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Interested to know what Elder Law Attorney provides
My 69 yr old DH (I am 69 as well) was diagnosed last fall with ALZ. Guessing he’s in stage 3 with some stage 4 like unable to take care of finances, which in our marriage has always been my domain. Six or so yrs ago, we completed our wills, durable powers of attorney, a revocable living trust, etc. I am still his person…
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VRBO VS Hotel
I know our traveling days are winding down but DH wants to go see his father in Florida. All his family live in Florida. I think it will be ok because we have family all around. The only change is his father is now in assisted living so we can no longer stay in his house when visiting. DH was very familiar with the house.…
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Information on Alzheimer’s drug therapies
https://www.brightfocus.org/resource/fda-approved-alzheimers-therapies/?lb=off&utm_campaign=fy26_adr_2603_stewardship_ea3&utm_medium=email&_hsenc=p2ANqtz-9_nkdjBJkPvm4VWCnPwnGjONHFAekf_gU1RC8UsDiBDIWDn_G4y-QM7fD0lpzB1nHZPoC3QwY5H1IBL1aQ5G3R3pyUYljmyARdkFx47haZTfFbvhw&_hsmi=411116446&utm_content=donor&utm_source=engagementTh…
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Lip-smacking, teeth-chomping turned out to be seizures
I want to share something I’ve recently learned that might help others… Seizures are much more common in PWD than many of us realize, and they often don’t look like the typical “convulsive” seizures we think of or see in the movies. They can be very subtle—things like brief confusion, staring spells, or small repetitive…
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Asking for car incessantly!!!
DH has been asking for his car every day multiple times a day non stop and it’s driving me crazy! We told him it’s being fixed .. he doesn’t believe us, I change the subject works for a bit then ask again. Continues to call our 3 children and lately the grandchildren asking for his car! It’s been almost a year! Help how do…
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My husband passed at home March 18
It was a long journey with my husband. He is finally set free from this horrible disease. My wish came true to keep him home until the end. My whole life was taking care of him and a deep void is something I have to get through. I never posted here much but I needed this outlet to say he is not with me anymore. Such mixed…
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I think I’m losing it
Lately I find myself wondering if it’s my DW that has Alz or is it me. I find myself thinking that it’s me that put the frying pan in the freezer or that I’m the one that can’t remember where anything is. It’s actually kind of disturbing. Is this a thing?
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My DW is now refusing to take her evening medications.
Usually on queue, my DW will take her medications in the morning and in the evening. Today, I gave her the medications for the night, and she refused to take them. No matter what I tried, she would not take them. Her medications cannot be crushed and added to food (that's another story). It's very frustrating. What is a…
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Latest from 2026 Alzheimer’s International Conference
https://www.brightfocus.org/news/breaking-news-dispatch-alzheimers-oral-therapies-prevention-strategies-and-targeted-treatments-emerge/
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Refusing to go to the the doctor
I went to town today with DH. While at lunch, I mentioned going shopping while we're in the city Monday. He asked why we would be in the city. I told him he had an appointment with the brain doctor. He shook his head & said, "I'm not going." I said you promised the doctor you would come back in a year. He said, "I don't…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support
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Changing personality
This is my 1st time on here. I needed to vent. My wife has early onset and has mild cognitive impairment. She is still high functioning but has become very anxious. She gets riled up fast and takes it out on me. I am finding that I lose my temper when she is angry at me. Afterward, I feel bad cause “I should know better.”…
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PET scan -Update
Update: The Neurologist said he is eligible for IV infusion medications based on his PET scan. We need to have a blood test done that would provide info regarding the likelihood of ARIA (brain bleeds), so we’re set to do that next week. If that comes back okay, they will set up the therapy plan and present it for insurance…
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Seroquel 25 mg
My DH started having started having delusions, some hallucations with hearing noises. He thinks men are hitting on me…family members, repairmen. Wants to go grocery store with me so men won't hit on me. Follows me around constantly. I am wondering if things will go down hill from here. The doctor precribed Seroquel 25 mg.…
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I am new to this group and am grateful!
