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"I'm leaving to go home"
I am new to this forum. In September 2024, We took in my MIL who has Alzheimer's, stage 5. All in all things are going well. She always is trying to go pack up her belongings and get ready to go "Home". We do tell her that she lives with us now, she's safe and redirect her to something else, walk, go out for a drive etc.…
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"Girlfriend" in Memory Care
DH has been in MC a little over 2 weeks, he just stopped packing up to go home every day, and seemed to be acclimating. Now, he is attached to a woman in MC! I know it happens often, and is supposedly innocent, but I have found them in his room. It is not so innocent. His wedding ring is missing, today, when I went to…
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I moved DW to memory care (part 1)
This is my (very long) saga of moving DW to memory care, and how we reached that point. I hope you will find it interesting, if not useful. I used to participate in this forum until a few months ago. Then DW's condition made it impossible. She needed my attention, demanded my attention. I remember reading other people's…
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Advice!!
I am new to the group and need advice. My Mom has late stages Alzheimer’s and has been able to be alone for part of the day while I work. This week every day she has been scared, anxious and leaves the house and then cannot figure out how to get back. I have a caregiver but she only comes from 12 to 1 as that is all I can…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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Managing Incontinence
I’m new here. My DH was diagnosed about 2 years ago with FTD and possible ALZ. We are now dealing with incontinence. I am ok with pull-ups but he has a bad habit of missing the toilet and peeing on the bathroom marble floor. I try to get him to go to the bathroom on a schedule but he just won’t cooperate. I’m not sure he…
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Personal Care Tips
Hi all - my mother is in the later stages of dementia and has all but stopped her personal hygiene. I obviously try to get her into the shower. She resists say she has already showered earlier, or that she will shower later that evening, or a lot of other excuses. When in the shower, I am not sure she is doing a very good…
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Covid vaccines/boosters
Has anyone had parents that took the Covid 19 vaccines that contained mRNA be diagnosed with Alzheimers or Dementia? Both my parents did and we have no previous history of Alzheimers on either sides of the family.
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Anyone have a solution to avoid loosing wallet or money?
This is the third time this week hubby has misplaced money but this time he lost his wallet. He is still capable of going to store himself and I don't want to take that away from him yet. Any ideas on how to avoid this?
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Depakote or Haldol for agitation and combativeness?
I'm reaching out once again to this group of fellow travelers down this road none of us has chosen. My DH is 77 and in stage 6 of his dementia - in Memory Care since last July. He is still quite strong and has become very combative when showering is attempted. Just wondering if anyone has had experience with either or both…
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New to this
Hello, My mother was diagnosed with Louie Body Dimentia 3 months ago and progressed quite quickly. She is in late stage 6. She is so weak that she is bed bound. 2 days ago she was put on hospice and we thought we only had days, but today she was having 1-3 word conversations and ate 2 corn muffins and half a sandwich. I…
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How to talk to Parent about moving to Independent Living when they don't want to leave their home
Any advice on how to talk to parent with mild dementia who does not want to move out of their house into a care facility? For reference, my mom got diagnosed last Fall and is now having issues with remembering to take her medicine and eat, also can't keep track of days and is forgetting how to use her oven. My sister and I…
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I CANT DO IT!!!
I'm 39yo female caring for the kindest, all giving to anyone in need 45yo EOA bf. I hate this f**cing disease so bad. Tomorrow i have an assessment with the facility i plan to put my loved one in. The fast track to get him into MC is via hospice. We had that intake on friday. My anxiety is at a high right now and I'm…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Mild Cognitive Impairment
This is my first post. In July 2023 I noted to family that my 81 year-old DW was having significant memory problems. In January 2024 she was diagnosed with Mild Cognitive Impairment (MCI). I am particularly interested in others who have a LO diagnosed with MCI and for how many years or did it eventually progress to a more…
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Bible Verse for Caregivers 4/13/2025
DEAR CAREGIVER, DON’T WORRY Matthew 6:34 New Living Translation * JESUS’ WORDS “So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s trouble is enough for today.” JESUS IS OUR LORD AND SAVOR. When He says, “Don’t worry,” He knows whatever trouble, whatever danger, He can take care of us and those…
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Behavior changes
looking for tips on how to redirect aggressive behavior, agitation and combativeness in my mother with moderate/severe Alzheimer’s. This behavior tends to flare in late afternoon/early evening.
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A Reluctant Caregiver for Both My Parents for Nine Years
Hello friends here, Yes, I had help when I took care of both my elderly invalid parents, but it still was difficult. For those of you who don't know me, my mother progressed into severe dementia and could no longer do anything for herself. My stepdad, George, was legally blind, and eventually progressed into heart failure…
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New Treatment?
Hello, I recently read about studies using Benfotiamine to treat early AD and MCI. It seems to work. According to the NIH "Results: Participants were treated with benfotiamine (34) or placebo (36). Benfotiamine treatment was safe. The increase in ADAS-Cog was 43% lower in the benfotiamine group than in the placebo group,…
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New/old member back again
Quite a few years ago I was a member of this forum to get support helping care for an elderly family member. Unfortunately I'm back again because my DH has now been diagnosed with Neurocognitive Disorder. His issues are caused by encephalopathy caused by an autoimmune disease he's had for decades and we have been told it…
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Are home health care costs tax deductible?
I realize this is a loaded question that only a tax accountant in my home state (or) can answer but I wanted to do some research before engaging him. I have recently brought my wife back from a memory care facility and have engaged a home health care service to provide night coverage to address wandering. This is expensive…
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New Here - Looking for help for brother
Hello, I've been lurking and reading discussions for a few months now. Our family became concerned last fall. The ball got rolling after I scheduled the PCP appointment my brother had been procrastinating. That was in Feb. A few weeks later we got in to see the neurologist. He scored 22 out of 30 on the assessment that was…
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Telling people
A couple years ago, had two cornea transplants due to Keratoconus and Fuchs Dystrophy. I have some vision, but it's abnormal. The vision loss was accompanied by hallucinations and a Cognitive decline. I could no longer read or listen to stories. I can listen to shows I watched pre-transplant. I can only read picture books…
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The guilt trip
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How to Persuade Loved One to accept Day Care or Home Help?
My family has just intervened, to help me accept that DH should no longer be home alone. I’ve tried to persuade him that we need more household help, but apart from periodic cleaners he doesn’t want anyone else in the home. He is still strong and able bodied, but making so many poor decisions. I do think he would benefit…
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On the hard days…
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Dental problems
My DH who is in stage 6/7 has been having problems with his teeth for at least a year. He has several front teeth that have decay and lost a crown several months ago that the dentist was not able to replace because of decay underneath it. He said he would likely need about 7 teeth pulled. The dentist said he was unlikely…
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How do you talk to your DH about worsening symptoms you are seeing?
My DH (66) was diagnosed with the beginning stages of Alzheimers 18 or so months ago. A bit of back story - he is proud, stubborn and still trying to come to terms with what is happening to him. His mother has Alzheimers and my father had Alzheimers as well before passing away. He knows what is coming and there are days…
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Hallucinations and Delusional Thoughts
Our father has been suffering from hallucinations and delusional thoughts for several years. Now, it has reached its peak, with him talking to someone he claims is "Alice." He has been having full conversations with her, waking up with remarks like, "Wow! That's weird," "Hello?!?, who's there?," and "Wow, wow, wow." He…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.