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Sydney to Hobart Yacht Race
Sailing was what we did, always together, we started sailing joined our 1st Yacht Club in 1971. This is what I wrote on Boxing Day with a very sad heart. The Sydney Hobart Yacht Race All morning he’s said to me. What time is it on, I don’t want to miss it, I must put it on The cricket was going, the time ticked around,…
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speech therapy?
Hi, All, We have a speech therapy order from my partner's neurologist. They provided it at my request even though they were not very positive about yet I have read that it can be helpful for people with Alzheimers who are having difficulty speaking. Has anyone had any experience with this and could share? I would…
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Nonstop for my dad. Need suggestions.
My mother has had dementia for 2 years. My father is taking care of her in our own home. Recently, she has been nonstop needing something after helping her just 5 minutes ago. If no one answers right away, she'll throw her cup on the floor, then she will knock her tray down. She also intentionally tries to roll of the…
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Difficult for him but a bit of "light" for me - SSDI approved
My husband had two appts for SSDI a couple of weeks ago. He hasn't worked for two years, and financially I am struggling. On a side note, I didn't know initially that I could apply for my 15 yr old son as well. I guess I should do that now. I was worried about those two appts because his neurologist has never said "I think…
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New to group, in process of getting diagnosis
This is my first post. DH had neuropsych testing done today and now more aware of his memory loss than before. He has been depressed and PCP treating that. Going to first neurologist appointment in 3 weeks. Tonight he gave his drug addicted daughter his credit card number so she could get an uber. This is uncharacteristic…
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What Do I Need to Learn?
Hello all, Thank you for your collective wisdom. I've been reading posts and learning. My DH was diagnosed with ALZ a month ago. We're early in the process with MCI right now. He works, drives, cooks, etc. (but is slowing down cognitively and short term memory is poor). I'm taking some time off of work to get some things…
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Declining leg strength and postural instability
My husband has VD and osteoperosis, both progressing. His has a shuffling gait, forward lean, and its difficult for him to walk or stand. He uses a walker when we leave the house but refuses to use one in our home. His osteoperosis causes back pain and standing for more than a few minutes is impossible. Has anyone on this…
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Inhibition
I am sure this has been talked about many times and maybe even by me. Does Alzheimers lower inhibitions so they speak more openly about what they do remember about the past, not counting delusions and hallucinations. When they say something are they less guarded, so their true feeling come out. I know they can be afraid of…
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6 month wait for a neurologist?
My DH clearly suffers from dementia. Can't do any of the things asked by his doctor's nurse (Draw a clock, remember 5 things, draw a square inside a circle...), sundowning daily. Yesterday he was frantic because he thought an airplane had flown into our building above us and the bldg was going to collapse. He wanted to use…
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Tired and Sad Need to Talk
Things seem to be getting worse although it’s hard to tell. Sometimes my DH is relatively responsive but everything seems to be getting harder and slower. He is having an ECG next week an irregular heart beat, he has swollen ankles and sleeps a lot during the day and most of the night until 4.30am anyway. Has trouble…
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Care Giving Conundrum
Been away for a while. Doing my best to keep up. Last week things changed from somewhere in Moderate to Advanced. Still waiting for the new instructions. [:o). Things are changing. Still greeted most morning with "how do I get out of here!". Needs to go home are still based on some kind of family emergency and difficult to…
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It was a long and scary week
Last Thursday, January 9th, MC called and said my DH was very ill and an x-ray showed he had bronchitis and pneumonia and needed immediate medical attention. They sent him by ambulance to the ER. We were digging out from a blizzard that had dumped over a foot of snow on our area and I was still not able to get out. A…
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Oh no. New low
My DH as certainly been declining lately. Just now he asked me where our kids are. He says they aren’t here. Of course they are not. They are 47, 44, and 43 and all have their own homes. It reminds me of his mother who had Alzheimer’s and who called 911 saying the kids were playing in the yard and were now missing. I think…
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New issue
My DH had a physical spell early this morning. He wanted up to go to bathroom about 5 a.m. this morning. I made sure he made it to the toilet and let him have some privacy. He was in there a little longer than usual, so asked if he needed some help. Found him weak and very pale and clammy. I helped get him back to bed and…
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When to move?
