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Questions
I don't even know where to start. How this awful disease progresses? What to expect in each stage. Where to get information.My DH sometimes seems perfectly okay, an hour later he ask the same questions over and over. I am very patient, it is so hard to see him go through this, he was always kind, loving, helpful, now I see…
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Son in denial
My wife's son knows his mother has dementia. I tried to talk to him about what happens if I, the sole caregiver, cannot provide for her. He says not to worry, she'll go first. He doesn't understand that it is just me passing away that could cause her to need a new caregiver. I could become incapacitated and not be able to…
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Leaning how to adapt.
Hi, My wife has been diagnosed with dementia for over five years. I been taking care of her the whole time. Now things seem to get worse and I’m not sure when I should contact professional help. She was enrolled in the memory center for seven years. Just reaching out for the first time to learn what’s next for me to do.…
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Want to bring him home not nursing home
Husband probably need physical therapy to get his legs stronger after being hospitalized for falls and the rage of a dementia episode. and bed bound for a week so far. I am not sure of his cognition or aggression since he has been sedated to keep him calm and stay in bed for fear of falling. How can I request the hospital…
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New way of life
Hi I am new to the group and had many questions and the alz community has been most helpful. The person I'm caring for has always been a very quiet reserved man now all of a sudden he's become so talkative he mumbles and talks all day I'm just wondering if anybody else goes through this? Thank you all for being there and…
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Starting with hospice
at the primary care doctor he suggested it might time to involve palliative care and/or hospice. DH is still ambulatory but needs 100% help and care. Doctor said he would qualify because of weight loss and skin breakdown ( he has pressure sores on his rear). I’m wondering how early others have involved, and what your…
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Overwhelmed at times
I am caring for my wife of 46 years. Her moderate Alzheimer's is progressing every month. Her 2 medications may be working, bit I can't really tell. My emotional and physical albitites are taxed at times. I can continue this hectic pace but feel the need to reach out for help. Any suggestions? My cousin did offer respite…
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Dealing with DH depression.
My DH seems to do well until about 3 p.m. or so when he gets very depressed and confused. Sometimes he gets restless but it is the depression that worries me the most. I can't get him to do any of the things that he used to enjoy doing.
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He Cried
My DH took me by surprise today. He cried one time in our marriage and thst was just for a second. He came in the bathroom and just burst into tears….. over the school shooting today in MN. Lips quivering and sobs. Never saw anything like this from him. Just shocked me. Another part of this dreaded disease, I guess.
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New here
Hi all, I'm new here. I'm my husbands part time care giver. He is moving in to what I think is late stage alzheimers. I have a caregiver here with him while I'm at work. He has trouble speaking, finishing a thought, dressing himself, he can eat alone, but can't make his own food. He can't be left alone anymore. His…
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Treating NPH
Has anyone on this forum actually know, personally, if any one had a lumbar puncture to help diagnose NPH, and if so did it relieve some symptoms, such as cognitive and walking? And how did the person feel after the lumbar puncture? I've been reading that is a relatively rare condition
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Hair cut and shave while in hospital
If my spouse is in a facility or hospital how can he get a haircut or shave or nails cut if he cannot go out or it is not safe to take him, or should I just risk it and take him to get this done Also he needs a shower He can bathe himself but has trouble with turning it on and off (I have to do this for him and then the…
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Ugly Stepchildren Dilemma
I know some of you have written regarding problems with stepchildren, and I am hoping for some advice. My DH is in memory care in early Stage 6, and neither of his children think he should be. His son is the worst and blames all of his dad's problems on improper medication. His daughter realizes that dad is ill, but thinks…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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Dreams
DH with ALZ has started dreaming. In the past he has said that he was unaware of any dreams. Now, they are vivid enough for him to remember. Additionaly, he is tearing up his bed in his sleep to the point where all bedding is on the floor. I did not aske him about his dreams whichh I see now that I probably need to do. He…
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New here
Good afternoon, informative sight. Thx
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Just went to the hospital HELP
This morning when he got up he couldn't walk very well and could not stand up I called 911 to assist and they suggested to take him in for tests So here I am all tests including,CT came back normal so they will admit him sometime today or tomorrow And maybe do a lumbar puncture for further analysis per his doctor He is…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Still Need more HELP husband in the hospital
I have read the comments to my previous posts and just need reassurance that I did the right thing in letting the paramedics take him in for further evaluation. I am desperate
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MC in Minnesota
Is anyone familiar with any of the Suite Living MC facilities in the Twin Cities?
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Grief
·onpstordSei2 f40m :M5 mtfA29m1s01mg3m5m77ittg3actA9u0i5u3at · Jim Carrey once said: Grief is not just an emotion—it’s an unraveling, a space where something once lived but is now gone. It carves through you, leaving a hollow ache where love once resided. In the beginning, it feels unbearable, like a wound that will never…
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A Chuckle
I just ordered a mattress protector for any "spills". It asked me if I wanted to send a gift message.
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So I was planning to do something productive today for once…
My plans for a productive day came to an end mid morning when hospice called. The hospice nurse regularly calls to update me on his visit. Today he told me first that my DW was being recertified, and assured me that there was no chance she will ever not be recertified based on her condition. While doing so he told me that…
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TONIGHT TUES 8-26-25 ON ABC "Emma & Bruce Willis: The Unexpected journey"
Tonight is the airing of the ABC News special, "Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special," which airs at 8:00 p.m. EDT on ABC and streams the next day on Disney+ and Hulu. The special features Emma Heming Willis discussing their family's new reality since Bruce Willis's diagnosis with…
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Tips to stop dementia refusals try these 3 tips
Hope you can view this video. 3 phrases to say to stop refusals. Haven’t tried these. https://www.facebook.com/share/r/1G9AEJzEJN/?mibextid=wwXIfr
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Alzheimer's help line
Please tell me how to contact the alz hot line I realize I need help, sooner than later. Thanks Do I have to talk to them on the phone can I just text bi don't want him to hear me and I live in a one room apt
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DH groped a female resident at his MC
Dear Forum Friends, first, thank you all for your support and understanding on my previous post. It helps so much to know you are all here and we are all here for each other. The social worker from DH MC called yesterday to tell me DH had been found in a female residents room during the night. He had his hand down the…
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Jeez
Of all the two clear sentences my DW could get out clean. Yesterday she said, "I can't talk. It makes me want to walk into the road in front of cars." Damn. What a gut punch.
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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We're all figuring it out as we go....
I saw this on Facebook and thought it applied to us. Thinking of you all and praying for you and your loved ones. Diane.