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Swelling in ankles and feet
My DH is stage 7 and under Hospice care. His mobility has decreased quite a bit in the last month. From time to time he has had swollen ankles, and now this past week his feet are very swollen to where we can’t get his shoes on. Hospice nurse doesn’t seem overly concerned. I do plan to buy a lift recliner this weekend as…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Home visit
My wife has been in memory care for 3 years now and Im thinking of bringing her home for thanksgiving dinner with our daughters and grandchildren. My youngest daughter has had Thanksgiving and Christmas for the last 5 years, but cannot this year. My older daughter does not have a large enough house to accommodate everyone.…
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Dogs and Alzheimer’s
my husband was diagnosed with MCI and now in stage 1 of Alzheimer’s Does anyone have a recommendation about a puppy/dog for my DH? I am still working and he does not have many hobbies, I was hoping this would give him a companion and something to care for and keep him busy. He loves small dogs and we are considering but…
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Respite
As my DW keeps moving more into Stage 6, I've been thinking about how I have fought to get respite this past year and how much I am changed by it…in the best ways. I retired early, after crashing hard at my new job. Had to take an FMLA I had gotten so low and after having two weeks off with me just sitting in a chair,…
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POAs and requirements for incompetence
My mom was recently diagnosed with Alzheimer’s, and I’ve started the planning process with her. One thing I’m struggling with and can’t seem to get a straight answer on is the wording of her health care POA, It states that she needs to be determined incompetent by a medical professional before decisions can be made on her…
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Knee surgery for PWD?
Both of my DH's knees are severely deteriorated and he qualifies for knee replacement surgery. He has MCI but most likely has progressed to stage 4. I'm terrified to have him go through the surgery because 1) I've read that general anesthesia can cause further cognitive decline, and 2) I'm not sure that he will have the…
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Take a cruise?
DH sooo wants to travel still. He is in late stage 5, some into 6. He is continent, unstable but still walking especially with me beside.. He is very opposed to using a wheelchair. He knows me, does not sundown, is compliant. He has limited vision so doesn't wander. I would like to travel, too, and I worry about logistics…
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No short term memory
My DH is in the same category. Honestly, the repetitive questioning drives me crazy. I constantly pray for patience. Sometimes I don't answer my DH and a lot of times I remove myself and go to another room to regroup.
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Just venting
Today is a UGGGG day. Everything is do is meet with a hateful attitude. Want to scream or cuss but I don't. I just go in the next room and scream silently UGGG!
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Skilled nursing care vs memory care
Looking for information and advice. We took my wife to a well-regarded memory care center but their assessment determined she had too many needs and required skilled nursing care instead. We were disappointed. The SN facility is more like a hospital ward than MC but the rooms can be personalized with some furniture,…
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Our 1st day
My wife (65) had lab work done recently and today the results were posted to her account that the lab work indicated that she has Alzheimer’s and we received a referral for a PET scan that is needed by insurance to ok the IV treatment. My wife is devastated and I have no idea how to begin to comfort her.
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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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Leqembi
Just feeling blue this morning. Neurologist offered Leqembi infusions to DH with ALZ. DH is 90. It's 18 months of every other week infustions that will only delay the inevitble by months, not years, and if he does't have a brain hemmorage or stroke there are high odds of migranes and other side effects. We opted not to do…
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My DH has changed and I’m afraid
my DH just turned 70 but has been struggling with issues for awhile. He changes moods, is depressed and withdrawn, does not have healthy hygiene , smokes both pot and cigarettes , drinks a lot ( beer wine) has juvenile diabetes insulin dependent . He has started to misplace things, wallet keys, checkbook. He doesn’t pay…
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DH fixated on being able to drive.
DH is so fixated on being able to drive again he has become very depressed and says life is not worth living. He says he feels like he is in jail and can't do anything. I can drive him anyplace he would like to go. When I ask him where he would like to go he doesn't have an answer. Dr.'s have told him he shouldn't drive…
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T shirt question
A basic question about T shirts…the undershirt kind. DH has lost so much weight-and height-. that his size large T shirts are way too large now. The T shirts are very roomy and so long they come below his hips. When I get him dressed I am stuffing all this extra material in his pants so it doesn't hang below the outer…
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Door Locks
Any recommendations for door locks to prevent loved one from wandering outside?
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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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Snacking problem
My DH (stage 4-ish ALZ) is snacking constantly. I've stopped buying anything "junk food" (nuts, cookies, etc) and have been buying him grapes, raisins, and mandarins which he will consume as much of as I leave out. I've hidden most of the foods that he can snack on but I'm at my wits end. He goes through the fridge,…
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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My DH to begin Leqembi infusions
My 82 y/o DH has been diagnosed with Alzhemer's and qualifies for these infusions that will start soon. Anyone else here have experience with this medication.
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Alzheimer's Screening and Prevention (ASAP) Act
It's a start and hopefully it will lead to more. I also posted this under General Topics. https://www.alz.org/news/2025/house-introduces-bipartisan-legislation-asap-act-alzheimers-screening#:~:text=This%20transformative%20bill%20will%20provide,and%20dramatically%20improve%20early%20detection.
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Social Media post/comments
My DH is into the mid stage of Alz I believe. Diagnosed over a year ago. He's still able to care for himself, but speaking and following instructions etc. Are definate difficult. Along with other things he gets confused on he is not able to write very well any more. Always asking me how to spell words. He has been on FB…
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Neurological Symptoms
I am here because my DH has been struggling with short-term memory loss for a couple years now. We don't have an official diagnosis yet, but the general consensus seems to be vascular dementia. He asks the same questions over and over again, as if on repeat. We went to his neice's wedding, and then he forgot she got…
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Stage 5 and not aware
My wife has ALZ , solid Stage 5 showing some Stage 6 symptoms. I have told her she has Alzheimer's, she then looks puzzled and forgets it 5 minutes later. She is unaware of her condition and appears to think she leads a normal life. She is getting more difficult to manage and has most of the nasty symptoms you hear about.…
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When the marriage was not good.
I am embarrassed about my title, but it is my truth and I have to find out if I am alone in my situation. In my family it has always been that when we get old, the veil of self-delusion about our lives lifts, and we are faced with our truths. My husband of 38 years has been the absolute love of my life, I have remained IN…
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Sundowners
I've been caring for my wife who is suffering from Alzheimer's. She is in the middle stages and it is progressing. Since the time change her sundowners is getting worst every night She does not know I'm her husband Demands I Leave the house, its her house and not mine. I currently only have the help from her sister but it…