-
How to Persuade Loved One to accept Day Care or Home Help?
My family has just intervened, to help me accept that DH should no longer be home alone. I’ve tried to persuade him that we need more household help, but apart from periodic cleaners he doesn’t want anyone else in the home. He is still strong and able bodied, but making so many poor decisions. I do think he would benefit…
-
Our last mile
*posting in spouse/partner forum too Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct.…
-
Refusing to eat/doesn't like food
I'm a part time caregiver for my grandma; she has alzheimers. We are at the stage where she doesn't like most foods. And even if we try to encourage her she will spit it out. Any advice? Things that have worked for yall? Even food supplements?
-
Showering /refusing/thinking they have
I am a caregiver ,been one for 5 years. I have not ever came across anyone with this type of situation before. My client refuses to shower. She states that she already has taken one either morning or night but has not. Family has cameras up that proves she does not shower. I have used many tactics as to we can go to dinner…
-
60 minutes interview
This was posted by a neighbor. Can you imagine being worried about retaliation for speaking about Alzheimer’s research?
-
Opinions please!
Hello, I am 50 years old and both of my parents have been diagnosed with Alzheimer’s within the last 3 years (both of them are 77 years old). I also found out that I have the e4 gene (only one instance though). With this info, my PCP wants me to go to a neurologist. Would you go at 50? What if they see some signs? Or is it…
-
Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
-
How often do you visit your LO in Memory Care?
I am sure there is no routine or common visiting schedule. Someone recently asked me how often I visit my mom, and I told them about once a week. In reality, it is less than that. I guess I thought if I told them the honest truth, I would sound like a horrible person. Truth be told, I could visit my mom every single day…
-
how to pay for long term care/MC
Hello, My father has unspecified dementia-has never been officially diagnosed. Like others, he refused to go to an MD in fear of being "locked up" in a nursing home. Now he's in the hospital- which brings up future plans of LTC or MC when the time comes. However, my mother has no Medicaid, no long term care insurance, and…
-
My first post - coping as a young person in a family with a history of alzheimers
Hello, I am a 24 year old woman who helps to care for my grandmother who has alzheimers. I live about 3 hours from her, my mom and grandpa are her primary care givers. I make trips to visit about once a month. I have joined this forum in hopes of finding folks to talk to about my experience as a young person who has…
-
How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
-
Lumbar puncture?
I have read multiple posts in which loved ones mention their PWD getting a lumbar puncture as a diagnostic procedure for Alzheimer's. My question is this? Isn't that terribly painful and is it worth putting my LO through for a definitive diagnosis?
-
I'm sorry for the download. I thought I was typing in another place... sorry. If I don't belong here
→ Shaun has joined S Shaun 16:46:51 first time here But I need help S Shaun 16:48:27 My step-father has dementia, Alzheimer's. S Shaun 16:49:58 we have him in a memory care unit nearby but its REALLY complicated. Not him being there. It's the urge to get him out S Shaun 16:52:29 ok going to stop with trying to make this…
-
Caregiver
I started caring for my ex-husband who was diagnosed with Alzheimer’s last August. We have been friends since we got divorced over 30 years ago. I sold my condo that I lived in for 23 years and sold his home and we have a mutual home now. I knew that this was not going to be easy, but I really didn’t know how difficult it…
-
Pictures from Michael Ellenbogen's Trip to Africa
Attached are amazing pictures from Michael Ellenbogen's trip to southern Africa. Some of you know Michael from his time on this message board. For those who don't, Michael has dementia and has been a global advocate for people with dementia for many years. Enjoy the photographs.
-
What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
-
When Does Long-Distance Caregiving Stop Working?
-
Does It Matter?
My mom has been living at a Memory Care Facility for a little over a year (but has had dementia for approximately 8 years) and while she still knows people that have been in her life for a long time, she essentially has no short term memory and is "stuck" where she was about 8 years ago (living in the same house, my dad…
-
Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
-
Urinary urgency
My sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and aMy sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and a half ago. She has always had problems with urgency, but now she wants to go every five minutes. She had a number of falls so now…
-
Spouse prone to anger if I disagree
My spouse might be angry about a person or incident and insist that I give her a simple yes or no as to whether I agree with her. I cannot in good conscience agree but if I don’t I know she will be very agitated and angry at me. Or she might be demanding that I tell her I will do something very important to her when I’m…
-
Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
-
bathroom issues(6)
Hello this is my first post and am willing to listen to any/all recommendations for this problem. Has anyone experienced the loved one with dimentia having poop problems? The issue is she seems to some time poop on the floor. She also puts her hands in her poop. Today, I ended up loosing my cool when she had poop all over…
-
PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
-
State Law Regarding Patient to Employee ratio at Memory Care Facilities
Did you know that the State of Florida allows the same ratio of staffing for Assisted Living residents as it does for Memory Care! How is this possible when many of those in Memory Care required much more daily support? As individuals we are helpless without the support of organizations like the ALZ Association and…
-
Took part in Alzheimers Research study
My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently participated in a research study looking for the biomarker for Alzheimers. Blood tests showed I have the biomarker for Alzheimers.…
-
Need help accepting caregiver
We're trying to hire a caregiver/helper for a few hours a week, but my wife is very private and gets angry at the idea of having someone else in our home. We need some advice on how to resolve this. Thanks.
-
This may be crazy question.. but has anyone ever heard of someone staying in say Stage 4
has anyone ever heard of this ? I’m curious or hoping has anyone just at a say Stage 4-5 and never going further. ????
-
Frail Elderly Waiver
If your loved one has a frail and elderly waiver, please tell us what services they get through this program. (Bonus points for Massachusetts). Thank you.
-
Sibling does not help nor gives support!
I have been a caregiver of my Mom since 2017. Her onset was around age 66. She is now 77 Years. Even before her diagnosis which was offically at 70 years ( I had known she was losing her memory) my twin sister never wanted or even wants today to deal with it in any way. Not only has very minimal contact with our Mom but,…