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Another UTI
My husband has yet another UTI but we were able to keep him out of the hospital this time. He is non-symptomatic when he has one. He was hospitalized a few months ago for 3 days with a UTI, pneumonia and sepsis. He was so disoriented in the hospital, trying to leave, get out of bed, pulling out IV tubes, etc. He doesn't…
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Dentist appointment
Have an upcoming dental cleaning appt scheduled for this Tuesday and not looking forward to it. The last appt, 6 months ago, was uneventful. However, in the last 6 months, my DHs patience level has disappeared and his agitation levels have increased. I will be bringing his new sitter with us, but any insight as to managing…
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What next?
My wife is somewhere in stage 7 and still at home with me. I tried her in a memory care facility 6 months ago for a short time. She suffered a bad fall so I brought her home. Her condition continues to deteriorate. She is able to walk with me assisting, but she cannot get out of bed or a chair. She is barely staying awake…
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Drained
It has drained our pockets dry. Pray for us.
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Book: The 36 Hr Day
Greetings all. If you have read this book, what things seemed to stand out or "jump off the page" to you? I have been cherry picking my way through the book and know I have so much to learn. Thank you. Take care.
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Keeping a loved one at home vs nursing care
My husband has early onset Alzheimer's, do many people going thru this same thing, keep there loved ones at home vs nursing home??
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Just as my DH is forgetting who I am, I am also forgetting who he is.
It is so hard to remember the old DH - the one who made me laugh, who took care of my car, the finances, and the heavy-to-lift things. He is quiet now, very suspicious of my "boyfriends" who seem to be everywhere, and rarely smiles. He has to be fed and has a hard time swallowing, and most meals have at least one incident…
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What can I do?
My DH is somewhere around stage 6 and we’re dealing with a repetitive behavior which I can’t seem to break. He goes through hours long periods at different times of the day where he constantly gets up to pee. Usually he just goes through the motions and doesn’t go. This happens every 2 to 5 minutes. He’s has other…
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Just need to talk to my friends (211)
Carl. I remember George Gobel but hadn't thought of him.in years. My sister had a fig tree in her back yard and she really enjoyed them At the VA Hospital there was a big fig tree between two.of the.buildings across from the main hospital. We called them the quarters where Doctors used to live. Eventually the doctors moved…
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progression question
Hi all- I have a question for those of you that have spouses who have advanced from early/mid to mid/end stages and this may sound dumb. Can you share how that change happened? Currently, my DH is in early/mid where he is still driving and technically still working even though the walls are closing in and he will be let go…
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You Might Be A Caregiver If...
My morning got me thinking of that old comedian who used to do the, "You might be a redneck if…" If anyone listened to the things I say, agree with and do on a daily basis, they would surely think I had lost my mind. Most of the time, I don't even think about these responses anymore. The simple agreement with odd phrases,…
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Scared
My wife is 54 and was just diagnosed with early onset Alzheimer’s. I’m scared for her and myself. The changes I’ve seen in the past year now has a name. But that’s not much comfort. I think I’m still in denial. But I know I can’t stay in this place and I need this support. 👍
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How much is too much?
My DH is in early to mid step 5. I still work and he is at home by himself all day. I recently installed cameras so I could keep an eye on him. I’ve noticed he sleeps a lot. Today he told me he had slept most of the day and he doesn’t understand why. He’s wondering if there is something physically wrong with him. Should I…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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New member
I’ve been following this forum for some time now & finally figured out how to join. Having the real experts so handy with experience & suggestions is a Godsent help! My DW is 75 and been declining for about 5 years. Have to help her with about everything, but happy to do it after 51 years married. Biggest challenge us how…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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Driving Restored?
I'm very frustrated because the doctor told my DH (58) with EOAD that he should stop all driving until he could take a driving test to certify that he is still capable. We'd been going along our daily routine just fine with me driving him daily to the gym and grocery store (as he likes to get 1 item at a time). The day…
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Care home wants more meds because of aggression
My DH has late-stage early-onset Alzheimer’s with aphasia. For his safety and because I work full time, we had to move him to memory care 10 months ago. Before moving he would sometimes strike out at our home caregiver. In memory care he became aggressive when exit seeking and during grooming. We tried medication but ended…
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Memory Care Week 1
DH has been in memory care one week now. Biggest issue is his combativeness when being changed, which was a huge problem for me when he was home, as it is for many of you I’m sure. He’s also difficult to redirect when he’s doing something he shouldn’t, like taking a woman’s shoes from her room. Med adjustments are being…
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How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…
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Assessor tomorrow long term insurance
tomorrow Monday meeting with nurse from our long term insurance. Anyone have any experience with this? I have list of meds doctors his cognitive impairments his ADLs. If anyone has experienced this please share. Thx
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First visit memory care
our visit was terrible. Hubby has been in mc one week. He was crying he wants to go home. Can’t under why he can’t be home. I said all the right things but didn’t do any good. I told him I’d be back tomorrow. I’m hoping he will have forgotten I was there. They say this is normal. How long will it go on. Is he going to do…
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When I Become a Memory
My cousin wrote this in 2015. I just found it. When I become a memory… Think of me with a smile. Tears may fill your eyes, But only for a little while. Remember all the good things we did. Remember when I was at my best. Remember only the good times, And let go of all the rest. Remember when I was healthy And so full of…
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Exhausted and feeling Overwelmed
Just finished breakfast with my DW after a no sleep night filled with her nonstop talking , yelling at the imaginary people in our house, wandering, looking for "stolen" items and occasional outbursts of anger and aggression. My efforts to distract her constantly failed. She has calmed down now at approx 8 Am for our…
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Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Knee Replacement Day 6 - Questions
My DH is on Day 6 of recovery. He is in pain and I am worn out. After surgery in the hospital he started having bladder urgency to the point we couldn’t get the urinal in time. This has continued at home. We were up 7 times last night. He has been wearing pads, but overflows pad and links on underwear. It is time to get…
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…