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Changing personality
This is my 1st time on here. I needed to vent. My wife has early onset and has mild cognitive impairment. She is still high functioning but has become very anxious. She gets riled up fast and takes it out on me. I am finding that I lose my temper when she is angry at me. Afterward, I feel bad cause “I should know better.”…
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PET scan -Update
Update: The Neurologist said he is eligible for IV infusion medications based on his PET scan. We need to have a blood test done that would provide info regarding the likelihood of ARIA (brain bleeds), so we’re set to do that next week. If that comes back okay, they will set up the therapy plan and present it for insurance…
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Seroquel 25 mg
My DH started having started having delusions, some hallucations with hearing noises. He thinks men are hitting on me…family members, repairmen. Wants to go grocery store with me so men won't hit on me. Follows me around constantly. I am wondering if things will go down hill from here. The doctor precribed Seroquel 25 mg.…
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I am new to this group and am grateful!
Hello! My DH was recently diagnosed (December 2025) with AD at 70yo. In hindsight, I began noticing "questionable" moments here and there probably 2-1/2 to 3 years ago, but he had just retired and I chalked it up to a major life shift. About 18 months ago, my worry intensified but he would not hear of it. As the months…
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Learning what not to do
My husband has alzheimers. I just need a place to get good advice as to how to handle certain situations
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Spits his food out
I don’t know if this is a phase or just a progression of the disease. My DH is losing roughly 4 lbs. per week, and I’m sure it’s due to spitting food out. He will take a few bites, swallow, then the rest of the bites he spits out. What can I do about this? Nothing? I’m curious if others are dealing with this same issue.…
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DH and my constant sobbing
I have read some of your posts and I feel terribly guilty about posting at all. My DH has had dementia for about three years and I believe he is in stage 6c. I'm trying to stave off incontinence by taking him to the bathroom at regular intervals. Being the toddler he is, there is no guarantee that this will work. So the…
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Grumpy Old Man
My DH is always mean to me. He thinks it is real funny when he locks me in a room. He loves to see me get angry. Always tells me I am fat. First thing in morning he says, Wheres my breakfast!! Like I am his servant. My 8 yr old grandson was visiting and it was constant teasing. MY grandson gets so confused that he is very…
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Any of you dealing with sarcopenia?
My DH appears to be declining physically more quickly than cognitively. He has VD but both his mother and older brother died from alz, so he may have mixed dementia but not diagnosed. He sits most of the day and has for years. His legs and hips are weak and getting weaker, he has difficulty: rising from sitting, standing…
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Brain shrinkage
Good Morning Warriors. I tried to research the subject of brain shrinkage and changes in facial features. There doesn’t seem to be much about this. My DH is gaining weight in MC facility but his face features are changing dramatically. In particular, his eye sockets are deepening. His cheeks are also sinking in. He has…
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A letter to Memory Care Center managers
Dear Mr. Memory care manager, I have been working hard these last 50 years and always setting money aside for retirement. Now I need that money to pay for memory care for my DH. Memory care is my vacation, my world tour and my retirement all rolled into one. Today I arrived at my Dh's "care suite" only to find that yes you…
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Processing DH's Dementia Journey and Recent Death
My DH graduated to heaven recently after seven years of moving through the different stages of Alzheimer's. After living with anticipatory grief, this final ending of our earthly relationship has been very hard on me. He was the center of my world. I spent at least a couple of hours every day for the past year with him at…
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Is it time?
I've been caring for my LO for 3 years. His progression is getting worse. I was not prepared for this, nor what is to come. Incontinence and it's a battle to get him changed. Showers are hard. Relieving himself outside of the bathroom. Wanders at night, gathering items, hiding items. He is not aggressive or combative at…
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Today’s Question?
How could DH with VD smell the bread baking but cannot smell the urine soaked clothes he is wearing? Just curious 🤷🏻♀️
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I failed as caregiver today
Yesterday I picked up a nasty cold and had a really rough night last night trying to sleep. This morning my wife (who has Alzheimer's, stage 5) had another emotional meltdown. Partially accusing me of of keeping her here at our house to kill her or some such nonsense. I am at low ebb, having little to no patience this…
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Sundowning in the Morning?
A question for the community, My DW has been waking up the past week or so with a continuation of the sundowning attitude and demeanor she was experiencing the prior evening. Is this a common experience others have experienced with Alzheimer's? Is this an indication that my DW condition is in further decline?
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I had a dream…
I just have to tell this to someone…I wouldn’t be able to tell my friends or family without bursting into tears. I lost my DH a couple of months ago. I have occasionally remembered seeing his face in my dreams but never could remember the dreams themselves - until today. I dreamt that we were somewhere sleeping. I woke up…
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How do you transition to "Depends" without a battle?
My DW is getting closer to needing "Depends" underwear or similar. I just can't imagine that she will accept wearing them. I could remove all of her regular underwear and put "Depends" in the drawer but I'm not sure that will work. Any ideas would be greatly appreciated. Thank you all!
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Loss of mobility
My DW is late stage Alzheimer's diagnosed in 2021 but Dr. thinks it started sooner. Her short term memory is almost gone, hallucinations, incontinent with, etc. Out of the blue she refuses to stand or walk. This makes looking after her very difficult. I am doing this on my own but do have a Care Giver come in Mon and Fri…
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Struggles on the farm
This is my first post. I have read & benefited a great deal from reading about your experiences. I've finally gotten up enough nerve to share... My DH was diagnosed with EOAD officially 2 years ago, but I realized it started much earlier. He is still social & most who aren't aware can't see it. There are times when he will…
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Looking for Feedback on Quetiapine
At my DW's last visit with her neurologist it was suggested that she begin low dose quetiapine twice a day. (split 25 mg tablet). OK. So I never start her on a new medication before I have had an opportunity to evaluate the potential risks/rewards of using the medication. Reading the manufacturers medication guide #1 of…
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Venting
My DH has AD & recently moved into a VA facility. This transition has been so hard - for both of us. He wants to come home, I know I can no longer take care of him, I dread going out to see him b/c my husband is no longer there, just a shell full of confusion. We started looking for a diagnosis when he was 58, only to be…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…
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I’m here for you
We met in 2010. Married in 2013. Just the two of us building a life on conversation, travel, curiosity, and the kind of partnership that doesn't need an explanation. The diagnoses of EOAD arrived in October 2023. The disease that started years before had progressed to the point where DW could no longer manage her own…
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Has anyone done self-pay for Kisunla?
Hello, we just prepaid for the first 4 treatments of Kisunla because it was denied by insurance bc my DH is "too young" (less than 60 years old). We were told it would be about $30K a year, but the estimate we got from the provider was $30K for the first 4 treatments. Anyway, has anyone else decided to self-pay and what…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Lucid and logical
My DH had two falls two days apart at his MC, where he has lived for about five weeks or so. The second fall, yesterday, occasioned a trip to the ER. Other than a knot on his head and some bruises and scrapes, he was allowed to go back to MC. Today when I visited him, he was more lucid than he'd been since he went in there…
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Magnesium Citrate
DH has always been rather constipated, I've been giving him a small dose of MiraLax daily and prune juice for months with fairly good success. ….but now he hasnt had a movement in 10 days. He doesn't eat muh anyway, but he does eat, I know something is there! The hospice nurse said to give him a bottle of magnesium…
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Losing me!
We do so much, give so much, care so much and as a result we lose who we are, who we were! Please I miss me! I miss my belly laughs, I miss my glass full, I miss my friends, family, life, laughter, that joy of each day! How do we reclaim the “me”? I won’t give up on DH nor will I give up on me, but how do I reclaim that…