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Advice for getting started
My MIL is starting to get worse. Not diagnosed yet but anyone who spends more than 20 minutes around her is seriously alarmed. We live in the same building & my husband has been handling her care so far but I need to step in and help him soon so he doesn't go crazy. He is already fielding a lot of verbal abuse from her in…
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Bible Verse to Lift You Up 1/6/22
THANK YOU EVERYONE! Read your messages. I appreciate them. * HOLY SPIRIT IN US=GOD'S POWER, WISDOM AND STRENGTH 2Cor 2:9 NIV "My grace is sufficient for you, for my power is made perfect in weakness." God's help and power shows much more clearly when He works through us even when we feel inadequate and weak. FAITH IN THE…
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Sleeps 24/7, still eats well, no cognitive decline
Hi everyone. Happy New Year. For the past 2 weeks my mom has been sleeping all day and all night. She is only awake to eat and get up to go to the bathroom. I have spoken to both her general doctor and her neurologist and neither seem to have answers as to why she is sleeping so much. She had all kinds of bloodwork and…
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Psych is requesting I take my mother home.
Hi, So currently my mother is in a geriatric psych facility much to my dismay, nevertheless my hand was forced since her current care team refuses to work with me again finding a medication and dosage that is safe and effective. Her current care team felt she was not at the stage where higher dosages were warranted for…
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New here, just need some support
Hi, my mother is 95 and has progressed in probably the past year from being an active, alert, assertive and verbal person to where she now sleeps sitting on her sofa or a chair almost all day along except for meals. She is minimally interactive. No hallucinations, no wandering (she is minimally mobile with a walker). A…
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Bible Verse to Lift You Up 12/24/21
NO FEAR! Joshua 1:9 ERV "Remember, I commanded you to be strong and brave. Don’t be afraid, because the Lord your God will be with you wherever you go.” Peace comes when we give our scary & sad thoughts to God, and do not take them back. When we can't do a thing for ourselves call "Help Jesus!" He gives us perfect answers.…
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Gma; early onset & 2 babies care for HELP!!!!
Currently I have no job and no income. I take care of all of all driving; managing her money; reminding to eat and take pills and more. All while I take care of my 3 and 4 year old babies. Has anyone who has a family member they live with who is in a later stage of Alzheimer's and takes care of their kids as well, can give…
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Caregiver- Take care of YOU, first!
That subject line may sound selfish, but no longer for me. It is now 2022. I am the caregiver of a now 93 year old, my mother, whom I was never close to. I am the oldest of her two kids. She has had early onset probably since her 40's, but there was no diagnosis then. Now have a diagnosis and it took a couple of years but…
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Year 2021. You tell me where I messed up.
That is the point.
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Navigating unchartered territory with dementia Mom
I am the youngest in my family, also unmarried, and in a job (self-employed) that could be done anywhere. So when my parents got older, my dad and I talked, and I moved back to their community. COVID-19 hit and my work from home job seemed perfect. We love our lives, and live simply and basically, though we have other…
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Vascular Dementia after stroke
Anyone with experience or timeline of lifespan. Had stroke 2009 at age 55. Now 12 years later has vascular dementia. More frequent falls, no interests watches TV all day. Problems with swallowing, picking at himself etc. Short term memory getting worse. Not sure how to cope, was diagnosed with VD in 2018
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Hosspice?
Hi All, here's hoping for a better 2022! I just read somewhere that Hospice can help me with resources, etc. even though Mom is not diagnosed as terminally ill. I am going to contact our local office tomorrow but I'm just wondering what someone elses experience might be.
