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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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A new book for caregivers early into the journey
i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…
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communication
LEAP is a particular method of communication where listening and collaboration are prioritized that has been utilized both in mental health and non-mental health diplomatic discussions. The purpose of LEAP is not to establish facts or to talk someone out of what they believe. Rather, it is to listen at a deep level and to…
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Adult Daycare Adjustment
I’ve been reading the post for a while but, this is my first time posting myself. My DW of 48 years has been diagnosed with dementia for several years now. She is moderate level, probably stage 5 some 6 on the AD scale. I can no longer leave her alone and have been trying to get her to go to Adult Daycare for a few days a…
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Is behavior issues already starting
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My first post.
I hope I'm doing this correctly, I'm not very tech savvy. We live in Washington state. My DH was diagnosed with MCI a year ago. But before that, we went and did a research study on alzheimers. He tested positive for the p-tau protein but chose not to participate in the study. His mother died from alzheimers and we've…
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wanting to go home/validation
https://www.facebook.com/reel/1172167977204030
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3 weeks tomorrow since husband passed
The quiet , the lack of activity. I had no time to think before he passed away. Now my mind is flooded with thoughts. Taking care of an alzheimer spouse is so hard and the abrupt end is really something else to deal with. My life was consumed for 10 years. Once never thought what the end would actually be
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New member. Caring for DH
My DH is somewhere between early and middle stage. He was diagnosed in 2022, at age 71, 13 months after my mother died of Alzheimer’s (she stopped taking nourishment) at the age of 93. That was a nightmare because it was Covid with my mom and no paid caregivers were available when she started needing 24 h caregiving so it…
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Wishing you all a peaceful Easter
Our lives are not what we expected them to be but i wish you some peaceful moments today and the ability to find/make some positive memories with your LO's while they are still with us, regardless of how different they are now. Sending hugs and prayers of support to all of you.
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How to answer “I want to go home”
saw this and thought it was helpful: https://www.facebook.com/share/v/1E8hMkJNtW/?mibextid=wwXIfr
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Violent behavior
My wife, officially diagnosed with Alzheimer’s last July, is in outstanding physical condition for an 86-year-old. This is a doubled-edged sword, because she exhibits periods of violent behavior and because she’s a strong person, she’s difficult to contain. She’s can be downright dangerous. I am her sole caretaker and I…
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Struggling with a dilemma
My husband was diagnosed with MCI 7 yrs ago, has had 3 strokes, CV disease and many health conditions related to that. Dr switched him to palliative care 2 yrs ago. Cognitive testing revealed likely VD from strokes but cognitive decline has been slower than physical decline. The grandsons are growing up in NC without us…
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Was spitting food out, now vomiting
Is anyone dealing with their LO vomiting after eating? Just a short while ago he was spitting food out. Now he throws up after a few bites. He’s losing roughly 4 lbs per week and sleeping 18+ hrs per day. Is he nearing the end? I have a video dr appt tomorrow to get a referral to hospice. Any help or insight greatly…
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Long Term Care
On March 12 my DH was admitted to long term care and it was the hardest thing I've done. On the second day I was ready to bring him home. When I arrived at breakfast time, he was sitting with full glasses of juice and water, a cup of hot chocolate and a plate of food that he didn't know what to do with. I lost it. I called…
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When I look back at what I WAS worried about…
I feel foolish. Our problems are slowly getting manageable as far as reigning in my DHs spending and not being able to manage our finances. The real troubles are here now and I just can’t do it. I “feel” so sick. I have amended my statement “I am so sick!” After trying to get help with my lupus and other health issues. I…
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New to this disease
My husband was diagnosed with dementia about 6 months ago and I feel so lost. We've been married for 23 years, this is a second marriage for both of us. All of my family is halfway across the country, so I feel very much alone in this journey. He has one daughter who is very caring and concerned but she lives a ways from…
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I'm back in this group again
My dad lived with Alzheimer’s for years before he passed six years ago, and it was heartbreaking to watch. This community helped me through that time. I recently lost my mom as well—she didn’t have Alzheimer’s, but caregiving and life without my dad took a heavy toll on her in her final years. Now my best friend, in her…
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Actual caregiving tip...
My DH and i have entered a new stage and I need tips for two issues. He won't let me take off his t-shirt. Tried like always to take it off for the shower and he holds out his arms to stop me. Tried later to change it for a clean one and again, a no -go. Any ideas? He is willingly wearing Depends which is helpful since he…
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In person support for Alzheimers patient
Hi everyone, we have had a very difficult time even through the Alzheimer’s Association finding a support group that meets in person or online. We have been told that they are full and there is a waitlist, but have been n a waitlist for 6 months which is a long time with this disease and it’s very discouraging because I…
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Just sharing a touching moment of kindness
My husband’s bathroom only has a very deep large soaking tub that’s difficult for him to get in/out of. I had a contractor come by to give me an estimate for replacing the tub with a walk-in shower. My husband had taken my dog for a walk and came back with a “gift” for Melissa (contractor). He gave her a palm sized flat…
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My Beautiful Husband Passed
I began participating in this forum in May of 2025 after my DH received his Early Onset Alzheimer’s diagnosis. I learned everything from this online forum and the in-person Alzheimer’s Association monthly support group. In October of 2025, my DH had a severe Ulcerative Colitis (UC) flare. In hindsight, I didn’t realize…
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Two Months
Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite trip I arranged when I thought my DW might make it longer into 2026. She didn't, but I'm going anyway. Stage 8 is interesting so far. I spent the first month planning…
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How to get my DW to eat when she's hungry but won't.
I have noticed that my DW get's cranky when she's hungry. I ask her what she would like to eat and she says she doesn't want anything. I know she's hungry but refuses to eat. I ask her about all her favorite foods with no luck. It's just frustrating, because if she does actually eat something, she is in her happy place.
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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Delusions
My DW just tried calling her dead Father and when the recording said this number is no longer in service she began rapid firing the "why" questions to me. I couldn't think fast enough so I just said I had to go to the bathroom and will be right back. I needed a little time to get my thoughts together. After returning she…
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Friend recently diagnosed - I'm seeking tips for interacting
Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…
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Will not sit
My DH refuses to sit on command. This has become a major issue as he will not sit on the toilet and BMs are regularly on the floor. I have listened to Teepa Snow's videos about assisting to sit and nothing is working. I am at a loss as to how to get him to understand and follow the direction of "Sit". Of note, he is is…
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Elder Law
I know that my DW condition will get worse over time and I may not be able to care for her in our home. If anyone has reached this stage have you got an Elder Attorney involved and is this advisable…God knows I don't have all the answers.