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READING
Does anyone like reading books? Right now, I am reading a book by James Patterson. I also like Danile Steele. I especially like mysteries I just finished Jessica Fletcher's The Murder of Twelve. Can anyone recommend a good mystery?
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Iris' Story part 2: What I learned from Mimi S
That would be Mimi Steffen, an emeritus member. Mimi was one of the first members I met on the board. She was in her 80s and had a diagnosis of Alzheimer's Disease. She was also a myasthenia Gravis patient. Mimi gave us hope. She wore a bracelet, "A Reason for Hope" and she sent me one. In those days, there was no hope for…
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Recent dementia diagnosis
Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one week to the day of my diagnosis, July 30, 2024. I was my mom's full time caregiver while she lived with me the last 4 years…
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How I dealt with a diagnosis of dementia
I was originally diagnosed by my neurologist as having cognitive impairment not otherwise specified. This means that the memory loss and other cognitive issues are due to another disease condition besides Alzheimer's Disease. Since I had had memory loss for some time, I was okay with that diagnosis. It is on the same order…
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Alternative Therapies
Hi. I’m new to Alzheimer’s and to this board. I’m wondering if there are alternatives to the standard ‘take your meds and wait’ scenario. Has anyone here researched or run across information?
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Asking for help( caring for a loved oned showing signs of dementia)
Hello everyone, Me & my mom would like some advice. We are currently caring for my grandma & she has been showing signs of dementia. We have been to multiple doctor appointments, just waiting to hear the results. Even though she hasn’t been diagnosed, we’re pretty sure it’s dementia being that in runs on her side of her…
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TAKING MAEDICATIONS
I do not know if anyone has been following my story. Up until now I have been able to do my own meds with my wife just checking on me once in a while just to make sure I am doing it right. Well today I could not remember which meds I take in the a.m. or the p.m. This scared the s—t out of me. I guess this proves that my…
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Where do I stand in the variants of Alz?
I am a newbie here, so forgive me for any mistakes I make… And forgive me if I talk too much. I don't remember how long ago it was that I got routed to a doctor who was, I think, fairly good with Alz patients. And, now, less than a year with me and him, I know what is going on - somewhat. My stats for measuring my problems…
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Suggestions about how others deal with stage 1-2 Altzheimers or dementia
I am interesting in talking to others about what works for them, Nanette
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spport group for people with Altzheimers
Are there any group for people diagnosed with Altzheimers or Dementia???
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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HEARING THINGS
I enjoy reading and lately while reading I have been hearing music that seemed to be coming from outside. (Let me say that we have central air when the house gets too cold, we shut the air off and when the house gets stuffy, we turn the floor fan on.) I thought that I was going crazy and went outside to see if I could see…
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GOING TO THE SENIOR CENTER
Shortly after my wife died, I went to the senior center to get a tax break. I then volunteered and worked in the kitchen for several years. I have met an awful lot of nice people, including my current wife she was a widow. I also knew her husband for 2 years before he died. The center has so much to offer they have bingo…
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Scared and Sad
:'( I am new to this site. I was recently diagnosed with Mild Cognitive Impairment (MCI). I am a 51 year old woman. I have been married to the love of my life for over 25 years. We have a 23 year old daughter. This diagnosis has become devastating news to our family. I am scared, angry, sad, and unsure about what is…
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I've had ALZ for several years. I'm tired of the misinformation
I'm new to this organization and this forum. But I'm not new to Alzheimer's. I have been struggling for about 4 years now and looking back I was struggling before that with a variety of things. Speech is off, balance is off, sometimes I can't slow my brain down and sometimes I can't get it going, understanding people when…
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Recently Diagnosed MCI - Questions Posed
Invite your thoughts on my take on MCI diagnosis: having been diagnosed with MCI and experiencing what seems to be a downward progression, having researched pretty thoroughly it seems to me that the best thing(s) I can do are: (a) exercise daily; (b) stay engaged with others - i.e. don't isolate; (c) pursue natural…
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New to the group
Hello, my name is Laurie. I am diagnosed with Alzheimers. I'm 61 yrs old. My doctor wants to start me on an infusion course of meds. Has or is anyone doing this? We're you able to get insurance for it. Thanks for your help.
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Caregiver burn out
Hi there. I am living with and caring for my Mom and I believe she has Vascular dementia. She is bedridden and I snapped on her the other day. I am having a respite now, but I am feeling awful for my actions. I am having panic attacks, and am working with my doctor to take some ant anxiety medication, but I still feel…
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I live two different lives, depending on time of day.
The first half of my day is almost always good. The second half of my day is almost always bad. Today I got a lot of things done, more than usual, but tonight I pay for it. My brain is tired, and I am extremely agitated. And this is the way it goes everyday. I know it is called sundowning. It's hard to talk, it's hard to…
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I was wrong when i thought i have dementia....
Hi all, i posted yesterday that i am going to have some form of dementia, i was wrong. Today i went to my doctor, and he told me that i only have attention disorder. i am happy now. I was sad, but all sadness is gone.
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Frankenstein
I'm an almost 69 year old male diagnosed with vascular dimensia about 6 or so months ago. Can't recall my last several or more birthdays, Christmas times or such. Almost tabula Rosa since around Covid (no I didn't get Covid). I am taking Aricetpt and Namenda for brain health and Zoloft and Remeron for depression. Had my…
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What should I expect next and how soon
Hi. My mom is 79 years old and is a dementia patient. She has recently lost her ability to realize that she needs to urinate or poop. She does all of it in diapers and it's a nightmare to clean her up....as she gets angry, does not want to cooperate or listen while I clean her up. I am paranoid about her hygiene. Her…
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Whats going on
For several weeks now my sister hasn’t joined us.. she use to sitting with us all the time inside the house or outside. Past few weeks this has stopped. If we are outside she comes in house. If we are sitting in our living room and if she come to where we are she will go back to her bedroom and stay there. What is this…
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NIGHTMARES
Has any one had any nightmares? I have quite a few. The last one that I had was where I am raped by 2 men one held me down while the other one f——d me then they took turns and the other one did the same then they forced me to give each one a b—- job. I woke up screaming and sweating profusely. Well this morning while…
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My evening agitation is off the charts
Mornings I'm a nice guy. Evenings definitely not. Two different people.
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Father with dementia - Alz
New to this group and really hoping to learn from others about helping my dad the best I can. Diagnosed Aug 2023, mild cognitive dementia. Have done the Amyloid PET (no plaque present) however Amyloid intermediate risk via blood work. The last month we’ve seen significant decline in memory (almost no short term), no…
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Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
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Early Onset Diagnosis
Hello, I am new here! I have been diagnosed with early onset Alzheimers last year after many tests. I am honestly still struggling with the diagnosis on most days. I find myself making excuses to stay alone. I have been making these excuses long before my diagnoses and have been having memory problems for awhile too. I…
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HOLIDAY TRAVELING
This Memorial Day my wife and I are going to Poland Springs in Poland Maine for the weekend for the first time since my diagnosis, I hope that I do no act up. The doctor gave me 2 new meds to help slow down the progression of my ALZ. They seem to be helping it is now rare for me to feel like that the walls are closing in…
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Living with dementia
:'( Im 4th generation Alzheimer’s on both sides of my family. My Father had ALS. I took care of him until his last breath. So now it’s my turn. I’m 65 and have been having memory problems about three years. I was pretty certain it was an early stage of dementia. It finally got bad enough to be diagnosed last year. But…