-
How to handle awareness of diagnosis in parent
Hi, very new here and have lots of questions! I have recently taken on caregiving my MIL who was diagnosed with FTD about 4/5 years ago. My question is related to something that came up today. She was definitely involved and part of appointments regarding her diagnosis in the beginning, multiple medications tried to help…
-
Advice on changing living arrangements
Hi, I’m new to this forum and have recently taken on a role as caregiver for my MIL who was diagnosed with FTD about 4 years ago. My husband and I have temporarily moved into her home while we prepare our own home with some improvements with the goal of moving her in with us upon completion. Up to this point she had been…
-
Struggling with Healthcare
Hello, I am new to posting. I live in Chicago with my mom who suffers from late onset Alzheimer’s. She was diagnosed in 2016 after showing signs of hallucination. She is now 88. My questions are; Is there advocacy to turn to when you feel lost with healthcare providers. If she is ill they treat symptoms only and send you…
-
Microaspirations
Anyone know much about microaspirations in late stage Alzheimer’s? Dad developed a wet cough a few weeks ago. Doctors said it was microaspirations, which is the next phase in decline, but now the caregiver is saying his cough is gone. Do the coughs come and go? I kinda figured once they started, they just continued?
-
Mother with AD has Anxiety
I am new here. My mother was just diagnosed with Alzheimer's in August; but I think she has been struggling for longer than that. She is on Aricept and says that it helps her feel less in a fog. She is still living alone; but I am doing her bills for her. However, she is worrying about EVERYTHING. She makes lists in her…
-
How to Help with Mother's Aggression - Newly Admitted to Memory Care Facility After Broken Hip
HI all, Im so grateful for everyone here and the support everyone provides. My mother has been admitted to a memory care facility within the last month or so after breaking her hip, having surgery, and living at a rehabilitation center for a month. She had previously been aggressive and yelling in situation where she was…
-
Fabricated memories affecting caregiving
Hello! I care for my 87 year old MIL w Parkinson's related dementia that's slowly progressing these last 3 years. She was in a home last year for a broken hip, and about 2 months after returning from the home, she started telling me about remembering times that since being home, I'd dropped her. This memory flash (which…
-
Mom is consumed with sadness...
My 58-year old mom with early-onset Alzheimers lives with me. She has been with me now for a year and a half. Her type of dementia effects her visual comprehension first and foremost, which prevents her from doing any of the things she enjoys. She can see, but she doesn't understand what she is looking at. Lately, she has…
-
Activities for Mom, middle stage alzheimers
My mom gets bored and starts roaming around the house. We are trying to find some activities, but it's difficult. She doesn't comprehend games real well, like solitaire or anything like that on phones/tablets/computers, she doesn't like puzzles, and she is showing signs that she can't comprehend things like words and…
-
Caring for dad
Hello, I am at a loss for words as to how to handle my father with dementia. He was diagnosed over a year ago and was holding up ok for awhile but it has taken a turn for the worse. Recently, he has become very aggressive and has become physical with his family. I had to call 911 this week because we just couldn't handle…
-
Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
-
When’s the time for a nursing home?
Hey everyone, my dad is 94 with stage 6 Alzheimers. He lives with my mum who is 90 and they’ve had carers 3 x a day. We are in the UK. Dad’s just had a hospital stay for getting on for two weeks due to an infection. He’s very wobbly on his legs and has had some falls. He can’t shower by himself or dress himself and he’s…
-
Leqembi update
After four infusions we had an MRI. There was no swelling or bleeding on the brain and the white matter has stayed the same and has not expanded. Mild side effects continue with fatigue and mild tremors (not sure if it’s from the Leqembi or the Alzheimer’s). Anyway we decided to continue the infusions and hopefully we keep…
-
Tremors
Hello again, Does anyone’s family member get tremors? This started about a month ago. Not sure if it’s from the Leqembi or totally unrelated. They told me she would get chills from the Leqembi, but these are definitely not chills. Just curious. Thanks in advance.
-
Important date organizer
Hello all. I’m currently caring for my mother who has mid stage Alzheimer’s. Her current hurdle is the inability to read calendars. Does anyone know of any good product that may organize important dates for her in an easy to read/understand way? Thank you!
