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Phone calls
Probably an insane question, but is there a phone service available for my mom to call and talk to random people? I know this sounds silly but I would love for her to be able to speak to other people going through what she is going through. If not, we need to create one!
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Managing bowels
Hi. Any suggestions on how to help mom keep track of bowel movements? A chart or calendar in the bathroom? Thanks.
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Mom’s negative trigger
My mom has had vascular dementia since 2020. For many years I was my mom’s main caregiver until we moved her to AL. For the past year she still resides at the same facility but now with a live in aide. I live near my mom 6 months out of the year, and out of state the other 6. When I’m in the area I visit my mom 2 to 3 days…
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Paranoia/Delusions While On Donezepil and Now Memantine?
Hi, all, Long story short, my mom took Donezepil and Sertraline for about a month earlier this year. Her cognitive abilities improved, and we were psyched. And then…she started having paranoia and delusions, nightmares, and something like a psychotic break happened. Her doctors didn't think that Donezepil was the cause,…
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How do you deal with the guilt?
Hello everyone. I recently found this forum and have been reading a little here and there. My mother was diagnosed with Dementia back in 2018, or 2019. Type or cause is unknown, although there is evidence of a small stroke. I, their only child, was living far away and Dad took care of Mom. Then Dad went through a round of…
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Asst Living-VS-??
We recently placed my mother in an Assisted Living facility. She had a heart attack and the doctors said “she can’t live alone anymore, we don’t believe she is managing meds correctly among other things.” And honestly, they were right and we were already on this path, this just sped it up. Physically, she is fine. But we…
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Seeking Advice: Managing Toilets with Dementia Behaviors
My father has late-stage dementia and is exhibiting challenging behaviors that are making it difficult to maintain our home. He’s been pouring food down the toilets, which has caused clogs and damage. He also removed the bolts from one toilet, breaking the wax seal, and it’s now unusable. He’s fixated on guarding the…
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Idk what I’m looking for
This time last year my 72 year old mom moved into AL. 4 months later we moved her into MC in a closer facility. She was doing ‘ok’ overall. (Not sure stage but she is able to walk, can shower herself with encouragement but lots of resistance, remembers us but with confusion. wears pads). Diagnosed with Alzheimers. she’s…
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Care Home Referral/Search resources
New here, both to this discussion board and to the situation. My father has moderate and rapidly progressing dementia (Alzheimer’s). Previously he was very compliant, but this continuing decline has brought out a strong, stubborn streak in addition to everything else. My siblings and I think it is time for memory care. He…
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Mom Now Living With Us
Hello all. I am new here and wanted to give some background on our journey so far. I am looking for any guidance or anyone in a similar stage of life to talk to. I really am struggling mentally and emotionally. My mom is 81 with late moderate dementia (Vascular and Alzheimers, defined as stage 6f on the FAST scale.) I also…
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Navigating Alzheimer’s Risk While Caring for Both Kids & a Parent—How Are You Coping?
Hi everyone, I’m in my 40s, raising kids, and also caring for a parent with Alzheimer’s. My mom has APOE4 x2. Lately, I’ve been thinking a lot about what this means for my own future—both emotionally and proactively. I recently started looking into early detection tests, including: • APOE4 genetic testing • Blood biomarker…
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Phone Scams
My PWD is in early stages, but the sharpness is going. She was almost scammed out of eleven grand by somebody claiming to be an inspector general. He told her that her social security number had been compromised and she would be getting a new one. She needed to clear out her account so the new payments could be made. There…
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Mom incompetent
I have DPOA of mom. So far I'm doing everything for her and act on her behalf. However I'm scared that she might be angry towards me if I do something against her will. She might want to revoke the DPOA. The only was to secure the DPOA is to confirm Mom is incompetent and can't make rational decisions. I just had Mom visit…
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Advice please
My mu. Has just been moved to retiment living, as we thought it would be better for her having people around to sit with through the day. The problem we have she is awake most of the night and going out of her flat and knocking on everyone's doors until some one answers. She gets upset and feels lost. She is not using the…
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Personal Hygeine
My father & his wife are in assisted living & have recently resisted showering. I will be approaching the subject with them, but could use any advice you have on how best to approach. I do not live close enough to be onsite to assist on a regular basis.
