-
Getting Ready to Place My DH in a Skilled Nursing Facility
Just found out my DH is in the late stage, not end stage AD and needs 24/7 care. He is now in a behavioral center to see what meds he needs to keep him mellow. He's been there since May 11 and all I do is worry about him because he can no longer carry on a conversation to let you know if there would be something wrong,…
-
Flew home and found mom in self neglect
I am the youngest of 7, and my mother’s only girl. I’m the favorite and so I have the best relationship with her. My mom is 74, and I noticed something was wrong last year when she was showing some short term memory loss, not answering her phone, and making excuses to not fly to Colorado to visit her kids. Saying she was…
-
Living proactively with MCI or early dementia
Dementia is progressive and in the early years no one knows if one's MCI will progress or not. I learned from the members to be proactive instead of reactive. This means trying to prevent or avoid complications, and to make decisions and plans for the inevitable future. Otherwise a crisis will occur and my family or a…
-
I'm new here..
Hello everyone! I'm new to this website. I've been feeling very alone with my mothers diagnosis. We never really been to close even though I wanted to be. She also has bipolar. It's just been hard and it's difficult to fine people who understand. I feel very alone in this.
-
I need help
Hi I’m really having trouble coping with my mother.She’s been forgetting a lot lately and repeating herself. I try to remind her of something’s she can’t remember but she gets upset at me. I talk to my children about it and she gets angry because she doesn’t want everyone to no her business. I tell her that those are my…
-
Mom with Vascular Dementia
My late 70s mom has been diagnosed with VD. She is also a diabetic. Her short term memory is terrible, sitting and does not talk, sleeps a lot, personality change, cries, depressed, pain (real or real to her), unstable when gets up and falls often. Does VD progress like ALZ until total loss of memory? I find it strange…
-
Moving home
So, I’m moving back home to help out. I’m an only child and my dad is having trouble taking care of my mom on his own. She fell at the beginning of this year and broke her foot and her shoulder. I ended up taking FMLA to help through her healing. I’m hoping that moving home will help me feel less exhausted. I went back to…
-
I’m losing steam
Hi all. Caring for hubby 80 years old. Diagnosed in 2021. Sleeping more , bad eating habits, obsessed with tv remote, doesn’t want to do anything, doesn’t want to shower and shave. Takes days for me to get him to shave. He’s able to do adl’s on his own except needs help taking pants off. I’m scared of what’s coming and try…
-
DH’s Geri psych retiring. Thoughts?
in a way, I’m glad Geri psych is retiring in a way. DH really likes him. He first got involved when DH had sort of a breakdown when his symptom started to surface and he became extremely depressed about 7 yrs ago. As his dementia advanced we stuck with him but I never had a lot of confidence in him and his ability to treat…
-
Is there life after this
it’s early morning. DH is still sleeping so this is my precious quiet alone time. I sit here in the dark and pray. My prayers have changed and it makes me feel sad and guilty. I used to pray for my DH not to get any worse but now he’s in stage 6 Alzheimer’s and I just pray that once we are done with this terrible journey…
-
Nervous about SS interview... tired of waiting...
Good Morning! I'm a nervous wreck today. I have a phone interview with SSDI in two hours and I have no idea what to expect because I visited their office in person (waited an hour) and called their 1-800 # (waited an hour and fifteen minutes) to find out how the process works and to get clarification on how to fill out…
-
Question on Lequembi qualifications?
I just got an answer regarding my DW starting Lequembi. I was told that her MOCA score (15) was too low to qualify. She still does her ADL’s without help and most of the time I’m thinking she’s great. Is this “cut off” a Medicare thing? I was disappointed but wasn’t sure if I could have convinced her to submit to the…
-
On the advice of my therapist
I have a habit of minimizing or stuffing down feelings and emotions. My therapist has given me the assignment of telling someone about something I am struggling with. Not to look for a solution but as a way to validate the experience. And so… I have a great deal of resentment and a feeling of loss of self. DH was diagnosed…
-
Incontinence question
Hubby and I are hikers. Every day we hike for 3-4 miles. It’s so good for both of us, but he’s had two instances recently where he lost bowel control. He knows he has to go but can’t make it home. It happened today and we made it home but he went in his pants and it got on the carpet. Afterwards he told me he has a lump…
-
Inner Dialogue
I would like to share something with the group I learned in sports that I am using to cope with my wife's challenges. In sports your inner dialogue has a lot to do with your outcome. If you say internally "I hope I don't hit the ball into the water." That is exactly where the ball will go. If you say "Hit this ball to that…
-
ReCODE protocol
My primary care physician has recommended the book "The End Of Alzheimer's", Dale Bredesen, MD. I am interested in pursuing this non-traditional approach to peerhaps reversing Alzheimer's. Has anyone out there had experience with it?