Hello! My DH was recently diagnosed (December 2025) with AD at 70yo. In hindsight, I began noticing "questionable" moments here and there probably 2-1/2 to 3 years ago, but he had just retired and I chalked it up to a major life shift. About 18 months ago, my worry intensified but he would not hear of it. As the months…
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Learning what not to do
My husband has alzheimers. I just need a place to get good advice as to how to handle certain situations
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Spits his food out
I don’t know if this is a phase or just a progression of the disease. My DH is losing roughly 4 lbs. per week, and I’m sure it’s due to spitting food out. He will take a few bites, swallow, then the rest of the bites he spits out. What can I do about this? Nothing? I’m curious if others are dealing with this same issue.…
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DH and my constant sobbing
I have read some of your posts and I feel terribly guilty about posting at all. My DH has had dementia for about three years and I believe he is in stage 6c. I'm trying to stave off incontinence by taking him to the bathroom at regular intervals. Being the toddler he is, there is no guarantee that this will work. So the…
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Grumpy Old Man
My DH is always mean to me. He thinks it is real funny when he locks me in a room. He loves to see me get angry. Always tells me I am fat. First thing in morning he says, Wheres my breakfast!! Like I am his servant. My 8 yr old grandson was visiting and it was constant teasing. MY grandson gets so confused that he is very…
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Any of you dealing with sarcopenia?
My DH appears to be declining physically more quickly than cognitively. He has VD but both his mother and older brother died from alz, so he may have mixed dementia but not diagnosed. He sits most of the day and has for years. His legs and hips are weak and getting weaker, he has difficulty: rising from sitting, standing…
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Brain shrinkage
Good Morning Warriors. I tried to research the subject of brain shrinkage and changes in facial features. There doesn’t seem to be much about this. My DH is gaining weight in MC facility but his face features are changing dramatically. In particular, his eye sockets are deepening. His cheeks are also sinking in. He has…
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A letter to Memory Care Center managers
Dear Mr. Memory care manager, I have been working hard these last 50 years and always setting money aside for retirement. Now I need that money to pay for memory care for my DH. Memory care is my vacation, my world tour and my retirement all rolled into one. Today I arrived at my Dh's "care suite" only to find that yes you…
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Processing DH's Dementia Journey and Recent Death
My DH graduated to heaven recently after seven years of moving through the different stages of Alzheimer's. After living with anticipatory grief, this final ending of our earthly relationship has been very hard on me. He was the center of my world. I spent at least a couple of hours every day for the past year with him at…
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Is it time?
I've been caring for my LO for 3 years. His progression is getting worse. I was not prepared for this, nor what is to come. Incontinence and it's a battle to get him changed. Showers are hard. Relieving himself outside of the bathroom. Wanders at night, gathering items, hiding items. He is not aggressive or combative at…
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Today’s Question?
How could DH with VD smell the bread baking but cannot smell the urine soaked clothes he is wearing? Just curious 🤷🏻♀️
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I failed as caregiver today
Yesterday I picked up a nasty cold and had a really rough night last night trying to sleep. This morning my wife (who has Alzheimer's, stage 5) had another emotional meltdown. Partially accusing me of of keeping her here at our house to kill her or some such nonsense. I am at low ebb, having little to no patience this…
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Sundowning in the Morning?
A question for the community, My DW has been waking up the past week or so with a continuation of the sundowning attitude and demeanor she was experiencing the prior evening. Is this a common experience others have experienced with Alzheimer's? Is this an indication that my DW condition is in further decline?
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I had a dream…
I just have to tell this to someone…I wouldn’t be able to tell my friends or family without bursting into tears. I lost my DH a couple of months ago. I have occasionally remembered seeing his face in my dreams but never could remember the dreams themselves - until today. I dreamt that we were somewhere sleeping. I woke up…
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How do you transition to "Depends" without a battle?
My DW is getting closer to needing "Depends" underwear or similar. I just can't imagine that she will accept wearing them. I could remove all of her regular underwear and put "Depends" in the drawer but I'm not sure that will work. Any ideas would be greatly appreciated. Thank you all!