-
Mother won't stop walking
Hi, a week ago my mother began walking non stop. She sits or gets in bed and is up in a minute. One day she walked for 22 hours straight, no sleep. She is 101! I am exhausted. Has anyone experienced this and any ideas on what to do? p.s. the drs. prescribed Haldol, Lorazepam, Seroquel, Doxepin and nothing worked
-
Reality
Just wanted to share my reality. My DH is a very physically fit 72 year old who was diagnosed with AD 3.5 years ago. One year ago today, August 23, 2024, he looked at me and said "who are you and where is my wife" Known as Capgras Syndrome, he knows most people, especially old friends, thinks I look like something like his…
-
Sometimes you just have to laugh
So, I have a port wine birthmark on my face and I didn’t feel like putting on makeup to cover but I wanted to go get fresh beans and corn for dinner. DH says “I don’t know what you’re worried about, no one is going to pay attention to an old worn out lady like you” Then proceeded to say “you’re really acting crazy and not…
-
Anger Issues
My sister was diagnosed with dementia in April of 2024. She has recently become very angry with her daughter and myself. It seems that whatever we do it is not right. She doesn’t give us a chance to explain when she misunderstands what the conversation is about. She continues to talk over you and says we don’t hear or…
-
Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
-
Promising News for New Anti-Amyloid Antibody Treatment
Sharing because I wish this was around when my mom was diagnosed with Alzheimer's... There's a new drug that seems like it has a good chance of becoming a game-changer for Alzheimer's, called Trontinemab. It was developed by Roche Alzforum.org posted an article today about this new antibody, the article summarizes the…
-
Lost Keys
Where does everyone store their extra keys? I’m trying to figure out a place where my husband can’t access it. My husband lost a key to our back room. In looking for the lost key he went through the box where we keep our spare keys. He didn’t know what the keys were for, even though they were marked, so he threw most of…
-
How to stop concerning behavior
How do you stop your LO from doing inappropriate things? Two examples… When we walk in the neighborhood, DH sometimes wants to walk up people’s driveways so he can look at the water behind their house. I can’t think of anything to stop him other than saying that’s private property, then he gets angry at me and cusses me…
-
Decline in verbal ability?
My Dad is 89 and in stage 5/6 of mixed Alz/vascular dementia. He lives in a MC facility and has been on hospice for almost three months. He seems relatively stable except for mostly one thing: his verbal abilities are declining quite a bit. He has gone from mostly full sentences with some word finding difficulties where we…
-
How much do they know
Hi I’m a regular contributor to the spouse caregiving group, but have a question that maybe some that has EOAD can answer for me. My DW was diagnosed at 53 with EOAD and is now 56 and solidly in stage 5 with signs of entering stage 6. She sits and cries a lot during the day saying that she doesn’t want to be this way and…
-
Journal
I have never journal before. I thought I would start. I am thinking it will give me a way to get my thoughts out. Does anyone else do this?
-
Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
-
Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
-
New Diagnosis Support
Hello, My husband was diagnosed with MCI two years ago and within the last year we have had diagnostic testing for diagnosis of Ealry Alzheimers. He is doing well and on medications, but my question is about sharing diagnosis information with family. I have kept this private for the first year and then finally shared with…
-
GYN Appointment
My 69 y/o wife is in stage 5 Alzheimer's. She has her annual GYN appointment coming up next month. She has declined significantly since last year and I have a couple of concerns. 1) Her personal hygiene has deteriorated and she resists my attempts to help and 2) She might not understand the purpose of the exam and become…
-
Stage 6 help
hello Having a bad day today. Everyday is a roller coaster. My 56yo DH has FTD, and within the past week I have now had to put him on Anxiety meds. He is obsessed with dying and now I can no longer leave him alone because he thinks he will die without me here. I have looked into MC, but the problem is, he’s so aware of…
-
Medicaid or home health? Rapid decline in mom
My mom recently was diagnosed 3 weeks with Alzheimer’s and vascular dementia and is rapidly getting worse. Is this a normal part of this process? Also, I’m trying to research home health care because she is forgetting to take her meds. I’m getting different answers through Medicare for her coverage. Any suggestions? What…
-
Dream last night….
I haven’t dreamt since 2023 when I was diagnosed with aggressive cancer and had no choice but to place my husband Lonny in Memory Care so I could get treatment. He passed last August 12. Last night I dreamt that I was on a trip and was desperately trying to get back to him. I couldn’t find my luggage or find my way back to…
-
Taking Away The Credit Card
My father was recently diagnosed with Alz. He understands the situation. Always had a very argumentative relationship with my mother and there are some trust issues. Now I received this from my mom: "A few days ago, your father was listening to a medical sales pitch on the internet, he was convinced that it was a product…
-
Long time reader and now DH officially diagnosed with MCI
Not very computer savy and hope this is posted in the right place. Thank you for all the great information and ideas and expect to be a poster from now on. Am in Nevada and DH and I are elder citizens in late 70's, early 80's,
-
Need Advice
My mom has dementia and its been hard lately because I can't fix it. Like everyone else no one wants to see their loved one going through anything like this. How do you manage with everything you want to do anything for them but in reality, you can't. It can be overwhelming, stressful and of course depressing because I…
-
From Maybe to Reality 4
Family had a big birthday party for DH (ALZ). I was afraid that it would be too much for him but he had the time of his life and at age 90, he danced every dance. The only think that I noticed was when 2 of the grandsons came over to the house before the party and spent time alone with him. He was telling some of his life…
-
Trusting the "Experts"
This is my first time posting on this website. I am almost 60 years old and my 90 year old mother was recently diagnosed with dementia. She and my father live in an RCAC 2 hours away from where my sister and I live. In the past few months my mom's memory has declined and has required more care. She and my dad have been…
-
Father keeps asking where my mother is...
I'm sure this has been addressed many times previously, but I just signed up today. So I'll ask. I moved my 85-year-old parents into a personal care facility 4 months ago. My mother needed the extra care, but my father was fine even though he was in the throes of dementia. My mother passed away after 3 weeks in the…
-
PACE and LIFE in NJ, is this my only hope?
As I try to learn "what can be" for my elderly Mom who is caring for my Dad with vascular dementia….I feel I am loosing precious time. Time is focused on the worst instead of connecting with my Father. Should anything happen to my Mom, I need to have an emergency plan in place. My parents do not have a plan. Has anyone…
-
Doing enough?
My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel…
-
Arguing
This was on my facebook and I thought it was so relevant for us dealing with dementia I thought I would share. Relevant for both the pwd and difficult family. Helen Mirren once said: Before you argue with someone, ask yourself, is that person even mentally mature enough to grasp the concept of a different perspective.…
-
Working?
I’m in the stage in which I recognize my own diminished cognitive skills, but don’t have a diagnosis yet. My job performance is suffering, which is very stressful. How did you navigate this phase? Which came first, your diagnosis or problems at work? Did you resign, or use long term disability? Our family relies on my…
-
Dealing with the pain from LO tell me to get out.
My mom and I have always been very close we've either lived together or next door to each for most of my life. She has been my rock and me hers my entire life. She got really sick with covid then rehab, then sick again with stomach issues in hospital for almost 3 weeks then back to rehab took much longer to get her…
-
Flood in bathroom
Last night he left sink on and the sink was already clogged, so water went everywhere and damaged downstairs unit and we are liable for the damage I just cannot live like this and don't care about him anymore But I don't want him to engage with others because he does not make sense when he talks He talks in riddles but I…