-
10 Absolutes in Dementia Care list
Recently shared by another member here. Thanks @Chug
-
Funeral planning - How does one go about doing this?
Hello, I'm doing some form of funeral planning and I've never done this before, for anyone. Where I live I've been quoted 20k for just a full-body crypt about a year ago. And in 2018 it was 6k, at another cemetery. The 6k price was from 2018 before Covid hit and made everything crazy and real expensive. My question is, how…
-
WALKERS/CANES/ROLLATOR
I am going to the VA on May 3 to see if I can be fitted for a taller cane and walker and rollator. I am almost 7 feet tall and the ones I bought on my own are not tall enough me I have to walk slightly bent over and it causes me some back pain hopefully the VA can help me. It is bad enough that I have ALZ I am going to see…
-
Trying to Help my Mother with Memory Loss
Hello all, This is my first post. I am an only child and my parents live a 7 hour car drive away. Last year, I noticed that my mother was experiencing memory loss, but my father is in denial. Last May, I went up to visit and got her to see a neurologist. Her memory loss has gotten worse. She can't remember how many days…
-
Dementia Phone
Maybe you all know about this but just in case it would be a help to someone I am sharing. When my husband couldn't use his cell phone anymore nor learn another simpler version, I found a cell phone specifically for dementia patients. It is called a RAZ phone. I purchased it a couple of years ago for about $400. You have…
-
I'm so tired.
My great grandma recently moved in with me. I knew there would be an adjustment period, but months later the behavior is only getting worse. She doesn't ever sleep a full night and is just never happy. She is 94 and acts like the biggest diva. Almost like the entire would should be ready to serve her and nothing is ever…
-
Entertainment/Communication
My DH with ALZ always says 'I've see this before or I've been here before' regarding any new tv show, movie or visiting a new place. My mom with vascular dementia never did this. Does anyone else have this issue? It's very frustrating to try to do anything together.
-
Checking in... post-diagnosis frustrations...
Good Morning Everyone. I so appreciate the posts I've read this morning. It is comforting to know that my feelings are normal. I am feeling so powerless these days. As if the diagnosis isn't enough to deal with, it's dealing with healthcare, insurance, the government and lawyers. It's enough to drive anyone mad. Then add…
-
Colon cancer screening -- yes or no?
My husband recently got a colon cancer screening kit in the mail from his doctor. His Alzheimer's has progressed to the point that he can't follow even simple instructions, but he's cognizant enough to push back if I try to do too much to help him. He refuses my help with the kit, but he's also obsessed with it. He woke me…
-
Can’t sleep
I’m still struggling with my DH’s son and friends denial of DH dementia. Today we attended our granddaughter’s music recital. Afterwards, we were invited over to granddaughter’s house. I felt it was important to accept. My DH ex wife was there and they started talking about driving. My DH went on about how he had to take…
-
The Physical Part of Progression
Greetings from my corner of overwhelm and sadness. My DW has begun to show more signs of entering stage 6. She may already be there and mostly I don’t care if I have her in the right stage. Each stage sucks and everyone one of them has included a deeply painful element or elements to it. Though she pops back in to being…
-
Anosognosia in dementia
Hello New to this community and this is a first post - learning to manage the diagnosis of dementia in my 80yo mother which is complicated by what appears to be Anosognosia - which without any experience I had labeled as either being in denial vs an inability to acknowledge due to the condition. Either way it is a…
-
DH got evaluated at memory clinic
After 5 yrs of declining health, cognitive impairment diagnosis 3 years ago and 2 strokes in the past 2 yrs, DH finally got evaluated at memory clinic. Surprisingly clinician Saud he did not see alz. Cognitive impairment and possible early VD. His short term memory is getting much worse, understanding of language is a real…
-
My mom is free now!
