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Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Scan, Ankle Brachial, and Heart Monitor. The initial discussion with the doctor is Dementia. Also, what are the common…
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Genetic Testing
Is an order for genetic testing routine for those diagnosed with AZ?
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What were your first symptoms?
I am curious what the early symptoms those here experienced? Long-term or short-term memory loss? decrease in ability to focus? Any other mental symptoms? Any physical symptoms? Were the symptoms constant? or episodic/occasional? I have had episodes of extreme foggy-brainess over the past 5 years along with a loss of…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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Recent Alz dx -not coping well
Hello, Last year both of my parents passed from Alzheimer's. One month after my father's passing I was dx with Alz. My neuro believes I've had it for aprox 2 yrs. Brain shrinkage of both sides of my brain and amaloyd plaques in the frontal areas. All confirmed with MRI and PET scan. Issues are not too troubling nor are…
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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Dirty habits
HI. My mom is a stage 6 dementia patient and we have a caregiver for her during day time while I am away for work. From evening 5 pm, I take care of her and I have set a daily pattern for her. 1. Take her down for a stroll in the society everyday. Make her sit with her old friends n I socialize with then, such that she…
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My First Community Post
In the words of the poet, "please allow me to introduce myself," although when it comes to "wealth and taste," I'm lacking on both counts. LOL. I was born and raised in the Chicago area, not far from Midway Airport, with spina bifida and hydrocephalus, which caused me to spend a lot of time with doctors. It has been…
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helping my brother with short term memory loss as his guardian
I am at a loss. My brother lost his wife and continued to drink heavily. Became real sick and ended up with dementia/short term memory loss. He was able to gain a little back but I don't know what to do. I took him away from his home because there was no one there to care for him when he left the hospital. My husband I…
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67 and diagnosed with ALZ 2 years ago
Would like to find others to converse with in the Del Mar area. I retired 2 years ago due to ALZ. Finding it lonely since husband works and I no longer drive. Either in person or online. Thank you.
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New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely shared our diagnosis. We are reading all we can about proper nutrition for dementia. We are active in National Senior Games…
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New Here…
Hello all, I joined this page on behalf of my husband he was diagnosed with Alzheimer’s at the age of 54. I am currently his caregiver and plan on being by his side through this entire process. We are located in California and would love to talk and seek advice from other families with such early onset. I have spent…
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Kisunla
I am interested in hearing from someone who has experience with Kisunla infusions. Thanks! Didi
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Not eating food
Hello I am from India My grandmother has dementia she forget daily tasks but remember family members. Now she is not able to eat food Md difficulty in walking while standing she rejects to walk.She prefers to sleep only as much as. Kindly suggest me how can i make here to. Regain eating and walking activities
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Hi I am new here and have questions
My mom has had dementia now since 2014. She is in a Dementia group home. I am struggling with the dementia and not sure how to handle it. She just lays in her bed all the time and never walks. She is always miles away when I talk with her. When she has physical issues like a bladder infection she does not tell the staff…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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Talking with others in early stage dementia
Talking with others in early stage dementia
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How to handle angry people?
I am 74 and have been married for 52 years. I have been slowly declining since 2020. I was happy that I maintained an abiliity to craft a sentence. I have a husband, 74, and two sons, 50 and 48. THe 50 year old is very kind and generous. My husband keeps complaining because I talk too much. My 48 year old son thinks I am…
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New to site & need support
Over the last several months, my HCP’s have diagnosed me with Mild Cognitive Impairment, Parkinson’s Disease, and/or Vascular Dementia/AD. I’m cognizant all these overlap within the domain of neurodegenerative disorders. Treatment for PD with levodopa/carbidopa has significantly improved my leg spasticity and ataxia but…
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HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene. His PET scans showed elevated levels of tau. He was part of the phase 3 trial for Aducanumab, he developed ARIA and was in…
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Improving emergency care for people with dementia
Michael Ellenbogen has been working on this important project for quite some time. He sent me the linked article. He is one of the co-authors. https://outlook.live.com/mail/0/inbox/id/AQMkADAwATE0YTEwLTZkZWMtZWY4Ni0wMAItMDAKAEYAAAMe8X2mg8UKQKMXq%2BSo2HGuBwC6%2FjKngSETRo24yIoaaSzbAAACAQw
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account executive/community liaison for a hospice company, where I have learned so much already. My grandmother also has dementia, so I…
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What does having a short memory loop feel like?
I wonder what a PWD with a short memory loop, unable to create new short-term memory, feels like? For example, when I wake up from sleeping, I may remember some dreams, or maybe having gone to sleep. Maybe a better example is awakening from anesthesia. In either case, you remember very little until you go about the process…
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sundowning
My mother is 84 and has been sundowning for almost a year. It occurs when she asks about her husband (my father) who passed away 7 years ago. My brother and I started out with the approach of just telling her the truth which I know is considered a bad idea. But here it the problem, we have tried other approaches. It was…
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Formication
Is formication a symptom of Alzheimer’s, I have mixed dementia and I seem to get this sensation quite often.
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…