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Not Sure What Is Happening to Mom
Hi everyone - I’m new here and I’m kind of just looking for info and maybe some small emotional support. My mom is 73 and for the last 3-4 years she has been having random mood swings and changes in personality. Most of the time when I speak to her, she has a circular conversation and repeats the same story over and over.…
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First visit to Mom in MC - I survived!
I was dreading my first visit to Mom in MC, since I was the one who actually walked her in there. It's been just under 2 weeks. When I first arrived, I could see that she was in the activity room, so I first stopped by the office where the activity director and nurse manager were. I talked to them to see how things had…
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Stage 6, fading, thoughts on visits?
My mom’s declined since a very serious fall a month ago. Her care team called me last week to confirm end of life care (DNR etc.). She’s very much still in stage 6 - walks with walker, talks (although mostly random words, and a lot fewer), she still knows who I am but I can tell her recognition is fading. She’s lost a lot…
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undiagnosed parent
Hi there - This is my first time at any board or group. I've joined because neither me or my sister know what to do or how to move forward. My mother is 72 and physically very healthy, but I think that she has dementia, some form of Alzheimer's, or paranoia, or a combination. For the past two years or so she has been very…
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28 and my mom just got diagnosed
Hi, My name is Julie. I'm 28 and my mom just got diagnosed with Alzheimer's. It wasn't really a surprise. My Nana (her mom) had it and it was pretty severe by the end. My mom has aged pretty rapidly in the last 5 years. When Covid was going on she got lyme disease and some other blood borne disease (I don't remember what…
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Mom has Covid
A few days ago, Mom had a headache all day. That was all that was going on. But by the following morning, she was nauseated and throwing up and had a slight fever of 100.1 and was also having high blood pressure, well pretty high for her and also coughing a lot. So we made a doctors appointment and got her tested yesterday…
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Please help -having issue with Assisted Living facility LO is in
My LO is currently living in an assisted living facility. Her Alzheimers has progressed throughout the last year of living here and we have had many issues with this facility adapting to her changing needs. The biggest issue we are facing right now is she is having a lot of bowel issues which is causing clothes and sheets…
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Continuous Bathroom Visits
So, I'd like to find out why my Mom has to continously use the restroom. She will ask to go several times before we get ready to leave somewhere and she does the same thing constantly when we're just at home. I've heard that it's anxiety/fear or boredom and sitting on the toilet is "comforting" to her. I don't believe she…
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Moving Mom
Hello all. We are in the process of moving my mom in with my niece; however she doesn't want to go because she can't take her 2 cats and 3 dogs with her. The critters will be staying with my dad and will be cared for, but my mom has to move (and I would rather not go into the backstory of why she can't stay with my dad)…
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Support groups
I'm not a caregiver, though I provide emotional support and conversation almost daily for my mom with Alzheimer's and my dad who is currently her caregiver and dealing with his own health issues. Is there a support group for family who are not caregivers?
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Goodbye Glasses
I went to visit my mother today. The staff told me she had hidden her glasses. I don't know if she hid them on purpose or if she just misplaced them. I was concerned at first because my mother has worn glasses all her life. I looked everywhere. The staff said they had done the same and would check her trash each day before…
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Need Respite Care
careworncarer She/her/hers / Ella Member Posts: 1 First Comment Member August 29 edited August 29 My mom lives with my husband and me and we have not had more than a day away since she moved in with us. She can dress, toilet, and feed herself. Most of the time she is content to watch tv and pet our little dog. She is…
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Bathroom
hello! Recently my dad who has EO has been waking up in the middle of the nights to use the bathroom and he has been unable to find the toilet. Causing him to pee on the carpet and honestly anywhere except the toilet! Any advice? I’ve thought about the alarms to wake me up when he gets out of bed but I’m looking for…
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Onset
Hello, My husband is a vital, active and engaged 74 old man. Lately he has been more forgetful than usual, has some difficulty managing everyday tasks, and I see subtle changes in his personality. Our oldest son came to visit and yesterday I observed my husband struggling to hang a banner with our son. He was having…
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How To Be More Empathetic Towards Mom's Dementia Flashbacks
So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive)…
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Having difficulty in getting mom help
My mother is experiencing episodes of paranoia, loss of memory and irrational behavior and was taken to the hospital on numerous occasions. How do I get help with the process of being diagnosed with Dementia/Alzheimers if she refuses to see her primary care physician?
