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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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Research- another approach in the search for answers about brain disorders
Explains a lot of behaviors.
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Does he think I’m his Mom?
My DH is stage 6. He’s at home with me. For awhile now he’s been calling my Mom quite often. Do you think he really thinks I’m his Mom?
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Taking Charge
I read this today in “Daily Comforts for Caregivers “ by Pat Samples. “When I’ve had to take charge of some areas of my loved one’s life, he doesn’t want to let go, even when he can’t manage anymore. He’s used to being in charge. Sometimes I have to be strong and insist. I can understand why he wants to maintain control,…
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Using Transcranial Magnetic Stimulation (TMS) to slow AD progression
Has anyone used TMS for AD? I know it is off label, and that it is a cash expense not covered by insurance, but I am looking for a provider in the Northeast (CT/MA/NY/ NH) who could treat my wife. The studies have been small, but reasonably positive in being able to slow progression.
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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dont know what to do
my DH is 60 years old and has been diagnostic for alzheimer, we have been in surch of a reason of his behavior,depression,etc ,for 3 years ….in november 2024 we had the answer. I dont know what to do, how this is going to turn out, i feel overwhelmed. Its very dificult to loose your spouse , becouse he dosn´t feel anymore😪
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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therapist
Looking for therapist for 23 year old daughter mMother is 72 with moderate dementia. Thanks
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Geriatrician vs. Neurologist
My DH's PCP referred him to a geriatrician, but I wondered if a neurologist would be better. The geriatrician (we had first visit in January and will see her May 20th) is 30 miles from our house. We could see a neurologist locally. Does anyone have an opinion on who is better to treat Alzheimer's/vascular dementia?
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When to go to memory care
I sense that I will need to consider this for my DW later this year. When that happens, will she have periods of remembering?
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Speech
My DW is in year 3 of EOAD. She’s always been a talker, talking to whomever would listen. The last few months she still talks but with her limited vocabulary she makes no sense. Her words are very clear but all mixed up. I’ve just noticed this past week that now when she talks it starts with a few clear words but then…
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Don’t know how to start, Long Rant Warning!! ⚠️
Okay, I guess I’ve officially “lost it”! I shouldn’t have, but I did. I flew off the handle and screamed and yelled at DW(stage 5/6) this afternoon. I stormed around the house, upset the dogs, and ended with us each going to our separate “corners”. I was an ass, it was bad! The ridiculous last straw was DW trying to feed…
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Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
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Who can I trust?
Hello all, it's been a while. My bf (46yo EOA) is a very active stage 7b. He is still mobile. We have entered the stage of not wanting to shower but I can get him in there (not fighting l, yelling or scratching tonight). Here is my predicament. I have been trying to find an Adult Foster Home but there aren't many around. I…
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Falls asleep but doesn't stay asleep
DH falls asleep easily at bedtime but doesn't stay asleep. I give him Mirtazapine and I added Benadryl but they don't help. Melatonin didn't help him. He wakes me up three to four times every night, turning on lights, walking around or just sitting on the edge of the bed. Is this common in people with dementia? Is there…
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We made it
My husband passed peacefully this morning. I woke just before and was holding his hand. I had been hoping that he could find an off-ramp, and he did. We have been blessed. My deepest thanks to all of you for your support, sympathy and advice on this long hard road. I'll come back here often. Wishing all of you peace as you…
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Just need to vent a little
On June 5th we left my DH's Neurologists office and were told that he has months to live. We werent told an actual amount of months, just months. Today being fathers day I thought maybe I would get some extra help from one or more of our 4 adult children, but basically it was on me the whole day. Im so frustrated I cant…
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Seroquel
Based on posts I’ve read on here, I asked my husband‘s neurologist for Seroquel to help with sleep and behavior. I’d like to know from others experiences how long it took for the medication to work? How long before a noticeable difference was noticed? The main thing that I’m hoping for is successful sleep through the…
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50 years
In a few days we will have our 50th wedding anniversary. I know for a certainty that she is the best thing that ever happened to me in my life. She last recognized me in 2017 and has been bedridden since 2021. She is 73 lovely as ever, with a few streaks of grey in her hair. I have stunning wonderful memories rated from G…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Anyone heard of potential benefits of Kefir?
Hi Y'all, My wife was diagnosed 3 years ago with dementia, she is still very much with me, but I have seen many examples of her slow slide due to this horrible disease. Our GP prescribed two medications when she was diagnosed, Memantine and Donepezil. We have no idea how much they've helped. We have a good friend who's a…
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DH with dementia no longer shows hand preference
My husband is in approximately late stage 5 of dementia. I noticed recently that he no longer shows a hand preference when eating, holding a pencil or reaching for an object. What does this mean? He was always left-handed, but will now try to eat with either hand. He requires assistance eating, but tries to do it himself.…
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Short term memory loss
my LW is currently in a nursing home for PT after surgery for diverticulitis. Happily, she did not need a colostomy bag. On the dementia scale, she is in the lower middle. She also has short term memory loss, which compounds her negative outbursts. If I am with her, I witness her anger at staff for slow responses.…
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New to group
Hello I just wanted to introduce myself. My husband is 56 year old. He was diagnosed with PPA and frontotemporal dementia about 5 years ago. I believe we are now entering ALZ as well. This week I had to finally take away his right to drive and it was heartbreaking. I tried to blame it on the insurance company knowing he…
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Still Here
I haven’t posted in a while, I am struggling with the situation here. DH is now on day 47 of not eating, over a month with no heart meds, and he’s refused fluids of any kind since Monday. The Hospice nurses are astounded that he’s still as strong as he is. He’s non-responsive to everyone but me…if take his hand and talk to…
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Slow motion in Stage 8
Dear Forum mates, I am just checking in as the dust begins to settle (sort of) following my beloved DH's peaceful passing a few months ago, ending 6+ years of our devastating dance with dementia. I have thought of you all so many times, but have been alternating between some days of doing nothing but breathing and…
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Rexulti and increased confusion and restlessness?
DH has been taking Rexulti for 2 weeks now and he seems to be more confused, wanting to go see his parents, wanting to go skiing, more restless. I don’t know if it’s coincidence or is this a result of the medication. I don’t think it’s had any effect on the agitation so I’m inclined to stop it. His doctor said to go to the…
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Just wandering
MY DH ,THAT HAS VD AND ALZ. PROB STAGE 3 OR 4 , SEEMS SO NORMAL RIGHT NOW. OR IS IT THAT IM JUST SO USE TO IT? I MAKE SURE THERE IS NO STRESS IN HIS LIFE, EVERYTHING HE NEEDS OR WANTS HE GETS . HE TAKES ALL HIS MEDS. HE STILL WONT SHOWER ,DOESNT EAT RIGHT LIKES SWEETS OR ONLY SMALL PORTIONS. I SUBSTITUTE WITH BOOST MILK…
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Mild Cognitive Impairment and Pain
I googled "Can Mild Cognitive Impairment result in pain in the body?" The response was, "Yes, Mild Cognitive Impairment (MCI) can be associated with bodily pain, although the relationship is complex and not fully understood. Research suggests that individuals with MCI are more likely to experience pain, and this pain may,…