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Affording full-time care in California
My mother has lost a lot of functionality since receiving her Lewy Body Dementia diagnosis a year ago. She now needs some help with toileting, dressing, and has shown a reluctance to eat regularly. We are concerned that she may need full-time care and that my father can't support her anymore, but the costs of care are…
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Need some advice
Mom was diagnosed two and a half years ago. I am her DPOA. She lived in Al for about a year but her money ran out. She is in a nice nursing home and on Medicaid. Her house should have been sold, but I could only do so much. My brother fought me every step of the way. The house is full. After mom left the house I worked so…
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Sudden Decline
Hi- I just saw my mom (85) in another state. The decline is significant. Day of the week Where's my (various items)? Where is (various people)? I knew it was coming. But I'm so overwhelmed.
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Personality Disorders + Alzheimer’s Disease
Hi, I’m new to this message board and this is my first post. It’s going to be a long one. I’m feeling a bit desperate and I need some advice. My Mom is 78 and was diagnosed with Alzheimer’s a year ago. Although, I think she’s probably been sick for longer and her condition was masked by her existing mental health issues.…
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Extreme Insomnia Due to Inability to Lie Still at Night. Desperate Family seeking Advice.
Hello All, sorry for the long post but I wanted to give some background information without being too wordy. My 80 year old father is currently diagnosed with parkinsonism. He initially was diagnosed with parkinsons 12 years ago, then lewy body dementia, and now they just call it parkinsonism. Overall his symptoms were…
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Bathing
I live with my mom (88) who has AD. Getting her to bathe and wash her hair is a struggle and it ends up in a power struggle sometimes. She also won’t accept help with this. How can I support her independence but also assist her in maintaining good hygiene. I want to be respectful but she doesn’t understand and it’s getting…
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Activity/Busy Work Ideas
Hello everyone! My mom (61) is in mid-stage dementia right now. She lives at home with my dad (61) and me (27). My dad and I work full-time, and we have cobbled together paid and unpaid caregivers/friends who come hang out with her at the house while we are at work. Recently she has been trying more often to leave the…
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The past three weekends have been so draining
For the last three weekends, including today, my mom's dementia has been at a 7, on a scale of 1 to 10. She's been a mix of emotional and delusional, rehashing the past with my deceased Dad of 13 years, forgetting where she put things she either put down or things of hers I keep in my room, or crying about how she wants to…
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Advice With New Boyfriend
Hello all, I'm new here. My mom was diagnosed with Alzheimer's earlier this year after receiving a diagnosis of logopenic PPA last year. She is having an unusual progression where memory is not significantly affected. Her primary issues are with language (speaking, understanding others, reading, writing), performing…
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Mom and Dad with Alzheimer’s
About a year ago, my mom was diagnosed with Alzheimer’s. Last week, so was my dad. They live independently together about 15 minutes from me, my husband and our 15 year old son. We knew something was wrong long before Dad’s diagnosis…but by the time we got his cooperation and finally got him to a doctor as a new patient,…
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Help with going to the bathroom
I am new to this discussion board and I'm hoping to get some help and ideas. I am living with my 89 year mom who has moderate Alzheimer's/dementia. She is not very stable when she walks and uses a walker all the time. She has a bathroom in her room but I put in a commode a few feet from her bed for use during the night and…
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Memantine experiences
I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…
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How Do I Stop Being Angry?
