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Calls from LO in MC
New here and mom has only been in MC for 3 weeks so still trying to figure out "normal" routines for having a LO in MC. I am listed as the main contact (dad doesn't want to be involved, sister MIA). 1-2 times a week I get a call from mom or a staff member with her saying she is upset that some person from her memory isn't…
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My Dad is Gone(2)
My dear, sweet, wonderful Dad has passed on from this life. I am sad, but also thankful for the time I had with him. Even some of these last few years, believe it or not. I have posted on here a few times. At first, I was looking for help, any kind of help that would lead me down the path we are all on. Later, I responded…
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problems with social worker/Adult Protective sx
Help! I'm a 'newbie' with ALL this including possible diagnosis of early dementia--feel like my whole world is falling apart--merry(not today)
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to tell or not
Hello, My 80 year old mom (dementia) tested positive for Covid on Wednesday. Her symptoms were very mild but we still decided to test. The exposure came from a potential caregiver . She lives with us and my husband and I tested negative. We've been keeping an eye on her, monitoring her symptoms and she's doing ok. No…
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In crisis mode with Mom; nothing has been done; how to make the necessary happen?
I posted a couple times prior: "Mom likely has dementia but in denial; Dad paralyzed into inaction" on Jan 27, 2021; and "Suspected demensia in Mom, but gets mean/angry if discussed; Lyme disease connection?" on Dec 4, 2019. To try and keep this terse: for at least five years, my 67-year old Mom has been showing signs of…
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Do we need to tell my mom her diagnosis?
Hi there I am new to this forum and am so very glad to have found this site. My mom has recently been diagnosed with dementia (Oct ‘21). The neurologist thinks it’s Lewy Body Dementia but that is only by ruling out other types. My mom was living alone and seemed to be ok until a fall in October, and since then she has had…
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Update to guardianship etc.
We had the emergency court hearing. All came to an agreement about LO's will, irrevocable trust, and medical care which was read into the court record. Our CELA attorney created the documents as agreed and is now trying to get them signed. The ad litem assigned by the court was "fired" by my Dad who doesn't remember the…
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Confusion re: time of day
My MIL is frequently confused about whether it is morning or night. She comes out of her bedroom dressed and ready for the day around noon, and goes to bed around 8pm. Right now it is dark around 5:30pm. I have a great clock in the kitchen with BIG numbers and lettering that shows the day of the week, whether it is…
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Crisis management: Emergency Response Services, Emergency Rooms, Respite Care
The full background of our situation is in the recent thread "In crisis mode with Mom; nothing has been done; how to make the necessary happen?" (https://www.alzconnected.org/discussion.aspx?tid=2147559405&g=posts&t=2147559405). The quick summary is this: my mom has shown worsening signs of dementia for at least five…
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Now can I adjust to not reaSoning?
I am beginning to understand that it will do me know good to try to talk some sense into my dad, because he has lost his ability to use common sense and has no reasoning skills. How can I remind myself of this fact? When I, being faced with such a situation, how can I keep myself from reasoning and find a way to reassure…
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Challenges ways to deal with unwilling placement of LO.
I did briefly mention in another thread that my mother will be placed soon. Though given the nature of her behaviors my options were extremely limited, due to that. That one place that accepted my mother is dirty, unkempt, does not have a welcoming vibe, staff seems mesisreable overworked and they also appear understaffed.…
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I am a unpaid caregiver
Hello, since my mom has Alzheimer's and is in a NH. I have become my Dad's caregiver, it happened during the Pandemic. I have been told I cannot get paid to take care of my Dad who is 81 and with Glucoma because my mother is in the nursing home. Has anyone had this experience and if so, can you please explain to me if this…
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Sister’s Psychiatrist Encouraging her to move in with boyfriend 3 hrs away.
My sister, who has ALZ, lives with me and I am her primary caregiver. We recently had an appointment with her psychiatrist at the VA in which the topic of my sister moving in with her boyfriend came up. My concerns with her moving in with him include that he is 3 hours away from any of our family and he works second shift…
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How do you stay calm
looking for ideas / tricks / tips / when your LO asks the same question a thousand times in a matter of 20 mins. How do you not look your cool and stay calm?
