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Long term care
I am new to the forum. I woke up a week or so ago and was just researching things on ALZ, and came across various discussions. My husband is from a large family (20 siblings and 7 children), and dementia runs in his family. I had some idea what was ahead when he began to have cognitive issues, but I was optimistic that we…
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Meeting with friends?
My DW and I are traveling in our RV and find ourselves close to a couple who we first met over 50 years ago. He and I worked together, our kids were the same ages and attended school together. Although we live two states apart now and have for 25 yearswe have visited in person every few years stayed in touch online. The…
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Odd Behavior
My DH was diagnosed with MCI about 3 1/2 years ago. He has never officially been diagnosed with AD or Dementia although it is clear that he has it. I estimate he is probably in the middle stages of Dementia. He began several months ago when we would be out in a store he would walk up to some stranger and ask them to either…
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Caring for My Dad (65, Alzheimer’s) — Looking for Guidance
Hi everyone, My dad is 65 and has Alzheimer’s. He’s still in good spirits, but his abilities are getting more limited. He can’t really make meals anymore beyond grabbing something simple, and he needs reminders and some help with personal care like shaving and showering. His speech and understanding are also very limited.…
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Positive experience with Palliative Care
First I would like to thank all of the wonderful knowledgeable people on this platform that have helped me over the last couple months since I started visiting and learning from everyone. My husband was diagnosed 6 years ago with Mild Cognitive Impairment. Eighteen months later, during Covid, he was diagnosed with Multiple…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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When do you call hospice?
I know my DH is not there yet but he is very advanced and progressing very quickly. He is not bed ridden and my intent is to keep him home but are there signs to look for as far as calling hospice. I'm sorry if this seems like a stupid question but I am curious to know how and when others handled this. Thanks to all of you.
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Looking for a support group
Hello, my DH has EO and is only in his 40's. Does anybody know of any support groups I can join. To help me?
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New to this site and need advice
my DH was diagnosed 2 years ago with MCI due to Alzheimer’s and has been progressing so likely now moving into middle stage. He is on lots of meds including the newest transfusion treatments that he receives every 2 weeks. He can still do daily tasks and drives short distances. We are in Greece for a 12 days cruise as I…
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No clue where we are in AD
My DH was diagnosed this summer with AD. I knew the last couple of years things weren't right, but he thought it was his bipolar issues. The neuro we saw just explained to us what AD is and what it does physically to the brain and then said he had to start Donepezil and take IV treatments. (He has not started the IV…
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When did Hospice accept your LO?
DH has been declining rapidly for the past two months. We have been housebound for six weeks because he could not remember how to get in/out of the car. He cannot walk anymore and has been in a wheelchair in the house for the past two weeks. He sleeps 14-16 hours per day. He is now 100% incontinent, but I am with him 24/7…
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Caregiver and After
My dear wife fell asleep the last time about 5 weeks ago after having endured years of this disease. She was diagnosed with MCI 8 years ago and her progression was moderate until about 2 years ago when it kicked into high gear and moved much more rapidly. Being her primary caregiver for all that time, with limited help…
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Dealing with BM Clean up!