-
My DW not eating
My DW had a fall in the summer, with nothing but a small bruise. Then a kidney stone 2 months ago, resolved. Then, 2 weeks ago, she fell at home. 2 fractures in her pelvis (no surgery), Brain bleed with no lasting effects, large bruise in her abdomen. Admitted to ICU in a LOT of pain. She is now in a wonderful rehab and…
-
Moving to AL or MC, and how do you pay for it?
Hi friends, I'm wondering how/when we go about moving my mother from her home to either AL or MC. Would her primary care or neurologist make the recommendation, then we go? We only have a certain amount of money to pay for care, and I am concerned that if she goes to a new community where she is engaged she will rebound,…
-
Mom combative when having brief changed
Hello. My 87-year-old mother is the best person in the world. This horrible disease has caused her to become combative in her nursing home. She is mostly pleasant, but when the staff has to change her Depends. Lately, she has been screaming, biting, hitting, and yelling. She is on Mematine: ( Namenda) 10mg for Alzheimer's…
-
Caregiver for brother
I'm new at this. Since June of this year, 2024, I have been trying to take care of a younger brother with altered mental status, who since that time has shown short term memory loss and confusion. I took him to a neurologist and had test done. Other than determining his basic physical health was ok and that he had suffered…
-
Giving up on life?
My mom has started to not want to get out of bed except to use bathroom. She’s been losing weight because she’s not eating her meals and only eats small portions. I’m of the opinion to not force her to do anything she doesn’t willing want to do. If I can gently get her to do something I certainly will , but she’s always…
-
Another fall
And another injury to the same arm she tore open 6 weeks ago. No pool of blood this time, but a small fracture at the top of her shoulder (acromion, no displacement of the AC joint for the medical folks here). They wouldn't have found it if I hadn't pushed for more evaluation after the plain films were done on the arm and…
-
Loved one in facility
Hello everyone. I am thinking about getting my LO in a facility, as I am unable to get back to work otherwise. My question is...for those who have your LO in a facility and you take them out for the day for whatever reason, is it easy to get them to go back to the facility, or do they hesitate and argue. Just trying to…
-
Living with a parent with early onset dementia
Hello 👋🏽 I am new to taking care of a parent with dementia. It has been a complete struggle for me. I am a single mother to a beautiful son who is diagnosed with autism. My mother was told by her doctor that he is taking away her drivers license and has asked me to “hide” her car. She is now questioning me about her car…
-
Angry at optimists
Anyone else get super upset when caregivers tell you how great your loved one is doing because they ate? Oh, Dad’s doing so well. He ate all his lunch. Look. I know you don’t know my dad pre-late stage Alzheimer’s. But MY DAD, the person, not the body, is not doing great. And I find it so condescending when people tell me…
-
Struggling with parent who is avoiding confirming diagnosis.
Hello! I’m looking for advice: Some background: my maternal grandmother and her eight siblings all suffered with Alzheimer’s. My grandmother was diagnosed at the age of 74 and lived until she was 83. My 73 yo mom, who cared for my grandmother, is slipping fast. All the same behaviors, personality changes, etc. however, she…
-
Fell again
My dad, 89 with VD, fell again. In January 2023, he broke his back, then a few months later he fell and fractured his pelvis. Then this year he fell 3 more times but with minor injuries. However, today hell fell and fractured his humerus in 2 places, fractured his right hip and femur. I think my dad can only take so much.…
-
Guilt about memory care/Assisted living
I signed the paperwork for my Dad to live in a memory care facility. He is 83 and has late onset Alzheimer’s with mood disturbance (mostly anxiety, he is not aggressive). I keep talking with him about selling the house but he cannot remember day to day we talked about it. He moves Monday. My cousin is giving me a break…
-
Loves the family members that don’t help
My mom will brag to anyone who will listen about my sister and brother but when it comes to me, the one who is actually taking care of everything, the one who she is living with- nothing Don’t give me wrong I don’t want. Do I need to be In anybody’s eyes, but it sure would be nice to get a pat on the back every once in a…
-
CPAP challenges
My mother and I are caring for my father with Alzheimer’s. We have tried everything but we cannot get my father to use his CPAP. Curious if others struggle with this and have any advice or resources to share? It’s mostly behavioral and irritability — he takes it off after being frustrated and everyone has gone to sleep.
-
Need advice....
I have DPOA but not guardianship of my Mom who has moderate dementia (Alzheimer's and vascular) Do I need to get guardianship to place her if she is refusing? She is currently living with me and it is getting to be too much for myself and my daughter, I am a single mom and work full time with CG's at my house with her…