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Dementia Friendsgiving
This looks like a good event (via Michael Ellenbogen): Save the Date for Dementia Friendsgiving! Save November 18, 11:00 AM–3:00 PM ET for Dementia Friendly America’s inaugural Dementia Friendsgiving! We’re giving thanks for people and organizations from every corner of the dementia-friendly movement. Sign up to find out…
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Selling the House DH doesn't understand
I have power of attorney Can I sell the house without him and use my power of attorney to do so. Also how can I get him into a memory home if he won't go. His outbursts and violence are getting out of my control al
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Feeling Low
I have been feeling so low today. Usually I’m on top of things, we do all sorts of wonderful things to stop the sads rushing in but today I realised how silent I have become. DH has VD and aphasia, word salad is now the norm day and night, sounds and hand signals too. If I am in the garden and he wants me he lets out a…
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Eliquis questions
My mom,who recently fell, is in physical therapy and occupational rehab hospital right now. She is scheduled to probably be released in a few weeks, and she may or may not be walking on her own by then. I had reported the fall to her heart doctor because she also is on again off again in A-fib and has been for a very long…
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When is it time?
my DH is 56 years old and has FTD and is now losing his memory and he has no real speech or comprehension. I’ve already spoken with the family ahead of time that I know I am not special enough to be able handle things when we get to the later stages. My question is, how did everyone else decide when it was time for MC? How…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Ultimate Answer
We discuss and share our lives and living with a LO with dementia But the ultimate answer is our relationship with God and to pray and give all your troubles to Him Only then will we see his answers and not ours
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Clothing and hygiene matters.
My DW of 48 years no longer cares about how she dresses and more often than not believes she has showered, brushed her teeth and is ready for the day. If I mention that her blouse is inside out or pants are on backward she gets upset at me and says "no-one but you will notice". When I mention showering or teeth brushing…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Surrendering leased car and alternatives to driving
We will be turning my mom's leased car in this Friday. My mom, who was diagnosed with Alzheimer's in 2021, seems to be an OK driver (no accidents yet) but we recently moved her from NH to MA to an independent living facility in my neighborhood. She already let her NH license lapse and would never be able to handle the…
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Establishing level of capacity of judgement
Anyone have experience evaluating capacity of judgment? I am being referred to Forensic Psychiatry at a cost of $5,000 to $10,000. Gotta be a better way.
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How to find a doctor to do capacity assessment for DPOA
We've been dealing with Mom's dementia for a while now, and we really need to activate her DPOA. It requires us to get an assessment from two "licensed physicians." Problem: I called Mom's doctor, and they had no clue. The office people don't think the doctor has ever done that. I don't know what kind of a process I need…
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…
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Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance
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Preparing LO For Death of a Friend
Hello everybody! I hope everyone is enjoying their summers so far. I am writing to try and gain some insight on how to handle this situation, for me and my mom. My mom is 61 and in the moderate stage of her Alzheimer’s. We live in an apartment building and have been very close friends with the woman that lives above us for…
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LO Has Been Diagnosed 15 years
Has anyone dealt with slow progression AD? My MIL was initially diagnosed in 2010. She was in early stage AD. 15 years later, she is at Stage 4. Her husband has been a faithful caregiver. No one is complaining. We have had the opportunity to share many more holidays and special events than we ever thought we would. Has…
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New here, adding introduction
Hello all! Guess it's my turn to introduce myself here. I'm Catherine, eldest daughter of a mother with Alzheimer's (among other issues). I've "known" for years something was up with her, but living 400 miles away made it hard to put my finger on what. After your standard "fall & break a hip" scenario, she's now in an ALF,…
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So new to this
My mom was newly diagnosed . I have 1 million questions - but can I start with this ? Has anyone had any luck with getting home care ( housework ) covered ? My mom has Medicare and supplemental . I know it is a long shot - Thanks !
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How to deal with violence
I posted this before but is getting worse and he thinks he is okay. Gets Up early and wanders around the house and says no to everything and lashes out when I tell him to go back to bed. I am not in love with him, just feel an obligation. Can I just leave him and never look back
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Memory Care transition
Well it has been 2.5 weeks since my DH has been in memory care. Prior to this, he spent 3.5 weeks in the hospital. The first couple of days he was there, I literally slept like a log. My bed didn't even look like i had moved a muscle. But as the days wear on I'm finding my big old house so quiet. It's sad. The facility is…
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How does Alzheimer's ASSN help
And how do I actually contact them I live in California
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Does your state medicaid cover MCF?
Spoke with CELA yesterday and found out medicare in CA can cover SNF for patients with dementia who need it but does not cover a MCF. We would have a share of cost but at least we wouldn't have to pay the entire amount ourselves. If I'm not able to keep DH with VD home with help until the end, I'm hoping his poor physical…
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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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The move from Al to a SNF
We moved mom yesterday. We told her about a week before the move (my brother insisted). When we got there she had packed up everything in the room. My brother insisted we bring whatever she wants, that there is room for. When I asked mom what boxes go she points to a pile. I bring them to my car and they have sewing…
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I haven't posted in quite a while
Every time I think about it, something else happens and I put it off. It's been eighteen months since my DH entered MC and I wish I could say I have adjusted to being alone. My life is full of activities but underneath is the sadness that never goes away. In the evenings, when I am alone, it hits full force and the tears…
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Dementia worse in nursing home
Has anyone had their parent get worse immediately if placed in nursing home? My dad was placed in nursing home a couple of months ago and his dementia is definitely worse. He can't remember the place he just lived in for the past 25 years. Its so sad.
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Fear of being alone
my mother has maybe stage 6 dementia and she is terrified of being alone, to the point where I can’t go into the bathroom without her. I don’t mind bringing her with me, or keeping her in eyesight at all times (which she needs for safety reasons anyway) but the terror and anxiety she is feeling is gut wrenching. I hold her…
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Advice on letting go of the guilt and next steps...
My mom is a recent Alzheimer's diagnosis (in the last 6 months) but has been on a steady, slow decilne since 2021. Since her actual diagnosis, things are rapidly declining and I have so much guilt that I am not there for her more. She lives with my Dad/her husband still but is mostly alone during the day while he is at…
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Correction
How best to correct someone with memory loss ?