-
I've had ALZ for several years. I'm tired of the misinformation
I'm new to this organization and this forum. But I'm not new to Alzheimer's. I have been struggling for about 4 years now and looking back I was struggling before that with a variety of things. Speech is off, balance is off, sometimes I can't slow my brain down and sometimes I can't get it going, understanding people when…
-
Recently Diagnosed MCI - Questions Posed
Invite your thoughts on my take on MCI diagnosis: having been diagnosed with MCI and experiencing what seems to be a downward progression, having researched pretty thoroughly it seems to me that the best thing(s) I can do are: (a) exercise daily; (b) stay engaged with others - i.e. don't isolate; (c) pursue natural…
-
New to the group
Hello, my name is Laurie. I am diagnosed with Alzheimers. I'm 61 yrs old. My doctor wants to start me on an infusion course of meds. Has or is anyone doing this? We're you able to get insurance for it. Thanks for your help.
-
Caregiver burn out
Hi there. I am living with and caring for my Mom and I believe she has Vascular dementia. She is bedridden and I snapped on her the other day. I am having a respite now, but I am feeling awful for my actions. I am having panic attacks, and am working with my doctor to take some ant anxiety medication, but I still feel…
-
I live two different lives, depending on time of day.
The first half of my day is almost always good. The second half of my day is almost always bad. Today I got a lot of things done, more than usual, but tonight I pay for it. My brain is tired, and I am extremely agitated. And this is the way it goes everyday. I know it is called sundowning. It's hard to talk, it's hard to…
-
I was wrong when i thought i have dementia....
Hi all, i posted yesterday that i am going to have some form of dementia, i was wrong. Today i went to my doctor, and he told me that i only have attention disorder. i am happy now. I was sad, but all sadness is gone.
-
Frankenstein
I'm an almost 69 year old male diagnosed with vascular dimensia about 6 or so months ago. Can't recall my last several or more birthdays, Christmas times or such. Almost tabula Rosa since around Covid (no I didn't get Covid). I am taking Aricetpt and Namenda for brain health and Zoloft and Remeron for depression. Had my…
-
What should I expect next and how soon
Hi. My mom is 79 years old and is a dementia patient. She has recently lost her ability to realize that she needs to urinate or poop. She does all of it in diapers and it's a nightmare to clean her up....as she gets angry, does not want to cooperate or listen while I clean her up. I am paranoid about her hygiene. Her…
-
Whats going on
For several weeks now my sister hasn’t joined us.. she use to sitting with us all the time inside the house or outside. Past few weeks this has stopped. If we are outside she comes in house. If we are sitting in our living room and if she come to where we are she will go back to her bedroom and stay there. What is this…
-
NIGHTMARES
Has any one had any nightmares? I have quite a few. The last one that I had was where I am raped by 2 men one held me down while the other one f——d me then they took turns and the other one did the same then they forced me to give each one a b—- job. I woke up screaming and sweating profusely. Well this morning while…
-
My evening agitation is off the charts
Mornings I'm a nice guy. Evenings definitely not. Two different people.
-
Father with dementia - Alz
New to this group and really hoping to learn from others about helping my dad the best I can. Diagnosed Aug 2023, mild cognitive dementia. Have done the Amyloid PET (no plaque present) however Amyloid intermediate risk via blood work. The last month we’ve seen significant decline in memory (almost no short term), no…
-
Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
-
Early Onset Diagnosis
Hello, I am new here! I have been diagnosed with early onset Alzheimers last year after many tests. I am honestly still struggling with the diagnosis on most days. I find myself making excuses to stay alone. I have been making these excuses long before my diagnoses and have been having memory problems for awhile too. I…
-
HOLIDAY TRAVELING
This Memorial Day my wife and I are going to Poland Springs in Poland Maine for the weekend for the first time since my diagnosis, I hope that I do no act up. The doctor gave me 2 new meds to help slow down the progression of my ALZ. They seem to be helping it is now rare for me to feel like that the walls are closing in…
-
Living with dementia
:'( Im 4th generation Alzheimer’s on both sides of my family. My Father had ALS. I took care of him until his last breath. So now it’s my turn. I’m 65 and have been having memory problems about three years. I was pretty certain it was an early stage of dementia. It finally got bad enough to be diagnosed last year. But…
-
Living proactively with MCI or early dementia
Dementia is progressive and in the early years no one knows if one's MCI will progress or not. I learned from the members to be proactive instead of reactive. This means trying to prevent or avoid complications, and to make decisions and plans for the inevitable future. Otherwise a crisis will occur and my family or a…
-
Ghost/seeing things
Does anyone see ghosts I see white flashes constantly when I am sitting in my chair at night. And occasionally I see shadows today waiting for my wife at the Dr I thought I saw something walk in front of the car.
-
SLUMS test
I just took the SLUMS test and got a 26 - Mild Cognitive Decline. Does that automatically lead to dementia or is it just normal aging?
-
Panicking in bed at night
I woke up in the middle of the night and I couldn't read the clock and my heart was racing and I just sat on the edge of the bed looking at the bedroom door and almost got up to go out side(if I had opened the door the alarm would've gone off) my wife said where are you going and I said I don't know and all this time I was…
-
Iris' story + MCI
I want to provide the long version of my story. Perhaps some members can get some knowledge from what I have been through. I was well until I became extremely fatigued in early 1986, at the age of 36. I thought I must have been exposed to a virus, although I did not develop a fever until mid-1986. In late 1987 I noticed…
-
Third generation in my family
Hello, my name is Tracy. I’m 66, and represent at least the third generation of Alzheimer’s in my mother’s family. Prior to my recent diagnosis, my maternal grandfather, my mother, and one of her sisters had Alzheimer’s. My husband and I started noticing my memory difficulties at least a year ago. Newer symptoms include…
-
Balance problems
I have a tendency to fall especially around the house usually in the bedroom , I usually trip on the bedspread. I have fallen twice since last November once I fell and hit my head on the night stand and cut my head and wound up in the ER. There no serious injury. Since the then I have been taking balance courses 2 times a…
-
Unusual symptoms
Anyone have unusual symptoms? At times I have repetitive thoughts - like I have to get out of this place - whatever this place may be - store, restaurant, hotel room. Happens particularly at night.
-
Hearings Aids
I am going tomorrow to the VA to get my first set of hearing aids. I have been told that I will be able to hear the noise that a piece paper can make I cant wit to hear that sound . Are there any other sound I can expect to hear?
-
continuation of MY DIAGANOSIS
I am going to see a specialist tomorrow and I will let everyone know the results. Please keep me in your prayers.
-
PANICKING WHEN GOING OUT
Today I went to bingo my wife as we do on Wed and about 1 and half hour into bingo for no reason I started to feel like the walls were closing on me ( I do not why) and I became extremely frightened I started to panic and sweating like crazy my wife held my hand I eventually started to calm down. Has anyone else ever had…
-
Dont want to lose the memory
Hey, good morning! I don't know if I am suffering from Alzheimer's or dementia because I don't see the difference between them, but there are many instances where I forget things and names of people so often. It's difficult for me to finish the work I started. I take things very seriously and feel that I am not worth…
-
Newly diagnosed with Alzheimer’s
don’t know what to do. Living in a black hole where I live. For whatever reason when I call Alzheimer Association, when they call back it goes straight to voicemail. My anxiety is through the roof along with my depression. I can't type fast on my phone. Sorry just lost right now. I'm not sure if I am doing this correct or…
-
Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?