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When You Moved Your LO to MC…
I am trying to gather information for the future on how hard the process might be once you make the decision your LO needs MC. You hear nightmare stories of people desperately looking for MC and unable to find it or settling for sub-standard care. My goal is to avoid that happening. 1) Were you on a waiting list for MC for…
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Just need to talk to my friends (217)
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good books on alzheimers
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DENTAL CARE
What are my options and resources for diagnosing and treating dental pain. My spouse is non ambulatory so an office visit is not possible. She is also under hospice care.
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Doesn't know who I am
When I went to bed last night Doug asked me what my name was. God I hate this disease. It's like death from a thousand cuts.
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Just need to talk to my: friends (216)
Sorry, just forgot, crept up on me. Not doing a very good job of concentrating. Couldn't find my bread knife anywhere so thought I would have to go through the trash. Thought I would give Stormy a milk.bone and it was in the box. I use it to open those big boxes. Thanks for reminding me.
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Concerned newcomer
Hi, I just created an account for this group,hoping to find support and helpful information. I am a loving partner to a 76-year-old woman who has been exhibiting memory lapses, delusions, and paranoia. I care deeply for her and am trying to figure out how best to help her, beginning with that first awkward, sensitive…
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Leqembi
Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…
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Anyone Living in CCRC?
Is anyone on the forum living in a Continuing Care Retirement Community? If so, did you have to undergo health assessment because your LO has an ALZ diagnosis?
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Overwhelmed
My DW was just diagnosed with Alzheimer’s in January. I started noticing things last September and she went through extensive testing. She’s only 53 yrs old and our lives have turned upside down. She lost her job last August which was 60% of our income. A daughter, freshman at UNM, and a younger daughter Junior in high…
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Blood pressure dropping?
DH has had blood pressure readings that have continuously dropped over several weeks. He was having a variety of readings in past years…. from 120/70 to an occasional 155/60… he is late stage 6 and lots of decline. Hospice has been involved for for two months, and the nurse has noted a steady drop ….2 weeks ago was 120/?…
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Ambiguous loss
I haven't been here in a long time, hi to all of you who remember me. Quick background - DH showed signs of dementia somewhere around 18 years ago, before age 45. He's now 62. 4 years ago he moved into memory care, but by that time he was barely walking, didn't know anyone, couldn't eat with utensils, and was peeing…
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First week in memory care
I was persuaded to send my DH with mixed dementia to memory care. He is very hard to care for and fights anyone who tries to help him. It often takes two people to change him because he won't cooperate. I miss him. I don't miss the work. I have no idea what is next for me. I have literally spent the last three years…
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Sleeping more
Just a quick question my DH 78 years old VD 6 or 7 non verbal with Aphasia is sleeping more and more particularly during the day is this a sign of further decline. He is only on high blood pressure medication. What are the signs he is reliant on me 24/7.
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Affairs, Divorce, and Dodging a Bullet
Very long post alert. I only come to you all because even if your situation isn’t like mine, I know I will get wise (and hopefully not too brutal) counsel from the other travelers on this journey. I am 64, still working - now 2 jobs. My DH is 63 yo and is: ◦ not diagnosed with dementia ◦ Has multiple health issues…
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Brain Honey
Just watched a video by Bill Gates extolling the benefits of a product called Brain Honey. He claimed it could reverse the effects of dementia in even stage 7 victims. At the end, he was selling a 6 month supply for about $300.00. I see it's on Amazon for under $90.00 for a 5 month supply. Has anyone tried this??? I know,…
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EOAD WHO SMOKES
My LO is 65 who was just diagnosed this past year. He has CAD/PAD/PACEMAKER/DM2. So basically, a mess physically before even being diagnosed with ALZ. He just started smoking a year ago on a daily basis. Before that it was basically just a pack a month. Now his VASC doctor is really pushing for him to stop smoking. I…
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My DH is in early stages and I live far from family
My DH is 67 diagnosis MCI due to Alzheimer's. From the scale provided by someone on this site I would say he is stage 3. I live in South Carolina and my kids as well as his brother all live in upstate NY. My daughter a NP wants me to move back. I'm not totally against the idea but am not sure when would be the right time.…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Interested to know what Elder Law Attorney provides
My 69 yr old DH (I am 69 as well) was diagnosed last fall with ALZ. Guessing he’s in stage 3 with some stage 4 like unable to take care of finances, which in our marriage has always been my domain. Six or so yrs ago, we completed our wills, durable powers of attorney, a revocable living trust, etc. I am still his person…
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VRBO VS Hotel
I know our traveling days are winding down but DH wants to go see his father in Florida. All his family live in Florida. I think it will be ok because we have family all around. The only change is his father is now in assisted living so we can no longer stay in his house when visiting. DH was very familiar with the house.…
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Information on Alzheimer’s drug therapies
https://www.brightfocus.org/resource/fda-approved-alzheimers-therapies/?lb=off&utm_campaign=fy26_adr_2603_stewardship_ea3&utm_medium=email&_hsenc=p2ANqtz-9_nkdjBJkPvm4VWCnPwnGjONHFAekf_gU1RC8UsDiBDIWDn_G4y-QM7fD0lpzB1nHZPoC3QwY5H1IBL1aQ5G3R3pyUYljmyARdkFx47haZTfFbvhw&_hsmi=411116446&utm_content=donor&utm_source=engagementTh…
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Lip-smacking, teeth-chomping turned out to be seizures
I want to share something I’ve recently learned that might help others… Seizures are much more common in PWD than many of us realize, and they often don’t look like the typical “convulsive” seizures we think of or see in the movies. They can be very subtle—things like brief confusion, staring spells, or small repetitive…
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Asking for car incessantly!!!
DH has been asking for his car every day multiple times a day non stop and it’s driving me crazy! We told him it’s being fixed .. he doesn’t believe us, I change the subject works for a bit then ask again. Continues to call our 3 children and lately the grandchildren asking for his car! It’s been almost a year! Help how do…
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My husband passed at home March 18
It was a long journey with my husband. He is finally set free from this horrible disease. My wish came true to keep him home until the end. My whole life was taking care of him and a deep void is something I have to get through. I never posted here much but I needed this outlet to say he is not with me anymore. Such mixed…
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I think I’m losing it
Lately I find myself wondering if it’s my DW that has Alz or is it me. I find myself thinking that it’s me that put the frying pan in the freezer or that I’m the one that can’t remember where anything is. It’s actually kind of disturbing. Is this a thing?
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My DW is now refusing to take her evening medications.
Usually on queue, my DW will take her medications in the morning and in the evening. Today, I gave her the medications for the night, and she refused to take them. No matter what I tried, she would not take them. Her medications cannot be crushed and added to food (that's another story). It's very frustrating. What is a…
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Latest from 2026 Alzheimer’s International Conference
https://www.brightfocus.org/news/breaking-news-dispatch-alzheimers-oral-therapies-prevention-strategies-and-targeted-treatments-emerge/
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Refusing to go to the the doctor
I went to town today with DH. While at lunch, I mentioned going shopping while we're in the city Monday. He asked why we would be in the city. I told him he had an appointment with the brain doctor. He shook his head & said, "I'm not going." I said you promised the doctor you would come back in a year. He said, "I don't…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support