-
MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
-
Trying to plan ag
-
Is anyone in the Denver area?
I was diagnosed with EO AD last week. Would love to connect with others in the area. Maybe meet for coffee or walk.
-
Anyone using Paxil for severe agitation?
My mom is 94 - diagnosed 11 years ago with Alz dementia. She has been in an advanced stage requiring full care for almost 10 years. Her neurologist advised us to try Paxil to help with her severe agitation. She is taking seroquel as well. She's starting throwing plates of food lately. Things are rough but I'm nervous about…
-
both parents with dementia, cost of care very high
Both parents with ALZ, different presentations (ie agitated v. calm) and we have been getting by with paid caregiver 4 days a week and the rest done by myself, sibling occasionally helps out. Care needs are escalating and a tour of local senior livings has been cost-sobering. One place that had AL with solid cognitive…
-
Support Group Cookie Exchange? No!
Just need to vent about endlessly unreasonable expectations…with the “you need to take care of yourself” heading that list today. You need to (fill in the blank) sleep, meditate, journal, blog, do yoga, do cardio, take a break, take a walk, join a support group…while being sure to show up at work fully present, care for…
-
Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
-
Intimacy.
Moderators. R we allowed to asked questions about intimacy? The issue was I was showing my wife of 45 years, and I became visibly aroused. She got highly agitated and started filing her hands etc. I was able to get her out of the shower and calmed downed. this has never happened since she has had dementia. Has anyone else…
-
Question
What do the two icons in the upper right and the bottom corner of posts mean? How do I comment on a posts?
-
Thank you all who had time to listen
I just want to say thank you to all of you who listened to me earlier in the year, as a new caregiver, to my husband who was diagnosed with HF and Vascular dementia in January 2025. He passed away on Friday, 11/28/205, peacefully. The dementia took it's full course and not the HF. He blew through Stage 3 to Stage 7 in 8…
-
Agitation
My DH has recently had episodes of being delusional and gets agitated because he’s so confused. Does anyone know if there are medications that are good for occasional use in this situation. How about THC gummies or other varieties? Any input is appreciated.
-
So instead of carrying grief…carrying my love?
I saw this on another site. it spoke to me. I have been trying desperately to leave the grief behind. Maybe this will help. I’m leaving you here. For one night I want to forget. And maybe smile. Grief: You can’t leave me behind. I’m tired. You are heavy. Sometimes you are just too much to bear. Grief: I am a part of you…
-
Alone, A New Realization
It came to me overnight when, as is often the case, I found myself awake way too early. Thanksgiving came and went with dinner at one of the daughters home with most all our family and my brother's family attending. I made it through but, as i suspected, the world fell apart afterwards. I felt lost among all my close…
-
His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
-
Using an agency for respite
I have two caregivers who come each week, 3 hour shifts 3 times a week. I don't think they are available for longer periods as they have regular schedules. I would like to take a 4-5 day break after the holidays —maybe go visit my sister in San Francisco. The agency I work with has sent nice people so far, but for a break…
-
Advocating for my dad
My father's memory has been affected by untreated sleep apnea and cholesterol that has lead to moderate chronic ischemic changes along with a diagnoses of late stage Alzheimers. When he was first admitted to memory care, he was very upset that my stepmom wasn't visiting and she mislead him to say she was sick and he was…
-
Siblings lack of understanding
My DH was diagnosed with AD. He told his siblings and encouraged them to look for information about the disease. One sister is in the medical field. One brother is an educator. Another sister worked with individuals with disabilities. There is one other brother and one other sister. They do not understand their brother's…
-
Refusing UTI treatment
she developed UTI and medical team gave her antibiotics without consulting us although she has signed medical directives refusing heath care treatment to prolong her life ,how could UTI be treated without antibiotics and let life take it’s course (don’t want her to suffer ) Would that be a good way to go if that was her…
-
Functional Cognitive Disorder
I have a spouse that suffers with this and I am learning how to navigate this process with him. How can you help a spouse learn new things, but also want to make sure you have the patience to help them during the process.
-
Just need to talk to my friends (212)
Time to go to bed and watch tv a while. It's been a long day. Hope all of you have a good nights sleep. Thought I would start 212 while I thought about it. Good night.
-
Hospice care
I haven't posted anything for a while, but if anyone is considering hospice care I suggest you pursue it. My wife is in memory care and has had several issues. I think the hands-on care givers are doing a good job, but the facility nurse is out a lot and very hands off. She directs the staff based on reports rather than…
-
Moved into Stage 4
DH still works Sudoku. I think he will forget my name before he fogets numbers. What has changed is the frequency of wrong word substitution, stopping mid sentance to remember what he was going to say, or stopping to try to remember what "that thing" is called. A month ago, he was having an occasional "bad day" and then 2…
-
My Love is home.
Hi friends, My loving partner Luis of 6 years (46 yo eoa) passed away this morning peacefully in bed with me by his side. I am okay as this is all bittersweet. I am sad as my love is gone and I shall move on with my life. I am angry because this disease is horrible and robbed us both of growing old together. I am relieved…
-
The list
Mom moved to a nursing home about 4 months ago. She is doing very well. Her memory is not bad and she can carry on what feels like a very normal conversation. Her move to the nursing home was a disaster (my brother thought she should decide what to bring). She has mentioned several times that she has things she wants from…
-
Cold Intolerance
I tend to run hot, all the time. My DH has developed cold intolerance. I have managed to put up with the temperature here… he wears jeans, socks, slippers, a t-shirt, and a fleece jacket around the house and complains of being cold. I wear a tank top and short pants, and I am burning up. We keep the thermostat on 73…
-
Thankful
On this Thanksgiving Eve, I wanted to say thanks to everyone who contributes to this forum. I continue to learn much from each person who shares here. Just the act of sharing helps each of us feel less isolated on the caregiving journey! I appreciate all of you. Anyone want to share some caregiver-specific reasons to be…
-
Risks of Anti-amyloid Antibody (IV) Infusion Therapy With Extreme Exercise?
I am trying to find some answers on the risks of taking an anti-amyloid antibody (IV) infusion therapy while being physically active. My 63 yo husband (stage 4, APOE3/4) was just diagnosed with Alzheimers and he is a candidate for Kinsula or Lequmbi but we are worried about the risk of ARIA. He wants to keep mountain…
-
NYT Opinion Piece on Caregiving Crisis
https://www.nytimes.com/2025/11/24/opinion/caregiving-crisis.html?unlocked_article_code=1.308.kBxI.CmNVAb2397Tf&smid=url-share
-
Sudden deterioration in memory and change in demeanor
Is it common for someone with Alz/dementia to have memory suddenly decline significantly? My Mom (96) has a show she LOVES to watch on TV - loves to the point that we have recorded every episode on her DVR and replay them continually. She talks about the star (local vet), wants to meet him, wants to see his clinic, etc.…
-
agitation and aggressive behavior
My wife is 76 and in very late middle stage (6e) of Alzheimer's. She was diagnosed more than 10 years ago and has gradually progressed to this stage. until recently she was very cooperative, ate and hydrated well, and other than having almost no ability to care for herself was actually fairly easy to care for. Recently she…