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Ways to be in touch in later stages
Hi all, new to these forums and am my mother's primary (long-distance) caregiver since she moved into a very good MC facility in 2023. My mother is in a good way, quite positive and at peace thankfully, if alot of tiredness and some moments of frustration. As I am based in Europe and she's in the Washington, DC area, I…
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Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
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Other expiriences
My DH is blaming his Alzheimer’s on his CPAP. He found a water bottle he uses and he thinks this is a miracle cure. He talks about from the time he gets up until he goes to bed. It gets tiring most days. He also thinks the doctors know this but they just want more patients and people who use CPAPs are all going to get…
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personal hygiene
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SAD/Angry/SAD/Guilt/SAD
I have read this situation here but have never experienced it myself until recently: My DH is stage 5 VD and some days cannot dress himself. He has a son, daughter and stepdaughter from a previous marriage. The stepdaughter has caused a big riff in the family. She seems to have turned the son and daughter somewhat against…
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Questions for the neurologist & Can we keep it a secret for now?
Hi everyone, We have an upcoming appointment with a neurologist — it will be our first since we received confirmation that my mom has AD, based on a recent PET CT Amyloid scan. I’d appreciate advice on what questions to ask during the visit. I expect we’ll discuss medications, side effects, and general care planning. One…
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A Fall
Falling has become more of a thing for my poor DW. This last one was my fault…trying to get pants pulled up and down she went. Now at the emergency room as her wrist looked a mess. Damnit.
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Denial
My dh was diagnosed last year. He is in denial that he has Alzheimer’s or I should say he thinks he is getting better. If you try to talk to him about it he just gets angry and I am a b. Not a nice word. Has anyone had this problem.
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Memory care-Taking all clothes out of drawers
My mother is in interim memory care, and is constantly taking the dirty clothes out of the hamper before the staff can get to them and unpacks ALL her drawers and closet and folds it on her bed. I have tried giving her other things to organize (costume jewlery/photos) but she keeps coming back to the clothing. 1) Has…
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Is a formal diagnosis needed?
How important is a formal diagnosis? My best guess is she's stage 4 or 5 from what I read. but does ALZ vs dementia, vs old age really matter? she is 82, still living on her own, though that needs to change very soon. she no longer drives, and the most recent development is her losing track of her phone, not knowing how to…
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new to group but not to dementia
Hi All, I am not sure what I can do to help my husband when he yells at me so much. I can't write DH because he has been verbally abusive for a very long time. He also has GAD,OCD and depression. That is along with dementia. His mother had dementia as well so he watched what happened to her. He has been on Aricept for…
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Input requested for oxygen use on very late stage dementia
My DW has been in Stage 7f for about a year. She is minimally conscious and I am told that her cognition at this point consists mainly of core brain stem functions, her only obvious action is a primitive feeding response. She makes no other movements or responses to any outside activity. She has been starting to exhibit…
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Big bathtime mistake and confusion with geting dressed
DH hadn't showered in two weeks and I was trying a different approach on Saturday. Rather than telling him he needed to take a shower which is always met with resistance, I asked him if he would rather take a bath or a shower. Naturally, he chose a bath. It almost turned out to be a disaster! He fell to a sitting position…
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Exhausted and Bewildered
It is 522 AM and I have been up since 1AM trying to deal with my DW. She woke up claiming some men were raping her. I tried to calm her and tell her I was here with her. She when accused me of watching this all happen and that I did mothing. I tried denying all this , tried to assure her this was not happening and that I…
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The pain of living with ALZ
Tonight was the hardest night so far. Which makes it the hardest day. Of the hardest week. Of the hardest month. Of the hardest year. So far. He forgot me for the first time. He promised he wouldn't, but I knew he couldn't possibly keep that promise. It just came so much faster than I was prepared for.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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Update on DW
I haven't been around in a while but thought I'd post and update on how my DW is doing. She has been in MC and hospice for over a year now and on comfort meds. MC has been both good and bad, usually short staffed. They take reasonably good care of her. My DW has been bed or gerri chair bound for a year, stage 7, and has…
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When Leqembi causes ARIA
I'm not out to discourage anyone getting treatment. I'd like to add my experience just to show there is another side of Leqembi. I am 69 years old, diagnosed about 18 months ago. I don't have APOE4 so I felt that was a a risk reduction as well. I was very excited to start my infusions. My first treatment went great. No…
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Just diagnosed
My name is Steve. I was just diagnosed with early onset dementia. I am 61 and have non idea what i will be in for. Any suggestions or info would be most welcome.
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Take your own care seriously…
I met a woman yesterday that was pondering placement of her husband in MC. She was recently diagnosed with breast cancer and is now undergoing chemo - surgeries including a hysterectomy will be following. She told me that for 8 years while she took care of her husband, she neglected her own health, not getting mammograms…
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Angry
My DH has been diagnosed with Vascular Dementia almost a year ago. Recently he’s become easily agitated and angered. I spoke to his neurologist about it and he denied all of it. I was hoping to change his antidepressants. She said she thought it wasn’t necessary. She thought pain might be the cause since he has chronic…
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Declined fast because of other health issues
My DH is 56 with EOA. He had memory issues for about 4 years and was diagnosed this May. And then I discovered this forum and began asking questions. I'm guessing he was about Stage 3-4 a month ago. He has changed in just one month. He is currently in the hospital for a colitis flare-up and blood clots in his legs. At this…
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Significant other confusion
My DH thinks that I have a twin. I am the only one with him but he is always asking where the other person is. Has anyone else experienced this with their significant other?
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Approved for hospice
DH has had palliative care since early this year. At the last visit 10/29/25, the nurse told me he is at 6e on the FAST scale. She called me the following day and said he now qualifies for hospice. I told her I would call her back to let her know if I want to sign him up. I know it's my decision, but I wanted to know what…
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Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
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Recent diagnosis and vision trouble
My dad was just recently diagnosed with early onset Alzheimer's at age 63. While his memory is a little spotty, the toughest thing he's been dealing with is an increasing loss of vision that they believe is being caused by some small bleeds in the occipital lobe of his brain. He is still almost completely self-sufficient,…
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Incontinence?
My 63 year old husband is in the middle stages of Alzheimers. Although he is not exactly incontinent, there is definitely an issue with bowel movements. He goes to the bathroom, however, much of the feces does not end up in the toilet. It ends up on the floor, the toilet rim, and definitely on his hands. The hands are a…
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COVID Vaccine Side Effects
Is anyone else’s LO’s dementia adversely affected by the COVID vaccine? My DH becomes even foggier than usual, falls a lot & becomes more hostile for about 2 days, then returns to baseline. Trying to avoid hospitalization this time.🤞
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Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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Queen of my Castle ?
Long Rant Sorry I’m waiting to be that “Queen of my castle, Large and in charge”. - reference to Bill’s wonderful essay a few years back! Right now I feel in charge of nothing - playing heat police once again this season as DH keeps turning thermostat up, he refuses to open drapes or blinds b/c he’s cold, he won’t stop…