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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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'Our Body is thy temple' 'is now airing
Exciting news. Our new series 'Our Body is thy temple' 'is now airing on Glewed.TV. We have been shooting this series around the country over the last year and we take a deep dive into the disparities in the black community and their health and the role the black church can play. We feature such conditions as diabetes,…
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National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
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The Brain Health Academy
Free, evidence-based courses to equip healthcare and wellness providers with the knowledge and resources to help people reduce the risk of dementia and Alzheimer’s. https://www.usagainstalzheimers.org/brain-health-academy
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Dementia and diabetes
Is there a link between dementia and diabetes? Is there a type 3 diabetes? Can dementia progress be slowed down by better managing A1c in diabetes?
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Looking for psychologist referral ideas
I have a recent MCI diagnosis and am learning to cope with this in my life. I would like to find an experienced psychologist to talk with. I live in the San Francisco East Bay. Are there any suggestions about how to find a qualified/experienced psychologist for MCI? My neurologist said they do not have any referrals. I…
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Back from Thanksgiving Dinner
First off, I hope everyone had a good Thanksgiving. Our's went pretty well, with the same friends we usually spend it with. As we wre leaving, however, hubs started tallking about finding his luggage. I got him to leave and maybe understand that there was no luggage. When we got home, he started in about that darn* camera…
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Alzheimer Law Allows Younger Patients to Gain Eligibility for Grants, Programs
https://www.pharmacytimes.com/view/alzheimer-law-allows-younger-patients-to-gain-eligibility-for-grants-programs
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Early onset dementia from age 47
I have been diagnosed with early onset dementia since I was 47 4 years ago. I have just started medication because the medication was making me sick before and I had to stop the medication. So far this medication is working well, and I am not having any more side effects. My doctor said that my diagnosis is “progressive “.…
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FYI(1)
https://www.nia.nih.gov/sites/default/files/2022-11/2022_nih_progress_report_ad-adrd_research_1.pdf
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DEMENTIA DIVAS - TEASER TRAILER
https://www.saltboxtv.com/series/O717HuPro9Uq-dementia-divas-caregiving-in-the-arts
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Update on neurologic appointment
I had an appointment with the neurology nurse practioner, whom I had apparently visited about four months ago in March. Of course, she asked how I was doing. My major symptom, memory loss, I felt too awkward to tell her about. And that was that I did not remember her at all! She is a young Asian woman, and I would swear…
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2022 National Alzheimer's Summit Alzheimer’s Prevention, Detection, and Treatment The Power of Us
Please donate to this great organization. They are the ones bring much of the change you see today. https://www.usa2summit.org/?sourceid=1073707&emci=9da55103-2a47-ed11-b495-002248258d38&emdi=cb12a20e-e148-ed11-b495-002248258d38&ceid=5966765
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Where To Get Alzheimer’s Blood Tests: A 2022 Update
https://www.beingpatient.com/where-can-i-get-an-alzheimers-blood-test/
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I believe I passed the road test.
Today I completed the last item on my bucket list. What an amazing day. Pictures https://164boatyardroad.imgbb.com/ Video https://www.youtube.com/watch?v=BQAJx7g-sk8 Now I need to find something new to do.
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Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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New links for Teepa
I believe I sent links before but are now inactive because we were using them during the editing process. Here are the active links for our two sessions with Teepa. https://youtu.be/fLZHrsDERyY https://youtu.be/Eh4hN90cO7E
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How I see my life
My life is like Peggy's life, she is the sister of Gothic Gremlin. My life is somewhat like her life, although I do not have the depth of her verbal difficulties. My life has definitely become smaller. I call this my bubble. I don't see this as sad, because I have had a great life. I see this as the next step in my life. I…
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My most important thought
My most important thought about living with cognitive impairment is to develop a philosophy of living. This is important for guidance in what I am doing and why, because I frequently forget. I find that I have to reinvent the wheel, meaning, that I have to figure out what I am doing all over again. My philosophy about…
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You may be interested in this person.
Lori La Bey has many great resources for all folks related to dementia. Please feel free to share. The Video is live now https://youtu.be/RMwUpWzvbsg Here is the link to the event on Dementia Map…
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Connecting with other people with dememtia
Hi, I am typing this with the help of my daughter. I am 79 and have mid stage mixed dementia. I am living at home with the help of my daughter. She's been living with me since I filed for divorce from my husband a year and a half ago. We have been looking for some type of peer support for the person with dementia but,…
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Not diagnosed yet......
I am trying to find some information about getting diagnosed. My family doc says just old age back in Decemeber 2021, but i find myself having "things" happen that are concerning me. I make simple mistakes at work. I am a bookkeeper, and unnormal forgetting names, places, apptointments. Once in awhile I get a feeling of…
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Good resources for younger kids who have to help with caregiving in a home
https://aacy.org/
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This is an update on Ladypeewee
Thanks everyone You all make me feel so much love and support coming from People I have never met. I feel like you are all family to me. I have had a lot going on. Those friends of mine that was helping me take care of Peewee, Well Teresa passed away, she died in her sleep a year ago in December. Then Daniel got sick and…
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Reality Epiphany
There’s nothing I can do to make DW happy. No special song No long-loved movie No gourmet meal No hug No sitting down to look at family photos The best I can do it try to enjoy those things myself. She is usually content, but often miserable. It takes real effort to keep her bouts of misery from destroying my well-being.
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13 years on the message boards
I joined 13 years ago after spending about three months reading every post. Just about EVERYTHING I know about living with memory loss and impaired executive functions I have learned from the members here. I learned what to do to take care of myself. I don't have a natural caregiver, so I have to rely on systems and…
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The toll on your spouse
I recently took the test where they analyze your spinal fluid. I'm definitely heading down the road of Alzheimer's disease. I don't want to burden my wife with caring for me to the end. I'm in otherwise excellent health so it's likely I'll die from Alzheimer's rather than something else. Are there specific indications in…
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My life now
Since it's a new year I called two of my late mother's friends who are in their nineties. They are in bridge clubs, did tournaments and now play bridge online due to the pandemic. I traveled the other day with another woman in her nineties who does volunteer work with veterans--"I don't like to sit down, I have to stay…
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Should I be concerned?
Hello! I’m not entirely sure if this is the right place for me, but I thought I’d ask for some advice from you guys, I’m only 20 years old so I never thought about having any serious health problems. For the past 2 years, I have started forgetting words which I knew for sure. For example, I have met with a friend, and then…
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I am glad to see them go after these companies.
So much more needs to be done to stop these companies. https://www.washingtonpost.com/health/prevagen-memory-loss-does-it-work/2021/09/10/53e5d3e8-f3a6-11eb-a49b-d96f2dac0942_story.html