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Early in the process
My husband was advised by neurology dept that he probably has Alzheimer’s Doctor can’t see him for 4 months to confirm. What am I r do?
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Aunt's caregiver guilt
My aunt has no children, no spouse, no partner, ever. She is the kindest human, but a loner. I am her caregiver; she was diagnosed with moderate dementia. I know it is not safe for her to live alone and I took her keys away months ago. She wasn't caring for herself, eating appropriately, taking her meds, and I watched her…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
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Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
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Excellent information on Alzheimer’s infusion drugs
unsafe:blob:https://alzconnected.org/1c785df9-dbad-4d22-9a7f-434619322d6e
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Facing a Diagnosis this Week
I am meeting with our neurologist this Thursday along with my husband. I have already heard from this doctor that my husband's recent scan is positive and is consistent with Alzheimers. It indicates frequent amyloid neuritic plaques. I am alternating between depression, fright and a will to rise up and be strong. Can any…
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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New diagnosis
Hi all, my DW was recently diagnosed with Alzheimer’s at 68 y.o. We are both in disbelief due to the way this has been handled. The APRN who has been the contact for this has only been out of school for 2 years. Yes, she had a PET scan showing the presence of amyloid plaques. No Tau tangles. Some slight decline such as…
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Suspect nobody is following up on discharge instructions for mom in MC, what to do?
My 87-year-old mother is in Memory Care. She was diagnosed with COPD 15 years ago and she controlled it well with an inhaler and occasional use of a nebulizer at home before moving into the ALF. Other than COPD and dementia, she is in relatively decent health. Her facility left me a message three days ago saying "your…
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Depakote added with Seroquel
Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…
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Caregivers network!
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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Scientists catching up to the value of rosemary
I first began using rosemary essential oil with my mother in 2007 (she passed away from a heart attack in 2012). She became more alert, could recognize objects, could remember her name again, became somewhat more lucid, had a little bit of short-term memory, and was calmer. I have been advocating for the use of essential…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…
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Being "failure free" when PWD wants to do hard things
I understand the idea of failure free activities and that there are books on it. My question is: If the PWD insists on doing something that is bound to fail (let's say trying to scratch off stains off a dirty napkin or a couch cushion), all I can try is to distract with something else. But PWD wants to be left alone to do…
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A discreet wandering safety idea: AirTag insoles (easy to check location if someone gets lost)
Hi everyone, I’m in this community as a fellow caregiver / supporter, and I wanted to share something I recently came across that could help with wandering risk. The Alzheimer’s Association notes that 6 in 10 people living with dementia will wander at least once (often more than once). I have attached the link to the…
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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a…
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Losing Weight, Looking for Advice
Hi there - New Here This is my first post so forgive me if there are any formatting errors and length. I am one of the caregivers for my great aunt, late 70s, who I believe has end middle to late stage. We placed her in MC back in August because she lived alone and it was just becoming too much for her. Since entering the…
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I am new here
Hi everyone! Brand new here. Been caring for my grandmother for 5yrs with alz/dementia. Just def having burnout with no support. Thanks for you all being here
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Taking it away
Mom is in an amazing Alf. Over the last 4 months, I notice a "progression " in her memory, which before we had half hour before she would forget conversation, now it's immediate. She used to come to my house every Sunday to spend the day, now after 30 45 min she wants to ho home. Even on holidays. Beyond that she has been…
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A caregiver's invention for kitchen safety - No more burnt pans.
I’ve been caring for my mother-in-law (MIL) who has started to become a bit forgetful. Over the last year, she has burnt countless pans. The smoke has bothered her neighbors and, in one scary incident, nearly harmed her cat. Because of this, my wife and I were constantly worried she would boil a pan dry or leave a burner…
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Any experience with mental state improving after correcting fecal impaction?
My mother (86) has steadily declined this year. A couple months ago she didn't know who my sister & I were, didn't remember being pregnant or living as a family unit with us & our father, etc. We've been begging her to go into AL but she's refused. A month ago she locked herself out of her house all night long, had…
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NAD + supplements, NR or NMN (and caretaker's guilt)
Has anyone had any experience with these supplements? I did what research I could find but there is very little and the results were mixed. My kids are pressuring me to add them to DH's meds, which i might, but they are convinced that this is going to stop the ALZ or even reverse it. Second question: how to deal with these…
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What are the options for severe agitation, aggression when seroquel and rexulti can't help?
My 94 year old Mom is in her 12th year of Alz dementia. She is at home. We're not considering a facility but I'm curious what a facility would do in this situation. She will throw dishes, threaten violence, and punch and scratch during any interaction that requires her being touched. Can she be sedated in bed full time?…
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Coping
I'm a caregiver for my Mom long distance. I don't have any support and I'm not sure how to cope anymore. She is declining and I feel she needs different meds because she is starting to show side effects. Not sure how to straighten this out. I've asked for help from docs but nothing changes or they are very vague on the…
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NYT Vaccines associated with reduce incidence of dementia
very very interesting information https://www.nytimes.com/2026/01/03/health/vaccines-dementia-heart-elderly.html?unlocked_article_code=1.BlA._5TY.m7ZpIEBHONeq&smid=url-share
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Device to turn off your gas or electric stove if left on
https://fireavert.com/
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Inappropriate Behavior
How do ytou deal with inappropriate behavior such as: Coming to dinner with no pants on —NO PANTS, peeing in the garbage can, eating with his fingers, alcoholism, I don't know how much longer I can put up with this. What can I do?
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Bible Verse to Lift You Up 1/1/2026
THE LORD'S GOOD PLANS FOR YOU AND ME Jeremiah 29:11 NIV For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. 1 Thessalonians 5:16-18 NIV16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for…