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Thankful
On this Thanksgiving Eve, I wanted to say thanks to everyone who contributes to this forum. I continue to learn much from each person who shares here. Just the act of sharing helps each of us feel less isolated on the caregiving journey! I appreciate all of you. Anyone want to share some caregiver-specific reasons to be…
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Makeup at night
just wanted to share very briefly… Got Mom all set up to do her nightly toothbrushing and night cream for her face thing, I normally let her do things on her own while I am definitely within earshot so she retains as much independence as possible. She had a shower earlier today, very unusual. But it’s because she had not…
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Progression
So moms been in an Amazing ALF. She loves it. I love it it literally is the best blessing. That said recently last 6 months or so, when I pick her up on Sunday our weekly visit at my house ( I go there 2xs a week) she wants to leave, politely after an hour. Normally she spends the day we eat, watch football game, BS.…
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Has Anyone Installed a Bidet to assist with hygiene and avoid a UTI?
I'm thinking of a bidet to help my mother with her hygiene. She had a series UTI in the summer and she ended up in the ER and my dad whose the main caregiver and is 88 years old was unable to manage. She's okay now. However, she has started getting more and more confused about "how and when to wipe" following urination and…
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Father says hurtful things and still expects me to help
so my dad’s decline is progressing where he shows bizziare behavior at times and says really hurtful things especially regarding my own health. It makes me not want to full his pill planner with his meds or assist with day to day tasks. What are some tips to stay motivated although your loved one gets really mean?
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Shower issues
I apologize if there is already a thread about this…. My mother is constantly refusing her showers, I understand the facility cannot make her shower but my concern is UTI/health issues, as she has a history with them. How long can they actually let her refuse to shower? My sister and I try to be available on her shower day…
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Mom 89 has alz dementia is having anger and agression
Mom was diagnosed about a year ago and is now having anger and agression issues. She's taking medication for the moods but its not cutting it. She has good minute and bad minutes and back to good again. I was going to say good days but felt that wasnt correct. I believe she is still capable to shower and take care of her…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Feeling sad and drained.
Hi everyone. I am new to this group, as I am finally trying to better myself by seeking some sort of help. I am 20 years old, and my mom has just been officially diagnosed with Alzheimers. I am the youngest of 4 siblings by 10+ years and I am still living at home and going to school. My dad is still working and my siblings…
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Experiences with anti-amyloid therapies (Leqembi or Kisunla)
Hi, I'm new to the community. My mom was recently diagnosed with MCI, blood test positive for AD. It seems there may be some serious risks with the anti-amyloid therapies but do the benefits out weigh the risks? I wanted to see if anyone would share their experiences with anti-amyloid therapies (Leqembi or Kisunla).
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New here and learning
Hi! My mom is 95 and mid stage dementia. I moved her in about 6 mos ago and I am the only sibling left. I was able to get her on hospice for her COPD (also has cancer but they are keeping her on hospice for the COPD) but she is not actively dying. In fact, her dementia is far more difficult than her illnesses. They come 5…
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Missing my mom
My mom has dementia and she fell a couple of months ago fractured her pelvis and was in the nursing home for a couple of months for rehab. She did come home but we felt she needed more care than what I could give her. It’s just been me and my mom since my dad passed away in 2002. I’m so full of guilt for putting her in a…
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Double Trouble - New to the group
I moved back to NE from Florida almost 3 years ago. I knew before I moved to Florida that my mom’s memory was getting increasingly worse. Once I moved back, I realized just how bad it had become in that short amount of time. We were able to get her to a neuropsychologist and have her tested. She has Alzheimer’s.…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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I’m new
Im new to group chats and im new to my dad having dementia, im not new to dementia i did at home health care when I worked and i thought if my parents needed me to care for them i would b a pro but dementia is the worst disease. My dad is 65 and lived a very healthy life and that made him happy but I’m like my mom I just…
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Dad confused in his apartment - looking for stairs that don't exist
I'm looking for suggestions / tips about how to address my dad's search for stairs to go to his other apartment. He is 92, in a wheelchair - probably Stage 5 Alzheimers. He lives in a Memory Care facility in a studio apartment. He keeps looking for the stairs from the basement or to the 2nd floor to get to his "other"…
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Parents Against Me
Has anyone else experienced their parents completely turning on them? My parents were both narcissistic before dementia, and it’s been a nightmare since the disease progressed. I moved them out of their unsafe house with stairs, brought them across the country to be closer to family, and got them into assisted living…
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My Mom Died November 1st
Hi everybody, I have been reading these posts for years. My mom had Alzheimer’s for about 15 years. 3 years ago, my father died and I took over the caregiving for my mom. She was bedridden for those 3 years. But she was the sweetest little lady. She had forgotten who I was, but she gave me kisses everyday. She died on…
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Where are we at here?
