-
Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
-
Is it getting worse?
How do I know if things are getting worse? My mom’s dementia seems to have gotten noticeably worse over the past few days. We’ve had street repair work going on nearby, with heavy machinery and loud noise, and I think it might have affected her. A few days ago, while the workers were out with their equipment, two of her…
-
seeking doctor recommendation
hello all, my parent is finally willing to see a doctor re: alzheimer's/dementia. We have no diagnosis, but ALZ runs in the family and they have been experiencing moderate symptoms for a few years now. i am looking for a doctor, preferably in Monmouth County, NJ who is compassionate and patient- they will need patience to…
-
Day by day
No formatter is installed for the format not-found
-
struggling
Hi dear community, I know you all will get it. I'm having one of those days. I feel like I can't be all of the places that I need to be. My nerves feel fried. Just wanted to say that if this is also you, my hand is in yours. 💜 And you are not alone. A friend shared this (see pic) about emotional burnout and I felt it in my…
-
MY MOM HAS EXTREME PARANOIA TOWARDS ME
Hello-- 8months ago my Mom had an MRi done to her brain but there was no exact diagnosis based on the results of the MRI> We also saw a Neuro-Pysch-- and he only spent a few minutes with her and I had to be the one to tell the story about her accusing me of stealing her under garments, jewelries, clothing, remote control,…
-
Contesting my mom's will.
My sister told me about how family members fight over the will. I've been naive thinking black and white and that the will is going to be carried out as intended by my mom.
-
Will CPAP Really Help?
Hello friends, Dad is 79yo, had a CPAP maybe 20 years ago. Neuro thinks new CPAP is going to be a game changer/golden ticket bc of his brain scan and assessments. His sleep study showed low/moderate apnea. He's in a care home, not MC, so staff will check on him but they don't do intensive ADL's- I'd have to get home care…
-
Mixed dementia
My dad has mixed dementia vascular and alzimers hes 95 I have carers coming in once a week to help me as I can’t deal with it alone sometimes I cry about it
-
Results from Aircept
Have any of your parents been on Aircrpt? Did it help? Hurt? Side Effects?
-
Help! Overwhelmed and Dad won't address things
My mom (79) has dementia. I don't think she'll ever have any diagnosis. She won't even take her temperature. My dad (78) still has POA but won't do what's necessary for taking care of himself let alone her (i.e. meds, driving, home safety, home help, future planning, etc.) He/they don't know what state to live in when they…
-
Caregiver for dad
My Dad is 75 & has dementia. It’s so bad that he wasn’t paying his mortgage for over 7 months. My husband and family had to move in to help save the house. I work full time but took some time off to help get my dad situated. We’ve been living with him for a month now and I’m mentally, physically and emotionally exhausted…
-
Angry right now
Anyone out there ever get frustrated to the point of even being angry at the total LACK of answers available for this disease? My mom is in (I think) Stage 4 Alzheimers. But then it could be Stage 5. I can’t get a good answer from a doctor. There are no good answers. No good answers on how long I can expect each stage to…
-
Decline after caregiver?
Mom lives with us and has for about a year and a half, but we had a daily caregiver (8 hours a day) coming for a little over 2 months to help with Mom after she had fallen late July of this year. It was usually the same person M-F and then another person who came for the weekends. Both ladies were awesome, and of course…
-
Medication administration
Hi ! my mother has been getting very confused with taking her medication despite me setting up the pill organizer each week . It is clear I need to get some help because I can’t get there each day and night. What are your experiences ? Is this something Medicare covers ? Are there agencies that will just come in for this ?…
-
Safety gate for stairs?
Morning all, I'm new here and caregiving for my mom who's in stage 5. Increasing wondering at night, mostly in the upstairs hallway but occasionally venturing downstairs. Any stair gate recommendations? Thanks!
