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New here, need some advice please
Hi all. So glad I found this site with so many people in the same situation. Sorry for the Long Post. My dear mother has been diagnosed with Alzheimer's and Vascular Dementia. She lives in the UK and I live in the US with my husband and furry friends, emigrated here 25 years ago. My mother lives alone, I have a sister who…
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Stages of Alzheimer's(1)
I often see people on here using numbers to refer to the stage of Alz for their LO (e.g., "my dad is in stage 5"). Can anyone provide a link or the list of stages that you're using for this description?
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Mom personal care: Assisted Living vs. Memory Care
We are at a point that changes are needed to support Mom's personal care. Over the last 3+ years we have been trying to get her to let me and/the Assisted Living care staff help her with this but have been unsuccessful. Her bouts of UTIs, Candida and general rashes "down there" are increasing due to her inability to clean…
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Help...Are we really only left with seeking Legal Guardianship?
2 yrs ago mom was diagnosed with EO Dementia, lives alone and my brother and I live 20 minutes away. Covid and isolation has really sped up the memory loss. We managed to get a POA for her finances and she did sign a medical directive but we do not have a signed POA over her. We had an incident this week (she fell at home)…
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Dr. put in for hospice for hubby but hospice came and said he does not
qualify, that he is still walking (with a walker) and eating. That his Alz. would have to have him bedridden etc. They are not taking into account his COPD, Chronic Heart failure, frequent falling, 6 hospitizations in 7 months with septic shock, emergency pacemaker put in, COVID , blood in urine (dr is thinking bladder…
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In home care(7)
Hi, I am brand new to all of this. My mother was diagnosed three months ago. We moved her and her sister across the country to be close so we could help. My mother is probably stage five Alzheimer’s. She and her sister live together. They are very opposite as far as personalities. My aunt is content to stay home and my mom…
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What to ask when looking for Hospice
Hello friends, my mother has declined in the last few months and her doctor is recommending hospice. I have heard here over the years to shop around for hospice as they are not all equal in services or quality but I am realizing I'm not sure what to ask when vetting them. What do you look for in a hospice agency? We have…
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Taking apart tech in care facility
My mother moved into a care facility mid September of this year and the transition continues to be extremely challenging. Some days are better than others. There will be times that she seems to be settling without knowing that she is in a facility. She will eat and not be agitated. The day night reversal has not resolved.…
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Shouting, Screaming,Yelling In Dementia Patients
Another Member had Posted the following some time ago. Excellent articles by psychiatrist: Does NOT happen with all person with dementia, but for those with such a problem issue this can be helpful: Screaming and Wailing in Dementia Patients…
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Paging Birdie...Please Update Us
I was saddened to read your now dated post. Hoping you will advise us on your current situation. You didn't explain why mom is not allowing Hospice. Is she refusing to even talk with them? Their nurse and/or social worker might just be able to explain to her what is in store for you as a family, and how they can help (not…
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New to Forum, New to All This
Hi there, I just joined this forum so saying Hello. This morning, my mom had an appointment with her primary care doc. She put me on speaker phone (I live in CA; mom is in OH) and, long story short, doc suggested I start planning; as in, looking at assisted living facilities in my mom's area. She has a neurologist…
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Double Whammy!
Hello all, this site has been a lifesaver for me! In August I had to have my Mom Mental hygiene arrested (ordered by her PCP) to get her to the hospital after she refused to go on her own. She was extremely lethargic, dehydrated, and septic. Turns out she was diagnosed with pneumonia and then dementia. She was not allowed…
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Craving sugar
My aunt has Alzheimer and I can't get her to eat consistently She was always a particular eater, but at least ate healthy food. These days are quite different - all she seems to want is sugar. She puts sugar on everything. And I mean everything! She puts sugar on rice, and grain salads, and cottage cheese. She even eats…
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Is there any Ayurvedic or any Natural remedies for Alzeimer's disease?
There has been a buzz about all-natural remedies and Ayurveda these days. When I was researching about it, I could find a lot of therapies for various diseases. I followed the site iahas.com where they talked about Ayurvedic remedies for almost all chronic conditions. I also looked into their all-natural recipes. However,…
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Eating, showering, and in home care
Good evening, My mother snack’s endlessly but has recently stopped eating full meals regularly. She has also stopped changing clothes and showering lately. I know these things are common, but if anyone has tips or suggestions they can share to help with these things it would be greatly appreciated. Also, we are looking in…
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Decline from move..... when?
