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Wife has nothing to do
My wife has ALZ and she has had a rapid change from Stage 4 to 5 in the past few months. She has no interests and is really not capable of doing much anymore. She gets moody and agitated with nothing to do so I try my best to find things. We go for walks in the neighborhood, go to the Mall and walk around, eat lunch out…
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First experience with DH hallucination
Hi all, after his typical afternoon nap my husband awoke saying, “ I just saw someone laying right here next to me. “ My DH looked surprised but happy. He then said it was “pretty cool”. And …”I think it was you”- which it was not. Is this what a hallucination can be like? First time so no scary stories please.
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Startled / not able to identify common noises?
Hello everyone. My DH shows signs of being in stage 5, but is able to do most daily care tasks on his own. He is aware he has Alz and often talks about how he's been reading about all the Alz research and how they are coming up with cures. Anyway, I'm curious to know if others experience their person having issues…
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Wondering What’s in Store For 2036
Thinking about all my friends getting ready to party and bring in the New Year while I sit here sipping a single malt wondering what’s in store for me in 2026. Not a very nice thought considering my LO just “graduated “ to what I think is Stage 6. Happy New Year… Really ?? Maybe someone can relate to my rant … it seems…
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One Way to Ask for Help
I am terrible at asking for help. Asking for advice - easy … asking for help - so hard. I mean, I've always been self-reliant. But self-reliant is not going to cut it when things get real around here. So, I started looking for ways I could take people up on their offers, like when they say… "Let me know if there's anything…
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Can I Do This?
I wonder if anyone else feels fundamentally unsuited to care for someone with dementia? This is who I am. I have had life long depression episodes that I do my best to manage. I thrive best when my physical environment is orderly. . I do not work well under time pressure. I am introverted (do not seek social contact). I am…
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Just need to talk to my friends (213)
Morning, welcome to December! Carl and Ron, it's 32 here, mostly drizzle but it's icy in Tulsa and snow North of there. Lots of accidents and backups in Tulsa. If you get out today, please be careful. I have no plans to be out, maybe on the front porch to feed the birds. I saw a few on the porch looking for food yesterday.…
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Bed Rails
The shopping I do these days. Anyone recently purchased a bed rail they're happy with? I need a little help keeping my DW from rolling off of the edge of the bed. Thanks!
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Tamiflu for lessening flu symptoms in advanced Alzheimer’s?
Im wondering if anyone’s frail loved ones with advanced dementia been successful in taming flu symptoms and avoiding medicine side effects by taking Tamiflu? Trying to make decisions in advance as half the residents are showing flu symptoms.
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Another missing person left an AL facility
Please don’t allow people with dementia to live alone or put them in ALs. They are not watched 24/7. This is the 4th case in the last few weeks. Just because they have never wandered before doesn’t mean they won’t. They can wander at any time. This is so sad! 😭 CLEARWATER – Detectives have issued a Purple Alert for…
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Parietal or Atypical Alzheimers
I’m just wondering if anyone out there has a loved one with parietal Alzheimer’s. My DH’s AD is on the left parietal lobe. This is a very different path than the usual AD. His first symptoms were severe deficits in Math. We noticed he kept over tipping waitresses, who didn’t mind at all. His social skills were the same for…
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What to do when they won't move
What can we do, or who can we contact, when our person won't move, not even to use the restroom? We went to the ER a few days ago when my husband complained of pain and could not get out of bed. Once at the hospital, he didn't have any more pain, so they sent us home. Today, he's on the couch and wants a cup to pee in…
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Could alcohol be the cause and how do you know if it is?
My husband was diagnosed with early onset dementia (he’s 68) about 5 months ago. He had a neuropsych evaluation and he said it was really tough. I assumed he was having trouble during the testing as it took much longer to complete than I was originally told. Before he finished, the neuropsychologist came out and told me he…
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Oh my, it happened again.
So tonight I made some ground turkey patties with gravies. I did not check, I usually do, he did not drink anything before eating so it happened again. It got stock down his esophagus so I had to get him to the kitchen sink. I’ll spare you the details. It took like 10 minutes to get water to go through. That condition did…
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When to get help?