She was in hospice at her MC because of a fall that resulted in a neck fracture and brain bleed. She was in a lot of pain even with morphine and lorazapam every three hours. She wasn't eating any more except for a few sips of Insure and the CokaCola I brought for her everday. She started actively dying about a day before…
-
Hospice question
Hello! Two years ago, my dad was functioning quite well. Today, I talked to hospice because he is no longer doing well. Hospice was the doctor’s suggestion. He was diagnosed with Alzheimer’s about a year and a half ago and moved to assisted living with my mother a few months later. I liked my talk this morning with the…
-
concerned
My dad is in a MC. He is probably stage 6 but I don't know for sure. When the aide took him to his room to clean him and change him(he is totally incontinent) he tried to choke her. He has not shown any violence before. She said she was squatted down at the time so I wonder if he thought she was some sort of animal. He…
-
Happy Mother's Day
Today I went to go see my Mother in her nursing home. Yes she is bedridden, in her 7th year of Alzheimer's. She doesn't know who I am or what's going on but I got to pray with her, held her hand, hugged her and kissed her several times. God Bless and Happy Mother's Day to everyone who has a mamma. ✌️
-
Decisions have to be made…
I finally got the official paperwork with the diagnosis with my father’s dementia being official. He has signed Medical POA, and Durable POA. He probably won’t remember any of it, despite it being notarized and all. Adult Protection Services along with the doctor says he is fully capable of making his own decisions. He…
-
HOLIDAY TRAVELING
This Memorial Day my wife and I are going to Poland Springs in Poland Maine for the weekend for the first time since my diagnosis, I hope that I do no act up. The doctor gave me 2 new meds to help slow down the progression of my ALZ. They seem to be helping it is now rare for me to feel like that the walls are closing in…
-
Newly diagnosed AD in DH
Early stage AD, we're told. He's still functional but it's been obvious something wasn't right because he would complain about not being able to focus on his newspaper. If he loses that and driving he will be difficult. I finally got him to the primary and then testing last fall. We finally got a PET scan last month and…
-
Lamotrigine
My mom was put on lamotrigine for her anger. Does anyone have any experience with it? It is not something I have seen discussed here before.
-
First post - Feeling abandoned by siblings
For the past 3 years I have basically been the sole caregiver for my mom with Alzheimer’s. She is currently living alone at home. I expect she will be moving into memory care in the near future. At the start my brother and sister gave excuses why they couldn’t help—no time, can’t handle, lived 15 miles away while I live…
-
At what point do you consider MC
Is there any right time or stage to consider MC for your spouse? Cost is not a consideration in this case. But when is your LO better off in a structured environment than dealing with caretakers that she can't stand?
-
Big Ol' pile of .....
YUP, you guessed it poop!!!! This week's new thing started. As of Monday morning my bf (44yo eosa) has been having an issue with just his first of the morning bathroom duties. Today is my day off and I was so excited to get to sleep in ... haha at 6am I woke to him in the bathroom. (In my head ... SWEET HE DID IT!!) Then I…
-
Wondering if I'm a trigger for my DW at MC
I try to visit my DW every day or every other day at her MC. She's always glad to see me and I her but it's always so difficult when I leave. She either wants me to stay with her or go with me and she gets hurt and upset when I tell her I have to leave now. She still cries telling me "I just want to go home!" I think she…
-
Driving Battles Continue
@kimeche …I can relate and unfortunately it is extremely dangerous for him to drive and we as caregivers are held responsible for their actions, not to mention the unbearable burden of guilt you’d have if he killed somebody. I’m sorry, I am in the same exact spot.💜 And now my rant for the day—My DH got a letter from the…
-
Adult Day Care
Does anyone have experience with the Embassy Forest Hills Center in Columbus, OH? I need to find some day care for my wife who has dementia, and want some personal recommendations. Thank you.
-
Needing guidance
Still at the beginning of this journey ( well officially at least). DH 57 with EOAD confirmed via PET scan. He has his neuropsyche evaluation in June. We had a trust, advance directives, durable POA drawn up several years ago ( before everything). I called a CELA to have it looked over and make sure everything was in line.…
-
Help
My wife was diagnosed with Alzheimer's in March 2023. I can see she is slowly declining...I'm the only caregiver right now and also work a very stressful full-time job. I'm worried about getting to a point where she will need constant care. I absolutely have no idea what to do...I've heard nightmare stories that we'll go…
-
Pool Safety?
I’m new here and this is my first post.. my mother (67) is a few years into Alzheimer’s and still living at home with my father who is her primary caregiver. I am about a 10 minute drive away, often busy with my kids (6 and 3), but I spend time with mom a few days a week to give my dad some down time. Mom is left alone…