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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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Anyone using Paxil for severe agitation?
My mom is 94 - diagnosed 11 years ago with Alz dementia. She has been in an advanced stage requiring full care for almost 10 years. Her neurologist advised us to try Paxil to help with her severe agitation. She is taking seroquel as well. She's starting throwing plates of food lately. Things are rough but I'm nervous about…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Refusing UTI treatment
she developed UTI and medical team gave her antibiotics without consulting us although she has signed medical directives refusing heath care treatment to prolong her life ,how could UTI be treated without antibiotics and let life take it’s course (don’t want her to suffer ) Would that be a good way to go if that was her…
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NYT Opinion Piece on Caregiving Crisis
https://www.nytimes.com/2025/11/24/opinion/caregiving-crisis.html?unlocked_article_code=1.308.kBxI.CmNVAb2397Tf&smid=url-share
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Sudden deterioration in memory and change in demeanor
Is it common for someone with Alz/dementia to have memory suddenly decline significantly? My Mom (96) has a show she LOVES to watch on TV - loves to the point that we have recorded every episode on her DVR and replay them continually. She talks about the star (local vet), wants to meet him, wants to see his clinic, etc.…
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Fights about the dumbest things
the person I share a house with for the last 11 years - not a spouse or a legal partner - was diagnosed about two years ago, didn't tell me for about a year. I am not an official caregiver but in essence I am. I am retiring now and wondering how I will cope. When I worked it wasn't so bad but now I am here all the time.…
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Find local services for the aged at the National Council on Aging
The following link will help you find local services based on your zip code https://benefitscheckup.org/ Or, you can find it through the NCOA website. Look for Benefits Checkup
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Counterpart to "out of sight, out of mind" is "I need to see it"
Many people know of "out of sight, out of mind", where if a PWD does not see something, it is forgotten. So I take anything that can cause problems and hide it, or stuff it into a bag to carry it away. An example is a bottle of meds where pills can be taken if I leave it out and I don't keep an eye on it. I hide it as soon…
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Is repeated aspiration pneumonia common?
My mothers MC facility called me a couple days ago saying they wanted to send her to ER because she had a persistent cough that was not getting better by her standard nebulizer. She has COPD. My dad passed away last year and most of mom's friends have died. She only has my sister (who has POA) and me. My sister spends two…
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Father in memory care one day loves it one day hates it
our family is on a rollercoaster with my father. He is in a memory care facility now. He calls one part of the day in good spirits and hours later he is agitated and irritated with the facility. He upsets my mother tremendously and she does not know how to handle it. She, herself, is recovering from a stroke, which is why…
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TV help
I just heard about Jubilee TV. A caregiver can control a LO's TV from afar via a smartphone app. This might solve a lot of headaches. Iris
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Home health care
I'm 70 and in reasonably good health, some issues that are well managed. DW is 67, about 3 years or so in. I would say moderate stages. A fair amount of urinary incontinence, needs assistance with bathing and dressing. We have an adult daughter who's doing all she can to help us. I cook breakfast every day, and either our…
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My Friend is legally blind: needs bookkeeping, billpay, computer assistance
Hello Alz community. I am a Reno based CPA and have a friend (She is located in Reno NV) who needs assistance with bookkeeping, bill pay, computer assistance and reading her mail to take care of her personal business matters starting at once a week. Do you have any recommendations?
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags (there are many people who, at this very moment, have a family member with dementia yet still do not realize it), and especially to help people navigate through the…
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Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…
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From NPR: Dementia Care without Locked Wards
https://www.npr.org/sections/shots-health-news/2025/11/17/nx-s1-5600877/dementia-alzheimers-care-housing-senior-living-inclusion-segregation
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Long term memory going / reality distorted
Last night, mom came upstairs and asked where our son was. I'm her son. At first, I thought she said "your son". I told her he was upstairs in his room. A few questions later, I realized she thought I was my dad. They divorced over 30 years ago... Last couple of weeks, she has been obsessively asking about dad and getting…
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Creating soothing activities using a busy or activity board
I understand that some activities like folding clothes or napkins can offer feelings of control, or be soothing for PWDs. Most are harmless, but PWD likes to scratch coffee stain marks from a sofa using a fingernail, or scratch off burn marks from a frying pan with a kitchen knife, and doing it repeatedly. It ends up not…
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Help with my sister
My only sister and best friend was diagnosed with EO Alzheimers at 55. I am spiraling and want to find a support group for siblings. Can anyone please help? Thank you. Juli
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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personal hygiene
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Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
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A very resistant FIL - clearly dementia but refusing to sign a POA, see doctor, etc
Hey all, hope you’re keeping well. I made a post about being new to this situation recently and was super helpful and supportive. I was looking for some more advice if possible! We are in the UK if that helps. My bf is looking after his dad at the mo who clearly has dementia. He wanders and gets lost in his two bed flat,…
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Early onset of my husband
I’m new to this group. My husband and I just moved abroad 2years ago when my husband retired. My husband struggled with depression after retiring, finding his purpose ect. Once he got settled in o started seeing some…missteps in his thinking. His dad is in his 80’s with Alzheimer’s. So I kind of thought this might happen.…
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How to Help My Sister Have Access to Spending Money
My sister is in mid-stage Alzheimer's and lives in an assisted living community. They take day trips to Krogers and other places and she enjoys buying things for herself. She used to be able to manage a debit card, but has lost it several times and can't remember her pin. She now believes we are withholding money from her.…
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Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…