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Where do we start?
We just received news today that my father who is 74 officially has Alzheimer’s (diagnosed through a blood test) we have been told that he had vascular dementia for a few years now, but mom and I are not completely surprised with this news, seeing as we have noticed the huge change and decline. Where do we even begin? He…
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Bed bound & aggressive -looking for advice
I'm new here and looking for advice. A little background -I help care for my 84 year old father. He has late stage Alzheimer's, bed bound and completely dependent for care. Communication is difficult as his eyesight and hearing are poor and his ability to speak coherently is mostly gone. We are having a terrible time with…
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Repetition
Hello All, I am a 68yr old women caring for my 94 yr old mom diagnosed with middle stage dementia . My dad was a saint caring for her for at least 5 years until he passed 3 years ago. We are a family of six and are all present to help care for mom we are very fortunate in that way. She lives at home but is never alone we…
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Showering
My mom has Alzheimer’s and is not wanting to eat very much and does not want to shower or clean herself anymore. She gets very angry when we even mention getting in the shower. I posted here before and have tried everything I can , no luck. IT has been almost 4 weeks since her last shower. I put a chair in the shower and…
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Overwhelmed was a while ago…
I’m new here. Thank you for being here! My sister and I take care of my mom at home. Who can tell what stage? She was diagnosed about 4 years ago. Dementia, Hydrocephalus, diabetic. My mom is not mobile, she cannot feed herself, she has someone with her 24/7. It’s the hardest thing ever but I don’t want to be anywhere…
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Mom needs help
My Dad, with VD, has been in AL under hospice for 4.5 months already. My mom has AD and has admitted that she has difficulty paying bills and gets frustrated when she doesn't understand things. As POA, I can take over the finances and any legal matters. I thought Mom was still competent handling finances but now she wants…
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Bizarre medical episode
I wanted to post what happened to see if anyone else has a LO with AD who experienced this odd condition. My mother has AD. She lives in MC. The staff discovered Mom sitting and murmuring gibberish Monday after breakfast. Her BP and oxygen levels were both extremely low. They called the paramedics and Mom started…
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I feel as if I’m suffocating…
This is my first time writing on any discussion boards. When my dad was first diagnosed with a brain tumour leaving (FTD) in 2018 it left just short term memory loss. Since in he was 59 and still active and working at the time. The main focus was doing all the mri making sure the tumour didn’t come back . We didn’t really…
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Easy to use TV for alzheimer's patients?
My mom struggles with using the TV remote to watch TV. We currently use basic cable but she cannot remember which buttons navigate what. I've talked with the provider and we have the simplest package they provide. I can do a streaming service for her it it contains several channels she like to watch and is very easy to…
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Shoulder replacement or not?
Hi guys, my first post. My MIL (82, Alzheimer's, Parkinson's, Cancer survivor) needs a shoulder replacement surgery due to arthritis caused by a rotator cuff tear. The surgeon said to get any invasive procedures done before two weeks before the date, so I took her to the dentist to have her teeth cleaned. It was a…
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Always feeling guilty and I feel guilty about that too!
This disease is so terrible and leaves you feeling guilty no matter your best efforts. Mom is in AL and my brother and I each visit a few times a week. It breaks my heart that she is always in tears and saying “i just want you to stop moving me”. We never argue but try to say we are working on it or simply I am sorry. I am…
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feeling sadness and panic and heartbreak seeing my mom like this
She was failing at home, seeing things, getting a bit dangerous, not able to care for herself etc so we were lucky to get her in a home. She has not liked it, tried to escape, fought a little bit to get out, but then got weaker so not as mobile. She has been going downhill so fast. She is weak and crying and moaning. They…
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medicaid
I am currently in the process of getting medicaid for my mom. She got approved and got the card; however we now need to set up a pooled trust. Do people do this on their own, or does everyone hire a lawyer?
