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Sundowning in the Morning?
A question for the community, My DW has been waking up the past week or so with a continuation of the sundowning attitude and demeanor she was experiencing the prior evening. Is this a common experience others have experienced with Alzheimer's? Is this an indication that my DW condition is in further decline?
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I had a dream…
I just have to tell this to someone…I wouldn’t be able to tell my friends or family without bursting into tears. I lost my DH a couple of months ago. I have occasionally remembered seeing his face in my dreams but never could remember the dreams themselves - until today. I dreamt that we were somewhere sleeping. I woke up…
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How do you transition to "Depends" without a battle?
My DW is getting closer to needing "Depends" underwear or similar. I just can't imagine that she will accept wearing them. I could remove all of her regular underwear and put "Depends" in the drawer but I'm not sure that will work. Any ideas would be greatly appreciated. Thank you all!
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Loss of mobility
My DW is late stage Alzheimer's diagnosed in 2021 but Dr. thinks it started sooner. Her short term memory is almost gone, hallucinations, incontinent with, etc. Out of the blue she refuses to stand or walk. This makes looking after her very difficult. I am doing this on my own but do have a Care Giver come in Mon and Fri…
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Struggles on the farm
This is my first post. I have read & benefited a great deal from reading about your experiences. I've finally gotten up enough nerve to share... My DH was diagnosed with EOAD officially 2 years ago, but I realized it started much earlier. He is still social & most who aren't aware can't see it. There are times when he will…
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Looking for Feedback on Quetiapine
At my DW's last visit with her neurologist it was suggested that she begin low dose quetiapine twice a day. (split 25 mg tablet). OK. So I never start her on a new medication before I have had an opportunity to evaluate the potential risks/rewards of using the medication. Reading the manufacturers medication guide #1 of…
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Venting
My DH has AD & recently moved into a VA facility. This transition has been so hard - for both of us. He wants to come home, I know I can no longer take care of him, I dread going out to see him b/c my husband is no longer there, just a shell full of confusion. We started looking for a diagnosis when he was 58, only to be…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…
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I’m here for you
We met in 2010. Married in 2013. Just the two of us building a life on conversation, travel, curiosity, and the kind of partnership that doesn't need an explanation. The diagnoses of EOAD arrived in October 2023. The disease that started years before had progressed to the point where DW could no longer manage her own…
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Has anyone done self-pay for Kisunla?
Hello, we just prepaid for the first 4 treatments of Kisunla because it was denied by insurance bc my DH is "too young" (less than 60 years old). We were told it would be about $30K a year, but the estimate we got from the provider was $30K for the first 4 treatments. Anyway, has anyone else decided to self-pay and what…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Lucid and logical
My DH had two falls two days apart at his MC, where he has lived for about five weeks or so. The second fall, yesterday, occasioned a trip to the ER. Other than a knot on his head and some bruises and scrapes, he was allowed to go back to MC. Today when I visited him, he was more lucid than he'd been since he went in there…
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Magnesium Citrate
DH has always been rather constipated, I've been giving him a small dose of MiraLax daily and prune juice for months with fairly good success. ….but now he hasnt had a movement in 10 days. He doesn't eat muh anyway, but he does eat, I know something is there! The hospice nurse said to give him a bottle of magnesium…
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Losing me!
We do so much, give so much, care so much and as a result we lose who we are, who we were! Please I miss me! I miss my belly laughs, I miss my glass full, I miss my friends, family, life, laughter, that joy of each day! How do we reclaim the “me”? I won’t give up on DH nor will I give up on me, but how do I reclaim that…
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VA social worker
I called the veteran's affair clinic because they now offer a 'coordinated' team approach to treating vets with cognitive problems. I received a call back from a VA social worker,but couldn't take it because HWD was hovering and I wouldn't have been able to talk. I was wondering if anyone else has had experience with them…
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Do toddler door knob covers work?
Do toddler door knob covers work or will my DW figure it out? How does a LO respond to seeing them? I don't need another battle. I'm sure it depends on the individual and what stage they are in. I'm just curious because I need something.
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Totally frustrated
I am at the point I hate to see the evening arrive. My DW every evening here lately it's like a switch has been flipped and I become her father and her husband has left. I tried playing the role as her father to assure her she is safe, but she gets very angry as to why her husband has left for the night and nothing I can…
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To those with LO in memory care
My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't…
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Life Insurance
Unfortunately I had to cancel an expense policy when my husband lost his job. At that time I didn't know he would be diagnosed with ALZ. Now I'm having trouble just getting a basic policy for him. Can anyone offer some help? He's 65. Thanks, CM
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Trouble writing
Hi there...my husband has Alzheimer's at age 64. I can barely sign his name anymore and can write numbers. What do you all recommend I do? Do I need a power of attorney to complete this task for him now? I appreciate anyone with some knowledge on this subject. CM
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Dentist
Hi My husband has Alzheimers and I'm looking for a dentist that is patient and kind when handling someone with Alzheimers. I live in the Lincoln RI area. Any referrals would be much appreciated. Darlene
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Having a hard time choosing between home care and memory care
A month ago my DH with mixed dementia ended up in the hospital. Nothing serious. From the hospital he went to a transitional care program where they adjust his medication because of his aggressive behavior and high anxiety. He has been there for a month and is much calmer and a lot less aggressive. He is also almost 100…
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How to stop concerning behavior
How do you stop your LO from doing inappropriate things? Two examples… When we walk in the neighborhood, DH sometimes wants to walk up people’s driveways so he can look at the water behind their house. I can’t think of anything to stop him other than saying that’s private property, then he gets angry at me and cusses me…
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DW that has a dog...
My DW and I have a dog. She is obsessed over him. I had to remove all of the food from our refrigerator and panty because she kept feeding him, excessively. Luckily, I have a refrigerator downstairs that is out of sight. My DW is obsessed with ensuring that our dog has enough water and food and goes outside. This obsessive…
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Support Groups for Younger Onset
Hello. I just joined this forum and am looking for a younger onset support group for my DH, who was diagnosed with vascular demetia at 62 and will be 65 this year. He currently belongs to a support group that meets twice a month, once on zoom and once in-person. All the other participants in the group are at least 10+…
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Happy I can still find things that make me laugh
My husband lost his phone this morning and wanted help finding it. I was in a different room so I told him I’d call it so he could follow the sound. After calling several times with no answer I went looking for him. He was in his bathroom on his hands and knees looking behind the toilet. When I called again I could tell he…
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Imaginary People in Our House
My DW sees imaginary people in our house at all hours. Right now at 10 AM she is talking to them and telling them to get out. She asks me ifi they are my friends and why I let them in. I am at odds at how to deal with this every day and night occurrence. I welcome any input you may have to help me deal with this. how have…
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Adult Day Care
I live in Cabarrus county, North Carolina and am considering enrolling may DW into an adult day care program I was wondering if anybody has any experience/recommendations on adult day care facilities in the Cabarrus county area. Thanks
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Need to get grab bars and hand rails installed
DH's mobility is declining. He uses his walker when we leave the house but doesn't use it at home. We have a step from our house going into the garage and also one going out the front door. A handrail and a grab bar would help him navigate these steps. I know they have to be anchored into studs. I'm thinking of calling a…
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Word of caution. Seeming to be normal is not being normal.
I got an abrupt wake up yesterday. We had a minor problem with filing our income taxes and I asked my DH with AL, Stage 3, where did he put the copies of the papers we sent to our accountant. When I finally found them, some were missing. He has seemed so normal (other than word and memory loss) for a number of months that…