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What is wrong with me? Or is there?
Mom is most likely a few days or a couple weeks away from death. Yet I just feel numb…. Or I just don’t feel at all? Yes, she’s 86, with pulmonary fibrosis, on oxygen for 7 months now. And having had dementia for several years, and looking back, cognitive issues for a couple years before that We lost our son in April of…
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Another reason to watch the PWD's finances: the IRS
It is hard, messy and sometimes relationship impacting to step in to take control of your loved ones finances -using DPOA or guardianship. People say things like " want them to be independent as long as possible " etc. Heard a caller on a radio show -grandmother with dementia lost 500k to a phone scammer who said her…
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How to help my mom: she forgets that she went to the bathroom (#2) only a few hours after going
Hi everyone! My mom is almost 83, and in great health, but her memory is not the same over the past year. Over the past few weeks, my mom keeps on thinking that she is constipated, and that she hasn't passed a bowel movement in two days. I explain to her that she did so earlier, and it still doesn't register. She continues…
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Seloquel
I am new here. My mother was diagnosed with ES VD in August. She has been prescribed Seloquel which is very concerning to me. Based on the info I have been able to gather, she does not have any behavior issues that would warrant being prescribed this drug. She is docile, but has had some anxiety and sadness in the…
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Alzheimer’s-Posterior Cortical Atrophy
I also posted this on Caring for Spouse page. Don’t remember if I posted this already but I recently realized symptoms my husband had early on several years way before diagnosis. He complained of dry eyes but I think he just couldn’t describe what he was seeing. He also had difficulty spelling common words and doing simple…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day. In…
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Moving LO to a condo
Both my parents have dementia/AD. They both are in the moderate stage and they can no longer live in their house far from any family. My siblings want to buy a condo with my parent’s funds, move them to it and get them 24/7 care. They think my parents will easily adjust. I’m not convinced this is the right solution. I’m…
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Remeron (mirtrazapine) vs Trazodone
Anyone here have experience with Remeron? I called the family doctor this afternoon because we couldn’t wait for the first neurologist visit next week. Mom cries all day, every day, complains incessantly about burning in her feet and fingertips, still complaining about the irritation in her private area( that has been…
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How many broken TVs is the limit?
DH gets peeved some nights if I ask him to brush his teeth and he gets worked up if his phone charger is not cooperating & this has led to an eruption of him throwing his phone on a few occasions. Last time he broke the TV. Time before just missed my head. He threw it tonight & I have not checked the TV for damage…just…
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How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
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FAST Scale and info sheet
@harshedbuzz shared this link on a different discussion. I’m bringing the link here to discuss the info sheet about the FAST scale. https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fmccare.com%2Fpdf%2Ffast.pdf We’ve always said that a PWD can skip stages or have symptoms from different stages at the…
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Should I share my own surgery recovery with my LO that is in assisted living?
I have been caregiving for my mom for 4 years, moved her to assisted-living two months ago. I was consistently visiting her 4 to 5 times a week to assure her she is still loved and we are not abandoning her. She has vascular dementia and is resistant to much care so she doesn’t let the assisted-living staff do hardly…
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10 ways to help caregivers
In no particular order. All of these apply whether the PWD is at home or in a facility. Ask about the PWD. And listen. Ask the caregiver how they are doing. And listen. Give the caregiver flowers, chocolate or wine. Send the caregiver a nice or funny card to tell them how much they’re appreciated. More than once. Offer to…
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Mom with VD in final stage need advice
Hello, I've connected with others in the past here and have always appreciated the support and thoughts/suggestions from others. Mom has VD likely mixed with Alzheimers. 2.5 yrs since diagnosis. Likely had mild stage for a year prior. I am an only child. I placed Mom in a MC assisted living facility when it was obvious she…
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When is it time for palliative care?
My DH has been in and out of Geri-psych units since May, and has spent more than a month in his current unit. Halfway through his stay, he developed aspiration pneumonia and spent five days in the hospital getting IV antibiotics. He’s back in the Geri-psych unit now, but has had a significant decline. He’s on a puréed…
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Humming
my DW is humming songs all the time that she is awake. She also fidgets with her fingers a lot. I ask her what she is humming and she says she’s not humming. Any thoughts?
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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How to explain why hospice means no hospital?
Mom has been on hospice for 3 weeks. No matter how many times we tell her she is not dying, she won’t believe us. Hospice has added Seroquel and Ativan to her list of medications Fast forward- she fell Friday, didn’t hurt herself. She fell midnight Saturday night. I was called and told she didn’t hurt herself. I tried…
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VD and Panic attacks, Fear
My mom has VD and I feel like she is entering another stage of disease. Lately she has been having daily panic attacks and is fearful of many things. I called her today and she was breathing heavily because she said she saw a racoon (which I think was a squirrel) and was scared that it was going to come into the house. She…
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When it rains it pours - for real
I’m unloading. I need to get this out of me. My DH is probably stage a 4 or 5. Holds great conversations and reads, but his ability to process information is mod/severe. I don’t understand how both occur at the same time. His speech therapist gives paperwork where he has to complete questions such as: name a cold dessert…
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Where to find help
My wife has been diagnosed with MCI by the neurology department at Mayo Clinic. She functions normally in day-to-day activities: cooking, driving, personal care, and interaction with others. What's missing is the memory of recent events: times scheduled for events, meetings, community events. According to the tests, some…
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Ok - Need advice and suggestions multiple languages
I’ve become my mom’s full time care taker a few months ago. I sold my house, remodeled their basement and moved in to stay with her. My mom was my best friend we had fun together and did mostly everything together. She is 78 and we’ve been fighting this crappy disease for 4 years; unfortunately she is getting worse.…
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Urinary Incontinence/retention
My brother lives with me and is struggling with urinary retention. He has Alzheimer's and Down Syndrome. One option that has been mentioned as a solution is a Suprapubic Catheter. Does anyone have experience with this?
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Medicare GUIDE program
8 year program to provide help- hopefully a good start & will expand . 2 links below.
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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NY Times: Can Crosswords and Games Prevent Dementia?
Gifted link good for 30 days. Can Crosswords and Games Prevent Dementia? Experts say the answer is a puzzle. https://www.nytimes.com/2024/10/30/well/mind/dementia-brain-training-puzzles.html?unlocked_article_code=1.WU4.wf9A.a9CM36TJzQcw&smid=url-share Main take away: Perhaps Dr. Gandy summed up the debate best: “I don’t…
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Suggestions for daily activities
I am having trouble finding things for my spouse to do each day. He wants to be doing something all the time, but some tasks he simply can’t do successfully. Any activity suggested for a guy who wants to be busy?
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Getting Someone Diagnosed
Hello, my mom lives with me and I've been seeing signs of dementia, depression, anxiety in her. At times, she will say " I think there is something wrong" and when I suggest talking with a doctor, she immediately says "NO". I had a virtual appointment with her PCP and she couldn't believe what I was telling her. She said…