-
Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
-
My watch over dad has ended and it feels so empty
My dad took his last breath in this life just yesterday. He was 89 years old. He and mom, who has dementia and is in memory care, were married 65 years. I moved both to an ALF about four months ago. I think my timing turned out to be just about right. I thought the world would look different without my dad in it, but it is…
-
Early Stage ALZ and hallucinations
Hi all! My Mom is 85 years old and has early stage ALZ. She is living in a senior living center (as assisted living) and loving it. She generally does quite well, just the bad memory and confusion from time to time. While she was living in her home (with her husband who has since passed away from lewy body), she was having…
-
Rehab facility won’t restrain LO for safety; legal?
LO in rehab after breaking hip. Won’t sleep in bed, sleeps I. Chair and fell out. Facility says they cannot “ safety belt” her in the chair or restrain her in any way. Just got a call back… she is unresponsive and going back to ER. I live 3 hours away. Why can’t she be secured for safety purposes? This seems like negligence
-
Sedation for MRI?
DH had brain MRIs and is now totally against another. He said he won’t do “the coffin “ …But he may have NPH and neurosurgeon needs MRI of spine. The possibility of him getting back walking ability etc by draining some excess spinal fluid with a brain shunt is all new to me but that hope makes me think it’s worth trying to…
-
Broke my heart
My DH has done nothing for 2 years,besides watch TV and feed the birds and squirrels. Here in the last 2 weeks he has been cleaning out his man cave( which was disaster d/t I'm not to move or touch anything). He hoarded box's? Today I ask him what was going on with the cleaning? He said 'I'm aware of my mortality and I…
-
NPH Discussion Group
I am interested in Normal Pressure Hydrocephalus (NPH) for my DW. Searching these message boards turns up a lot of useful information, often referring to a Yahoo Group on the topic. Yahoo shutdown their groups in 2020. Does anyone know of a similar discussion group that is currently active? Thanks
-
Care.com settles with the FTC over misleading claims
Good to know. Care.com misled caregivers and families — and made it 'impossible' to cancel, the FTC claims
-
Sundowning
No formatter is installed for the format not-found
-
How to pay for AL
Mom was diagnosed with vascular dementia 1 and a half years ago. She has been in AL about 6 months. She has enough money now to pay for 1 more year. We have been to the lawyer and I have DPOA, she made a will, a living will, a medical POA and a ladybird deed (at her death the house goes to my brother and I and there can be…
-
Any suggestions for a toothpaste that is safe to swallow?
And preferably does NOT foam. How do you manage oral care for someone that is unable to rinse and spit? My primary concern is keep her mouth sufficiently clean to avoid excess bacteria and minimize the risk of infection. Thanks everybody!
-
Support for the spouses or partners of dementia caregivers!
:/ Is there any information on support groups for the spouses or partners or the caregivers or info on what it can do to a relationship or marriage? Any information is greatly appreciated!
-
MedicAlert bracelet or something else?
MedicAlert Foundation sells bracelets and monitoring. Family notification is included at the $55/year level and for $75 they will "work with local authorities to get them home." Alternatively I can just buy a similar bracelet on Amazon and have my cell number engraved and skip the monitoring. Does anyone have opinions on…
-
Frustrated
does anybody feel like they are frustrated and can’t do anything all I’m doing is a Word Search online and it feels like I can’t even do it.
-
TV help
I just heard about Jubilee TV. A caregiver can control a LO's TV from afar via a smartphone app. This might solve a lot of headaches. Iris
-
Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
-
The incontinence blues - I'm not handling it well
We've had a couple of rough days. Over the last few weeks my husband has moved into full time incontinence. He's been incontinent for a while, but until a few weeks ago it was almost always urinary and not all the time. Then The last 48 hours... Fecal incontinence and he's fighting me hard on clean-up. He won't let me…
-
Behavior: Dangerous, harmless and something in between
When I see a PWD attempt something dangerous, I put a stop to it, even if it results in some agitation or disagreement. For example, despite my best efforts, a PWD can attempt to jam a fork into a live electric toaster to pull bread out. So I can't "live in their world" in this case and sometimes I can't spend every single…
-
Visiting friends said parents looked great not sure how to respond
First of all, my parents do not "look great" as a family friend told me after she visited my parents at their ALF. To me, it is so obvious they both are on a decline with several challenges that have taken a toll on me emotionally and sometimes physically and I find such a statement is invalidating. How do you reply to…
-
We have not yet been offered any dementia specific drugs
Is this problematic? My mom has been difficult to diagnose. Thankfully she did stay at the doctor's office long enough to get a cognitive assessment which diagnosed her with moderate to severe cognitive decline from unspecified disease. I have another post here about the mess with trying to get medications for her (the…
-
removed
-
@ Lane Simonian
Lane, I have had insomnia for many years and have been on several different classes of sleep aids. Do you have a suggestion for an essential oil to help me get to sleep? Iris
-
Incontinence Anecdote
I used to tell my children that, when they have children of their own and we are visiting, to not ask me to change diapers. I changed all of theirs and I would never change diapers again. I never should have said that.
-
Dementia -Sexual comments
My Father has made sexual and lewd comments to me. It is very upsetting and frightening. Since I am his only care taker and he is living with me. Is there a way to stop this behavior?
-
Crowd visit
MIL is an only child but has lots of cousins - she grew up with them but hasn’t seen most of them in at least 30 years. Now a long lost cousin is planning to visit. This is probably a good thing - MIL loves visitors and may remember this cousin from her childhood. But the cousin is bringing 4 children and Grandchildren…
-
One phone call, so many emotions
Mom called me about an hour ago. Her first words: when was I coming out because she hadn’t seen me in so long. I was there at the AL yesterday. I reminded her of what we talked about when I was there. She remembers that she woke up yesterday morning without her oxygen running… but she can’t remember I was there yesterday.…
-
New to this support group full time caregiver for my grandfather
Hi I'm Ebony I'm 37 and am currently a full time caregiver to my 81 year old grandfather. My grandfather originally lived 10 hours away in SC. Last year I moved my grandfather from South Carolina. Social service got involved and were going to remove him from his home because he is unable to care for himself ex... not…
-
Exercise Suggestions?
The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…
-
Power of attorney?
* My grandma has late stage Alzheimer’s . Her husband is primary caregiver . How do we go about obtaining a power of attorney ?
-
Anger issues
Anger has not been an issue with my wife, but I have a friend whose wife does. She gets angry, shouting and making accusations. Then she isolates herself in her room and refuses to talk to anyone. She resists doctors and medication, so he may not be able to get her any treatment. My wife had a three-year obsession with…