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Fed up from the life.
Previously i posted about me feeling that i am forgetting things and losing my memory. I don't remember any happy memories seems they are somewhere in the dark and as much as i know I had many happy memories with kids, family and with the person I love. I am in love with a person, i am going through many things, having…
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Michael Ellenbogen article on the need for dementia training in hospitals
Michael has written an impassioned plea for dementia education and training programs in hospitals. https://www.mathewsopenaccess.com/journals/neurology/abstract/the-failing-hospital-system-i-when-it-comes-to-cognitive-issues-i
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I want to still be functional, helpful. Needed
So my hubby had to take over our finances and I get that. I messed things up but he still left me with my Sam's account. Q e order two times in a year. We work together on the list. Part of the delivery came in today and it seems I ordered many orders. I don't remember and was positive I didn't but he checked and I did. I…
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Mood stabilizers?
Has anyone been placed on mood stabilizers? I have had Abilify added to my medications and the neurologist is suggesting the dose be increased. Apparently I am getting more moody?!? This crap is scary, I don't remember being mad or mean or moody. I hate when someone says I did this or sad that and when I try to remember…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris
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I am the wife of someone who is living with Alzheimers...
...And I am encouraging him to look at this forum in order to not feel so alone and disconnected in his this new way of living. He was diagnosed with dementia due to Alzheimer's (currently MCI) on May 31, 2023. His journey to the ultimate diagnosis was agonizing -- he knew 3 years ago something was going wrong and 4…
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Early Onset
Good day. I am only 51 and have dementia, second to my brain disorder, Arnold Chiari. This has been terror and is so very lonely. My husband of 10 years has decided that dementia is getting in the way of his future and career and has left, saying I was a detriment. Currently, I am going through a divorce while trying to…
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My diagnosis
I was recently diagnosed with Alzheimers . I know that every one is different but any information you could give me would help myself and my wife to deal with my diagnosis. Please any advice will be helpful. Right now my mind is just racing and I don't know how to handle it.
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Zoning out?
Lately I have caught myself zoning out. I don't know when it starts or if there is a trigger. I will be playing a game on the computer and next thing I know I am staring at the screen unsure for how long and then it takes a moment to figure out what I'm doing or need to do. Like press the roll button. It happens when I'm…
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Drums and Dementia
I am a drummer, and drummer photographer and was recently diagnosed with Mild Dementia. Mickey Hart of The Grateful Dead Hart became interested in the brain's rhythms, especially after his grandmother was diagnosed with advanced Alzheimer's disease. "She hadn't spoken in over a year. I played a drum for her, and she spoke…
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Leaving home
I have Alzheimers and dread when it gets to the stage I have to go to "a home" and when my wife visits me will I know who she is?
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HORNY
Is anybody as horny as I am since being diagnosed? I have not been this horny since I was a teenager.
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…
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New to this Site: Parent has MCI
Hello everyone. My 84yo Mom has been under the care of a neurologist over past 3 years. She was just seen in his office after a year, diagnosed with minimal cognitive impairment, amnesic type. She has insight into her memory issues. She is not tech savvy but my Dad is. I feel for my Mom going through this. I would like to…
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Do you miss driving?
The doctor said I should not be driving so my wife took my keys away and I do miss driving. To help me feel better my wife will let me have my keys during the day ( It feels good to have them in my pocket even though I don't drive) After dinner I give the keys back to my wife and she does let me know where they are so if I…
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Telling my kids
It was difficult to tell my son and daughter but they told me to take it one day at a time. And that is easier said than done.
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HOW MY FRIENDS ARE TREATING ME
So far all my family and friends are not treating me differently which is the way it should be because I am the same person regardless of my diagnosis.
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Alarms to keep Alzheimers patients from leaving the house.
My wife bought these alarms to keep me from wandering from the house after I went outside looking for the music I heard outside after midnight. She also took my keys away after the doctor recommended that she do so.
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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Veterans with dementia
I an a Vietnam Veteran recently diagnosed with Alzheimers. Iam having hallucinations of my bedroom floor turning into a lake.
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Hello I have PPA
Diagnosed 3 years ago. I stayed in denial for a very long time, mostly because I have awareness of things I'm doing. I thought if I had a form of Dementia I wouldn't know. Apparently being aware is normal. I knew something was up. I was getting lost in familiar places, misunderstanding conversations, forgetting relatively…
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Today is my 1st Post
Diagnosed with Dementia 12/20/24 at the University of Iowa Hospitals and Clinics.
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Newly diagnosed Dementia
Hello I'm new this is my first post. I'm 55 and was just diagnosed last week with dementia. It's caused from epilepsy, that I've had all my life, and a temporal lobectomy surgery. The main issues I'm having so far are my medications, falling, and memory of course..lol My husband is someone that just doesn't show his…
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Support
Greetings, I enter this site with some trepidation as I am not used to sharing myself but feel that I am overwhelmed and need the understanding of others. I have recently been diagnosed as having Alzheimer Dementia and REM behavioral disorders. i must have had these a while since I have been symptomatic for some time. I…
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respite discussion with my spouse
I am going on a 8 day trip out of the country and want to have a positive conversation with my dementia spouse. Because he gets frightened at the thought of my leaving, and because he does not have a sense of time, I've decided to let him know about 4 days before I leave. What positive experiences/advise can you give me to…
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Donecil 10MG
Hello, New to forum as of yesterday. My wife age 56 was just diagnosed will early stage alzheimer's. The Dr. put her on 10mg of Donecil. For those using this drug is it a good drug? Are there some common unpleasant side effects? I will be pursuing the newly approved Lacanemeb for her as soon as be relocate back to USA. I…
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Mum has alzheimers
Hi all. I'm Lorraine. My husband, son and myself moved in with my younger sister back in 2019 to help her later down the line with mum's journey. Here we are 4 years later and mum has deteriorated significantly since christmas. She doesn't sleep at night. She is in and out of the bedroom, up and down the stairs at least 16…
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I'm back, but this time I'm the one with dementia
It's been a long time since I've been on this message board. I was learning about my mother's dementia, and this forum was beneficial. Since that time, my mother has passed along with three of her sisters. All had dementia. Additionally, three of my mother's brothers have dementia too. My genetics testing indicated I was…
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A dementia mimic
I always encourage new members to have a thorough diagnostic evaluation to search for dementia mimics, before accepting a diagnosis of Alzheimer's Disease. For years, I have known that I don't have AD. I wondered why I still had significant memory loss, poor executive functioning and apathy. I have a diagnosis of systemic…
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Hi Iris,
Hi Iris, I hope all is well with you. I have missed you and our dear friend who moved to the trailer park in California. I would like to wish you a Merry Christmas and a wonderful New Year! And many more to come. I just came back from a trans-Atlantic. While I had a good time, I am running out of steam to continue doing…