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What's the one thing that gets to you the most
Just curious. What is the single most difficult aspect of your LO's behavior that gets to you the most. For me, it is the constant vocalization of my DW. I know that many say that silence is even more difficult but that is hard for me to imagine. From the minute she wakes up until she goes to sleep 12 to 14 hours later she…
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Learned Something New About Alzheimer’s
My DH (57) was diagnosed exactly 2 years ago with EOAD. Progression has been slowed a bit by Leqembi but he had to stop due to ARIA. Now I’m seeing more signs of progression. One are I see it in most is his loss of words. He struggles more an more just to get out a few sentences. But a few nights ago he had a dream where…
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Painting pictures for our loved ones…
Cristian’s St. Peter’s’ song speaks to me of the Alzheimer’s Journey. My Michael sits by my side a little while longer while I “paint pictures” of our years together. I found it moving and wanted to share it with you, my community of beautiful carers who also paint pictures for your loved ones to briefly touch and know. Be…
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He’s been gone for 2 weeks now…
My DH passed on Jan 3. He was late Stage 6 and it was sudden - likely his heart. So he found his “exit ramp” before moving to Stage 7. I wanted to share my observations and some things I’ve learned. 1st: Focus on the little joys each day and what you’re grateful for, even in Stage 8. During this journey, I try to journal…
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Feeling misty eyed after visiting DH yesterday
Yesterday, I made the short drive to my DH's MC like I always do on Sunday's. As usual, he was glad to see me and we had a nice visit. By a nice visit I mean I tried to show him a picture album from a trip he took to Africa in 2005 while he pointed to the animals and tried to cound them. He has no memory of his "trip of a…
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Losing my Temper With my DW
I feel so sorry for losing my temper with my DW. She just pushes the same issues over and over again to solve issues that I have no control over such as her delusions and hallucinations she continues to have. She demands that I stop imaginary people from our home who are stealing and trying to hurt and kill her. She has…
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Aphasia
I realised this morning at 6 o’clock when we were having an early cup of tea on the front deck as usual that I can no longer have any conversation with my DH virtually no sensible words and only jibberish sentences making no sense. I try as always to piece together the words that he is trying to say and it has become…
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Does It Start Over, And Over, And ....
It has been five months as of January 16 since my dear wife went to sleep for the last time holding my hands. The journey since has been difficult, painful, sleepless, guilt ridden, an abundance of tears at unexpected moments, lonely, oh so lonely and as the previous month began to wane, I found a day here or there when I…
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Tired
Sometimes life is just tiresome and I just need to vent. This is the scene; the weather here is hot 35c humid rainy and wet. I used to love this time of year swimming in the pool, sweaty bbq’s outside under a balmy night sky, walks along the beach (no swimming due to stingers and the occasional crocodile spotting) but now…
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Toileting
I am now having to assist my DH in all aspects of using the toilet. I know it is only a matter of time before he will need pads or Depends. My question is whether anyone has considered trimming or shaving around the genitals and anus? I feel as though it would make things easier in the cleanup process. I'm pretty sure my…
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FOR WANDERINGS
https://metalert.shop/products/gps-smartsole?srsltid=AfmBOoomVnrnFFaEk2afyLWGX0KANm7d69tqaHr4VOuuY_eKTiLiY1o0&selling_plan=3595567348&variant=42783777587444 This is one…google for others
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For the eagle-watchers
Jackie and Shadow seem to be preparing a new nest. Here is the site of the live Webcam. Some members like to observe for a break in their routine. Livestream - Friends of Big Bear Valley https://share.google/Y8pyvVpGQPuUXhFar Here is an article about the pair. 2026 nesting season underway for Big Bear’s famed bald eagles –…
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Notice to police or first responders
Does anyone know if there is a program or something to alert first responders that the person at home has dementia? This afternoon my husband flagged down the police for no reason. I was on my way home from work and his aide had already left. Apparently they were in the neighborhood and he went out our front door and…
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Incontinence pants
just saw an ad on line for Dryment incontinence pants. Anyone know about these, are they all they say they are ? Thanks for your input!
