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What to do when vascular dementia causes your husband of communication
We are at the stage of his dementia where we cannot carry on a conversation. I cannot understand what he is trying to say. He has many health issues and I am afraid I won’t be able to know what is wrong. This is my first post. I don’t know what to do. Thanks
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Feeling extremely overwhelmed
I am a 55-year-old female caring for my 80-year-old mother. There are so many things to discuss, so I will try to start small. I live an hour and a half away from her, so expense-wise, and my own extreme anxiety and depression, it is hard to be there all the time. I call her daily to check in, but that conversation always…
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structure and expense of long term care and hospice
This is a CNBC video I found interesting. How senior care became a $600 billion business | Watch
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Being accused of any and everything
I am caring for my grandmother. I was wondering if anyone has any tips for a specific and main hardship I'm having. She accuses me of being "the biggest liar she has ever met" about everything. She will ask me a seemingly easy question for example, she will be holding a peice of mail and ask me where it came from. So I…
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Anxiety building
i am going to visit my mother tomorrow mainly because she needs her wine, she goes though a box wine (34 glasses) every 4 days it's very bad on her part I have tried to intervene but she says she will never give it up. Tried consulting a doctor and my mother refuses any treatment. I have to cover her seat in my car with…
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Thank you all for advise and steps to take
i appreciate every ones input and allowing me to vent a little I have no one to talk to.
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Upcoming Events
Here are some upcoming events that Michael Ellenbogen shared with me: Updates, Announcements & Upcoming Events GUIDE Affinity Group Biweekly Sessions Join the ADC Program for one hour of real-world insights, best practices on GUIDE-related topics, and open Q&A on every other Wednesday, 8:00–9:00 AM PT / 11 - 12 Eastern.…
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From NYT: Is It Healthy to Grief Before a Loss
A piece on anticipatory grief. https://www.nytimes.com/2025/10/17/well/anticipatory-grief.html?unlocked_article_code=1.uU8.ctMJ.nGw1BRIf_CY5&smid=url-share
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Living with my grandmother as a 30 year, how do I make my own life?
Hello, I am 30 years old and live with and care for my 90-year-old grandmother full-time while working as a high school counselor. Long story short, my mom is a narcissist and comes up with 100 excuses on why she can't help me. She lives about an hour away and visits 1-2x a week and only takes her out to lunch, never…
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92 Year Old Grandmother (Dementia due to aging) & 63 Year Old Uncle (Frontotemporal Dementia)
My wife and I were recently appointed guardianship of her grandmother as her son whom has lived with her his entire life , he had epilepsy and had a right frontal lobotomy 20 years ago, she is suffering with extreme anosognosia of nothing being wrong with her (CHF,Fibroids, had 1 minor stroke and 2 heart attacks) and that…
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Sharing Glen Campbell’s dementia film again
https://m.imdb.com/title/tt2049586/
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Looking for Work From Home Opportunities
Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…
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Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
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Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
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Does anyone have someone their caring for have any interest in what they have
just curious if anyone taking care of loved ones if they ever ask about this illness and what it’s all about and out come
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Finding help for teeth grinding
My mother has cerebral amyloid angiopathy (CAA) and the dementia that also comes with it. She has had two strokes, cannot communicate, cannot follow directions, requests, or commands, and her awareness of her surroundings varies strongly by the day. If we gently work at it, we can get her to open her teeth a small bit, but…
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Mom caring for adult child with memory loss
My first post. I'm 84 and my adult child was diagnosed with moderate cognitive decline 4 months ago. Has been on doctor prescribed vitamin /depression /antipsychotic protocol since then. Has anyone else got this issue?
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Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
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constiption
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so overwhelmed
my mom is 73 and newly diagnosed with early moderate alz. the plan in our family as our parents aged was for me and my husband to move in with my mom after my dad passed (as bad as it sounds, we assumed this because he has had heart issues and tons of other health problems for years and he's 78 while she's healthy as a…
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Nighttime toilet issues
Looking for some creative ideas cause I am at my wits end. My mil has been living with us for a year. Diagnosed with FTD about 5 years ago. Still does well during the day, no longer remembers/understands she has dementia. About 6 months ago I started finding wads of wet tissue stuffed under furniture. When asked she…
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Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
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Getting support from family members
My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.
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What did the techs just do here?
@ALZConnected Moderator I couldn’t get to posts for a few minutes. Now that I can member’s profile are randomly showing up next to their screen name on their comments including mine. So I have edited my profile to say ‘removed’. Which didn’t help because my profile info showed up on this comment
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
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Which ID cards need to be with PWD
Which ID cards (like medical insurance card, state issued ID) ought to be in the PWD's residence for easy access? Likewise to be with person when going outside. Today, prior to a medical appointment, they were all gone, along with wallet. I asked, and PWD denied owning a wallet, cash or any ID. Fortunately, the medical…
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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From the NYT: How Older People Are Reaping Brain Benefits From New Tech
A gifted link to the article— https://www.nytimes.com/2025/08/09/health/technology-cognition-older-people.html?unlocked_article_code=1.nk8.Wxst.AdgH546VpONN&smid=url-share
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening