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Sudden Worsening of Symptoms
Hi, my 96 year old mother just moved in with me a few weeks ago after living at my brother's home for about 20 months. We are working to find a nursing home situation for her, but in the meantime, we needed to save her money and my brother needed too much HHA care that was depleting her savings. My mother seems happy in…
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Medication for sun downing
Hello all I’m new to this group but not new to this disease. What medication does your loved one take to help with sun downing? Mom was in the hospital for a week with a uti. They put her on seroquel. We had her moved to a rehab for pt. They continued the seroquel. Well it’s making her SO sleepy all the time even on the…
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My son is pulling away from my mom, need advice
My mom has Alzheimer's disease. She got diagnosed a few year ago. She is in a memory care facility and thriving. I am an only child and had to move in with her during the pandemic. She has been at the facility for over a year. She is in the moderate stages. She knows who I am and my husband, but struggles with knowing her…
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New here - looking for emotional support
Dear All, Although, writing this brings me no pleasure, I got to a point where I no longer keep it inside and I need to vent, as well as benefit from your wisdom and experience. I did scroll and read few of the entries, but somehow I feel my situation is rather unique (I am aware of the irony here). In short, here's what's…
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Personality changes
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Caring for mom with Vascular Dementia
Hi everyone, I'm new to the forum. My mom is 89 and has been living with us for 7 years. The past three have been progressively worse for her condition. I'm told she is in late stage, but that everyone is different and you never really know. She has lost 20 pounds, struggles with all tasks and now her feet are blue and her…
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61 and diagnosed with dementia and early onset Alzheimer’s
Hi, I moved in with my mother in law a couple months ago because she has been really struggling with her memory. Today we got the diagnosis of dementia and early onset of Alzheimer’s. I am looking for Any advice for me to help get us on a manager track so I can take the best care of her!! Thank you in advance!!
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Medicaid and unmotivated attorney
I know the pat answer is find another attorney but just need to see if I'm reading the attorney wrong. I've hired an attorney to help get my mom on Medicaid as my brother and I can't keep making up the difference at the MC my mom is at. My mom makes just over the limit for Medicaid but the attorney did help setup the…
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Paranoia
My mother believes her apt is bugged. It's confusing because she is high functioning socially. The family wants to assure her no one is spying, but if we doubt her she becomes angry. She's calling the apt mgr daily now threatening if they don't find the "creeps" she will sue. We are new to all this. Is there anything we…
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Looking for advice on how to get my mother (who has dementia) back to her country
Dear community members, I hope this message finds you well. My name is Fernando. I am Brazilian, and I don't live in the US. My mother has lived in Houston for more than thirty years. She became an American citizen a long time ago, and She never planned to leave the country. However, She started presenting symptoms of…
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Dad diagnosed w/Alzheimer's
I'm curious if there are stages in Alzheimer's that make the patient aware at times who they're corresponding with. Mom will tell me when he has his outburst/episodes of frustration he's mean and nasty however this is only displayed when I'm either not at the house or not in the room - when I'm in the room, he doesn't…
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New to the site, need urgent help
Hi All, I just found this site while searching for resources to help me. My mother has diagnosed dementia (unknown type) and my stepfather is rapidly following in her footsteps but is not yet diagnosed. They are both in their 80s. They are living in a private home and are dangerously compromised. We have been able to get…
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Just exhausted
I need to vent a little and this is a good place to do so. I am mentally, and physically exhausted. It seems like I have rarely had a moment to myself in years. I just want time to focus on my own health because my back is killing me and might need surgery. I'm overweight and want to start exercise and diet to lose weight…
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Cat in MC?
Does anyone have experience with PWD having a cat living with them in an MC setting? I am working on moving my mom from AL to MC. She was encouraged to bring her cat with her when she entered AL, as it is a pet-friendly facility. Now that she is planning to move to the MC building on the same property, we are getting mixed…
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Struggling with my stress
Hi. I’m new to this group. My father passed away a few years ago. He had Alzheimer’s. We had full time live in care for him. Last year my mother was diagnosed with vascular dementia. She is getting worse rapidly. She has a flat that is part of an independent living community. However she is now struggling to live…
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AL wasn't what I thought it was.
