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Memory Care Day 1
Today I took my DH to MC. Such a hard decision to make and a hard, hard thing to actually do. The staff was wonderfully welcoming, giving him big hugs, making him feel valued. I got an update this afternoon that he was doing well, had a good lunch, checked out every inch of the place, walked the path outside, enjoyed…
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Days with more sleep
My DH is in late stage 6 AD, and been under Hospice care for 16 months. The past 10 days he sits most of the day, as opposed to waking around the house moving items from place to place. I know this is progression and not that unusual, however, every three days he is sleeping most of the day. A normal day he will go to bed…
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caregiver lonleyness
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CBD & Alzheimer’s
an FYI https://www.medicalnewstoday.com/articles/cbd-help-treat-reduce-inflammation-alzheimers-disease
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Feeling so Sad
Hi there - DH was diagnosed with MCI due to AD in July. He's 66; I'm 58. I posted last month and many of your responses to me were so helpful. I'm meeting with a counselor for my newfound anxiety. I'm anxious about his/our future. Although he's doing so well and he's in the early stages, daily I'm witnessing his…
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Just trying to stay alive through this nightmare
I haven’t been active here, where I do need to be because I just got out of the hospital. I was unable to eat for 4 days and lost another 10 pounds from vomiting, diarrhea, and dry heaving. I’m now at 75 pounds. I see my primary tomorrow. DH has been so mean and cruel. I am broken and grieving the loss of 54 years of…
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In hospital and medicine
In the hospital they have him on serquel in day and Ativan at night he is on Ativan, at night He keeps trying to get out of bed but is too groggy. He is very upset and keeps saying he wants to come home. But more aware, sort of. How can I calm him or should I leave him alone for now?
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Talking and doing things together
My DH with Alz often says he misses me . Even though we've been tosh all day. Especially if we've had a particularly quiet day without too much communication between us. I try to think of things to do together, but not every day. We live by the beach and do take walks together most days. He has given up most of his…
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Coconut Oil
I just heard about using coconut oil at one of the caregiver's groups. They said 1and 1/2 tsp per day. Has anyone used this and did they see an improvement?
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It’s finally happening. Placing hubby in MC
this week he gets TB screening required and I get medical forms filled out. Date can be as soon as next week. Telling him we are checking out a new building for brain fog care. He calls what he has brainfog. I’ll work out with place to take him somewhere and then I’ll get suitcase from car and leave with them. Any other…
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Tips for husbands
I mentioned these in a reply a few days ago but thought they might be worth repeating in a post. For those husbands caring for DWs here's a few things I've picked up along the way: bra straps for bra straps. Yes, they make these small straps that go in the back that connect the two that go over the shoulder if your wife…
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help with legal and other issues
I have a friend whose housemate has very significant memory loss, but no diagnosis. The friend has asked for some input from me since I have a little experience in general. I have tried to search some of the discussions about the legal, financial and interpersonal challenges, but haven't hit on exactly what I'm looking…
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Hubby Moving to MC Wednesday
These knots in my stomach come and go. It’s awful thinking about leaving him there without him knowing. I have always been as honest as I could. Getting there 11:30 then noon is lunch when they will transition him. I have to find out what will we be doing for 30 minutes. I keep thinking what if he won’t transition. I was…
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Just Sad
I think this is the saddest and lowest I have felt for a while. It has just struck me how quiet it is in the house if I’m not talking or prattling on or the radio isn’t turned on. My darling DH with Aphasia, VD, now bent over most of the time and creeping silently around the house, it’s quite awful. I’m getting tired, the…
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Tips for getting LO to listen to my advice
My DH with EO is starting to do things that are potentially destructive. Beginning a couple months ago, my LO began getting concerned with the car oil level and has been checking and adding oil. Yesterday, my LO added oil to the car. And the car leaked a lot of oil and smelled like something was burning. My LO got it…
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If and how to tell others about the dementia
