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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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Living with Early Onset
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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State Policies on Caregiving and Alzheimer's Disease
Information from Michael Ellenbogen: We invite you to join us for our next webinar, "State Policies on Caregiving: Opportunities for Supporting Dementia Caregivers" on 10/1/24. This webinar will introduce the caregiving policy approaches of New York and Illinois, discuss successful strategies, identify policy gaps and…
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Un-dressing issues
Dear all, has anyone found a good strategy to keep a person with advanced dementia (FTD) dressed? My dad is still ok with keeping his clothes on when we are outside or at the groundfloor (with a lot of talking from us explaining this is absolutely necessary for XYZ reason, trying to make him laugh etc.) but it's becoming…
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LTC Insurance and Travel
My LO has an LTC claim started (not yet approved) and is likely eligible for benefits, but she is still eager to take trips. Does anyone know whether, typically, an LTC company might pay home healthcare benefits while the patient is still taking pleasure trips with a close companion to monitor them? Or do the LTC companies…
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Looking for a friend to get through this with in the Sacramento area
I am following the lead of Bailey who posted this request for her area. Thanks Bailey for the idea. I am 60 years old and caregiving my mother. I am looking for someone caregiving a parent or spouse at home for mutual support in the sacramento area.
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Question about Thyroid Related Alzheimer’s or other Dementia
my DW has developed a very fast progressing Dementia still waiting for a accurate diagnosis, via MRI. She has lead a very healthy life, no major medical issues, no hospitalizations. Stays very current, with our PCP, She was tested and had a lean MRI IN 2018. Her only health. Concern was her thyroid and her weight had been…
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How to keep my sister decent in hospice during my respite.
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Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
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Early Stage ALZ and hallucinations
Hi all! My Mom is 85 years old and has early stage ALZ. She is living in a senior living center (as assisted living) and loving it. She generally does quite well, just the bad memory and confusion from time to time. While she was living in her home (with her husband who has since passed away from lewy body), she was having…
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Rehab facility won’t restrain LO for safety; legal?
LO in rehab after breaking hip. Won’t sleep in bed, sleeps I. Chair and fell out. Facility says they cannot “ safety belt” her in the chair or restrain her in any way. Just got a call back… she is unresponsive and going back to ER. I live 3 hours away. Why can’t she be secured for safety purposes? This seems like negligence
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Sedation for MRI?
DH had brain MRIs and is now totally against another. He said he won’t do “the coffin “ …But he may have NPH and neurosurgeon needs MRI of spine. The possibility of him getting back walking ability etc by draining some excess spinal fluid with a brain shunt is all new to me but that hope makes me think it’s worth trying to…
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Broke my heart
My DH has done nothing for 2 years,besides watch TV and feed the birds and squirrels. Here in the last 2 weeks he has been cleaning out his man cave( which was disaster d/t I'm not to move or touch anything). He hoarded box's? Today I ask him what was going on with the cleaning? He said 'I'm aware of my mortality and I…
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NPH Discussion Group
I am interested in Normal Pressure Hydrocephalus (NPH) for my DW. Searching these message boards turns up a lot of useful information, often referring to a Yahoo Group on the topic. Yahoo shutdown their groups in 2020. Does anyone know of a similar discussion group that is currently active? Thanks
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Care.com settles with the FTC over misleading claims
Good to know. Care.com misled caregivers and families — and made it 'impossible' to cancel, the FTC claims
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Sundowning
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How to pay for AL
Mom was diagnosed with vascular dementia 1 and a half years ago. She has been in AL about 6 months. She has enough money now to pay for 1 more year. We have been to the lawyer and I have DPOA, she made a will, a living will, a medical POA and a ladybird deed (at her death the house goes to my brother and I and there can be…
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Any suggestions for a toothpaste that is safe to swallow?
And preferably does NOT foam. How do you manage oral care for someone that is unable to rinse and spit? My primary concern is keep her mouth sufficiently clean to avoid excess bacteria and minimize the risk of infection. Thanks everybody!
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Support for the spouses or partners of dementia caregivers!
:/ Is there any information on support groups for the spouses or partners or the caregivers or info on what it can do to a relationship or marriage? Any information is greatly appreciated!
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MedicAlert bracelet or something else?
MedicAlert Foundation sells bracelets and monitoring. Family notification is included at the $55/year level and for $75 they will "work with local authorities to get them home." Alternatively I can just buy a similar bracelet on Amazon and have my cell number engraved and skip the monitoring. Does anyone have opinions on…
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Frustrated
does anybody feel like they are frustrated and can’t do anything all I’m doing is a Word Search online and it feels like I can’t even do it.
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TV help
I just heard about Jubilee TV. A caregiver can control a LO's TV from afar via a smartphone app. This might solve a lot of headaches. Iris
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Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
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The incontinence blues - I'm not handling it well
We've had a couple of rough days. Over the last few weeks my husband has moved into full time incontinence. He's been incontinent for a while, but until a few weeks ago it was almost always urinary and not all the time. Then The last 48 hours... Fecal incontinence and he's fighting me hard on clean-up. He won't let me…
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Behavior: Dangerous, harmless and something in between
When I see a PWD attempt something dangerous, I put a stop to it, even if it results in some agitation or disagreement. For example, despite my best efforts, a PWD can attempt to jam a fork into a live electric toaster to pull bread out. So I can't "live in their world" in this case and sometimes I can't spend every single…
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Visiting friends said parents looked great not sure how to respond
First of all, my parents do not "look great" as a family friend told me after she visited my parents at their ALF. To me, it is so obvious they both are on a decline with several challenges that have taken a toll on me emotionally and sometimes physically and I find such a statement is invalidating. How do you reply to…
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We have not yet been offered any dementia specific drugs
Is this problematic? My mom has been difficult to diagnose. Thankfully she did stay at the doctor's office long enough to get a cognitive assessment which diagnosed her with moderate to severe cognitive decline from unspecified disease. I have another post here about the mess with trying to get medications for her (the…
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