I have these questions, and no one can just give me a straight answer. My mom (66years old) was diagnosed with ALZ, in 2022. I guess we can call it EO because she was 63 years old at the time of diagnosis. She has type 1 Diabetes and last month she was put into hospice at home. She was hospitalized Oct 17 for her blood…
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Where are we at here?
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Hoping I’m doing the best for my dad.
Hello all. I’m a new member here. I’ve been caring for my dad for nearly 15 years now. He went from being my rock to depending on me for everything. I am 1 of 6 living children that my dad has. My mother passed 22 years ago then my eldest brother a year after her. I am the baby of the girls. I have 3 older sisters and 2…
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Weighted blanket
Hi. My father has been restless at night and waking up. I tried a weighted blanket last night and it seems to help a little. He did wake up once but wasn't as agitated as he usually is. It seemed easier to get him back to bed. Does anyone find this helps? It's been a couple of months of disruptive sleeping. I am trying…
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New here
Hello I'm new here. My mom has Alzheimer's and is stage 5 with a little 6. I had to move her in with me a few months ago as living independently became too difficult. I'm struggling with my sense of loss of my independence having to be caregiver for her. I plan to check out a nearby nursing facility that has an all female…
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Insurance question
Mom has had Medicare and through dads retirement benefits blue cross and blue shield. Her coverage has always been very good and she has seldom had out of pocket costs. She has recently moved to a nursing home. She has been approved for Medicaid. The nursing home is suggesting she sign up for a Medicare part b (I think…
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Guardian-family angry at my decisions
I have been a guardian for 5 years. We make very difficult decisions daily. Family members always think it is their right to tell me my decisions are wrong. I always ask prior for professional advice. My person has not asked for their wedding ring. I have been told to not give valuables to your loved one. Yet family…
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Feeling upset
I am new here. Mom's 78 with Dementia & Diabetic going on 4 yrs now. The agitation is the worst. Today she wonder off. I had officer friendly contact me to find her. She took a bus and got lost. She is on meds but I'm like is it making it worse. I am exhausted of all this drama. Nursing home is not even an option. Long…
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Stuff animals with Dementia
I am curious to find if anyone has a parent who plays with dolls or teddy bears. Mom's lives with me and thinks the teddy bear is her baby. She will feed it real food and share her drinks with it. She calls the baby by my siblings names. And it goes everywhere with her in a cart. I was ok with it until she gets angry…
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How did you decide who lives with who?
Looking for tips on what should be considered when deciding to move a loved one in with you, or if you should move in with them. We have a list of pros, cons and costs for each. but we keep flip flopping on what is "best". For example, if she moves in with us, she will have 2 small rooms. we will need to remodel the…
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Questions for the neurologist & Can we keep it a secret for now?
Hi everyone, We have an upcoming appointment with a neurologist — it will be our first since we received confirmation that my mom has AD, based on a recent PET CT Amyloid scan. I’d appreciate advice on what questions to ask during the visit. I expect we’ll discuss medications, side effects, and general care planning. One…