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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Treating NPH
Has anyone on this forum actually know, personally, if any one had a lumbar puncture to help diagnose NPH, and if so did it relieve some symptoms, such as cognitive and walking? And how did the person feel after the lumbar puncture? I've been reading that is a relatively rare condition
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Hair cut and shave while in hospital
If my spouse is in a facility or hospital how can he get a haircut or shave or nails cut if he cannot go out or it is not safe to take him, or should I just risk it and take him to get this done Also he needs a shower He can bathe himself but has trouble with turning it on and off (I have to do this for him and then the…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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Dealing with incontinence & assisted living
My mom has had incontinence for awhile now and wearing depends. I got a call from her assisted living saying her incontinence has gotten worse. She doesn't even realize she is wet. My mom is still mobile and active. In reading up on it, looks like this is pretty common. Does anyone have any tips on how they dealt with it?…
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Ugly Stepchildren Dilemma
I know some of you have written regarding problems with stepchildren, and I am hoping for some advice. My DH is in memory care in early Stage 6, and neither of his children think he should be. His son is the worst and blames all of his dad's problems on improper medication. His daughter realizes that dad is ill, but thinks…
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Testing for type of Alzheimmer's
My wife's primary care doctor asked if I wanted my wife to be tested to see what kind of Alzheimer's/Dementia she has. I decided not to have her tested because of the stress she would endure taking the test. The way I see it, and I told the doctor this, is that doesn't really matter 1hat kind it is. There's no cure so what…
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What tests did they use to diagnose your loved on with Alzheimer's Disease?
My mother is currently in the processed of being diagnosed. The doctor is doing a few blood tests to rule out reversable causes for the cognitive difficulties but otherwise says no tests are needed besides a brief cognitive measure (MOCA) to diagnose Alzheimer's. What was your experience like? Did they do more testing or…
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Affording full-time care in California
My mother has lost a lot of functionality since receiving her Lewy Body Dementia diagnosis a year ago. She now needs some help with toileting, dressing, and has shown a reluctance to eat regularly. We are concerned that she may need full-time care and that my father can't support her anymore, but the costs of care are…
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Need some advice
Mom was diagnosed two and a half years ago. I am her DPOA. She lived in Al for about a year but her money ran out. She is in a nice nursing home and on Medicaid. Her house should have been sold, but I could only do so much. My brother fought me every step of the way. The house is full. After mom left the house I worked so…
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Sudden Decline
Hi- I just saw my mom (85) in another state. The decline is significant. Day of the week Where's my (various items)? Where is (various people)? I knew it was coming. But I'm so overwhelmed.
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Personality Disorders + Alzheimer’s Disease
Hi, I’m new to this message board and this is my first post. It’s going to be a long one. I’m feeling a bit desperate and I need some advice. My Mom is 78 and was diagnosed with Alzheimer’s a year ago. Although, I think she’s probably been sick for longer and her condition was masked by her existing mental health issues.…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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Dreams
DH with ALZ has started dreaming. In the past he has said that he was unaware of any dreams. Now, they are vivid enough for him to remember. Additionaly, he is tearing up his bed in his sleep to the point where all bedding is on the floor. I did not aske him about his dreams whichh I see now that I probably need to do. He…
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New here
Good afternoon, informative sight. Thx
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Just went to the hospital HELP
This morning when he got up he couldn't walk very well and could not stand up I called 911 to assist and they suggested to take him in for tests So here I am all tests including,CT came back normal so they will admit him sometime today or tomorrow And maybe do a lumbar puncture for further analysis per his doctor He is…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Still Need more HELP husband in the hospital
I have read the comments to my previous posts and just need reassurance that I did the right thing in letting the paramedics take him in for further evaluation. I am desperate
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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MC in Minnesota
Is anyone familiar with any of the Suite Living MC facilities in the Twin Cities?
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Grief
·onpstordSei2 f40m :M5 mtfA29m1s01mg3m5m77ittg3actA9u0i5u3at · Jim Carrey once said: Grief is not just an emotion—it’s an unraveling, a space where something once lived but is now gone. It carves through you, leaving a hollow ache where love once resided. In the beginning, it feels unbearable, like a wound that will never…
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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A Chuckle
I just ordered a mattress protector for any "spills". It asked me if I wanted to send a gift message.
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Extreme Insomnia Due to Inability to Lie Still at Night. Desperate Family seeking Advice.
Hello All, sorry for the long post but I wanted to give some background information without being too wordy. My 80 year old father is currently diagnosed with parkinsonism. He initially was diagnosed with parkinsons 12 years ago, then lewy body dementia, and now they just call it parkinsonism. Overall his symptoms were…
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So I was planning to do something productive today for once…
My plans for a productive day came to an end mid morning when hospice called. The hospice nurse regularly calls to update me on his visit. Today he told me first that my DW was being recertified, and assured me that there was no chance she will ever not be recertified based on her condition. While doing so he told me that…
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TONIGHT TUES 8-26-25 ON ABC "Emma & Bruce Willis: The Unexpected journey"
Tonight is the airing of the ABC News special, "Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special," which airs at 8:00 p.m. EDT on ABC and streams the next day on Disney+ and Hulu. The special features Emma Heming Willis discussing their family's new reality since Bruce Willis's diagnosis with…
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New here, aging parent with vascular dementia and mom not capable of caregiving, where do I start?
Hi! I have never been on here before. My dad was diagnosed with vascular dementia years ago after insisting my mom bring him in. I have a fractured relationship with my mom and she is his primary caregiver. Lately my dad seems to be declining. He is disoriented at night, getting up and spilling things, having toileting…
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Tips to stop dementia refusals try these 3 tips
Hope you can view this video. 3 phrases to say to stop refusals. Haven’t tried these. https://www.facebook.com/share/r/1G9AEJzEJN/?mibextid=wwXIfr
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The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
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Bathing
I live with my mom (88) who has AD. Getting her to bathe and wash her hair is a struggle and it ends up in a power struggle sometimes. She also won’t accept help with this. How can I support her independence but also assist her in maintaining good hygiene. I want to be respectful but she doesn’t understand and it’s getting…