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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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How do I tell my mom we are where we are because of her illness?
First, my mom refuses to come to terms with the fact that she is mentally declining and that we need to address the fact that she is not just forgetful, but that she has severe memory loss, had a small stroke, and is starting to experience delusions. Of course, she denies and becomes enraged when these things are brought…
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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Brain Exercising
i would really like some opinions. We are involved with a disability sailing group. One particular friend, in her 50’s, double degree, has been a mother, a teacher, piano and trumpet player, sailor and scuba diver, a very accomplished all rounder. She has had 3 traumatic head injuries, lost her memory completely and the…
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Should we move our loved one
My ex has no diagnosis but has many symptoms of memory decline. She wants to move several states over to live close to hers and my son. But she can only afford an apartment 30 minutes away from my son. Does anyone know of similar situations and how they turned out? Thanks
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Declining mobility and VD
There are so many on this site with much bigger issues than mine and farther along on the journey. DH has VD after several strokes in his parietal lobe. He has executive function issues, receptive and ecpressive language defecits but very little problem with memory. He can still do his ADLs but is declining physically at a…
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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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don't know what to say to DW
I visited DW yesterday at her MCF, and it was pretty disheartening. I managed to record a bunch of our conversation and transcribe it. The key points: * She asks why she is there, what changed between us? * Why didn't I talk to her about the change? * Why don't I want to be with her? * Is there someone else? * What's the…
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NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html
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A new experimental treatment - in a nasal spray
Something to keep an eye on. The study focuses on those with moderate Alzheimer's. Can this nasal spray slow down Alzheimer's? Once couple is helping scientists find out
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My Mom Finally Got An Official Diagnosis
So after almost three months, my mom has officially been diagnoised with major cognitive disorder, aka dementia by a geriactic care provider. According to her, silent strokes from a while back (which affected her brain) and my mom's unresolved grief with my Dad were major contributing factors. It has been recommended that…
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So I guess this how it goes? One day your are fine and the next you are not
I realized I cant take care of 2 dementia patients on my own. So now I need to get agreement from my Dad to go into the nursing home. I spent 8 hours today dealing with them, doc appoints, falls, ambulances, hospitals - all in one day. I can't take all this stress. Its destroying me.
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Mom girgals after eating
Hello, has anyone noticed this with their LO? It looks like she is choking and is in pain.?
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DH has a hernia should he have an operation
My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…
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Dad with dementia survives mom
Mom had a massive brain hemorrhage and as medical POA, I had the difficult decision to take her off life support after 3 days in a coma. She passed 2 days later. Funeral was on the 19th. Now I'm focusing on taking care of Dad as he has late stage vascular dementia. We were supposed to plan for Dad to pass first but then…
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Chamomile Tea for DH
Chamomile really helps ME sleep. Once I fall asleep, I sleep deeply if I drank some. It doesn't make me drowsy but once I fall asleep, I'm OUT! I'm thinking of giving this to him tonight. Has anyone else tried this?
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First Post. I’m living with 2 challenging men.
So very grateful that you all share your stories. I’m learning all I can. I’m truly frightened for our future. My DH, age 73 hasn’t been diagnosed with dementia yet. I suspect he’s in stage 3. Maybe 4? Of vascular dementia and ALZ. His neurology report states ‘probable mild cognitive impairment’. Dr prescribed aricept and…
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Hypersexuality
My DH has been driving me crazy for a few years with sexual comments all day. The other day at doctor's office he told the nurse she had sexy shoes. This is the first time such comments were made to others. Never before this disease would he say something like that. Several months I spoke with his geriatric doctor about…
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Memantine
Hi, I am new to this group. My DH was recently diagnosed with "Alzheimer's type dementia". On the 7-step scale, I would rate him between 3 and 4. We are waiting to meet with a neurologist. In the mean time, our PCP has prescribed a drug called Memantine. Are any of you willing to share your experience with this drug?
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Advice on next steps please
Hello All, I am looking for some advice from the experts here. My DH (62) does not have a diagnosis yet, but I suspect bvFTD (that is the behavioral variant of FTD. He has some memory issues, but his behavior changed dramatically in a very short period of time and I see him struggling with his executive functioning and…
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MCF after stay in psych hospital
It has been a long while since I last posted an update here (I did last week yet found my answer) and am truly thankful for this site. My MIL finally got moved to a MCF this afternoon after a week plus stay in a psych hospital after she had a catastrophic event at my BIL and SIL’s house. My DH and I live in another State…
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Not recognizing home
I am writing on behalf of my DB. His DW has had a very fast decline in the last 10 months and now not able to to do tasks around the house such as cooking or cleaning but still able to basically do her ADL’s. She all of a sudden is accusing him of moving them to a new place without her being consulted. This is a house they…
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The lack of help is wearing me out
I have a caregiver that comes for 4 hours a week and am supposed to have another for another 4 hours. It is not enough. I need a break. His family shows up once or twice a year for a few days. Still no break. Now I am hosting guests. My parents come and get him out of the house and make decisions for me like dinner etc.…
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When you just have to say NO
My mom is stage 5/6 she has hallucinations (even medicated) her big one is a dog. She is constantly looking for this Shepard (she has never had a Shepard) we do have a beagle and she enjoys him but is obsessed with this shepherd. I’ve played along for a long time, distracting her changing the subject but she has become…
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Slowing progression of disease
I keep hearing that there are meds that can slow the progression of this disease but I wonder if that's only for those who are diagnosed early? At this point, I wouldn't want to have my DH stuck in this stage any longer than necessary. The anxiety, confusion, anger... if doctor recommends one of these new meds is it ok for…
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Time for Depends?
I am caring for my 94 year old mom who has dementia bordering on stage 4/5. Lately she has had accidents at home and out and of course does not remember them. I have tried to get her to wear Depends when we go out but she refuses. My dad, 95 years old, wears them when we go out as his cancer medicine can sometimes cause…
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Clarity VS deep sleep or unresponsiveness
My 91 year old mother has vascular dementia and shows a pattern of two days of clarity and sleeps for 3 days nonstop and back at clarity again. This has been a pattern since Jan 2025. She was diagnosed in 2020 and lives in a Care Center Facility. Is any of your love ones with vascular dementia going through this cycle?
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I Am Bringing Him Home
Update: I’m sitting here in his MC room waiting for the ambulance to come bring my DH home. He’s on day 26 of not eating, day 10 of refusing all of his meds (he has significant heart issues), and day 3 of less than 8 oz of fluids/day. He’s terrified about being left alone, even for just a few minutes, so I’ve been here…
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Walking difficulties
My mom has been telling us that when she walks she feels like she is running. I experienced it firsthand this weekend. We went out for a walk and started out slow, she then started going faster where it was almost hard to keep up. When walking she is leaning forward. If I was not holding on to her, she would have fallen.…
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Seeking Advice on Initial Steps
My mother is 80 years old and lives with my father who is also 80 years old. Since the beginning of the year, she is starting to show the initial signs of memory loss. She often repeats herself and is unable to retain very much information in her short term memory. I am reaching out for advice on any initial steps I should…