-
What to do, what to do…
My father in law suffers from dementia. He has lived by himself for the past two years and is capable of caring for his daily needs. Still fine with the few meds he takes. He has regular interactions with each of his kids as well as occasional visits from family friends. He sundowns pretty severely each evening. We…
-
When or if or why to call ambulance if notable changes in bp and demeanor
hi all…my mom has late stage Alzheimer’s but lives at home with 24/7 care. My dad prob also has dementia but always thinks something is wrong. Yesterday she was much more dazed than usual and higher BP than usual. My dad wanted to call an ambulance. Mom just existing no expression of pain. I told him to let her be. I want…
-
Need help with finding a new facility for my Dad in NY/NJ
My Dad has Alzheimer’s for the last 4 years and in the last year the disease has progressed with some combativeness, resistance to care and lack of inhibition. He has been discharged from two AL/MC facilities as I learned they are not equipped to deal with those symptoms of the disease. He has been hospitalized in…
-
How get a reputable medical alert bracelet
Do you need to have patient permission to get one ? My mom won’t do this for herself. Dad too. Mom has moderate Alzheimer’s and still drives. When I Google there are way too many choices. Obviously mom isn’t going to ask docktor and her doctor probably doesn’t care to mention to her. That’s why she needs a new doctor too
-
New here.Very stressed and heartbroken
My mom was diagnosed over 3yrs ago but is declining more each day. I went to see her and she took all the family pictures off the walls and moved all her clothes I had to put them back on walls and rehang the clothes. She didn't remember my brother's name and was saying my little sister almost got hit by a car, she often…
-
New Here
Hello. I am new here. I am assisting my father with taking care of my mother who is 87 years old. She’s having a lot of insomnia lately and stays awake all day and night for two days. She’s been prescribed medication but that doesn’t seem to help. Any suggestions?
-
Zoom Meetings
If any of you want to join our zoom meetings, let me know.
-
Is there a zoom where folks are regularly meeting?
Hi there. I am new here - I am have intermittently active on the Mayo Clinic online platform for online support. I have been part-time caregiving for my mom the last few years now. In the last two years - the caregiving has pretty much become full-time. I am temporarily living back home with my parents to help my dad with…
-
caregiver for my dad who is 89 and has dementia
My dad had been living with a lady friend for 2 years then she felt she couldn't take care of him anymore which i understand. He lives with me now but goes to visit her everyday. My question is how do i deal with the fact that when its time for him to come home she isn't very helpful . I have to be the bad person all the…
-
overwhelmed and need guidance
Hello I am a caregiver to my father. He has been diagnosed with severe alzheimer. He is 73 and he is slipping away and being lost to this disease. Each day is a blessing but so hard to see him decline. I am holding off as long as I am able to care for him at home. I need some advice on what activities or what other…
-
New Caregiver Advice Needed
Hello - I'm new to this caregiving role and am navigating these responsibilities on top of raising 2 young kids, looking for a new job, and all the other things. Where are the best places to start in seeking help and locating resources? My mother currently has a pseudodementia diagnosis and I'm wondering if anyone else has…
-
concerned
My dad is in a MC. He is probably stage 6 but I don't know for sure. When the aide took him to his room to clean him and change him(he is totally incontinent) he tried to choke her. He has not shown any violence before. She said she was squatted down at the time so I wonder if he thought she was some sort of animal. He…
-
Finding his way around the kitchen
My parents live together in an independent living apartment that is part of a community that has multiple levels of care. My brother lives near by and helps them with urgent issues. I live about 2.5 hrs away. My father has been recently diagnosed with ALZ and is becoming stressed because he's having trouble finding things…
-
Want to do the best for my Mom
Hello all This is my first post but I have been reading the discussions (parent caregiving) and see what a great community this is. Background- my 96 yr old mother was diagnosed with mixed dementia (vascular /alz) Oct 2023. I’m also wondering if she has LATE dementia due to the age at diagnosis. She was hospitalized Nov…