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Conflicting Memories
I’ve just been lurking for awhile now on this site. It’s been pretty rough lately with anger at me and a clear progression of the disease. I’ve been following everyone’s advise and I’m trying my hardest to agree, accommodate and ignore all the negativity, but my oh my is it hard to do. I probably should have cancelled our…
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Dementia diagnosis first post
My DH was diagnosed with MCI and we were told he had Dementia. How can we get a more accurate diagnosis? His neurologist said there is not currently a way to diagnose whether he has Alzheimer’s, that is covered by Medicare. Does anyone know something I can do? Thank you
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Testing decisions?
My DH is scheduled for a follow-up this week with his neuro-psychiatrist, a specialist in the dementias. The doc wants further testing, possibly PETscan, lumbar puncture, or that 4-hour neuropsychological exam. Dh has been so very very reluctant to go to the doc; its taken two years to get him into the doc in the first…
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Just so sad. How do you cope?
My husband of 33 years went into memory care 2 months ago following hospitalization. He was diagnosed with Alzheimer's 5 years ago, and had been living at home since. He's still lucid sometimes, then off in his own world. I've brought him home several time for multi-day stays — and while it's very comforting to have him…
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60 Minutes Alzheimers and Dementia Compilation
This is a compilation of several 60 Minutes episodes from 2017, 2018, 2019, and 2024 that popped up in my Youtube feed. I found it heartwrenching but also felt that it might be beneficial t share w family and friends who don't understand the full scope of a dementia diagnosis on the patient and caregiver. In the 2017…
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Its Our Turn. Preparing to say farewell...
Unbelievably, though we knew it was coming in the not too distant future, DH is transitioning right before my eyes. He rallied in the last 2 weeks, and now suddenly we are walking through the steps for last day/s on this earth. I will let you know when I can. For now, I have been assured by hospice that he is in very good…
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I’m totally stressed out
Arrgggghhh! Another almost sleepless night. The guilt, the anger, the hopelessness of things ever calming down…And, yes, I know it’s still early in our journey compared to everyone else still trying to settle son’s estate. All that’s left is giving figures to the estate tax attorney and then notifying the court that we are…
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A small vicotry
@harshedbuzz In another discussion you had posted, "It is not unusual for PWD to recall information that has a strong emotional content. Dad couldn't recall what he'd had for breakfast or the state in which he was living, but he absolutely could remember vividly being told by his neurologist that he could no longer drive…
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Suggestions for clothing organization/ decreasing amount of clothing
My mother in law was just recently diagnosed with advanced Alzheimers and my husband and I are new to caregiving. My mother in law has A LOT of clothing. We recently went through clothes with her and got rid of a large amount but the amount she has is still very overwhelming to her and. She refuses to remove any more…
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New to Group
My DH has been diagnosed with early onset of dimentia and in the process of more tests and more appointments. Looking back he has been having symptoms for about 5 years now but overnight I feel my life has changed. Does the anxiety every go away? I have a preteen and a teen and I am worried about how I will handle all that…
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Great resource - (free booklet) on Caring for a Person with Alzheimers/dementia
Here is a link to this very thorough pdf - online or printable book.
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Feeling guilty about selling her things, her house. I know I'm not the only one.
Hi everyone, I'm sure there are many of you who have gone through/are going through this and would love to hear from you. My mom was diagnosed with dementia (we don't know what type) about 4 months ago. We had to move her into a memory care facility. I am now at the point where I need to sell her house, and probably have…
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When do you know it’s time for memory care arrangements?
Can people share how/when you decided it was time?
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Any Online Support Groups
Hello. I am the primary person in charge of my mom’s care (long distance). She’s in a nursing home. I live out of the country and am wondering if there are any online support groups for those who provide lingo-distance care.
