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Dreading today
Hi All- New to this forum. Thanks everyone for being open and offered support. Makes you realize there are so many of us in the same boat. Caring for my homebound/immobile Mother for the past two years. Diagnosis of Dementia/AlzD/Lewy........even the experts can't figure this thing out. Mom took a turn Saturday morning and…
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When to move to long term care/Memory Care?
Hi everyone, I'm new here. My 72 YO mother has been diagnosed with MCI/probable early stage dementia. While she can still generally care for herself (she lives alone and cleans/grocery shops/cooks for herself, although I take care of all her finances, medical care needs and any and all tech/mechanical logistics). She's…
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Memory Care Resources
Hi, I’m new here and feeling overwhelmed with trying to narrow down the good memory care facilities. Are there any trusted resources to help me with this? I want to get a leg up on it, and I have seen people mentioning needing to get on a waiting list. My mom seems to be stage 5, and maybe heading into stage 6. Thank you…
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New to group - medications?
Hi, My mother has early onset Alzheimer’s and she is not on any medication. Should we be asking her doctor for medication to slow symptoms? We are going to buy a Vielight helmet for photobiomodulation therapy at home as well as I plan to take her to receive hyperbaric oxygen therapy weekly. She’s also taking mold binders…
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Tired of explaining
I'm really tired after my mom's first week in memory care. She is doing ok there but I had a lot of things to handle in addition to her move, so a bit wiped out here. How do you handle questions and suggestions from concerned people in your LO's life who don't have enough contact to be realistic about the situation? I am…
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Visiting LO at Nursing Home
I am struggling with seeing my Mom at the nursing home. I usually go once a week. The past couple of months it's been less. She is in the late stages, doesn't talk, losing all her teeth, bedridden, can't walk, feed herself, always tired, sometimes stares out into the distance, shakes, and doesn't know what's going on or…
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No memory loss
My mother started hearing alarms at night last summer. Then she started smelling things, hearing music, and now has delusions at night. Her memory is excellent and she thinks these delusions she has at night are real. She has had a few during the day but mostly during the night. Has anyone heard of anything similar? Thank…
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Chemical sedation?
My dad (77) has Alzheimer's and is now in a VA-supported nursing home after a number of scary hospitalizations left us with no real alternatives. Recently I was visiting and found him sound asleep. I waited for over 30 minutes, making some noise here and there but he didn't wake. Eventually I went out to talk to one of the…
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Income After Being in a Home
Good evening everyone, My mom had been receiving retirement income monthly from SSA prior to being in a home. What happens now that she is in one? Can I use her future deposits for a prepaid funeral? Does it just keep depositing into her bank? Does it stop? An update: The home told us no family visits for a couple of weeks…
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Only child, always the enemy
Hi, New here! My husband and I moved my mom in with us about 6 weeks ago because we and her physician agreed that she couldn't live independently anymore. Her dementia is not advanced but she was forgetting to eat and take meds and falling. We created a bedroom (in our dining room) and set up our living room as a sitting…
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So sad the time has come
Hi. I have posted on here a few times. My heart is breaking; it is time we are going to be placing my Dad (w/ALZ), into MC. He is in the hospital (several states away, in my hometown/State, from where I live) with pneumonia. He is recovering and feeling better, but still confused, today. My mom, just had surgery a little…
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Overwhelmed….Just a bag of emotions
Hello everyone. This is my very first time ever posting on anything on any platform, but I’m certainly not above, asking for insight/advice for someone like me who is new to this. My mother is a 62-year-old woman who has officially been diagnosed with dementia two months ago. What we have learned is, my mother is actually…
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POA
I'm trying to get my mom to appoint POA to either my nephew or me. How can I convince her? Does she have to be present with us to see the CELA for approval? It has been difficult to discuss the urgency and necessity for POA. I am disabled and am on Medicaid. Can I still be able to have financial POA without affecting my…
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Their reality
I understand that the “reality” of the dementia patient shouldn’t be questioned. For example, if they ask where their spouse is (passed away) you can just tell them s/he is out shopping, or something. But this reality my sister is experiencing is too shocking and mean spirited to go along with. She said her stepdaughter…
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Searching for a at home caregiver (6 hrs a week) for Denver
Hi-My mother has early ALZ and is presently being taking care of my by my competent brother and father, but they need support! I am a long-distance helper trying to find a great caregiver to come support 3-6 hrs a week but having trouble navigating the millions of options and would love a referral. Does anyone have someone…
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Hi
How was you all able to take your mom or dad to the doctor for there appointments because I am having a hard time.
