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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Eclipse
NASA will be live streaming the eclipse on Monday April 8th. I Google NASA+eclipse and I was taken to its YouTube site. Iris
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Nightmares, Temporary Psychosis or Insanity
I have Vascular Dementia and was diansed 4 years ago. I would say my Dementia is mild to middlin. I have nightmares every night. Sometimes I wake up and feel as if I have lost my mind, or have temporary psychosis ( insanity). I am confused beyond anything I experience while awake. I cannot function at all. I feel as if…
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Preparation after Diagnosis
Two days ago my PA confirmed I am in early stages of dementia. I've always been one to prepare in advance, but this is unchartered territory as you all know. Still any comments will be welcome. Prior to the diagnosis, I had arranged and prepaid for my aqua cremation. I am in the process of re-doing the advance directive…
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Develop a live support group for people living with dementia
I live in senior housing and have discovered that many folks here, like myself, are victims of early or moderate-stage dementia. Many don’t have relatives, so we are our only support. Does anyone have a manual on developing a live support group for people with dementia, or do you know of one? There are groups in this area…
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I need more help.
I'm honestly just in need of suggestions. Both of my parents are 81 years old. My dad has dementia. My mom has other health problems. I work full time and feel like I have no time for myself.
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How do you deal with emotions and confusion
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Newly diagnosed AD and living alone
Duh! I realized I had posted before in the incorrect theme? Aarrgghhh. I don't have "early dementia" I am newly diagnosed with AD and I live alone. Phew, but glad I finally realized it and I'm starting this new discussion. I hope there are some Peeps out there who are still "young" in their diagnosis. Here's what I posted…
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Fed up from the life.
Previously i posted about me feeling that i am forgetting things and losing my memory. I don't remember any happy memories seems they are somewhere in the dark and as much as i know I had many happy memories with kids, family and with the person I love. I am in love with a person, i am going through many things, having…
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Michael Ellenbogen article on the need for dementia training in hospitals
Michael has written an impassioned plea for dementia education and training programs in hospitals. https://www.mathewsopenaccess.com/journals/neurology/abstract/the-failing-hospital-system-i-when-it-comes-to-cognitive-issues-i
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I want to still be functional, helpful. Needed
So my hubby had to take over our finances and I get that. I messed things up but he still left me with my Sam's account. Q e order two times in a year. We work together on the list. Part of the delivery came in today and it seems I ordered many orders. I don't remember and was positive I didn't but he checked and I did. I…
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Mood stabilizers?
Has anyone been placed on mood stabilizers? I have had Abilify added to my medications and the neurologist is suggesting the dose be increased. Apparently I am getting more moody?!? This crap is scary, I don't remember being mad or mean or moody. I hate when someone says I did this or sad that and when I try to remember…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris
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I am the wife of someone who is living with Alzheimers...
...And I am encouraging him to look at this forum in order to not feel so alone and disconnected in his this new way of living. He was diagnosed with dementia due to Alzheimer's (currently MCI) on May 31, 2023. His journey to the ultimate diagnosis was agonizing -- he knew 3 years ago something was going wrong and 4…
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Early Onset
Good day. I am only 51 and have dementia, second to my brain disorder, Arnold Chiari. This has been terror and is so very lonely. My husband of 10 years has decided that dementia is getting in the way of his future and career and has left, saying I was a detriment. Currently, I am going through a divorce while trying to…
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My diagnosis
I was recently diagnosed with Alzheimers . I know that every one is different but any information you could give me would help myself and my wife to deal with my diagnosis. Please any advice will be helpful. Right now my mind is just racing and I don't know how to handle it.
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Zoning out?
Lately I have caught myself zoning out. I don't know when it starts or if there is a trigger. I will be playing a game on the computer and next thing I know I am staring at the screen unsure for how long and then it takes a moment to figure out what I'm doing or need to do. Like press the roll button. It happens when I'm…
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Drums and Dementia
I am a drummer, and drummer photographer and was recently diagnosed with Mild Dementia. Mickey Hart of The Grateful Dead Hart became interested in the brain's rhythms, especially after his grandmother was diagnosed with advanced Alzheimer's disease. "She hadn't spoken in over a year. I played a drum for her, and she spoke…
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Leaving home
I have Alzheimers and dread when it gets to the stage I have to go to "a home" and when my wife visits me will I know who she is?
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HORNY
Is anybody as horny as I am since being diagnosed? I have not been this horny since I was a teenager.
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…
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New to this Site: Parent has MCI
Hello everyone. My 84yo Mom has been under the care of a neurologist over past 3 years. She was just seen in his office after a year, diagnosed with minimal cognitive impairment, amnesic type. She has insight into her memory issues. She is not tech savvy but my Dad is. I feel for my Mom going through this. I would like to…
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Do you miss driving?
The doctor said I should not be driving so my wife took my keys away and I do miss driving. To help me feel better my wife will let me have my keys during the day ( It feels good to have them in my pocket even though I don't drive) After dinner I give the keys back to my wife and she does let me know where they are so if I…
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Telling my kids
It was difficult to tell my son and daughter but they told me to take it one day at a time. And that is easier said than done.
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HOW MY FRIENDS ARE TREATING ME
So far all my family and friends are not treating me differently which is the way it should be because I am the same person regardless of my diagnosis.
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Alarms to keep Alzheimers patients from leaving the house.
My wife bought these alarms to keep me from wandering from the house after I went outside looking for the music I heard outside after midnight. She also took my keys away after the doctor recommended that she do so.
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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Veterans with dementia
I an a Vietnam Veteran recently diagnosed with Alzheimers. Iam having hallucinations of my bedroom floor turning into a lake.
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Hello I have PPA
Diagnosed 3 years ago. I stayed in denial for a very long time, mostly because I have awareness of things I'm doing. I thought if I had a form of Dementia I wouldn't know. Apparently being aware is normal. I knew something was up. I was getting lost in familiar places, misunderstanding conversations, forgetting relatively…
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Today is my 1st Post
Diagnosed with Dementia 12/20/24 at the University of Iowa Hospitals and Clinics.