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Michael recently sent me this valuable information: https://mybrainguide.org/clinical-trials/ https://mybrainguide.org/?gad_source=1&gad_campaignid=23068332846&gbraid=0AAAABBAIqH7frDwN-d8NcMo_n74usOgPt&gclid=EAIaIQobChMIsNSssuzKkQMVoSvUAR0n_wuOEAAYAiAAEgLdy

I think I have read here about people who have had their loved one receive hospice care paid by Medicaid even if they were not judged with less than 6 months to live. Did I read correctly? As Medicaid is a federal program, I don't understand that "exceptions" would be made, so how is this handled? Does the doctor lead the…

Right before Thanksgiving, a virus was going around DH MC and he got it. So did I. We both got pneumonia. This is the second time I have gotten pneumonia this year and it is really taking me down. My energy and strength are low and I am still coughing. On top of that, I have been having trouble with my legs. They tingle…

DH I think is stage 7. He was hospitalized and has been on geti/psych for 5 weeks. Before going to Geri/psych he was down to just a few words. Now he talks non stop! Some words I understand but the stories I don’t. He has behavior problems and now can’t walk (was walking prior to Geri/psych), but lack of him cooperating…

Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…

My husband has a diagnosis of FTD, but we haven’t seen many symptoms until recently. For you experts, are you aware of any signals that the FTD patient is experiencing a mood swing? I just observed my DH go from happy, loving to cranky. I noticed that he was sitting alone in the bedroom, looking at his feet. I wanted to…

 ·onpstordSei2 f40m :M5 mtfA29m1s01mg3m5m77ittg3actA9u0i5u3at · Jim Carrey once said: Grief is not just an emotion—it’s an unraveling, a space where something once lived but is now gone. It carves through you, leaving a hollow ache where love once resided. In the beginning, it feels unbearable, like a wound that will never…

DH has been diagnosed with FTD/ Primary Progressive Aphasia/Semantic variant. He has had 2 tests so far due to trouble swallowing. They have determined it is caused by the muscles in his throat not working in the way they should to move food down during swallowing. I know this is a possible complication as the disease…

My LO w/dementia is about to start radiation for prostate cancer. He remembers that he had surgery 5 years ago, so doesn't understand why he needs radiation now. He will need to drink 25 oz of water in 10 minutes before radiation, and it's a struggle to get him to drink that much in an entire day. I got the okay for him to…

My HWD has been taking donepezil for over a year…he refused to take it over the weekend because he said that his dr told him to stop (not true) and that I didn't know what I was talking about and was trying to poison him. I messaged our doctor (unfortunat

I had in home care through an agency three days a week while I was at work but our caregiver left to work somewhere else so the agency lined us with a new one after a few no shows. Anyway, it was not a good fit. Resulted in the police being called, my DH was aggressive towards her and left the house walking towards the…

I met with a lawyer this morning regarding my sister's mismanagement of our mother's money. She is guilty of embezzlement and conversion. The remedy has to occur in stages. First the lawyer is going to send her a letter and suggest a payment plan, if she resists then we move in another direction. Also we, the other…

Jacob (pseudonym) has been declining in the past few weeks. We are not married; I use the term "beloved" because we were destined for each other, and I will be with him until the end. I am so scared. he forgets conversations and events almost as soon as they happen; He is deeply traumatized by this and cries easily. Jacob…

My DW has a condition that may require a hysterectomy or other type of surgery to correct a pelvic prolapse. I'm terrified that the surgery may accelerate her decline. To this point, nearly 5 years, she has done very well. We are still having a good life and she is happy as am I, although I live every day if fear of the…

This is just me expressing feelings the only way I can right now. This week has been challenging. My husband's Medicaid application was approved, but the part that funds home and community based services is still pending. I applied in August, and I was told that it will probably be February before we actually get any…

My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…

I have a neurocognitive disorder and I'm waiting for my neuropsych testing so I can be diagnosed. This is very challenging and I was seeing if there is anyone out there who has or is going through this. Any advice or stories would be great.

My DH passed away 12/10/25 at a hospice house. Thank you to everyone on this message board for your advice and caring support.

I have posted before about this but, I am terrified about my DW having surgery. She's probably about mid stage 4 and still doing pretty well. It appears that she may need a surgery. There are two options. One would require about a 4 hour surgery and the other likely more like 2 hours. I'm so concerened about how this might…

What advise do you have for stopping MCI progression to Alzheimer’s? Has anyone on this site found anything that keeps this from progressing? My husband’s MCI is stable at this point, and we want to keep it that way. We are using Brain HQ online games, are on a plant based diet, exercise, and are doing everything else that…

When my DH has hallucinations, talks about the people sitting around our house (just he and I live here) what should I do? What should I say. I mean, I've said to him that this is "our" home and no one is here but us. He gets mad and tells me that I'm trying to say he's crazy and that I'm planning on putting him in a…

Greetings, I am in need of ideas to prevent outbursts and/or stopping them. My DH has been prone to outbursts prior to this terrible disease. I am feeling more like he is the hammer and I am the nail. It is just the two of us and our 2 sweet dogs. Thank you in advance.

I am wondering if anyone feels they should give a Christmas gift or gratuity to any of your caregivers? We have a person who has been with us over a year, and comes weekly for 4 hours. She brings us cookies— but I'm not sure I should reciprocate. She is well paid for her time.

I put my DW on hospice about 5 o 6 weeks ago. I’m glad I did but I’m curious about people’s experiences. I’m a retired engineer so I know I can be a pain. But I feel like my primary nurse, although knowledgeable, is a little all over the place sometimes. I also have a hard time with the doctor, who will never meet my wife,…

Wife 78 years old has dementia first noticed problems 4 years ago last year she was afraid to be alone and I quit job to care for her. Now she is at the stage where she can’t speak coherently and gets upset when I can’t understand what she is saying, Entered a memory care facility 2weeks ago after making sure for years…

I am living for 2 years now with my 78 year old mother who currently has dementia. She is now prone to falling cause she often gets confused while walking in our apartment. She had fallen last month cause she bent down to pick her glasses up off the floor. She then fell earlier tonight cause she didn't understand when I…

My DH is now stage 5 cognitively and memory wise. He is still able to attend to his personal care. Our specialist said this stage can last 6 years….can you share your experience in terms length of time and behaviors? DH has had a couple of angry outbursts where he kicks us out the house, no recognition of me for over 6…

Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…

I know there are many of us here who deal w persons w difficult personalities and dementia. I saw this Dr. Natalie video and wanted to share. My DH doesn't have a diagnosed PD or diagnosed dementia but he sure does "quack like a duck." 😁 Im sorry it isnt hyperlinked. I never seem to be able to get it pasted that way!…

I was recently diagnosed in early December and have been more worried about how my partner is going to handle being a caregiver…. He is a very sensitive thoughtful and caring person but also suffers from depression. Hence my concern….he did go to one caregiver support meeting.