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What Have I Done?!?
DH suddenly started having severe leg and knee pain yesterday. Of course, I couldn’t get an appointment with any kind of doctor for almost two weeks. He was able to get to the car, so I drove him to the ER. They ran a bunch of tests, gave him morphine, couldn’t find anything wrong and sent him home. Within 5 minutes of…
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Home care
DH diagnosed with vascular dementia 5 years ago is “progressing” in this horrible disease. He has difficulty walking due to major back issues short term memory deteriorating only leaves the house with me. I am looking into home care from some agencies nearby for companionship maybe 6 hrs a week and give me some time. What…
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New to CPAP
My DH was diagnosed with MCI, although I believe that he is a bit further along since he does showtime for doctors and nurses. Sleep studies determined that he has sleep apnea and his neurologist feels that it may be causing, or at least contributing to, his cognitive decline. So…he has a new mask and it's a challenge to…
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Sometimes I just want to hide
Hi all, been browsing thru these discussions. It nice to know I'm not alone. I'm 66 yrs old and my DW with Alts. is 68. I have allot of mental anguish for my loved one. 44 yrs of married life 2yrs of serious dementia issues. I have troubles with her sometimes telling me she doesn't know who I am-and wants me to get out of…
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Ups and downs toward the end
My DW has been in MC for almost a year now. She is stage 7 and every few days she is almost unresponsive and I've thought "this is it" but she bounces back. A few days ago when I was at the MC, I'm there twice daily to check on her, hold her hand, etc, the staff had laid her down in bed for an afternoon nap but she was…
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Recommendations for Group Disability Attorney
Any recommendations for a Florida attorney (focused on LTD and you've had success) to assist with the transition from active work status to FMLA/Short term/Long term disability (group benefits)?
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Work at neighbor’s - worried about DH’s reaction
One more thing to worry about…we have a section of chain link fence between us and our neighbor (fence is slightly on our property). It’s covered with a beautiful passion flower vine, which they planted so it’s rooted on their side. Now they plan on extending their vinyl fence inside the chain link which means pulling out…
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Financial crisis in the making part 2
I had posted here a couple of weeks ago. You are all so wonderful to have given me advice, which I am following through on as well as I am able. My dh is not able to make sensible decisions about money and his healthcare. He needs to see his neurologist and his primary care doctor. He has an appointment for the neurologist…
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New guy
My first post here: my wife’s diagnosis is not confirmed, but the progression is not good. We’re both 77, still in our own home and on our own. Kids are sympathetic and eager to help, but they live at a distance and have their own lives anyway. My wife was a great teacher, and she has many colleagues and former students…
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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Hypersexuality
My DH has been driving me crazy for a few years with sexual comments all day. The other day at doctor's office he told the nurse she had sexy shoes. This is the first time such comments were made to others. Never before this disease would he say something like that. Several months I spoke with his geriatric doctor about…
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Nights are the worst...
I'm sure I'm not alone with dreading the nighttime and my DH with VD's increased agitation. He does well during the day but when he goes to bed, he is asleep within 5 minutes but his sleep is so restless. He is up and down all night going to the restroom, pulling, fighting with and getting entangled in the sheets and…
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Showboating?
Does anyone know how LO’s are capable of showboating? If they can behave differently with others, why do they challenge their caregivers in unreasonable and even harsh ways? If the brain is “broken” how do they seem to temporarily “fix” it in front of others?
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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The dementia routine
I know all of our journeys are different but many are scarily similar. My husband has no initiative and does the same pattern everyday. His day is focused on eating and going to the bathroom. Other than those things, (which seem to occupy a great deal of time everyday), he would just sit in his recliner in front of the TV.…
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Getting very difficult
Hello, my first post. My husband has moderate Alzheimer's. Officially diagnosed last year but it's been going on since about 2017. He has no short-term memory at this point. He had emergency triple bypass in 2021, and it progressed a lot since then. Goes to Adult Day Care three days a week and he's in his third year. He…
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Marijuana for aggression?
Has any caregivers had doctor prescribe marijuana for LO with agressive behavior? If so, did it help?
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Hypersexuality
My husband talks about sex constantly, uses language he never used before, and is grabby like a teenager ( he's 72). I am not dealing well with this, I see him differently now that I am his caretaker and he is incontinent and hates to shower. I usually change the subject but it's making him upset.
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Getting desperate
Hi all. I care for my partner who has dementia and has only just recently been diagnosed even though it has been obvious for two years. He has no idea of the day/date/year nor even the season. He goes to daycare three days a week, thank God, but it's costing us a fortune. My main problem is he's so nasty now, and a…
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DH has the flu
My husband is stage 6. Started coughing, fever- I took him to the urgent care today, yes he has the flu. It seems his dementia has gotten so much worse when he started showing flu symptoms. I’ve heard that can happen. He has had 2 bowel accidents today, very unstable on his feet, talking to himself. The dr said the…
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New territory and things are changing
Facing facts here. Thought I was dealing with things the best I could as they continue to evolve. DH fell about a month ago when he got up at night to pee. Luckily he wasn't injured too much, just a cut on his hand that bled a lot. A few days ago he stubbed his right little toe, again when he got up in the night. He said…
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Toured a few memory care facilities
My DH is in moderate stage and I plan to take care of him as long as possible, but been told to have a Plan B. I never realize the memory facilities are so competitive with each other. And, they are a little pushy at when to admit him. They told me they would not be able take him if I wait too long. My DH is doing good and…
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New to this group
Hello, I'm new to this group and Just looking for support I guess. My husband has been recently diagnosed with what the doctors are calling "Alzheimer's-Like" dementia. He's due to have NeuroPsych testing in late May. So maybe we'll have more answers after that about his condition. He's been having memory difficulties for…
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Wandering outside
My partner has been wandering every day now. The police were called six times in a month. She hallucinates and has delusions that there are other people inside the house besides us that want to harm her, or that her "children" are being held captive. She becomes angry and goes out the door, sometimes without her phone,…
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Cereal ..... Again
HWD is reaching the stage where he will wander off during a meal, and he is starting to lose weight. So foods that hold up (no cereal for him) to long meals and high calorie snacks are prominent in our house. But for me, by the time I have him in bed (if I can keep him up until 6:30 that's a win) I'm too tired to make a…
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Did I Over React?
Hello All - I haven't posted here for several months but wanted to check in as I got such great advice last time. My DH had a massive shift in personality last year that lasted for about 10 months. He became angry, with explosive outbursts and was emotionally unstable. I became very concerned that it was some form of…
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In need of guidance
My DH has a caregiver come twice a week to take some of the pressure off of me. The agency which we get them from had a 5 star rating and I always only read the bad ratings…which they didnt have. The problem is the agency doesnt let us know when the caregiver calls out for whatever reason or if they are sending anyone…
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From Spouse to Nurse
I've seen many here who are further down the road than me and my DW, who mention how moving mentally from spouse to nurse or captain helped the caregiver find a different set of patience and ability to manage. I feel like I could use that more in my approach, but how in the world did that finally click with you all? Early…
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They really have no idea!!
My DW has had EOAD for a little over two years now. I am finally realizing that my family and friends have no idea what we are going through. I welcomed their wanting to help with suggestions or articles they found to help us. As my DW’s symptoms have advanced, everyone has given their opinion on placing my DW in MC. I…