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Preparing LO For Death of a Friend
Hello everybody! I hope everyone is enjoying their summers so far. I am writing to try and gain some insight on how to handle this situation, for me and my mom. My mom is 61 and in the moderate stage of her Alzheimer’s. We live in an apartment building and have been very close friends with the woman that lives above us for…
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Advice on letting go of the guilt and next steps...
My mom is a recent Alzheimer's diagnosis (in the last 6 months) but has been on a steady, slow decilne since 2021. Since her actual diagnosis, things are rapidly declining and I have so much guilt that I am not there for her more. She lives with my Dad/her husband still but is mostly alone during the day while he is at…
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Mother is getting worse
So my mom has been showing signs of dementia/Alzheimers for over a year now. We recently found out that she has atrophy of the brain but did not ask them to test for the reason. She, and my daughter and her family, are living with me temporarily because to add insult to injury she had a tree fall on her house so they are…
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Improving Services and Programs for People with Dementia
Michael Ellenbogen sent me this excellent, concise article on how to improve the care and treatment of people with dementia (including his own recommendations).
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Mother refusing to go to respite care
Moving my mother into my house was, in retrospect, a terrible decision. Now she won't leave. We've crafted a story that my daughter, who lives across the country, needs my help and I need to go, so she is going to a "hotel" while I am gone. My mother thinks she can stay by herself in my house. I explained that I can't…
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I need help making a decision about supplementing food intake in late stage 6 DH
My DH is in late stage 6 dementia. He is almost non-verbal, double incontinent, in a wheelchair and unable to do anything for himself without assistance. He has been moved from a MC facility to skilled nursing because he requires so much help. He has to be fed, but he eats well and taps his finger when he is ready for…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Sundowning - Changes when new people arrive
Hi, my 80 yr mom seems to be having some severe sundowing with Agitation and hallucinations . On the worst nights, we have gone to intervene for my step dad. When my husband walks in (or EMS or police) she seems to snap back into reality and becomes herself again. Is this normal?
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Financially scary
If you have concerns about money handling, don't wait .
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Ivermectin for dementia
Ivermectin gained popularity during COVID-19, where some people claimed it could treat or prevent the virus. The problem is, sometimes, news articles or social media can misinterpret early research and spread misinformation. When it comes to dementia, what most scientists and major health organisations, like the…
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Progression and caregiver changes
DH continued to decline with the rivastigmine and has developed significant hallucinations and a persistent delusion about a dead friend who isn't dead. The companion who had been with him almost a year quit because he couldn't tolerate DH's rants and accusations. He was started on Trazodone and Buspirone due to his…
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Dr. took mom off all meds
My mother was on Memantine, Donepezil and Quetiapine. The first 2 caused her explosive, continual diarrhea the last caused her extreme skin picking. This is the 2nd day and I have noticed that she is better so far. I read where Quetiapine should never be given to Alz patients, but at the day care center everyone of them…
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Not much support from family,
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Forensic Psychiatry
Neurologist suggests my wife suffers from Anosognosia as well as Alzheimer's. Doc is suggesting testing by a Forensic Psychiatrist with an eye toward legal Guardianship. Anyone with this experience care to chat with me?
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Near the end
Lately, my (66yr old, stage 6, early onset) husband has been taking his penis out and peeing on the floor as he's walking to the bathroom. Two different sources have told me they saw this behavior, "near the end." Does anyone have experience with this? If he truly is "near the end," I'll 1)Ask hospice to assess him again.…
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From the NYT: What to Do When a Loved One was Diagnosed with Dementia
https://www.nytimes.com/2025/06/25/well/family/dementia-diagnosis-advice.html?unlocked_article_code=1.Rk8.WazS.hyIqt9FeloJq&smid=url-share This talks about next steps and how to prepare for them. It's pretty basic, but might be good for someone new to the disease. HB
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Article -re: "Lying" aka verbal coping skill New Yorker article
Long but thought provoking dated 2018
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10 Absolutes in Dementia Care list
Recently shared by another member here. Thanks @Chug
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From Kerrville, I Thank You ALL for your Thoughts and Prayers
Greetings everyone. My family and I are safe and accounted for. I'm sure you are aware of the tremendous damage in Central Texas. The loss of life is unimaginable and heartbreaking. I am grateful to everyone who has reached out. Your thoughts and prayers lift me up and keep me going. The community and I sincerely feel the…
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Not sure the MC facility has my mother's ADLs addressed
About three months ago I noticed a few things lacking in my mother's room regarding her personal care. One was that she did not have any toothpaste, shower soap or washcloths. I wondered how they were properly bathing or brushing her teeth. I also noticed the toilet paper roll was down to the last few squares and there was…
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HEARING AIDS
This is a very practical question. My wife has mid to early late stage dementia. She has delusions and hallucinations about "a man" who comes into her room and removes, moves, or takes her things. Because of this, she routinely hides her hearing aids. This usually happens before she takes a shower or before she goes to…
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Sister care giver♥️
I am 16 years younger then my sis who is now living with me and my Husband and grown children and my granddaughter . She is forgetting who we are earlier each day. And constantly wants to go home. I my sister has been my rock my whole life and I’m not sure I can keep doing this it’s making me sick , high blood pressure…
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Hallucinations
I am the 24/7 caregiver for my wife who suffers from mid to early late term dementia. She has had various hallucinations, usually after wakening in the AM, but recently has had one that repeats itself, and she bring it up all day long. She repeated insists that "a man" comes to her bedroom and disrupts her things by either…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Only Mean to Caregiver
My 89-year-old father was diagnosed with Alzheimer's 6 months ago. He reserves all his anger, paranoia and hurtful words for my mother (caregiver). No one else sees/hears it. I am learning that he did this on a smaller scale for a lot of years but mom never told me until now because it has been amplified due to the…
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Links to helpful videos
Hello all! I was looking through posts recently and found one that was from a woman who has a PhD in Dementia care. It was very informative and helpful for the stages of Alzheimers. But I cant remember where I saw it. If you know what I am talking about, please post the link here. Also, I would love any and all videos that…
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Clinical trial Buntanetap
Is anyone participating in a clinical trial for Alzheimer’s treatment, specifically Buntanetap? We’re going in at the end of the month for a screening to see if DH qualifies. Please share your experiences.
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Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
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Recommendations of Videos to watch
We are bracing ourself for a long haul ;) would love recommendations on Videos my family and I could watch to help us understand this incredibly destabilizing disease so far I watched a few videos from Teepa Snow , good but not very well filmed ..
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She walked out
Tonight she packed a bag and went to stay at her daughters. I am hoping this is the beginning of our “official separation” and that she will go into assisted living. I’ve known for sometime that this is what I’ve wanted, but did not have the courage to have the necessary conversation or take the necessary action.…