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Intimacy.
Moderators. R we allowed to asked questions about intimacy? The issue was I was showing my wife of 45 years, and I became visibly aroused. She got highly agitated and started filing her hands etc. I was able to get her out of the shower and calmed downed. this has never happened since she has had dementia. Has anyone else…
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Question
What do the two icons in the upper right and the bottom corner of posts mean? How do I comment on a posts?
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Thank you all who had time to listen
I just want to say thank you to all of you who listened to me earlier in the year, as a new caregiver, to my husband who was diagnosed with HF and Vascular dementia in January 2025. He passed away on Friday, 11/28/205, peacefully. The dementia took it's full course and not the HF. He blew through Stage 3 to Stage 7 in 8…
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Agitation
My DH has recently had episodes of being delusional and gets agitated because he’s so confused. Does anyone know if there are medications that are good for occasional use in this situation. How about THC gummies or other varieties? Any input is appreciated.
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His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
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Using an agency for respite
I have two caregivers who come each week, 3 hour shifts 3 times a week. I don't think they are available for longer periods as they have regular schedules. I would like to take a 4-5 day break after the holidays —maybe go visit my sister in San Francisco. The agency I work with has sent nice people so far, but for a break…
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Siblings lack of understanding
My DH was diagnosed with AD. He told his siblings and encouraged them to look for information about the disease. One sister is in the medical field. One brother is an educator. Another sister worked with individuals with disabilities. There is one other brother and one other sister. They do not understand their brother's…
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Functional Cognitive Disorder
I have a spouse that suffers with this and I am learning how to navigate this process with him. How can you help a spouse learn new things, but also want to make sure you have the patience to help them during the process.
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Just need to talk to my friends (212)
Time to go to bed and watch tv a while. It's been a long day. Hope all of you have a good nights sleep. Thought I would start 212 while I thought about it. Good night.
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Hospice care
I haven't posted anything for a while, but if anyone is considering hospice care I suggest you pursue it. My wife is in memory care and has had several issues. I think the hands-on care givers are doing a good job, but the facility nurse is out a lot and very hands off. She directs the staff based on reports rather than…
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Moved into Stage 4
DH still works Sudoku. I think he will forget my name before he fogets numbers. What has changed is the frequency of wrong word substitution, stopping mid sentance to remember what he was going to say, or stopping to try to remember what "that thing" is called. A month ago, he was having an occasional "bad day" and then 2…
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My Love is home.
Hi friends, My loving partner Luis of 6 years (46 yo eoa) passed away this morning peacefully in bed with me by his side. I am okay as this is all bittersweet. I am sad as my love is gone and I shall move on with my life. I am angry because this disease is horrible and robbed us both of growing old together. I am relieved…
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Cold Intolerance
I tend to run hot, all the time. My DH has developed cold intolerance. I have managed to put up with the temperature here… he wears jeans, socks, slippers, a t-shirt, and a fleece jacket around the house and complains of being cold. I wear a tank top and short pants, and I am burning up. We keep the thermostat on 73…
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agitation and aggressive behavior
My wife is 76 and in very late middle stage (6e) of Alzheimer's. She was diagnosed more than 10 years ago and has gradually progressed to this stage. until recently she was very cooperative, ate and hydrated well, and other than having almost no ability to care for herself was actually fairly easy to care for. Recently she…
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Terrified!
My 60 yr old husband was diagnosed a bit more than 4 years ago with EOAD/FTD w/ behavioral variant. He is late stage 6 with some components of stage 7. He is at home w/ me and I have part time care that comes to help. After an appt w/ his dr treating his symptoms, he tells me that because my husband is so physically…
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Happy Thanksgiving
God says … There is room enough in my arms for you, in my mercy for you, in my love for you. I welcome you, I cherish you — even after midnight, when weariness closes in and life as a caregiver stretches and frays the last nerve. There is room enough in my arms for you, in my mercy for you, in my love for you. I pray we…
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Sons and their Dad
Just talking. We have had such a lovely 2 day visit from our son and 7 year old grandson. They live 1500kl from us so visits are very special and require a certain amount of strategic planning to get away from work, fit in with school and sports and everything else that is going on in their lives. He brought me a new…
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seroquel question
For those people who have found success with seroquel, what dosage are you using and how often is it administered? We started on 25mg once a day to treat agitation. We saw no effect and moved up to 50mg once a day. We found some success with that dosage and have been on 50mg once a day for about 8 months. Lately the…
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How long can he sleep?
My husband is sleeping longer and longer. I know this is part of the disease but it is now 4:15 pm and he refuses to get out of bed. He is sleeping on and off, refuses to eat, and becomes belligerent when I try to have him get up, dressed, and have something to eat. I’ve read that it’s OK to let him sleep but it is…
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Giving thanks for you
Feeling thankful for all of you today! Thank you for your support, wisdom, understanding, and commiseration. Hoping you can find a moment today to feel thankful, and to feel appreciated!
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Concern about potential surgery
My DW has a condition that may require a hysterectomy or other type of surgery to correct a pelvic prolapse. I'm terrified that the surgery may accelerate her decline. To this point, nearly 5 years, she has done very well. We are still having a good life and she is happy as am I, although I live every day if fear of the…
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Early onset Alzheimer
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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My spouse does not remember who I am.
My spouse does not recognize me all the time. I cannot control her in anyway when she forgets who I am. What can I do about that?
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Losing his thermostat - supposed to do anything?
My DH is into early stage 5 probably. Diagnosed a year ago with Alz. I've noticed the last few months his hands and feet are often cold. Circulation issue I imagine. He's also been keeping the house around 70 at all times. Tonight we happen to be in a hotel room on our way to visit the grandkids for Thanksgiving.…
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Swelling in ankles and feet
My DH is stage 7 and under Hospice care. His mobility has decreased quite a bit in the last month. From time to time he has had swollen ankles, and now this past week his feet are very swollen to where we can’t get his shoes on. Hospice nurse doesn’t seem overly concerned. I do plan to buy a lift recliner this weekend as…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Home visit
My wife has been in memory care for 3 years now and Im thinking of bringing her home for thanksgiving dinner with our daughters and grandchildren. My youngest daughter has had Thanksgiving and Christmas for the last 5 years, but cannot this year. My older daughter does not have a large enough house to accommodate everyone.…
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Dogs and Alzheimer’s
my husband was diagnosed with MCI and now in stage 1 of Alzheimer’s Does anyone have a recommendation about a puppy/dog for my DH? I am still working and he does not have many hobbies, I was hoping this would give him a companion and something to care for and keep him busy. He loves small dogs and we are considering but…
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Respite
As my DW keeps moving more into Stage 6, I've been thinking about how I have fought to get respite this past year and how much I am changed by it…in the best ways. I retired early, after crashing hard at my new job. Had to take an FMLA I had gotten so low and after having two weeks off with me just sitting in a chair,…
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POAs and requirements for incompetence
My mom was recently diagnosed with Alzheimer’s, and I’ve started the planning process with her. One thing I’m struggling with and can’t seem to get a straight answer on is the wording of her health care POA, It states that she needs to be determined incompetent by a medical professional before decisions can be made on her…