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Taking medication in AL
Moms Al does not watch her take her medication. They set it on the table and leave. I was told when she moved in the it is policy that staff must watch residents to make sure the medication is take. This was important to me since I found stray pills all over the floor in her home and many more in old purses that she had…
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Just Had to Cancel Mom's Move. Again.
For the second time in a month, my mom managed to (mostly) schedule movers to take her from AL back to her home. The information she provided both times was either incorrect or incomplete. She's been in AL about 3 months. When I canceled the first move, I didn't tell her, which made her feel betrayed for not being looped…
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having a great time so far.
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What to do: working mom with 1 year old baby, family member with suspected dementia
Hi everyone, I'm new to this caregiver journey and looking for a place to share my story and any advice/words appreciated. I am a working mom with 1 year old baby. Recently, my husband and I came to suspect my mother-in-law to have dementia/Alzheimer's. I only learnt about this recently, but apparently for the past year…
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Visited mom in MC and found another resident sleeping on top of her bed
I visited my mom yesterday in her Memory Care apartment. The door was ajar. I walked inside and saw my mom in her bed under a couple blankets. To my surprise, there was a woman lying across the foot of her bed on top of it face up. Just sleeping there. I took a photo for evidence. Then went to get the attention of a staff…
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From NYT: When They Don't Recognize You
This should be a gifted link- https://www.nytimes.com/2025/04/20/health/dementia-family-recognition.html?unlocked_article_code=1.BE8.G3Pn.ikjbW50YMnR2&smid=url-share
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OBSERVATIONS & FEEDBACK
Caring for my DW at home. Early stage AD, complicated by recent stroke. Largely recovered from stroke and now eligible to resume donanemab infusions. DW in denial & angrily resistant to medical help, OT/PT, meds and any caregiver advice and acts. Lotsa verbal abuse & defiance. Observations: 1. We caregivers share similar…
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Hospice diagnosis
In reference to the lady I care for. I have a concern with conflicting information. Medical records from hospice Dr states type 2 diabetes. Nurse from hospice stated she was not diabetic. I mentioned this to her son and he had zero knowledge of his mother being diabetic. Should I press her son to get answers or am I being…
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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html
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A new experimental treatment - in a nasal spray
Something to keep an eye on. The study focuses on those with moderate Alzheimer's. Can this nasal spray slow down Alzheimer's? Once couple is helping scientists find out
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DH has a hernia should he have an operation
My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…
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Chamomile Tea for DH
Chamomile really helps ME sleep. Once I fall asleep, I sleep deeply if I drank some. It doesn't make me drowsy but once I fall asleep, I'm OUT! I'm thinking of giving this to him tonight. Has anyone else tried this?
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Tricky next steps
I'm really not sure how best to proceed here …. My former next door neighbor, V, in San Francisco, has slowly been progressing. I'm not sure whether he has vascular dementia, straight up Alzheimer's, or some other dementia. The last time I saw him (a month ago), his emotions were beginning to flatten out, and he couldn't…
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Toddler comparison
This is a rant. I’ve been caring for my DH who has been diagnosed with Alzheimer’s nearly 3 years ago which was at least 2 years after I had been begging for a diagnosis. When someone compares caring for a spouse with Alzheimer’s is like caring for a toddler I want to scream. It is such a dismissive comment for the person…
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Will There Ever Be A Succesful Treatment for Alzheimer's Disease
Some important findings about Alzheimer's disease came out from MIT and Harvard scientists recently that can be encapsulated in the following quotes: “One possibility is that maybe there’s more than one cause of Alzheimer’s, and that even in a single person, there could be multiple contributing factors,” Fraenkel said.…
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How do you Know when someone is going to stop walking?
One question I forgot to ask - my sister falls more and seems to lean to the right when she walks. How do we know when she's about ready to stop walking? I called the 24/7 help line and didn't get an answer to that question; I just got some tips on what questions to ask of facilities we are considering.
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Dementia Toolkit
although the following link is specific to SC - it contains a lot of useful info that would apply to all
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FDA approves first blood test from Fujirebio for diagnosing Alzheimer's
This can be less expensive than PET scans or less invasive than examining spinal fluid
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Sneaky "news"
Just a heads up- I've been noticing fake "news" Youtubes lately. Topics have been mainly political- they involve things like sitting Supreme Court justices or government officials sitting solo in Congress for hearings that never happened. There are tiny text disclaimers or slides saying "this is entertainment " but the…
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Falling and New Facility Decision
Hello, My sister has been in a MCF for over a year. We know she won't be able to afford to stay there forever so we put her on the waiting list at the State Run Vet's Home. They informed me this week they have an available bed for her. They've assessed her and believe they can take care of her. I have one issue of concern…
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New
My husband is in the process of being diagnosed. He has no short term memory at all. He has lost his desire to play the guitar which he used to do all the time. He is wanting me home all the time and to be with me all the time. He gets upset. He is now having this anger outbursts usually at night. He thinks I want to leave…
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From the NYT: A Ministroke Can Have Major Consequences
This should be a gifted link. https://www.nytimes.com/2025/05/17/health/elderly-tia-stroke.html?unlocked_article_code=1.IE8.BO37.xssaUFKSfe6y&smid=url-share
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Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
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Boundaries
Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…
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Constipation - Mom on hospice (and on soft diet) is constipated - suppository & food suggestions?
Hello All, Mom was discharged on Sunday from SNF to home for hospice care. She is on soft diet due to recent stroke. Her bowel movement since discharge indicate constipation and some impaction. In addition to some doses of Senna, Hospice nurse gave her a suppository last night which was productive (somewhat). But I can see…
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Real ID or passport problems
Hi everyone and thank you in advance for any assistance. I live in Colorado but my mother is in a memory care facility in SC. As her disease progresses, it’s just too hard to have her so far away. I’m desperately trying to get her to CO to a new facility but I don’t have her original birth certificate or SS card and she…
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help for a friend
I care three times a week for elderly woman who is mother to close friend. although early stages we shop shop shop i pick her up and drive her wherever she wants to go. we eat then shop she is allowed $60 a day and inevitably goes over forcing me to dig in my pockets which i do willing she is kind then mean and discusses…