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Gamma 40Hz light treatment
Has anyone tried this treatment? A friend of ours whose father is 92 and has dementia has seen a "dramatic" improvement in mood. So - we ordered a lamp for my father on Amazon (arrives tomorrow). I've read articles that state this 'light therapy' helps those with dementia (calms aggression, improves mood, etc). The reviews…
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OT re: Betty White
Betty White supported the Los Angeles Zoo. The zoo has created a self-guided Betty's L.A. Zoo Tour, honoring her contributions to the facility. The tour includes signs at 16 stops where guests can learn about her connection to a particular animal or location. The walking tour will be up through January 31st. The tour can…
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Anyone have their mom/dad say things that aren't there?
*My mom hasn't been diagnosed with dementia/alzheimers.* I have my mom telling me since 2020, that people were talking to her from tv. Anything on tv. And that one of the news reporter was her daughter (my supposed twin...but the woman is 10 years older than me). Everyday is the same thing. I tried telling her in the…
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Any experience around “why are you here?”
I have a Mom who I am full-time caregiver for over the last six years or so. She is now 66 and I am 38. Her condition has advanced and while I do maintain control of the situation most of the time, there are a couple situations I run into that just stump me. To be brief, months ago she believed I was an intruder living in…
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I cry and laugh
One minute Mom calls me a son of a bitch (I am her daughter btw) when I am trying to get her to do the things she may not want to. A few minutes later she will say "Thank you my sweet darling". I have to laugh sometimes. Or cry. Depends on the day.
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Bible Verse to Lift You Up 1/12/22
GOD'S FAITHFULNESS * Psalm 13:5 Amplified Bible “But I have trusted and relied on and been confident in Your lovingkindness and faithfulness; My heart shall rejoice and delight in Your salvation.” 1 Corinthians 13:4 AMP “Love endures with patience and serenity, love is kind and thoughtful…” John 13:34-35 AMP “I am giving…
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spouse very condesending
my spouse is super smart, but does not have one ounce of compassion toward my situation with ALZ . . she gets frustrated that I need to have time to focus on my conversations with out people - she even gets aggravated that I sometimes get confused, she wants immediate action on everything when she wants it - meantime for…
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Phone(3)
My MIL is still living at home (alone ). She has 2 phones, a landline and a cell. Her children usually call her on her cell, but mil often misplaces it, so they'll call the landline. She has caller id and has been good about not answering unknown calls. Recently she has started answering the landline and twice has given…
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No Unrealistic expectations but hard not to hope
Hi all My mom had a rough time through the holidays and her behaviors changed. She thought my dad ( who died 39 years ago) was not calling her and cheating on her. She was very angry and difficult to pivot She wasn’t sleeping which exacerbated things. Neuro put her on trazadone and a week later upped the duloxetine ( she…
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VA caregiver funding
NPR was talking today about a new VA program(or a change in policy) that will pay an in home caregiver(like a spouse). You must apply for it + it specifically mentioned that ALZ could be covered even though the ‘disability’ was not service related. It sounded like it could be worth looking into for LOs who need ADLs and…
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My Sister pulled my Mom from MC because of COVID
So we finally all agreed to place my mom in a brand new lovely (well as nice as MC can be) MC facility. I needed to move into her house anyway at least for a while until I can make other arrangements. I was around someone with COVID at Christmas so they asked me to stay away from my mom until she got placed so I agreed.…
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Teepa Interview
https://www.blogtalkradio.com/alzheimersspeaks https://www.blogtalkradio.com/alzheimersspeaks/2022/01/18/an-enlightening-conversation-with-two-leaders-in-dementia-care
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Guardianship Conservatorship
Hello Long story so i apologize. My brother and i were granted guardianship and conservator 18 months ago. It was dumped on me to do all the work. Bills, investments, cars, property. He doesnt go see mom. His wife (not part of g/c) signs into court account and monitors what i do, calls the drs, nurses, memory care and…
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It's time for hospice...
Hospice is coming to evaluate my LO this Wednesday. Is there anything in particular I should be aware of or any questions I should ask. I know the basics, but if you've been here before, you'd know more of the "things I wish I knew" before and after starting hospice. It was ordered by his primary care doctor so his doctor…
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LO does want to get dressed, shaved or shower
My husband has dementia. At what stage I am not positive. He had a wonderful memory and seldom made a list of things that he needed. He was a person that was always busy, always repairing things and seldom just sat unless it was quick afternoon nap and back into his hobby garage. All of his life he had enjoyed as a hobby…
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Late Stage Alzheimers and Awake all night
Hi, My father was in hospital in November since he had not eaten for a couple of days and my brother was worried. When my father returned home after 2+ weeks he was severely diminished. The hospital doctor told my brother he thought this was the end stage and that my dad would continue to go downhill. At that point I went…