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When to tell family and friends
My DH was diagnosed with Alzheimer's 2 years ago. He is ashamed of this disease and didn't want to tell his family; including his daughters. I did tell his daughters he was experiencing symptoms and the results of his tests. They have been very supportive. He has responded to ALZ medications, but his short-term memory has…
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Aunt with dementia and POA
Hello. Lurking and new here. I saw a post about feeling guilty for giving up power of attorney. I am in the same boat. My aunt gave me POA and I live long distance from her. I never knew about it until she told me afterwards. It was a springing POA, and I never wanted it and she knew that. She moved out of state to be…
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BiPap usage as dementia progresses
My husband just got diagnosed with Alzheimer's and around the same time he finished a sleep study and found that he has central sleep apnea caused by his congestive heart failure. He has been using a BiPap since November and is doing well. My question is… what should I expect as this disease progressess. Will he most…
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I'm learning to accept this new reality
Hey I'm a 35 year old man who takes care of his mother. She lives a few blocks from me and is going through dementia. Early 2024 is when I first noticed signs. My mom is 77 years old, she is my heart, my Queen. She fights me on EVERYTHING and feels I'm taking her independence from her. I don't really get help from my…
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Christmas gifts
Mom is in AL. She hoards and we have not taken her to the store for the last 3 months because she insists on buying things she doesn’t need. She is finally just starting to tell me if she needs something vs telling me I need to take her to the store. She is mid stage and insists on independence. She loves Christmas and…
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How does one go about finding a clinical trial?
My mom was recently diagnosed with MCI/dementia. Since she is in the beginning stages, she'd like to participate in clinical trials to help with research. Her mother had Alzheimer's and participated in a trial and she would like to do the same. I don't know where to start. Thanks for your help.
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primary caregiver diagnosed with terminal cancer
I am the primary caregiver to my longtime partner who has dementia. I just got diagnosed with terminal cancer and need to decide his next options. He has an adult daughter who is not very involved in his current care. And out of town siblings who might help. Who do I talk with first and when do I bring my partner into the…
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LO was recently diagnosed with YOAD
My dad, who is 55 years old, was recently diagnosed with early onset Alzheimer's. I believe he is in the middle stages Alzheimer's, I'm not sure. For some reason I don't want to talk about any of it with friends or family, however, because of that I haven't really been able to come to terms with or accept it. One of the…
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I am at the end of my rope as a caregiver
Hi all, I am reaching out because I don't know where to turn. I am a very young and active 75 and I have noticed a steady decline in my husband, age 70. I have noticed a definite decline and even tried to get him into an Alzheimer's trial, but he wasn't accepted. So I was hopeful, however, now I think he just didn't have…
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What's your pleasure?
This is my first post! This year has been very hard for me. I moved in with my parents in February, got them well enough to move to AL in April. My mom never fully recovered from the shock of moving and she died in June. My dad will go into MC next week. Along the way, I've tried to find a few moments, a few things to…
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How to post a message
How do I post a question on this site? It says I need to inclued one receipent . But I am new & don't have this info
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New To the A/D group as a Caregiver.
I am under emense stress, is there a group a can attend.....(Please)
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Looking for a Friend to Get Through This With....
Looking to meet with someone with a similar situation as myself for normal discussion and friendship. In the Saint Petersburg/Clearwater/Pinellas Park area.
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My essay on navigating the overwhelming journey of caring for someone with ALZ was published. Please
I lost my father after an incredibly long battle with Alzheimer's about 15 months ago. Wanting to help others finding themselves in the same horrible situation, I wrote an essay about the experience, which was recently published. I wrote it not only to tell my story, but to provide insight, guidance, resources, and to…
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Caregiver
Caregiver for my husband. He has Alzheimer’s. Urinary and fecal incontinence starting. Suggestions on how to handle. Becoming hard to deal with.
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Length of stages 6 & 7
How long was your loved one in stage 6 and stage 7….or for how long have they been? I think we’re mid stage 6….been here for about a year.
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My wife is becoming a chipmunk.
Something new going on. Now my DW, more than once, will "eat" something but, leave the food in her mouth without swallowing. For hours. I try to get her to open her mouth, but she refuses. EVENTUALLY she will open her mouth and I can see all the masticated food inside her lips and all around her teeth. With much cajoling I…
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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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What planning?
I used to love the start of a new year and being able to plan events. After my mother receiving her diagnosis this past fall, it kind of feels like 2020 again when we never knew how long we would all be stuck. She’s doing well right now and I probably wouldn’t hesitate to leave her alone for a week, but I have no idea what…
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Disregard
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BIBLE VERSE TO LIFT YOU UP 12/29/24
WHEN EVERYTHING IS READY * WE WILL ALWAYS BE WITH JESUS! John 14:1-3 New Living Translation “Don’t let your hearts be troubled. Trust in God, and trust also in me. There is more than enough room in my Father’s home. If this were not so, would I have told you that I am going to prepare a place for you? When everything is…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Handling SS and Medicare addresses when moving into facility
Hi, What do you do with your LO's Social Security address when s/he moves to a facility? My "understanding" is that it's linked to Medicare, so using any address other than the residence of the recipient will cause problems with the Medicare supplement and Part D plans in place that rely on the residence zip code. (I tried…
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Wonder if I have PTSD after my dad died
My dad passed away four months ago. I had moved him and my mom to an ALF approximately four months prior to dad's death. Their conditions at home had become unsafe. For one thing, I keep ruminating about the status of their living conditions at home prior to their move to the ALF. In my mind, I still see the glaring red…
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Change of living arrangements
Hi all, first time posting on one of these discussion boards but hoping for some help to support my partner as she navigate’s her grandmother’s dementia. Grandma (in her late 80s) has had several strokes which have accelerated dementia symptoms. Until recently she had been able to live somewhat independently in her own…
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Question about genetic risk and prevention
Hi, all. Sorry that we're all here because of this horrific disease. I have quite a bit of dementia and alzheimer's in my family, I'm trying to understand my genetic risk and any preventative measures I can take. In my family both of my maternal uncles, one of my mom's first cousins, my mom's grandmother, and my mom's aunt…
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Thinking of you
The holidays can be so hard. Thinking of you no matter what stage you’re in.
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NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html