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Amy Joy
Dear Amy Joy, it was very wise of you to see your doctor. My heart goes out to you; I am sorry to hear you may possibly need surgery; let us know how things are going and what you decide. It is also very wise for you to begin looking for a good supportive place to live as in Memory Care. This will be very helpful for you…
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What do you think about the new website?
What do you like or not like about the new website? It may still be helpful for the Alzheimer's Association to get feedback on the changes that it made.
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…
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Connect with others who have Alzheimer’s
I’m 80 years old and in early stage. I would like to know I’m not alone
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Hello, I am new to this forum.
I am 66yrs old, I have Alzheimer's I started noticing problems about in my 50s and took early retirement at 57 because I feared making a mistake, I worked as a social worker in mental health. At the time I didn't think I would miss my work as much as I do. I miss seeing patients a building trust, I miss the team I worked…
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OT re: Betty White
Betty White supported the Los Angeles Zoo. The zoo has created a self-guided Betty's L.A. Zoo Tour, honoring her contributions to the facility. The tour includes signs at 16 stops where guests can learn about her connection to a particular animal or location. The walking tour will be up through January 31st. The tour can…
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Newbie
Hello, I am new to this forum also.
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If I get dementia
My wife’s sister posted this on Face Book and I wanted to share it. If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things. 1. If I get dementia, I want my friends and family to embrace my reality. 2. If I think my spouse is still alive, or if I think…
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Family history and higher risks
Has everyone everyone ever had a cologuard? My doctor recommended I have one due to family history and over 50. Will get results within a week. Hope you all are fine tonight.
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Rapid Transit
I'm 64 and recently diagnosed with AD. What an experience the last few months have been. In August all is well. In September somethings off, but I can't put my finger on it. Better get a physical. By October I'm getting lost in my own neighborhood and forgetting words for common objects. Diagnosed in January with AD. I…
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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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'Our Body is thy temple' 'is now airing
Exciting news. Our new series 'Our Body is thy temple' 'is now airing on Glewed.TV. We have been shooting this series around the country over the last year and we take a deep dive into the disparities in the black community and their health and the role the black church can play. We feature such conditions as diabetes,…
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National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
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The Brain Health Academy
Free, evidence-based courses to equip healthcare and wellness providers with the knowledge and resources to help people reduce the risk of dementia and Alzheimer’s. https://www.usagainstalzheimers.org/brain-health-academy
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Dementia and diabetes
Is there a link between dementia and diabetes? Is there a type 3 diabetes? Can dementia progress be slowed down by better managing A1c in diabetes?
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Looking for psychologist referral ideas
I have a recent MCI diagnosis and am learning to cope with this in my life. I would like to find an experienced psychologist to talk with. I live in the San Francisco East Bay. Are there any suggestions about how to find a qualified/experienced psychologist for MCI? My neurologist said they do not have any referrals. I…
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Back from Thanksgiving Dinner
First off, I hope everyone had a good Thanksgiving. Our's went pretty well, with the same friends we usually spend it with. As we wre leaving, however, hubs started tallking about finding his luggage. I got him to leave and maybe understand that there was no luggage. When we got home, he started in about that darn* camera…
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Alzheimer Law Allows Younger Patients to Gain Eligibility for Grants, Programs
https://www.pharmacytimes.com/view/alzheimer-law-allows-younger-patients-to-gain-eligibility-for-grants-programs
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Early onset dementia from age 47
I have been diagnosed with early onset dementia since I was 47 4 years ago. I have just started medication because the medication was making me sick before and I had to stop the medication. So far this medication is working well, and I am not having any more side effects. My doctor said that my diagnosis is “progressive “.…
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FYI(1)
https://www.nia.nih.gov/sites/default/files/2022-11/2022_nih_progress_report_ad-adrd_research_1.pdf
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DEMENTIA DIVAS - TEASER TRAILER
https://www.saltboxtv.com/series/O717HuPro9Uq-dementia-divas-caregiving-in-the-arts
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Update on neurologic appointment
I had an appointment with the neurology nurse practioner, whom I had apparently visited about four months ago in March. Of course, she asked how I was doing. My major symptom, memory loss, I felt too awkward to tell her about. And that was that I did not remember her at all! She is a young Asian woman, and I would swear…
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2022 National Alzheimer's Summit Alzheimer’s Prevention, Detection, and Treatment The Power of Us
Please donate to this great organization. They are the ones bring much of the change you see today. https://www.usa2summit.org/?sourceid=1073707&emci=9da55103-2a47-ed11-b495-002248258d38&emdi=cb12a20e-e148-ed11-b495-002248258d38&ceid=5966765
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Where To Get Alzheimer’s Blood Tests: A 2022 Update
https://www.beingpatient.com/where-can-i-get-an-alzheimers-blood-test/
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I believe I passed the road test.
Today I completed the last item on my bucket list. What an amazing day. Pictures https://164boatyardroad.imgbb.com/ Video https://www.youtube.com/watch?v=BQAJx7g-sk8 Now I need to find something new to do.
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Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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New links for Teepa
I believe I sent links before but are now inactive because we were using them during the editing process. Here are the active links for our two sessions with Teepa. https://youtu.be/fLZHrsDERyY https://youtu.be/Eh4hN90cO7E
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How I see my life
My life is like Peggy's life, she is the sister of Gothic Gremlin. My life is somewhat like her life, although I do not have the depth of her verbal difficulties. My life has definitely become smaller. I call this my bubble. I don't see this as sad, because I have had a great life. I see this as the next step in my life. I…
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My most important thought
My most important thought about living with cognitive impairment is to develop a philosophy of living. This is important for guidance in what I am doing and why, because I frequently forget. I find that I have to reinvent the wheel, meaning, that I have to figure out what I am doing all over again. My philosophy about…
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You may be interested in this person.
Lori La Bey has many great resources for all folks related to dementia. Please feel free to share. The Video is live now https://youtu.be/RMwUpWzvbsg Here is the link to the event on Dementia Map…