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Picture book for dementia patients to help them understand their condition?
Hi! First time posting. I took my father-in-law to his appointment where he got a diagnosis and, although he couldn't engage much in the conversation with the doctor and I, as soon as the doctor left the room he asked me, "What did the doctor say? My brain?" I did my best to explain in simple enough terms he would…
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Coping with Increasing Sleepiness?
My father is at stage 6 according to the DBAT charts and has been in MC more than a year. He started napping in the afternoons several months ago, and he has been sleeping more and more. He is often resistant to getting up. When he is up he reports being “exhausted.” I know this is a common part of disease progression. I…
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Worried
My dad was recently diagnosed with middle stage dementia. My mom is currently taking care of him at home, however we both have noticed he becomes agitated more often and I am worried for my mom. The doctor told us that they would not prescribe him anything unless he becomes combative. I don't want to wait until then. Does…
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Don't treat them like they know...
So, it's been a long journey. DW is fully in the stage 6/7 range. We have hospice. I have known for a very long time that she goes in and out of knowing who I am. Like someone once said, they know who you are but they don't know who you are. But I think up until now my way of handling her in troubled times is in a way that…
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Mom newly diagnosed
Hi, My mom was newly diagnosed with Alzheimer’s like 2 weeks ago. I’m so lost. I’m mad I’m angry I’m sad and I’m scared. I’m scared of the future and not knowing what that will look like. I feel like I’m failing my mom. Like I should have been able to prevent her getting Alzheimer’s. I have no help. It’s all on me. I feel…
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Dealing with uncontrollable anger
My mother is 82 and was previously diagnosed with early onset dementia. I didn't think the condition had progressed much, as I was not noticing any severe symptoms, but in the past year she has had more and more outbursts of uncontrollable anger. I didn't know this was a symptom of dementia until I looked it up after a…
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Antidepressant usage
I was wondering about other’s thoughts/experiences with anti-depressant usage in Alzheimer’s patients. For context, my mother is late stage 5. She previously was on an antidepressant though apparently not taking it when she was still living at home. I moved her into assisted living (not memory care yet) a little over a…
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How to deal with delusions
my parent is having delusions most of which are relatively harmless but they are consistent delusions she is creating a life around almost. Ie she thinks she is getting married and has a fiancé and she has a whole story around this. I am taking the validating approach and "meeting her where she is at" but I'm not so good…
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Admitting Dad to a Memory Care Facility
My Dad is going to be 89 in March and has recently been diagnosed with Moderate to Severe Alzheimers. For the past 8 months, my sister and I have been his main caregivers and we shared the responsibilities. However, in the past week my Dad has fallen twice and thankfully so serious injuries. He doesn't have conversations…
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New to this and in need of guidance
Hi. Just signed up. My first time on here. Mom was just diagnosed with Alzheimers. I am not sure what my steps are to get her everything she needs and where I can obtain from a financial point and medical care (medicaid??, walker, assistance) She lives alone and is in early to mid stage. Any suggestions? We live in NY. Are…
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My Dad Died
After 6 months in nursing home and a week in the hospital my Dad died last Thursday. So I guess my caregiver journey is over with him. I feel very confused. I haven't cried nearly as much as I thought I would. I thought I would fall apart. But I have been fine so far. Am I just waiting for a collapse around the corner?
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Moving a parent to another state to another facility
I am seriously considering moving my parent who is midstage from a memory care facility she has spent 1 year at to a facility by me in another state. I am honestly a little intimidated to do this but I feel like this is the right decision for her care. I am her power of attorney so I can make this decision. Does any one…
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Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
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Help, non stop sundowning
Hello, I’m new here. I’m too young to be dealing with this.. Mom and I are the last live members of our family and she’s had dementia (clearly to me) for the last 15 years. 5 years ago I took her home with me because I couldn’t find a place she was not being abused. She’s 99% gone. She doesn’t know who I am but she is…
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Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!
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Mom won’t see a doctor but definitely has alcohol-related dementia.
Mom is 76 and has been exhibiting signs for about 20 years if I really look back at the first changes in her habits. She’s just moved into an Independent Living facility that also has AL and MC. She’s still drinking and getting really confused all the time. The other day she called me for help with the Roku. I asked her…
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Refusing to shower or change clothes?
My mother with dementia is in assisted living and since last weekend, she has refused to shower (the caregivers assist her) or change clothes. She hasn’t showered in a week and has been wearing and sleeping in the same clothes for 5 days. I’m mortified. They keep trying and I even tried to talk her into it on the phone…
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Dramatic rapid decline after illness
is it common for people with dementia to have a dramatic decline after an illness? My parent got a mild case of pneumonia (super bad for 1.5 days but recovered quickly) and is on antibiotics for this infection. She was already having an increase in symptoms prior to the illness which happened one week ago. But now her…
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Hallucinations
Hi everyone!! Hope you are all well, especially my fellow snowed-ins. My mama is most likely in stage 6 of her Alzheimer’s, and she just mentioned to me that she sees beetles in our window. I tried to have her point where she was seeing them and eventually realized that she was seeing them, but they are not there. I know…
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unsure of what and where to start for help with my dad
I'm caring for my father who has alz. I moved in about a year ago so he could stay home like my mom and dad had said they wanted to do . My mom passed 5 years ago. And my oldest sister passed away about 2 Yrs ago, so now I'm the one to care for my father with no help. But now he can't sleep and is getting mad because his…
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CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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I need some positive vibes and a positive outlook. Help.
I had a hard visit to memory care and feel so sad for a lot of reasons. My parent is midstage, I'm power of attorney and live out of state and visit every couple of months. any way usually I try to keep myself emotionally detached from her symptoms and make it my goal to just give her a pleasant fun enjoyable visit and…
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My mother hides her purse nightly
My mother hides her purse and wallet nightly in her room at her assisted living facility. For now, she has a private room that locks and is very secure. She swears that people come in nightly and steal her purse however after a diligent search of her room, the purse is always located. We have tried to be consistent with…
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Donezepil and diarrhea
Hello, My mom has moderate vascular dementia and is on Donezepil 10 mg. While eating she gets diarrhea, I can’t hardly take her out. I always have a change of clothes for her in my car and the doctor ordered anti diarrhea meds. Any other tips? Or does anyone know of a med for vascular dementia that does not cause diarrhea?…
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onset of possible panic attacks and fear of falling
My mom is 87, diagnosed with Alzheimer's, with very little short-term memory and not much long-term memory. On friday, Jan 9, 2026, over a 3 hour time period, she had a dramatic change in her condition. She started slurring and having uncontrollable shaking of her body (arms, legs, hands) - almost like a seizure (although…
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Laundry addiction
Quite unique and bothersome issue here. Dad;s currently in AL and I'[m looking for an open and reputable vetran friendly MC. He has been in MC for 18 months. He is addicted to doing the residents' laundry. He's claiming that he has been given this job by management/front office. He has gotten so bad that his private aides…
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Dad newly diagnosed, lives alone 3 hours away & I don't know where to start
My 75yo father has been experiencing memory issues for years. We just received the alz diagnosis with a blood test confirmation. Living alone, no family other than me, driving, medications, food, safety, poa - all of it is a lot, but we are navigating. My biggest question and concern is where and how to navigate his…
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Help me please
Hello, I'm caring for my mother that moved in with me a week and a half before christmas. And my brother filed for guardianship over her, and unfortunally he got it. Well here is the problem he is supposed to be getting this so called guardianship account set up. And I'm living off of a very limited income. We are slowing…
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…