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Hiccups
My dad has been diagnosed with both Alzheimer’s and Lewy Body dementia. One problem we are running into is that he always has the hiccups. It has been going on for almost 8 months. Medications do not work. Neurologists said not real tested to disease and primary says it does. In the meantime nobody is looking into the…
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writing to you all here helps so much
Hello dear community, It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time?…
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Mom fell!
My mom fell a few days ago (was using her walker just like she always does) and it was right after she woke up to take her dog out so she was probably a bit groggy and it looks like she either lost her balance or her knee buckled but she went smack down on our sidewalk leading up to our door and fractured her pelvis in 3…
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New to this disease
Hello everyone, I am not too sure what I'm seeking here, maybe a place to vent my frustrations, maybe advice or a friendly sentiment of I'm not alone in this journey. My father was diagnosed over three years ago with Dementia and Alzheimer's disease. His wife did an amazing job of hiding it from everyone until that was no…
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Thinks she is in a new room at MC
Having her room moved has been a theme with mom for a while (even in AL) but does anyone know why after I get her a shower, she routinely thinks we are now in a different room? It is like going in the shower changes her whole perspective.
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Medication Dispensers
Hi friends. I’m looking for guidance on locked and timed medication dispensers. My Dad was diagnosed with Alzheimer’s a year and a half ago. He’s still living independently, and fortunately we live in the house right next door. He takes medication three times a day and I’ve been delivering his medication to him for…
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Another dementia milestone - Mom is moving to memory care
It was just 2 years ago that my mother was officially diagnosed with dementia at age 94. I'd estimate she was early stage 4 at the time. A few months later, in October, I made my first post on this forum feeling guilty for "pulling one over" on my mom by conspiring to have the doctor tell her to stop driving. She's been…
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How can I utilize the medical system to physically move mom to a facility
I am an unable to sleep regarding my mom's dementia and steady decline. It has been deemed by the neurologist provider, that she needs a higher level of care which I have known for sometime now. I am a nurse, but, am the daughter in this situation. My brother has been staying nights with her for over 2 months now but still…
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Hospice care
MC just called. Long story short, reviewing progression, they want to put her on hospice care. It’s hard for me to not feel this is it. They explained it just means she’ll get. A lot more care. Thoughts?
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
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Dementia and cancer
I need major advice. My mom has dementia and was just diagnosed with stage 1 lung cancer. Very treatable, if not curable. All she has to do is go through some radiation. She is probably in stage 5 or 6 with dementia... very very paranoid about everything and anything medical all but traumatizes her. She is also a recent…
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When both parents need support!
Hi everyone, This is my first post. My parents are both almost 79 and live in a 55+ community. My mom has moderate dementia, and my dad, who has Parkinson’s (and possibly some early cognitive issues himself), is her primary caregiver. One of the biggest challenges is helping him understand that my mom needs simple, clear…
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Spending time with mom with Alzheimers
We are getting ready to put my mom in a MC facility. Physically, she is in great shape. She loves to go for walks if the weather is nice. I was planning on picking her up often from MC and taking her on walks to enjoy the beauty of Colorado. I was recently told from a friend that that was a bad idea. When we go to visit…
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Going crazy
Taking care of my mother in law and we are so lost is anyone available to talk
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Moving mom with alzheimers to a different state
My dad passed in 2020 and once he passed, my mom mentally checked out. My brother has lived with her since then and the Alzheimers has gotten worse. I live in a different state and come out every other month for a month at a time. It's straining my relationship with my family and my brother is mentally/emotionally done. We…
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Questions to ask Memory Care Facility
My brother and I are wanting to move my mom to a MCF. My dad, thankfully, bought long-term care insurance and after 5 years, we just mentally can't do it anymore. I have made note of the obvious questions to ask on my visit, but wondering if there's some questions that I may not have thought of. Also, has anyone else had…
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Seeing Two of Things
My mom has advanced dementia, about stage 5. She is constantly saying we have two dogs or two cats (we only have one). Sometimes she will double a person and say ‘Dan and Dan went there etc.’ Has anyone else encountered this doubling? Is she really seeing two of things?
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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Caring for mom with a/s of dementia
my mom clearly has signs of dementia. Have taken her to her Kaiser PCP to confirm and get HELP as I have no idea on what I need to do. Unfortunately after four visits, still no diagnosis or referrals or assistance/advice except deal with symptoms as they come! It’s really hard dealing with this. I want the best for her but…
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Caregiver
I want to be my dad’s caregiver and get paid for it. He only has Medicare. Any suggestions?
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I’m new
hi I’m new to this. I care for my dad who Alzheimer’s and I live with him. He’s 71
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Diagnosed. Total confusion. Down then up?
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Help! Dealing with Agitation, Alligators and threats of dying
My mom, 80 (living at home w/my 80yr stepdad) She has been on multiple painkillers, trazadone, Valium for years (I believe clearly over medicated)...who is been diagnosed by some drs with dementia/alzheimers ...and other not...clearly is suffering from dementia and delusions. Been in and out of MC for last 2yrs. But at…
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Dads journey
my dad is 89 got diagnosed in 2018 with Alzheimer’s my wife and I moved in with him so he could stay in his home he hasn’t gotten to a violent or non verbal stage yet but his incontinence has become more prevalent because of the Alzheimer’s no it’s 4or 5 accidents he’s a veteran was in the Air Force for 20 years working on…
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LGBTQ Eldery Father community
Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about…
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Hallucinating and cussing at everything
Hello my mother was diagnosed with Alzheimer’s dementia about 4 years ago we have noticed lately she is hallucinating a lot and wakes up cussing at anything and everything and constantly yelling and saying I hate you,I hope you die, I’m going to kill you , and throwing out racial slurs . But more recently she took a fall…
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The denial worsens
Hi, new to the group. My Dad was diagnosed 3 years ago. My Mom is showing early signs and we know we are in early stages. She is currently a caregiver. After a Doctor visit, it was determined she has memory loss but stage unknown. Bloodwork and MRI. She refuses to do anything. The MRI is scheduled for this Sunday. There is…
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Parent getting meaner, no joy left
I am new to this forum and new to learning about Alzheimer's. My dad has had a steady memory decline but it finally was diagnosed as Alzheimer's. Recently I've noticed things have gotten way worse. Nearly every time we visit, the tension builds and he has an angry outburst directed at my boyfriend. This time he took a…