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Support Group My Mother & I Can Attend
My mother is at the early stages of dementia and it is getting more difficult. Is there a support group I can attend with her to teach us both how to cope. When I step in to help further her, she gets very frustrated... and later understands she needs help. She often tells me the doctor's are wrong, so maybe if she learns…
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New to mothers ALZ
Hello - I'm Erik and I have been holding so much emotion inside since my mom's formal diagnosis of ALZ. My family lived a very tumultuous life as a child leading to my parents always living a part. My mom went onto 3 ex-husbands in search of love, while raising 3 boys on her own. She found her prince of 20 years who is a…
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New here- multiple questions
I have many questions regarding my mother and her decline. Should I start separate threads for each issue or just include it all in one post? Thanks for any advice. Once I have an idea of the best way to use this forum, I'll share my questions.
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Want to connect with others whose parents have long-term mental health issues
I'm new here and looking to connect with people who are caring for parents with long-term mental health issues. My mother was finally diagnosed with co-occurring AD and clinical depression after a suicide attempt in December 2021. However, she has a long history of untreated mental health problems. Her depression and…
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2nd guessing decisions while caregiving
Hi everyone happy Sunday. I have had a whirlwind and just need to vent. Any thoughts/ideas welcome. 1) Mom is cleared for shunt surgery Thursday (two x almost not cleared last week: A1c was high, which through new medication and diet we miraculously lowered enough in 2 months; cardiologist had concerns re hypertension).…
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Mom is 64, living with dementia and becoming more shut-off
My mom is 64 and has dementia. Recently, we moved her out of her condo and into an independent living community. Problem is, she's focusing on the fact that she is 15-20 years younger than most of the people living there. She's become more insular and cut-off because of this. She does not want to be around old people is…
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Too Much
I moved into mom’s home to care for her 2 1/2 years ago. I gave up my career!!!! This caregiving business is HARD and not too pleasant at times. Alzheimers Association offers some support groups, but not too many. Are there any support groups that are not thru the association? Are there any free groups, activities that I…
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Drastic Change in Posture
Hi all! My mom is 70 and I am her 27 yo daughter/caregiver. Over the summer we placed her in a memory care unit due to her FTD getting worse. Last month, within a week her posture drastically changed. She is hunched over and she is unable to move her head up (her chin is touching her chest). She was just evaluated by a…
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Mom with dementia
My 81 year old mom was diagnosed with dementia about a year ago. It just recently just got really bad really fast. I live about an hour away and help a lot with stuff but can't be there every day. I'm having a tough time getting her to take her meds & getting her to remember things. Does anyone have any ideas. Sticky…
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Geriatric Physician Recommendations in Florissant or West County St. Louis
My mom and dad have had the same doctor for 20 years. My mom is having trouble caring for my dad who is showing signs of dementia. Their doctor yeais dismissive of my mom's concerns, and even suggested we just drop my dad off at the ER if he becomes too much for her to handle. Is there a doctor that anyone in this group…
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Help mom with Alzheimer’s
My mom was diagnosed with Alzheimer’s in March of this year and she still will not acknowledge the diagnosis she she is convinced there is a conspiracy with all the doctors and me her only daughter that we are out to get her my moms GP has had her drivers license revoked and blames the doctor and me for that and anyone…
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I already feel better!
My mom was diagnosed with the early onset of dementia in 2015 (65) but didn’t tell anyone. She responds with, “who doesn’t have memory issues as they age” or “I took my THC gummy before the Dr and that’s why I couldn’t draw the numbers on the clock”! Let me go back to June ‘23 when she was living alone and my son received…
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Strange behavior
Hi, I’m not sure if this is related to my moms dementia, but I’m noticing some strange things that she is doing. For example I found a lot of folded toilet paper everywhere in her drawers and in between her clothes. We noticed we were running out of toilet paper vey fast too. Not sure that it’s about and if certain…
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Prepaid Caregiver(s) Card?
I'm new to this community and hoping you can share any resources that are out there. My parents have multiple caregivers and I am looking for one prepaid, reloadable card that can be used by multiple caregivers (no name attached) on behalf of my parents. The caregivers buy groceries, lunch, medicine etc. at different…
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Mom was diagnosed when I was 21. Anyone else out there like me?