My husband was diagnosed with MCI a year ago and is declining. We had planned to downsize, but now I'm wondering if that would be too disorienting for him. He already carries a lot of anxiety before this diagnosis, and I worry that a move will accelerate his condition. On the other hand, it really is time to get out of…
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obsessions
New to this support area. My DW seems to be declining slowly but in bursts. Latest is waking at 2-4 AM very agitated, obsessing about eggs and chicken, angry, saying she is leaving, spitting and hitting if I try to calm her. Some nights doesn't happen? Can occur during day too--no idea where this came from. No matter how…
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Paperwork
I finally got the paperwork done for durable POA and Guardianship over my 45yo EOA boyfriend. I have been taking care of him for the last year and a half so why not. His one side of the family you know the ones who say "if you need anything I'll be there for you or let me know" yeah they are gonna be upset. I had my…
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Lequimbe
Hello. I'm new to the group and I'm hoping for advice and information as I navigate this new life with my LO. A year ago at 59, he was diagnosed with MCI. This has been going on for four years now, and in the last six months it seems to be progressing quickly. The dr wants to start him on Lequinbe but he hasn't had a…
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ALZ and type 1 diabetes
my DH is both. Memory worsening and has shut off his insulin pump several times and forgot. I'm afraid he needs help managing diabetes. He is also becoming difficult to live with because of anger and just forgetting what we are discussing during a conversation. He refuses assisted living. They say I can't force him. I am…
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Safeguard your sanctuary
Because he snores, jerks, and rolls over on to me, I sleep in a windowless room in the basement. In trying to engage my husband in a task I asked him to help me clean the light fixtures in the basement (holding the screws, wiping the inside of the fixtures, etc.) Now he states that he never knew about this room and insists…
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Aphasia
My poor DW. Her aphasia is now to the point where she really, really struggles to get a full sentence out. Many of her "sentences" are just a mix of random words, but she really thinks she's telling me things. Her frustration is growing and now she thinks I'm not understanding on purpose or not listening to her. I had done…
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visiting assisted living facilities
Hopefully DH will be able to stay home through most of this journey, he is fully stage 5 and moving towards stage 6. I visited one memory care and want to see a few more, for "just in case." The first one, I made an appointment, DH is not aware of this and I don't plan to take him to any. But I'm wondering how a visit goes…
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Hypersexuality
Its been a long time since I've posted, but his hypersexuality is much worse. He is not angry, or mean, or delusional, just talks about sex non stop. The only thing that makes me feel better is that I have caregivers who aren't nt phased by it, having seen it a million times. It makes me feel like I'm in a more normal world
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California Fires
I pray to God that none of our dear Members are affected by these horrific fires. We have enough on our plates without having to contend with this. What a way to start 2025
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How to handle leaving DH at MC
My DH has severe Alzheimer's and LBD and I anticipate moving him to MC in the near future. My question is—specifically—what to say to him, how to handle the day of the move. A few day ago, I saw a discussion on this site where the author attached a written description of how he handled it but of course I can't find the…
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I’m impossible
This morning DH wanted to go back to bed after breakfast. I reminded him to brush his teeth first. He said he would do it when he got up. I said no, do it now or you will forget and I will too. He said you are impossible and I agreed with him. He said you are getting more impossible all the time and I agreed saying I…
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Guardianship case
I just want to ask if anyone had any experiences with winning a guardianship case. My DH with mild vascular dementia got served on Friday with a petition case of guardianship from daughter. I have durable POA for financial/property and POA for health care. Our court appearance is scheduled on February 4th. Any advice will…
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Female spouse w/young kids looking for mom in similar situation?
I'd love to find a caregiver like myself to exchange texts with, like our own mini support group. This is likely too specific, but ideally it would be a woman whose partner is in the early stages of Alzheimer's (like, very very early stages where most people can't tell) and whose kids are still living at home (our kids are…
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Excessive Talking/ Social Cues
I am still waiting for the doctors appt. to try and get a diagnosis. My question my DH is totally clueless when it comes to social cues. He doesn’t know when people are wanting to speak, or wanting him to stop speaking. Another behavior I notice is excessive talking. I mean excessive, he will call someone and talk…
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Feel like I’m becoming reclusive
Out of necessity, DH is stage 6. It’s just too hard to do things with him. He won’t tolerate caregivers so it’s mostly all on me except for family helping at times. Won’t go to day care. Just going to the grocery store alone is rare. Taking him out in public is hard because his speech is garbled and he tries to talk to…