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Dad newly diagnosed
Hi Everyone. This is my first post. My dad was newly diagnosed this past June with early onset Alzheimer’s. I feel like I am in a state of complete shock. I have gone into “panic mode” and I want to make sure I’m doing all of the right things. My dad is still very early on, but the not knowing of what’s next and when is…
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Need to move mom; don't know where to start...
Hi, Hoping for some guidance from those who have lived it. Need to move my mom out of her home (she refuses) due to decreasing cognitive abilities (dementia). She lives 8 hours away in the middle of nowhere, with no facilities to move into in her community (rural, northern MI). She has too much money to qualify for help,…
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Barely Surviving Everday…
Hi, I am new here. By a grace of God, I was given this website, believe it or not from a woman that was a customer service representative at the Treasury Department. My mom has Alzheimer’s, and I suspected it four years ago and sent the alarm to the family. Nobody believed me, and thought it was natural aging, and…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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How to tell a parent they are moving into a MC facility
I posted earlier about looking for a MC facility for my Dad. I forgot to ask, how do you tell them they are moving into a MC facility?
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Bible Verse to Lift You Up 1/21/26
LIVE A LIFE FILLED WITH LOVE "Imitate God, therefore, in everything you do, because you are his dear children. Live a life filled with love, following the example of Christ. He loved us and offered himself as a sacrifice for us, a pleasing aroma to God." Ephesians 5:1-2 NLT Join me. HOLY SPIRIT, please help me to want to…
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Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
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I Feel Lost, Depressed and So Very Sad
Hello. I am new to ALZ Connect. I am looking to connect with others who have or are experiencing what I am going through as an adult child with a parent with ALZ and another parent who is losing it as the care giver. I am hoping to connect with others who feel similar to what I feel so maybe I won't feel so alone in this…
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Night at the ER
Well, I am eating my words from a recent post where I said I wanted to avoid ER visits for my mom at her stage. How do you avoid this when she trips and takes a header into the corner of a countertop? When the facility calls and says she's in the ambulance, just two hours after I had dinner with her? Here are the…
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Convincing person with dementia to go to parents' memorial
My parent with dementia had their parents both recently pass away in close proximity of each other. There will be a memorial service at an informal venue. My parent is local to the memorial celebration. My parent with dementia visited her parents regularly in the past year when she moved close to them to go to memory care.…
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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4.5 years in caregiving
It’s been 4.5 years since my dad died and I became caregiver for my mom. At this point we’ve fallen into a rhythm (of sorts), she’s settled in MC, but it’s sad and hard and financially scary and I feel sorry for myself. Almost all of my free time on weekends goes to her. I feel guilty for even complaining. I dread seeing…
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Caring for my mom
Hi, I'm 58 yrs old and been caring for my mom and dad full time for the last 3 and a half yrs. Mom has alzheimers and dad had dementia. We lost him 2 and a half years ago. I seriously dont know how I've done it, not lost my mind that is, this is very hard, probably the hardest thing I've ever been through as I'm writing…
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Suggestions on making the move to MC
My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…
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Son of an Elderly Father with Alzheimers
Hi, My father was diagnosed with alzheimers in August of 2025. Its been really rough mentally and emotionally. It's hard to watch my mom struggle with my dad. It sucks that the Dad that I known and love is no longer the person I know. What have you done to cope with this change in your life?
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Moved Mom In
We moved my mom in a week ago that has dementia. I wish I could say it’s been a wonderful process, but it has not. It has been awful. She continually every day wants to call her brothers to come and get her and take her home she that we are in Florida when we actually are in Ohio. She keeps saying she wants her brothers to…
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Two Elderly Parents with Different Cognitive Issues?
Hello, all. I found this group months ago, but only finished the registration process last week. All of what I have read so far has been so supportive and helpful, and I've already received my copy of The 36-Hour Day. Thank you all so much! The family (except my mom) started noticing more cognitive decline with my dad…
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Financing Memory Care/Nursing Home/ALF with Medicaid
Hello! First, sending a lot of compassion and energy to everyone here. For me, my mother is in the later stages of Dementia we are looking to move her into a medicaid facility where we could potentially pay for an upgrade to a single room. I am looking for resources or any discussions on financing memory care with Medicaid…
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what is expected in memory care?
I am trying to understand what is expected in a memory care facility regarding personal hygiene, dietary needs and housekeeping. We just moved my dad (just turned 86) from on memory care place to a new one, mostly to get him closer to mom so she can see him every day. THe old place had a TERRIBLE menu. Supposed to have…
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Moved mom in today and very afraid
Hello, first post here and hoping for some insight. My mom is late stage and spent 3 weeks in the hospital because it was not safe for her at home. She was moved to a facility today and they don't even have a memory care unit. We do not have money, so it is paid for with medicaid and it was the first bed available and we…
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I smell poop
Today started early because we had a dentist appointment an hour away. Dad was already up using the bathroom at 8am. So I explained that we need to get dressed and change diapers. I gather items to bring then look in to find Dad went back to bed. I wake him and say we'll be late. Now he switches into slower mode. When we…
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Major shift in sleep
Usually my Mom takes a long nap in the afternoon and falls asleep on the couch while we're watching tv by 7 or 8pm. The past week she's been napping morning and night, still waking for meals. She seems very confused with general conversation, inability to demonstrate any logic. She's been diagnosed with mixed vascular,…
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Hospice Assessment in MC?
What is involved in an assessment for hospice care? Is there any reason NOT to have an assessment for a person around late stage 6? Does Medicare pay for hospice entirely? Yesterday my father fainted in MC and was sent to the ER. I was called at work and went to the hospital within an hour. Fortunately the ER doctor was a…
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POLST Form - Physician Orders for Life-Sustaining Treatment Form - overwhelming
My LO is very, very elderly. She was recently hospitalized and had surgery. We had to make a lot of decisions fast and under pressure in the ER. But luckily it all went as well as could be hoped. She is definitely more fragile than she was before the whole thing but she is doing well. Her physician's practice is all…
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Asking Permissions
My MIL is starting to ask me permission in her own home, can I have coffee? Can I close the curtains, can I do this etc? Is this a stage? Am I doing to much?
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Looking for Resources in Maryland
Hi there! I am seeking guidance to assit my MOL with my FOL's dementia diagnosis. He is going to adult day care three day per week, but still car tasks at home are getting overly challenging. Here are some of the main issues we are working with: -sundowning (lots of frustration throughout the day) -insomonia -inability to…