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Introduction- looking for advice
Hello everyone - I am new to this forum and wanted to introduce myself. I have been married to my DH for 28 years and have recently become very concerned about him. I feel that he may have some form of dementia - but it has not yet been diagnosed. He blames his symptoms on stress at work, but I disagree. I feel the stress…
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The other shoe has dropped
Well the inevitable happened this afternoon, she took another bad fall and has a spiral fracture of her right proximal humerus (dominant arm of course). We are in the ER and awaiting transfer to inpatient hospice, this is going to require a morphine drip and pray that it’s quick from here. There won’t be any coming back…
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wants to be massaged for hours
Anyone else experienced this? My DH wants me to massage his backs, hips, chest for hours on end. Sometimes it's the only thing that will calm him except listening to music. Is the any alternatives? Is it a phase?
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Get me through this day!
Just venting here: The windows in our home are over 40 years old. The seals are broken on some, and others actually whistle from the draft. So after much procrastination, I decided to have them replaced. I figured they would send a couple of guys, and they would make their way through the house one room at a time and I…
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A very little holiday
Maybe I have done something stupid but after hearing ‘friends’ talking about their cruising on boats and various holidays I decided that for our birthdays which fall on the 8th and 9th and the reason why 55 years ago we went out together, that we should have a little holiday, thinking that may be this will be the last. So…
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Not liking my feelings
Losing my empathy. I’m finding everything my DH does is irritating me! I can’t stand him not showering, wearing the same clothes for days on end - even sleeping in them, his constant watching my every move, lack of help with the smallest of tasks. He won’t go out unless he’s with me to provide entertainment. I actually…
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Alone and missing friends. What to do?
My DH is Stage 6 and is very agitated and even aggressive to anyone new coming into the house. DH's friends have passed or no longer able to understand how to deal with him. I barely do myself. He's at home with me as sole caregiver and it is draining me. Heartbreaking is when the day passes and he realizes no one else is…
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Just sad! Rant.
I am sad just plain sad. 10 years into this disease with my DH. No real end in sight. Days become weeks, week become years and the beat goes on! My DH is progressing toward his transition and I am wondering what the heck is next for me. Today is rough. I can't stop crying. I just want to turn back the clock. The past…
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speech therapy?
Hi, All, We have a speech therapy order from my partner's neurologist. They provided it at my request even though they were not very positive about yet I have read that it can be helpful for people with Alzheimers who are having difficulty speaking. Has anyone had any experience with this and could share? I would…
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Highly Recommend Citicoline Supplement
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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another memory care question
I've been looking at memory care facilities, most of which are owned by corporations, but a few are privately owned. (I'm not looking at the ten person homes yet—he needs more stimulation than they offer). I check my state health department website for complaints and citations for each one I visit. What I have found is…
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Vascular Dementia(10)
My DH was recently diagnosed with vascular dementia. He is currently exhibiting memory problems, confusion, frustration/aggravation. For example, he will ask me 4-5 times a day what we are having for dinner - even though he took it out. He asks the day of the week, the month even though he can look for it on his…
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For Older Unmarried Couples, Caregiving Obligations Can Be Murky
Gifted link from the NYT. An article about caregiving issues specific to older unmarried couples. https://www.nytimes.com/2024/11/10/health/elderly-unmarried-couples-caregiving.html?unlocked_article_code=1.ZE4.JvyT.QUUSabGS4hNM&smid=url-share
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Donepezil and Memantine-Extreme Side Effects
Hello Everyone! This is time on the site. My DH was officially diagnosed with VD about eight months ago. But because my mom also had dementia, I knew three years ago that something was wrong. His doctor didn't listen to me, and not until he had three mini strokes, and carotid artery operated on did anyone start listening…
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Increased Zoloft from 50 mg to 100mg
Thinking of increasing my DH Zoloft to 100. At times I see more anxiety in him. I am a little hesitant bc I don’t want to overdo the medication. Can anyone tell me if they see improvement after increased, or side effects?
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Key lime dessert
DW is on hospice She can only eat food of a pudding consistency I make key lime pie filling for DW in little aluminum cupcake cups. It is just egg yolks condensed milk and lime juice I add green food coloring since that helps me mix it thoroughly. I use aluminum cups with lids since i take 4 at a time to the memory care 1…
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A good man with Alzheimers
I was called today by my husband’s memory care administrator to tell me that my husband was a hero. After dinner yesterday he witnessed a fellow resident inappropriately touch another who was in a wheel chair. He stood up and confronted the offender and loudly said, “Stop it. Don’t do that”! This gained the attention of an…
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Voting
This has been a subject of discussion in my support group recently. One man told us that he voted on behalf of his wife because he knows how she would vote if she could. She's currently on hospice, she cannot walk, talk or feed herself. She certainly can't sign her name. He admitted that he forged her signature. I told him…
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New to all this
My husband was officially diagnosed with alzheimer's 3 weeks ago, in the early stages of this. I have bounced back and forth between denial, anger, tears and fear for what our life will be and for how long. I'm not sure what to do, what the steps are to help him and myself manage this. He has problems finding the words to…
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Six Months Since Moving
It has been six months since we moved two states from our hometown of 72 years to be near our daughter. DH has ALZ. I am still profoundly homesick! I miss everything I left behind, my older brother, our friends, our doctors, our dentist, all our familiar places and routine. We are going back this week to visit my brother.…
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Any Advice?
My DW is in stage 5+-, with anosgnosia and increasing aphasia. Other than when I can offer entertainment, projects, walks, outings, etc she spends a lot of her time either sitting in front of the TV, puttering in the yard, or walking the dog. She is often depressed and constantly complains that she has "nothing" going on…
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Looking for in person communication with spouses of the afflicted
Hello; I'm Gerry and I'm attempting to locate in person support groups within the Roanoke, Virginia area. Any ideas for me? Thank You!
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I desperately need help
My husband has Alzheimer’s, I work 40 hours a week, I’ve called everyone I can think of to sit with him , he wanders off from the house, has anyone have a solution, He won’t do daycare and I’m trying my best to keep him out of a nursing home, I have no one to rely on, feels like I’m losing my mind
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The Cavalry Is Not Coming: 9 Year Edition
This is an updated version of The Cavalry Is Not Coming. I repost this occasionally as I have been informed that this article has helped many caregivers. This edition is mostly the same, although I have brought it up to date and revised it to make it more helpful. October 1, 2024 marked nine years since my wife’s dementia…
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Vocabulary Disappearing
Of late I have noticed a drastic change in my DW’s vocabulary. Words don’t come easy if at all. When we go for a walk in the park we normally see lots of squirrels. Today, the squirrels became “damn idiots “. So sad to see the decline especially in the past month.
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Constant 😴 sleeping.
Has anyone had their loved one sleep 12-14 hours per day. Was there something medically going on to cause that.
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Voting
I've gotten so many personally written postcards stating that public record indicates my husband hasn't voted and asking him to do so.. A person even drove to our home today in a secluded rural dirt Rd to encourage him to vote. He brought his kid and was freaking out about his kid getting fingers dirty when I offered to…
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Jo C
What was the name of that wonderful Christmas store?
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I have one more question
There are many people on the forum that I often think of. I know Jo C had some serious health problems, and I wonder how she is doing. Has anyone heard from her recently?