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Back Home
So, my LO finally left snowy WI for sunny SC. Her #1 desire was to be back in the sunshine. Sadly, WI was never the right choice for her. In fact, a year ago, when my brother said it was time for her to move from her home, she chose SC over WI. (I talked her into 'trying' WI) She referred to her time in WI as being to hell…
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Dont want to lose the memory
Hey, good morning! I don't know if I am suffering from Alzheimer's or dementia because I don't see the difference between them, but there are many instances where I forget things and names of people so often. It's difficult for me to finish the work I started. I take things very seriously and feel that I am not worth…
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Micropreemie help out the wazoo - Dementia help crickets
Sorry to inundate with my ridiculous questions. But I need to get this off my chest. I am the 68-year-old wife of a sweet, loving, devoted (I got lucky!) 79-year-old. Last fall, after taking a weekend trip away leaving my smart, capable, healthy husband at home I received a few texts from neighbors telling me he was…
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DPOA
Does a durable power of attorney override a dementia patients previous choice for full resuscitation. The PWD has subsequently indicated a desire not to have full resuscitation
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Update - Sudden Decline In Ability To Walk
As I posted two months ago, my DW who is in MC rapidly lost her ability to walk. We tried getting a sample to check for a UTI but were unsuccessful. To complicate this decline an outbreak of norovirus raced through the facility about infecting residents (including DW) and staff shortly after she stopped walking. I was…
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Need advise on my 82 year old mom
My 82 year old mom was active, driving, cooking, shopping, living alone until June 2023 . She had a neurological stroke which left her with dementia. She is confused somewhat and has aphasia ( words are mixed make no sense) . I had to relocate and leave my home , job and adult children in another state to care for my mom .…
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POA
Hello, I have a POA for my mom we got it early this year before she progressed. Well two weeks ago, my mom was asked to stop driving and her diagnosis was confirmed. She’s refusing to stop driving and argues she only drives short distances. How liable am I if she continues to drive? I don’t want to go to the extreme of…
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Hallucinations
My mom keeps having these hallucinations about someone who stole an inheritance that supposedly my father left ( he has been dead for 19 years now and left us nothing ) , she is insisting I call the police or get a lawyer to help find this man to get him apprehended , I just don't know how to respond to her , don't want to…
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Bible Verse to Lift You Up 4/9/24
GOOD FRUIT Galatians 5:22-23 New International Version “But the fruit of the Spirit is love, joy, peace, forbearance, kindness, goodness, faithfulness, gentleness and self-control. Against such things there is no law.” THINK ABOUT THIS: What fruit do you need the most help with? Why do you think this one is more difficult?…
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@AlzWife2023
You posted that you were unsure about your DH 's diagnosis of Alzheimer's Disease. What criteria was used to make the diagnosis? Exactly what are you unsure about? Did his MRI report "white matter hyperintensities"? If so, read about white matter brain disease, of which there are many diseases and conditions that result in…
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55-year-old Early Onset: HOW do people pay for memory care?!?!
Hello, I am looking ahead to the impossible-to-predict future and feeling miserable. I'm so confused about some BIG questions. I understand that, as my husband's dementia progresses, we will make adjustments, try to keep him and other family members safe, and keep him at home as long as possible. I understand that SSDI…
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FTD - FrontoTemporal Dementia Staging Tool (by Dr. Tam Cummings)
Just ran across this staging tool and thought it may be helpful for some dealing with FTD.
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Just sharing a moment of epiphany
So yesterday was a particularly frustrating morning with Mom. Angry about money and lying people, and all sort of nasty comments. I was having a very hard time keeping my compassion and my Ms Dementia glasses weren’t working! decided I needed to escape and went down to the beach to walk around and let tranquillity envelope…
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Need to exit the Roundabout
Thanks everyone for the shoulder. I’m still stuck but now in another country. I’m in the bathroom and he is the other room pacing and drinking beer. Why can’t I get it thru my thick head not to engage and how in the world do I stop myself. Maybe I need a good brow beating. We see the neurologist on Thursday but he refuses…
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Siblings not on the same page
UPDATE: I had a “come to Jesus” moment last week when all 6 kids got the stomach flu, and I realized that I don’t have to do it all. I need to stop resisting the path that is easier in front of me and let Jesus (and my siblings) take the wheel. We are transitioning him to an AL out of state, since there is more family…
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Confused
This is my first post here on the website. My husband was always a rather self Centered person, he was diagnosed with Alzheimer's in November. And now every single thing is about him, he still pretty functioning, he can drive. His memory is shot. He gets confused. He spends a lot of time talking out loud to himself, which…