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Alzheimer’s Poem
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Soo mad
Please everyone pardon my rant here. I am so sick and tired of my family always questioning my actions and decisions on the care of my DW. Why are you doing this or that, do you think that’s best for you, don’t you think it is time for MC. The reason I love this site is that you all understand my life because you are…
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mobility issues
My DW is only 58, but is in later stage of disease. Mobility has been a rapidly worsening issue. She was walking with my assistance but recently won't (can't?) walk or even stand—Seems like legs are frozen. Makes changing incontinence briefs very hard. I have checked thoroughly for injuries but haven't found anything. Has…
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Geriatrician vs. Neurologist
My DH's PCP referred him to a geriatrician, but I wondered if a neurologist would be better. The geriatrician (we had first visit in January and will see her May 20th) is 30 miles from our house. We could see a neurologist locally. Does anyone have an opinion on who is better to treat Alzheimer's/vascular dementia?
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How to get right in my head...
I struggle with my own emotions dealing with this. I am luckier than many. We are not as far down the road as some. DH can still do all his ADLS but is so emotionally needy. He is safe at home by himself but prefers I sit with him 24/7 and watch reruns of the same TV show we've watched so many times before. I know many of…
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Johns Hopkins
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2024/10/clinical-trial-shows-synthetic-cannabis-reduces-agitation-in-alzheimers-disease#:~:text=In%20a%20study%20led%20by,by%20an%20average%20of%2030%25.
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Recent Diagnosis for my wife. Seeking local support groups. Seattle
I am 68, my wife is 72. We are in Seattle. She was recently diagnosed with mild cognitive impairment, though I would place her at the upper end of that diagnosis. I tried to call to get pre-screened for caregiver support group. After waiting a while, the line went dead, then dropped. This year, our son had a brain tumor, a…
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How long……
My memory care np told me today that she has seen stage 6 last for 10 years!!! Scary but even more scary as moving to mc and concerned about costs!! Have long had your LO stayed in this stage?
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This Cruel, Cruel disease
Today I took my husband to Respite Care for 2 days. Just a few months ago I would have never thought I would do that but things have changed so much. My DH is not a husband anymore and I am truly just his caregiver. I needed the break. Never would I have thought it would come to this as he was the man I loved more than I…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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Alzheimer’s research comments by RFKJr
RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of…
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Long term meds and medical screening
My husband is seven years into this dementia journey. He has zero short term memory and confabulations constantly about places we’ve never been, ads he sees on TV etc. He can’t find anything in the kitchen. He’s 73 years old and obese but pretty healthy. The doctor wants him to have a colonoscopy and to start cholesterol…
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Dental Decision
Does anyone have experience with a late to mid stage Alzheimer's patient with 1 tooth abscess and 3 pulp exposures. Oral surgeon wants to put my dad under general anesthesia and extract all teeth. What will a 2-3 hour surgery like that do to a person in this stage? will there be much recovery or do we just let nature take…
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Sun downing
So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes…
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Time to get a medic alert device
My DW with EOAD is now in stages 5/6. She can’t tell me her phone number or where ashe lives. Her vocabulary has dwindled to a couple of hundred words. She spends most of her day folding clothes over and over. She talks to her special friends all day. The other day I wanted to see what she would do if I were to fall and…
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PBA
My DW’s psychiatrist seems to think she has PBA (Pseudobulbar affect). Is anyone familiar with this diagnosis? There is a medication available to help with this but Medicare doesn’t cover the drug so it is out of pocket and expensive ($1600.00)
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Just an observation
So, 30 minutes after we called our son to tell him happy birthday DW forgot that we had talked to him , but she remembers to the penny how much we spent at the grocery store yesterday. I know I am not supposed to try and make sense of all of this but sometimes it just amazes me.
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Anyone With Resentment?
I'm going to post this before I chicken out. I have been married to my husband for 42 years. Now he has Alzheimer's/vascular dementia. Even in good times he could be difficult to live with, very controlling. Now I am bitterly resentful because I have to take care of him. Has anyone experienced this. I feel guilty and…
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AI and alzheimer's?
Excuse me if this has already been discussed, but I just read something that might show promise. https://scitechdaily.com/scientists-discover-hidden-cause-of-alzheimers-hiding-in-plain-sight/
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The Move to Memory Care is Here
So after over 4 weeks in Rehab for his knee and 5 weeks in a Geri Psych unit, my husband is finally being moved to Memory Care tomorrow. This facility wasn't my first, second or even third choice, but nobody wanted him! He went through multiple care assessments, and they all basically said "we don't think he's a good fit…
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Very Regrettable Appt.
Just to get it off my chest post….I know I know the calvary are not coming but darn darn darn… We went to the neurologist today after the 911 incident. I guess I was hoping for some back up but now I know there isn’t any. The Drs nurse wanted to know what I was doing to agitate him. I calmly explained, nothing…. And then…
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how do you return to the MCF after an outing?
DW has been in MC for four weeks. I've contemplated taking her out of the facility for some activities, like going to a restaurant or a park or the zoo. But I can't figure out how I would get her to return willingly to the facility. Every time I visit, she talks about wanting to go home. Seeking advice and insights…
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Just dropping in
I just wanted to wish all the ladies a Happy Mother's Day. It's really hard to appreciate an occasion like this when you have your hands full, but try to take time to pat yourself on the back, and find the time to do something for yourself that will lessen the load, if even for only a little while. It's been a while since…
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10 Absolutes in Dementia Care
Shared by another member here - Thanks Chug! Here is one you can download or print:
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Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
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Awareness of condition
My DW lapsed into the lost memory phase, and had a particularly hard time. She still knew me but said she felt lost. This made me wonder if she had any awareness that something is wrong.
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On the Upside
I just wanted to share a few positive wins in this land of the seemingly ever-down life. We are now 7 weeks post-MC move-in. Last weekend, in honor of Mother's Day, the care facility hosted a breakfast with mimosas and small fresh flowers for each Mom. It was a treat to share that with my DH since life with FTD is…
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Book that Gets It
Like we have time to reas? If you do, however, this novel by a writer whose husband died of Lewy Body Disease is good fictional treatment t of the rabbit hole we caregivers fall into. https://www.forewordreviews.com/reviews/counting-backwards/
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I moved DW to memory care (part 2)
So, that's the background. All of our family and friends were supportive of placing DW in MC, even urging me to do so, reminding me that I had to take care of myself. The conundrum for me was, how was I going to get her in the door? How was I going to get her things to the MC facility? One suggestion was to say her doctor…
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Started with hospice care .
Lots of help and support . Also I kept a home care person who is working out well . Hoping to be able to have some time to be myself this week . We had a nice mother's day with the grandkids visiting . Of course it was hard for them but important they got to see their grandmother now and not later as this progresses. My…