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Physical Aggression
What if he does hit me? Do I call 911? Do I call my son? Do I leave the house? Do I lock myself in the bathroom? What do I do?
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Can’t communicate
My wife is in later stages Alzheimer’s and can’t communicate properly anymore. She speaks to me and I can’t understand what she wants. Likewise she struggles to make sense of anything I say. How do you cope with this? It’s exhausting.
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Just Curious
Don't know what stage my DH is but quite frequently he will look at me and ask where his uncle is or if he went home or if he went to bed already. His uncle died long before I met my DH and we have been married almost 40 years. I know who he's talking about. I usually just answer him that I'm not sure or yes he's already…
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Geographic infusion discussions
My husband had been diagnosed with Mild Cognitive Impairment and we are being advised to begin infusion treatment. The challenge is that we are snowbirds living half a year in Florida and the other half up north. Has anyone had experience navigating this type of situation where the 18 month treatment is coordinated between…
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Continued follow up after diagnosis
DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have you all done?
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What do you do for self-care?
My DH received his alz diagnosis 5 mo ago. He is no longer driving but manages most of his ADL’s & putters around our small farm. Most of my caregiving at this point is around appointments, finances, cooking, groceries, mostly typical household things. I can be away from home altho I try to spend as much time here as…
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What You Took From Me
Dear Friends, I wrote this on July 9, 2025: There is a beautiful woman here making dinner for us. She asked me how my day went today. The kitchen smells so good with dinner on the stove. She put her arm around me and gave me a kiss. It is so nice to have a wonderful wife who really loves me and is here to support me…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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I'm new here. My 66 year old wife has Alzheimer's. It's rough!
My wife was recently diagnosed with Alzheimer's but it seems fairly advanced. She was prescribed Rexulti to curb her agitation and sundowning that seems to help but she still falls back into "Who are you. I'm not married to you. Why are you here." What a awful disease this is! It's really tough being a caregiver for my…
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How To Prepare for the End
Hospice ordered a hospital bed and a wheelchair for my DW today. Her progression has been so rapid all through her disease, that I imagine she will be bed bound by the end of January. Who knows if she'll plateau or keep her breakneck pace. It has gotten me thinking more concretely about her end of life and how I might be…
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memory care and travels for me
I still have my husband at home after an abortive 2 weeks placement when I brought him home because we were both so sad. I still plan to place him since at some point he will be chair bound (really bad knees, bad balance, and firmly in stage 6). One reason for doing so is not being trapped in my house, especially in a hot…
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Cognitive test.
My wife is at Fast stage 6D/E. I just received a letter from her doctors saying she lacks the ability to make her own decision. This is hard to take in and process. it's final she will never be coming home again. I've mentally known it, but until you get the formal letter it didn't really feel real. At this point it's just…
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Dealing with verbal abuse?
I’m caring for my 85 yo husband. As far as I can determine he is moderately affected: able to do adls, able to walk slowly due to chf. Short term memory gone—less than 10 minutes. Orientation limited. Does walk alone around the block. However, his personality has changed. He has always been explosive when angry but…
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My Attitude is Getting Worse
My wife and I will have been married 62 years in March. Throughout our marriage, we've had our up's and down's - so much so that we're now to the point of having lost the spark that generated the fire so many years ago. Her mother had Alzheimer's and the fear of the disease has prompted my wife to ask me several times if…
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Home Dementia Specialist for Mind-Stimulating Work
Hello. I am finding more and more that my DH can not entertain/challenge himself when I'm not there to schedule things for him. Has anyone ever hired a specialist to come to the house to do work that stimulates the mind? Kind of like a tutor? My DH is in the early stages of Alzheimer's and I don't want to ask him to go to…