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Having 'The Talk' About Getting a Diagnosis
Hello! Happy to have found this forum because I'm so concerned about my dad. He has had memory impairment, social withdrawal, apathy and basically several symptoms that seem to be in line with Alzheimer's or pre-Alzheimer's MCI to me. Mom has been aware of the memory issues but taking a wait-and-see approach. Some things…
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Leaving Mother with Sitters
I would welcome advise on the best way to leave my mother with her sitters. We built her a small apartment onto our home and when my husband and I try to leave for a few days my mom gets super upset and says she wants to go back home and stay with my brothers who all live 10 hours away and they along with their wives would…
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Galantamine
I've never heard of this drug, much less, someone on it. My mom's neurologist suggested this medication that will not reverse the damage or retrieve lost functions. It is intended to help her retain the abilities she still currently has in stage 5. Anyone?
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Fear-based refusal to walk
A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…
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Family Dynamics while caring for Alzheimer’s
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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How common is elopement?
my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…
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Dealing with Alzheimer’s and family dynamics
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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Moving my mom to a new memory care tomorrow
so I'm on the process of moving my mom to a new memory care in a different state so she can be by me, her daughter and POA. This whole process is throwing me for a loop. She complained non stop about her old memory care and was highly un engaged and isolated. She talked frequently about moving out to be by me. So the day…
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Is this normal for Alzheimer's
my parent has major delusions and hallucinations. It started out mild back in maybe October and now is rampant. She now literally has imaginary people in her life and tells us all about these few people and has full conversations with them and also has conversations in the air with real people who are not present. one of…
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Is your LO on O2? Have you changed providers?
Bless this community, having a hard time today. 2 questions: Does anyone have experience with an Inogen-like portable concentrator that's continuous flow? What about liquid ogygen? Or another otion besides the clunky green tanks? He's on 4 liters and is in a care home, but not 24 hour nuring care. And, I HATE Preferred…
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Physical Violence
And today I found out my mom is actually getting physically violent with my father when he presses her on something. I'm back at my parents for the week. I thought it was just screaming when he suggests getting help in but actual hitting as well? The worst part of all of this is that most of the time she is acting fine and…
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Anyone have advice about power outage?? and Life in General?? My first post.
Today our home lost power for no apparent reason.. Maybe car hit a pole.. maybe lightning? I don't know.. but my parents, mostly my mom with Alz COULD NOT understand that I couldn't call someone and just have it fixed. It was out for about an hour and the complete off the chain conversation had me completely dumbfounded?!?…
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Adult family/group homes
I never seriously considered adult family homes as a care option but I recently spoke with a care provider specializing in dementia that adult family homes can be a good option for some people. Thoughts?
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Need Advice
Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…
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Coping with delusions toward caregiver
My mother is entering the stage where she has fixations and delusions. One day she feels strongly the cats are trying to warn her of some imminent danger. The next day she is certain she’s pregnant and upset nobody will bring her to the hospital. This all ramped up in the last few months and it’s been a challenge. We’ve…
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How long to visit / What to do
Background context: My father has progressed quite rapidly in the past year. I only get second-hand reports from his doctors appointments but they contain the words "dementia", "Alzheimers" and "Parkinsons". Maybe it doesn't matter. He shuffles very slowly with a walker, and needs someone by his side telling him when to…
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A Brain Tumor & Dementia!
My first post & it will be a lengthy back story. Sorry but I am about to stroke out. My wonderful step father of 52 years passed in March of 2023 & then my Dad passed November 2023. In Jan. 2023 found out my Mother had a very large meningioma brain tumor. Only found because she would have what I call absence seizures. She…
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One word.... guilt
We moved mom to Memory care 2 weeks ago. I have 2 brothers and we are all thankfully on the same page. But I am her daughter.... she is my friend. I have talked to her multiple times a day, coordinating who was showing up and holding my breath night after night worried she would walk out her door and get lost. But this…
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Are digital memory boards helpful?
We have been considering purchasing a digital memory board for my parents. Mom is in LTC and Dad in AL. Mom’s memory is starting to fade. Dad has diagnosed ALZ. Thinking it would help with reminders of hair appointments, activities, share photos, etc. But it’s a good investment so wanted to see if anyone has found them to…
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Need resources to find occasional in-home care for LO?
My family and I want to hire a professional aide to stay with my mother periodically for a few hours at a time. This process is new to us and we don't know where to begin or what agencies to contact in the Colorado Springs area. We're beginning to have concerns about leaving her at home alone and need to begin our search…
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Repeated Falls: Tell it to Me Straight
My Dad with advanced dementia is in MC and has been having repeated falls, mostly in the night. After two separate week long stays at the hospital, followed by 3 weeks of skilled nursing, we brought in hospice services. He has declined quite rapidly. Last night he fell twice, both times hitting his head. He is on meds for…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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Move to MC unit closer to family?
My widowed 92 year old MIL has been living in a MC facility in her small hometown for the last 3 years. She gets excellent care and has adjusted well. BUT it is over an hour and a half from her two closest children. There is only one friend who still comes to visit her there on a regular basis. We are considering moving…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Needing direction
Hello, My mom was diagnosed with Alzheimers with possible vascular dementia as well. We can't get into a neurologist until July. Is that typical? Are there things a neurologist can do that a GP can't or won't? Thanks for any insight.
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Will I ever be happy again?
I am feeling so hopeless. Ever since my dad died in December I’ve been so worried about my mother who lives alone 2.5 hours away from me, I can barely function. We now have her set to move into AL near me in 2 weeks, and my anxiety is worse than ever; partially because I’m worried about what to do when she begs to go home,…
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Reassure me that I am doing the right thing
My dad passed away in December and my mom has been living alone ever since, 2.5 hours away from closest family (me). She has what my brother and I believe to be stage 4 dementia based on the DBAT assessment. Last month her PCP only diagnosed her with "memory loss," she scored a 24/30 on the MMSE, but he did take away her…
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Dealing with anger
This is my first time here. I've spent a lot of time reading some of the questions and answers but haven't found my specific concern. My father is 90 and has some dementia symptoms (we don't have a diagnosis yet). He and my mom live in their home. My mom does most of the work in the home including cooking, with some…