-
Kisunla
Good morning to all. I hope you’re finding peace somewhere along this journey that we’re all on together. I don’t post very often, but a friend sent me an article about a new monthly infusion called Kisunla. I’m wondering if anybody out there is aware of this or has had any experience with it. This is advertised as yet…
-
Home health care
I am 70, in reasonably good health, with some managed issues. DW is 67 in moderate stages. She has frequent urinary incontinence and needs assistance with dressing and bathing. I cook breakfast every day. We have an adult daughter nearby who really helps out a lot, frequently bringing meal preps and assisting 2-3 days per…
-
How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
-
Our Theme Song?
I ran across this song yesterday and it got me all weepy. Love it though. For everyone on this journey; you’re not alone. https://youtu.be/E5488fUMLXs?si=ddyuj-Xm6_Housq5
-
Need Advice on Preventing Falls
My DH, who is in the later stages of Alzheimer's and lives in MC, is having two different issues with falling on the floor. The first issue is that he is becoming more and more unstable when he walks and has fallen a few times and split open his forehead. Now I'm told that he is hallucinating and reaching down to the floor…
-
Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
-
Other expiriences
My DH is blaming his Alzheimer’s on his CPAP. He found a water bottle he uses and he thinks this is a miracle cure. He talks about from the time he gets up until he goes to bed. It gets tiring most days. He also thinks the doctors know this but they just want more patients and people who use CPAPs are all going to get…
-
SAD/Angry/SAD/Guilt/SAD
I have read this situation here but have never experienced it myself until recently: My DH is stage 5 VD and some days cannot dress himself. He has a son, daughter and stepdaughter from a previous marriage. The stepdaughter has caused a big riff in the family. She seems to have turned the son and daughter somewhat against…
-
A Fall
Falling has become more of a thing for my poor DW. This last one was my fault…trying to get pants pulled up and down she went. Now at the emergency room as her wrist looked a mess. Damnit.
-
Denial
My dh was diagnosed last year. He is in denial that he has Alzheimer’s or I should say he thinks he is getting better. If you try to talk to him about it he just gets angry and I am a b. Not a nice word. Has anyone had this problem.
-
new to group but not to dementia
Hi All, I am not sure what I can do to help my husband when he yells at me so much. I can't write DH because he has been verbally abusive for a very long time. He also has GAD,OCD and depression. That is along with dementia. His mother had dementia as well so he watched what happened to her. He has been on Aricept for…
-
Input requested for oxygen use on very late stage dementia
My DW has been in Stage 7f for about a year. She is minimally conscious and I am told that her cognition at this point consists mainly of core brain stem functions, her only obvious action is a primitive feeding response. She makes no other movements or responses to any outside activity. She has been starting to exhibit…
-
Big bathtime mistake and confusion with geting dressed
DH hadn't showered in two weeks and I was trying a different approach on Saturday. Rather than telling him he needed to take a shower which is always met with resistance, I asked him if he would rather take a bath or a shower. Naturally, he chose a bath. It almost turned out to be a disaster! He fell to a sitting position…
-
Exhausted and Bewildered
It is 522 AM and I have been up since 1AM trying to deal with my DW. She woke up claiming some men were raping her. I tried to calm her and tell her I was here with her. She when accused me of watching this all happen and that I did mothing. I tried denying all this , tried to assure her this was not happening and that I…
-
The pain of living with ALZ
Tonight was the hardest night so far. Which makes it the hardest day. Of the hardest week. Of the hardest month. Of the hardest year. So far. He forgot me for the first time. He promised he wouldn't, but I knew he couldn't possibly keep that promise. It just came so much faster than I was prepared for.
