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Rapid Progression
The progression of Alzheimer’s can jump suddenly. My wife was diagnosed in July 2016. Her rate of decline stayed fairly steady until last December. In memory care, she walked 12 to 18 hours a day, she could feed herself, and she talked a lot of word salad. In the middle of December she was hospitalized with a urinary tract…
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Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
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Everything Relying on a HATS (Healthy Aging Transition Services) Assessment????
I'm new to this group and have found the information very helpful. In January, I moved my 75-year-old sister from Florida, where she had lived for 47 years, to central Indiana. Before the move, I was aware of her memory and vision issues, but now, two months later, her cognitive abilities and vision seem to have declined…
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Leqembi - medic alert bracelet
What are people putting on medical alert bracelets for LOs on Leqembi so that they aren't given an anti-coagulation drug accidentally? I'm wondering what words are best to convey this in a small space.
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Palliative Performance Scale
My wife was diagnosed with Alzheimer’s in July 2016. To keep track of her progress I used the Global Deterioration Scale, also known as the seven Clinical Stages of Alzheimer’s. She was recently placed on hospice and I was introduced to the Palliative Performance Scale. I shared it with a friend, whose wife is in the…
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Inhaled aromatherapy improves cognition in those with cognitive impairment
Unfortunately, I don't have access to the whole article, but here are some of the key findings from this meta-analysis. The effect of inhaled aromatherapy on cognitive function in patients with cognitive impairment: A systematic review and meta-analysis Inhaled aromatherapy improves cognitive function in patients with…
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Dementia caregivers in the UK
Is anyone here from the UK?
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Scam phone calls
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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When is the right time to intervene?
Hello, my mom is 76 and has been living alone for a little over 10 years after losing my dad. She has heart disease along with artery disease from genetics and smoking 2 packs a day for over 30 year......damage is presenting now. Most of the time she doesn't know what day it is, she can't do her bills or sort her meds…
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Incontinence
Has anyone had success using a wireless floor mat alarm? If so, where did you purchase it?
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Easy website for answering questions about my father's condition
My father has had Alzheimer's Disease for the past 7+ years and has progressed into a later stage. I've had lots of questions along the way and I'm finding it really frustrating to search and visit lots of websites for simple answers. Just discovered pfizer has a new website that answers questions. I put in some questions…
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Thank Your Past Self
Please take a moment and think about something you did in the past, that makes your present situation better. When I started caring for my parents, as I began each visit, I made a new note on my phone. It was always titled Thank You! Each time I benefited from one of my past actions, I put a hash tag on my note. For…
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Retaliation after ADA Accommodation Request
Does anyone have any experience with retaliation after an ADA Accommodation is requested/approved that you would be willing to share/discuss?
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New research angle- Sugar
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Driving
How do I begin the conversation with my DH who is beginning to show signs of driving incompetence. He rooms over to the lane beside him and straddles the lane lines, he hits the brakes abruptly when he gets in a close situation or even when pulling out of our driveway and sends me forward without my seatbelt on yet even…
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Pill frustration
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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Alzheimer et placement
Bonjour, Mon mari est atteint de démences diverses dont alzheimer, il est gir2. Je travaille encore et il est seul à la maison et passe son temps dehors à m'attendre. Quand je suis à la maison il me suit partout. Il ne sait plus se laver, s'habiller, manger et a dû mal à aller au toilettes seul. Je culpabilise à l'idée de…
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New to group and majorly overwhelmed
woof1980 She/her/hers / Ella Member Posts: 1 MemberFebruary 23 edited February 23 I'm trying to care for my grandmother from about 5 hours away. Her memory is declining quickly. I'm the only family to help her. I do have an aunt that lives 20 minutes away from her but my grandmother only trusts her so much and my aunt…
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Geno test showed AD4 EO
Don't have a diagnosis yet but I do have some symptoms like sometimes I think I see things that aren't there and sometimes when I'm driving I forget where I'm going even though it's only for a minute or two. Are these early signs of AD4? just wondering with somebody else's experience I am 54 female.
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Congestion
I am wondering how all of you handle your LO when they are congested and can no longer blow their nose?
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What to Do When My Grandmother Brings Up Her Dead Brother
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Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition9 Have not I commanded you? Be strong, vigorous, and very…
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Bible Verse to Lift You Up 2/23/25
GOD’S GRACE AND DOING GOOD Ephesians 2:8-10 New International Version 8 For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— 9 not by works, so that no one can boast. 10 For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in…
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NIH Research cuts?
I saw a post on social media this week that there were cuts being made at the NIH. My husband died in August from Alzheimer's and I have been fighting cancer since 2017 so this worried me greatly. Also my daughter works for a major cancer hospital that receives funding for cancer research So I decided to look into it…
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Trying to understand the crying/sobing
Every time one of her kids visits her at the memory care (every 2 days ) , she is lying on her bed crying and often sobing.. It take at least 15 minutes to console her (she does not know why she is crying ) and then everything is ok , and she is in a good mood when we leave . Is she really in a turmoil or is it the brain…
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Journey's end
Fellow travellers on the dementia journey: for most of the last 17 years I have been a sporadic visitor here. Apologies for being out of touch so often. I have always found this place to be a great source of support on my caregiving journey and I am grateful to so many friends whose location and names I will never know.…
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Picking at skin
please help! My husband was diagnosed with Lewy Body dementia. He picks at his arms, face, hands, ears and legs. Today he picked at his hands from morning to night. I can’t keep him preoccupied long enough to stop. I put bandages on him but he takes them off. I’m at a loss and he’s getting more and more open areas…
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Taking the car keys
Hi - I'm new and this is my first post here. My 86 yo dad has been diagnosed with Alzheimer's and dementia and was told not to drive by his Neurologist at the time of diagnosis a couple of weeks ago. I took the key fobs but he found the backup manual keys. I am trying to avoid a confrontation when I take the remaining keys…