-
Moving to a new home
Good morning, my hubby was recently diagnosed with Moderate stage Alzheimer's. We had planned to downsize our home next spring. Now that we know his diagnosis, what has been your experience in moving at this stage? I am worried he won't think our new home is home and he will always be looking to go home. Is it best to just…
-
How Do I delete this from incorrect forum?
My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid. Should I put the house in my name?
-
Awareness of dementia
My husband was diagnosed with MCI about 7 years ago. At that time he told me I was going to have to start taking over some things such as bill paying, but he didn’t seem to be well educated about what the end result of his diagnosis is. I didn’t push for him to read up on it because I didn’t want him to get depressed. Now…
-
Be Light Care Consulting Caregiver videos…
I found this online and she has some really good videos with tips for dementia caregivers. https://www.facebook.com/share/r/19oR51H8qu/?mibextid=wwXIfr
-
get cancer check-up?
My question is related to the recent one about a GYN appointment. DW had a thymectomy in 2021. She did not need follow-up radiation or chemo. She has had semi-annual check-ups since then and is now on an annual check-up schedule. So far all of them have been clear Her next one would be in October. It entails a blood draw,…
-
Running out of money and no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
-
What a great story
I read this posting on another site and thought I would share it. It was written by Tony Copeland-Parker. The Long Goodbye The protracted period from diagnosis to death from Alzheimer’s disease. My wife of 26 years was diagnosed with Early Onset Alzheimer’s 11 years ago at the age of 53. Our initial response to the…
-
Frustrated
Just need to put this out there… I got mad yesterday at DH who has AL. I didn't say anything but he knew (stomping out of the room is pretty obvious), but I bit my tongue until I was out of hearing range. The "why" is irrelevent. It could have been anything. The point is that I cannot reason with him because his thinker…
-
H.A.B.I.T. Program
Has anyone participated in the HABIT program offered through the Mayo Clinic? Was it valuable? My husband has MCI and I am considering applying for it. I think that the training may be worthwhile, at least to have him interact with others going through the same thing…
-
Closing up the house
My DH starts “closing up the house” as he calls it around 6pm every night, while it is still light. He wants everything locked up and all the blinds down. He likes it dark inside. This is really not a problem but an irritation. I’m just curious if this is a typical response from those with Alzheimer’s.
-
Dr. Dean Ornish’s Research- Worth the Read!
I have been reading about Dr. Ornish’s research and program for slowing up Alzheimer’s disease. I thought it was worth sharing with you. If you google his name, you will find more information on this program for heart and brain health.
-
Sleeping Issues: need advice
Hi everyone, I’m looking for some advice and to see if anyone else has experienced something similar. My dad has been living with Alzheimer’s for about 10 years. He’s still fairly active—he can ride his bike and we go on walks together—but recently we’ve been struggling with sleep. When it’s time for bed, he just can’t…
-
Grief! - Vent!
I am having a very hard time coping with anticipatory grief ! I have been caring for my DH for about 14 years. He is now stage 7 on Hospice. I have help almost every day for his care. I am trying so hard to keep myself in shape and fighting this depression. Today the grief and sadness seems overwhelming. The tears keep…
-
A New Chuckle
I guess I need to post these to desperately try to keep my sense of humor. I thought I may have escaped the hyper-sexuality phase, and maybe I still have since this has only happened once. We shall see what tonight brings, but last night brought me this thought. Nothing is sexier in this world than your spouse with…
-
Forgetting her brother died
Last week my wife told me she was worried about her brother because she had not heard from him in awhile. He died in 2019. I dreaded telling her and, of course, when I did, she was grief stricken and surprised. I comforted her as best I could and she forgot about it within 30 minutes or so. Then last night she again told…
-
My wife forgot her brother died in 2019
I know others have experienced this situation and I wondered if you have any advice for me. My wife told me last week today she was worried about her brother because she had not heard from him in awhile. I wasn’t sure how to respond—I didn’t want to say he was fine—but when I reminded her that he passed away she was…
-
Hearing aid use
My DH got hearing aids about 2 years ago but hasn’t worn them much bc he says they are uncomfortable. His hearing is not too awful as he can hear me if I talk fairly loud. I don’t know how much I should push him to wear them because his wearing them is more work for me. He spends considerable time everyday looking for lost…
-
Combativeness and Agitation Out of Control
My DH was diagnosed with dementia 15 years ago and his decline has been very gradual but very definite. He's been in memory care for a year, cannot communicate and doesn't understand when I ask him to stand up, sit down, take a sip, etc. He is also incontinent. He is extremely combative and agitated with memory care staff…
-
Futile?
My wife has FTD. Her neurologist has ordered new PET scan and new Psychological testing. They are repeating the tests which gave us her diagnosis. Since there is no treatment for FTD, I question the need to keep testing her. The supposed purpose is to determine the rate of progression of the disease. I just wonder what…
-
Another hit to my heart
I posted a couple of months ago regarding my DW not remembering our anniversary and how it really hurt me. Well guess what, today is her birthday and she had no idea that she had a birthday. I should be used to this but it still hurts. That’s all
-
Type 1 diabetes, vascular dementia - stage 8.
I have told bits and pieces of my DW's story. I will tell her story now for the chance that we may be able to help others in similar circumstances. She developed type 1 diabetes when she was 8 years old. In 2012 (age 56) she suddenly developed dizziness and lost excecutive function. She underwent physical therapy and her…
-
30 day respite
I just placed my DH/alz in memory care for a 30 day respite. It was a lot of prep work but it went ok. The staff took him to the dining room and I set up his room. I told him the doctors and nurses wanted to monitor his medications for a few weeks. A year ago he would have fussed about it but he just said “Ok”. He does…
-
Feeling Vulnerable and Grieving
I am a newbie here, been "lurking" at posts of interest and pleased with what I've been seeing as a supportive group of caring individuals experiencing life as caregiver for LO's. My LO is my DW of 60 years. We have a long history together starting as a military family stationed overseas in the Vietnam era. We had three…
-
DH in hospital
Not sure what happened Friday night, but, something went horribly wrong and I had to call 911 for my DH. I knew immediately that vit wasn't normal morning alz confusion. It was more like delirium. They admitted him and so far all tests have come back normal but he has become even more delirious and now aggressive and…
-
Sex
Ok all of a sudden, my DH is so interested in sex. Its not like sex was a priority adter all these years being married. He never even talked about it. Whats up with this.
-
Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
-
Expat living in France caring for DH know nothing of French system
Im 67 my husband of 39 years is 79. We have only lived in France for 3 years come December. My husband is awaiting scan and the start of the formal process. I wondered if anyone here is in France and can tell me what the care/support/system is like over here for dementia patients please. I’m a Doctor (now recently…
-
Lumipulse pTau-217/Beta Amyloid 42 Ratio
Has anyone here read anything about this dementia test? If I ever show cognitive decline, I think I would like to get this test. Then maybe have an exit plan.
-
My husband is lucid much of the time
My husband is not so far gone that I could not leave him in memory care or nursing home but when he gets into a rage there is nothing I can do And he is still having trouble walking What should I do? Guilty ridden
-
Just need to talk to my friends (209)
We just had a nice shower, just before my groceries were delivered. Still sprinkling a little and it's nice and cool. Wonderful weather for the first day of August. Another six weeks and our hot summer will be getting cooler. I'm ready. Need to finish putting away the groceries but wanted to get 209 started. Back later.