-
Just need to vent
After more than six months two doctor recommendations and a letter of incompetence I have finally convinced my brother it time to move mom to AL. She lives with him and is home alone while he is at work. I have the DPOA but it’s hard to do things without my brother on board when he lives with her. My SIL was the DPOA for…
-
Getting The POA Enacted
Hi, I just wanted to know if anyone has had the POA enacted and what that process looks like if you're already the POA. My grandmother is getting worse, but she might not want to go to a care facility at the end of this year. I let her doctor know I'm the POA and I'd like to get it enacted in case we have to put her in a…
-
Redirecting conversations over the phone with mom with dementia/Alz
My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have been deceased several decades). When I try to redirect, she will get extremely upset and repeat,…
-
Today is a bad day and I just need to talk
My DH is adjusting well to the new MC and they say he is sleeping well. I've visited once in two weeks, and called him most days. He knows who I am and says that he misses me. I'm able to tell him how much I love and miss him too. Until today. I came down with Covid two days ago and my voice is horrible. I called yesterday…
-
So done with Donepezil
Sorry for another poop topic but I just need some suggestions and maybe a pep talk. Mom has been on 5mg donepezil (generic name) since maybe May, possibly April. A little after she started taking it, she started having diarrhea and not making it to the bathroom in time with other loose BM. At the time, she was also eating…
-
55-year-old DH with early onset: Reasonable cost of CELA? Disability Attorney?
Hello, As I try to research and advocate for my husband and family, I am wading through an overwhelming number of details. We finally have an appointment with a CELA in 3 days and she charges a flat rate (rather than hourly), so that her clients will feel free to call with questions anytime and so she can be available to…
-
I just paid the deposit . . .
. . . on a MC apartment. Starting this process has cheered me up, even as it also fills me with dread, of the transition, the understanding that it will not be a thorough solution, of being lonely. But for now, I am hanging on to the optimism. Tyrone
-
my DW is bored
My highly educated DW is bored. She has MCI, so her memory retention is a couple of minutes at best. Normal activities that would engage someone are beyond her: she can't read a book or newspaper, because she retains nothing. The same is true for watching TV programs or movies that involve somewhat complicated plots. I try…
-
My DW & Hospice Education
Today, my DW of 25 years was released from the ravages of of this evil disease (+ cancer) and is, truly, in a better place. I was lucky enough to be by her side, holding her hand, when she passed. And I might have been alarmed at the changes she underwent, if not for having learned about the signs and sounds and changes…
-
Suggestions are appreciated
My Dad has Alzheimer’s and my mom has just been diagnosed with Stage 4 cancer.she has been feeling ok until last week and is in hospital now. My Dad always wants to be with my Mom(agreat love story), but he is quite advanced. I have brought him to see her the past two days but yesterday was such a bad day for him,and I’m…
-
Transitions into Memory Care..
Transitions are hard. Change is hard. Especially when there are enough thoughtful moments interwoven in the confusion….
-
I’m 19 and don’t know what to do
My dad is 68 and was diagnosed with Alzheimer’s about a month ago. this was not a surprise, I started encouraging my mom to talk to him over a year ago but it still feels real all of a sudden. I see him a couple times a week and each time he’s losing more of himself and I just don’t know what to do to support him and my…
-
Gut Health
I am curious if anyone has researched impact of gut health on cognition or has anyone tried a diet that has shown any benefits
-
Stop visits with neurologist
Hello! I am wondering how others handle simplifying visits to doctors. My dad has Alzheimer’s and, while I can take him to local doctors, going out of the county to see specialists is not easy. He broke his neck last summer two different times and is following up with the neurosurgeon virtually. Our local hospital sends…