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Book that Gets It
Like we have time to reas? If you do, however, this novel by a writer whose husband died of Lewy Body Disease is good fictional treatment t of the rabbit hole we caregivers fall into. https://www.forewordreviews.com/reviews/counting-backwards/
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I moved DW to memory care (part 2)
So, that's the background. All of our family and friends were supportive of placing DW in MC, even urging me to do so, reminding me that I had to take care of myself. The conundrum for me was, how was I going to get her in the door? How was I going to get her things to the MC facility? One suggestion was to say her doctor…
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Started with hospice care .
Lots of help and support . Also I kept a home care person who is working out well . Hoping to be able to have some time to be myself this week . We had a nice mother's day with the grandkids visiting . Of course it was hard for them but important they got to see their grandmother now and not later as this progresses. My…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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Hope and hospice
My husband started on hospice a month ago. I find it has heightened my hope that the end will be here soon. Sadly, a side effect is I am getting exhausted from the waiting. I visit every day and don't feel like I can really separate sufficiently to do something like take a weekend away. I don't feel my presence is that…
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Confabulation, anxiety, depression
Moving on into the reality of DH's ALZ. For upwards of a month DH has seemed to be normal and, admittedly, I allowed myself to become somewhat lulled (is that a word?)into my own denial. What I failed to see was that his constant itch was most likely anxiety, that his calling hid brother more often was his attempt to a…
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A Most Sincere Thank You
I don’t think I ever got so many Happy Birthday wishes before in my life, so thank you so very much. I ended up going to a MLB game since I love baseball. It was 74 degrees, sunny and I got to share it with 28000 other people. It went extra innings. We lost but it was a glorious day, until found out DS left my DH alone…
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Seroquel - Anything I Should Know?
Finally was able to get my husband to a doctor for a complete physical. Turns out he's as physically heathly as he can be for a 78 year old. To help with anxiety and sleep issues, Dr has prescribed Seroquel - 12.5mg / per day to start. I can go up if needed. What has everyone's experience been? Good? Bad? Anything I should…
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Sorry, Another Stupid Question
I’m sorry for being so needy today….My birthday is tomorrow and I was wondering if I could spend it alone without any adverse reactions for him. After the 911 incident I just wanted to be alone, but not if he’s affected adversely. His wayward son said he would come over. Thanks
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new member
I am new here. My DH was diagnosed with dementia 3 yrs ago How do you know what stage of the disease he is currently in?
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Help
I am 55 years old this year my fiancé is 56. He had a very rough life. His family tried killing him a lot when he was a child so he has a lot of anger built up so he became a very bad drug addict and an alcoholic very bad, his clean of drugs For nine years now and clean of alcohol for two years very proud of him in all…
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Sundowning now all day
My DW has been sundowning for quite a while but this past week it seems to start up each morning. She goes to bed crying and wakes up crying. I can calm her down most times and get her redirected but next thing I know she is crying again. When I ask her what’s going on, she says she doesn’t know anything and doesn’t want…
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From Maybe to Reality 3
Family had a big birthday party for DH (ALZ). I was afraid that it would be too much for him but he had the time of his life and at age 90, he danced every dance. The only think that I noticed was when 2 of the grandsons came over to the house before the party and spent time alone with him. He was telling some of his life…
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Trying to think ahead
What type of documentation does the Police Dept need to show that a spouse has dementia? Does taking the med bottles as proof meet this requirement? Just thinking ahead …just in case.
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911 saga
Does anyone have a suggestion for getting DH to the neurologist? I called to get an official letter from DH neurologist but they said he hasn’t been seen in 11months and he needs to be reevaluated. I explained I needed some documentation for the police. So she fit us in on Monday, but should I tell him the appointment is…
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Picking Skin
There is a big fancy word called Dermatillomanina which is a OCD thing of picking one's on skin. My spouse picks her arms over and over and over. They bleed. It is messy and it is frustrating. The Doc raised the antidepressant but it didn't help. Just curious if anyone else has had this issue and any luck of how to control…
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At My Wits End
At 830 tonight, my DH called the paramedics on me. So I’m in my locked bedroom and I hear footsteps…. 2 paramedics and 2 policemen are banging on my bedroom door. I’m shaking so bad I can’t even type. He told them I’m not taking my medicine ( I only take one blood pressure pill and a Zyrtec for allergies ). They were…
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Any spouse caregivers of Alz patient with teens in the house?
This is my first post. My DH was diagnosed with Alzheimer's in February with APOE3/APOE4 variant. He has had two Kisluna infusions. I am 56 and he is 70, and we are both still working, though he will not be as actively working now. We have a 10th grader at home. She knows about the diagnosis. I am so worried about her and…
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Unusual Question
When moving to MC, should I take lots familiar photos in frames….or will this make DH realize people/dogs are not around and be a constant ‘where is everyone’ thought. Any advice of things to take/not take will be appreciated..
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I need a safe space for me
please allow me to vent… I am so tired. My head constantly aches. I don’t sleep well. My DH has AZ and, I am beginning to think, another form of dementia as well. We see doc in two weeks to discuss. He is all over the place some days. Some days hallucinating. Some days body temp out of control. Then he sits down and reads…
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What next when they can't swallow pills?
I know from experience that today's occasional problem is tomorrow's permanent limitation. In recent weeks, my DW has struggled with swallowing her pills. What comes after unable to swallow pills and how do I know it when it is time for that?
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Gotta work, DH can't be alone but not ready to be placed, holy Cr. what do I do?
I work part-time because we can't make it without the extra income. Both of us are on SS. I've been able to leave my DH for 6-7 hour stretch for the last year an a half but that's coming to an end. He is good when I'm home and can take care of him and make sure he's safe, but in the past month I am realizing that he's not…
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Freedom feels so good!!
I’ve been the solo caretaker for my DW for almost three years. We moved back to California after her diagnosis to be closer to her family. Well to say the least it didn’t help me with her. Virtually no support except maybe a short visit every couple of months. Her best friend since the third grade lives about 900 miles…
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Dementia, meds, alcohol
This has taken me a very long time to post and I'm not sure why. Perhaps because I'm disclosing the thing that my DH would most like to keep secret, but I need help. In addition to dementia, hubby has had multiple health problems, including numerous surgeries which have left him with chronic pain. As a result, his pain…
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Buproprion vs. Seroquel
DW has been taking buproprion for many years for anxiety/depression. She has been in MC for three weeks now. She seems to be having some trouble adjusting, and sometimes she's very down. The facility's psychiatrist plans to wean her off the buproprion and start Seroquel. Does this sound like a good idea? (I realize I…
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Hospice care
Today I called hospice care and will be waiting to see if my DW is eligible for their care . This was a very hard decision but I feel that if I can't get my wife to eat and all the weight that she has lost it would be best for both of us .
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How to arrange a week of respite
I know that all the facilities around that say they do respite care will only do it for assisted living, not memory care, and my DH needs lots of assistance with dressing and navigating. MC facilities don't do it because it's too much work (all the paperwork for placement) and because they are usually full. I have a…
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Resources
Could someone recommend a book that you like that explains stages and symptoms of Alzheimer’s? Thanks
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Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
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Period of inactivity
My DH sat down in a chair in our den the other night at 8:30 and sat there with his eyes open and didn’t move for 6 1/2 hours. I checked on him every hour and ask if he wanted to go to bed and I could tell what I was saying wasn’t registering with him. At 3:00 am he finally would get up and go to bed. Has anyone else…