-
Insurance question
Mom has had Medicare and through dads retirement benefits blue cross and blue shield. Her coverage has always been very good and she has seldom had out of pocket costs. She has recently moved to a nursing home. She has been approved for Medicaid. The nursing home is suggesting she sign up for a Medicare part b (I think…
-
Guardian-family angry at my decisions
I have been a guardian for 5 years. We make very difficult decisions daily. Family members always think it is their right to tell me my decisions are wrong. I always ask prior for professional advice. My person has not asked for their wedding ring. I have been told to not give valuables to your loved one. Yet family…
-
Feeling upset
I am new here. Mom's 78 with Dementia & Diabetic going on 4 yrs now. The agitation is the worst. Today she wonder off. I had officer friendly contact me to find her. She took a bus and got lost. She is on meds but I'm like is it making it worse. I am exhausted of all this drama. Nursing home is not even an option. Long…
-
Stuff animals with Dementia
I am curious to find if anyone has a parent who plays with dolls or teddy bears. Mom's lives with me and thinks the teddy bear is her baby. She will feed it real food and share her drinks with it. She calls the baby by my siblings names. And it goes everywhere with her in a cart. I was ok with it until she gets angry…
-
How did you decide who lives with who?
Looking for tips on what should be considered when deciding to move a loved one in with you, or if you should move in with them. We have a list of pros, cons and costs for each. but we keep flip flopping on what is "best". For example, if she moves in with us, she will have 2 small rooms. we will need to remodel the…
-
Questions for the neurologist & Can we keep it a secret for now?
Hi everyone, We have an upcoming appointment with a neurologist — it will be our first since we received confirmation that my mom has AD, based on a recent PET CT Amyloid scan. I’d appreciate advice on what questions to ask during the visit. I expect we’ll discuss medications, side effects, and general care planning. One…
-
Memory care-Taking all clothes out of drawers
My mother is in interim memory care, and is constantly taking the dirty clothes out of the hamper before the staff can get to them and unpacks ALL her drawers and closet and folds it on her bed. I have tried giving her other things to organize (costume jewlery/photos) but she keeps coming back to the clothing. 1) Has…
-
Is a formal diagnosis needed?
How important is a formal diagnosis? My best guess is she's stage 4 or 5 from what I read. but does ALZ vs dementia, vs old age really matter? she is 82, still living on her own, though that needs to change very soon. she no longer drives, and the most recent development is her losing track of her phone, not knowing how to…
-
Recent diagnosis and vision trouble
My dad was just recently diagnosed with early onset Alzheimer's at age 63. While his memory is a little spotty, the toughest thing he's been dealing with is an increasing loss of vision that they believe is being caused by some small bleeds in the occipital lobe of his brain. He is still almost completely self-sufficient,…
-
I don't understand...
I really don't understand all of this. My mom has dementia, it is diagnosed. But her care is not covered by medicare, even though it is a disease. What is this hole in the system?
-
When it rains...
When it rains, the grass gets wet. I know better than to traverse the back yard walking my dogs in the dark with wet grass. I was distracted. Tuesday, I had taken the day off work to go spend with my mother in MC, so I actually had more time to walk them leisurely. I slipped down a hill and broke my ankle. As I lay there…
-
When is it time for more?
So, when do you know it's time for MC or 24 hour nursing at home? I'm dealing with my father who was previously diagnosed with VD and onsight ALZ with PTSD on top of all else. He's been in AL since February under the guise of home modifications for him to safely come home. Since he's been so happy in the facility, I've…
-
Ashamed father doing bare minimum for wife, home and self
I live at home with my senior parents, acting as a part time caretaker. My dad is in his late 60s and my mom just turned 70. She was an alcoholic, had a stroke at 65 and was diagnosed with vascular dementia (VD). Before her stroke, their marriage was strained and he was planning on a divorce. For 3 years she was in…
-
Solutions for Missing Laundry in MC?
