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Alzheimer's and spinning - things moving/jumping
Hi new here - My SO has probably early stage 6 Alz. He has started becoming more agitated and can no longer do ADL's most days. Today he called me to get him from Day Care. He said he was really sick - no fever, Heart Rate, BP, and muscle i.e ability to hold arms out in front of him and close eyes - no stroke symptoms -…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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What do I do?
I am not sure where to start… I waited a year for DH to have an MRI. The results mention the word dementia but all the other medical language concludes with “not significant “ . We have not seen the neurologist yet. That is two months away. His behaviors continue to be concerning. He didn’t know how to use a credit card at…
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Panic mode
Ok, I know we’ve all had some pretty harrowing experiences with all this. So we took, what I knew, was going to be our last trip to be with kids at Christmas. DW is in very late stage but always travels well because I leave early and she sleeps most of the way. Well, not this time on the way back. Like a caged animal. So…
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Christmas Envelopes
My DH has two sons and two grandchildren. I don’t know what to do with their Christmas gifts(money) We haven’t heard from any of them yet during this time. No calls no text messages. Should I take the money out and mail each one a check or just wait? It’s just me and him ( and the wildlife in my house 😳 ) and he hates me.…
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Knee surgery for PWD?
Both of my DH's knees are severely deteriorated and he qualifies for knee replacement surgery. He has MCI but most likely has progressed to stage 4. I'm terrified to have him go through the surgery because 1) I've read that general anesthesia can cause further cognitive decline, and 2) I'm not sure that he will have the…
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Yes, I'm still around
Most of you will not recognize my name because my wife passed 3 1/2 years ago, and I rarely get on here much anymore. I hope everyone could make the most of the situation for Christmas. There may be a ray of "hope for this dreaded disease. It's not here yet, but the news is encouraging.…
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Swallowing Toothpaste & Mouthwash
My wife has unfortunately reached another stage in this dreaded journey. Things she could do just 3 months ago now seem like a dream. Any ideas how I can stop her swallowing the toothpaste & mouthwash?
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Seems to be progressing quickly
Just two weeks ago, my DH was diagnosed w/amnestic MCI with concern for Alzheimer's. The neurology team ordered a "more thorough" MRI (than DH previously had), a PET scan, and the APOE blood test. Once those tests are complete, they will meet with us to discuss a plan. Today, DH asked me how my mother was doing. My mother…
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How long did your loved ones stay in stage 5, 6, and 7?
I’ve read Tam Cummings staging and estimated duration of each. I’m curious as to everyone’s experience here on the time your LO’s spent in each of these stages? My DH went through 3 and 4 fast (just over a year) and is a solid 5 now with a couple of cognitive areas in 6. Do most make it to 7? I can handle a lot but am…
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Is your PWD aware they are incontinent
I know that incontinence is something that eventually occurs with dementia. I fear it is beginning for my husband. He has experienced small amounts of leakage for about a year, but it has been something small that he seemed to notice and take care of. He is on 2 different meds for an enlarged prostate. I thought that was…
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I’m puzzled
My love is alzheimer type. In 2021 I went to see his cousin and sister to visit and kind of tell them you have a few years left to get in touch with him. Cousin never called again even for his birthday and his sister once or twice a year. A day late for his birthday. I wished they would have called him once a month. 2…
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New Stubborn Behaviors
I mentioned in a previous post that my DH was recently in a Memory Care facility for 30 days of respite care while I recovered from a broken ankle. He’s been home for 3 weeks now. Since home, he’s experiencing some VERY stubborn and rude behaviors and refusing to cooperate with necessary care. I don’t know if it’s the…
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Alvin didn’t make it…maybe more
My sad Christmas story. I’ve been trying to catch Alvin for 2 weeks now. Alvin the chipmunk has been stuck in my walls and I’m afraid of what he might be eating so I set a trap. I opened my silverware drawer a couple days ago and Alvin scared the sh•• out of me. I thought maybe I was seeing things cause of stress but then…
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Emergency Respite Care
Hello! I’ve been a longtime member here but haven’t checked in for several months. I wanted to share my recent experience with my own emergency situation and what happened with DH. Although he was diagnosed in 2013, he’s been declining very quickly during the past year and a half. He’s probably very late stage 6. He…
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No Time For Grieving
My heart is broken. My Mom passed away a week ago and she was my rock. She couldn’t help me physically with my DH who has Parkinson’s/dementia but she was always there to talk and keep me sane. Now she’s gone and I want to crawl up in a ball and just grieve but I can’t because all the things we do for our spouses still…
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Extremely overwhelmed
my husband is in the hospital, I spent Christmas there. When I got home I was so relieved. However all his many tests showed he was fine. Apparently his meds are the problem. We called 911 because he was unresponsive and fading fast. I’m sure they will release him today and I don’t know what to do. I was told by a nurse…
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How have you handled this care issue?