I’d love to connect with those of us whose parents got an early-onset diagnosis while you were / are in your 20s. My mom died 3 weeks ago after an 8 years battle with the disease and I feel so out of place in support groups with folks who at their youngest got the news while they were in their mid to late 30s.
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New drug for mild AD - results pending
Hi everyone, I am helping my dad taking care of my mom, recently diagnosed with mild dementia due to possible AD. I saw on the news that BioVie presented Phase III blinded data of their oral medication for mild AD. Being a clinical trial statistician, I agree with the company that it is very promising - it indicates that…
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When is the right time to tell others?
when is it the right time to tell others or do I need to? By others I mean for example if we are going to an extended family member party that doesn’t know about my mom do I need to give a heads up? My concern is that they will tell her things like “don’t you remember” or “you already told me that”. It’ll be a reminder to…
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2 Parents with Dementia - HELP
Hello, I’m new here. I’m 31 and over the last two weeks, both of my parents have been diagnosed with Alzheimer’s/Dementia. My dad is only 56 and has ben diagnosed with mixed dementia - doctors are still trying to figure out his “unique situation” as he has no previous health conditions. He hasn’t been has a cavity before.…
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Unsure of how to respond
When speaking with PWD on the phone, she has begun to ask me where I am and if various deceased relatives are with me. For example, she asked if my deceased brother was with me. I've been saying 'no,' but then she is worried about where they are and when they'll be back. What might be a better way to respond to these…
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mom won't agree to in home help
My mom has dementia, can't be alone. She's staying with me. I've been trying to have an aide come a couple days a week. Mom is so resistant. She cuts the visits short, one day wouldn't let the aide in her house, and another day got upset when she discovered we're paying the aide, so the aide left. I'm getting pushed by my…
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New to this and looking for support
My dad (81) has suffered 4 brain bleeds since April, apparently due to cerebral amyloid agiopathy, which has led to very advanced dementia with aggression symptoms. He was leading a normal (advanced age) life with my mom until then and was mostly OK even as recently as late August. Since then he has either been in a…
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Pill Reminder App Recommendation
I handle refilling my parents medications and filling their med boxes. I was using the Hero pill dispenser and app. It would notify me when they didn't take their medication so I could call and nudge them. Now I have to send the Hero back because the program is discontinued. I'm looking for pill reminder app…
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using technology to help with dementia
My mom is 84 and was diagnosed with dementia about 3 years ago. I'm a software engineer by profession and started working on a message board that can be hung on her wall. Essentially it's a 43" HDTV being used as a monitor for a small computer. The computer runs the app I'm working on. The board is controlled by a…
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New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
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Bathing concerns
My father was diagnosed over a year ago with ALZ. He lives in an independent living facility. Through the last year, his hygiene habits have really declined. He refuses to shower. His main methods to bathe have been sponge bathing, but that seems to have diminished as well. He's received OT/PT, has safety measures in the…
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Will care facilities be closing?
Hello! I have two parents who are in a small assisted living facility that provides memory care. Almost all of the residents (about 25) have dementia, and several need quite a bit of care and have hospice or home health care, too. This facility has been good for my parents. We hope that Dad can stay there, but he has had…
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Time Feels Slow
Time feels slow but fast all at the same time. I became my mothers caretaker a few short months ago but so much has happened and is still happening. It has been so fast but the days are filled with anxiety, worry, overthinking, sadness, anger, resentment, empathy then back to resentment and feeling like I just want to run…
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Advice about phone use
Hi all. I'm new here. My mom has Alzheimers and has been living with us for the last 1 1/2 years. She is not able to live alone nor drive; she tends to her own personal hygiene needs - but otherwise is dependent on us for all other day to day needs. As we would expect, we have experienced a progressive decline. Our biggest…
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Anger, two parents
I don’t even know where to begin. My dad had a stroke the end of may and my mom demanded that he be able to come Home after his rehab even though all the kids were recommending they consider moving to even an IL. During his initial recovery it became clear moms memory issues were waaayyy worse than we had realized. The…
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Are people able to keep their careers while caregiving?
My Mom was diagnosed with Lewy Body about 18 months ago and has remained living on her own in our hometown while my sister and I live in a city about 4 hours away. She recently fell and fractured her arm, so I have been here taking care of her for a couple weeks now. I have worked my way up at my company over 25 years and…