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Alzheimer’s-Posterior Cortical Atrophy
I also posted this on Caring for Spouse page. Don’t remember if I posted this already but I recently realized symptoms my husband had early on several years way before diagnosis. He complained of dry eyes but I think he just couldn’t describe what he was seeing. He also had difficulty spelling common words and doing simple…
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Caring for dad
Hello, I am at a loss for words as to how to handle my father with dementia. He was diagnosed over a year ago and was holding up ok for awhile but it has taken a turn for the worse. Recently, he has become very aggressive and has become physical with his family. I had to call 911 this week because we just couldn't handle…
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The Long Goodbye is Over
My dear husband passed away early Monday morning. He was at home and with me and our two children. He was diagnosed 3 1/2 years ago and had been slowly progressing over time. He was always cheerful and I am so thankful for that and for all of the support that we had. About three weeks ago, he was becoming so weak that we…
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Did the SLUMS test....outcome....Dementia
Hello, I really don't feel like I belong here bc I don't know all the big test names that everyone else seems to know, but I'm scared and looking for ppl who understand. I've had a brain MRI that came back as normal, But I knew in my heart that something is majorly wrong with my memory, so I requested to have a cognitive…
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Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account executive/community liaison for a hospice company, where I have learned so much already. My grandmother also has dementia, so I…
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New member
Just signed up today! Hope to get a better understanding of what is yet to come.
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How to respond
My LO has recently taken a large turn for the worst. I am 12 years his junior and still work full time but have homecare during the day. It is getting much more difficult at nights. He keeps asking every ten minutes for me to take him home or he needs to go home. I say ok lets go and a lot of times I will drive around the…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day. In…
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What does having a short memory loop feel like?
I wonder what a PWD with a short memory loop, unable to create new short-term memory, feels like? For example, when I wake up from sleeping, I may remember some dreams, or maybe having gone to sleep. Maybe a better example is awakening from anesthesia. In either case, you remember very little until you go about the process…
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When’s the time for a nursing home?
Hey everyone, my dad is 94 with stage 6 Alzheimers. He lives with my mum who is 90 and they’ve had carers 3 x a day. We are in the UK. Dad’s just had a hospital stay for getting on for two weeks due to an infection. He’s very wobbly on his legs and has had some falls. He can’t shower by himself or dress himself and he’s…
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"Ants in his pants"
Has anyone experienced what i call "ants in his pants"? My DH can not sit for more than 10 minutes. He keeps going to the kitchen, opening the refrigerator, freezer, kitchen cabinets looking for something to eat. He just won't sit. It is so exhausting as I have to get up and see what he is up to? Any suggestions?
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Leqembi update
After four infusions we had an MRI. There was no swelling or bleeding on the brain and the white matter has stayed the same and has not expanded. Mild side effects continue with fatigue and mild tremors (not sure if it’s from the Leqembi or the Alzheimer’s). Anyway we decided to continue the infusions and hopefully we keep…
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Tremors
Hello again, Does anyone’s family member get tremors? This started about a month ago. Not sure if it’s from the Leqembi or totally unrelated. They told me she would get chills from the Leqembi, but these are definitely not chills. Just curious. Thanks in advance.
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Important date organizer
Hello all. I’m currently caring for my mother who has mid stage Alzheimer’s. Her current hurdle is the inability to read calendars. Does anyone know of any good product that may organize important dates for her in an easy to read/understand way? Thank you!
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My DW not eating
My DW had a fall in the summer, with nothing but a small bruise. Then a kidney stone 2 months ago, resolved. Then, 2 weeks ago, she fell at home. 2 fractures in her pelvis (no surgery), Brain bleed with no lasting effects, large bruise in her abdomen. Admitted to ICU in a LOT of pain. She is now in a wonderful rehab and…
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Diagnosis Difficulties
Hello everyone, I'm new to this site. I guess for me as a caregiver for my husband is knowing what the diagnosis is. He was recently hospitalized and I was given three possible diagnosis. (Ubspecified pyschosis, frontotemporal dementia, paranoid delusions). He was hospitalized several times within a short span of time and…
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Moving LO to a condo
Both my parents have dementia/AD. They both are in the moderate stage and they can no longer live in their house far from any family. My siblings want to buy a condo with my parent’s funds, move them to it and get them 24/7 care. They think my parents will easily adjust. I’m not convinced this is the right solution. I’m…
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Do they need to take any responsibility???
Everything I read says that a person with Alzheimers can't help how they act and react. As a caretaker I am encouraged to be calm, take the blame for whatever, and always be patient and never argue. But my question is, do they lose all obligation to try to be positive and kind? I'm so tired of the negativity. I get it, but…
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DH has severe rash since taking Donepezil
DH was diagnosed with early onset alz about 6 months ago. He is tolerating Donepezil, although he did have headaches initially. He does have a severe rash on his chest and back which the VA has diagnosed as Grover's Disease. I am wondering if this could be a side effect of Donepezil. Anyone else experiencing this?
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Where to start??
I'm new to this community and struggling with the obvious cognitive decline of my DH. We're just beginning this journey and I'm a bit overwhelmed with the challenges of getting a true diagnosis and establishing the best quality medical team for his needs. His primary care doctor did not seem to take his symptoms seriously…
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Moving to AL or MC, and how do you pay for it?
Hi friends, I'm wondering how/when we go about moving my mother from her home to either AL or MC. Would her primary care or neurologist make the recommendation, then we go? We only have a certain amount of money to pay for care, and I am concerned that if she goes to a new community where she is engaged she will rebound,…
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Total incontinence would be a blessing
DH still uses the toilet, usually with my guidance but occasionally he will try to do it on his own when I’m not watching. I have caught him going in places he shouldn’t, including a wicker trash can (wicker doesn’t hold liquid) and the corner of the bedroom. He will pull it out and start peeing even while walking to the…
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Agitation and Demands
Help....My DH demands ALL my attention and wants me with him ALL the time. Triggers are: me on the phone (without it being on speaker phone), me doing anything I'm interested in, me watching any TV program I like...etc... Just today he was fine until I would not go outside in the pouring rain to get the pressure washer out…
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Just crappie day
You wake up in a good mood. DH is so negative. You carry on. Try to get him in better mood in nope. Dh complains his tv is not working right. I work it fine explain to him what to do. DH tries again can't do it. Worse mood. Think I'll take a ride! Just me complaining.
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Books For Beginners Caring For A Loved one
These 2 books were a tremendous help for me when I started on this dreadful journey 5 years ago. Being new, I was not aware of Support Forums but reading these 2 books helped me kinda understand how my world was going to change …. and unfortunately not for the better.
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Mom combative when having brief changed
Hello. My 87-year-old mother is the best person in the world. This horrible disease has caused her to become combative in her nursing home. She is mostly pleasant, but when the staff has to change her Depends. Lately, she has been screaming, biting, hitting, and yelling. She is on Mematine: ( Namenda) 10mg for Alzheimer's…
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Donepezil
My mom was diagnosed with dementia over a year ago and has been on donepezil since. I would like any info people could give me with they're experience with the drug. My mom takes hers at night but I notice some take it in the morning, any suggestions on which works best? Thank you in advance.