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Cellphone scams
Does anyone know of a phone that my mother with dementia could use? She has been scammed over phone few times giving out her information. We took away the phone but she keeps asking for it back. Ty
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So much to handle
I was just diagnosed with frozen shoulder on the left and bone on bone on the right shoulder requiring shoulder replacement. I’ve opted for cortisone shot and PT ; as I cannot figure out how to take care of DH 6 yrs into VD . How do all of you deal with this? I woke up this morning to go to PT to find my left foot was…
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I'm newly diagnosed with Alzheimer's and considering one of the new drugs
Hi. My name is Shank. I’m a 79-year old retired company medical director, and I was diagnosed with early stage Alzheimer’s about 6 months ago. It followed a year of an increasing number of senior moments, then neuropsychiatric testing, an amyloid PET scan, and an elevated p-tau217 level. I’m on here to learn from others…
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Would having a night caregiver help an Alzheimer's patient sleep more/better at night?
Would having a night caregiver help an Alzheimer's patient sleep more/better at night? My mother's circadian rhythm is completely messed up. What I want to accomplish is to get my mother onto a normal sleep schedule (say 11pm to 9 or 10am). My mother is up a lot of the night sitting on the side of the bed thinking about…
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Checking in…
It’s been a while since I’ve been on this site. I just wanted to check in and miss feeling connected here, so here’s an update. I guess the one constant of caregiving is we just can’t predict this journey. A year ago mom went on hospice after a horrible fall. MC made her get a 1:1 aid because she had so many issues. Now, a…
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CARE AT HOME UNSUSTAINABLE
My DW’s psychiatrist and non-residential memory care activities director have recommended residency, telling me that my caring for her at home is “unsustainable” and that I’m harming myself by trying to be her sole caregiver. What form could/will that “harm” take? What could happen to me? I’m stressed, sure, but feel that…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Waiting on an official diagnosis
I am 60 in July It seems like it is test after test. I have had all kinds of blood test. My next test is a pet scan. How long before I get a diagnosis? Not knowing is really hard.
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Caring for partner with adult children
I am the caregiver for my longtime partner who is in early/moderate stages. His four adult children live at a distance and have limited involvement and contacts with him. A son is his financial POA (minimal needs for assistance so far) and another son looks after a disabled sister, which is appreciated. They do not ever…
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Looking the other way- Purchases ad nauseum and Hoarding.
Good evening folks. My DH is a chronic buyer of almost all things. We married late and this year makes # 13. He is early 70's and I am mid 70's. It took me a while to see and come to grips with his hoarding nature. I feel so overwhelmed by it all at times. When he has a sort of fit about "what is all this!" as he may point…
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Changes
Some things have been changing with my 79-year-old DH… Found out last week that he no longer can be relied on to get back in the vehicle so no more shopping with me. He doesn't yet qualify for hospice care. He is too healthy. Occasionally, I have to feed him. He is completely incontinent. I decided that I need some help. A…
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Vascular Dementia
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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Guilt - since passing
Hello - I've spent a lot of time on this site for years once both my parents were going down this path of dementia. So much help and information on the board "caring for a parent" My mom passed in November of 2025 and my Dad in March of 2026. They weren't the parents I knew. My Dad's journey was different than my moms. I…
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My wife will get her official diagnosis of Alzheimer's moderate and I am terrified
Hi, Like I guess everyone here, I'm walking through a threshold where I don't know the path, the landscape, or what's ahead. What I DO know is that I love my wife. and we. will walk this path together, as we have always done in tough situations over these last 32 years. The doctor's office called today to say the last of…
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Feels Like A Different Stage
Hi Everyone, When I found this group, I knew it would be supportive. Just reading all of your responses has given me a little peace of mind. My mom is 93 and two years ago was diagnosed with possible early dementia after leaving her home at 11PM and walking to the hairdresser's. Nothing like this has ever happened again,…
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Mom Refusing Care - Advice?
