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55-year-old DH—early-onset Alzheimer’s
Hello! I’m new to this space. Haven’t found the courage to think deeply about ALL of this until now. My husband is 55 and was recently diagnosed with early onset Alzheimer’s. He’s still working (but I’m nervous that his employment may not last, based on his day-to-day functioning). We have three kids ages 21, 18, and 11.…
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The ups and downs of family dynamics
Wowow , where do I start , for one I am grateful for this forum/service for us sandwich generation families we are going through this storm (analogy ofcourse ) for my situation mom was diagnosed 6-8 months ago , but with not a clear diagnosis , but nevertheless things have become like a storm gathering steam , that's how…
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Explaining a PWD's condition quickly to a stranger
If you need to describe a PWD's condition quickly to a stranger, like a repair person making smalltalk, what do you do? There are these "aware and share" cards, that says "please be patient and have some understanding" but that takes time to read. It's not easy. Each description has some awkwardness and I can't expect the…
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Newly diagnosed with Alzheimer’s
don’t know what to do. Living in a black hole where I live. For whatever reason when I call Alzheimer Association, when they call back it goes straight to voicemail. My anxiety is through the roof along with my depression. I can't type fast on my phone. Sorry just lost right now. I'm not sure if I am doing this correct or…
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Its Our Turn. Preparing to say farewell...
Posting here as well.
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When did these things happen for your PWD?
I’m feeling like I’m in a time warp as the caregiver. I see my DH progressing, but very slowly. His main issues are memory, language/communication, and apathy. He has less energy, sleeps more, dazes off for hours, but I don’t see the scary or heavy duty things yet like hallucinations, delusions, forgetting me or the kids,…
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Caring for father in mid-stage Alzheimer's
Hello, I am new to this discussion board. I am one of a few people caring for my father in mid-stage Alzheimer's. One of the biggest challenges we have is changing his depends and getting him to shower. He becomes angry and won't change or take a shower. Sometimes it's 2-3 weeks between showers. I am so afraid for his…
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My poor wife
She's still recovering from the fall and now she has covid, not eating and is lethargic and fatigued. I've been down as well. Getting tested tomorrow. I just hope all of this doesn't hasten her demise or maybe I should but I can't do that. She's in bad shape and I don't want to see her go on like this but I can't hope she…
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Great resource (Free e-book) on Caring for a Person with Alzheimer's/dementia
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Memory care fears
I have had my stage 6 DH on waiting lists for two small residential memory care homes. I just got word that one of them is likely to have an opening in two months or so. Immediately my fears skyrocketed about whether my husband will think I have betrayed him when I have him move. He is cognizant in the moment but doesn't…
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Incontinence
My DH came home from the hospital yesterday with a new issue -- incontinence. I'm very happy to have him home and just want to deal with this as well as possible. So my questions: What are the best incontinence products you've found? How do you deal with nighttime incontinence? My husband gets up 4-5 times a night to pee,…
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Granddaughter dealing with Husbands Grandmother help
New to this site and not sure anyone can help or if I'm in the right place. Grand daughter (GD)and husband bought his Grandmothers home 4 years ago as it was going to be foreclosed on. They let her stay and live with them in the home, she was supposed to inherit he ex's home after he recently died, and move to that home…
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Changes in behaviour
Hi, I have just joined AlzConnected and would appreciate any help on how to handle various behaviour in my DH. First is his reluctance to wear pyjamas at night, he wants to sleep in his day wear. It takes me half an hour to convince him that nice cool pyjamas are better to sleep in at night than jumpers and cords. The next…
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Eclipse
NASA will be live streaming the eclipse on Monday April 8th. Iris
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Eclipse
NASA will be live streaming the eclipse on Monday April 8th. I Google NASA+eclipse and I was taken to its YouTube site. Iris
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I’m concerned about my loved one
I have a loved one who I am very concerned about. A few of my family members seem to think he may have Alzheimer’s but this has not been diagnosed by a specialist yet. His doctor has referred him to see someone in the next few weeks for his memory issues. He has gotten lost while driving by himself on several occasions. He…
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Nightmares, Temporary Psychosis or Insanity
I have Vascular Dementia and was diansed 4 years ago. I would say my Dementia is mild to middlin. I have nightmares every night. Sometimes I wake up and feel as if I have lost my mind, or have temporary psychosis ( insanity). I am confused beyond anything I experience while awake. I cannot function at all. I feel as if…
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Establishing a daily routine
I’ve been struggling with getting DH on a regular routine. He wakes up anywhere between 7:30 to 9:30, has his coffee, sits in pj’s watching TV till 12-1:00. He will then say he will get dressed but only changes his pants if at all. He has worn the same clothes to bed and all day for days on end. Tried waking him at a…
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Incontinence - sign of last stage?
My mom has started pooping her pants and not even realizing it happened. She has been mostly Urine incontinent for year but this poop thing is beyond my capabilities as caregiver. She had a fall last week and still in pain even though no fracture, but she doesn't want to be out of bed for more than a few minutes and won't…
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Mobility vs accelerating DH's decline?
This might be a bit long but wanting advice on what you would do in this situation. To recap my DH has not been formally diagnosed with alz but has short term memory issues, declining MMSE and neuropsych test scores, some brain atrophy on his MRI, and small vessel ischemic disease. This all started 10 years ago,…
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Help! To move or not to move a parent diagnosed with dememtia
Mom was diagnosed in January 2024. She mechanically very functionally. Sister and I can’t agree about moving her from where she has lived for 24 years to where sister and I live. Mom started showing signs of memory lose two years prior to diagnosis. How does one determine if moving is right or not as I have heard horror…
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Compassion fatigue.
In the last three hours it’s been: My butt hurts. I didn’t sleep. I’m dizzy. I’m nauseous. I’m constipated. I’m tired. I can’t breathe. My tongue is hot. It feels red. (New one)) Sometimes, I just have to sit down and concentrate on being calm.
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Alleviating my mother's guilt
My mother is in the early stage of mixed dementia. I have lived out of state and have been coming more frequently to 1) spend time with her and 2) give her husband a break. I want to stay about 2 weeks of each month. Because of this, I have been looking to purchase a home in the area. My mother gets very agitated at this…
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Preparation after Diagnosis
Two days ago my PA confirmed I am in early stages of dementia. I've always been one to prepare in advance, but this is unchartered territory as you all know. Still any comments will be welcome. Prior to the diagnosis, I had arranged and prepaid for my aqua cremation. I am in the process of re-doing the advance directive…
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Develop a live support group for people living with dementia
I live in senior housing and have discovered that many folks here, like myself, are victims of early or moderate-stage dementia. Many don’t have relatives, so we are our only support. Does anyone have a manual on developing a live support group for people with dementia, or do you know of one? There are groups in this area…
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New fast progressing signs of Dementia
Hi new here and in search of helpful feedback. My 85 year old dad has not been officially diagnosed with dementia yet but his pcp and er doctors all agree that he is showing all signs of being that. His behavior has changed so rapidly. He started with spying on all of us, my mom, my boyfriend and myself. We thought it was…
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Just a quick positive moment
Today I went to visit and mom had once again disconnected, and hidden, her landline. I finally found it, nowhere near her room. We’ll give it one more try before I give up. She has a lot of emotions and is less and less in reality - she thinks she’s flying to her childhood home 3,000 miles away tomorrow. But she’s still…
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I need more help.
I'm honestly just in need of suggestions. Both of my parents are 81 years old. My dad has dementia. My mom has other health problems. I work full time and feel like I have no time for myself.
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How do you deal with emotions and confusion