-
Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
-
Alzheimer's communication tips
Found this in another group and thought it'd help here: If you're caring for someone with Alzheimer’s, adjusting how you communicate can ease frustrations and improve understanding. From visual cues to gentle tone changes, these strategies can help build connection. Learn more about how to communicate effectively with…
-
92 years young no longer able to live independently
I have recently moved to my daughter’s home in Alaska as my memory has (lack of) caused me many problems. Doctors here indicate there is no conclusive testing for Alzheimer’s/brain disease and I have been given no clue as to my brain health or diagnosis. Parkinson’s was suggested but I do not have 2 of the 3 required…
-
Newly diagnosed this week
67 yrs old and just diagnosed with Alzheimers. For the past 6 yrs I've been diagnosed with mild cognitive decline but it just started getting worse. The memory clinic I go to had me go through a spinal tap, mri, amyloid PET/CAT, and genetic testing. All tests revealed frequent Amyloid which is now in the gray matter of my…
-
Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
-
74 MCI/ALZ
Hello. I am grateful to be able to communicate with others in this forum. I received a confirmed diagnosis on Dec. 2, 2025. I am at an early stage, so I'm taking the time to do thorough research. My local neurologist has suggested Kisunla; I've been approved to start it. Kisunla was only recently approved in the EU and, as…
-
The Story of Ralph Carmona
The Alzheimer's Association (the sponsor of this forum) posted on their facebook page some "feel good" stories of people with AD in December. I'm finally getting around to sharing one of those posts with this group, the story of Ralph Carmona. Their version leaves out some interesting details. Ralph has a PhD in Political…
-
NEWLY DIAGNOSED VASCULAR DEMENTIA
Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…
-
Quite shocked
Hi....my dr. was not expecting a diagnosis of Alzheimers. (neither was I!) He's a great neurologist and he could barely talk. We are going to move into an retirement community that has help with memory, etc. I just hate thinking about Az every moment. Thanks for listening.
-
She loves me and loathes me
My wife of 55 years has Alzheimer’s and I thought I could manage this problem. I watched my lovely mum disappear into the state of madness and in hindsight I think now I was too tough on my Dad for not being able to understand that my Mum (her original being) had left. He was arguing with her shell. It’s my turn now and…
-
Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
-
Looking for Support Here
Hello all, I have some form of dementia that may be vascular or Alzheimers. I have had the ususal tests, MRIs, blood work for biomarkers, PET scan and consultation with well respected neurologists in Northern Virginia. I am looking more for support both emotionally and in terms of locating resources for support available…
-
What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
-
Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
-
Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
-
Last Infusion and Encouraging PET Scan
Today I get my final Leqembi infusion, completing the course of 40. Last week, I saw my neurologist to go over my final PET scan. It was negative. No detectable Amyloid plaque. Amazing. <Bob gives a big exhale.> The doc offered options for maintenance. They were: Monthly infusions at the infusion center. Weekly self…
-
New here~~~~
I am not currently experiencing symptoms of Alzheimer's but have been placed in a clinical trial for "pre-clinical" Alzheimer's. I'm APOE 2/4 and have experienced 2 incidences of ARIA E. I'm concerned about continuing in the trials. Any input???? and HELLO everyone!
-
Cancel
cancel
-
Any Heterozygotes on Donanemab?
Got my APOE results back and I am E3/E4. Waiting for my next appt with the NP to discuss next steps. I know that E4/E4 is pretty much a no go for Donanemab. E3/E4 is supposedly 50% less chance of ARIA, but still a risk. My Centiloid is 144. So, lots of existing plaques. Donanemab is for clearing those. Lecanemab is for…
-
MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
-
Risks of Anti-amyloid Antibody (IV) Infusion Therapy With Extreme Exercise?
I am trying to find some answers on the risks of taking an anti-amyloid antibody (IV) infusion therapy while being physically active. My 63 yo husband (stage 4, APOE3/4) was just diagnosed with Alzheimers and he is a candidate for Kinsula or Lequmbi but we are worried about the risk of ARIA. He wants to keep mountain…
-
New diagnosis
I'm 72 years old. I was diagnosed with Alzheimer's in September 2025. My neurologist said I will be at this stage 2 1/2 to 3 years. Then I will progress to next stage. I'm not eligible for infusion because of brain bleed and APOE 4 type. I live alone. This is very scary. I don't know how long I should plan to be able to…
-
Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
-
Continuing ALZ Research
https://www.sciencedaily.com/releases/2025/11/251118220052.htm#google_vignette
-
Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
-
Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance
-
New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
-
Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
-
When Leqembi causes ARIA
I'm not out to discourage anyone getting treatment. I'd like to add my experience just to show there is another side of Leqembi. I am 69 years old, diagnosed about 18 months ago. I don't have APOE4 so I felt that was a a risk reduction as well. I was very excited to start my infusions. My first treatment went great. No…
-
Just diagnosed
My name is Steve. I was just diagnosed with early onset dementia. I am 61 and have non idea what i will be in for. Any suggestions or info would be most welcome.