Hi - I’m new to all this and dealing with my Mom who has had a stroke and then diagnosed with dementia. She doesn’t live with me and as she is recovering from a recent fall - her overall health and conductive health has declined. She is now refusing to open the door for caregivers coming to help with her rehab from the…
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Where Do I Start and Where Do I End
Hello all I am 72 year old male and retired at age 66 after serving in the US Navy, working for Siemens Automated Process Control Systems as an Engineer for about 11 years,, and lastly as an Engineer for the Department of the Navy for 33 years traveling all over the world. In 1988 I got the Ebstein Barr Virus and one year…
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Adult daycare
does anyone know of an adult daycare in Burlington Nj?
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Advice on Handling Drinking and Dementia
I have been trying to eliminate whiskey from the diet of my HWD, but it just seems to cause problems between he and I. I don’t mind him drinking beer or wine, but he has gone overboard regularly in the past when he starts drinking whiskey. He only drinks in the evening. We have poured 4 large bottles of whiskey down the…
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I'm new to this, so I don't know what I don't know
Hi Everyone, My name is Elizabeth, and I'm new to this journey. My mom was diagnosed with early-stage dementia in May 2025, moved in with me and my family in August 2025, and her neurologist confirmed Alzheimer's in February 2026. She is still highly functional and stays active with Silver Sneakers (me joining the classes…
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Venting
My DH has early onset Alzheimer's. He is only 57. He is a wonderful man but it's getting more difficult to discuss anything with him and I'm having a hard time with dealing with it. Anything I suggest, he shoots down. I wanted to check the gutters due to water pooling in front of the garage and he just made little…
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Navigating mom's move to MC from six hours away
Hello, I'm really glad I found this resource and hope I can get some support from online. Brief history: I live about 6 hours from my family. About 10 years ago my mom had a TIA and was fine until about March last year, when she fell and hit her head--either another stroke or balance problems; no idea. My dad covered for…
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No more eating out
I am just venting- my DH is in mid to late stage Alzheimer’s disease. We have always enjoyed eating out with family and friends and this was a great opportunity for social connections until past months. DH has become a messy eater and no longer appropriate to take him out- plus he sits kinda hunched over with head down and…
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Time to whine!
Had a terrible screaming match with my former partner. Diagnosed with Mci 5 years ago. His treatment is with the VA. I feel he is beyond mci. He no longer lives with me. He is in is own condo. Dresses himself, feeds himself, drives his car, bowls and golfs. Finances are out of control. Not paid or paid twice. We broke up…
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Has anyone here thought about divorce?
I don't know if I should post this or not…I'm sure it's not going to be a popular one! My husband has alzheimer's dementia. He has never been kind, caring or sweet and has been verbally abusive our entire marriage…56 years. We have no children, or heirs…he is estranged from his family, except for a brother, who has headed…
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6/16/2026
It’s June 16 2026. Why do I mention this date? Pamella (my DW who is in stage 6 needing assistance in showering, dressing, toileting and medication), has had a few tough days and I have too. She has been agitated or crying most of the days and I am not sure how I can take care of her agitation or crying except to give her…
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This disease has made it POSSIBLE to....
There were so many great responses to the question about what the disease has made it impossible to do, I wonder how many important growth and learning opportunities we have experienced. For example: …become more accepting of things we can't change. …Reexamine our faith and spirituality ….learn things about family…
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Odd weekend/venting
This weekend was nuts in regards to caregiving for my FIL. We were late getting there Friday night due to an accident with one of my husbands employees, it took forever to get him settled down enough to go to sleep that night. I am wondering if this is the lull before the storm, even asked my SIL if she thought maybe he…
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Bible Verse to Lift You Up 5/15/26
GOOD FRUIT Galatians 5:22-23 New Living Translation 22 But the Holy Spirit produces this kind of fruit in our lives: love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness, and self-control. There is no law against these things! When I was a caregiver, I wasn’t perfect but the Holy Spirit’s fruit…
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Dad recently diagnosed
Hello all. I’m so grateful for these groups. I’m just beginning my Dads journey and I’m alone and need guidance please !!! I am a paramedic for 35 years and have a lot of medical experience but I have ZERO experience with this disease. From what I’m learning this disease follows no normal patterns. I feel like a rookie…