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New-ish diagnosis
My father has been diagnosed with MS ALZ and it is clear that the disease is progressing rapidly. What do folks do when the families cannot afford in home care or facility care? His insurances only will cover certain things. He cannot be home alone anymore. Any tips/advice would be appreciated so much we are desperate 😔
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Changing diapers
My dad is double incontinent. Mom wants to move Dad from Al back to home where she can take care of him. One big obstacle is trying to change his diaper when he is bed bound due to multiple fractures on his entire right side. Is there a way to change him without hurting him and how to roll him onto his side? Maybe I could…
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Help! Transition to hospice too soon resulted in $6K bill at SNF
My father has been in a SNF for nearly 3 months following a hip fracture. He's frail and the ordeal has advanced his dementia to severe. The rehab facility doctor has been recommending hospice transition for some time. I was able to get him accepted at the MC place where my mother now resides on a hospice basis. This has…
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How to find a good live in caregiver?
Hi. After a fall and surgery, my mom, who suffers with dementia, requires 24/7 care. Where is the best place to search for a live-in caregiver? Care.com, carelinx.com, Indeed or elsewhere? I'm worried about being able to find the right person— someone reliable, kind and experienced. Thank you for your help.
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How to best poop in a diaper in bed
What is the best way for someone bedridden to take a poop? FIL feels the urge to poop, but can’t seem to go in bed. He has disposable underwear on. Should he Lay on his side? Lay the bed completely flat or elevate the torso?
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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New to Alzheimer's
Hi! I am new to this site. My mom was diagnosed with Alzheimer's. My dad is her primary caregiver. My brother and I try to help the best we can right now as we have our families to take care of. My brother helps a little more cuz he lives next door. My family and I live an hour away. We try to get out there when we can. My…
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Mom wants to keep dad at home.
My dad has been in AL under hospice care for 4.5 months. Mom keeps saying that she can take care of Dad at home because she can't afford it. The only thing that's holding her back is that she can't change my dad if he poops on himself. He is double incontinent. She doesn't have the strength to turn him over. She has…
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New to forums...I really, REALLY hate this disease
52 y/o male taking care of my 76 y/o mother who got diagnosed around 2 years ago. Following a stroke my mom had, my wife and I moved our family to a more affordable town so I could move her in and care for her. I didn't know at the time that she was at the beginnings of AD. We noticed some strange behaviors but chalked it…
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Looking for a zoom call
I’m looking for the sign up information for the zoom call for adult children
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Newly diagnosed
Hi, This is my first time here. My mom Was diagnosed with mixed dementia today and it's been so hard to wrap my head around it. I'm so sad about the diagnosis and sad for her.
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I am so angry and I can't help it
Forgive me for the ramblings but I don't know what else to do. I used to write on these boards about this but haven't written in a long time. My last email was breached so I'm writing under a new email. I am a religious person and believe that God knows what he is doing but I am still so angry and sad and full of grief. I…
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Coping
Hello. This is my first time ever joining any type of support group for anything. I am normally a very private person and have been debating for months on how to cope with the fact that my father has been dealing with memory issues for the last few years now. It’s really hard for me to see him so confused and repetitive.…
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Boredom
So it been almost 8 months since a moved my dad in. He still thinks he’s visiting. I work a time job from home and mainly the sole care giver for him. When he first got here his sleep pattern was off and he would sleep till 2pm if I didn’t wake him. He’s timing has recently changed which I feel is a good thing and now he’s…
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mom wants to go home
what do I tell my mom when she repeatedly wants to go home, cries, says she wants to die, it's heartbreaking
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MC just for meals
Hello All I heard from the Director of Nursing and they are moving my Mom to MC for meals. To assist her with feeding. Yes, my mom has been having issues with feeding herself . Is this "normal"… to be honest, I don't know what is normal anymore… but is this usually done? Will full time MC be next? Thank you
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New Here - Caring for My Mother
Hey everyone, I just found this support group website. I'm currently 32-years-old and caring for my 52-year-old mother who has early Alzheimer's. Does anyone recommend or know of a place I can find a social worker to help me out here? I'm supporting her financially, and I need to find a safe place for her to live. Thank…