About 10 weeks ago I moved my DH and myself to another town to be closer to getting help when I need it. We had lived all our married life in our former house -- over 50 years. He is into stage 6. He would never have wanted to move but I told him it was temporary. He seemed to settle in until about 2 weeks ago. I assumed…
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FYI(11)
https://www.caregiving.org/wp-content/uploads/2021/11/NAC_CaringForCaregiver_Paper_v2highres.pdf
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Just found out my father’s diagnosis
Hey …. My father has been having some cognitive issues for a few years now, but tonight he told me he has been diagnosed with Alz. He didn’t give me much information because I don’t think he wanted to tell me at Thanksgiving dinner so I don’t know much right now. I currently live across the country because my husband is…
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Reasons for placing Mom
Okay, I know I have posted so much lately! This just seems like so much! This morning the business agent from the rehab facility that my sister is at called (sis is getting rehab for a broken hip). She wanted to know what the game plan was for my sister's care!!! Why is she asking me??? I told her that I do not have a POA…
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Article on Caregiving, Links to Books
Here's an article on the large burdens of caregiving. It has links to three books, which I'm starting to read. When I finish reading them I'll discuss them here. https://www.vox.com/the-goods/22639674/elder-care-family-costs-nursing-home-health-care
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Great American Senior Show
A few months ago I was at a local Caregivers Cafe and met Sam Yates, the host of a very helpful podcast about caring for elderly relatives called the Great American Senior Show. I'm starting to read a book that the show recommended, which I'll post a review of here after I've read it. web site:…
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He's Gone
My dear husband's journey ended Sunday night. I feel empty and sick. I miss him so much. Don't know what else to say except thank you to everyone on this forum. God bless you all.
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Any advice on mom's grandchildren visiting?
My mom's latest change is that she went from repetitively asking questions about her life and family members to no conversations at all. She couldn't remember that the love of her life, her husband, died 15 years ago, so I had been telling her he was on a trip and would return shortly. Now, she reads while we sit together,…
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FYI(10)
https://www.statnews.com/2021/11/29/resident-to-resident-incidents-hidden-source-nursing-home-harm/
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Another wacky day- food games
DH has been sort of playing with his food lately. Picking at it a lot. I’m lucky that his appetite is still good, but he’s having weird ideas about textures and appearance I guess. Here’s some of what’s going on: * He just sprinkled raisins on his scrambled eggs * trying to peel the sausage b4 eating it right now. It’s not…
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End of life....how do you know??
Hello all, My dad is end stage alzheimers. At this point he is sleeping a good 22 1/2 hours per day at least. Sometimes its very difficult to rouse him to eat and his eyes always seemed rolled back. He eats sometimes and drinks. Sometimes it might be nothing more than a teaspoon, but sometimes more. He is non verbal, bed…
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A stage 7 surprise/shock
Background info~ my parents live out of state, mom has Alz. She is stage 7 according to hospice. Dad is 85 and fulltime caregiver. My sister, her husband and I went for Thanksgiving week. We all hoped that mom would be able to join us at the table. I picked out a soft, comfortable outfit. Kind of like a sweat suit, Elastic…
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Father won't eat
My dad has had problems with eating food. I first noticed in August that he wasn't eating very well. He would say everything tastes terrible. Even the foods he was used to eating and liked. He would still eat the snacks he liked so I wasn't too terribly concerned. Since I do his grocery shopping I did notice he was not…
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Better to place sooner or later
Hi. First time poster here. I'm taking care of my 68 year old mother who has Alzheimers. She has lived with us for four years and has had a bad year. Based on the levels I read about, this year she's progressed to somewhere between Level 5-6. She is needing more and more attention and assistance throughout the day and…
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MC or SNF
I’m faced with moving a LO from AS to either MC or SNF. I can’t seem to find anyone to help determine which would be best. Mom is in late stage 5 and personality has changed greatly from the recent move to AS. I’m 225 miles away and need her to be in my city so I can provide day to day care if needed. Thoughts