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Leqembi?
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.
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Significant other
Hi, I need advice on how to approach this situation with my dad who has dementia. His girlfriend of 12 years that has been living with him, will now be moving out of state because she has health issues and will be cared for by her son that lives in another state. She’s been hospitalized the last 6 weeks and I have been my…
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Mom refuses to take medication and has become very aggressive....
Hello! My mother is 69 yrs old. She was diagosed with Alzheimer's about 3 years ago. She was considered to be mild/moderate at the beginning of 2024 but I feel like there has been some progression. I am her primary and only caregiver. For about a month or so she has been refusing to take her medication. I've tried…
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Moving Dad to a New Facility
I have never posted here, but just need to get this out. I have done 99.9% of the caregiving for my dad who is now mid to late stage. He is in Assisted Living, but the facility he is in provides very little assistance. I think they may be understaffed but it's just not working out. This past weekend, I spent 5 hours with…
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Concerned,not sure where to go from here
My mother has dementia and I think it is in her last stage. I was wondering if I could find some information to see where we are at. I know that everyone is different in regards to what symptoms/behaviors they go through to determine what stage they are at, but just starting this week, actually, about 2 days now, she will…
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Bumbly words in communication
Dad is really at a point now where his words are intelligible choppy and i often cannot even tell what he is saying. I have to guess at everything and I can tell by how he looks at me, that I have gotten it wrong. How frustrating it must be for him. Does anyone have tips on how you coped with this in your lo...maybe you…
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Do the specific loops stop?
My mother (88), just a couple months into AL (who really should be in MC, and likely will be transitioned soon), has incessant looping (like many of our LOs do). There are several topics, but one is that she wants her 2 credit cards back, along with her driver’s license and $25 cash, all of which she supposedly gave me for…
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End stage - mom
Hi. My mom has been non verbal for the last year or so. She is end stage. Puréed food, bed/chair bound, help with everything. The past few visits she’s been trying to say something. It’s just weird. Anyone have this happen? I am not sure what to do, if anything. TIA
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Need Advice - Elder Abuse
Hi all, I need some help. My parent was diagnosed with alz last year, it is moderate to severe based on my perception. I don't know that the doctor ever told us what stage they were. They have a partner who is significantly younger (almost 30 years difference) than them who they've been with for maybe 2 years or more (both…
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Fatal fall
My Dad, 89, with VD, has so many fractures due to several falls in the past 2 years. He fractured his spine, humerus, elbow, hip and pelvis. He's completely bed bound, double incontinent, needs to be fed, and he's kept comfortable with pain pills (narco, morphine). He is under hospice care in assisted living. He still has…
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Reaching my stress level point
Hi- I am a caregiver for my two parents living in one household. One has mild cognitive impairment and the other has low to moderate dementia. I have been caring for them for the past year. My issue is that my mother has become increasingly worse in the past couple of weeks. She can't seem to remember how to do any tasks…
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How to Know if Skilled Nursing Center/Nursing Home is Better than MC
Mom ended up in a skilled nursing center for rehab about 4 months ago.We didn't bring her back home because we felt it safer for her at the center. Each wing has a nurse, doctors and PA's, dentist, xrays, etc. are available there if necessary. Since she's been there she has become too weak to walk and is in a wheelchair…
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Scared to be alone
I don’t know what to say anymore when my mom says ‘I’m lonely. When are you coming back? Promise?’ I see her in MC almost every day. I know that she is scared bc she understands to some degree that she is losing her mind and afraid of what’s to come. Today she said to me ‘I’m really going to miss you. I’m running out of…
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And so it begins....
My mom just shit on the floor. Completely missed the toilet. I am trying to get her medical insurance figured out but it's been difficult to get through to social services. We can't afford a house cleaner and we can't afford a full-time caregiver. I am a single mom and a student. I don't have time for this. I guess I just…
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New here, looking for support
My mom has been on a steady cognitive decline over the past 2 years after a big fall and some medications she was placed on. We have not been given the diagnosis of Dementia due to the fact that she will not get tested and gets extremely angry when it is suggested. (She has always had anger issues and does not let anyone…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Constant phone calls
Hi everyone, my mother is in MC. She constantly calls me, and gets upset if I don’t pick up the phone. I have blocked her number. I call her most days to check on her. She is now talking other residents and an aide to call my number from their phones. Do I need to figure out each new number and block that? I also don’t…
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Initial transition from home to care facility
I’ve been told to expect an immediate health decline when my parent is placed in a care facility. My M is extremely anti-social and my biggest concern is her thriving in this environment. Can anyone share their experiences in detail?
