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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Veterans with dementia
I an a Vietnam Veteran recently diagnosed with Alzheimers. Iam having hallucinations of my bedroom floor turning into a lake.
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Hello I have PPA
Diagnosed 3 years ago. I stayed in denial for a very long time, mostly because I have awareness of things I'm doing. I thought if I had a form of Dementia I wouldn't know. Apparently being aware is normal. I knew something was up. I was getting lost in familiar places, misunderstanding conversations, forgetting relatively…
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Today is my 1st Post
Diagnosed with Dementia 12/20/24 at the University of Iowa Hospitals and Clinics.
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Newly diagnosed Dementia
Hello I'm new this is my first post. I'm 55 and was just diagnosed last week with dementia. It's caused from epilepsy, that I've had all my life, and a temporal lobectomy surgery. The main issues I'm having so far are my medications, falling, and memory of course..lol My husband is someone that just doesn't show his…
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Support
Greetings, I enter this site with some trepidation as I am not used to sharing myself but feel that I am overwhelmed and need the understanding of others. I have recently been diagnosed as having Alzheimer Dementia and REM behavioral disorders. i must have had these a while since I have been symptomatic for some time. I…
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respite discussion with my spouse
I am going on a 8 day trip out of the country and want to have a positive conversation with my dementia spouse. Because he gets frightened at the thought of my leaving, and because he does not have a sense of time, I've decided to let him know about 4 days before I leave. What positive experiences/advise can you give me to…
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Donecil 10MG
Hello, New to forum as of yesterday. My wife age 56 was just diagnosed will early stage alzheimer's. The Dr. put her on 10mg of Donecil. For those using this drug is it a good drug? Are there some common unpleasant side effects? I will be pursuing the newly approved Lacanemeb for her as soon as be relocate back to USA. I…
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Mum has alzheimers
Hi all. I'm Lorraine. My husband, son and myself moved in with my younger sister back in 2019 to help her later down the line with mum's journey. Here we are 4 years later and mum has deteriorated significantly since christmas. She doesn't sleep at night. She is in and out of the bedroom, up and down the stairs at least 16…
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I'm back, but this time I'm the one with dementia
It's been a long time since I've been on this message board. I was learning about my mother's dementia, and this forum was beneficial. Since that time, my mother has passed along with three of her sisters. All had dementia. Additionally, three of my mother's brothers have dementia too. My genetics testing indicated I was…
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A dementia mimic
I always encourage new members to have a thorough diagnostic evaluation to search for dementia mimics, before accepting a diagnosis of Alzheimer's Disease. For years, I have known that I don't have AD. I wondered why I still had significant memory loss, poor executive functioning and apathy. I have a diagnosis of systemic…
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Hi Iris,
Hi Iris, I hope all is well with you. I have missed you and our dear friend who moved to the trailer park in California. I would like to wish you a Merry Christmas and a wonderful New Year! And many more to come. I just came back from a trans-Atlantic. While I had a good time, I am running out of steam to continue doing…
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Public Comments for the Advisory Council on Alzheimer's Disease
Michael Ellenbogen wanted to encourage any interested person with dementia to comment during the Advisory Council meeting so that they have a better idea of the concerns, suggestions, and insights from this group. ADVISORY COUNCIL MEETING ANNOUNCEMENT The next meeting of the Advisory Council on Alzheimer's Research, Care,…
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Spousal denial
What should i do if my wife refuses to accept my early mental decline?i haven't been diagnosed,but i can recognize that my mind is beginning to slip a little bit...i forget to do some things a lot,but since i can still mentally function in most areas,she tells me that i don't WANT to do things,and that i don't care about…
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Telling my kids
My children are in their 20s and launching with the ups and downs but are both in a good spot. I don’t want to tell them yet.
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Diagnosis (finally)....
Hello to all, Hope everyone is well. My apologies for going "missing" for the past several weeks, but my time has unfortunately been filled with testing, testing..........and more testing..... During the summer (the summer that I can't remember!), neuropsychological testing showed "severe" impairment in most domains. I'll…
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Repetition.....
So, my late stage sister is now singing "BA DA BA DA BA DA BUMP BUMP BUMP" to the tune of, Skip to my Lou, over and over again from morning till bedtime. She will also sing at the top of her lungs and bang on the wall with the bump, bump, bump. We now wear earplugs after listening to this for over a week non stop. The…
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NYT article on faltering short-term memory
This is an interesting article for those who may be starting to lose some memory. Title: "Now, What Was I Looking For? Why your short-term memory falters, and how to make it better." gift link good for 30 days.
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Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
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A valuable resource guide via Michael Ellenbogen
We would like to share that one of the resources available through the Public Health Center of Excellence on Dementia Caregiving, A Guide on Advanced Care Planning Resources: For People Living with Dementia and Their Care Partners has been recently updated! To view the updated guide, you can…
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Hello!
I have just been diagnosed, a week ago, with the first stages of dementia. I am having an awful to E with night sweats. Any suggestions ?
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I’m Still Me! A TED talk by Rebecca Chopp PhD on living well with Alzheimer’s.
I am posting this as I await a follow-up in a few weeks with my neurologist regarding my MRI. Watching this boosted my spirits. This is an inspiring talk by Rebecca Chopp, PhD, a retired college president and religion scholar, about how she crafts a vital life after being diagnosed with Alzheimer’s disease. While Dr Chopp…
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Thanksgiving Day
This is the time of year when tradition has us thinking of what we are thankful for. I am thankful for the emeritus and current members of this message board, who have supported me so much, and who have taught me so much. I would not be here today without them. I wish everyone a nice Thanksgiving Day commemoration. Iris
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Neighbor with dementia both aggressive and sexually inappropriate
I rent an apartment. There is a gentleman on the floor where my apartment is located who has both been aggressive with me (trying to push his way into my apartment after offering to help me carry in groceries), physically grabbing me with both of his arms once in the laundry room and this evening, trying to kiss me. There…
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My spouse has early dementia
:o :/
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Scared of the Future changes.
Hi everyone I hope all had a blessed thanksgiving. I am starting to feel a little scared of the future with my mom. She mentioned today that she doesn’t remember our Christmas’s of when my brother and I were little. It seems her memory is slowly slipping more this year. I fear this may be one of our last holidays that she…
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Options for living with Alzheimers
Hello, I am new and this is my first post. My wife, the love of my life, was diagnosed with early onset 2 days ago in Quito Ecuador. We are retired, me 62/she 56 bilingual hispanic, from Alaska to the coast of Ecuador. We lived the dream for almost 2 years on the beach which is really awesome. I plan on moving back to USA…
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Moved
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J
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History of dementia in family
Both my parents have dementia and I have MCI. My psychiatrist put me on a low dose of lithium to help prevent possible dementia for myself. I am only 54.