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In home care
I think the time has finally come for my mom to get in home care. She cant toilet anymore without someone wiping her. However, the thought of someone else cleaning my mom makes me cringe and I don't know how she will react. How did you get past this to hire someone ? Ugj this is so so depressing!!!!! Yesterday was her 79th…
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Anosognosia, suggestions?
My mom moved into AL yesterday and is slowly realizing that most people around her have some kind of ailment. She is so annoyed by all the attention from the nursing staff and is saying things like “They’re acting like I am here for a medical reason” and “What have you got me into?” I know you can’t rationalize with…
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Psychiatric hospitalization
so long story short I'm with my parent at a room in the er in the behavioral area. They are going to admit her. I'm wondering when is the best time for me to leave. I was waiting on the decision of the hospital on what they were going to decide to do with her and speak with the county crisis worker. I did this and now…
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Mom Might Get Evicted from Memory Care
This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…
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Conservatorship Exhaustion
On top of elder abuse/theft/etc. Issues involving my dad ex and friends I gotta handle... Medical & Social Security are highly incompetent... Facility issues...New medical problems, and my dad wants to go back to court to start all this all over again 🤦🏾♀️ Im exhausted!
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My mom is gone, grieving and pissed off (just a vent I guess)
10 years of dementia and the last three were exceedingly difficult and I feel I've been through a meat grinder (I am a different person now). I was the only person in the family (her only daughter) to step up and try to help navigate all of her care needs, as well as the legal and financial situation of my parents (both in…
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Need emotional support
Hi everyone, I'm caring for my aunt who raised me when I was a child. She has early-stage Alzheimer’s and is currently living alone. Her son has been out of contact with the family for about 10 years, and we haven’t been able to find him. She misses him deeply and talks about him every day. My aunt has memory loss. Because…
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Sabotaging everything - Caring for my Great Grandma after losing her daughter, my Grandmother
Hello there. I'm posting because I don't know what else to do, I guess I'm looking for guidance, someone to let me know that I'm not going crazy. My Great Grandma is 101 years old, lives alone in her house she's lived in her entire life. We've tried to get her into assisted living but she refuses and her doctor says at…
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Where do I go from here?
Hello. I am new to this forum. My mom has dementia. It started when she was 54 years old. She is now turning 62 in August. We are at the point where she has been hysterically crying for the past 9 days straight. She started Rexulti in December of 2025. We were thinking that maybe that could be part of it. She is now losing…
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Reflection on Progression
I haven’t been here in awhile. Mom is in MC. She’s 73. I have a 5 year old. Husband is away for work. Old pic popped on my phone of my daughter and mom just a year ago. She was in MC then (been there almost 2 years now). I just can’t believe how fast this all went down. In the picture she is smiling with my daughter. Now,…
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Does the diagnosis matter?
my mom was diagnosed with FT dementia 7 years ago. At that time, she was still living in IL with my dad. since then, her condition has progressed to the point where we decided to move her to MC. One of my to-do items along with the move was to get her an appointment to be seen by a neurologist again and reevaluate. But at…
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Feeling Anxious
Not sure what stage of Dementia my mom is in but she needs care 24/7 but she still can eat without choking, She watches TV , smiles and still laughs, eats snacks sometimes will feed herself but I’m having a hard time just thinking she might pass sooner or later
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Day 1 at AL
We moved Mom in to AL today. It went a little better than I expected. She loves her room. But she is very angry that they took away her medication and have to administer it to her. She doesn’t understand why. She is also annoyed that people keep stopping by to take her vitals etc. She says “I didn’t think I was coming to a…
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Tomorrow’s the big day; wish us luck!
We are moving my mom into an AL near me tomorrow. (If you have not seen my previous posts, ever since my dad died in December she has been living alone 2.5 hours away.) She has been cooperative and somewhat willing to do this, which even one month ago I would never have dreamed possible. But still makes lots of comments…
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ER visit
Mom has yet to agree to see a neurologist to get a confirmed dimentia diagnosis. Her primary doctor has written a letter that she has cognitive decline and unable to make medical decisions. We are hoping now the POA and healthcare authorization we have will help us since the Dr wrote the letter. This week mom is having…
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How to keep their mood from ruining yours?
When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to…
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Do Labels and Simple Written Instructions help?
My LO misplaces & has forgotten how to use her iphone and mac. She was not able/willing to use a Jitterbug. Have you found it helpful to use labels like "phone box" or "computer shelf"? What about simple instructions like "press button on right side of phone to turn on"? Thanks to everyone who posts; I've learned a lot…
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Someone’s Been in My Room
My mom has been in an assistant living residency for two years. She thinks that someone is coming into her unit in the middle of the night and disrupting things. It causes her to be very upset. I have cameras in the unit and I can see everything that comes in or out of her place even when I explained that I can see she is…
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Having 'The Talk' About Getting a Diagnosis
Hello! Happy to have found this forum because I'm so concerned about my dad. He has had memory impairment, social withdrawal, apathy and basically several symptoms that seem to be in line with Alzheimer's or pre-Alzheimer's MCI to me. Mom has been aware of the memory issues but taking a wait-and-see approach. Some things…
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Leaving Mother with Sitters
I would welcome advise on the best way to leave my mother with her sitters. We built her a small apartment onto our home and when my husband and I try to leave for a few days my mom gets super upset and says she wants to go back home and stay with my brothers who all live 10 hours away and they along with their wives would…
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Galantamine
I've never heard of this drug, much less, someone on it. My mom's neurologist suggested this medication that will not reverse the damage or retrieve lost functions. It is intended to help her retain the abilities she still currently has in stage 5. Anyone?
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Fear-based refusal to walk
A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…
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Family Dynamics while caring for Alzheimer’s
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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How common is elopement?
my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…
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Dealing with Alzheimer’s and family dynamics
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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Moving my mom to a new memory care tomorrow
so I'm on the process of moving my mom to a new memory care in a different state so she can be by me, her daughter and POA. This whole process is throwing me for a loop. She complained non stop about her old memory care and was highly un engaged and isolated. She talked frequently about moving out to be by me. So the day…
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Is this normal for Alzheimer's
my parent has major delusions and hallucinations. It started out mild back in maybe October and now is rampant. She now literally has imaginary people in her life and tells us all about these few people and has full conversations with them and also has conversations in the air with real people who are not present. one of…
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Is your LO on O2? Have you changed providers?
Bless this community, having a hard time today. 2 questions: Does anyone have experience with an Inogen-like portable concentrator that's continuous flow? What about liquid ogygen? Or another otion besides the clunky green tanks? He's on 4 liters and is in a care home, but not 24 hour nuring care. And, I HATE Preferred…