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Facebook Alzheimer/Dementia Group
I am curious if members here are aware of the Facebook group titled "Alzheimer's/Dementia Help & Support Group". A I have noted in other posts, I only learned about this forum later in my wife's condition but found it, and continue to do so, extremely helpful. Not being active at all on social media until very recently and…
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Frustrated and overwhelmed
This is my first post. I am not tech savvy. I am so frustrated and overwhelmed with my husband. I try to be patient but I find myself getting mad at him and it isn’t fair.my heart knows this but in the moment I lash out. I am in NH and can’t seem to find a local support group that I can attend in person. I do think if I…
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Hearing, Yes or No?
It is too late for my dear wife as she left us a few weeks ago. As I often sit and think back over our path down the difficult road of AD, things pop into my head that I wish I had known or at least considered at the start. One of those topics is the subject of how much the suffering person can hear and also understand,…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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attend a wedding?
Looking for your thoughts. My DW of 40 years is well into her late stages. Right now her stage consists of constant jabbering and pacing. It's even gotten to the point where she does it when we go to a restaurant or other places. Her niece is getting married in a couple weeks and of course we have invitations. I already…
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Feeling useless.
My Dh has ad and vd. Here lately he has been so moody. He'll say he's bored and when I ask were he would like to go or what he would like to do,his answer is "I don't know what it would be. " if I make something to eat healthy hardly eats. Today I ask him if he wanted to go out for lunch,he said he wasn't hungry. An hour…
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Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
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Anyone RV Camping?
Here’s the thing. Right now DH with ALZ has short term memory loss and needs detailed instructions to do tasks. But he actually is functioning pretty well. We love camping and I have been trying to decide if we should just go for it and see how it goes. We desperately need to put fun into our lives while we still can. I…
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Stage 4
I have posted before and your responses are appreciated. We are 83 and 84 and my wife has ALZ. We are about 6 years down this road and my best guess is that she is in Stage 4. She is a wonderful person and doesn't realize she is sick. She is happy. However, she is totally dependent on me. I make all decisions, plan…
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pre loss grief
Interesting Article Understanding family members’ grief for a living loved one Study looks at factors that influence pre-loss grief May 10th, 2021 The symptoms of grief people feel for a loved one facing a life-limiting illness fluctuate over time, a new study found – suggesting that individuals can adjust to their…
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Should I or not
My DW is in stage 5/6 of her journey. Her mother has been put into a hospice house for end of life comfort care. She is close to her mother and still recognizes her mother but probably has no idea what is happening to her. I’m torn between taking her to see her mother or not. If I do take her, how will this affect her…
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Our experience with MC respite
Sept 1, I took my DH /alz stage 6 to a memory care facility for a 30 day respite . I wanted to rest and declutter . I told him the doctor wanted to monitor his medications and he said OK. The only opening was a shared room with a gentlemen with a lot of personal belongings . My DH insisted those items were his and…
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Visual issues related to Alz
Hi - my wife has some issues seeing, but it's not necessarily related to her vision. Sounds strange, I know, but it's like a connection/comprehension of what's in front of her. Is this common?
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A Smack of Reality
I have been struggling so much with getting my thin skin hit by complaints from my DW in Stage 6. I realize that so much of it comes from me still carrying denial that this is really happening. Imagine that. Denial still after nearly 7 years when she's also clearly now in Stage 6. The smack of that reality really hit me…
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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Sleep
Briefly, my DW was diagnosed in 2019 and is well on her way into the journey. Non verbal (except jabbering all day long, assistance with everything, etc.). So we entered a new phase a few months ago of my DW not sleeping through the night. She has been on lexapro almost from the beginning and risperidone shortly…
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Bidet Toilet Seat
Has anyone tried a bidet toilet seat with their PWD? I have been thinking of getting a non-electric one (HWD can't use remotes or anything other than an on/off button). I was going to get one for my bathroom and then, if he can figure out how to use it, eventually install one in his. He is still continent, but that could…
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memory care bail out
Well I thought I had done it. I placed my DH, probably early stage 6, in a local memory care facility. I had looked at every likely place and decided this one was the best. No health department citations, many many positive reviews. Chickens and bunnies. I had visited 4 times. It has lots of activities, though I knew he…
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Long term care
I am new to the forum. I woke up a week or so ago and was just researching things on ALZ, and came across various discussions. My husband is from a large family (20 siblings and 7 children), and dementia runs in his family. I had some idea what was ahead when he began to have cognitive issues, but I was optimistic that we…
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Meeting with friends?
My DW and I are traveling in our RV and find ourselves close to a couple who we first met over 50 years ago. He and I worked together, our kids were the same ages and attended school together. Although we live two states apart now and have for 25 yearswe have visited in person every few years stayed in touch online. The…
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Odd Behavior
My DH was diagnosed with MCI about 3 1/2 years ago. He has never officially been diagnosed with AD or Dementia although it is clear that he has it. I estimate he is probably in the middle stages of Dementia. He began several months ago when we would be out in a store he would walk up to some stranger and ask them to either…
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Caring for My Dad (65, Alzheimer’s) — Looking for Guidance
Hi everyone, My dad is 65 and has Alzheimer’s. He’s still in good spirits, but his abilities are getting more limited. He can’t really make meals anymore beyond grabbing something simple, and he needs reminders and some help with personal care like shaving and showering. His speech and understanding are also very limited.…
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Positive experience with Palliative Care
First I would like to thank all of the wonderful knowledgeable people on this platform that have helped me over the last couple months since I started visiting and learning from everyone. My husband was diagnosed 6 years ago with Mild Cognitive Impairment. Eighteen months later, during Covid, he was diagnosed with Multiple…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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When do you call hospice?
I know my DH is not there yet but he is very advanced and progressing very quickly. He is not bed ridden and my intent is to keep him home but are there signs to look for as far as calling hospice. I'm sorry if this seems like a stupid question but I am curious to know how and when others handled this. Thanks to all of you.
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Looking for a support group
Hello, my DH has EO and is only in his 40's. Does anybody know of any support groups I can join. To help me?
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New to this site and need advice
my DH was diagnosed 2 years ago with MCI due to Alzheimer’s and has been progressing so likely now moving into middle stage. He is on lots of meds including the newest transfusion treatments that he receives every 2 weeks. He can still do daily tasks and drives short distances. We are in Greece for a 12 days cruise as I…
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No clue where we are in AD
My DH was diagnosed this summer with AD. I knew the last couple of years things weren't right, but he thought it was his bipolar issues. The neuro we saw just explained to us what AD is and what it does physically to the brain and then said he had to start Donepezil and take IV treatments. (He has not started the IV…
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When did Hospice accept your LO?
DH has been declining rapidly for the past two months. We have been housebound for six weeks because he could not remember how to get in/out of the car. He cannot walk anymore and has been in a wheelchair in the house for the past two weeks. He sleeps 14-16 hours per day. He is now 100% incontinent, but I am with him 24/7…