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Vascular Dementia after stroke
Anyone with experience or timeline of lifespan. Had stroke 2009 at age 55. Now 12 years later has vascular dementia. More frequent falls, no interests watches TV all day. Problems with swallowing, picking at himself etc. Short term memory getting worse. Not sure how to cope, was diagnosed with VD in 2018
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Hosspice?
Hi All, here's hoping for a better 2022! I just read somewhere that Hospice can help me with resources, etc. even though Mom is not diagnosed as terminally ill. I am going to contact our local office tomorrow but I'm just wondering what someone elses experience might be.
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Early Onset diagnosis for mother / feeling overwhelmed
Hello, I'm new here, although I've attended a few support group meetings through the Alz Association these past few months. After almost two years of arguing with my mother to get assessed, she's just been finally diagnosed with dementia, and it's progressing rapidly. She can barely speak and she's eating very very little.…
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Seeking end-of-life advice
This is my first post, but I want to first off thank everyone from the bottom of my heart for the advice and comfort I've found here by reading your posts, usually when I can't sleep at night and am feeling overwhelmed. I'm writing now because I'm so anxious about my 77-year-old mom's imminent passing at home from dementia…
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affordable quality care or our loved one
Hi everyone, I've been reading some of the posts on people not able to afford assisted living facilities for example without leaving themselves indigent and not being able to keep their home. Not only that, it's expensive to live today, period. There needs to be MAJOR and I do mean MAJOR changes in the health care system…
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Hard way to end the year
My sister moved to memory care yesterday. We almost had to delay because we had covid scare. Luckily, we got our results quicker than they predicted and were negative. 2 friends had helped me move some stuff to her "apartment" earlier in the week. On the spur of the moment, I asked one of them if she'd be able to come with…
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This is from my teaching to the African Continent. Not sure if its helpful here.
https://player.vimeo.com/video/658407056
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Hallucinations and wanting to go home
I thought wanting to go home every night was difficult to deal with, but the last few nights mom is seeing babies all over the house and they mostly are not sweet little babies they are crying and fighting and somebody needs to take her or them home. This went on for 2 nights and days then she slept for a day and a halve.…
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2022
I just wanted to wish you all a Happy New Year. I am thankful for everyone here.
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Losing my mind(1)
I posted early December that my dear husband had passed. I have cried just about everyday since. Christmas was not as bad as I expected, mainly because my son came down with Covid and we were all preoccupied with that. Talk about a weird blessing in disguise!! Because of this and the outbreak of Covid everywhere we had to…
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What will normal life feel like? Also, a Christmas surprise!
I’m starting my day wondering what it will feel like to not spend my days worried about the next fall or my LO waking up dead. This has consumed our thoughts and actions for so many years and changed our lives so much. Someday we will go to basketball games at the school. Eat dinner out. Work on the ranch until we are done…
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Caregiver Lamentation
Holiday blues and caregiver burnout are causing me to lament over my situation when faith, grace, and patience seem distance. Since this is a full-time job without pay, I've been fighting for equal pay, breaks (i.e. vacation, days off) as one expects from any job. Although there are "things in the works" (i.e. paid family…
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HCBS Waivers - Medicaid Paid Respite
In another post I described the trials of seeking caregiver respite. I was notified today that 7-day respite is approved (Paid by Medicaid). I'm passing on what I learned/know...hopefully someone else may benefit. The short version: *Many states have Home & Community Based Services Waivers 1915c. These waivers differ by…
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Bad Dream
It is hard to imagine but we have progressed to the final stage. My strong stubborn mom has been bedridden since Christmas Day without eating or drinking. She has been on hospice for quite some time and is end stage frontal temporal dementia so the past 6 years have been very eventful. I have read post after post trying to…
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after the trust is done
So we have a "settlement" in place that was read into the court record and agreed upon by all parties. My attorney has been putting together trust and will documents as agreed. In the meantime, I was told to provide any of my father's bills that I had been paying to my attorney who in turn gave them to the court appointed…
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Mom hating me and Nursing Home
My mom is 62, was diagnosed with Alzheimer recently, and I've been struggling dealing with her for the last 2 years. I never thought that her problems was from alzheimer because of her early age, but the moment she just couldn't turn on the TV or go to the bathroom properly I had a doctor see her, and than was the time the…
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POA: Question about the document
Hello. I have POA for my Mom who has dementia. I am now pursuing POA for my brother who has early onset Alz. My other brother and I are a team for their care but I have POA as being an "administrator" is a strength of mine. On the Durable POA form there is a place after the list of powers being assigned that says " ON THE…
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Am I making things worse?