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Looking for input on situation with my mom
Hi! My mom is 77 and has mid-stage Alzheimer's. She and I have always been super close. I wanted to share a bit about my situation to get some opinions on it. I live about 3 hours away from her, but since I work remotely, I go live with her every few weeks, for about a week or so. She is currently living alone in her…
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Dad’s posture is declining rapidly
My 78 year-old dad with LBD has begun leaning significantly to the left and forward. In just two months, he has gone from being only slightly stooped to hunched at almost a 90 degree angle when standing. This causes him to look at the floor instead of forward so his caregivers are becoming reluctant to walk him (he can…
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Feeds cat 4-8 times a day
My mother has one cat. Sometimes she thinks there are more that pop by. But when prompted, she catches herself and realizes there is only one cat. Regardless of the number of cats that she perceives, she overfeed them. She sets out 4-8 bowls filled with wet food per day. This creates a bad situation as most of it rots, or…
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Dealing with incontinence & assisted living
My mom has had incontinence for awhile now and wearing depends. I got a call from her assisted living saying her incontinence has gotten worse. She doesn't even realize she is wet. My mom is still mobile and active. In reading up on it, looks like this is pretty common. Does anyone have any tips on how they dealt with it?…
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Affording full-time care in California
My mother has lost a lot of functionality since receiving her Lewy Body Dementia diagnosis a year ago. She now needs some help with toileting, dressing, and has shown a reluctance to eat regularly. We are concerned that she may need full-time care and that my father can't support her anymore, but the costs of care are…
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Need some advice
Mom was diagnosed two and a half years ago. I am her DPOA. She lived in Al for about a year but her money ran out. She is in a nice nursing home and on Medicaid. Her house should have been sold, but I could only do so much. My brother fought me every step of the way. The house is full. After mom left the house I worked so…
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Sudden Decline
Hi- I just saw my mom (85) in another state. The decline is significant. Day of the week Where's my (various items)? Where is (various people)? I knew it was coming. But I'm so overwhelmed.
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Personality Disorders + Alzheimer’s Disease
Hi, I’m new to this message board and this is my first post. It’s going to be a long one. I’m feeling a bit desperate and I need some advice. My Mom is 78 and was diagnosed with Alzheimer’s a year ago. Although, I think she’s probably been sick for longer and her condition was masked by her existing mental health issues.…
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Extreme Insomnia Due to Inability to Lie Still at Night. Desperate Family seeking Advice.
Hello All, sorry for the long post but I wanted to give some background information without being too wordy. My 80 year old father is currently diagnosed with parkinsonism. He initially was diagnosed with parkinsons 12 years ago, then lewy body dementia, and now they just call it parkinsonism. Overall his symptoms were…
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Bathing
I live with my mom (88) who has AD. Getting her to bathe and wash her hair is a struggle and it ends up in a power struggle sometimes. She also won’t accept help with this. How can I support her independence but also assist her in maintaining good hygiene. I want to be respectful but she doesn’t understand and it’s getting…
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Activity/Busy Work Ideas
Hello everyone! My mom (61) is in mid-stage dementia right now. She lives at home with my dad (61) and me (27). My dad and I work full-time, and we have cobbled together paid and unpaid caregivers/friends who come hang out with her at the house while we are at work. Recently she has been trying more often to leave the…
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The past three weekends have been so draining
For the last three weekends, including today, my mom's dementia has been at a 7, on a scale of 1 to 10. She's been a mix of emotional and delusional, rehashing the past with my deceased Dad of 13 years, forgetting where she put things she either put down or things of hers I keep in my room, or crying about how she wants to…
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Advice With New Boyfriend
Hello all, I'm new here. My mom was diagnosed with Alzheimer's earlier this year after receiving a diagnosis of logopenic PPA last year. She is having an unusual progression where memory is not significantly affected. Her primary issues are with language (speaking, understanding others, reading, writing), performing…
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Mom and Dad with Alzheimer’s
About a year ago, my mom was diagnosed with Alzheimer’s. Last week, so was my dad. They live independently together about 15 minutes from me, my husband and our 15 year old son. We knew something was wrong long before Dad’s diagnosis…but by the time we got his cooperation and finally got him to a doctor as a new patient,…