I had a vision in my mind what AL would entail for my mother. The pamphlets and virtual tours were misleading. When Mom was having more and more trouble living alone, I wanted her to have a community environment with people her own age and a staff with nurses who would keep her healthy and engaged. That isn't at all what…
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Mom is actively dying
My mom began End Stage LBD 3 months ago. Family had trouble accepting this at first so I began EOL planning with little to no support. I began trying to get family consensus over engaging hospice with tacit approval until I began to take steps to do so. This past week when I observed what I believed to be the active dying…
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I'm going slowly crazy
Hi all, I'm new here and the only other real support I have is another online group. My mom is 89 and has never been officially diagnosed, but she definitely has Alzheimers. From the reading that I've done on the subject I'd guess she's a stage 6. My sister handles all of her finances and takes her to the doctor when she…
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Newly Diagnosed Father
My dad was just diagnosed with Alz and is declining fast. He is only 77 and we are atill working with neurology for other issues. Is it normal for the decline to be so fast? I feel helpless.
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Boyfriend / Friend
My mother befriended a man at the independent living center shortly after she moved in in 2017. Since then the relationship has become more romantic and they discussed marriage (long story). It should be noted that he was placed in the Care Ctr a couple of years ago and is not doing well. My mother's memory has…
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Update after 4 months in ALF
It's been four months since Mom (84) with dementia moved to the ALF. She's on Risperidone, 0.5mg twice per day, and other meds prescribed by her cardiologist for heart failure. She is deteriorating and I'm just not sure if it's a side effect of the Risperidone or what. I feel guilty quite frequently. She has been back to…
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Words -
I have noticed that just 2 months into symptoms, her "F"s , "P"s and "th" are sounding funny. What does this mean? What is happening to her verbal skills?
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Mother in law- and supporting my husband and brothers to best support her
My MIL recently moved close to us from our of state. Since she has been closer we see increased memory impairment and getting lost while driving. I would like to chalk up some of it to learning a new area, however a few weeks ago she came into a restaurant disorientated and confused and the waitress called for a welfare…
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How to move LO
Hello, Although my plan had been to have an aid live with my mother, I am realizing that MC is something I must consider. I suspect there is no easy answer to this question, but how do I tell her? How much time between when I tell her and we move? She will need to be evaluated first at the facility so she will know…
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Something new every day . . .
In the past 60 days, since my sister and I moved my mother into AL then MC, she has been steadily declining. Does it ever plateau? I understand that dementia is a terminal illness, but I keep reading how the stages can last for years at a time. For us, it seems like there is something new and bad every day. Delusions,…
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A few thoughts on Memory Care
I recently had to move my mom from AL to MC and wanted to share a few thoughts. I’ve noticed that my perception of MC, and that of others who are not there or don’t have a loved one there - is actually kind of negative. People talk of it like it is some kind of prison where people deteriorate. I have to confess: this may…
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Newly Diagnosed Mom
Hello, My mother was recently diagnosed with moderate dementia. It seems to have accelerated once she moved into AL, which was her decision. She is well cared for however is requesting that my brother and I call her multiple times a day. Any tips for setting reasonable boundaries while at the same time helping her as much…
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Dreams and Nightmares
Hi all, My dad has started having dreams/nightmares about his parents. They died in 1967 and 1971. He is dreaming that they committed suicide, they did not, and he wakes up crying. He has been talking about his mother a lot which is something new and he is not mentioning my mom (his wife) anymore. She died 11 years ago.…
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Finding a companion
Hello, I have an aunt that is living in a memory care facility she is 85. My mother ( her twin sister) and I live in a different state. We just went for a brief visit and have some concerns. Her guardian does not visit on a regular basis. Is it possible for us to hire (private pay) a person to go and visit her on a weekly…
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Ways to have a meaningful visit
I posted about a year ago after my mother had cataract surgery. She seemed to develop dementia over night after the surgery. She was at home till December but kept going to the neighbors house and saying bizarre things. After monthly trips to the ER for this and that, and calling 911 several times they finally admitted her…