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Siblings in denial
Hello all, My two parents with brain change are my father in law, and my mother. We live in Pennsylvania temporarily in my mother and father in law's house. Mom passed away three and 1/2 years ago. Dad is in memory care. We live here because my husband is closing Dad's business. My husband's siblings (5) are in a mixed…
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Starting palliative care for my dad. And some ramblings
My dad is 85 & has lived with us since March 2020-ironically he had a minor stroke right before Covid took over. Dad has had dementia for at least 6 years now. He also has balance issues and was diagnosed with Parkinson’s last year. Since August we’ve had 8 falls where he actually hit the floor and several close calls. He…
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dementia mom & upcoming wedding
My mom recently is not recognizing me. So far, she knows my kids. But my daughter is getting married next year. She's realized that mom may not be able to attend her wedding, or may not know her, which is very sad. Her & my mom have always been close. I find it heartbreaking. Mom also does not like to be in a big group of…
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Mamma and her diaper...
I am new here. My mom has brain damage from deprivation of oxygenated blood flow to the brain after her heart rhythm was too abnormal for too long. She also suffers multiple autoimmune diseases and has a strong family history of Alzheimer's disease. Since she is completely bedridden at home and unable to go out to…
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Bible Verse to Lift You Up 12/16/23
CHRISTMAS REMINDS US WE ARE LOVED, BLESSED AND SAVED! Genesis 22:15-18 New Living Translation 15 Then the angel of the Lord called again to Abraham from heaven. 16 “This is what the Lord says: Because you have obeyed me and have not withheld even your son, your only son, I swear by my own name that 17 I will certainly…
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Is this - typical, normal, to be expected ?
My sister and I are the caregivers for our 102 yo father who has dementia. He has been on hospice since September. He can no longer walk, he is incontinent with his bowels and has a catheter for his urine, and his speech has deteriorated. We get him dressed and get him in his wheelchair everyday. The last few weeks his…
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Dental appointments
Hello! I am in the process of stopping some medical appointments for my dad, but others I am not quite sure about. I took Dad to the dentist this week, and he has a cavity on one of his front teeth. Dad is very aware of the cavity, and it bothers him to feel the rough spot. We scheduled an appointment for a filling for…
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Holiday Gift
Hello everyone - I want to bring something in for the staff/nurses/aids to share at the assisted living facility my parents are in. They have been wonderful caring for my parents. I feel funny bring in gifts for certain care givers, since I know there are a lot of unsung heroes working there that I haven't even met. Right…
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Looking for a "playdate" for my mom
My mom is very sociable but adult daycare centers are too much for her. If you are caring for your mom with dementia, maybe we can explore how to get them together for a couple hours for companionship.
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Immunotherapy
Could you please provide any experiences (personal or 3rd party) of immunotherapy treatment and impact on middle mixed (vascular/alzheimers) dementia? MIL is 91 with very slow growing malignant lung cancer. She has 3B kidney disease and dry macular degeneration. There are some other old age issues but those are the primary…
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TAVR on Alzheimer's patient
My mother is 87 years old with middle stage Alzheimer's disease. She has aortic stenosis condition and her cardiologist advise her to have TAVR procedure within the next 12 month. We're concerned about how the general anaesthesia will affect her Alz/dementia. I would like to learn if any of your loved one or relatives had…
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Need Ideas for duties/tasks an In-home care aid/companion can do
My mom and dad are finally open to having an in-home care aid come in a few times a week to help out around the house and most importantly, give my dad a rest from caregiving for my mom. Along with the normal apprehension to having a stranger come into their house, the big stressor for my dad right now is that he doesn't…
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Primary Care (PC) Doctor is Undermining the Neurologist
Because Alzheimers runs significantly in my mother's family (killed my grandmother and three of her sisters), I knew as soon as I started seeing tale tell signs in my mother I knew what was happening. After many, many months I finally convinced her to see a neurologist. So I asked her doctor for recommendations for a…
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mom forgetting me
Yesterday my mom didn't realize who I am. When I said I was her daughter, it didn't click. She just said, oh. It was a numbing moment for me. I just sat there numb. I couldn't move. She rambled & I just sat there. Sad moment.
