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New links for Teepa
I believe I sent links before but are now inactive because we were using them during the editing process. Here are the active links for our two sessions with Teepa. https://youtu.be/fLZHrsDERyY https://youtu.be/Eh4hN90cO7E
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How I see my life
My life is like Peggy's life, she is the sister of Gothic Gremlin. My life is somewhat like her life, although I do not have the depth of her verbal difficulties. My life has definitely become smaller. I call this my bubble. I don't see this as sad, because I have had a great life. I see this as the next step in my life. I…
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My most important thought
My most important thought about living with cognitive impairment is to develop a philosophy of living. This is important for guidance in what I am doing and why, because I frequently forget. I find that I have to reinvent the wheel, meaning, that I have to figure out what I am doing all over again. My philosophy about…
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You may be interested in this person.
Lori La Bey has many great resources for all folks related to dementia. Please feel free to share. The Video is live now https://youtu.be/RMwUpWzvbsg Here is the link to the event on Dementia Map…
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Connecting with other people with dememtia
Hi, I am typing this with the help of my daughter. I am 79 and have mid stage mixed dementia. I am living at home with the help of my daughter. She's been living with me since I filed for divorce from my husband a year and a half ago. We have been looking for some type of peer support for the person with dementia but,…
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Not diagnosed yet......
I am trying to find some information about getting diagnosed. My family doc says just old age back in Decemeber 2021, but i find myself having "things" happen that are concerning me. I make simple mistakes at work. I am a bookkeeper, and unnormal forgetting names, places, apptointments. Once in awhile I get a feeling of…
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Good resources for younger kids who have to help with caregiving in a home
https://aacy.org/
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This is an update on Ladypeewee
Thanks everyone You all make me feel so much love and support coming from People I have never met. I feel like you are all family to me. I have had a lot going on. Those friends of mine that was helping me take care of Peewee, Well Teresa passed away, she died in her sleep a year ago in December. Then Daniel got sick and…
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Reality Epiphany
There’s nothing I can do to make DW happy. No special song No long-loved movie No gourmet meal No hug No sitting down to look at family photos The best I can do it try to enjoy those things myself. She is usually content, but often miserable. It takes real effort to keep her bouts of misery from destroying my well-being.
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13 years on the message boards
I joined 13 years ago after spending about three months reading every post. Just about EVERYTHING I know about living with memory loss and impaired executive functions I have learned from the members here. I learned what to do to take care of myself. I don't have a natural caregiver, so I have to rely on systems and…
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The toll on your spouse
I recently took the test where they analyze your spinal fluid. I'm definitely heading down the road of Alzheimer's disease. I don't want to burden my wife with caring for me to the end. I'm in otherwise excellent health so it's likely I'll die from Alzheimer's rather than something else. Are there specific indications in…
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My life now
Since it's a new year I called two of my late mother's friends who are in their nineties. They are in bridge clubs, did tournaments and now play bridge online due to the pandemic. I traveled the other day with another woman in her nineties who does volunteer work with veterans--"I don't like to sit down, I have to stay…
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Should I be concerned?
Hello! I’m not entirely sure if this is the right place for me, but I thought I’d ask for some advice from you guys, I’m only 20 years old so I never thought about having any serious health problems. For the past 2 years, I have started forgetting words which I knew for sure. For example, I have met with a friend, and then…
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I am glad to see them go after these companies.
So much more needs to be done to stop these companies. https://www.washingtonpost.com/health/prevagen-memory-loss-does-it-work/2021/09/10/53e5d3e8-f3a6-11eb-a49b-d96f2dac0942_story.html
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Update(1)
I just returned from a four day bus tour to Death Valley and Las Vegas, about 260 miles from my home. I had absolutely no problems on the trip--I slept well and had enough energy and was engaged. Now, back home, I don't feel well at all. I sleep poorly, I am very fatigued and don't even get dressed some days, and I can't…
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You may find this interesting
22 Clues™ to the Dementias https://www.dementiasociety.org/post/22-clues-to-the-dementias The Big Umbrella https://www.paperturn-view.com/?pid=MjA201566
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Teepa Interview
https://www.blogtalkradio.com/alzheimersspeaks https://www.blogtalkradio.com/alzheimersspeaks/2022/01/18/an-enlightening-conversation-with-two-leaders-in-dementia-care
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Merry Christmas(1)
Peace on earth and joy to all! Iris
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Free Brain Donation
I have been trying to add another version of this on the AA site but the file is too large. So for now this will have to do. I reached out to AA and so far not much help. This is very important for all? If AA is successful, you will see the better one. One of the best ways to advance research toward finding answers about…
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Planning for Incapacity Without Family Friends to Help
Hello, I am new here. I am in my 60's and experiencing some cognitive changes. I will be tested in February 2022 with a neurologist. I am at elevated risk for Alz as my mother's side immediate family all had Alz and passed away in their 70's. I am actively trying to be proactive in planning for what may be coming my way.…
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I recommend the following
I don’t like to recommend things that I can not prove. But after taking these for every long time they have been safe. I also believe they are helping along with the other drugs I take. No one will ever know if this combination works but I did a lot of studding and many do agree that there is some possibility. The ways I…
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Tony Bennett and Lady Gaga
Will be on TV this coming Sunday CBS.
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
https://www.nap.edu/read/26175/chapter/1
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Hot of the press form the Milken Institute - Scaling Comprehensive Dementia-Care Models.
https://milkeninstitute.org/report/dementia-care-models-scaling-comprehensive
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Just like a shut down my web sites I am shutting down the information I share here
I can not continue to share 3rd party information that I feel would help you all. I have access to the best folks in and always hot off the press. When I thought it would be helpful I shared it with you . But I am really getting tired of being the one that has to defend things here. If someone wants to step up to receive…
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This may help you with bills and financial issues
https://silverbills.com/
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Hereditary?
Hello Everyone, It was suggested that I share my question with you on this forum. My question is if I have been tested for early onset Alzheimer's am I immune from getting late onset Alzheimer's? I was tested for early onset a few years ago and I was told that I didn't have early onset. Both of my parents have died from…
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What to do when you get a letter saying your Neurologist has left the practice
No notice he is gone, I called & asked they say they have no info on where. They have one young Dr in office accepting new patients, she concentrates on headaches, no mention of Alz. I am kind of in a panic. What to do?
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Three NOTs and a WILL
I fell into a deep depression in 2009 when the head geriatrician at an ARDC said to me, "You have to accept that you have dementia!" I came through my deep depression by making these resolutions that guide me still today. **If I have dementia, I'm not going out like a victim. **I'm not going to sit on the sofa and wait to…
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How long can a solo PWD live alone successfully?
It is important to note that approximately seventy percent of PWDs have anosognosia, and thus are not in a position to live alone successfully for long. This is because they are unaware of their limitations and safety concerns and their need to make adjustments in their lives. The PWDs who read and post here do not have…