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So new to this
My mom was newly diagnosed . I have 1 million questions - but can I start with this ? Has anyone had any luck with getting home care ( housework ) covered ? My mom has Medicare and supplemental . I know it is a long shot - Thanks !
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Dementia worse in nursing home
Has anyone had their parent get worse immediately if placed in nursing home? My dad was placed in nursing home a couple of months ago and his dementia is definitely worse. He can't remember the place he just lived in for the past 25 years. Its so sad.
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Fear of being alone
my mother has maybe stage 6 dementia and she is terrified of being alone, to the point where I can’t go into the bathroom without her. I don’t mind bringing her with me, or keeping her in eyesight at all times (which she needs for safety reasons anyway) but the terror and anxiety she is feeling is gut wrenching. I hold her…
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New Here!
Hello, I am the 40-something daughter in law of a PWD. I cook for her and my FIL at least once a week (he is is her primary caregiver). Meals at our house, meals at their other child's home and meals out. All their lives, the boys (her only children) and husband were and still are MAJOR "ball-busters" - for lack of a…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Moving Mom to Memory Care
Hello, just needing some help on how in the world we're going to get my mom to go to a memory care facility. My brother has talked to her about it, but she refuses to go. Since my dad passed she has become very attached to her dogs and I have found some MC facilities that accept dogs. I know she would be much happier…
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New to all of this
Hi I'm looking for some support and guidance on dealing with my mother having dementia she was diagnosed with it at the beginning of the year and we're halfway through the year I have watched the person I love the most go from super woman to having to depend on her children now for things that used to be so easy for her. I…
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Won’t stay asleep
My dad won’t stay asleep the whole night, we have tried different kinds of melatonin. Any suggestions?
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Got a gut punch yesterday
Yesterday, I visited my mom at her AL facility. I took her to lunch and to the grocery store. We had a great time. As I wrote in another post, she is scheduled to move to memory care next week. As we walked up and down (all of) the aisles, I was thinking this was probably the last time we'd do this. She is still mobile but…
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Obsession with winter clothes
While my mom has finally adjusted to her new home in AL, and is actually doing a million times better than I could have ever hoped, she is obsessed with going back to her house to get her winter clothes. She knows is summer and she understands it's nearly 100 degrees outside, but she keeps telling me she has to have her…
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Mum accusing me of stealing
My mum is accusing me of stealing various things which is obviously very upsetting. She doesn't want me to go to her house any more, is nasty to me when I speak to her and convinced I'm a theft, which is hard because I go to visit, take her and my dad out and now can't support my dad .Any suggestions ? X
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Guardianship
I am the middle child, and the only girl. My mom has appointed me POA for both health and financial. Of course there has to one sibling that will not play by the rules, my oldest brother. He has recently purchased a vehicle in my mothers name. She didn't know what the heck was going on when I asked her about it and neither…
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The money is gone!
Mom has been in Al for a year and a half. When we moved her in they said they accepted Medicaid waiver. I was never told family would need to pay the remaining. Partly my fault, I should have asked better questions. The facility is not what I had hoped it would be and I’m not sure how much longer she could safely stay…
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Problems with some staff at the facility
I am new to the forum. I will try not to rattle on. My mom is in the early stages of Alzheimers. She is living in an assisted living facility in our close knit community. Being close knit, I knew most of the workers there and they were friendly, all except for one. We will call her Sara. When I heard Sara worked there I…
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Mom Recently Diagnosed
Hello! My mom was diagnosed in June with early onset ALZ. We had suspicions and they were confirmed, but it still hard to accept. She and my father live down the street from me. My dad has Parkinson's and she is his main caregiver. I help take them to doctor's appointments, often cook meals, do yardwork, help with finances…
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Dad with zero short term memory in nursing home
My dad has zero short term memory and just got put in a nursing home. He is desparate to get out and see family members visiting every day. Bottom line is I get 10-15 phone calls every day stating he is miserable and needs to see a family member. I can't visit every day because I am over an hour away. I just feel guilty…
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Going on nine years
I am outside of my church that I go to every time I see my mom at the nursing home. It's the only way I can see her and not want to escape into my old ways of addiction. She has a rash now on her face and head. I know when I kissed her, hugged her and prayed with her she opened her eyes. She used to hum when I saw her,at…
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Hiccups
My dad has been diagnosed with both Alzheimer’s and Lewy Body dementia. One problem we are running into is that he always has the hiccups. It has been going on for almost 8 months. Medications do not work. Neurologists said not real tested to disease and primary says it does. In the meantime nobody is looking into the…
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writing to you all here helps so much
Hello dear community, It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time?…
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Mom fell!
My mom fell a few days ago (was using her walker just like she always does) and it was right after she woke up to take her dog out so she was probably a bit groggy and it looks like she either lost her balance or her knee buckled but she went smack down on our sidewalk leading up to our door and fractured her pelvis in 3…
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New to this disease
Hello everyone, I am not too sure what I'm seeking here, maybe a place to vent my frustrations, maybe advice or a friendly sentiment of I'm not alone in this journey. My father was diagnosed over three years ago with Dementia and Alzheimer's disease. His wife did an amazing job of hiding it from everyone until that was no…
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Thinks she is in a new room at MC
Having her room moved has been a theme with mom for a while (even in AL) but does anyone know why after I get her a shower, she routinely thinks we are now in a different room? It is like going in the shower changes her whole perspective.
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Medication Dispensers
Hi friends. I’m looking for guidance on locked and timed medication dispensers. My Dad was diagnosed with Alzheimer’s a year and a half ago. He’s still living independently, and fortunately we live in the house right next door. He takes medication three times a day and I’ve been delivering his medication to him for…
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Another dementia milestone - Mom is moving to memory care
It was just 2 years ago that my mother was officially diagnosed with dementia at age 94. I'd estimate she was early stage 4 at the time. A few months later, in October, I made my first post on this forum feeling guilty for "pulling one over" on my mom by conspiring to have the doctor tell her to stop driving. She's been…
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How can I utilize the medical system to physically move mom to a facility
I am an unable to sleep regarding my mom's dementia and steady decline. It has been deemed by the neurologist provider, that she needs a higher level of care which I have known for sometime now. I am a nurse, but, am the daughter in this situation. My brother has been staying nights with her for over 2 months now but still…
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Hospice care
MC just called. Long story short, reviewing progression, they want to put her on hospice care. It’s hard for me to not feel this is it. They explained it just means she’ll get. A lot more care. Thoughts?
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…