-
How to file complaints with memory care
I'm super angry about a decision made by the head administrator of the memory care my mom is at. I think it was a terrible decision but probably doubtful that it was legally negligent. In any case when the whole crisis of the situation resolves I want you to file complaints with the board of health as well as corporate.…
-
MCF/Hospice Care - Standard Comfort Pack Medications
Hello, Mom has been in a MCF for almost 3 yrs now. I consider her cognitive decline has her in late stages of dementia. She is up and around with a walker, speaks with lots of word salad and eats generally well. She has been on hospice, a partnered hospice connected with the facility, since 10/2024 at a time when mom's…
-
Please read my story and thank you
Hello. My father passed away in July 2023. Before my father passed, we had discussed that my mom would have to come live with me. She was not to live alone. Mom had mild dementia at the time.The night my father passed, Mom came with me and stayed with me for 2.5 years. During the first year, she was no longer able to cook…
-
Worry about roommate
Mom is in a nursing home. She is probably stage 4 vascular dementia. Her memory isn’t too bad and she remembers family, but her logic and reasoning are not good and anosognosia is so bad. Her current roommate is very nice. She has health issues, but not dementia. They get along well and it has been good for mom. Her…
-
Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
-
Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
-
Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…
-
Morphine
I got a call from my mom’s hospice nurse on Friday night that they wanted to start her on a very low dose of morphine. Apparently she had a bad week, and said she wasn’t feeling well/was in pain. She couldn’t say where, they thought maybe her hip, x rays showed nothing. Shes been eating less (we already knew that) and now…
-
How are you? I'm...here.
Sometime I'll have time To properly mourn When people stop asking What year you were born But my time is your time For however long You need me to turn on You favorite song I wake you up gently We'll do it together I write down the day And the time and the weather I carry your books While you search for your name On the…
-
New Here
Hi, my mom has been having cognitive decline for a few years but hasn't been diagnosed. She turned 70 last year and Ive been trying to help but have little help or resources. She can still mostly take care of herself, has my father.. so power of attorney is not in the cards yet. My father has his own problems and won't be…
-
How do I go about transferring my parent to another memory care
I'm wondering how to approach the subject of transferring my parent to a different memory care in a different state with her current memory care. I'm happy with the current memory care but I would like my parent to be local to me as I am her power of attorney and there is no longer the same compelling reasons for her to be…
-
Sleep Disturbances After I Visit
Hello everyone - I'm new here…as many of you, I am dealing with countless challenges…one of them is that I feel like my Mother gets more anxious after I visit her. The days I dont visit, she sleeps relatively well. But the days when I visit she wakes up several times a night and calls me asking where I am…and tells me how…
-
Severe fixed delusion
My father has struggled with undiagnosed and therefore, untreated mental health issue throughout his life. The last few years have been very difficult because he now has some dementia and has developed a delusion related to his health where he thinks that doctors have intentionally infected him with something (like a…
-
Vacation Guilt
My mom has dementia that is progressively getting worse. My dad has no cognitive issues and is her caretaker but also is somewhat in denial, at least to me, about her condition. Every summer, my husband and I go on vacation with our two children at a beach a few hours away. Before my mom's condition really declined, my…
-
Affordable Care Options around Minneapolis
My mom needs a nursing home situation a.s.a.p. My stepdad is caring for her but it is too much any longer. They cannot afford the minimum $10K homes that we have looked into. I don't think she'll qualify for Elder Care Waiver and most homes won't even take those until you private pay for a couple of years. HELP!
-
Picture book for dementia patients to help them understand their condition?
Hi! First time posting. I took my father-in-law to his appointment where he got a diagnosis and, although he couldn't engage much in the conversation with the doctor and I, as soon as the doctor left the room he asked me, "What did the doctor say? My brain?" I did my best to explain in simple enough terms he would…
-
Coping with Increasing Sleepiness?
My father is at stage 6 according to the DBAT charts and has been in MC more than a year. He started napping in the afternoons several months ago, and he has been sleeping more and more. He is often resistant to getting up. When he is up he reports being “exhausted.” I know this is a common part of disease progression. I…
-
Worried
My dad was recently diagnosed with middle stage dementia. My mom is currently taking care of him at home, however we both have noticed he becomes agitated more often and I am worried for my mom. The doctor told us that they would not prescribe him anything unless he becomes combative. I don't want to wait until then. Does…
-
Don't treat them like they know...
So, it's been a long journey. DW is fully in the stage 6/7 range. We have hospice. I have known for a very long time that she goes in and out of knowing who I am. Like someone once said, they know who you are but they don't know who you are. But I think up until now my way of handling her in troubled times is in a way that…
-
Mom newly diagnosed
Hi, My mom was newly diagnosed with Alzheimer’s like 2 weeks ago. I’m so lost. I’m mad I’m angry I’m sad and I’m scared. I’m scared of the future and not knowing what that will look like. I feel like I’m failing my mom. Like I should have been able to prevent her getting Alzheimer’s. I have no help. It’s all on me. I feel…
-
Dealing with uncontrollable anger
My mother is 82 and was previously diagnosed with early onset dementia. I didn't think the condition had progressed much, as I was not noticing any severe symptoms, but in the past year she has had more and more outbursts of uncontrollable anger. I didn't know this was a symptom of dementia until I looked it up after a…
-
Antidepressant usage
I was wondering about other’s thoughts/experiences with anti-depressant usage in Alzheimer’s patients. For context, my mother is late stage 5. She previously was on an antidepressant though apparently not taking it when she was still living at home. I moved her into assisted living (not memory care yet) a little over a…
-
How to deal with delusions
my parent is having delusions most of which are relatively harmless but they are consistent delusions she is creating a life around almost. Ie she thinks she is getting married and has a fiancé and she has a whole story around this. I am taking the validating approach and "meeting her where she is at" but I'm not so good…
-
Admitting Dad to a Memory Care Facility
My Dad is going to be 89 in March and has recently been diagnosed with Moderate to Severe Alzheimers. For the past 8 months, my sister and I have been his main caregivers and we shared the responsibilities. However, in the past week my Dad has fallen twice and thankfully so serious injuries. He doesn't have conversations…
-
New to this and in need of guidance
Hi. Just signed up. My first time on here. Mom was just diagnosed with Alzheimers. I am not sure what my steps are to get her everything she needs and where I can obtain from a financial point and medical care (medicaid??, walker, assistance) She lives alone and is in early to mid stage. Any suggestions? We live in NY. Are…
-
My Dad Died
After 6 months in nursing home and a week in the hospital my Dad died last Thursday. So I guess my caregiver journey is over with him. I feel very confused. I haven't cried nearly as much as I thought I would. I thought I would fall apart. But I have been fine so far. Am I just waiting for a collapse around the corner?
-
Moving a parent to another state to another facility
I am seriously considering moving my parent who is midstage from a memory care facility she has spent 1 year at to a facility by me in another state. I am honestly a little intimidated to do this but I feel like this is the right decision for her care. I am her power of attorney so I can make this decision. Does any one…
-
Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
-
Help, non stop sundowning
Hello, I’m new here. I’m too young to be dealing with this.. Mom and I are the last live members of our family and she’s had dementia (clearly to me) for the last 15 years. 5 years ago I took her home with me because I couldn’t find a place she was not being abused. She’s 99% gone. She doesn’t know who I am but she is…
-
Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!