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Slipping Away
My spouse, so long as I have known her (14 years) has always been somewhat reality-challenged, fabricating things in her brain (much about me) that just isn't true, and resisting all attempts to impart truth. It just made her very angry to threaten the fictional world view. It's been frustrating, but tolerable so long as…
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I am new to this forum
Hi Im taking care of my 72 years old wife who was diagnosed for the last 5 years. She's manageable and taking all prescribed meds. Did any one has an experience with recent new IV anti-amyloid infusions Donanemab or lecanemab? She was not qualified because she is in moderate stage. Even if we are willing to pay out of…
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This says it all…
I’ve been in Stage 8 now for almost 2 months. I read this today and this puts in words exactly how we feel through this journey. My thoughts are with those of you still struggling with your LO or with the final goodbye.
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How do you hold it together and respond kindly?
Hi there - I think i mostly need to vent ... again. <sigh> My 73 year old DH has Alz. My best guess is early to mid stage 5. He still does all of his self care and small projects around the house. Although some tasks he really seems to obsess over. Like where the cats are, or cleaning constantly. He has difficulty with…
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Phantom items
For a couple of months or so my DH will believe he has something in his hand and will want to give it to me. At first it was occasionally, but now it is multiple times each day. I just pretend I take it from him. Today he was very careful with what he “had” in his hand and did hand it to me so I made sure to be very gentle…
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When I look back at what I WAS worried about…
I feel foolish. Our problems are slowly getting manageable as far as reigning in my DHs spending and not being able to manage our finances. The real troubles are here now and I just can’t do it. I “feel” so sick. I have amended my statement “I am so sick!” After trying to get help with my lupus and other health issues. I…
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cbd gummies for caregiver
My HWD is extremely difficult and I am with him 24/7 as a sole caregiver. My PCP (his also) is very concerned about my being depressed and has suggested cbd gummies. I don't take any prescription meds and don't want to start on zoloft, etc, but am considering the gummies on a need be basis…not daily. I was wondering if any…
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How to handle behaviors ….
Craving for sweets insatiable, insists on donuts or turnovers for breakfast and lunch! He’s on metformin for diabetes. DH is either really hungry or doesn’t remember he has eaten and will go thru fridge making a sandwich if he can’t find cookies after he has eaten his meal. Wears same stained urine soaked clothes day and…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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DH won't go for testing
First time here - getting to the stage where I need caregiver support. My DH doesn't have a diagnosis, as he's in complete denial that he has any cognitive issues. Our PCP has given a standard test for age-related cognitive decline, which he has passed, technically. What we're living with: he can't manage finances at all,…
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Trouble diverting from calling his mother
My 74 yr old DH often wants to call his mother who passed away 15 years ago. (He is in early Stage 6). I’ve tried the suggestions I have searched for here- ice cream, tasks, walk, going for a drive (actually being in the car is where his questions can be the worst). He gets so locked in on wanting to call his mother and…
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How to answer, "Why are you here?"
My DW in the late evening often asks, "Why are you here?" I say I'm your husband but that agitates her more. I then say I'm here to keep you safe and that has the same response. Any attempt at deflection doesn't work. It usually subsides after awhile but I was wondering what you all have experienced.
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VRBO VS Hotel
I know our traveling days are winding down but DH wants to go see his father in Florida. All his family live in Florida. I think it will be ok because we have family all around. The only change is his father is now in assisted living so we can no longer stay in his house when visiting. DH was very familiar with the house.…
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Stage 8 - One Month In
Hi all. It's a little hard to believe it's been a month since my DW passed. I'm still in the stage of trying to wrap my head around it — I'll never see her in person again. I have cried and cried some more, but honestly, my biggest feelings have been relief and gratitude. Relief she isn't suffering like she was. Relief…
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How to keep DH occupied
My DH can still dress himself, feed himself and do a few other basics like emptying the trash but much of the day he spends sleeping because he has nothing else to do. He can’t use his computer much, has little interest in current events, doesn’t read much and has never been a TV watcher. He can’t work the TV controls even…
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How to find people to stay with DH when I need to go out
Hubby was diagnosed recently with mid stage Alzheimer’s. He needs 24 hour supervision, and though friends have said to let them know if I need anything, I find it hard to ask for help. Most aren’t available during the week, so I have left him alone to run an errand or go to an appointment, usually not for more than an…
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There is no 29th day!