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Huge fiblet: spouse is "dead." Is it justified?
I've been living with/caring for Mom, in MS ALZ, for 5 weeks since Dad (also ALZ) fell and broke his hip: always our worst case scenario. Finally have her paperwork almost done for admission to a MC near me (700 miles from their home, which has made this all so hard). The plan is to take her on a plane for a "short visit"…
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Food Obsessions
My 90 YO mom with mixed dementia has become OCD for lack of a better descriptor about food expiration dates. I clearly write purchased and opened dates on everything with a sharpie but there still no trust and we waste a lot of money on food because she constantly throws it away when it’s perfectly fine She says it tastes…
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What is the best way to help
Hi, My mom was officially diagnosed with dementia last spring. I knew she had it before that. She can still manage on her own… mostly. She is incredibly independent and stubborn, she always has been. I find that all of her good and bad personality traits have become more pronounced. Is that familiar to anyone else? My…
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New Here
I am an only child. My mom was diagnosed with Alzheimer's last Friday. I'm not sure how to feel or react still. I am trying to get her with me. That's what the dr has suggested. I live in an apartment. I'm doing my best to buy a home to bring her to. It's heartbreaking. But..I'm doing all I can.
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VD 93 yr old mom
just found you guys a couple of days ago. Thank you God for this support. I’ve known for quite a few years her mind was bad. Her old PC was not a very compassionate doctor so I finally switched her to a new one. CScan came back as vascular dementia. Her chronic UTI’s are a result of poor hygiene. She’s been on 6 rounds of…
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Caring for my grandmother and my family
Hello! New here and wanted to share my situation, and hopefully get some feedback. My wife and I and our two girls are live-in caregivers for my 93 year old grandmother. My kids are 5 and 6, and we have another on the way. When we moved in with her almost 4 years ago, we realized she wasn't getting the support she needed…
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New to the group, any advice helps!
My mom got diagnosed in September of this year with Alzheimer's. Right now, it is mild where she needs things explained to her a few times or gets confused about dates. She still has her memory and wits about her and luckily her and my father retired earlier this year so he's taking care of her. She can still function on…
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Navigating emotions and getting help
Hello, I'm new to this group. My mom has alzheimer's. She was diagnosed 1.5 years ago. Since then I have put her home in a trust, Found private care for 2 hrs in the morning M-F, and was sending her to an adult program 3 days a week. She's been to the neurologist and had a psych eval. Believe she's in the middle range of…
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How to help loved one adapt to memory care
My parent went into memory care a couple of days ago. How can family assist in her adapting to memory care? I live out of state but my sibling is nearby as are my parent's siblings. I would like her siblings involved in her care as much as they want to be because it's such a big job for just one person. Right now she is…
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Almost died
Good evening, A little over a week ago, on Jan. 9th, my Dad (pwd) went to the ER from memory care after a fall (complaint of head and hip pain). He had had pneumonia in Dec. and still had a bad cough. Turns out he had bronchitis and pneumonia again, and he was put on antibiotics. The CT scan done on his head didn't show…
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My mom is declining
Hi everyone. My mom is declining now and I am so afraid. I knew eventually this decline would come but I am still struggling so bad with it. She is still awake and eats some. But she is not drinking much, if anything, at all. She doesn't talk or walk anymore. She rarely smiles anymore. She was admitted to hospice 3 months…
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Spinning our wheels
I got a call this week from a speech therapist my mother saw a year ago. She said the staff at the MC facility had asked her to renew her services with my mother and that she sent me paperwork via email to sign that would allow her to begin a consultation. There is a copay agreement. Apparently, the staff was having…