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Iris' story + MCI
I want to provide the long version of my story. Perhaps some members can get some knowledge from what I have been through. I was well until I became extremely fatigued in early 1986, at the age of 36. I thought I must have been exposed to a virus, although I did not develop a fever until mid-1986. In late 1987 I noticed…
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Third generation in my family
Hello, my name is Tracy. I’m 66, and represent at least the third generation of Alzheimer’s in my mother’s family. Prior to my recent diagnosis, my maternal grandfather, my mother, and one of her sisters had Alzheimer’s. My husband and I started noticing my memory difficulties at least a year ago. Newer symptoms include…
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Balance problems
I have a tendency to fall especially around the house usually in the bedroom , I usually trip on the bedspread. I have fallen twice since last November once I fell and hit my head on the night stand and cut my head and wound up in the ER. There no serious injury. Since the then I have been taking balance courses 2 times a…
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Unusual symptoms
Anyone have unusual symptoms? At times I have repetitive thoughts - like I have to get out of this place - whatever this place may be - store, restaurant, hotel room. Happens particularly at night.
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Hearings Aids
I am going tomorrow to the VA to get my first set of hearing aids. I have been told that I will be able to hear the noise that a piece paper can make I cant wit to hear that sound . Are there any other sound I can expect to hear?
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continuation of MY DIAGANOSIS
I am going to see a specialist tomorrow and I will let everyone know the results. Please keep me in your prayers.
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PANICKING WHEN GOING OUT
Today I went to bingo my wife as we do on Wed and about 1 and half hour into bingo for no reason I started to feel like the walls were closing on me ( I do not why) and I became extremely frightened I started to panic and sweating like crazy my wife held my hand I eventually started to calm down. Has anyone else ever had…
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Dont want to lose the memory
Hey, good morning! I don't know if I am suffering from Alzheimer's or dementia because I don't see the difference between them, but there are many instances where I forget things and names of people so often. It's difficult for me to finish the work I started. I take things very seriously and feel that I am not worth…
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Newly diagnosed with Alzheimer’s
don’t know what to do. Living in a black hole where I live. For whatever reason when I call Alzheimer Association, when they call back it goes straight to voicemail. My anxiety is through the roof along with my depression. I can't type fast on my phone. Sorry just lost right now. I'm not sure if I am doing this correct or…
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Eclipse
NASA will be live streaming the eclipse on Monday April 8th. I Google NASA+eclipse and I was taken to its YouTube site. Iris
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Nightmares, Temporary Psychosis or Insanity
I have Vascular Dementia and was diansed 4 years ago. I would say my Dementia is mild to middlin. I have nightmares every night. Sometimes I wake up and feel as if I have lost my mind, or have temporary psychosis ( insanity). I am confused beyond anything I experience while awake. I cannot function at all. I feel as if…
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Preparation after Diagnosis
Two days ago my PA confirmed I am in early stages of dementia. I've always been one to prepare in advance, but this is unchartered territory as you all know. Still any comments will be welcome. Prior to the diagnosis, I had arranged and prepaid for my aqua cremation. I am in the process of re-doing the advance directive…
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Develop a live support group for people living with dementia
I live in senior housing and have discovered that many folks here, like myself, are victims of early or moderate-stage dementia. Many don’t have relatives, so we are our only support. Does anyone have a manual on developing a live support group for people with dementia, or do you know of one? There are groups in this area…
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I need more help.
I'm honestly just in need of suggestions. Both of my parents are 81 years old. My dad has dementia. My mom has other health problems. I work full time and feel like I have no time for myself.
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How do you deal with emotions and confusion
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Newly diagnosed AD and living alone
Duh! I realized I had posted before in the incorrect theme? Aarrgghhh. I don't have "early dementia" I am newly diagnosed with AD and I live alone. Phew, but glad I finally realized it and I'm starting this new discussion. I hope there are some Peeps out there who are still "young" in their diagnosis. Here's what I posted…
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Fed up from the life.
Previously i posted about me feeling that i am forgetting things and losing my memory. I don't remember any happy memories seems they are somewhere in the dark and as much as i know I had many happy memories with kids, family and with the person I love. I am in love with a person, i am going through many things, having…
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Michael Ellenbogen article on the need for dementia training in hospitals
Michael has written an impassioned plea for dementia education and training programs in hospitals. https://www.mathewsopenaccess.com/journals/neurology/abstract/the-failing-hospital-system-i-when-it-comes-to-cognitive-issues-i
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I want to still be functional, helpful. Needed
So my hubby had to take over our finances and I get that. I messed things up but he still left me with my Sam's account. Q e order two times in a year. We work together on the list. Part of the delivery came in today and it seems I ordered many orders. I don't remember and was positive I didn't but he checked and I did. I…
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Mood stabilizers?
Has anyone been placed on mood stabilizers? I have had Abilify added to my medications and the neurologist is suggesting the dose be increased. Apparently I am getting more moody?!? This crap is scary, I don't remember being mad or mean or moody. I hate when someone says I did this or sad that and when I try to remember…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris
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I am the wife of someone who is living with Alzheimers...
...And I am encouraging him to look at this forum in order to not feel so alone and disconnected in his this new way of living. He was diagnosed with dementia due to Alzheimer's (currently MCI) on May 31, 2023. His journey to the ultimate diagnosis was agonizing -- he knew 3 years ago something was going wrong and 4…
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Early Onset
Good day. I am only 51 and have dementia, second to my brain disorder, Arnold Chiari. This has been terror and is so very lonely. My husband of 10 years has decided that dementia is getting in the way of his future and career and has left, saying I was a detriment. Currently, I am going through a divorce while trying to…
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My diagnosis
I was recently diagnosed with Alzheimers . I know that every one is different but any information you could give me would help myself and my wife to deal with my diagnosis. Please any advice will be helpful. Right now my mind is just racing and I don't know how to handle it.
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Zoning out?
Lately I have caught myself zoning out. I don't know when it starts or if there is a trigger. I will be playing a game on the computer and next thing I know I am staring at the screen unsure for how long and then it takes a moment to figure out what I'm doing or need to do. Like press the roll button. It happens when I'm…
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Drums and Dementia
I am a drummer, and drummer photographer and was recently diagnosed with Mild Dementia. Mickey Hart of The Grateful Dead Hart became interested in the brain's rhythms, especially after his grandmother was diagnosed with advanced Alzheimer's disease. "She hadn't spoken in over a year. I played a drum for her, and she spoke…
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Leaving home
I have Alzheimers and dread when it gets to the stage I have to go to "a home" and when my wife visits me will I know who she is?
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HORNY
Is anybody as horny as I am since being diagnosed? I have not been this horny since I was a teenager.
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…