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Timeline
Took my mom to her appointment on Thursday and we were given an estimate of how long we have with her and I just don’t believe it. She still walks and talks. Yes, she needs care with showing and toileting and only sometimes how to eat. But has so much personality still. Has anyone ever got an estimate and how accurate was…
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Recently Widowed Dad With Mild Dementia
Hey Folks, I'm new to the forum. It was recommended to me by a help line here in Michigan. My dad has had 2 strokes within the past 10 years and this has resulted in some mild dementia. It comes and goes, but he's usually fairly sharp. It manifests itself in strange ways like hygiene, eating mannerisms and a bit of…
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My dad has dementia and my mom who was his caregiver justpassed away.
I am struggling to support my dad who has dementia and is declining. My mom was his caregiver and she recently passed away after a 4 year bout with Pancreatic Cancer. My dad keeps forgetting she died and my brother and I have to retell him over and over. He gets very distraught but then eventually forgets again. He asks…
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How many years did or has your loved one lived in a facility?
I was told that a typical stay in memory care is 2-3 years. This surprised me because this would indicate that either people are coming from assisted living or somehow families are caring for their loved ones at home. Granted the cost of assisted living and memory care is so high so any care option is hard. I wonder…
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Dad removes depends during night
Hi, I am new to this. My father is dealing with dementia. He's 80 years old. My mom is 82. I live here with them. What's brought me here is that I'm looking for any suggestions. My dad, during the night is removing his Depends briefs. This is something new as of this week. They will be on the floor or nightstand. My mom is…
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Dad has moderate alzheimers
I knew he been off but I scheduled an assessment w his doctor and he was so mad when I told the doc about his sun downing; hallucinations; aggression; and now he won’t do his blood work or brain scan before we can go see his neurologist to confirm where he’s at w Alzheimer’s but where would I even start as far as getting…
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How does hospice work with MC and MC services?
This is not urgent. This is me trying to get educated before I need it. I realized that I don't understand how hospice works with MC and how it effects or supplements or takes the place of the services that the MC provides. And how does hospice interact with care levels and care level charges as the PWD becomes less mobile…
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How to deal with a spouse who won't advocate for your parent with Dementia
My mother's husband is standing in the way of every suggestion I have that would help my mother stay active and deal with some important things that are affecting her because of her dementia. She is still kind, social, funny, can hold great conversations, remember lots of things, and in my opinion needs help with some…
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New to All of This
Hello, I am a 30 year old female daughter of a mother who was diagnosed with Alzheimer's on 12/20/24. I have known something was wrong and have been fighting for this diagnosis for over a year and now she is already in the moderate/middle stage of Alzheimers. This entire world is new to me and I just gave up my career…
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Rapid Mental Decline in My 65-Year-Old Mother: Desperate for Diagnosis and Long-Term Care Solutions
Hello, I’m looking for guidance about how to get help for my mother, who has experienced rapid mental deterioration over the past year with a cycle of repeated hospitalizations and psychiatric decompensation at home. The situation is placing an unsustainable level of strain on my mother, father and the rest of our family.…
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Moving Mom to assisted living details overwhelming
Mercy. I am going back and forth with moving Mom with dementia to assisted living or memory care. Now she is home alone. I come every three days to clean her diabetic wounds. My two adult children have mental/emotional challenges; so help is sporadic. I was offered Social Worker options for assisted living using her…
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New here
Good morning everyone. I finally took the step for myself. Talking to someone else about what is happening in my life right now and them knowing how I feel. It’s hard to tell someone who don’t know this disease to every understand. Hopefully I can remember this tool and utilize it. Well, my name is Mia. I been caring for…
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Roller Coaster/Long Distance
Edited - attempt to clarify questions New here. I am a 6 hour drive from my parent's, currently able to visit about monthly. Can't count the trips in the last two years. Only child ( with a thankfully helpful spouse). Mother with MD > VD + light AD from the primary diagnosis. She is in hospice care and likely LS by…
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What did the initial drop off to memory care look like?