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Legal Repercussions
Hello, I am new to this site. My mom was recently diagnosed with Alzheimer’s. She was previously diagnosed with Mild Cognitive Impairment. For 5 years I have been paying her bills for her because she asked for help and could no longer do it herself. She still has access to all of her funds and we have only had a couple…
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Elder law appointment
I finally have an appointment with elder law 5/20. The initial consultation is free for 1.5 hrs. I am taking my mom there and discuss her will, setting up a trust fund, Medicaid planning and estate planning. Mom is very concerned about the lawyer fees. I am afraid she will not proceed with the lawyer after the…
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Just need Support - My Dad fell and is in the hospital
Hi- I just need some support at this moment. My dad with dementia fell and smacked his head on the pavement. He now has a traumatic brain injury with bleeding occuring in his brain. I just spoke with him tonight and he sounded so slow when speaking to me that I am worried its now a permanent condition due to the TBI. Just…
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Meeting her in her reality doesn't always work.
Most of the time when my mother says things that aren't true, I can just go along with it and meet her where she is, but how do you handle it when she doesn't recognize my father, and wants to know who the man in her bed is? Or asks where her husband is when he's right there with her. Any advice would be appreciated!
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Diagnosis process
Hello all, I was able to get my mother to be seen by a neuropsychologist for testing recently, which required very careful persuasion and lying to get her there. They now want to make an appointment to go over the results with her. I am considering not doing this and having them just send me the report, if I can get it. My…
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Don’t know what to do
My mom is 87 and quite stubborn and very mean, uncooperative and vindictive. She has enjoy of her wits about her to know when she’s doing as well as saying things to irritate me. She can say some very mean and hurtful things. This has always been her way like u hit me I’m going to hit you as hard as I can. She has always…
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Dad needs care too, though.
Hey y'all! So my Dad is 82 and in relatively good health. My Mom is 80 and is in late state Alz. ( I think.) Her symptoms are a little different than some, in that she is unable to really hear…she can't see well…thank goodness, her attitude is usually upbeat and positive. However, she doesn't talk much now and when she…
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Impossible Mom
Hello. I've been dealing with my mom for a few years now and am becoming desensitized and hopeless. I'll try and stick to the main details otherwise this will be a book. Background on mom: she'll be 87 in August. She had Lupus for years in the 70s and 80s but went into remission somewhere around the end of the 80's. Back…
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Moving Advice
Hello, My mom was diagnosed with major neuro cognitive disorder in November. She has a follow up with a neurologist for further testing in August. She has no idea that there’s anything wrong with her which is making helping her just impossible for my sister and brother and myself. She is refusing to let one of us be at her…
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Dealing with possible anosognosia and FTD
We have been living with my MIL for about 6 months. She was diagnosed with FTD approximately 5 years ago. I could not say definitively what stage she is at as my SIL managed most of her care previously as she lived closest but was not able to move her into her home. The decision to have her move in with us was prompted by…
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Falling Risk
I am at a loss as to what to do with my father. He has early dementia and bad balance problems. He is now falling and hitting his head every couple of weeks. One time he broke 3 ribs and now he has bleeding in his brain from his most recent fall. I don't think he should go into a nursing home just for fall risk, right? You…
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Awareness and denial in those with A/D
My situation is that my mother-in-law has some level of dementia, whether it's early or later stage I have no idea. My wife and I live 3 hours away from my MIL and we visit regularly to try to help support her and the family members that live very nearby, and deal with her every day. Because we are so far away, we don't…
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Dad not adjusted to care home
My dad has vascular dementia, blood cancer and a head injury. He is wheelchair bound and earlier this year we had to put him into nursing care. Dad is verbally abusive to staff and keeps trying to get out of his chair and bed as he hates the nursing home.The family shares visits so we all get a break. We all feel upset and…
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New obsessive behavior
My 94 yr old mom with dementia has always enjoyed listening to music, especially the music of her youth. She sings along often, remembering the lyrics. I have searched for and found about 25 CDs of very old music that she enjoys. In the last couple of months, she has started clapping with the music instead of singing. It…
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I don’t know what I’m doing
Hello, I am 25 years old. My mom (58) was diagnosed with early onset alzheimer’s recently. She was originally diagnosed with FTD last year, but due to genetic testing that discovered she has 2 copies of the APOE4 gene, her neurologist changed her diagnosis to EOA. Both her parents passed in the last few years from…