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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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Cymbalta
my wife was always on 30mg a day Nurologist up to 60mg twice a day for depression, anyone have good results
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Mental illness and memory care
Hi all! I'm facing a decision about increasing my mother's level of care, and I'm getting very different messages from professionals. I'd appreciate any advice or input you have about what questions to ask or factors to consider. My mother has longstanding mental illness with various diagnoses that features an explosive…
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NYS CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)
Anyone live in New York and get the CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)? I am thinking of moving back to NYC with my PWD because I suspect rates and services through Medicaid there might be greater than what we hav ein rural Mass. Please share what you know. Thanks. PS we have a place to live so no…
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New to this. DH with MCI due to AD
Hello. I'm so glad I found this support. My DH, 66 yo, was diagnosed with MCI due to AD in July 2025. I noticed ST memory loss for about 5 months prior, had his PCP do a MOCA where he scored 24/30 which led to Neurologist, PET (significant beta-amyloid plaque), pTau .33. He failed Aricept due to GI issues; is now on…
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Support Groups for DH
Hello Again - I have found so much support for me, as a spouse of a DH, but not so much for my husband, or for the both of us to attend. He is still at a stage where he might benefit from others' perspectives. Mostly, I'm looking for outside validation for things like driving… Warmly, —CydS
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Newly diagnosed? Free Zoom workshop tonight 9-23-25 for newly diagnosed.
https://www.facebook.com/share/r/17L5XA7FCc/?mibextid=wwXIfr saw this on Facebook. Newly diagnosed? Don’t know how to prepare for the future? FREE Zoom workshop tonight, Tuesday Sept 23, 2005. Link tells what time.
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Baby Monitor, LifeAlert type necklace, or other option best for Mom with Alzheimer’s?
Short version of our situation: my sister, brother and I are caregivers for my Mom. She’s 7 years in now (4 years since official diagnosis). We live split across a duplex, and there’s usually at least one of us on call. We had been able to leave her by herself for a couple hours if necessary, but that may be changing. I…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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We need a Plan B
I lost a favorite neighbor this week. She was caring for a husband with Parkinson's but was diagnosed with pancreatic cancer three months ago. He is now in a nursing home with hospice, and her funeral was yesterday. We may intend to care for our LOs to the end, but God may have other plans. It is important to have a plan…
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Taking advantage of not remembering
I think others have mentioned this but I take advantage of PWD's inability to remember in order to avoid problems. For example, PWD tries to peel label off of a bottle (salad dressing, or whatever), but fails since it's difficult and can make a mess or spill things in the process by forgetting to cap the bottle. Rather…
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New to all of this as a caregiver
My brother Jim(not his real name) was recently diagnosed with Alzheimer's. They said he's at the beginning of it's advanced stage. Our other brother, Max, has been living with him and taking care of him, but he's sick too and his illness will be fatal within the year. I'm stepping up to help Jim after Max passes, likely…
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PBM Redlight VieLight Therapy
Has anyone explored or even tried therapy with photo bio modulation also referred to as red-light therapy? There is a device that has some clinical trials (very small population). It is called Vielight and has a very extensive website with reports on testing of the device. I have been trying to evaluate if it is worth a…
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Help for Caregivers of Veterans-Elizabeth Dole Foundation
The Elizabeth Dole Foundation offers assistance for caregivers of veterans who were wounded or have an illness such as dementia. The veteran does not need to have a disability rating. They offer financial assistance, mental wellness, financial wellness course, webinars, and assistance navigating the VA system with aid and…
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Organizing home care
Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…
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Stopped Memantine
Hey everyone! So I just wanted to share a bit of my journey with my Mom with Dementia. We were giving her Memantine and the whole time she was on it she was having vivid dreams that woke her up and made her really upset in the mornings. We consulted our doctor and we stopped taking it. There have been fewer wake ups and no…
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beginning this journey with my mother. feeling alone
Hi, I feel really alone. I am new to all of this. This is the first time I have gotten into this website. Will have my first support group meeting next week. My mother lives far from me and I believe she has some sort of dementia, but early stage. My mother's short-term memory is not good. She has forgotten how to use the…
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Notary for Power of Attorney in Pennsylvania - Questions
Loved one has dementia. Some days are more lucid than others. They need someone to handle their affairs though. Loved one has not paid property taxes or filed tax returns in a couple of years. We just paid their property tax for them (5K) although they have the assets to do this themself. The social worker at the memory…
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New to ALZ Site - Caring for LO With Dementia
New here to the community, caring for a parent with severe dementia and their spouse. LO had a serious fall a few weeks ago, resulting in a brain bleed. Another fall or progression led to acute/chronic bilateral brain bleeds. LO had urgent brain surgery to alleviate this. Spouse is finally waking up to the fact that LO w/D…
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Lessons learned Mom's stroke, husband's Alzheimer's & Step-Dad's stroke
WARNING!! LONG POST. I've been thinking about this lately. I remember being lost and overwhelmed after my Mom's stroke several years ago, my husband's diagnosis of Alzheimer's 4 years ago and my Step-Dad's stroke last November. Some I learned through the school of hard knocks & some I learned on this forum. I hope this…
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Running out of money with no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Suspecting Dementia, Trying Not to Panic - Money Worries
My beloved husband is showing signs of cognitive decline. I'm dealing with the emotions and "what-ifs" throught therapy. I'm posting this duen to practical questions: - My 69 year old husband's work is our only source of income. - If he loses his job due to dementia how will we get by? We have no savings and rely on SS,…
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Always tired
is always feeling tired even when just getting up part of this illness? Wife doesn’t sleep all day but does nap watching tv a lot
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MC in Minnesota
Does anyone have experience with any of the SuiteLiving facilities in the Twin Cities?
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Testing for type of Alzheimmer's
My wife's primary care doctor asked if I wanted my wife to be tested to see what kind of Alzheimer's/Dementia she has. I decided not to have her tested because of the stress she would endure taking the test. The way I see it, and I told the doctor this, is that doesn't really matter 1hat kind it is. There's no cure so what…
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What tests did they use to diagnose your loved on with Alzheimer's Disease?
My mother is currently in the processed of being diagnosed. The doctor is doing a few blood tests to rule out reversable causes for the cognitive difficulties but otherwise says no tests are needed besides a brief cognitive measure (MOCA) to diagnose Alzheimer's. What was your experience like? Did they do more testing or…