My Asian mom's dementia suddenly surfaced in early March during a traumatizing incident that resulted in me getting kicked out of the house in the middle of the night. Since then, my older sister (who is my mom's long-distance caregiver) has made plans to move me & my mom to VA to live with her in a new house that's…
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New to the Group
Where to begin……… I have so many questions/concerns. My aunt of 68 years young has been forgetting things on a regular basis for the last year. It has gotten progressively worse the last few months. She has owned her own business for the last 40 years and has been a independent single women her entire life, she doesn't…
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Mobile tracker/newly diagnosed
Hello. My dad was recently diagnosed with dementia. It breaks my heart to see the changes. I am so thankful to God that he is still here but it still hurts. He is the best dad in the world. I try not to think about what the future could hold, but its difficult. His doctor suggested we put a mobile tracker in his phone…
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Medicaid or home health? Rapid decline in mom
My mom recently was diagnosed 3 weeks with Alzheimer’s and vascular dementia and is rapidly getting worse. Is this a normal part of this process? Also, I’m trying to research home health care because she is forgetting to take her meds. I’m getting different answers through Medicare for her coverage. Any suggestions? What…
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Taking Away The Credit Card
My father was recently diagnosed with Alz. He understands the situation. Always had a very argumentative relationship with my mother and there are some trust issues. Now I received this from my mom: "A few days ago, your father was listening to a medical sales pitch on the internet, he was convinced that it was a product…
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Need Advice
My mom has dementia and its been hard lately because I can't fix it. Like everyone else no one wants to see their loved one going through anything like this. How do you manage with everything you want to do anything for them but in reality, you can't. It can be overwhelming, stressful and of course depressing because I…
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Trusting the "Experts"
This is my first time posting on this website. I am almost 60 years old and my 90 year old mother was recently diagnosed with dementia. She and my father live in an RCAC 2 hours away from where my sister and I live. In the past few months my mom's memory has declined and has required more care. She and my dad have been…
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Father keeps asking where my mother is...
I'm sure this has been addressed many times previously, but I just signed up today. So I'll ask. I moved my 85-year-old parents into a personal care facility 4 months ago. My mother needed the extra care, but my father was fine even though he was in the throes of dementia. My mother passed away after 3 weeks in the…
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PACE and LIFE in NJ, is this my only hope?
As I try to learn "what can be" for my elderly Mom who is caring for my Dad with vascular dementia….I feel I am loosing precious time. Time is focused on the worst instead of connecting with my Father. Should anything happen to my Mom, I need to have an emergency plan in place. My parents do not have a plan. Has anyone…
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Arguing
This was on my facebook and I thought it was so relevant for us dealing with dementia I thought I would share. Relevant for both the pwd and difficult family. Helen Mirren once said: Before you argue with someone, ask yourself, is that person even mentally mature enough to grasp the concept of a different perspective.…
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Dealing with the pain from LO tell me to get out.
My mom and I have always been very close we've either lived together or next door to each for most of my life. She has been my rock and me hers my entire life. She got really sick with covid then rehab, then sick again with stomach issues in hospital for almost 3 weeks then back to rehab took much longer to get her…
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Mom swings from engaged to zombie
Hello all, I’ve been caring for my 91 year old mom with Alzheimer’s for 5 years, along with my sister and a team of in-home PSWs. Over the last 8 months mom will have periods where she is zombie-like, barely awake, sleeps a lot, almost slurs her words, not interested in anything. Then within a week she is back to her…
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Transition into memory care
I moved my mom into memory care 10 days ago. She loves when I take her for rides or out to eat. Do you think it is okay for me to take her to my house some days? Or should I let her get acclimated to her new home first? So far she hasn't fought going back but I have only taken her on rides or to stores.
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Psychiatric Drugs for Alzheimer's patients
My parent has stage 4 Alzheimer's. My parent is in her mid 70s and is not happy with being at memory care which she arrived at 6 months ago. She just isn't adjusting well, won't engage in activities, stays in her room a lot, talks about leaving all the time, is depressed to be at memory care and is anxious. In the past few…
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Sleepiness
Hi - I’m new here. My mom is the primary caregiver of my dad diagnosed this past year with stage 4 Alzheimer’s. My mom is very unaccepting of the diagnosis and keeps hoping for a cure or that any medication he takes will improve his memory. One of the main issues is my dad’s sleepiness. Is this common? He wakes up in the…
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Guilt, Grief, and Memory Care
My mother and I always had a difficult relationship, but I know she loved me very much. She is in the moderate stages of Alzheimer’s and this disease has actually changed her into the sweetest person, partially due to her taking sertraline. So, in a turn of events I actually really like being around her now. She has enough…
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Getting a Diagnosis
Hi All, I'm new here. Over the past several months my mom has been experiencing severe paranoia and delusions. She thinks the house is bugged, the neighbors broke in to steal her house phone, the FBI is coming to get her, etc. Some of her stories have gotten incredibly dark and concerning, including texting family at late…
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The Pain of Putting Parents in Nursing home
I feel so much pain and sorrow putting my parents into a nursing home. They both have dementia and seem to be spiraling further down since I put them in the nursing home just weeks ago. Both of them seem to not like their situation. It just hurts so much to have them suffer and it causes me great pain and grief.