Hey yall!! Life Has had it's ups and downs. I lost my loving partner (Luis) of 6 years on Novemebr 29th to EOA, he was 46. December anniversary sucked!!!! It was a Monday. Luckily I was in the position at work that keeps you the busiest so I didnt have to think about him being gone. And thanks goodness for my anti-anxiety…
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Dressing and Laundry
My DW has a very had time dressing. She will put 2 (and sometimes 3) tops/blouses/sweaters, wear pants and a dress at the same time; put her clothes inside out, and/or front and back reversed; you name it, it's all a mess. And the worst part is she will not let me help her fix it after I tell her. She wears earrings that…
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what do I do
what do expect for my wife who is 78 hears old with alzheimer's, severe RA, bed-ridden and on hospice. WHAT can I do for her, beyond my daily visits. I don't even know what or who to ask.
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Just need to talk to my friends (215)
Happy February! I'm glad January is over. Maybe February will be a better month for weather and everything else. Only six more weeks until Spring. Almost time to order caladiums. Hopefully, the daffodils are okay after the freezing weather we have had this past week.
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Mixed Dementia Care Partner - I am new here
Good morning, I just found this resource and decided to reach out with my situation. My DH has a dementia diagnosis, not confirmed via MRI or bloodwork, but neuropsychological testing revealed "likely mixed dementia, due to vascular and alzheimer's". He has an aneurysm clip that is not MRI compatible. The neurologist says…
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How to handle selling the toys
Hi. I am new to all of this. My DH has been diagnosed with moderate to severe LBD. We live in the country and he has many toys. I have all the keys to the toys but it is almost a daily game of asking if he can use the John Deere to move the snow or another piece of equipment. I know I will need to sell the toys, but do I…
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A bit of humor
My DH (mid-stage AD + Parkinsonism) now often struggles to name things. The other night he was standing at the kitchen sink, when this conversation ensued: Him: Did you put the pill in the whirlpool? Me: The whirlpool? What do you mean? (Thinking). Oh, do you mean did I put the soap pod in the dishwasher? That was indeed…
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Bible Verse to Lift You Up 2/28/26
Psalm 5:3 WAITING EXPECTANTLY New Living Translation Listen to my voice in the morning, Lord. Each morning I bring my requests to you and wait expectantly. HOLY SPIRIT, please continue to help me think Your thoughts so I remain strong on the inside, so I am able to serve and glorify Jesus as a loving caregiver. In His name…
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What stage he’s at?
as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…
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New Here - Spouse with Young Onset
Hi all, I'm new here. My wife was formally diagnosed at the ripe young age of 51 this past December. I, myself, am her 34 year old wife. I just wanted to come in here and say hi and kind of vent to folks who may know. These past 2 years of confusion and emotional and financial upheaval have been incredibly difficult to…
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What is next
New member here Spouse is somewhere in 5 or moving into 6of the seven stages. What is coming next? Is it time for respite care? She just said she did not know my name or that we are married. Sleeps all the time ,moves slowly, eats little. Takes her meds if I am there to watch. Showers when I remind her but now needs help…
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Learned Something New About Alzheimer’s
My DH (57) was diagnosed exactly 2 years ago with EOAD. Progression has been slowed a bit by Leqembi but he had to stop due to ARIA. Now I’m seeing more signs of progression. One are I see it in most is his loss of words. He struggles more an more just to get out a few sentences. But a few nights ago he had a dream where…
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Funeral for a friend
The husband of a dear friend died and his funeral is at the church we used to attend tomorrow. I would like to attend but would need to bring my DH who now travels in a wheelchair due to falling issues. He's in stage 6. Would this be too much?
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Night time wakefulness
I’m looking for any suggestions about how to deal with my DH’s newly developed night time waking. I know many of you have dealt with similar issues and hope you can provide some ideas. My DH is wheelchair dependent and cannot get in or out of bed independently. I have a hoyer lift and can get him into bed by myself using…