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Mom recently entered MC and not sure if I should visit
My dad recently made the difficult decision to place my mom in MC. We dropped her off just over a week ago and she is having a very hard time adjusting. She goes between being angry at my dad and desperate for him to bring her back home. I was cleared, so to speak, to visit 4 days in since she was not asking for me and…
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Foreign Language
Every day when I pick up my beautiful 73 yr old DW from the Activity Center she is very happy & excited to see me . Unfortunately, the minute she gets into the car she starts blabbing & speaking this “ foreign “ language” non stop …… Yes ! Another condition I was afraid off …. Receptive Aphasia. All I can do “go with flow…
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Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's
Been hearing a lot about this book recently through podcasts and interviews with the author. Very important to know about this misconduct in the Alzheimer's research field. It's so discouraging to know this is happening. Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's…
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Pros and cons of a safety gate
I've read other posts on safety gates, such as the ones used to prevent falling down stairs. Do you have experience in using a gate to prevent entry of a PWD to a kitchen? I suspect it will cause intense anger, but let me hope I can control that. I've tried to use distractions to prevent PWD from entering the kitchen and…
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Living situation options
Mom has been recently diagnosed and extremely suspicious of Dad. So much so, that she does not want to live with him. She has wandered twice, but I've been quick enough to corral her which was tough even though I work from home (if it keeps happening, I'm sure my job wouldn't appreciate it). The second time was especially…
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Phone concerns
Hello. I'm new on here and newer to this in general. My great aunt is in AL and was diagnosed with dementia back in November when she was declared incapacity by 2 doctors. She doesn't want to accept this. She is constantly using her phone to make calls to the library to get phone numbers. To call her insurance company and…
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How can I stop seeing a particular discussion?
I love this site and the community brought together by this horrible, isolating disease. Sometimes a discussion goes to a place i don't want to see and I would like to stop following that single conversation. Is there any way to block just one conversation? Thanks jehjeh
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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Long term concerns
Is anyone else in the US watching news stories and getting more and more concerned about the state of affairs outside of your situation that affect your situation? All this talk about Medicare and Medicade cuts, stock market dumps, getting rid of the FDIC, etc. It’s already stressful to be a caregiver. We already worry…
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Why do i feel the need to be right?
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When to make the move to AL or MC?
My mother is 82 and in the mid stage of Alzheimers disease, losing everything, can't find anything, squirreling away anything of value because she thinks that someone is stealing from her, only eating one meal a day (because she is not hungry and doesn't want to gain weight), getting confused with paying bills, missing…
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Hi .. I’m new to the Discussion part
I am the caregiver for my husband. He has been diagnosed with likely Vascular Dementia and some Alzheimer’s plaques also. We did participate in a Clinical Trial for Eli Lily’s newest plaque destroying drug til it was discovered that he had more than moderate (not quite to extensive, but close) White Matter Disease. He was…
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Easy ways to help loved ones understand
My husband has Alzheimer’s. How do you tell a loved one with Alzheimer’s that family members of theirs have died a long time ago. Do you lie and change the subject? Do you tell the truth? I really need some help with this thank you.
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How to diagnose Dementia vs Alzheimers?
What are the steps to take when you start noticing memory, confusion, fear, sleeplessness etc. Thanks so much!
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Ftdcaregiver1
@FTDCaregiver1 I saw your comment (on a different discussion ) about losing your loved one this week. Just wanted to tell you I was sorry for your loss.
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Ten Depends a Day?
My dad recently transitioned to memory care from assisted living. After he moved, we noticed he is using 9-10 Depends a day. A caregiver there noticed that he is wearing three pair at a time. I have gently asked about how he uses Depends. "What may be going on, to cause a burn rate of 10 a day?" His replies are defensive,…
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PWD needs to go into AL, says she wants to, but won't cooperate.
I have DPOA, and I'm my PWD's only remaining kin. Once a very prim and proper woman, she now yells verbal abuse at me regularly and even curses sometimes - completely opposite her former behavior. We had toured a facility last year, and first she said she liked it, then later she said absolutely not. Recently, she's been…
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Home care services in Omaha
My brother will have to move from assisted living back to his partner`s appartment. I`m visiting from Germany and trying to help. He will need 1)someone to come in 4 hours a day to relieve the caregiver 2)Showering and clothes change 3 times a week 3)some meals brought in. Initially it will be out of pocket. So many places…
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Professional Guardian
Has anyone had any experience using a professional guardian in Colorado? I am working on getting a petition for guardianship filed but do not want to be the guardian myself. While I reside in the same state, my relationship with my father has been very bad for many years and I am frequently out of the country. There is no…
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Alzheimer's affects friendship and financial safety
Hello all, so very saddened and surprised today when I got a call from my friend of 25 years "blaming me for her failure not to win millions of dollars in Publishers Cleasringhouse sweepstakes". There is a lot of background to this story covering the last 3 months, suffice it to say I had noticed a slow declination of…
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UTI Test for Incontinent?
Hello. Is there any way a nursing home can test a patient who has Alzheimer's and is incontinent? My mom is 87, and recently, her agitation and combativeness have continued to escalate. She is hitting, biting, scratching, screaming, and, as they said, "speaking in tongues." She sleeps mainly all day and does not eat as…
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Daughter to Mother with Dementia, just moved from the Lebanon to Los Angeles
My mother, almost 79, was diagnosed in November 2020. We've had to move out of our home of 20+ years in order to make a new life here. The move has been really hard on both of us, especially her. My dad had to stay behind until he can get his visa to move in with us. Her body is suddenly failing to do simple things, she…
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step down symptoms of vascular dementia
Hi, my mom was diagnosed 9 years ago with vascular dementia. She is currently 92. Does anyone know the stages or steps of this disease? Just trying to better prepare myself. I am her only caregiver.
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Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
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They are still there
My wife was formally diagnosed with early onset ALZ in 2018 at age 61. Her symptoms had started 2-3 years earlier. She was enrolled in a research protocol in 2019. Unfortunately the disease has marched on and now she in in a memory care facility with late stage disease. It has been a difficult journey. One thing that keeps…
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Cost of Memory Care
If you have a LO in memory care or you've done some pricing please post the prices you've found/paid and whether Medicaid or Medicare cover any of the cost. I am in Massachusetts and the average cost of memory care (according to Google) is $8,500. I am sure you can pay much more. Thank you!
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Hospital bed time. Moving really fast
I added an Update in the comments I got a call tonight from the AL nurse. Mom rolled out of bed tonight. Since this counts as a fall ( in my opinion), it’s three falls in 9 days. The AL nurse had previously told hospice that mom didn’t need a hospital bed as her platform twin bed raises and lowers at the head and feet. I…
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In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
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New Alzheimer’s treatment being studied!
https://scitechdaily.com/a-breath-away-from-a-cure-how-xenon-gas-could-transform-alzheimers-treatment/