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Other health issues
Hi there! How common is it for an Alzheimer’s patient to have other health issues arise from having alz. And the doctors answers seem to be Alzheimer’s is causing all the issues. Basically heart issues and blood pressure issues are all related to Alzheimer’s. Has anyone experienced this?
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Checking the weather repeatedly
Our father frequently turns on the Weather Channel throughout the day and night. He runs to the door, looks outside, and returns to his room to turn on YouTube and watch animal videos. Six/Seven times a day now. We imagine this is possibly to ensure the Weather Channel isn't lying to him. This cycle repeats several times a…
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Finding things to do
Hi! I am searching for things for my dad to be able to do to allow me to get my homework done! i am currently in a doctoral program and a primary caretaker for my dad. He goes with either a family member or our caregiver while i am at school but once i get home i put him infront of the TV and he just watches the same thing…
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Having a baby in six weeks, dad is declining
I moved my dad into memory care a little over a year ago. It was the hardest thing I’ve ever done but he adjusted amazingly well. I moved him a few states away to be near me and I see him a few times a week. The MC he is in is really nice, the staff are amazing and I feel really lucky. But I don’t have any other local…
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Calling to shut off utilities
Our father has developed a belief that the utility bills are "stealing" his money, leading him to make phone calls to PG&E and Earthlink, demanding his money and requesting them to close his accounts. Fortunately, we have successfully established contact with the companies to prevent any potential disruptions in service so…
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This is fine....
Whenever our fathers leaves the room for a bathroom visit or a walk we check his room and photo everything.
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Tipping staff
hey quick question - do you holiday tip staff at your AL/MC facility? If so, who (and how much it you’re comfortable sharing)…
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Holiday wishes and a little sad
Wishing everyone in this amazing group a calm holiday. Im glad to report mom continues to do well in her MC. She is calm, engaged, and has friends. Her mmse score (9) sucks, but she still seems to know a lot of things: she knows family, she knows she likes her new place way more than the last one, she knows I visit, she…
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Memory Care in New Jersey
Hi all, my uncle (who raised me and is practically my father) was recently diagnosed with dementia. I live in NYC and he lives in Virginia, I’m hoping to move him to a memory care facility in New Jersey in a few months. Are there any memory care facilities in NJ that people can recommend? Thanks so much!
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Update on my mom
Hi All, I found a home in Kissimmee Florida that we can buy. Multiple homes are affordable there. Much better than Miami Beach, in many ways, but most poignantly: more affordable. Right now, we live in neighboring apartments. It works well because she and I are very close, but we have our own spaces. Also, my apartment has…
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It's been years since I've gone anywhere.
I haven't left the property in four years. I work night shifts doing chores such as feeding the farm animals. Always waiting for the cover of darkness, and have avoided daytime interactions with everyone for two and a half years. These sacrifices are what we make for our ungrateful dementia family members we care for.
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Shared Roons
My preferred memory care only has shared rooms. This memory care chain says that this is intentional and that research indicates that roommates are good for the brain health of someone with dementia. They say they match people up in a thoughtful way. Does anyone have experience with shared rooms? Do roommates really help…
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Mom's ALZ has dropped a level
Hi All, Over the past few weeks we are seeing a drop in her abilities. Mom lives in Assisted Living which is great. We have watched her cognitive ability drop from time to time and most recently about a month ago she started having hallucinations (thinks she is being held somewhere then realizes she is in her bathroom).…
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Breaking Appliances
My father has developed a tendency to break appliances in our home, adding a new layer of complexity to our responsibilities. Over time, he has managed to break the washing machine, dryer, oven, and now the refrigerator, which is barely functioning due to the damage. We have been left to find alternative solutions for…
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Lack of Showering
Our father has been going for extended periods without showering or changing his clothes (40 days at a time), which has led to skin lesions. He has incontinence-related issues too. These challenges can be difficult to address, especially when faced with the limitations set by authorities who claim our father has…
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Vulgar language around kids
my mom (66 years young) is in the late stages. I have a 3 year old son who adores her but in the last few months she’s been very aggressive and mean. She’s begun to swear a lot, using really foul language, saying the worst things imaginable in front of my son. I don’t know what to do. He’s old enough to catch on, but too…
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Vermin Rat and Mouse Problem
About four years ago California's Governor Newsom banned rat and mouse poison replacing it with birth control in an effort to save the mountain lions and wildlife. Unfortunately this has created an increasing epidemic of vermin. The entire neighborhood as well as others I speak with locally are suffering. This is…
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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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Holes in the walls
Our father has been cutting out holes in the walls, creating a significant challenge for my sister and I. We have so many repairs to do after he dies. We have found that taking away tools does not deter him from causing damage, as he resorts to using alternative objects, such as metal rods or other items he can find in the…
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Our father used to kill animals, now he watches animal videos.