Being straightforward and honest here so …DH had a BM accident. After he took his clothes off and sat on his bed with his dirty bum he did get in the shower. Went in to get his clothes and bedspread to wash and almost got sick from the awful smell! I had to leave his room. I felt bad for asking him to bring the stuff down…
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Just a curious observation
DH has severe aphasia to where most of the time I have no idea what he’s trying to say - he can’t come up with the right words. But lately he’s been talking with numbers a lot. Like “where is the 30-50” or “that will be 30 thousand” or counting the number of traffic lights when we’re stopped at a red light. Just a…
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My wife forgot her brother died in 2019
I know others have experienced this situation and I wondered if you have any advice for me. My wife told me last week today she was worried about her brother because she had not heard from him in awhile. I wasn’t sure how to respond—I didn’t want to say he was fine—but when I reminded her that he passed away she was…
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Read this- for MCI or early stage slowing progression
Results based on Dr. Dean Ornish’s 9 week virtual program. You meet online twice a week with caregiver. Program might be covered by insurance if your loved one has cardiac issues. The program is for cardiac patients, but has now started to treat early stage MCI and early stage Alzheimer’s. I am looking into this program…
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Respite
I have been so fortunate. One of my DWs sisters has been coming up every couple of weeks to offer me respite. I just had two lovely nights away and I loved every minute of it, as I can feel that I’m coming to the end of my rope. My DW missed me like crazy when I was gone. Had a nice little reunion and then right back to…
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Seroquel
Based on posts I’ve read on here, I asked my husband‘s neurologist for Seroquel to help with sleep and behavior. I’d like to know from others experiences how long it took for the medication to work? How long before a noticeable difference was noticed? The main thing that I’m hoping for is successful sleep through the…
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Combativeness and Agitation Out of Control
My DH was diagnosed with dementia 15 years ago and his decline has been very gradual but very definite. He's been in memory care for a year, cannot communicate and doesn't understand when I ask him to stand up, sit down, take a sip, etc. He is also incontinent. He is extremely combative and agitated with memory care staff…
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Anosognosia Is Overwhelming Me
I know my DH cannot help having Anosognosia as part of his Alzheimers but WOW is it taking a toll on me. I JUST NEED TO VENT. NO ADVICE PLEASE. I have always been a person who is grounded in facts and science. Now I must try to shift my core personality to accommodate my DH’s lack of understanding of either of these as it…
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How to take away responsibilities
My DH is going into his 2nd year after diagnosis. I started noticing things about 3 years prior to diagnosis. I'd say he's into stage 4 perhaps . He's still quite able to handle his personal care. It's tech th a t he struggles with. Just scrolling thru social media and such is not much of an issue, but if it's something…
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I need a hug please
So today is our Wedding Anniversary and he wants a divorce again. I didn’t say anything cause he’s been tormenting me since I woke up. It hurts cause I asked him if he’d like to go away for one night and he said no. Then unbeknownst to me he asked his friend to come in without my knowledge. So now the two of them are going…
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My Truth, Is it Yours Too?
I do not know the author but I wish I could credit them.
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Newly diagnosed? Free Zoom workshop tonight 9-23-25 for newly diagnosed.
free Zoom workshop tonight. 7:30 PM EST. How to prepare for the future. I saw this on Facebook. https://www.facebook.com/share/r/17L5XA7FCc/?mibextid=wwXIfr
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Fidget and Anxiety Reducing Toys
My sweet DH is a firm stage six with all the symptoms that go with AZ progression. A friend suggested buying some “toys” designed to help people with AZ reduce anxiety. Has anyone used these to calm thei LO? I saw some sites, but would like feedback from those who have used these, with the DL.
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Family support when overwhelmed
As nearly every caretakers knows it is easy to become overwhelmed. At my advanced aged, I had gotten to the point of considering both of us going into Assisted Living. Our 5 kids had already been discussing "what if Mom dies, what will we do with Dad?" as well as "What about Mom, she seems overwhelmed." Last night the 3…
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So Tired This Morning
Good gosh almighty how can we all do this. I am so tired today thank goodness I understand it comes and goes but today I’m tired and very short of patience even our little dog knows to leave me alone but now i’m sad about that. It was finally bed at 10pm, then DH wandering with every light on at 2am, slumber for me for an…
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Too old for this/too young for this
Newly diagnosed spouse of 40 years. He’s in denial, I’m in panic mode and end times mode. And it’s only just started. Twist? He doesn’t want any treatment. Anyone have any experience with no treatment? Or know how it may go?
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Just sharing a positive/happy moment
We live in a very rural area, not close to any family, most friends have moved away or passed on. Our awesome next door neighbor just called to see if my husband would like to go watch him at his ju-jitsu class then stop for lunch after. This same neighbor took a day off work a couple of months ago to drive me to a doctor…