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In between stages
Hi. I am new to this site. Actually I don’t know why I never joined despite my being aware of its existence. My father was diagnosed with Alzheimer’s and quickly progressed in his disease. He was then diagnosed with Parkinson’s a passed December 24, 2021. This all transpired in about 4 years. After he passed my brother and…
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To sell or not to sell…
We moved my mom out of her house and into AL near me back in April. She was not emotionally ready to let the house go, so we have not tried to sell it yet. She occasionally talks about moving back there someday, but of course that is never going to happen. However, I think it makes it easier to accept her current…
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Angry and argumentative vs quiet and accepting
I have often wondered why one person with dementia will become angry and argumentative while another seems to just seems a bit confused and tends to accept limitations without much concern. Do you think it could be related to their personality type before dementia? My mil always gave in to whatever my very strong willed…
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Dad gets aggressive
My dad has a bandage over his wound per his dr and wound clinic. It gets changed by the wound clinic as well as my sister and I every 3 days. The dr. Said it needs to stay on to help it heal. He forgets it needs to stay on and keeps trying to take it off; gets mad at us for not taking it off when he asks. He feels he…
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I hung up on mom today
I called mom to say hi and check in on her (she is in a nursing home). She started by telling me she has a list of things she wants from her house when I go there next. I let her rattle off the list of things she doesn’t need and made no comments about how ridiculous these items are. Thing’s quickly snowballed and she…
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My heart is broken
Here I am again unable to sleep because my mom has said I hate you, get out of here, you won’t give me my meds. I’ve devoted my life to her. Given up my own. It’s hard to wrap my head around this and I’m so burned out and depressed. I can’t find my footing or my hope. I really need someone to talk to who is going through…
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Would having a night caregiver help an Alzheimer's patient sleep more/better at night?
Would having a night caregiver help an Alzheimer's patient sleep more/better at night? My mother's circadian rhythm is completely messed up. What I want to accomplish is to get my mother onto a normal sleep schedule (say 11pm to 9 or 10am). My mother is up a lot of the night sitting on the side of the bed thinking about…
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Checking in…
It’s been a while since I’ve been on this site. I just wanted to check in and miss feeling connected here, so here’s an update. I guess the one constant of caregiving is we just can’t predict this journey. A year ago mom went on hospice after a horrible fall. MC made her get a 1:1 aid because she had so many issues. Now, a…
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Feels Like A Different Stage
Hi Everyone, When I found this group, I knew it would be supportive. Just reading all of your responses has given me a little peace of mind. My mom is 93 and two years ago was diagnosed with possible early dementia after leaving her home at 11PM and walking to the hairdresser's. Nothing like this has ever happened again,…
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I'm new to this, so I don't know what I don't know
Hi Everyone, My name is Elizabeth, and I'm new to this journey. My mom was diagnosed with early-stage dementia in May 2025, moved in with me and my family in August 2025, and her neurologist confirmed Alzheimer's in February 2026. She is still highly functional and stays active with Silver Sneakers (me joining the classes…
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Odd weekend/venting
This weekend was nuts in regards to caregiving for my FIL. We were late getting there Friday night due to an accident with one of my husbands employees, it took forever to get him settled down enough to go to sleep that night. I am wondering if this is the lull before the storm, even asked my SIL if she thought maybe he…
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Dad recently diagnosed
Hello all. I’m so grateful for these groups. I’m just beginning my Dads journey and I’m alone and need guidance please !!! I am a paramedic for 35 years and have a lot of medical experience but I have ZERO experience with this disease. From what I’m learning this disease follows no normal patterns. I feel like a rookie…
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Is There Anything Else I Can Be Setting Up?
