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New to the Group Dreading the Holidays
The holidays are hitting hard this year. In the last couple of weeks my mom has gotten noticeably more anxious which coincides with her not recognizing members of our immediate family. Thanksgiving was very difficult this year. She’s still physically doing pretty well it just breaks my heart to see her so upset and the…
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Length between appointments
My mom is in the back end of the moderate stage. Since she's been seeing her neurologist (maybe 3 years), the length between appointments is 6 months. Is this typical/normal? Thanks. Hugs to you all.
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My young dad is gone but still here
My father is 65 and in the late stages of Alzheimer’s. I just got guardianship and conservatorship of him after discovering his wife could not care for him properly. I just got him into an assisted living facility with memory care, but after only two weeks they can’t handle his behaviors and we are seeking for a new…
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Feeling sad - Missing our mom while she is still with us
We are lucky. After a number of hair raising, exhausting, heartbreaking years we finally got our mother into a safe situation. (for the moment) But now I am really missing her. I think of things I want to tell her and that she would have enjoyed talking about a few years ago and of course she can't. When she goes, I am…
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New to the group
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up…
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New here / 1 month into caring for mom at home
Hello everyone, I am grateful this forum exists. I am 35 and my mom is 72, about to turn 73. I’m not sure which type of dementia she has, perhaps mixed, but she appears to be in the beginning side of severe dementia. It’s also worth mentioning we really didn’t have a relationship before I moved her to my city last year to…
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Bible Verse to Lift You Up 12/1/24
GOD IS WITH YOU AND ME Psalm 139:16-18 New International Version “Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. 17 How precious to me are your thoughts, God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand—…
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Feeling hopeless & overwhelmed
Hi everyone, I’m new to this forum and I’m reaching out because I’m feeling overwhelmed and hopeless. My family lives in Louisiana and have been struggling with my dad’s Alzheimer’s diagnosis since 2018. He’s now in stage 7, and at this point, he no longer recognizes my brother or me. The only person he seems to recognize…
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How do you 'unhear' the mean things that are said to you?
I live out of state and have been caring for my Mom from a distance since my stepfather moved out because he could not handle her dementia and refusal of getting medical care in June 2023. In April 2024, I moved her into MC as she was unable to live on her own and after 5 or 6 emergency trips to help ensure the house…
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What to do? Mum has been diagnosed with Dimentia
Hi, I am based in Australia and my mum and dad are based in India. Mum has been diagnosed with Dimentia and she could not recognise me. Dad and her are now in care home in India, but for me it is very upsetting to accept that she cannot recognise me. My work is getting affected and I am now becoming very sad ☹️. I don’t…
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Memory care concerns
My mom has been in memory since 2022. She’s had a moderate decline since going in. Few issues but seems content. Went to visit her Tuesday. I got told the other night they saw blood in moms pull up. Maybe a uti. Head nurse calls me just now and says Dr sees red pimples on mom’s private and red lines and thinks squamous…
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Thanksgiving
Just wanted to say, all of you are on my list of what I am thankful for this year! I learn so much from your experiences and I love how supportive everyone is with others on similar journeys, even when we make different choices in our care for our loved ones. I wish peace for all on this holiday.
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Feeling Very Alone
Hi everybody! I hope everyone is having a good day/night. I am 24 and the main care taker for my mom who is 59, she was diagnosed with Alzheimer's back in 2022. The first year since her diagnoses had been pretty uneventful, no huge changes besides getting her disability approved. She had already stopped driving and working…
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Intentional bladder retention
Hello. Foster mom has some form(s) of dementia that is currently remains undiagnosed even though doctors are certain of it. .. Foster mom has been quite frequently in and out of emergency diagnosed mostly each time with an Uti. They give her antibiotics and send on her way. I live with her and everyday a large amount of…
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Blame Game
Is everything your fault? Always.
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Needing to find a home
First off, why is there no comprehensive place to help caregivers / family when it comes time to find a home for someone with ALZ? Every resource I've found tells me different and conflicting information. It's insane. Anyway, my mother is now MS, nearing LS faster than we thought. As much as I would prefer to not put her…
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Coping with disease progression
My mom is in a good MC receiving high quality care. Before that she was also in a good AL/MC, albeit one not equipped to deal with more advanced dementia. Now, I find myself watching my mom progress and filled with sadness. She is comfortable, clean (a miracle, given that she has a lot of incontinence issues), and still…
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Mom prefers to lay in bed all day.
My mother has moderate stage Alzheimer's and Vascular dementia. I have been caring with her since March. Before she came to live with us, she tended to spend a lot of time in her bedroom. Now that she is living here, she prefers to spend all of her time lying in bed and just says this is what I like to do and this is where…
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Caring for an abusive parent
I am my mom's only child, adopted. Although she has several stepchildren. My mom has had many loving friends and family in her life willing to provide support, but as she aged, her abuse spread from the inner family to external family, friends, and neighbors. She is narcissistic, gaslighting, oppositionally defiant, among…
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Attorneys for Legal Guardianship/Custodianship - Normal Costs, Best Way to Locate?
My LO is in their 80s and has been diagnosed with moderate to severe Alzheimer's disease. I need to pursue emergency legal guardianship and custodianship for several reasons - mainly, because they have been hospitalized for over six weeks and we have mounting issues that I need to address. Our state (Massachusetts)…
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Dad now stating he needs a flight home
Hi all, So my LO has just realized we are in November and staying he needs me to get him a flight back home. He has been living with me for the last 4 months and he thinks he is visiting. I have been able to redirect/work around him asking when he will go home for the last 4 months. Now we are at he realizing it November…
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Caught Between a Rock and a Hard Place
It has been extremely hard with my mom. When she is having a day where she is weak and feeling dizzy, she will ask to come to my house. Then, the next day, she is saying that she didn't need to be here, and she wants to go home. However, she is still weak and can't get around very well. I try to convince her to at least…
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New here
Today broke me down. Nothing about today so out of the ordinary but it’s been a slow build. My mom hasn’t officially been diagnosed yet but her short term memory is going. She lives with a friend and I take her to all of her appointments, manage her finances, set up her meds, communicate with all the doctors, wash and…
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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Living with two slowly declining parents
I am new to the discussion here. I am currently living with my parents. They are both slowly showing signs of dementia and I am having to take more control of their healthcare and finances. My dad has zero short term memory and constantly repeats questions that I answered for him five seconds ago. My mother has lost alot…
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Aggressive Parent Need Advice
Hi, I've never commented on here before but I need advice and have no one to turn to. My father has dementia possibly from Alzheimers, which has been going on for about 6 years now. He started showing signs of aggression the past month, but he just tried to break my mom's wrist and is threatening us. I stepped in and he…
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Managing Exit-Seeking and Aggression Issues in Memory Care Facility?
Hello. My mom (83) has dementia. We moved her into a memory care facility last year. Aside from her memory issues, she is very independent (no need for assistance with basic stuff like showering, walking, eating, etc). However, she has strong exit-seeking behaviors, in that she is very upset being locked in the MC ward and…
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Anger When Family Tries To Help
Hi everyone! I wanted to reach out and see if anyone else has had experience with this and what you did to mediate it. So I am a caregiver (F25) to my mama with Alzheimer's (F60), and she is on her first big trip since her diagnosis. Her sister took her out of state to visit other family members and my mom is having a…
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Looking for Live-In Care Resources
Hello. I am new to this group. I didn't know this even existed until just today, and I'm so thankful to have found this page. My mom was diagnosed with mild cognitive impairment back in 2016. Slowly she has been progressing, and things have taken a turn pretty quickly this past month. I am navigating live-in care vs full…