Our father has a violent aversion to animals and is aggressive towards them. He has a history of killing chickens, dogs, cats, and hates bird feeders. We've taken steps to try and distance him from wildlife and pets. We were able to rehome some of them, but after losing lives. Initially, he was secretive about his actions,…
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Leqembi?
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.
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Untreated Nurosyphilis Dementia
We've quickly realized the importance of connecting with others who understand what we're going through. We're currently caring for our father, who has been suffering from untreated Neurosyphilis, GPI, Tabes Dorsalis, and dementia for several years now. Despite our best efforts to convince him to seek treatment, he has…
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Memory Care and/or Assisted Living facilities in Seattle?
Hi, I am currently in the weeds of looking at memory care facilities in the Seattle area for my father (has had Alzheimers for approx 10 years, mid stage, but moving more towards later stage). Additionally his wife (current caregiver) was also recently diagnosed with early dementia. Ideally I would love to find a place for…
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When to seek hospice assessment?
Hi, My mother is my father main caregiver but I see her increasingly doing more than her body can handle. She is not getting enough sleep because he keeps her up at night. She has to hold him up, and now she's starting to feed him. My father is a different person he was in the Spring. Now he sleeps constantly and barely…
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Our Father is Obsessed with Turning Off the Utilities
One of the most challenging aspects of caregiving for a loved one with late-stage untreated Neurosyphilis dementia, GPI, and tabes dorsalis is managing their behavior and preventing them from causing harm to themselves or others. Recently, my father has developed a concerning preoccupation with utility services, such as…
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Pooping in the Shower
Recently, we've observed a concerning shift in my father's behavior, which has added a new layer of complexity to our caregiving responsibilities. While my father's actions may seem intentional and without shame, it's essential to understand that this behavior is likely a result of his cognitive impairments and the…
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How to support emotionally who got diagnosed?
My parent got diagnosed with Alzheimer's. She understood the diagnosis because the dr said that the MRI definitively showed it. My parent accepted this as the truth. For her the diagnosis came out of nowhere as she is unaware of her symptoms of cognitive decline. She was sad and expressed not wanting to be a burden to…
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Mom with dementia moved to AL and misses her house. Can she go back and say bye to it?
Hello All. I recently had to put my mother into AL due to her dementia and she never had a chance to day goodbye to her house. We sold the house and I am wondering if I could take her back to it to say "goodbye?" Since she left she was crying daily about missing it and I am scared if I take her back, she will relapse into…
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Death of a parent with Alzheimer's
Hello I'm Matt me and my mom was caregivers to my dad who had the Alzheimer's we kept him home me and her faught along side him and his doctors he was 51 when he was diagnosed with dementia and he mad it to see his 71st birthday in September sadly he lost his battle on November the 14th at 2:00am it's still so hard to…
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New Here - 33 looking for support for mother diagnosed with AD
I am not normally one to reach out for support in this format but I feel very isolated in my mother’s recent Alzheimer’s diagnosis. We have seen her condition worsen over the last few years and last year there was a huge red flag for us when she couldn’t remember opening gifts at Christmas. I was 2 weeks postpartum and…