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Early Onset diagnosis for mother / feeling overwhelmed
Hello, I'm new here, although I've attended a few support group meetings through the Alz Association these past few months. After almost two years of arguing with my mother to get assessed, she's just been finally diagnosed with dementia, and it's progressing rapidly. She can barely speak and she's eating very very little.…
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Seeking end-of-life advice
This is my first post, but I want to first off thank everyone from the bottom of my heart for the advice and comfort I've found here by reading your posts, usually when I can't sleep at night and am feeling overwhelmed. I'm writing now because I'm so anxious about my 77-year-old mom's imminent passing at home from dementia…
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affordable quality care or our loved one
Hi everyone, I've been reading some of the posts on people not able to afford assisted living facilities for example without leaving themselves indigent and not being able to keep their home. Not only that, it's expensive to live today, period. There needs to be MAJOR and I do mean MAJOR changes in the health care system…
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Hard way to end the year
My sister moved to memory care yesterday. We almost had to delay because we had covid scare. Luckily, we got our results quicker than they predicted and were negative. 2 friends had helped me move some stuff to her "apartment" earlier in the week. On the spur of the moment, I asked one of them if she'd be able to come with…
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This is from my teaching to the African Continent. Not sure if its helpful here.
https://player.vimeo.com/video/658407056
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Hallucinations and wanting to go home
I thought wanting to go home every night was difficult to deal with, but the last few nights mom is seeing babies all over the house and they mostly are not sweet little babies they are crying and fighting and somebody needs to take her or them home. This went on for 2 nights and days then she slept for a day and a halve.…
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2022
I just wanted to wish you all a Happy New Year. I am thankful for everyone here.
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Losing my mind(1)
I posted early December that my dear husband had passed. I have cried just about everyday since. Christmas was not as bad as I expected, mainly because my son came down with Covid and we were all preoccupied with that. Talk about a weird blessing in disguise!! Because of this and the outbreak of Covid everywhere we had to…
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What will normal life feel like? Also, a Christmas surprise!
I’m starting my day wondering what it will feel like to not spend my days worried about the next fall or my LO waking up dead. This has consumed our thoughts and actions for so many years and changed our lives so much. Someday we will go to basketball games at the school. Eat dinner out. Work on the ranch until we are done…
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Caregiver Lamentation
Holiday blues and caregiver burnout are causing me to lament over my situation when faith, grace, and patience seem distance. Since this is a full-time job without pay, I've been fighting for equal pay, breaks (i.e. vacation, days off) as one expects from any job. Although there are "things in the works" (i.e. paid family…
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HCBS Waivers - Medicaid Paid Respite
In another post I described the trials of seeking caregiver respite. I was notified today that 7-day respite is approved (Paid by Medicaid). I'm passing on what I learned/know...hopefully someone else may benefit. The short version: *Many states have Home & Community Based Services Waivers 1915c. These waivers differ by…
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Bad Dream
It is hard to imagine but we have progressed to the final stage. My strong stubborn mom has been bedridden since Christmas Day without eating or drinking. She has been on hospice for quite some time and is end stage frontal temporal dementia so the past 6 years have been very eventful. I have read post after post trying to…
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after the trust is done
So we have a "settlement" in place that was read into the court record and agreed upon by all parties. My attorney has been putting together trust and will documents as agreed. In the meantime, I was told to provide any of my father's bills that I had been paying to my attorney who in turn gave them to the court appointed…
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Mom hating me and Nursing Home
My mom is 62, was diagnosed with Alzheimer recently, and I've been struggling dealing with her for the last 2 years. I never thought that her problems was from alzheimer because of her early age, but the moment she just couldn't turn on the TV or go to the bathroom properly I had a doctor see her, and than was the time the…
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POA: Question about the document
Hello. I have POA for my Mom who has dementia. I am now pursuing POA for my brother who has early onset Alz. My other brother and I are a team for their care but I have POA as being an "administrator" is a strength of mine. On the Durable POA form there is a place after the list of powers being assigned that says " ON THE…
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Am I making things worse?
Hi all. I am an overachiever by nature and I know that about myself. I took my mom to a neurologist today. It was recommended that she get exercise and do mental type activities. While we were out my mom also mentioned wanting to get a clock she could see to help her know the day, time etc. My mom and aunt live together…
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Helping my mom cope with being a Dementia Caregiver.
I am hoping this place will bring in some great advice from people who have experience or to at least make me feel more at ease with the entire situation… My grandmother has early stage Alzheimers and my mother is her only child and therefore her sole caretaker. I live in Minnesota and they both live in Florida. Right…
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POA with multiple designees
If there are three designees for medical and financial POA should we discuss decisions in advance? What scenarios should we plan for?