-
From the NYT: A Ministroke Can Have Major Consequences
This should be a gifted link. https://www.nytimes.com/2025/05/17/health/elderly-tia-stroke.html?unlocked_article_code=1.IE8.BO37.xssaUFKSfe6y&smid=url-share
-
Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
-
Boundaries
Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…
-
Constipation - Mom on hospice (and on soft diet) is constipated - suppository & food suggestions?
Hello All, Mom was discharged on Sunday from SNF to home for hospice care. She is on soft diet due to recent stroke. Her bowel movement since discharge indicate constipation and some impaction. In addition to some doses of Senna, Hospice nurse gave her a suppository last night which was productive (somewhat). But I can see…
-
Real ID or passport problems
Hi everyone and thank you in advance for any assistance. I live in Colorado but my mother is in a memory care facility in SC. As her disease progresses, it’s just too hard to have her so far away. I’m desperately trying to get her to CO to a new facility but I don’t have her original birth certificate or SS card and she…
-
help for a friend
I care three times a week for elderly woman who is mother to close friend. although early stages we shop shop shop i pick her up and drive her wherever she wants to go. we eat then shop she is allowed $60 a day and inevitably goes over forcing me to dig in my pockets which i do willing she is kind then mean and discusses…
-
Introduction and Question
Hello! Grateful for this group. Here I go. Introduction, Question, and probably too much background for one post. My father passed away in December 2024 while my mom was in ICU. Since her discharge, I've transitioned her to Assisted Living in the town where I grew up/they continued to reside—location per her wishes. ( I've…
-
New to caregiving and I have no idea what I'm doing
Hello… My amazing aunt was diagnosed with Alzheimers/Dementia about 18 months ago. I'm not entirely sure how long she was really struggling before I stepped in, but I fear it was several years due to the things I have been discovering in her files as well as learning about the disease. Hindsight is 20/20 and what I thought…
-
To moms...
To those who are moms - have a beautiful mother's day. To those who are taking care of moms - may it be a peaceful day.
-
Decompressing after a tough visit
I guess all we can do is take a deep breath and exhale, right? I visited my mom yesterday. She is in Memory Care. I put my game face on. I went through the locked doors she now lives behind. I walk through the community to my mom's apartment, and as I do I smile and wave at other residents I have come to know and say their…
-
Caregiver using public bathroom, husband wanders off
My mom is the caregiver and she takes my dad, who has middle stage alzheimer's, to walmart. He follows her around the aisles. If my mom has to go to the bathroom, she doesn't know what to do with him. She has told him to stay with the cart, but she never knows if he'll still be there when she comes out of the bathroom.…
-
Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
-
New Journey Caregiving for friend-former spouse with Vascular Dementia
I can't believe that I am now a caregiver to my ex-husband, who has no other family member, who was diagnosed with vascular dementia. Back in 2022 I thought something was a little off with his memory but just thought it had to do with normal aging. But back in January 2025 something drastically changed. He was not making…
-
No idea what he's asking...Help me deal please
Sometimes my DH asks me something and I have no idea what he's talking about and when I have no clue what he's talking about he accuses me of needing my head examined and gets so frustrated with me. Example just a moment ago, him: "what was that thing you put on the thing to make it do that thing"? I had no idea what he…
-
Next Steps
Hello! I'm new to this group and glad to be here. Wondering what I should be considering for next steps. My DH has MCI which is getting worse. So far, he still takes good care of himself. I prepare all meals, make sure he takes his meds, try to keep him active (He tends to sit and fall asleep otherwise). If I have to leave…
-
Wife called police on me
My wife, who has Alzheimer’s, called the police on me this morning while I was out. Our daughter managed to explain the situation to them on the phone and now my wife seems to have forgotten the whole episode. So far no one has come to the house. My wife has forgotten who I am several times now. I don’t know what to do,…
-
FRUSTRATED!!
My husband has been approved for the infusion treatments and the center that does them doesn’t take our secondary insurance. Our doctor’s office is trying to find another location but is having difficulty. This stinks. Maybe it’s a sign he shouldn’t have them??
-
Im new here but need to vent.
My mom is in the process of being diagnosed. Her doctor told her it sounded like Alzheimer’s not just normal aging. I finally convinced her to go to her primary care doctor about 3 years ago but she refused to go to the neurologist. I’m assuming after her liver transplant my step dad who is now deceased had brought her to…
-
Long Distance Mom has Dementia, and I am the only Child
Hello, I live a plane flight or 1.5-days driving away from my mom and I am only son. She has dementia and lives alone with her dog and cat. I can see her deterioration and have taken over all of her bills, taxes, online shopping, ordering food deliveries, etc for her. I have three children (teenagers) living with me and…
-
ALZ for 6 yrs, newly diagnosed with Parkinson's. Is it LBD?
My mom has lived with us for 11 yrs, diagnosed with ALZ almost 6 yrs ago. The hand tremors started last summer, pill rolling of the thumbs started last fall. She was diagnosed with Parkinson's yesterday. She was also put on meds a few years ago for incontinence and swallowing issues that we now believe could be early…
-
Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
-
Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
-
Neurologist appointment 5 years in
Hi! Real quick summary and then my questions. My mil has been living with us for about 8 months now. She was diagnosed with FTD, specifically PPA, five years ago. She has not had a neurological appointment in about 2 years and this one was only scheduled at my request as I had very little (as in no prior) involvement in…
-
Attending church
We had a great church group, with several dear friends. We stopped attending but maintained the friendships. My husband now has advanced Alzheimer’s. Is it possible to return to church services now? There are some who would accept him easily, but I am concerned that this would be a distraction for members who don’t know…
-
Assistance with dressing
I have been laying out clothes for my husband each day for some time. Now he’s having trouble putting clothes on. Does anyone have any suggestions for how to help an adult put on a tshirt or sweater?
-
In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
-
Caregiver webinar
Michael Ellenbogen sent me this caregiving seminar to share on Alzconnected. We are excited to announce our upcoming webinar, Bridging Care: Training Providers to Integrate Family Caregivers into the Healthcare Team! We will explore real-life caregiving experiences, and introduce the “Caregivers As Partners in Care Teams”…
-
What's the worst that could happen?
Setting the scene: My mother has three pieces of property, a springing POA and a stubborn streak the size of Jupiter. She is currently between showing signs between stages 4-6 of dementia (not my first rodeo with the disease). It will not be long before she needs supervision. Issue #1: She refuses to see a doctor. Issue…
-
Help with deciding next step with mom
My mom has had ALZ since 2017 and is now in the later stages; not bed ridden yet but now a fall risk, unable to speak in full sentences and very agitated, and needs to move to skilled nursing. This will move her to Medicaid and I need a resource with knowledge of Pennsylvania and Maryland law because my sister and I can’t…
-
Alzheimer’s/Dementia or Just Narcissistic?
My covert narcissistic mom has had some off/on memory issues for the past couple years like where she puts things. My brother and I can’t tell whether it is normal aging or more than that. In the past two months, she has suddenly started making up stories about her youngest sister doing black magic, trying to break into…