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I've been away for a while and need to talk
Since I was last on this site, we moved to a smaller townhouse 1 1/2 away from that awful town. He did ok with the move. I'll just skip to now. he had 2 seizures a month ago in which the hospital labeled as "fainting" yet put him on antiseizure meds. he is going to get an ultrasound on his carotid artery, then and EEG. he…
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Great News on Treatment Advance
This made my day! This will not cure my DH, but it gives me great hope for my children and grandchildren. Medical research matters! Thank you to the devoted scientists at Harvard who have been working on this for ten years. Hopefully, tes5ing will commence very shortly.…
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How do you assess your spouse
My Dh is c/o light headless and chest discomfort. Im retired nurse so I've done all the steps. BP is fine heartrate is fine no further symptoms. Up walking around like nothing wrong. Was at er last week for back pain. Found nothing that would cause it. Given his meds for BP baby aspirin. Will cont to monitor him,but it…
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Dealing with my feelings of resentment
I'm married to a man who was verbally abusive to me during the first 10-15 years of our marriage. When I tried to leave, he begged me to stay. I regret staying, expecially because of my children. We've now been married 40 years and we really don't have what I would call a close relationship. I had to pull away when he was…
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Seroquel / Quetiapine Dr. prescribed
In reading the posts here about this drug, it appears that it is given for those that are not sleeping at night. It was prescribed to my DH for hallucinations. The man does not have trouble sleeping at all. Just a few episodes when he had too much coffee or has had long naps during the day. Is this something that will work…
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Joining with a thank you
Hello, After a few months of reading and searching this site, I have decided to join to thank those who have posted advice. You have been a lifeline, and I hope that my experiences can be helpful to others here. DH (77) was fully independent, driving, paying his own bills, and living a good life a year ago. Looking back, I…
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Hoping he will forget me
Wondering if my DH forgets me, will things be better? It’s an awful thing to say, I know especially with all our circumstances. But, I’m faltering, fading and losing all hope. From the moment he sees me in the morning till bedtime, he insults me. I fix all 3 meals from scratch and the moment the food is put in front of…
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Is it my imagination?
Does it /did it ever seem to feel like, look like the PWD was almost your imagination? The cycles, the moods, the feeling that the old DH is back? (I'm still pretty new to this journey.)
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combative at night
Hi, I'm new to this group. We have no diagnosis but I am starting to wonder what is going on. My husband is a different person at night, usually after 10 pm He becomes defiant, combative, and says things that are just typical of his normal behavior. Is this Sundowning? Thanks
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Selling the House DH doesn't understand
I have power of attorney Can I sell the house without him and use my power of attorney to do so. Also how can I get him into a memory home if he won't go. His outbursts and violence are getting out of my control al
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Feeling Low
I have been feeling so low today. Usually I’m on top of things, we do all sorts of wonderful things to stop the sads rushing in but today I realised how silent I have become. DH has VD and aphasia, word salad is now the norm day and night, sounds and hand signals too. If I am in the garden and he wants me he lets out a…
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When is it time?
my DH is 56 years old and has FTD and is now losing his memory and he has no real speech or comprehension. I’ve already spoken with the family ahead of time that I know I am not special enough to be able handle things when we get to the later stages. My question is, how did everyone else decide when it was time for MC? How…
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Ultimate Answer
We discuss and share our lives and living with a LO with dementia But the ultimate answer is our relationship with God and to pray and give all your troubles to Him Only then will we see his answers and not ours
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Clothing and hygiene matters.
My DW of 48 years no longer cares about how she dresses and more often than not believes she has showered, brushed her teeth and is ready for the day. If I mention that her blouse is inside out or pants are on backward she gets upset at me and says "no-one but you will notice". When I mention showering or teeth brushing…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Establishing level of capacity of judgement
Anyone have experience evaluating capacity of judgment? I am being referred to Forensic Psychiatry at a cost of $5,000 to $10,000. Gotta be a better way.
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How to deal with violence
I posted this before but is getting worse and he thinks he is okay. Gets Up early and wanders around the house and says no to everything and lashes out when I tell him to go back to bed. I am not in love with him, just feel an obligation. Can I just leave him and never look back
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Memory Care transition
Well it has been 2.5 weeks since my DH has been in memory care. Prior to this, he spent 3.5 weeks in the hospital. The first couple of days he was there, I literally slept like a log. My bed didn't even look like i had moved a muscle. But as the days wear on I'm finding my big old house so quiet. It's sad. The facility is…
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How does Alzheimer's ASSN help
And how do I actually contact them I live in California
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Does your state medicaid cover MCF?
Spoke with CELA yesterday and found out medicare in CA can cover SNF for patients with dementia who need it but does not cover a MCF. We would have a share of cost but at least we wouldn't have to pay the entire amount ourselves. If I'm not able to keep DH with VD home with help until the end, I'm hoping his poor physical…
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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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I haven't posted in quite a while
Every time I think about it, something else happens and I put it off. It's been eighteen months since my DH entered MC and I wish I could say I have adjusted to being alone. My life is full of activities but underneath is the sadness that never goes away. In the evenings, when I am alone, it hits full force and the tears…
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Correction
How best to correct someone with memory loss ?
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GPS Enabled Watch
I don't post often - but I check-in every day for your sage advise! My DH (70) has Alzheimer's + Vascular Dementia and was diagnosed 1.5 years ago using blood test and MRI. The Neuropsychologist conducted testing and concluded he was in the 'Moderate' stage. I (64 F) am trying to work another year before I retire, so he is…
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MC decision
I began visiting MC facilities as my Plan B to be ready if something happens to me. However, after seeing some very nice places I’m thinking more about the improved care he would get there and the extra freedom I’d have. DH is mid stage 6. I’ve been unsuccessful at getting him to shower (I do what I can to keep him clean…
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Constant questions
DW is in stage 6 of Alzheimer's. She is a question machine, and not just with me, with anyone and everyone. It gets frustrating, especially because of the repetition, her asking the same question over and over, unaware that she has already asked numerous times. Her short term memory is totally gone. I do believe her…
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Just need to talk to my friends (208)
HB, thanks for telling me about auto comprehensive paying for rodent damage. I doubt this will be over $1000 which is my deductible. JeriLynn, I would be interested in the device you mentioned that makes a noise to scare rodents. I have those scent packets but don't know how to keep them from falling out but maybe the…
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Quick question I
My DW with EOAD has been losing her vocabulary in the last couple of months. Nothing that comes out of her mouth makes any sense. The words are clear but the composition of the sentence makes no sense I’m thinking because of her shrinking vocabulary. My question is do they also lose their ability to understand what someone…