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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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THC for caregiver
So this may not be for everyone. But I became so desperate for some relief I figured, why not. It had been over 40 years since I had my last puff so I went to one of these smoke shops and got some gummies. I go lightly, just using a half of one. My wife of 40 years is in her later stages and we go through all the stuff you…
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Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.
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risperidone vs seroquel
I've recently only learned about seroquel by being on this site. My DW has been on risperidone for a very long time. One of the side effects is akathisia, or restlessness. Over the last several months she literally is spending 90% of the day on her feet pacing. She can't sit for more than a few seconds and she's up again.…
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Wanting to go home
Does it ever end, talking about going home? DH says "I need to head to the house" or "I need to go home." Please tell me it will stop. It's driving me crazy.
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Do You Ever?
Do you ever get so confused listening to your PWD that you wonder if you are the one impaired? There are times my DH’s view of reality is so different from mine that it makes me question who is grounded in accurate memory of the event. It is hard to describe but his verbal skills are excellent and in tact. He made his…
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Area Agency on Aging assessment
Has anyone gone through a screening assessment with the Area Agency on Aging for Medicaid waiver in Florida? From what I understand, based on your answers you get assigned a priority for the waitlist for the waiver. If anyone has experience with this, I’d appreciate any advice or tips.
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Seroquel vs Mirtazapine
I've been reading a lot on this forum about Seroquel. DH is on Mirtazapine, and I've wondered if Seroquel would be better. Has anyone here switched from Mirtazapine to Seroquel? When I asked our PCP about it, she said she could research it, but she also suggested that I ask the wonderful people here if they've had any…
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Seroquel
The neurologist just prescribed seroquel. Any comments
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Project Lifesaver- free gps tracking watch
https://projectlifesaver.org/ Project Lifesavers is part of local sheriff’s offices. They give out free gps tacking watches to Alzheimer’s and dementia patients. They will take information on your loved one in the event he or she is lost.
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Facebook Alzheimer/Dementia Group
I am curious if members here are aware of the Facebook group titled "Alzheimer's/Dementia Help & Support Group". A I have noted in other posts, I only learned about this forum later in my wife's condition but found it, and continue to do so, extremely helpful. Not being active at all on social media until very recently and…
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Frustrated and overwhelmed
This is my first post. I am not tech savvy. I am so frustrated and overwhelmed with my husband. I try to be patient but I find myself getting mad at him and it isn’t fair.my heart knows this but in the moment I lash out. I am in NH and can’t seem to find a local support group that I can attend in person. I do think if I…
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Hearing, Yes or No?
It is too late for my dear wife as she left us a few weeks ago. As I often sit and think back over our path down the difficult road of AD, things pop into my head that I wish I had known or at least considered at the start. One of those topics is the subject of how much the suffering person can hear and also understand,…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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attend a wedding?
Looking for your thoughts. My DW of 40 years is well into her late stages. Right now her stage consists of constant jabbering and pacing. It's even gotten to the point where she does it when we go to a restaurant or other places. Her niece is getting married in a couple weeks and of course we have invitations. I already…
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Feeling useless.
My Dh has ad and vd. Here lately he has been so moody. He'll say he's bored and when I ask were he would like to go or what he would like to do,his answer is "I don't know what it would be. " if I make something to eat healthy hardly eats. Today I ask him if he wanted to go out for lunch,he said he wasn't hungry. An hour…
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Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
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Anyone RV Camping?
Here’s the thing. Right now DH with ALZ has short term memory loss and needs detailed instructions to do tasks. But he actually is functioning pretty well. We love camping and I have been trying to decide if we should just go for it and see how it goes. We desperately need to put fun into our lives while we still can. I…
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Stage 4
I have posted before and your responses are appreciated. We are 83 and 84 and my wife has ALZ. We are about 6 years down this road and my best guess is that she is in Stage 4. She is a wonderful person and doesn't realize she is sick. She is happy. However, she is totally dependent on me. I make all decisions, plan…
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pre loss grief
Interesting Article Understanding family members’ grief for a living loved one Study looks at factors that influence pre-loss grief May 10th, 2021 The symptoms of grief people feel for a loved one facing a life-limiting illness fluctuate over time, a new study found – suggesting that individuals can adjust to their…
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Should I or not
My DW is in stage 5/6 of her journey. Her mother has been put into a hospice house for end of life comfort care. She is close to her mother and still recognizes her mother but probably has no idea what is happening to her. I’m torn between taking her to see her mother or not. If I do take her, how will this affect her…
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Our experience with MC respite
Sept 1, I took my DH /alz stage 6 to a memory care facility for a 30 day respite . I wanted to rest and declutter . I told him the doctor wanted to monitor his medications and he said OK. The only opening was a shared room with a gentlemen with a lot of personal belongings . My DH insisted those items were his and…
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Visual issues related to Alz
Hi - my wife has some issues seeing, but it's not necessarily related to her vision. Sounds strange, I know, but it's like a connection/comprehension of what's in front of her. Is this common?
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A Smack of Reality
I have been struggling so much with getting my thin skin hit by complaints from my DW in Stage 6. I realize that so much of it comes from me still carrying denial that this is really happening. Imagine that. Denial still after nearly 7 years when she's also clearly now in Stage 6. The smack of that reality really hit me…
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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Sleep
Briefly, my DW was diagnosed in 2019 and is well on her way into the journey. Non verbal (except jabbering all day long, assistance with everything, etc.). So we entered a new phase a few months ago of my DW not sleeping through the night. She has been on lexapro almost from the beginning and risperidone shortly…
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Bidet Toilet Seat
Has anyone tried a bidet toilet seat with their PWD? I have been thinking of getting a non-electric one (HWD can't use remotes or anything other than an on/off button). I was going to get one for my bathroom and then, if he can figure out how to use it, eventually install one in his. He is still continent, but that could…
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memory care bail out
Well I thought I had done it. I placed my DH, probably early stage 6, in a local memory care facility. I had looked at every likely place and decided this one was the best. No health department citations, many many positive reviews. Chickens and bunnies. I had visited 4 times. It has lots of activities, though I knew he…