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Showboating?
Does anyone know how LO’s are capable of showboating? If they can behave differently with others, why do they challenge their caregivers in unreasonable and even harsh ways? If the brain is “broken” how do they seem to temporarily “fix” it in front of others?
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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The dementia routine
I know all of our journeys are different but many are scarily similar. My husband has no initiative and does the same pattern everyday. His day is focused on eating and going to the bathroom. Other than those things, (which seem to occupy a great deal of time everyday), he would just sit in his recliner in front of the TV.…
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Getting very difficult
Hello, my first post. My husband has moderate Alzheimer's. Officially diagnosed last year but it's been going on since about 2017. He has no short-term memory at this point. He had emergency triple bypass in 2021, and it progressed a lot since then. Goes to Adult Day Care three days a week and he's in his third year. He…
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Marijuana for aggression?
Has any caregivers had doctor prescribe marijuana for LO with agressive behavior? If so, did it help?
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Hypersexuality
My husband talks about sex constantly, uses language he never used before, and is grabby like a teenager ( he's 72). I am not dealing well with this, I see him differently now that I am his caretaker and he is incontinent and hates to shower. I usually change the subject but it's making him upset.
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Getting desperate
Hi all. I care for my partner who has dementia and has only just recently been diagnosed even though it has been obvious for two years. He has no idea of the day/date/year nor even the season. He goes to daycare three days a week, thank God, but it's costing us a fortune. My main problem is he's so nasty now, and a…
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DH has the flu
My husband is stage 6. Started coughing, fever- I took him to the urgent care today, yes he has the flu. It seems his dementia has gotten so much worse when he started showing flu symptoms. I’ve heard that can happen. He has had 2 bowel accidents today, very unstable on his feet, talking to himself. The dr said the…
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New territory and things are changing
Facing facts here. Thought I was dealing with things the best I could as they continue to evolve. DH fell about a month ago when he got up at night to pee. Luckily he wasn't injured too much, just a cut on his hand that bled a lot. A few days ago he stubbed his right little toe, again when he got up in the night. He said…
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Toured a few memory care facilities
My DH is in moderate stage and I plan to take care of him as long as possible, but been told to have a Plan B. I never realize the memory facilities are so competitive with each other. And, they are a little pushy at when to admit him. They told me they would not be able take him if I wait too long. My DH is doing good and…
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New to this group
Hello, I'm new to this group and Just looking for support I guess. My husband has been recently diagnosed with what the doctors are calling "Alzheimer's-Like" dementia. He's due to have NeuroPsych testing in late May. So maybe we'll have more answers after that about his condition. He's been having memory difficulties for…
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Wandering outside
My partner has been wandering every day now. The police were called six times in a month. She hallucinates and has delusions that there are other people inside the house besides us that want to harm her, or that her "children" are being held captive. She becomes angry and goes out the door, sometimes without her phone,…
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Cereal ..... Again
HWD is reaching the stage where he will wander off during a meal, and he is starting to lose weight. So foods that hold up (no cereal for him) to long meals and high calorie snacks are prominent in our house. But for me, by the time I have him in bed (if I can keep him up until 6:30 that's a win) I'm too tired to make a…
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Did I Over React?
Hello All - I haven't posted here for several months but wanted to check in as I got such great advice last time. My DH had a massive shift in personality last year that lasted for about 10 months. He became angry, with explosive outbursts and was emotionally unstable. I became very concerned that it was some form of…
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In need of guidance
My DH has a caregiver come twice a week to take some of the pressure off of me. The agency which we get them from had a 5 star rating and I always only read the bad ratings…which they didnt have. The problem is the agency doesnt let us know when the caregiver calls out for whatever reason or if they are sending anyone…
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From Spouse to Nurse
I've seen many here who are further down the road than me and my DW, who mention how moving mentally from spouse to nurse or captain helped the caregiver find a different set of patience and ability to manage. I feel like I could use that more in my approach, but how in the world did that finally click with you all? Early…
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They really have no idea!!
My DW has had EOAD for a little over two years now. I am finally realizing that my family and friends have no idea what we are going through. I welcomed their wanting to help with suggestions or articles they found to help us. As my DW’s symptoms have advanced, everyone has given their opinion on placing my DW in MC. I…
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Financial questions related to care
Hello. I'm sure this comes across as ignorant. I'm not, and probably just looking for affirmation of my expectations, but if anyone has any feedback - without judgement please - I would appreciate it. DH has been diagnosed at age 62. I work very part time. Young teens. House is not paid for and definitely don't have even…
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Learning to be patient.
Hi, I'm 74 and my wife is 76. How does everyone learn to hold their tung? My wife has had Vascular Dementia for almost 2 years. She contently for what day it is. Our Daughter is now making up her pills. I have to dress her am/pm. Help her shower, bathroom needs. I'm now cooking all meals. I have hired a person to clean the…
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Federal Alzheimer's Research Defunded
The Roy Blunt Alzheimer's research center at the National Institutes of Health has had its budget slashed as part of the ongoing random cost-cutting program. The center does research on what now-retired Senator Blunt (R - MO) called "our most expensive disease."
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New to this group
Hello, I'm new to this group and Just looking for support I guess. My husband has been recently diagnosed with what the doctors are calling "Alzheimer's-Like" dementia. He's due to have NeuroPsych testing in late May. So maybe we'll have more answers after that about his condition. He's been having memory difficulties for…
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What is the function of a neurologist after Alz diagnosis
I have searched for this topic and can't find anything related. My question, more exactly, is what can a neuologist do for my DH other than prescribe varioius meds or give him experimental meds? We have been through the non invasive meds and DH has had a reaction to each. We will not do the newer intravenious meds. So, is…
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Blood Test for Alzheimer’s
My DH has a test last week- Quest Ptau 181. It came back at 1.19 where anything higher than 1.07 indicates Alzheimer’s. Was wondering if anyone else has experience with this test?
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Rx question for the medical folks...
DH has knee arthritis, pain in the knee and back from his back, and now apparently arthritis in both his feet. The foot pain seems to be even worse than the other and sometimes so bad he can barely walk. The ortho doc prescribed a compounded cream for the knee, and several months later the podiatrist has prescribed a…
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Understanding the number system ?
Hi, I see numbers discussed like 5-6. Are theses years or stages of disease? Thanks , Sandi
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Same meals
My DH who is 45 ye EOA. He is stage 6 transition to stage 7. He is starting to not like lots of foods he used to love. Is this normal? He will eat cereal, pb and j, chips, salad (sometimes) or meat sandwich It is also hit or miss if he will eat anything in a day. Or skme days he will graze all day on chips and trail mix.…
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How to tell your teenagers
my DH was just diagnosed with EO at 57…we have three teenage kids (20, 19 and 17). Any recommendations on how to tell them?
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Just need to talk to my friends (202)
Iris, cutting ice is a really important chore when it's freezing, otherwise either the cows won't have water or they'll walk out on the ice and break through into the icy water and freeze. I remember Charles cutting ice on the pond and when he would cut a big piece he would slide it under the unbroken ice. Usually would…
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ECT
Docs are suggesting electroconvulsive therapy. I’m old school and I don’t hear any news flashes. Concerned but cautious about going to Oregon for treatment.