how did you get your loved one to memory care? Apparently pretty much no one wants to go. How did you get them in the door and what did you tell them when you dropped them off? How many people knew about the plan? I'm concerned my parent will call me everyone including people we haven't told about the placement. How long…
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Programs for late stages
My mom is 74 in we are told she’s in the late stages of Alzheimer’s. She has started having issues swallowing. She can no longer follow conversation. She just tells you the same stories. She is still verbal but just can’t find the right words. She can barely answer questions without being confused. We have to help with…
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Supporting both parents
Both my parents (79 and 78) live with us in their own attached apartment. My mom (79) is in the very early stages and is still very active. My dad is struggling with her memory changes and becomes angry and frustrated with her. I am looking for how best to support my dad wand how best to support myself as we navigate this…
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How To Talk To Mom Resisting Help?
My mom has dementia and my dad is primary caregiver with my siblings and I supporting. She can’t be alone for long ( leaves stove on, wanders into neighbors apartment etc) so we plan to alternate working from their apartment once a week for 3 or 4 hours so dad can leave and get a break. Any ideas on how we present it ? She…
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Dementia acceptance
New here. My mother has moderate stage of dementia but does not believe or accept that she has it. She was diagnosed about 3 years ago and now believes she just has bad short term memory due to being 82 years old. She has transitioned from being angry and mean to making up false memories and rearranging the house every…
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Don’t know what to do
My parent has had dementia for years and was holding fairly steady. They turned 100 a couple weeks ago and it’s like a button was pushed. Forgot how to use the bathroom, kicks & screams when I try to help etc. I got them to wear an incontinence brief but they refuse to take it off. Help….
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mom coming home,the dilemma
Hi i am new here, my mom Alzheimer/dementia has been getting progressively worst over last few weeks, she is in nursing home facility. i am working on bringing her home. in these few weeks, she has been having a deep sense of sleepiness. not due to meds. we found out Friday her kidney r functioning at 49 percent, part…
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Suggestions and thank you
My mom lives in DC and I live in Virginia. For the past few months, my husband and I, have been traveling back and forth. I am a special education teacher. I was missing so many days. I was made to take off from work without pay (all my PTO was used up) to get things straight to bring her with us. It's been a…
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Obsessed with thinking the internet company is "Stealing"
Does anyone else have to do this or just our family?
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Need advice and direction
my mom was diagnosed with early onset Alzheimer’s two years ago. In June the doctor gave a prognosis of 6 to 9 months. At this point mom walks with greater difficulty, is partially urine incontinent and in pull ups full time and I am assisting with shower temp, dressing, food prep, cutting food, etc. her sentences are…
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At what stage of dementia did your parent move from Assisted Living to Memory Care?
Was it too early or too late? Words of advice? Currently my 96 year old mom is getting assisted living level care, supplemented by a private caregiver during the day for supervision and companionship. She has alz stage 4. Does not shadow, wander, or sundown. Has some awareness of her memory deficits, so is holding back…
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looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
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My Dad has gotten aggressive and totally opposite of how he used to be
I know so many are dealing with this horrible disease and know it is a struggle!! I stay with my parents to help my mom with my Dad and she doesnt have the best health herself and I am also a single mom to a 10 yr old boy. I feel as if I am trying to carry the world on my shoulders as between work and taking care of…
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Caregivers appropriate decisions
Hi, New here. My mom has moderate to severe dementia. She is in an assisted living . I manage all her financial and medical decision as she is not capable per the doctors. She knows me and her friends. However, she does have hallucinations (seeing deceased husband, animals in her room). She regularly accuses people with…
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Have to drive our mom 7 hours
My brother and I are all new to this. My father kept if from everyone. My mom is entering what we think is late stage and we have to get her to a care facility 7 hours away. My father just passed away and she was not well cared for at home with him. We found an amazing memory care facility, but it's a 7 hour drive. Any…
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My mom coming home
Hi my mom was diagnosed with both alzheimer/ dementia. Several yrs ago. Its getting worst. I placed her in a facility over a year ago. I hate it. I decided to bring her home. Im so overwhelmed with this journey it is very emotional. Im hoping talking to other caregivers will help me cope.
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…