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medicaid
I am currently in the process of getting medicaid for my mom. She got approved and got the card; however we now need to set up a pooled trust. Do people do this on their own, or does everyone hire a lawyer?
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New-ish diagnosis
My father has been diagnosed with MS ALZ and it is clear that the disease is progressing rapidly. What do folks do when the families cannot afford in home care or facility care? His insurances only will cover certain things. He cannot be home alone anymore. Any tips/advice would be appreciated so much we are desperate 😔
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Changing diapers
My dad is double incontinent. Mom wants to move Dad from Al back to home where she can take care of him. One big obstacle is trying to change his diaper when he is bed bound due to multiple fractures on his entire right side. Is there a way to change him without hurting him and how to roll him onto his side? Maybe I could…
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Help! Transition to hospice too soon resulted in $6K bill at SNF
My father has been in a SNF for nearly 3 months following a hip fracture. He's frail and the ordeal has advanced his dementia to severe. The rehab facility doctor has been recommending hospice transition for some time. I was able to get him accepted at the MC place where my mother now resides on a hospice basis. This has…
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How to find a good live in caregiver?
Hi. After a fall and surgery, my mom, who suffers with dementia, requires 24/7 care. Where is the best place to search for a live-in caregiver? Care.com, carelinx.com, Indeed or elsewhere? I'm worried about being able to find the right person— someone reliable, kind and experienced. Thank you for your help.
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How to best poop in a diaper in bed
What is the best way for someone bedridden to take a poop? FIL feels the urge to poop, but can’t seem to go in bed. He has disposable underwear on. Should he Lay on his side? Lay the bed completely flat or elevate the torso?
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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New to Alzheimer's
Hi! I am new to this site. My mom was diagnosed with Alzheimer's. My dad is her primary caregiver. My brother and I try to help the best we can right now as we have our families to take care of. My brother helps a little more cuz he lives next door. My family and I live an hour away. We try to get out there when we can. My…
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Mom wants to keep dad at home.
My dad has been in AL under hospice care for 4.5 months. Mom keeps saying that she can take care of Dad at home because she can't afford it. The only thing that's holding her back is that she can't change my dad if he poops on himself. He is double incontinent. She doesn't have the strength to turn him over. She has…
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New to forums...I really, REALLY hate this disease
52 y/o male taking care of my 76 y/o mother who got diagnosed around 2 years ago. Following a stroke my mom had, my wife and I moved our family to a more affordable town so I could move her in and care for her. I didn't know at the time that she was at the beginnings of AD. We noticed some strange behaviors but chalked it…
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Looking for a zoom call
I’m looking for the sign up information for the zoom call for adult children
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Newly diagnosed
Hi, This is my first time here. My mom Was diagnosed with mixed dementia today and it's been so hard to wrap my head around it. I'm so sad about the diagnosis and sad for her.
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I am so angry and I can't help it
Forgive me for the ramblings but I don't know what else to do. I used to write on these boards about this but haven't written in a long time. My last email was breached so I'm writing under a new email. I am a religious person and believe that God knows what he is doing but I am still so angry and sad and full of grief. I…
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Coping
Hello. This is my first time ever joining any type of support group for anything. I am normally a very private person and have been debating for months on how to cope with the fact that my father has been dealing with memory issues for the last few years now. It’s really hard for me to see him so confused and repetitive.…
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Boredom
So it been almost 8 months since a moved my dad in. He still thinks he’s visiting. I work a time job from home and mainly the sole care giver for him. When he first got here his sleep pattern was off and he would sleep till 2pm if I didn’t wake him. He’s timing has recently changed which I feel is a good thing and now he’s…
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mom wants to go home
what do I tell my mom when she repeatedly wants to go home, cries, says she wants to die, it's heartbreaking
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MC just for meals
Hello All I heard from the Director of Nursing and they are moving my Mom to MC for meals. To assist her with feeding. Yes, my mom has been having issues with feeding herself . Is this "normal"… to be honest, I don't know what is normal anymore… but is this usually done? Will full time MC be next? Thank you
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New Here - Caring for My Mother
Hey everyone, I just found this support group website. I'm currently 32-years-old and caring for my 52-year-old mother who has early Alzheimer's. Does anyone recommend or know of a place I can find a social worker to help me out here? I'm supporting her financially, and I need to find a safe place for her to live. Thank…
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Caregiver for parent diagnosed early in life.
Hi, My mother (60) was diagnosed with Alzheimer’s early this year. It’s been a big change for her of course but I am now her sole caregiver (F25). Running her life and taking over her finances. love my mom and I am so grateful I am able to be with her while she still is in the early stages. But I am struggling with getting…
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Overwhelmed and not sure what to do.
Hello, I'm new here. I joined because I need advice on how to help my mom. She's eighty years old, started showing signs of dementia and possibly some other cognitive issues over the last three years. A bit of background; My mother's reasoning has always been questionable since she was a child but it was dismissed as -…
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Time shift
My mom has Alzheimer's and seems stuck 31 years ago when her step dad passed away. She keeps insisting on going to the funeral home and make his arrangements. I have tried everything including telling her I have already done it to he's been gone for many years. She gets angry over it. Not really sure how to handle this. My…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Caretaker for parents with dementia
Both of my parents have dementia. My brother is autistic and we found a residence for him. He moved 2 months ago. My father has rage outbursts b/c my brother isn’t home. I want them to speak with each other. However I’m afraid of the chaos they will cause demanding that he come home but it’s not safe for my brother to live…
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outings
Is it helpful or harmful to take the person for a ride or to a relatives home for a few hours when the person with dementia wants to "get out of here". Will returning to the facility be even more upsetting?
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Need good doctor for mom
We went to neurologist today have meds we are starting for mom with alzheimer. The neuroligist is a busy guy so can't be her regular doc. I would like suggestions of a good primary doc for mom who can oversee her health meds or work with elderly. Any names of good docs out there in twin cities or surrounding area.
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Whom do I believe? My Mom or the caretaker?
Hi Everyone! I'm new to this community. This is my first post. My Dad passed away last fall and I had to take over as my Mom's caretaker. She has dementia and I am her POA and only living relative who is able and willing to take care of her. I have been very overwhelmed taking care of my Mom since my Dad died, especially…
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delusional mother being abusive towards me
I am so worn down by my mother's constant accusations, and although I know its a disease it still hurts so much! She doesnt have anyone else, so I am her main source of care- I get her groceries, do her hair and nails, take care of her finances, manage her meds, take her to all her appointments, and moved her…
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Walking with walker
Looking for someone to help my mom walk with a walker. She is at woodlake nursing home and they confine her to a wheelchair. We live 1 hour away. I want to keep her strength up.
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What to tell
So, mom is pleasantly demented, and in a terrific ALF. That said besides her memory issues she is pretty healthy thank god. 84yr old. Her sister is not well and declining and I cannot imagine it will be long she is 90 very sick in hospital. Should my aunt pass, Should I tell mom? She of course remembers her and asks about…