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New to all of this and question about surgery
Hi, I am new to this. My 72 yo DH was diagnosed with mild Alzheimer’s, moderate vascular dementia and frontal lobe atrophy. It took 16 months to see a neurologist. In 2004, he had stage 4 lung cancer and 2005 they removed a brain tumor and he had whole brain radiation. He did fine until about 5 years ago and he began to…
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Need Advice How To Overcome Emotions Putting Your Spouse In MC Home
Unfortunately, time has come for me to make a decision on putting my lovely wife of 55 years into MC. I just don’t know how I am going to handle this. Just the thought of it makes me cry especially when I put her to bed or when I am alone. Just feel so guilty. I can’t imagine being alone at home without her…. breaks my…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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Guilt
DH has been having episodes of aggression. Not really physical more like everything just aggravates him or makes him mad. We went to see his Nero yesterday and I was telling her about it. She increased his seraquel to 50 mg 2x a day. I don't know if I want to do this. Im afraid it's for me because I'm tired of walking on…
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FYI
For those of you who have adult children who are struggling with their parents dementia. Great place also if you are a husband or partner to your LO who has EOAD.
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Elder Law
I know that my DW condition will get worse over time and I may not be able to care for her in our home. If anyone has reached this stage have you got an Elder Attorney involved and is this advisable…God knows I don't have all the answers.
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Did you keep your LO home too long? Then what?
Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…
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mild to moderate MCI
My DH was diagnosed last year with MCI. For a few months now I noticed changes. He has memory loss, blames anything or anyone for anything . His temper is off, discussions or conversations are impossible at times, becomes argumentative. I am so sad and fearful that I can not handle this. I cry at night .
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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The Stranger Living In My Husband’s Body
There is a man who now lives in my husband’s body that I do not know. He follows me around, repeatedly asks the same questions, is often unable to complete the simplest task even with detailed instructions, blames me when he realizes he forgets things or makes mistakes, loses things that are expensive to replace (like eye…
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Alzheimer’s
My beautiful sweet wife (70) has just be diagnosed with Alzheimer’s. My heart is breaking. I feel numb, lost, disoriented, scared, anxious…etc. My mind races to far ahead and I think of what will be rather then what is for today. It’s early, we just found out last week. it’s raw. Any words of wisdom and/or next steps I can…
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Help Getting the Word Out!
I know none of us wish any type of dementia on anyone but it helps when someone with a "bigger voice" is able to help get the word out! https://www.facebook.com/reel/1394793775239563/?mibextid=rS40aB7S9Ucbxw6v
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Retirement Community Question
My husband is in mid-dementia and is OK right now. My dilemma is wanting to move to a retirement community but if he gets worse, he will need his own housing and I can not afford paying for two communities. If he starts being aggressive or wandering he would have to leave and I don't know for how long he will still be OK.…
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When did it start?
My DH is currently in stage four, early stage five. He was officially diagnosed three years ago. I really began to suspect something was wrong when he began having trouble with electronics, something he used to excel at. Looking back, I realize his personality had begun to change long before that. What was your first clue…
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My saddest day
Yesterday my wife admitted that she can't read a clock any longer. We just buried her mom last week at 95 years old. She had dementia for at least 15 years. Probably much longer. She lived alone so who knows . My wife was diagnosed last October but has been having problems much longer. She retired in 2021 because she could…
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Husband's Reaction to Caregiver
Two weeks ago, we finally got a caregiver for 30 hours per week through Medicaid HCBS. The caregiver is very helpful, attentive and engages really well with my husband. I tried a few short trips of an hour or so, like grocery shopping, to see how he reacted to being alone with her. It went well, so when I had a dental…
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just an insurance company rant...
This year, my employer changed to the company providing prescription drug insurance coverage. Today I got a letter indicated DW extended release memantine 28mg is no longer a covered. We are instead expected to use the standard version of the pill. So instead of one extended release memantine pill per day we are expected…
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Am I expecting too much from family?
I’m pretty certain my DH aspirated some fluid night before last. I gave him some medication in the night 2 nights ago, and he immediately began with violent coughing episodes with very wet sounding coughs…which continued all night long. He said he was having trouble breathing and his oxygen level dropped to 86-88. The on…
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DH gets frustrated so easiy
It's really hard to see my DH struggle so with simple daily tasks. Today he struggled getting his seat belt buckled in the car, swearing and calling it a POS. He then complained about how uncomfortable seatbelts are for the rest of the drive. He cussed out the POS TV remote control when it was clearly operator error....He…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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The next milestone on this horrid journey
It was a hard afternoon. DH had his license medically suspended in 9/2025 and today we made the trek into the DMV office to surrender the suspended license for a photo ID. It doesn’t change anything really but I can’t help but think it was a hard thing for him to do. He was so quiet on the drive. The staffer was very kind…
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activities to pass time
I thought I'd mention an activity I used to give my DH to do. I found some colored wire connectors, marettes, keys in his garage organizer. I would set these out and give him a few plastic bowls to sort them into by color. He took it very seriously, struggling to match the colors. It also exhausted him and he would often…
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TV show??
Is there a TV show a person with dementia can follow? Do you have any suggestions? We used to watch TV together a lot, but there doesn't seem to be a show DH can follow anymore.
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Medicaid's Home and Community-Based Services (HCBS) waivers.
Does anyone have experiences with Medicaid's Home and Community-Based Services (HCBS) waivers for at-home care? My elder law attorney said I should call and apply for an in-home care Medicaid waiver. I did so yesterday. They will call me to set up an in-home evaluation of my DW. From what I can gather, if approved they…
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Special Supplemental Benefits for the Chronically Ill (SSBCI)
Is anyone familiar with SSBCI? One of the eligible conditions is Dementia. What are the benefits? And how long does it take to process? I would appreciate hearing from anyone who has gone through the process. Thank you in advance for your comments.
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Can neuropsych test results be wrong?
Here is some background and the reason he was tested: My DH has been complaining for several years about memory problems. At first I brushed it off, but in the past 2 yrs I see it for myself. Other things that concern me are his difficulties in dealing with his phone and computer. He was always way ahead of me with…
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Bathroom troubles
Forgive me if this has been asked before. My DH no longer knows what the toilet is or what he needs to do when in front of it. I have been assisting with a urinal for him to pee into. (Also, i have a raised commode on the toilet as he resists sitting and I'm struggling getting him too sit down for a BM.) I am at my wits…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…