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Frozen in time for a minute
I would appreciate any insight into this issue. My DH and I returned from a night flight Portland Oregon to Philadelphia, PA after seeing family for a week. Two days later he awoke around 7am as usual talking about going for a bike ride. Suddenly his body seemed to freeze, arms in mid-air for about a minute. He was staring…
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I am forgetting, too
I usually am very organized, but with the stress of a DH with dementia, I am forgetting appts, lose things, and run around and getting nothing done. I know it is because of the caretaking, and am the ONLY caretaker because family has turned away from us because they just don't want to deal with this private hell
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Phantom Pain
I was just wondering if your loved ones with dementia experience phantom pains. My DH has been complaining of his thigh hurting for a few weeks. No visible signs of anything. I thought maybe a pulled muscle but after a few weeks it did not go away. He doesn't do anything physical activity except walk and that is only one…
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To My Fellow Warriors
This journey is the worst, yet we all get up, stiffen our spines and get back at taking good care of our LOs. We get irritable, cry, depressed, exhausted, and we still get up and take good care of our LOs. We put our needs second to make sure our LOs are safe and comfortable and get up the next day and do it again.…
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Struggling
My DH gets belligerent when I tell him No. We have a rodent problem in our subdivision and I’ve had to hire an exterminator to place bait traps in our fenced yard as I’ve explained to my DH that he cannot let the dogs out. And there are kill traps set in our shed that must remain closed. I just came out of the bathroom and…
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Lost partial denture - what about eating?
My wife lost her partial (upper only) dentures. It's been about 10 hours now. She has had new partial made but she can't get them for at least another week. The center she goes to has the dentist on Fridays only. I have several teeth missing, both top and bottom, and it doesn't bother me to eating soft or hard food. I do…
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Medication control
I have a delemia. HWD can no longer be in charge of taking his main pain med. He forgets when he takes it then takes more. I have started controlling the med bottle and omg it'd causing so much stress for him. I put his daily dosage out for him and as of late he's becoming more hostile and defiant. Name calling too. I hate…
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Waking up multiple times a night very agitated and confusedted
I read many posts about spouses sleeping many hours at night and daytime sleepiness. My husband was prescribed trazadone, 150 mg, to help him sleep. It does help him sleep, falls asleep in 5 min or less but only for a 2-3 hrs. He moans and groans then startles awake, appearing scared or confused. When i ask what's wrong he…
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Question severe difficulty walking.
My DH has started shuffling when walking. His ability to walk has severely declined rather rapidly in the last few months. His gate is unstable snd takes baby steps. If anyone can share their experience. I am not sure what to do and if there is any help or therapy. Is this part of the Disease? Thanks for sharing.
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Speech and Language Referral
My DH has AD and Logopenic Aphasia. Last summer his neurologist (in a Memory and Cognition Clinic) referred him for a speech and language evaluation, and after a 2 session lengthy assessment we were basically told that the aphasia was too far progressed for her interventions and it would just be frustrating for him. She…
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The Unexpected Journey 8/26 on abc
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Neighbor Gave my Mom A Cat...
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Two weeks in
My husband was diagnosed with dementia two weeks ago. He is on anti-seizure medication. The insurance continues to deny the doctor's request for a special Pet Scan. I am just beginning and with his denial that he has dementia and the problems with the insurance company, I don't know if I can do this. I have stage 4 cancer…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Moving Day is tomorrow.
I have been with my loved one since July of 2019. Luis was diagnosed in August of 2023 with early onset alzheimerz stage 4/5 at the age of 44. This has been a long journey. I longed for the days to have a normal life. I knew the day would come when he would have to go into a facility of some sort. Well tomorrow is the day.…
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My own irritability as a caregiver
my DH has Alz, early to mid stage. My mood is so up and down in this caregiver role. I can feel very irritable, and angry with his responses. Other days I’m able to cope. I don’t like myself when I get so negative and can’t seem to let it go. I don’t take it out on him but I’m sure it shows. Any suggestions how to stop…
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So over this...
I hate my husband. I've been thinking this way for a long time and just felt like I needed to say it. I hate everything about him and this disease. I have no help, so the last 7 years have been very difficult. I have some in home help starting soon. Sorry to burden everyone with such a negative post.
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Have no support
Once I reached out to family and friends about DH , they avoid me like a disease. Now I am fully isolated and am constantly apologizing for him or arguing with him.
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Need to leave right now
I cannot do this anymore Suicidal must take care of myself Any insight
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Agitated Spouse
My wife has Alzheimer’s and on occasion feels that she has appointments (like hair or nails or something like that). Wants to call to cancel appointment. These are places from over 30 years ago. In another state. I try to let make her think I’ve already cancelled the appointment and sometimes thus works. Other times she…
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APS
Today a very nice lady showed up at our door, Adult Protective Services 🙄I knew they were called because my LO drove the car . He took the DMV test, they passed him, much to my dismay, and I sold his car but he wants to drive if it’s just down the street! I’m a hard No, he took her test and got 25 out of 30. Mild cognitive…
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New Member
Hi Everyone! My name is Laurie and my mom is 78 just diagnosed with early onset Alzheimer’s. She was a nurse for 50 years and I had been noticing that about 5 years ago it was Xmas day and the whole family was together. I remember her sitting down and watching her grandchildren open gifts and she had that far away look in…
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We can do this!
I know some professional caregivers who say that if they had to do this without time off or vacation time, they would go insane. Yet we who do it 24 hours a day, seven days a week without help or respite, can go on this way for years and years. While watching someone we love deteriorate physically and mentally day by day.…
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This is so damn hard
Sigh. My poor DW. She so much wants to tell me things and express her thoughts and she just cannot say it. Seeing her struggle and trying so hard is just killing me right now. I know it's not rational, but I wish that I could make it all better. Daaaaaaaaaaaaaaaaaamnit!
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The state investigated last week's incident and says my DH has to move...help
In my last post I told how DH had groped a female resident at his MC. Now the state has stepped in and says he can no longer stay there. The social said she told them they were willing to keep him and wanted to keep him but the state is adament. When I asked her how long we had to find another facility, she said she was…
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Reposting...
My 75 year old wife was recently diagnosed with FTD. I am 77 myself and in compromised physical health due to my Vietnam war injuries. We sold our home and moved into a retirement facility which made life less complicated. But the issues I face caring for my wife are almost more than I can manage. I do not dare leave her…
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DH bothering neighbor with small children
DH has now become fixated with a neighbor family with 3 small children. Their house has very open picture windows and he’s walked over there to talk to them, apparently looking in the window and inviting the little ones to come over to our house. He likes people and likes kids and likes to have people come over. He’s…
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One diaper change away
I'm one gross diaper change away from screaming. If I could run away I would. How do others handle this horrible job without throwing up?
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I’m burned out and don’t know what to do
my DH has undiagnosed dementia and steadfastly refuses to see his doctor. This has been going on for more than three years. DH is 75 years old and is healthy except for his memory problems. My son comes over three nights a week to support me but he works full time so I’m pretty much on my own. I can’t hire a caregiver…
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Adult teenager
I barely survived raising my own kids.....now my husband with Alzimers has become a defiant teenager. I am not wired to deal with this!!! Been a really bad day in my household. God give me strength!