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newly diagnosed.
New diagnosis, no treatment or medication started yet. I am 68 and have suspected this diagnosis for almost 18 months. Felt gaslit by my family when I mentioned it. They were in denial and basically told me it was just ADHD. Now that I am diagnosed, THEY are the ones that are like deer in the headlights. Husband says…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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1st Lequimbi Infusion..
Is finally on my calendar for Oct 30. YAY!! It's been a long slog but it is almost a reality. Very pleased. 😁
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Other Caregivers Dealing With Menopause?
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Newly Diagnosed with Mild Cognitive Impairment
Hi everyone..I am 58 year old School Counselor newly diagnosed with MCI, based on Montreal Assesment. I have a variety of risk factors--family hx on paternal side (Grandmother, Uncle, Father) plus I have Type II Diabetes, Sleep Apnia, Peripheral arterial disease, etc. I am scheduled for a workup--blood test, MRI, and…
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Mom with dementia
My mom has dementia and she forget and can't remember things she does things that I don't know how to stop example she uses toilet water to clean herself with tp and she goes through alot if tp
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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Moderate dementia
After years of falling, stuttering and memory problems I was diagnosed with moderate dementia My husband can't handle and/or accept my diagnosis. He is an alcoholic and he can't help but argue with me, yelling Has anyone else feel this way. I am n o with 70
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Alzheimer’s
I was diagnosed with Alzheimer’s about 6 months ago. Is anyone being treated with Kisunla? I started infusions about four months ago. After each infusion I get terrible headaches for about two days.
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New to group - in MCI stage of AD
Good morning! I’m recently diagnosed with MCI of AD. Prior to my diagnosis, my husband didn’t notice anything, but I knew something was wrong. I mentioned my memory difficulties to my internist and she did a test in her office that I passed with flying colors. When I continued to have difficulties a year later with…
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POINTER Study to Modify Lifestyle to support Brain Health
Yesterday the Alzheimer's Association issued a press release about the results from the POINTER study. I happened to be in attendance at the Alzheimer's Association International Conference (AAIC) in Toronto, where a presenter shows the impressive results from the study. Also, a participant in the study spoke about her…
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Read this- For MCI or early stage Alzheimer’s- slows progression
https://alzres.biomedcentral.com/articles/10.1186/s13195-024-01482-z
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vitamin B12 abnormally High
Hello I recently had a diagnosis changed from early onset dementia to Mild cognitive Impairment after psychological testing. a few weeks ago I had a lumbar puncture test done and some blood work. In my cerebral spinal fluid I had abnormally very high vitamin b12 and abnormally high Red Blood cells in my CSF as well. my…
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FDA Approved Leqembi Subcutaneous Maintenance Dosing
On August 30, 2025, Eisai (Japanese company leading the development of Leqembi) published a press release announcing FDA approval of Leqembi subcutaneous maintenance dosing. After the initial 18 months of treatment via infusions every two weeks, patients will have the option of continuing with infusions every four weeks or…
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Newly diagnosed with MCI
I have had the MoCA test and 2 Quest Diagnostics blood test: PTAU 217 @ 0.18 (normal < or = 0.15) and PTAU 181 @ 1.48 (normal < or = 1.07) After reading about these test it appears to me that I likely have early stages of AD. My personal Dr. has played this down and just says I have MCI and wants me to do red light therapy…
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, ideas, and support." Along those lines, one idea would be for those interested in Alzheimer's research is to attend the…
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Neuropsychological tests
I was diagnosed with Alzheimer's 5 months ago. I had been complaining on and off for 4 years that I was forgetful and having trouble with finding my words. I was given an MRI (2021) which shown a right lacuna infarction and mild chronic small vessel disease ( Neurologist said it was nothing to worry about). He then…
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Moved: Denial
This discussion has been moved.
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Promising News for New Anti-Amyloid Antibody Treatment
Sharing because I wish this was around when my mom was diagnosed with Alzheimer's... There's a new drug that seems like it has a good chance of becoming a game-changer for Alzheimer's, called Trontinemab. It was developed by Roche Alzforum.org posted an article today about this new antibody, the article summarizes the…
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Medication depression or anxiety
has your doctor prescribed medication for anxiety that is worth the side effects- I have been experiencing really bad anxiety particularly when it comes to bedtime was wondering if others have similar experiences and any solutions
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Lithium to treat AD?
Today a front-page article in the Washington Post is titled "Lithium a potential for treating Alzheimers." The gist of the research with mice is that Lithium plays a key role in the brain function. Their research shows that amyloid plaques trap and remove Lithium, which is bad thing. They provided mice with Lithium orate…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…
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Improving Services and Program for People with Dementia
Michael Ellenbogen sent me this excellent, concise article on how to improve services and programs for people with dementia (including his own recommendations for hospital care). https://progressally6yogf8hc32ioroi.s3.us-east-1.amazonaws.com/list/Journal/99/j99-delorenzo.pdf
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Recent diagnosis of LBD
I am new to this disease and have fears and questions of what my reality will look like and a sense of urgency to get all my end of life plans and make sure I have all things including legal affairs in order. And I have fears as well. I have found many things that describe situations from the caregiver side. I appreciate…
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…