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Long term insurance
has anyone experienced this. I paid facility Oct Nov Dec. the insurance has 60 day elimination so December 15 would be 60 days hubby there and insurance kicks in. However facility messed me up because they didn’t get paperwork on time to insurance. I was now billed January and the amount is mind boggling. If paperwork was…
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DH is fighting his care every step of the way
I am not sure I can keep caring for my DH. He is in his late 70's with vascular dementia and Alzheimer's. He is in a later stage. He is always combative when it comes to his care. Recently he has needed disposable briefs. Actually I guess I needed them as I could not keep up with the cleaning and laundry when he was…
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Just hit me there is no Calvary
I got sick over the weekend, turned out to be slight case of pneumonia, all I needed was some nyquil right. My one son was in Michigan, other son at work and lives 30 mins away. I truly felt alone. I did teach myself how to use doordash. Sounds silly but I had never used it before. I guess what I'm saying is we will…
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Alzheimer's and spinning - things moving/jumping
Hi new here - My SO has probably early stage 6 Alz. He has started becoming more agitated and can no longer do ADL's most days. Today he called me to get him from Day Care. He said he was really sick - no fever, Heart Rate, BP, and muscle i.e ability to hold arms out in front of him and close eyes - no stroke symptoms -…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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What do I do?
I am not sure where to start… I waited a year for DH to have an MRI. The results mention the word dementia but all the other medical language concludes with “not significant “ . We have not seen the neurologist yet. That is two months away. His behaviors continue to be concerning. He didn’t know how to use a credit card at…
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Panic mode
Ok, I know we’ve all had some pretty harrowing experiences with all this. So we took, what I knew, was going to be our last trip to be with kids at Christmas. DW is in very late stage but always travels well because I leave early and she sleeps most of the way. Well, not this time on the way back. Like a caged animal. So…
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Christmas Envelopes
My DH has two sons and two grandchildren. I don’t know what to do with their Christmas gifts(money) We haven’t heard from any of them yet during this time. No calls no text messages. Should I take the money out and mail each one a check or just wait? It’s just me and him ( and the wildlife in my house 😳 ) and he hates me.…
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Knee surgery for PWD?
Both of my DH's knees are severely deteriorated and he qualifies for knee replacement surgery. He has MCI but most likely has progressed to stage 4. I'm terrified to have him go through the surgery because 1) I've read that general anesthesia can cause further cognitive decline, and 2) I'm not sure that he will have the…
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Yes, I'm still around
Most of you will not recognize my name because my wife passed 3 1/2 years ago, and I rarely get on here much anymore. I hope everyone could make the most of the situation for Christmas. There may be a ray of "hope for this dreaded disease. It's not here yet, but the news is encouraging.…
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Swallowing Toothpaste & Mouthwash
My wife has unfortunately reached another stage in this dreaded journey. Things she could do just 3 months ago now seem like a dream. Any ideas how I can stop her swallowing the toothpaste & mouthwash?
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Seems to be progressing quickly
Just two weeks ago, my DH was diagnosed w/amnestic MCI with concern for Alzheimer's. The neurology team ordered a "more thorough" MRI (than DH previously had), a PET scan, and the APOE blood test. Once those tests are complete, they will meet with us to discuss a plan. Today, DH asked me how my mother was doing. My mother…
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How long did your loved ones stay in stage 5, 6, and 7?
I’ve read Tam Cummings staging and estimated duration of each. I’m curious as to everyone’s experience here on the time your LO’s spent in each of these stages? My DH went through 3 and 4 fast (just over a year) and is a solid 5 now with a couple of cognitive areas in 6. Do most make it to 7? I can handle a lot but am…
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Is your PWD aware they are incontinent
I know that incontinence is something that eventually occurs with dementia. I fear it is beginning for my husband. He has experienced small amounts of leakage for about a year, but it has been something small that he seemed to notice and take care of. He is on 2 different meds for an enlarged prostate. I thought that was…
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I’m puzzled
My love is alzheimer type. In 2021 I went to see his cousin and sister to visit and kind of tell them you have a few years left to get in touch with him. Cousin never called again even for his birthday and his sister once or twice a year. A day late for his birthday. I wished they would have called him once a month. 2…