-
Update on DW
I haven't been around in a while but thought I'd post and update on how my DW is doing. She has been in MC and hospice for over a year now and on comfort meds. MC has been both good and bad, usually short staffed. They take reasonably good care of her. My DW has been bed or gerri chair bound for a year, stage 7, and has…
-
Take your own care seriously…
I met a woman yesterday that was pondering placement of her husband in MC. She was recently diagnosed with breast cancer and is now undergoing chemo - surgeries including a hysterectomy will be following. She told me that for 8 years while she took care of her husband, she neglected her own health, not getting mammograms…
-
Angry
My DH has been diagnosed with Vascular Dementia almost a year ago. Recently he’s become easily agitated and angered. I spoke to his neurologist about it and he denied all of it. I was hoping to change his antidepressants. She said she thought it wasn’t necessary. She thought pain might be the cause since he has chronic…
-
Declined fast because of other health issues
My DH is 56 with EOA. He had memory issues for about 4 years and was diagnosed this May. And then I discovered this forum and began asking questions. I'm guessing he was about Stage 3-4 a month ago. He has changed in just one month. He is currently in the hospital for a colitis flare-up and blood clots in his legs. At this…
-
Significant other confusion
My DH thinks that I have a twin. I am the only one with him but he is always asking where the other person is. Has anyone else experienced this with their significant other?
-
Approved for hospice
DH has had palliative care since early this year. At the last visit 10/29/25, the nurse told me he is at 6e on the FAST scale. She called me the following day and said he now qualifies for hospice. I told her I would call her back to let her know if I want to sign him up. I know it's my decision, but I wanted to know what…
-
Incontinence?
My 63 year old husband is in the middle stages of Alzheimers. Although he is not exactly incontinent, there is definitely an issue with bowel movements. He goes to the bathroom, however, much of the feces does not end up in the toilet. It ends up on the floor, the toilet rim, and definitely on his hands. The hands are a…
-
COVID Vaccine Side Effects
Is anyone else’s LO’s dementia adversely affected by the COVID vaccine? My DH becomes even foggier than usual, falls a lot & becomes more hostile for about 2 days, then returns to baseline. Trying to avoid hospitalization this time.🤞
-
Queen of my Castle ?
Long Rant Sorry I’m waiting to be that “Queen of my castle, Large and in charge”. - reference to Bill’s wonderful essay a few years back! Right now I feel in charge of nothing - playing heat police once again this season as DH keeps turning thermostat up, he refuses to open drapes or blinds b/c he’s cold, he won’t stop…
-
Scared
My wife is 54 and was just diagnosed with early onset Alzheimer’s. I’m scared for her and myself. The changes I’ve seen in the past year now has a name. But that’s not much comfort. I think I’m still in denial. But I know I can’t stay in this place and I need this support. 👍
-
Am l really losing her now?
My DW is 72. She was diagnosed MCI 12 years ago. The last two weeks things are changing. She asks if I’m her husband, sometimes with a frightened look on her face and sometimes with an embarrassed look. Some mornings I then spend a couple of hours sitting with our coffee convincing her that we are in fact married and this…
-
Hubby in MC wants to come home. Help!
I stayed away one week. Hubby happy to see me but crying. Wants to come home. Very difficult to redirect. I’ve been bringing cards games which helps but then he starts up he wants to go home. We are letting a doctor dictate where he can live. Anyway any suggestions how to handle this. Maybe there are meds for him to take…
-
Bathing-when the water feels wrong - not refusing-afraid..
I saw this on a Facebook post and hope this helps someone caring for their loved one. In the book "The 36 Hour Day" it lists some reasons your loved one doesn't bathe or shower: Fear, not remembering how to shower (there are steps), water too hot or cold, room too hot or cold, fear of falling, the water may actually hurt…
-
Just when you think your loved one is no longer able to understand....
My DH is nearing the end of his journey. He has difficulty swallowing and is losing weight quickly. His speech is usually slurred, and he can't hold any kind of conversation. When I am feeding him, I remind him to swallow (or else he starts coughing violently) but I try to keep it light and smile a lot so he doesn't think…
-
Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…