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mom fast decline
My mom's dementia is declining fast. Hard to deal with. Sometimes I don't know if she realizes who I am. She talks about her 'children', when I'm right here. No comprehension. She asks the same stuff over & over. It's very sad. She's been on Prozac for a month. I see no difference. She's emotional, excessive worrying about…
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Panic with incontinence
Hi this is Pat, I care for my 87-yr old, ex who is in stage 6 dementia. My biggest concern is his panic when he feels the urge to urinate. Although he can still walk (slowly) on his own, he is so determined to get to the bathroom, that he has almost fallen a couple of times. I have a bed alert in his room so I can assist…
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Not accepting diagnosis
I'm hoping to get some advice on how to best care for my mother (76) who is not accepting her dementia diagnosis. She was given a preliminary dementia diagnosis in Sept 2021 while in the hospital with COVID. My sister and I had suspected for quite some time prior to this that she had dementia, but she is incredibly…
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How to help stand up and walk (and hallucinations)
It seems like just out of the blue one day, my mom could no longer stand up and/or walk without a lot of assistance. This started about 4 days ago and since then she's only gotten worse. Every time we try to get her to make the slightest movement (even to just sit up more on the couch) it seems to trigger some sort of…
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Memory Care and medication changes
I had to emergently place my Mom in September into a memory care facility after she caught covid. I found out last night that they have changed her medications without notifying me. They now have added Memantine to her schedule as well as Lorazepam. My Mom is very sensitive to medications and has tons of allergies. My Mom…
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Constantly Arguing
Does anyone else argue with their spouse/ partner regarding care of a parent with dementia? If so, have you found anything that works to help alleviate the stress on your relationship?
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Is it possible?
Hello, my mom has young onset dementia. Since her memory loss started she is always mentioning that she doesn’t feel well which yes I think this is accurate. It’s always her neck, back, she can’t eat, or something is always wrong. She is always “sick”. However recently she was in a very minor car incident ( she still…
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Refusing to take medication
Hello, My father has moderate dementia - related to him having several strokes that primarily impacted his frontal-temporal region. He is now refusing to take his medications - he is on warfarin and other medications to manage his cardiovascular health. We are concerned about the increased stroke risk but can’t seem to do…
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Moving advice?!?
Hi family, i live with Mom (late stage Alzheimer's) and Dad. Dad is the main caregiver and we tag team her 24/7 care. We have an amazing aide who helps 4 days a week too. We are thinking of moving into a smaller home on one level in the same neighborhood a mile away. Our house now is way too big and two stories. Mom…
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Are my dad’s visits making my mom more anxious
Hello- my mom currently lives in memory care which I am so, incredibly grateful for every day as neither myself or my dad could support her needs at home anymore. We had to move out with our young children when my mom had delusions and hallucinations because she thought my husband was abusing our kids, abusing me, it was a…
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So overwhelmed, and I don’t know how to get help or if there’s even help out there for us
For a couple of weeks my dad started getting paranoid and really aggressive and then one day I thought he was in the bathroom but instead he opened up the garage and went to the neighbors house and called the police and said that some man was holding him captive and being mean to him. so when I realized he wasn’t in the…
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Recent Alzheimer's Diagnosis for Dad - Learning on the job
Hi guys, We have recently had a diagnosis of Alzheimer's given to Dad, compounding his battle with Prostate Cancer. In addition to the mental anguish of the situation, the practical issue we are having to cope with is daily (sometimes twice daily) faecal incontinence. I wondered if anybody had any practical tips, however…
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Father Recently Passed, Mother with moderate Alzheimers in my Care
Hello All, My dear 92 year old father passed on 4 days ago. He and my mom have been married for 68 years. My 86 year old mom was diagnosed with mild Alzheimers approx. 3 years ago. In their later years, as my dad's physical body declined, and my mom's mental abilities declined, they formed a support for one another, with…
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Winter gloves/mittens
Hello! Hopefully, this is a simple question. For years, my parents spent the winters in Florida, but now they are in a more northern state and still don't have all the warm clothes that they need. I would like to get Dad some gloves or mittens, but I had him try a pair of my husbands. Dad had no idea how to put them on,…
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How do we transfer between facilities, if needed?
My mom (advanced dementia) is currently in a small nearby board and care (been there three months), and I'm not sure my Dad and I are happy with the care she's been given. However, the family who owns this location also has another location where there are two other staff members that are really good with Mom (they often…
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Parents
Hello both of my parents have Alzheimers. They are in a memory care facility. I am struggling with this guilt. My dad has had this for at least 10 years. He wanders the streets looking for his deceased father. I had no choice but to lie to him and tell him we were visiting mom. I cannot get over the guilt of doing this it…