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How much is too much?
My DH is in early to mid step 5. I still work and he is at home by himself all day. I recently installed cameras so I could keep an eye on him. I’ve noticed he sleeps a lot. Today he told me he had slept most of the day and he doesn’t understand why. He’s wondering if there is something physically wrong with him. Should I…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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New member
I’ve been following this forum for some time now & finally figured out how to join. Having the real experts so handy with experience & suggestions is a Godsent help! My DW is 75 and been declining for about 5 years. Have to help her with about everything, but happy to do it after 51 years married. Biggest challenge us how…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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Driving Restored?
I'm very frustrated because the doctor told my DH (58) with EOAD that he should stop all driving until he could take a driving test to certify that he is still capable. We'd been going along our daily routine just fine with me driving him daily to the gym and grocery store (as he likes to get 1 item at a time). The day…
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Care home wants more meds because of aggression
My DH has late-stage early-onset Alzheimer’s with aphasia. For his safety and because I work full time, we had to move him to memory care 10 months ago. Before moving he would sometimes strike out at our home caregiver. In memory care he became aggressive when exit seeking and during grooming. We tried medication but ended…
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Memory Care Week 1
DH has been in memory care one week now. Biggest issue is his combativeness when being changed, which was a huge problem for me when he was home, as it is for many of you I’m sure. He’s also difficult to redirect when he’s doing something he shouldn’t, like taking a woman’s shoes from her room. Med adjustments are being…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…
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Assessor tomorrow long term insurance
tomorrow Monday meeting with nurse from our long term insurance. Anyone have any experience with this? I have list of meds doctors his cognitive impairments his ADLs. If anyone has experienced this please share. Thx
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First visit memory care
our visit was terrible. Hubby has been in mc one week. He was crying he wants to go home. Can’t under why he can’t be home. I said all the right things but didn’t do any good. I told him I’d be back tomorrow. I’m hoping he will have forgotten I was there. They say this is normal. How long will it go on. Is he going to do…
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When I Become a Memory
My cousin wrote this in 2015. I just found it. When I become a memory… Think of me with a smile. Tears may fill your eyes, But only for a little while. Remember all the good things we did. Remember when I was at my best. Remember only the good times, And let go of all the rest. Remember when I was healthy And so full of…
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Exhausted and feeling Overwelmed
Just finished breakfast with my DW after a no sleep night filled with her nonstop talking , yelling at the imaginary people in our house, wandering, looking for "stolen" items and occasional outbursts of anger and aggression. My efforts to distract her constantly failed. She has calmed down now at approx 8 Am for our…
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Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Knee Replacement Day 6 - Questions
My DH is on Day 6 of recovery. He is in pain and I am worn out. After surgery in the hospital he started having bladder urgency to the point we couldn’t get the urinal in time. This has continued at home. We were up 7 times last night. He has been wearing pads, but overflows pad and links on underwear. It is time to get…
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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I'm new here
Hi, i'm a caregiver for my husband that was DX with early onset Alzheimers in 2022 at age 52. I work full time from home thankfully and am excited to have support from others that know what i'm going thru.
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False Memories advice
Really struggling with a difficult situation around a false memory. My wife is convinced that our brother-in-law told us to get the heck out of there yard. There was a small dispute between her and her sister on a Friday but was mostly smoothed over by the time we left. We were back there both Saturday and Sunday and…
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Hospice
So I think it's time. Basically, if she's awake, she's agitated. Lot of other things like weight loss, incontinence, inability to feed herself, continual constipation and urine retention. I've been chtgpt'ing this for days now. I just feel so unsure as to whether she is in pain or suffering as much on the inside as she…
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Combative and Unreachable
I'm reaching out to the most knowledgeable group of individuals who never wanted to be here, hoping someone may have some insight and guidance as I have reached my wall. My DH, love of my life, married 56 years, has been in memory care since last July - he has mixed Dementia - alzheimers and vascular. Diagnosed 15 yrs ago…
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New to the discussion and terrified
My DH was diagnosed in March 2024 with mild cognitive impairment. We looked at the diagnosis with horror and a gift that we could try and slow the progression. Two weeks ago he had a sudden incident of bizarre walking and falling. He said he felt like he had no control of his movements. We saw our family doctor had an MRI…
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Medication
My wife has been recently diagnosed with Early Dementia/ Alzheimer’s. I discovered yesterday that she has not been taking her prescribed medications on an everyday basis. After a huge battle, she finally relinquished control her pill box and leave it in a place where I can conveniently check. I have hidden her dementia…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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The Weight of Waiting
There’s a lot of weight on my shoulders. My DH is stage 6 of Alzheimers and I find myself weighed down, emotionally stuck in the waiting room of his life, our life, my life. Time is timeless. Its a surreal world of melting clocks and drooping watches and living in a dream-like nightmare that did come true. The…
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Support group
I came looking for help, understanding, support. Husband newly diagnosed. Without offense, I must say it’s scarier being here than being lost and alone in my real life. No. I didn’t come here for the fantasy of “it will be ok” but it’s all so hopeless. I see major failings in my husband every week. Something new every day…
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So Frustrated with Dr
DH with VD from several strokes has had interrupted sleep for 7+ yrs. Dr has him on trazadone 150 and now he is only up 5x night instead of 15-20. He now has nightmare episodes at night. We had a video appt with Dr today to discuss changing or adjusting meds to help us BOTH sleep, my idea.. I emailed Dr a heads up with the…
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Alzheimer's quick progression after an illness?
My LO has been experiencing a Colitis flare-up and is really having a hard time. He was seen by a doctor, and we have a follow-up appointment scheduled. But it seems like his Alzheimer's has progressed a lot within just a week. I did see a video that mentions that people may "take a step" down after experiencing an…
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…
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Husband
Hi all, My husband has Lewy bodies and was saying last night he’s dying, he said it again in the early hours of this morning, can anyone give advice please.