Hi all. I am an overachiever by nature and I know that about myself. I took my mom to a neurologist today. It was recommended that she get exercise and do mental type activities. While we were out my mom also mentioned wanting to get a clock she could see to help her know the day, time etc. My mom and aunt live together…
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Helping my mom cope with being a Dementia Caregiver.
I am hoping this place will bring in some great advice from people who have experience or to at least make me feel more at ease with the entire situation… My grandmother has early stage Alzheimers and my mother is her only child and therefore her sole caretaker. I live in Minnesota and they both live in Florida. Right…
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POA with multiple designees
If there are three designees for medical and financial POA should we discuss decisions in advance? What scenarios should we plan for?
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Naps and Confusion when waking
My 86 yr old father is in the middle stages of Alzheimers and had a brain bleed several weeks ago. We have noticed this week that when he wakes up from his nap (usually from noon to 1 pm) that he is confused and hallucinating (maybe from a dream he had)? Should we stop the naps? He sleeps very well at night for 10 hours.…
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You may find this interesting
22 Clues™ to the Dementias https://www.dementiasociety.org/post/22-clues-to-the-dementias The Big Umbrella https://www.paperturn-view.com/?pid=MjA201566
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Security cameras(1)
I’d like a security system / camera to check on DH if I am in another part of the house, if I am outside doing yard work, or when I’m away from home and have a caregiver with DH. The system would have to be WI-FI capable, and optimally would allow easy two-way communication. Has anyone used Ring or Nest cameras for this…
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PWD and Insulin Pump for Type I Diabetes
Hi everyone, Very concerned about my mom with dementia and Alzheimer's. She has Type 1 Diabetes and is on an insulin pump. She's got a Dex Com 6 sensor with it (a gadget that sets off an alarm if her blood sugar goes high or low). She's been uncontrollable with her eating lately and her blood sugar has been all over the…
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Medical appointments
Hello! My mom has pretty advanced Alzheimer’s with behavioral disturbances. She is aggressive, combative, and wanders. We have been working for the past 3 months to find some type of medication combination to help make her more manageable. She lives with me and other family including my dad. At home, we do our best to…
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Doing Better But Need Plan B
I took the natural holistic approach with my 87 year old mother who has vascular dementia. Some of you might know my story but I'll summarize because today is the 1 year anniversary since my mother has been living with me on my rural permaculture farm in Panama. Last year she was confined in an assisted living facility in…
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Care provider payment
I have been working on finding a caregiver for my DH. Many of the agencies wanted a commitment of a certain number of hours per week (12 to 20), which was more than what we needed. At this point I am looking at Care.com, since their caregivers offer more flexibility on scheduling and many are OK with accepting one-time /…
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Early on-set My sister age 62 just diagnosed
Can someone with Alzheimer's be shown the paperwork and convinced that they have it. So they will listen to the new instructions given to them by the doctor? My sister is very high functioning and could live with her kids if she would let them help her. We are just entering this journey and don't have anyplace suitable for…
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Overwhelmed where do I start.
I live with my mom and is in early Alzheimer’s or dementia. Reading everything I can find to understand. My mom had fallen numerous times an last fall she fractured two ribs which led to pneumonia and delirium something that was so hard and horrible to watch. She is now in rehab and suffering from a lot of what they call…
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Mom obsessed with true crime shows
My 80 year old mom, who is losing her memory and has moderate cognitive decline, moved in with my husband and I a few months ago bc she can't live alone anymore. There are many challenges as you all know but this post is about one in particular. I've searched the message boards a bit but couldn't find anything regarding…