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Early stage, waiting for the other shoe to drop
DH was recently diagnosed with ES Alz. Looking back, there were definite signs 5-6 years ago. A few weeks ago, he totally missed the toilet in the middle of the night, twice. Since then, nothing. Lots of good advice from this group on that. Most of the time, he seems perfectly normal, except for his choice of word…
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Life in the Alzheimer's Warehouse
Good morning Dear Friends. I sometimes find it helpful to write down my thoughts. I am sharing what I wrote this morning in hopes that it will offer a perspective that while we don't have control over our situation, we can and do choose what we think of each day. Let's all fight with every fiber of our beings to stay out…
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Short Film: A Marriage to Remember
Lovely. https://www.youtube.com/watch?v=PZu51MnqfF4
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How do I convince my mom to sign a medical and financial POA
Hello! First and foremost, I am so very thankful for this site. It is a wonderful feeling, knowing that you are not alone in this craziness that has up ended our lives. My mom is afflicted with Alzheimer’s and dementia. She’s 74 and was diagnosed last October. I would say she is pretty much status quo for how she is…
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No signs (I don't think) but had father and grandmother die with the disease
Hello- I'm new to this forum. Today's paper had a very interesting article about the new testing which is becoming available for early onset of the disease. I'm 57, healthy and I eat properly and exercise 5-6 times weekly. I'm retired so I don't have the "stresses" of a job. I recall my dad being concerned about not…
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Neurologist Recommendation?
Can anyone recommend a good geriatric neurologist who diagnoses dementia/ Alzheimer’s in the Capital District area of NY? Not sure if I’m allowed to even ask this. New today to this website and discussion forum. Mom is in AL but they are recommending MC, and I don’t know if it’s because MC is more $ and they have more room…
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Please send good vibes
So after my mom was put on notice for incontinence, I was in a panic. I visited a LOT of memory care facilities. So many were not places I could see her in at all, for one reason or another. I was extremely depressed. Most said they were confident they could deal with her incontinence issues, but other things just didn’t…
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Not that she'll remember, but....
I'm wondering if my mom's PCP can have a conversation with me and my mom about moving her into MC. Not that my mom will remember having the conversation, but she seems to respect what her doctor always has to say….and it will be in writing in her after-visit summary.
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Regarding "Groups"
I accidently clicked on Groups and noticed that a few new members had started a group to discuss their own situation, by way of introduction. No one will know about them in a group, they need to post in one of the caregiver boards. There used to be several Peer Volunteers to check for new members. I hope that some of the…
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Taking a car away
My mother, 89 yo was dx 1 1/2 years ago and progressing to moderate has not had a valid DL for 10 months -suspended not revoked. CA leaves people in limbo- but her insurance was still covering her until this month. We have been working on trying to get her to understand and be open… well we took the car away and left her…
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Medication Reminder App Suggestions
Today was one of those "I cried, he whistled" days. He was really upset at something I did because it wasn't the way he wanted it. It really hurt my feelings, and he went on like nothing happened. Only to find out, he did not take his meds for yesterday afternoon, this morning, or this afternoon. Even though I try to…
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He’s reading the newspaper
It’s upside down. Good morning, dementia.
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Introducing myself.......