Hi everyone! I hope you and all of our loved ones are doing well. I (27 F) am one of three care givers for my mama (62 F). I have just recently felt as if I have a handle on her Alzheimer's, but am wondering if I'm missing anything that I can set up for her/us to support us some more as she continues to progress. So far I…
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New Parents
My husband & I just "baby-proofed" our new house in anticipation of my 84 year old mom moving in. She has spiraled quickly over the past few months. She moved in today! The days leading up to today's move has been maddening. She did everything contrary to instructions given. Her meds are either not being taken, or worse,…
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My dad diagnosed with slight dementia
Hi everyone, happy there's a group for people like myself. First off my dad was rushed to the ER 2 years ago for DKS ( diabetic ketoacidosis) 1 week later after being discharged got a stroke and about 2 months later got prostate cancer. We then did a test that his neurologist sent him to complete about 1 year ago and they…
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Dads MRI is Wednesday
I want to tank everyone who was so kind to answer my desperate plea for help. I received soooooo much advice & guidance & I count myself so blessed to have found a direction to follow. Someone recommended to me to get the book “The CareGivers Script.” (20.00 on Amazon). IT IS PHENOMENAL . It is a literal prescription for a…
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How should I handle this?
Would like your thoughts. Mom lives alone, with some assistance, and has decided that I am trying to steal her money, dog, house, independence, etc…boy she has gotten herself worked up. Everyone she talks to hears about the atrocities I have committed, plus some. When I try to talk to her she is curt and snide. She seems…
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Just Put Mom in Memory Care Against Her Will
Hi, my brothers and I have medical and financial POA for my mother. She fell over a year ago and broke many bones and almost died. She's been in 24/7 skilled nursing for a year, and we just moved her to a lovely Assisted Living Memory Care facility on Tuesday. She is so angry at us kids and calls us names and ungrateful…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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New here and probably should have been here a while ago.
Mom started forgetting things and developing coping mechanisms 3 to 4 years ago. My sister, who is a doctor, and I tried to get her to go have a cognitive test and she refused. She still refuses. She has progressed from confabulating to perseverating and seems sometimes very agitated. I think she "gets up" for her annual…
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Childhood Resentments Bubbling Up Caring for Mom
Hey there, new caregiver for Mom who was diagnosed in February of 2026 and has been having issues starting 2020. I just moved across the country to be with her, and while she thinks that this is temporary while she has Lacanemab infusions I am realizing that this is going to be a long-term caregiving situation. I hope you…
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Balancing Independence and Safety
My mother was diagnosed with early-onset Alzheimer's last August at age 65 and is scheduled to begin Kisunla infusions in July. We are hopeful the treatment will help slow progression, but in the meantime we're struggling to balance her independence with her safety. For those who have been through this, how did you…
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Seperating married couple
I'm not sure if anyone has experience with this. My sister and I are my mothers DPOA and we have documentation from 2 physicians stating she is no longer competent to manage her affairs. Unfortunately, my stepfather and his son have done some very underhanded things ( family drama) to the point 3 attorneys we consulted…
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bank statements causing problems
My mom used to always take her bank statements and financial records and create this complicated spreadsheets. Once she moved into AL, I take care of all her finances, and I have been working hard to ensure her statements are not mailed to her— NOT because I don't want her to see her income and expenses, but because she…
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credit card
We are looking for ideas for a credit card for my dad. He needs a low limit. He has given his card number out to phone scams Currently we took his card away, but he needs something.
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In need of advice on having a certified caregiver come in
Hello all. It has been a minute since I have written here on the forum. I want to be more active here, but I am more so often on the Reddit forums. To preface, I am 21 years old and still living at home. Currently on Summer break and just got a new job that I am starting Monday. Mom has Alzheimers, dad and I are primary…
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Turning the corner
My last post, about mom's progression, was five days ago. Things have taken a huge downturn since then. She is eating nothing, sleeping 99% of the day, opens her eyes to my voice (sometimes) but no longer reacts with recognition. No speech or sound. MC staff got her to the table this morning but she just slumped sideways…
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Roommates kids bringing in stuff for mom
My mom is a hoarder! She lives in a nursing home with a roommate she really likes. It is almost impossible to get anything out of her room. My brother gave her popcorn in a tin for Christmas-she wants to keep the tin, she even saves empty single serve chip bags (no idea what that’s about), she saves all the cups they give…
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First Time I Couldn’t Wake Dad Up
My dad is in MC (stage 6, age 92) and has been sleeping more and more this whole year. He is almost always in bed asleep when I visit in the late afternoons. I am told he is often up for a few hours in the mornings. I work full time and cannot visit weekend mornings either. Usually he wakes up when I arrive, and I get him…
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…