-
Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
-
Neurologists recommendation
Any recommendations for a neurologist in North Central Florida (Jacksonville, Tampa, Orlando, Gainesville, etc) who is particularly good?
-
67 year old wife trance-like state
For hours at a time on most days it is easy to believe that she has nothing more than minor memory issues. But as if she has a split personality, she will become very distant and seems depressed and goes into a trance-like state. This can last 2 to 3 hours and then she comes out of the trance. This issue began around…
-
delusions
I am wondering what peoples experiences have been with delusions. Do you think there is some bases in reality for where they come from or are they just random. In my case when my wife was younger her parents went through a very mess divorce because of an affair and my wife had an affair with an old boyfriend. Now she…
-
How do I respond to her confusion?
What is the best way to handle when your early onset spouse is saying for the first time over and over again she doesn't know who I am? Brought out pictures but she doesn't remember me. I need advice on how to respond in this situation.
-
Milestones
Today is my DH's and my 50th wedding anniversary. He's been in MC only a week. I visited him this morning and celebrated with a card and chocolate covered donuts. He still knows me most of the time and can say "I love you." I guess that is our celebration.
-
Sleep, sleep, sleep.
Hi y"all, My DW is early/mid stage three, we have been married 56 years. She was diagnosed two and a half years ago, now in mid stage 3, by my assessment. She is very affectionate and appreciative of my efforts in caring for her needs. She is now sleeping at least 14 hours a day. Her mother was on a similar path when she…
-
Alzheimer's Progression is not Linear...
So anticipating what might be needed or how to respond/care is so difficult. My husband has been diagnosed since 5/2023 with Alzheimer's which was certainly happening well before that. In all the research, and support groups, and meetings, and readings, and doctor's visits, and clinical trials, I've been navigating dizzily…
-
Six Months Since Moving
It has been six months since we moved two states from our hometown of 72 years to be near our daughter. DH has ALZ. I am still profoundly homesick! I miss everything I left behind, my older brother, our friends, our doctors, our dentist, all our familiar places and routine. We are going back this week to visit my brother.…
-
Memory care
These last few days may have been the saddest of my life. Our kids and I moved my DH to memory care on Tuesday. DH has been mostly calm but with anxiety and confusion in the mix. I am grateful he wasn't combative or accusatory towards me or the children. Now I am saddened and filled with a deep sense of loss I have never…
-
Convincing Mom to Get Help
Hi everyone, We are having a very difficult time trying to convince my mom to get help or get caregiver. She’s been a very independent woman for a long time and given my father passed away a long time ago, she’s been alone for awhile so she’s had to take care of herself. But we are worried something bad is going to happen…
-
Wanting to leave the house
hello. My dad has dementia and his symptoms have been progressing the past 3 months. He is waking up in the morning wanting to get dressed and leave the house to go to work even though he no longer works. My mother is the caregiver and lives with him and when she tries to stop him from leaving he gets very nasty and can be…
-
Some good advice (cross posted)
This is my caregiver education for the month of November as an adult foster care provider for my loved one. I thought it was good advice that we can all use.Communication and Interpersonal SkillsThe caregiver/member relationship can often be tenuous and difficult. Home care is a stressful setting that typically involves…
-
Any luck with caregivers?
My DH is in early stage 6. I’ve tried 4 caregivers. Every time he starts off positive with their visits and by the 4th or 5th time he’s agitated that they are there. Follows me everywhere to get away from them. Granted not one of them has done what I expected to bond with him. They start off very conversational etc and…
-
Aphasia?
I am curious to know if anyone is experiencing what I am with my DH. Clearly he has Alzheimer’s, all the symptoms, probably stage 6. Occasional incontinence, even bowel, no memory, small shuffling steps, layers clothes, doesn’t want to shower, agitation, shadows me, beginning to struggle with using utensils at dinner, all…
-
Forgot to title my post!
Sorry everyone, that last post- I forgot to title! Should have been titled Aphasia.
-
Visiting a stage 7 patient
DW has not had the slightest cognitive reaction for 3-4 years. She can still swallow but reacts to nothing else. She has excellent care. So why do I visit? It is no practical use to her and emotionally very trying for me. But I do.
-
Suggestions on "sedatives" please
My HWA at stage 6 needs a sedative to help with increasing agitation and sleeplessness. He tried seroquel and trazadone but he reacted very poorly to both. They made his wakefulness and confusion worse and caused a couple of falls due to increased "wobblyness". Basically, they reacted just the opposite and made his…
-
Incontinence Underwear….Depends v/s Always
Not knowing of any other brand I got my LW to use Depends at the onset which was 7 months ago. I recently found out about Always. My question is which one is better or are they basically the same.
-
What to do?
Last few days DH has taken $600 out of his bank account, answered a phone call at 8:15 am from some scam place asking for his Medicare # because they will pay for a back and knee brace. Thank goodness I intervened as he was looking for his Medicare card! He woke up and called the house phone at 5 am! Not sure what to do .…
-
How often does this happen.???
my wife apologized for getting upset with me!!!
-
Missing at @M1
I know people come and go and life changes, but I can’t help missing @M1s comments. I’ve been a member for years. I mostly read and learned, rarely commenting until more recently. I looked forward to the almost daily responses to members postings. Funny how that happens. You form an attachment of sorts on this forum to…
-
Cleaning their bunn?
Is it easier to clean their bottom with them standing or sitting? Sitting, meaning still on the commode. Thanks
-
Incontinence Diapers
Not knowing of any other brand I got my OH to use Depends at the onset which was 7 months ago. I recently found out about Always. My question is which one is better or are they basically the same.
-
CBD to help manage symptoms
Any one have experience with CBD to help manage anxiety and agitation in your loved ones?
-
Nonstop Singing
Hello I am new to the group. Been caring for my DH with vascular dementia for about 3 years. Recently he has started singing and humming non stop. Sometimes I can drown it out but other times it is very un-nerving. He attends an adult day service program twice a week where he has also started the nonstop singing. Any…
-
Slipped right into Stage 7
At the beginning of October my husband lived in a memory care, could walk on his own, feed himself, and say several words, sometimes even a whole sentence. He was partially incontinent. His agitation/aggression landed him in a Geri-psych unit, and during his time there, he had aspiration pneumonia. After that, he gradually…
-
Holiday celebrations
Hello Friends, My DH is moderate - late stage ALZ. He is not oriented to date/place/time, he is basically non-verbal. He is very unsteady on his feet. He requires help in the bathroom. He recognizes family when he sees faces, but I’m not sure if he knows our names. I am struggling with depression and dread the upcoming…
-
Care Givers and Spouse Online Communication
Looking for an easy way for our two care givers and myself to share daily information regarding the experiences with my wife. Would like to be able to privately post information such as meals consumed, surprises, issues, helpful tips, questions among the group, etc. Has anyone used an app or program they might suggest?
-
Three Years in Memory Care
Today marks 3 years since I placed DW in Memory Care. I have been blessed as DW acclimated immediately to MC & has been happy and well cared for there. This morning I made her blueberry pancakes and brought them to her for breakfast. At this point she needs to be hand fed and no longer communicates but since she cleaned…