-
Vacation dilemma
I need advice honest advice that I know I can get from this amazing community. My dream since my children have grown married and have children of their own is to vacation all together. All 16 of us together in our vacation place in NC. Well finally it was arranged! Children took same vacation week, they rented a house near…
-
Getting support from family members
My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.
-
DH going through a rough time with delusions
My DH with Alzheimer’s has been very agitated and angry these past weeks about his father. He at first remembered that his father had passed away (24 years ago) but then seemed to repeatedly experience that realization and was obviously distraught and traumatized, and then believed he was still alive and his dad’s widow…
-
Dementia & General anesthesia
My 78 y/o Dad had general anesthesia for the very first time in his life last December 2025. I noticed his cognition was worse post surgery. . I had requested a PETSCAN AFTER HIS SURGERY but we wereDENIED). In Feb/March 26 he develops an earache that has never gone away. 6 months worth of different tests/treatments from…
-
Song Lyrics
I stumbled upon this song just now as my body once again refuses to sleep. It expresses my heart. I am sure I am not alone when I say, "I Am Not Okay." I hate this disease! I hate what it is doing to my darling mommy, diminishing her bit by bit by bit. I hate also that it leaves me begging/praying/wishing for some family…
-
Tell them or not
My partner has been diagnosed recently. When he forgets something or says a wrong thing, should I tell him or let it go?
-
4-day Respite
Hi Friends, My dear wife is home from a 4-day respite stay. Her hospice team recommended that I take the 5-day respite that Medicare provides for caregivers of dementia patients currently on hospice. If you have not already checked on hospice services for your loved one, especially if they are into Stage 5 symptoms or…
-
Mom needs more help than assisted living memory care
My mom was living in an assisted living memory care facility up until she broke her hip and had surgery. The hospital she was at lied and told the rehab facility that my mom has ‘a little confusion’, so the rehab facility accepted her to be transferred there. The hospital did not tell the rehab facility the severity of her…
-
DH says he feels worthless
It breaks my heart when he told me he feels worthless because he can’t do the things he used to do. I reaffirmed the things he’s doing right but that’s not enough. He still says he feels useless and good for nothing.🥲
-
Is this Alzheimer's or Personality?
My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…
-
Early onset support
Hello, I'm Scott and riding on this journey with you. I received official diagnosis this past February 2026 then jumped on the merry-go-round of initiating treatment. After many pitfalls and several months trying to gain access, I ultimately joined a clinical trial for a new drug. Yes, the trial comes with its own…
-
Parents and husband
My mother lives with me and has early stage Alzheimer's. My dad lives close by on his own and is getting testing for dementia. My mom has been really depressed for the last few months. It's hard on everyone but my husband does not understand how to talk with and have patience for my mom. I am not sure what to do. Does…
-
Acts like a bratty child
My DH with EOA now for 4 years acts like such a big baby. He sulks around, slams draws and stomps around when the day doesn't go his way. I went to visit my grandkid and told him I would be gone until 2pm. When I left, he was fine with that. When I walked into the house at 2pm he was MAD. He seems to not want me to have a…
-
National Do Not Call Registry
My DW has been receiving an ever increasing amount of spam calls on her cell phone lately. She is currently stage 4 and I while I don't want to discourage her from using the phone, I want to make sure that she is safe. While looking for solutions, I came across the National Do Not Call Registry (donotcall.gov) Not sure if…
-
Refuses to get medical help
My LW, 79, diagnosed w/early onset Alz last year, was discharged from the hospital last week. She was admitted for diarrhea/vomiting, fever and disorientation. Found out a lot of what she didn't have, nothing on the cause of the fever and digestive issues. She was sent home with antibiotics. She finished them 5 days ago.…
-
Excessive need to grocery shop??
My mom has EO and she insists that we need to go grocery shopping every single day. Not in the sense that she is aware it is daily and believes it to be a daily task, but that she asks constantly, for hours at a time. Daily. It doesn't matter how much food we have she just wants to go. She will open the fridge and say "we…
-
Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
-
Settling into the emotional reality of YOA
I got DW (61) registered with UCLA's Easton Center and waiting on a recommended Doc appt. HUGE relief! Sitting up on a recent lengthy insomnia (anxiety induced) bout, she began sharing her fears with me about where this goes, how it goes, then tearfully, please don't leave me (My answer then and always: "Never! This is…
-
How to decide its time for memory care?
My LO has dementia. My mother is the primary caregiver but we live close. My LO is still at home with no outside help. LO is becoming increasingly paranoid about who his wife is. He is antipsychotics. How do you decide ifits time to have live in help or memory care of just a Rxadjustment
-
Hiring help
This is my first post. I have gotten a lot of good information from reading other posts on this topic, but have not found the answer to this question. My DW has had several falls, and I must hire a CNA to help out, and perhaps give me respite time, time to do errands, research care living alternatives, etc. I do not feel I…
-
What to do… Help!
Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…
-
Humana
Hi fam! What a hell of a ride this caregiving journey has been. Having had my DM move in with me 2.5 months ago has been a great eye-opener. Mom has been showtiming like a pro and boy was I fooled. Anyhoo, I wanted to share what I just found out. My mom's PCP has a case manager. She has called me a few times since mom's…
-
she's at peace.
Hi: Linda (my wife) passed tonight. I had seen her this morning and this afternoon I got the call.
-
Newly Diagnosed
My husband was recently diagnosed with mixed dementia with alzheimer's (Frontemporal and Vascular). It has been hard on me to see this but at one moment he understands and then at another moment he tells me that it is all in my head, and he gets combative. I would appreciate any advice.
-
Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
-
How to help MIL who has moved into memory but doesn't want to be there
First time posting . . . interested in advice on how to handle a situation with my MIL who is 85 and has early to mid-stage dementia. She moved into personal care/assisted living about 2 months ago and never quite adjusted to that before she started to wonder (about 2 weeks ago) into dangerous situations which caused the…
-
Decision to Move Dad into Nursing Home?
I'm brand new here and could really use some support from people who have been through something similar. I'm an only child, and my 73-year-old dad has several serious medical conditions, including end-stage renal failure and a previous stroke that left him with speech aphasia. My mom died five years ago, so I'm the only…
-
Newly diagnosed and looking for suggestions navigating doctors and meds
My husband was 58 and just diagnosed July 1 with Alzheimer's. We have been very frustrated with the care and support from doctors. He took a test at he PCP's office and did not do well so they referred him to the first neurologist available, who does not seem to have a lot of clinical experience. He ordered MRI, Flexi…
-
Really Sad Trying to Remember Who He Was
My DH seems to be declining quickly - he is very bitter and angry most of the time now, and it's clear that his meds are not working anymore. Going to see a new geri-psych in a few weeks to discuss making some changes. In the meantime, I hardly recognize the man that I married over 40 years ago. I'm so afraid that I will…
-
Looking for resources
I am grateful for finding this site and group. My 92 year old mother has dementia, she is living independently in a lovely retirement community. She is no longer driving and I help her with errands and I take her to church every week. I am hoping to get recommendations for books, podcasts, useful sites... etc on how the…