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Where to find help
My wife has been diagnosed with MCI by the neurology department at Mayo Clinic. She functions normally in day-to-day activities: cooking, driving, personal care, and interaction with others. What's missing is the memory of recent events: times scheduled for events, meetings, community events. According to the tests, some…
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Ok - Need advice and suggestions multiple languages
I’ve become my mom’s full time care taker a few months ago. I sold my house, remodeled their basement and moved in to stay with her. My mom was my best friend we had fun together and did mostly everything together. She is 78 and we’ve been fighting this crappy disease for 4 years; unfortunately she is getting worse.…
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Urinary Incontinence/retention
My brother lives with me and is struggling with urinary retention. He has Alzheimer's and Down Syndrome. One option that has been mentioned as a solution is a Suprapubic Catheter. Does anyone have experience with this?
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Medicare GUIDE program
8 year program to provide help- hopefully a good start & will expand . 2 links below.
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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NY Times: Can Crosswords and Games Prevent Dementia?
Gifted link good for 30 days. Can Crosswords and Games Prevent Dementia? Experts say the answer is a puzzle. https://www.nytimes.com/2024/10/30/well/mind/dementia-brain-training-puzzles.html?unlocked_article_code=1.WU4.wf9A.a9CM36TJzQcw&smid=url-share Main take away: Perhaps Dr. Gandy summed up the debate best: “I don’t…
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Suggestions for daily activities
I am having trouble finding things for my spouse to do each day. He wants to be doing something all the time, but some tasks he simply can’t do successfully. Any activity suggested for a guy who wants to be busy?
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Getting Someone Diagnosed
Hello, my mom lives with me and I've been seeing signs of dementia, depression, anxiety in her. At times, she will say " I think there is something wrong" and when I suggest talking with a doctor, she immediately says "NO". I had a virtual appointment with her PCP and she couldn't believe what I was telling her. She said…
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Jekyll and Hyde
Has anyone else experienced their loved one being "in their face" for hours in the middle of the night screaming obscenties and accusations, forcable holding them down on the bed when they try to leave and then days later wanting nothing but sex from them?
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Article on long term care insurance
Not the most cheerful topic…. https://x.com/barronsonline/status/1849308096327246291 Covers the history of insurance , recent premium issues etc.
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PWD asks what are symptoms of dementia
PWD asks me what what are the symptoms of dementia. I was truthful, and PWD (with anosognosia and living at home) would say "Well, if one gets to that stage, one need to get placed into a facility". There was little realization that PWD already exhibits some of these symptoms. PWD probably has been thinking of the topic,…
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Mom is in psych hospital after suicide attempt
anybody had their person in a psych hospital ? How long did they stay , how does the evaluation take place ? We don’t have much information, Mom was admitted a week ago , after suicide attempt they don’t seem to do anything apart from monitoring her , and want to meet us in 10 days we are all (kids) at the end of our rope…
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Michael Ellenbogen's Observation from the Alzheimer's Association Conference
Michael wrote an article sharing his experiences and observations from last summer's Alzheimer's Association International Conference. He let me share his article with you. https://www.mathewsopenaccess.com/journals/neurology/abstract/aaic-2024-from-the-perspective-of-a-person-with-dementia
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Puzzling Symptom Improvement
DH is physically in Stage 7 ALZ and has been in hospice care for 11 months. He also has CHF and effects from a stroke in June 2023. The past 2-1/2 weeks have seen a major change for the better in his mental skills and alertness. Before, he often didn't know who I was, didn't speak beyond "Yeah" and "No", and slept about 20…
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Hospice medication changes
Mom has been on hospice for two weeks. She’s been extremely anxious. Hasn’t left her room much at the AL, had her meals brought to her room. The first week she kept accusing me of abandoning her to the hospice staff( I was there 5 times in 9 days). The second week she called me 3 times a day with the same questions: what…
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Transportation Services
Hello, I am looking for recommendations on transportation services in the East Metro of St. Paul Minnesota. thankyou!
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NY Times: When Dementia Changes a Loved One’s Personality
Link shared for 30 days. The article has many good observations such as "boredom can cause mood swings" https://www.nytimes.com/2024/10/23/well/mind/caregivers-dementia-mood-changes-management.html?ogrp=ctr&unlocked_article_code=1.Vk4.cyQb.h1Cqo3bOKJ9O&smid=url-share
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Cognitive Stimulation webinar
From Michael Ellenbogen: Reminder : Registration is open for the National Alzheimer’s and Dementia Resource Center’s next webinar on August 27, 2024 from 2:00-3:00 p.m. ET, Cognitive Stimulation Therapy Programs: Directly Supporting People Living with Dementia. Additional information about the August 27th webinar and the…
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Long term care
How have you handled the transition to a care facility? Mom has intermediate ALZ, and it is starting to progress rapidly. My dad has almost died 2 or 3 times this year due to the stress of being a caregiver. Right now mom is in a COA program, I do the cooking, laundry is done by my sister or me, and my siblings and I…
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How to handle critical relatives
I have a question that I'm sure has been covered before. How do you deal with relatives who don't help with care yet are full of advice and are somewhat critical if anything happens with your loved one. More specific my mother has a UTI and on her birthday my sister and my aunt asked when am I going to place my mother in a…
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Selling my Dad's car without the Title in CA
We need to sell my dad's car, now that he is in an AL/ MC facility. I have the POA, but not able to find or access the Title ("Pink Slip" as we call it in CA). Any suggestions on how to do this through the DMV?
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The simplest decision is too much
Mom may or may not have a UTI. Hospice ordered her an antibiotic. She’s been on hospice for 5 days. Due to cognitive decline. Today was another sad day for me. She called me at 11. Basically it seemed to me that she was looking to be told what to do. So I told her to get dressed and go to the AL dining hall. Lunch would be…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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going without mom to Social Security for request replacement card
Dear friends, tomorrow I am going in person to the Social Security office to request a replacement Social Security card for my mom. In the process of requesting the appointment the algorithm stated I would need "medical certification" why my mom could not present herself. Also, I am my mother's power of attorney; I do have…
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new
Hi, I thought I sent a message but I don't know how to see it. After I post this will I be able to easily see the responses? My sister was diagnosed with Alzheimer's/Dementia last June after a PET scan. We finally have the follow-up appointment with her doctor Nov 7th. How does the doctor determine what stage/level my…
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Humor from my PWD
Me: are you sleeping? Her (with eyes closed) yes I am. Me: and talking too! Her: (eyes still closed) I’m talking and sleeping. I have many talents.
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New here
Thought I would introduce myself to the community and glad I found it. DW was diagnosed recently with AD after a lengthy and somewhat frustrating medical journey. She’s 55 and pretty far along as far as the scales go-in the 6’s. Anyone have any insight into the awareness of the disease. She seems pretty aware of what’s…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Attempted suicide and does not remember
She attempted suicide this morning with a knife , struggling with staff, they sent her off to a mental hospital and now she does not remember … Anybody experienced that ? Wondering if Alzheimer alone is causing this or another form of dementia or mental illness
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Genetic tests showed that certain patients were predisposed to brain injuries if they took Leqembi
NYT: What Drugmakers Did Not Tell Volunteers in Alzheimer’s Trials Gift link. https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?unlocked_article_code=1.UU4.KqG8.FPSRwXrExKTl&smid=url-share