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Communication
I NEVER wanted to be my mother's "parent". From listening to her complaints, calming her fears, managing her bills, to bathing her (and more of course). My brother said that he simply couldn't- too much work, not emotionally capable etc... Now, when we're in the throes of it all, he is paranoid that I'm taking all of her…
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Support & Advice
Hi. My name is Kate & I am new to the forum. My mom has been living in a memory care facility for a little over two years now just a few months after my dad died abruptly. The last two years have not been the easiest with losing a parent & losing a parent to dementia. My siblings and I relationship has been estranged since…
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Dad's decline - does he realize what's happening
My sister and I take care of our 102 year old dad. He's been on hospice since Sept but I think he's been doing fairly well all things considered. The last 2-3 weeks it's like he's dropped off the edge of a cliff. He hasn't had any solid food in almost 2 weeks. The only thing we've managed to get in him is a few spoonfuls…
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Caring for a 75 year old parent with Alzheimer’s
My wife and I take care of my MIL (her mother) who doesn’t live with us and is home with her husband who has Parkinson’s and a in home caregiver. They don’t drive anymore or go out other than doctor appointments. Needs ideas to stimulate her mind as i feel it’s rotting away doing nothing all day she is constantly repeating…
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Deep denial
What do you do when someone has dementia but part of their dementia is that they are in deep denial that there is anything wrong with them at all? My father in law is 89 and routinely forgets things, can't carry on a conversation, makes horrible financial decisions, tries to drive and gets in accidents--it's a slow motion…
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Ending Medication
My mom was taking 5mg of donepezil- a very small dose. 10mg gave her terrible hallucinations and 5 mg just gave her various stages of bad dreams. (That's why she was in 5mg) She absolutely hates taking medicine and I hated her taking it unnecessarily. The doctor, actually 2 doctors, suggested that 5 mg probably wasn't…
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Talking to Family
As of yesterday my mom has been placed in the memory care unit. Which is a big relief to me, she isn’t taking it super greatly which was expected of course, but she is in a safe space. And so, now the flood of comments from relatives come in. “Oh, but everyone in there is elderly” “Oh maybe we can take her out”. Etc. I…
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Anxiety and the future
Hello I am new here and have gotten a lot of comfort from reading some of these messages. My dad is in a regular skilled care facility, and I believe he has dementia due to some of his behaviors. One of his most recent is his extreme debilitating anxiety. He will call me 20 times a day, begging me to help him. But he…
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How to get mom to her first doctors/neurologist appt.
Hi there. My mother is 72 and has not been formally diagnosed with dementia. She has been in severe cognitive decline since 2020 and presents at stage 5 dementia. My father has been in significant denial of her condition since 2020. Even though I have had REPEATED conversations with him about getting her the care she needs…
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Dementia or old age?
My dad has diagnosed vascular dementia. And it is apparent. However, my mom, who is his caretaker, is exhibiting symptoms of dementia too. My mom thinks so too. But she saw a neurologist and did some tests and was diagnosed with just MCI. Which is a sign of dementia. But maybe it's just old age? She is relatively high…
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Having a separate life from LO
Hi everyone - I am so thankful to say there has been no major drama the past few weeks. Now focused on finances (struggling to rent my moms property, need to find new property manager, but that’s all just life). The biggest struggle now is how to have A life. My mom was always demanding and needy, partly why I kept a safe…
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New member, Mom has dementia, this is overwhelming
Hi, I'm new here. My mom was diagnosed with Dementia in October. We had to move her into a memory care facility. I've finally stopped crying every day, but this is so overwhelming. My mom was a computer engineer and had a brilliant mind, and now she can't even string together a coherent sentence. It's so hard to see this…
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My mom is very against the idea of Memory Care/AL and I'm scared she will be scarred from the move
My mother is 75 with Dementia. It's in somewhat of an early phase-- sometimes she's totally normal but she thinks my dad (who recently passed away) is living in our neighbor's house and "needs a sweater bc he is cold" and she obsesses over it most days. She just got on a low dose of Seroquel. I have her on the waiting list…
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Gestione del malato di demenza durante la sera
Buonasera a tutti é la prima volta che scrivo. Assisto mia suocera malata di demenza degenerativa , purtroppo verso tardo pomeriggio parte la fase delirio. Non riesce più ad orizzontarsi e mi dice che le sposto le cose , tra cui il letto che non riconosce come suo. Oltre ai farmaci che prende prescritti dal centro UVA , mi…