Hello everyone, Like many others, I've been lurking on this site on and off for months. It has been both knowledgeable and comforting to have you all as a resource. Thank you. I no longer feel alone. I am caretaker of my DH of almost 30 years. His symptoms have gotten progressively worse over the past 3 years. Same old…
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Advice needed
My mom has Alzheimer’s & lives with her partner. She was always an independent, strong woman who loved her independence, quiet time and kept herself busy. Now that is all gone & although I understand that’s not her choosing & that it’s scary for her, it doesn’t make it any easier. Lately she completely forgets when she has…
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Intelgenx montelukast clinical trial
I posted a few weeks earlier that Intelgenx Technologies in Canada has completed its clinical trial using its film version of montelukast to treat early Alzheimer's and MCI. A brief preliminary report indicated that participants taking the highest dosage of 30 mg twice a day have shown cognitive improvement. A final report…
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Side effects - Rivastigmine or Leqembi
Mornin, first post here. Wife,53, diagnosed with AD not long ago. On rivastigmine after terrible time on Donepezil and has had one infusion of Leqembi week before last. She’s had a couple days of “ just feeling like s**t” , but not too bad. Question is, has anyone witnessed a tightening of calf and lower calf muscles.?…
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Help! I am exhausted and depressed
I just feel I can't do it anymore. I cook, clean, pay bills, manage rental property that my HWA refuses to sell. He believes I conspire with the renters against him. I am just so beaten down. My HWA wanted me to pick up apples that fell from the apple tree in the backyard. I said I was too tired. I have been working all…
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Dealing with nighttime urination
My 92-year-old dad has been living with me for 2 years now, and has gone from being mostly independent with IADLs and doing his own laundry, to regular urge and functional urinary incontinence (now wearing Depends day and night) and most days needing step-by-step assistance with getting dressed and undressed, getting under…
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Another interesting study presented at the Alzheimer's meeting
The papers are reporting today on evidence that the Shingrix vaccine lowers dementia risk. Interesting questions about infections playing a causative role over time. Makes me worry about the long-term covid risks too, we won't know the answer to that for decades.
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I'm feeling whiny
My husband's aide has been out since Wednesday and the agency hasn't found a sub. Wednesday was awful - he had been up most of Tuesday night (meaning I had been up most of Tuesday night) so I struggled. We got through it. Yesterday was rough. We got through it. This morning I'm mainlining coffee and he's removing the…
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Advice Needed, Please
Hello. Does anyone have advice on what to do when the staff and administration of a nursing home are unhelpful? My mother has Alzheimer's, and yesterday, I called to ask if the doctor could please call me after he saw my mom. ( The Dr.s office is independent of the nursing home, and because the nursing home would not…
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My brother had his neuropsych testing done today
We won't get the results until the 19th. It didn't take nearly as long as my hubby's testing did in 2013. I don't have any idea what the doctor thinks. I'll find out later. I did tell her that I want to know if he is still safe living alone and driving. He's driven me around a good bit the last two days. I never felt…
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J
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New to forum and newly diagnosed spouse at 56
Hi all. I'm not good at sharing, but finding this new life journey difficult. Not sure I should have pushed for this test as I wasn't really ready for the truth and outcome. My kids and I noticed the changes in my spouse over 7 years ago. I tried back then for doctors to figure out what was happening. Hit road block after…
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And the Packing Up Continues...
Again, my DH got up 3 times on Wednesday night, pulling out all of his clothes and putting them on the bed. I got him back to bed each time and put back the clothes. Then he proceeded to do this two more times during the day. I have decided that this is like shoveling feathers in the wind. I left the clothing where it was.…
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DH is currently independent in self care
My DH was officially diagnosed with early stage Alzheimer’s. I find it’s easier to talk less and less since most things I say are doubted, challenged, questioned and I have to explain and repeat.His talking about what will probably go wrong, like when our daughter plans to meet us, saps my energy and spirit. Also wearing…
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Caregiving
Please share your experience if this is something you’ve done or considered.
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Parent who is money paranoid
My father is almost 80 and was diagnosed with Alzheimers last year. My mother is 82, has heart issues and most likely has some form of dementia. They are on a VERY fixed income and cannot afford to go to an AL facility, so we are trying to keep them in their senior apartment as long as possible. My father walks to the…
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Resident Financial Application
is this a normal request to fill out? mom is in AL and the MC unit is full. Looking to move her to the sister location. Been negotiating pricing and today was asked to fill out a form about her finances. Then they ‘can see what they can do.’ Why would I disclose her assets?!
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87 yo Parents living alone - Navy Veteran
Hi Everyone, I am new here. My parents are 87yo and currently live alone in an apartment community for 55 and older. My mother has a hard time walking due to double knee surgery years ago and is starting to show signs of dementia (she will never admit it but she is). She is so frail (97lbs) and is the sole caregiver for my…