Compared to many other challenges, this one is minor, but I am hoping someone has a workable solution. My father has been in MC for more than a year. I visit many times a week and would rather focus on being with him than on constantly surveilling for missing items. To date we have lost four sets of sheets, one unique…
-
The money is gone!
Mom has been in Al for a year and a half. When we moved her in they said they accepted Medicaid waiver. I was never told family would need to pay the remaining. Partly my fault, I should have asked better questions. The facility is not what I had hoped it would be and I’m not sure how much longer she could safely stay…
-
NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
-
Simple technology for ederly
I'm starting this discussion because I've finally found some peace as a caregiver. I am a caregiver for my dad, who has Alzheimer's. At one point, everything became too much for me. He started to be more needy, and his memory is getting worse. I have to leave the house to go to work, and he would call me for every single…
-
Incontinence?
My mom has VD and ALZ. For a while, I would say she would go to the bathroom frequently, wear pads, and we kind of determined this was because she was afraid of having an accident and having trouble really determining a full bladder. And while she still holds her bladder, she seems unable to know if she needs to go #2, or…
-
SLUMS got me in a slump
My DM who is my pwd was given the SLUMS test today. She has been diagnosed with mild cognitive impairment/early stage Dementia, in December 2024. After much pleading she got authorized for an MRI. In July, she was diagnosed with Vascular Dementia. She is not on any meds. She refused both, Aricept and Memantine. I've…
-
Memory Care + Aide - Make it make sense
I'm trying so hard not to vent, not to be angry. But my mom's MC is asking me to pay for a person to be with her 12 hours a day because of the falling. We literally can't afford this full time, so I'll be doing it on weekends. I get that they can't be with her 1:1 all day, but it's just incredible. The cost seems…
-
Anger Issues with mom and losing caregivers
My mom is 89 years old with moderate Alzheimer's and Binswanger disease. She lives with my step-dad (they have been married over 50 years) who also was just diagnosed. I live 250 miles away and have been staying with my parents first for one week out of every month and now two weeks out of every month for over two years…
-
How to deal with a mom that thinks you're stealing.
Hello, first time poster and just wanted to get some advice. My 87yr young mother is in early/mid stage dementia. Her short term memory is at maybe 30%. And unfortunately she's begun to confuse long term memories with recent ones. Example, she thinks my grandma who passed away 47 yrs ago just passed away a couple years ago…
-
Funny / not funny
Found dozens like this in mom’s text messages. She tried.
-
Long Winding, Descending Road
Hello: For 5 yrs. I am a primary caregiver living with 93 yr mother who has multiple health issues, vascular dementia (VaD) and on Hospice for several months. I believe the end of the road is near. I have been circling various stages of grief as I witness what she is living through (unable to walk, stand, loss of…
-
Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
-
Memory care guilt
My mom was driving and living alone 3 years ago and now can barely walk with a walker, has total incontinence, can't dress herself, and is furious I put her on memory care, where im sure frightens her because she sees her future there. I am overwhelmed with guilt over this decision. It was my decision alone because my…
-
Becoming mean
My mom is 90, currently in independent living apartment. She picked the facility 10 years ago so she could access transitional help as she aged. I believe she is in the latter part of early stage dementia. The last year she bas become very argumentative with everyone … fired one cleaning service and “hates” the new one.…
-
Hired companions to supplement MC.
I’m new here. I started writing a long backstory and decided to cut it down to the immediate situation. Mom has been in MC for about a year after being diagnosed with dementia. She went from living independently and walking regularly to MC in a matter of weeks. She has been unhappy depressed and angry about her situation.…
-
Progressing too fast
It’s been awhile since I posted. My mom, 73, has been in MC for over a year. This past month she went from being okay to almost completely mute. No UTI. Her suite mate was her security/friend. But she started having bad mood swings and taking it out on my mom. My mom has since become withdrawn and just this past…
-
Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…