We seem to have reached a new stage in this affair in that my DH is no longer able to stand from sitting for me to get him onto the toilet. He seems to just get stuck and can’t connect how to stand from sitting. Although he can still perform this activity, it’s getting more and more frequent that I can’t, even with…
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My DH to begin Leqembi infusions
My 82 y/o DH has been diagnosed with Alzhemer's and qualifies for these infusions that will start soon. Anyone else here have experience with this medication.
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Problems with aides because DH is a difficult patient
Today I went in earlier than usual to visit my DH in a SNF. I waited in the hall while the hospice aide and SNF aide washed and changed my DH. Here and there I could hear him yelling and calling the hospice aide a b*tch. In the meantime, a maintenance worker, who didn't see me, went into the room and said, "mind if I join…
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New diagnosis
My husband had been diagnosed with moderate dementia/Alzheimers. He goes in for MRI the first of the year. He is only 69. He also was diagnosed with chronic myeloid leukemia.
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New
Hello, I am new to this site. I have just now felt the need to reach out for support. I have been telling my wife that the presents are not to be opened till Christmas. Well, she opened hers and her son's Christmas Eve. I was so disappointed. A few years ago, while we were in Michigan, my wife was given depression pills.…
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Alone This Holiday?
I am just curious how many others of you are spending holidays alone. Our children’s rotation is to in-laws this year. We normally get an invitation from friends to at least one holiday gathering but no invitations this year. I can’t help but conclude that it is because we are becoming more and more isolated because of…
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“Fiblets”
I am having a very difficult time lying to my husband who has dementia! I have always been that person who people could trust and know I would be honest! But now I find I am being dishonest and lying to my husband. I just want to tell him he is not allowed to drive anymore and it’s not safe and that his beloved truck is in…
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Crying out of nowhere.
It’s funny how certain things will trigger our emotions. My DW and I were sitting comfortably in our recliners last night listening to Christmas music. We were both enjoying the time and then came an Elvis Christmas song “Santa bring my baby back to me”. Out of nowhere I just lost it and started weeping.
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At peace
My DH is at peace. I held his hand as he took his last breaths listening to Chopin and the Lords Prayer at 3am this morning in bed at home. I am grateful that I was awake to say “I love you” as he took his final breaths. The end came quickly after he lost his ability to swallow any liquid three days ago. His last words to…
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DH is going to MC and I am not OK
I’ve been quiet for a while and my DH has gotten much worse in the past 6 months after having back surgery and spine injections without any pain relief. Naturally, this along with the pain pills have caused him to go downhill. He is solidly in stage 6 of vascular dementia (eight years into this journey). Our grown kids had…
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Hospital to Rehap = Late Stage of Alzheimer's
My DH was taken to the hospital where he was discovered to have fluid in his lungs. While being treated for 5 days he caught the flu there. He walked into the hospital and could clearly be understood. After spending 3 weeks there and losing 22 pounds he was transferred to rehap. Now he does not walk, can barely speak and…
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Minor illnesses
I’m finding it challenging when I get a bad cold, flu etc and don’t feel like doing all the meals and other household duties. I get very upset because I just can’t do it all when I’m sick. Luckily it’s not very often.