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A little pick-me-up
Sometimes the smallest kindest can make you feel so blessed. An old friend from our ski club who found out my circumstances sent me a gift box with this beautiful mug. I loved the message on it and wanted to pass it on to all of you awesome caregivers. We didn’t choose this life but we’re making the best of it out of love…
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Dementia study done by the UK
Interesting.
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End stage
My father insists on taking care of my mom till the very end. He is struggling medically as well and they need lots of support. They are currently in assisted-living however I’m wondering at one point do I insist on memory care?
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Gentleness and Continuation
I guess after reading about so many other situations I have it very easy. My DH is not aggressive, he’s very sweet and kind the sort of person that everyone loves. He gave up driving relatively easily and is quite good as a passenger, he accommodates most of my wishes if I manipulate the circumstances to suit. We go to the…
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Wedding Ring
My DH lost his wedding a while back but keeps thinking he just lost it. He just told me he lost his wedding ring and said “ I know I had it yesterday” but he didn’t. I’m concerned now cause of the distress this is causing him. I’m acting nonchalant but he’s clearly worried. Should I go buy a new one and pretend I found it?…
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worried about my own memory
My husband was diagnosed with early stage Alzheimers and lately I am wondering if I have alzheimers. I do not know if it is from the stress. He is very negative and constantly talking about what is wrong with him. I try to be patient but it is sometimes difficult with his pessimistic attitude. I am not sure if anyone else…
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"Exhaustion" by Michael J Whelan
I follow Michael on X (Twitter). His is a stage 4 cancer survivor & his wife Rebecca has Parkinson's & now Parkinson's Dementia. He has such a way with words. He expresses what many of us feel. He posted this today: "A Letter to Exhaustion.by Michael Whelan Chapter 21. An except from my memoir. Dear Exhaustion, You didn’t…
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Elizabeth Dole Foundation assistance for caregivers of veterans
if you are the caregiver of a veteran, contact the Elizabeth Dole Foundation for assistance. Veterans do not have to have a disability rating to qualify for assistance. Go on their website and fill out the intake form. I posted further information on the caregiver information page with their phone number and assistance…
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Kisunla
Good morning to all. I hope you’re finding peace somewhere along this journey that we’re all on together. I don’t post very often, but a friend sent me an article about a new monthly infusion called Kisunla. I’m wondering if anybody out there is aware of this or has had any experience with it. This is advertised as yet…
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Qualities I Need to Work On
Yesterday, DH wanted to go to the grocery store with me. I should have been pleased about this since he hasn’t had any appetite or energy lately. As he slowly pushed the grocery cart around using it as a walker, I gathered some items we needed; and he filled the cart with items that we don’t need, or he should not be…
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It Is Over
Three weeks ago my dear wife of 57+ years ended her battle with this cruel and heartless disease, Alzheimer/Dementia. She declined very fast over the few weeks prior. I promised her at the start that I would do my best to never put her somewhere for her care but, rather, have her at home forever. While it does nothing to…
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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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When did you insist they stop driving?
DH is in the early stages - mostly stage 3 with some stage 4. I do 90% of the driving, but on the occasions that he does drive, I haven't noticed any difficulties. However, I am noticing more instances of general confusion in following conversations, understanding instructions, maintaining a calendar, etc. He is awful with…
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DW’s anger
I have noticed that my DW easily angers and directs it at me, but will turn around and be polite to others. Has anyone experienced this?
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Morning thoughts
This morning…The Puzzle I emptied the new puzzle package onto the table I use for my newest obsession, assembling puzzles. I usually work on 1,000-piece puzzles but this one seemed to have 10,000 pieces. It seemed impossible at first, but I resisted the notion of discarding it. I figured there must be a solution. I was…
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Looking into Memory Care and Very Sad
My DH is currently in the hospital after he got out of the car when I was at a stop sign, refused to get back in, and crossed a busy 4 lane street during rush hour. Cars had to stop and change lanes to avoid hitting him. I called 911 while he crossed back over again and still kept walking and wouldn't get in the car.…
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New here... starting to feel lost...
Hello, all my new friends :) … My husband was officially diagnosed almost two years ago, but it's been apparent to those close to him for quite a few years that there were some issues with his memory. He's 75 and I'm 62 and still working full time a job that I LOVE and the insurance at this point is invaluable since he…
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Not Agitation or Aggression, But...
Hi all. Hope folks are having a good as you can get weekend. I feel like, in many ways, I'm one of the luckier ones. My wife has largely been compliant. She gave up driving easily. She doesn't really have it in her to be super aggressive. She has pretty much lost her speech, though, but still has a huge desire to talk. In…
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Colonoscopy?
My DH is in the early to middle stage of Alzheimer’s. He has been getting colonoscopies every 5 yrs because of ongoing problems with polyps. Now he is past the 5 yr mark and his DR does not want him to get anymore. I’m not sure I agree bc he is in excellent physical health and could live for many years. If he develops a…
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DH in MC 3 days now...
DH is 73 in stage 5 teetering into to 6. He was scheduled to move into a different MC 8/21 but that fell apart and he moved into what I think is a good facility this week. He is confused and wants to leave. Not aggressive, but concerned about where his sister and I am. Today he wanted to leave with me and wanted me to…
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A question about swallowing difficulty
My DH is in about mid-stage 6 of mixed dementia. He is having trouble swallowing, and the difficulty keeps increasing. His diet is soft food cut up very small. He needs to be coached to swallow pretty much every bite, and sometimes has to try two or three times to get the food down. He is hand fed small bites with frequent…
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Family members
Hi, My DH was diagnosed with MCI about 7 years ago. His progression of Alzheimer’s has been slow but has now reached the point where he can’t do much at home other than bath and dress himself. He does walk the dog which helps tremendously. He seems to think he’s perfectly normal. He can’t remember anything much and seems…
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Door locks helped today!
I had to install some door locks high on the exit doors after DH had an overnight elopement. I usually lock them when we go to bed and unlock them when I get up. He gets up a couple times a night and walks around the house for an hour or more and I can hear him try to open the door, so it gives me peace of mind. But I…
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Home health care
I am 70, in reasonably good health, with some managed issues. DW is 67 in moderate stages. She has frequent urinary incontinence and needs assistance with dressing and bathing. I cook breakfast every day. We have an adult daughter nearby who really helps out a lot, frequently bringing meal preps and assisting 2-3 days per…
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our posts are indexed globally
This is a meta-post about the things we post on this discussion group. I try to pay a lot of attention to my privacy online, and I've felt comfortable posting here because I believed it to be closed and safe. Then it occurred to me that web crawlers and indexers can probably gobble up posts here, because the posts are…
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Moving to a new home
Good morning, my hubby was recently diagnosed with Moderate stage Alzheimer's. We had planned to downsize our home next spring. Now that we know his diagnosis, what has been your experience in moving at this stage? I am worried he won't think our new home is home and he will always be looking to go home. Is it best to just…
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How Do I delete this from incorrect forum?
My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid. Should I put the house in my name?
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Awareness of dementia
My husband was diagnosed with MCI about 7 years ago. At that time he told me I was going to have to start taking over some things such as bill paying, but he didn’t seem to be well educated about what the end result of his diagnosis is. I didn’t push for him to read up on it because I didn’t want him to get depressed. Now…
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Be Light Care Consulting Caregiver videos…
I found this online and she has some really good videos with tips for dementia caregivers. https://www.facebook.com/share/r/19oR51H8qu/?mibextid=wwXIfr