Need some advice about telling others about my DH's dementia. We play pickleball and while he can play pretty well, he forgets (and will never remember) some of the basic rules. The other players at the facility are just acquaintances or sometimes strangers if we have not played with them before. With pickleball you're…
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Alzheimer/Dementia and the Emergency Room
This was posted in the support after loss forum but was suggested to also be posted here> I just wanted to offer up a watchout regarding taking a loved one with AD to the emergency room. I have now experienced this personally and heard similar reports from others. The medical community does wonderful things to treat health…
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Friend wants to learn about ALZ
We have a friend who we haven’t seen in years who reconnected with us a few months back. He is flying up for 4 days to help with DH (in early stage 5) during our move to a new house. I am so grateful by his generosity. He stated that he knows very little about ALZ and wants to read up about it. What websites, etc, would…
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Frustrated and conflicted
My husband is 77, had several strokes, VD and other serious health issues and does not acknowledge he has serious problems, including dementia. He does not want to go to any more drs appts but his sleep has been seriously disrupted for over 6 yrs. He's on trazadone 150 mg which has decreased up/downs to about 5-7 x per…
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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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Fundraiser Flyer Agitates Husband
Hello AlzConnected Community, I am new to the discussion group. My 74 year old husband went from Mild Cognitive Impairment to Alzheimers diagnosis in the Spring of 2025. I look forward to learning from others in the same situation. This morning my husband opened a fundraising letter from Alzheimer's Disease Research. It…
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83 year old man found dead in walk in freezer.
This is heartbreaking!! I wondered whether to share this but decided that another discussion about AL vs MC is helpful to those making the decision. “A Tampa Bay area family is demanding answers after an 83-year-old man was found dead in an assisted living facility.William Eugene Ray's family said he was found in a walk-in…
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The never ending search
I know many of you have also gone through The Search for an item your spouse has misplaced. Has anyone figured out a way to control or prevent this? My DH has Alz disease & for many years, even before the diagnosis, he would pick up or put away items then not remember where he put them. Now his memory is so poor he can’t…
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Now in stage 8
My DH passed away at age 65 last Saturday, Sept. 27th. I was glad we all got to say our goodbyes before he passed. I now understand stage 8. My days feel like a roller coaster of emotions, but the nights are the hardest. We have been married almost 38 years.
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The Quiet Voice of Caregiving by Michael Whelan
I follow him on X. His wife has Parkinson’s Dementia. He writes so beautifully. TO ALL CAREGIVERS The Quiet Violence of Caregiving. by Michael Whelan There is a peculiar kind of heartbreak in being the one who stays. No one prepares you for how illness can rearrange the person you love. Parkinson’s is not just tremors and…
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Mood swings and anger issues
I placed my wife in memory care for Alzheimer’s two years ago and she is now bedridden. She has always been a very loving person, treating a stranger like a longtime friend or family member. Several months ago she started having mood swings and anger issues. Lately, she has been very happy when I first get there; smiling…
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Never ending search Thank You
I feel surrounded by caregivers that really care about others! Thank you, all of you, that took the time to share your great ideas & your stories, so similar to mine. I will put these into place & rearrange to have some safe storage places! Best wishes to all❤️
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Maybe I’m overreacting?
My husband is my concern. I’ve tried to talk to him about my concerns. Memory, irrational behavior, inappropriate decisions, he will not discuss or answer questions. His mom past of ALZ in 2022. He refused to help in any way with her care. His sister and I were there. HOw can I get him to see a doctor. I bring it up he…
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destructive treatment from my wife's daughter
My wife is afflicted with ALZ. she still loves me but we have had difficulties over the last month or so. We always had arguments over our 46 year marriage. So she asked for help from her daughters and they have offered it. Fine. Now she is 400 miles away. But now the oldest one has taken another step. She has blocked all…
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LEGEMBI
https://breakthroughsforphysicians.nm.org/neurosciences-clinical-article-leqembi.html#:~:text=is%20doing%20something.%E2%80%9D-,Dr.,headache%2C%20confusion%20and%20visual%20disturbance.