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Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…
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From NPR: Dementia Care without Locked Wards
https://www.npr.org/sections/shots-health-news/2025/11/17/nx-s1-5600877/dementia-alzheimers-care-housing-senior-living-inclusion-segregation
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Long term memory going / reality distorted
Last night, mom came upstairs and asked where our son was. I'm her son. At first, I thought she said "your son". I told her he was upstairs in his room. A few questions later, I realized she thought I was my dad. They divorced over 30 years ago... Last couple of weeks, she has been obsessively asking about dad and getting…
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Creating soothing activities using a busy or activity board
I understand that some activities like folding clothes or napkins can offer feelings of control, or be soothing for PWDs. Most are harmless, but PWD likes to scratch coffee stain marks from a sofa using a fingernail, or scratch off burn marks from a frying pan with a kitchen knife, and doing it repeatedly. It ends up not…
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Help with my sister
My only sister and best friend was diagnosed with EO Alzheimers at 55. I am spiraling and want to find a support group for siblings. Can anyone please help? Thank you. Juli
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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personal hygiene
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Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
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A very resistant FIL - clearly dementia but refusing to sign a POA, see doctor, etc
Hey all, hope you’re keeping well. I made a post about being new to this situation recently and was super helpful and supportive. I was looking for some more advice if possible! We are in the UK if that helps. My bf is looking after his dad at the mo who clearly has dementia. He wanders and gets lost in his two bed flat,…
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Early onset of my husband
I’m new to this group. My husband and I just moved abroad 2years ago when my husband retired. My husband struggled with depression after retiring, finding his purpose ect. Once he got settled in o started seeing some…missteps in his thinking. His dad is in his 80’s with Alzheimer’s. So I kind of thought this might happen.…
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How to Help My Sister Have Access to Spending Money
My sister is in mid-stage Alzheimer's and lives in an assisted living community. They take day trips to Krogers and other places and she enjoys buying things for herself. She used to be able to manage a debit card, but has lost it several times and can't remember her pin. She now believes we are withholding money from her.…
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Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…
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Oregon Caregiver Conference
This discussion was created to help Oregon and Southwest Washington caregivers stay connected.
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Correlation- Active Dreams w Movement and Dementia?
Hi, Has anyone else seen info that if you have dreams where you're usually fighting something off and you move/thrash, especially kicking or running motion, that it's an almost slam-dunk predictor of degenerative brain diseases? I saw a couple studies that got quoted in many news items.
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Volunteer's?
hi, I'm new to the Vancouver area and I'm in need of volunteers and entertainers, and any ideas of who to reach out to?
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Early in journey and feel it is progressing faster than expected
My wife has been diagnosed with early stage Alzheimer’s. She is on Leqembi infusions (7 complete), aricept but feel she is progressing. She is still working part time at Trader Joe’s and they are so accommodating…that is great for her to keep her going. She drives pretty much locally. Has anyone’s LO been on Leqembi…did it…
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Anyone Using Tack GPS device?
Hi, Just got a Tack for my dad, pretty good, but it kicks my husband off if I'm on and vice versa. I also only want to see where he is, not share my location but it keep wanting my location and drains my phone battery. Any ideas?
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Transitioning to senior living facility
Hello everyone - I am currently caregiving for my 87 year old mom since February of this year (I am her daughter and POA). We are going to move her to senior living in December and I need advice on making the transition happen. She thinks she can live on her own and doesn't think she needs to move. Does anyone have…
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In Senior Homes, A.I. Technology Is Sensing Falls Before They Happen
From the NYT: https://www.nytimes.com/2025/10/29/realestate/in-senior-homes-ai-technology-is-sensing-falls-before-they-happen.html?unlocked_article_code=1.yU8.Ql1h.G871_DJXIX_E&smid=url-share (free for 30 days)
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Caregivers Dealing With Menopause
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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recommendations for elder law attorney in Minneapolis/St. Paul?
I've looked at the links that could help me locate an elder law attorney, but I'm curious if anyone has worked with, and can recommend, an elder law attorney in the Minneapolis/St. Paul area? I always like getting referrals from real people who have "been there and done that". 😉 Thanks in advance for any ideas!
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Adult day care
My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.
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Caring for my grandma
My grandma was recently diagnosed with dementia and has move in with us a couple days ago. It's me, my brother and mom who all live here and we each help out when or where we need to. For the last 2-3 years, I've helped to care for my mom sometimes since she has serious health issues of her own. She has also been taking…
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Prayers appreciated
Hi my name is Charity and for the last 4 years I have been the live in sole cargiver for my daughter in laws aunt and was for her uncle before he passed. I have worked in Healthcare for 28 years and memory care and dementia have been the majority part of my career. I never thought of how hard it would be to become the live…
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Not Political... but for Texas voters on the forums
On the Texas ballot this November is Texas Proposition 14 which establishes the Dementia Prevention and Research Institute of Texas using $3 billion from general funds. The amendment would task the institute with researching causes, means of prevention, and treatments for dementia and dementia related diseases such as…
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shingles vaccine
A study, in Wales, found that the zoster vaccine reduced the probability of a new dementia diagnosis by approximately one-fifth over a seven-year follow-up period. https://www.nature.com/articles/s41586-025-08800-x The Zoster vaccine in the United States is no longer available, and has been replaced by the two dose…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with suspected dementia
Hi. I'm new here. I'm a granddaughter caring for a grandfather with suspected dementia. He has a lot of the symptoms of dementia, but hasn't been diagnosed yet. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the…
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Falsely accused of elder abuse
My husband and I help care for his mom who lives in an assisted living facility and has dementia that seems to be progressing more rapidly. Over the past five years since we have been helping her, she has been sharing some increasingly bizarre stories about members of her community. In the past couple of years, I have been…