I must make up the difference. I have laid out the finances and sent in an email to all of them. All but one has responded in agreement. The last one hasn’t taken my calls or texted back. I am proceeding…
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HEARING THINGS
I enjoy reading and lately while reading I have been hearing music that seemed to be coming from outside. (Let me say that we have central air when the house gets too cold, we shut the air off and when the house gets stuffy, we turn the floor fan on.) I thought that I was going crazy and went outside to see if I could see…
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Lonely but longing to be alone…
Hello- New to posting, though I have looked in on others for several years. My DH (age 70) has Alzheimer’s and Vascular Dementia, heading into moderate stage although not yet problems with ADLs. We have known this was coming (through testing) for around 10 years. Slow progression, so I feel fortunate for that. SO many of…
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Seeking insights about brain autopsy
Hospice called and reminded me to make final arrangements. DW was weighed at 100 pounds, she’s 5’-7”, and this is a drop of nearly 3 pounds from her last weighing. Her aides have reported that she is only eating about 25% of the food offered her. She hasn’t opened her eyes in many weeks that I have seen, but they tell me…
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Over it!
I am in the worst mood today and I just can't shake it! I am so angry, and just sick and tired! I don't want to do anything. I am so unmotivated. I just want to lay in bed. I don't want to talk or smile or even try. I am trying so hard to get past it! I am wasting my whole day 😢
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Death watch
I think my partner has given up and is starting to actively die. She sleeps the vast majority of the time, will wake up briefly to eat now and then if I feed her (makes no effort to feed herself that I’ve seen). She must get up a little bit at times that I’m not there because things are still moved around in her room a…
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Are my feelings normal?
My DH is in mid-stage 6 of Alzheimer's disease. We've had a wonderful 22-year marriage. My emotions and attitudes towards him these days are all over the place. When he is ornery, refuses to take a bath or swallow his pills/eat his meals, accuses me of controlling his life, twists my wrist because he is mad at me (only…
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maybe just a late night vent??
I think I may have finally snapped. I called my son this morning to come over and try to help calm my wife. For over a week now, she has been telling me everything is hers, and if I don’t leave, she will call the police. She doesn’t know who I am and insists I get out.” I know this will sound super selfish, but for those…
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Wandering Story with a Happy Outcome
Not every person with dementia who wanders is found safe.
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Choosing identifiable & simple food
I realize this depends on the stage, but have you had success serving food that is easy to identify, one at a time? I see that finger foods are discussed elsewhere in the forum. I've read the suggestion below, on serving food and eating tips and this may be related. I noticed PWD was interested in spicy condiments lately…
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New normal
This is my first post. I’m 54 yrs old caring for my DH who has EO. We are three years into his diagnosis. He has been told many times he has Alzheimer’s by the drs but each time is like the first time. I’m scared of what the future holds. He is definitely not the same person. Mood swings are the biggest struggle right now.…
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I guess it's really time
My husband has FTD with delusions and hallucintaions. He thinks I'm different people throughout the day. He is disoriented and never knows where he is. Several times a week he wants to ride around in the car to go "home" or to the office. Twice last week we rode around for hours until he finally got tired and agreed to go…
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An Introvert in Memory Care
Hi! I know that personalities change with MD (I'm witness to it every day). But my mom is still basically very introverted. She's never been one to be very gregarious or outgoing and make a ton of friends (at least not that I've ever witnessed in my lifetime, anyway). I'm wondering if any of you have any experience placing…
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The neediness just gets me
I saw my Mom at the AL on Monday. She was fine. Our visit ended when the activity director announced a game of Left, Right, Center. Wednesday night Mom called and asked when I’m coming out. I said in a day or so, I was just there on Monday. Her reply- I don’t remember that. Well, of course not. This is basically a command…
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Butterfly wings
Just thinking of you and realized i haven't seen a post from you this week. Hope you are okay.
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Medication
My LO memory has declined according to her recent memory test she had a few months ago. Her neurologist prescribed a medication called Memantine. The first week she was doing fine, but the second week there has been some changes. She tells me she is drowsy, dizzy and feels funny. I noticed her mood has changed since taking…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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FIRST TIME PARTICIPANT: My AAIC code did not work.
All last week I tried to log into ALZ.org online to view sessions, but the staff wasn’t answering emails during the conference and is now in vacation until the 12th of August. Can anyone explain to me how to use the code I was provided to log in online? I learned today from a YouTube presentation that the videos only…
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Mom is nearing the end
I’m sitting with my mom at her MCU. She has deteriorated very rapidly, stopped eating, is mostly asleep and very minimally aware. I live 5 hours away and for a variety of reasons have not visited her in many months. Fortunately until recently we had wonderful phone calls and she always knew it was me. I wish I had come…
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Caregiver for Brother Mid Stage Alz question
I am female, and the lone caregiver for my twin brother who lives with me. He is on the downside of mid-stages Alzheimer's and symptoms are speeding up. We are soon to be 70 years old. He cannot drive, can barely write his name and cannot do numbers at all. Moves very slowly and is beginning to have trouble finishing…