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Where Do You Find Peace
I am six months in after losing my dear wife and after a brief period of foolishly thinking I was moving ahead, the overwhelming grief came back with a vengeance. Try as I might, finding any traction forward seems impossible. With so much time to think, I came to realize that beyond the grief, the sadness, the tears, the…
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Blood test results - concerned
Received my blood test results last week and they seem concerning to myself and my husband. Haven’t heard from the NP to discuss the results. I called and left a message - feeling frustrated Phospho-Tau(217), P plau217, P 0.313 pg/mL High REFERENCE VALUE Negative: ≤ 0.185 pg/mL Intermediate: 0.186-0.324 pg/mL Positive: ≥…
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How do I apply for FMLA in NY?
I’m working full time and a full time caregiver to my Mom who has the beginnings of dementia with full on sundowners. I’m an only child but I do have a family friend who comes to be with her for 3 hours during the day. Some days/nights are though and it’s taking a tool on me. Mentally, physically and emotionally, I feel…
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I feel guilty/bad daughter
My mom is 90 with symptoms just beginning (she being in denial). I try verrry hard to remember it is the illness but have difficulty sometimes. How has anybody else dealt with feelings of guilt and/or being a bad child. I want the rest of her years to be peaceful, but she is like a child and makes it difficult to reason…
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New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…
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ALZ?!? Now what??
I'm so glad I found this forum! I'm newly diagnosed and beginning this journey with a lot "what now" questions. I'm trying to process the emotional side of this while piecing together all the things that need to be done to prep me and my family for what is to come. I knew I was having trouble 2 years ago with cognative and…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Safety app that performs a daily check-in
I came across a free smartphone app called Snug Safety that helps people who live alone do a quick daily check-in to confirm they’re okay, and if they miss their check-in it notifies chosen emergency contacts so someone can check on them. [P.S. on Feb. 19… This app is a good option for caregivers. If something happens to…
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Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
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Alzheimers and PCA
My husband was dx with moderate Alzheimers and Posterior Cortical Atrophy. He will not admit there is anything going on with him. He has difficulties seeing his food, car door handles among other things. I was giving him Memantine and Donepezil, and I had to titrate him off because he was refusing to take. We are going in…
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How About This?
I’m sorry I’m technology challenged. People.com. ❤️ I like It!
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The Long Goodbye has come to an end
I have lost my wonderful, clever, beautiful wife, lover, and life partner. There was no Hallmark ending for us. Her active dying, as they call it, was the worst 3+ weeks of my life. Watching my DW die like this was excruciating. They of course assured me that it was peaceful for her, as they always tell LOs to try to make…
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My story, please read
hello. My father passed away in July 2023. We discussed before my father passed that my mom would have to come live with me. She was not to live alone. Mom had mild dementia at the time. The night my father passed. Mom came with me and stayed with me for 2.5 years. My first year with was cook or do the things she used to…
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My patient is diagnosed with Dementia
Sundown Syndrome can be very frustrating, she gets very confused as to where she is, what time of day it is but she always knows when its supper time.
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My patient is diagnosed with Dementia
Hi, I am a certified Practical Nurse who provides care for patients with Dementia/Alzhimer. My current patient is 96 years old and she has short term memory & Sundown Syndrome. She's not aggressive but stubborn at times and loves th eat snacks a lot.
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How do you handle such deep sorrow?
My DH has EOA and has been also suffering from complications of Ulcerative Colitis. He’s in the hospital. He won’t eat that much because he’s incredibly picky and can’t reason to himself that his body needs food even if every meal or protein drink isn’t perfect. He can’t walk anymore. He won’t even try. And his cognition…
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A Spark Of Joy … follow up
I did it I now have my power boat licence. Thank you all so much for your support and wonderful words of encouragement. It felt so odd just for a short time thinking about me. I felt selfish, it felt wrong I had to keep pulling myself back to the job in hand (ha ha so important driving a boat literally around in circles on…
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Can someone repair this site?
I have been logging into discussions for "those who have lost someone" for weeks now. Yesterday, I found that other conversations were also coming up on that section. Today, the same. Can one of the moderators fix this so we don't have to wade through a long list of conversations to find the topic we are looking for?…
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Doing enough?
My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel…
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Wondering what to do
We are about 8 years into this ALZ nightmare. Big changes are not starting. She has started sundowning which I try to mitigate with walks outside around 4 PM each day. This seems to help. She is refusing to shower and change clothes. She has worn the same clothes day and night for 2 weeks now. She complains about my…
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First time posting
My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment about a year and a half ago. He also exhibits signs of anosognosia. His perception of his actions are not the reality but he doesn’t see that. He’s had 2 car accidents in 2 years- totaled 2 cars. Based on his neurologist’s recommendation, he…
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Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
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Need an updated DPOA easily and inexpensively
I’m new here and my DH is living at home with probably mid-stage Alzheimer’s. I need to update his DPOA and he will be able to understand and sign, but I need convenience and affordability. Suggestions on where others have made one easy, inexpensive trip to get this updated form in place. I have so many other questions and…
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Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
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moving
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Caring for my mom/ posterior cortical atrophy
Hello,new here and was just wondering if anyone has or have a lo with posterior cortical atrophy??
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MOM IS WAKING FAMILY MEMBERS TO FIND CAT THROUGHOUT THE NIGHT … HELP !!
My mom lives in the same house as me and my family and has for the last 10 years. We have a family cat that over these years has decided, especially in the last six months to a year only have … meaning she is completely fixated and obsessed with all things cat related. All day she asks where the cat is if he’s not with…
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When a long-term friendship is impacted
I’m concerned that a dear friend of mine may be experiencing early cognitive decline. They are in their mid-60s and recently lost a spouse. For the past two years, I’ve attributed their behavioral changes—especially increased frustration and verbal outbursts—to grief and the challenge of navigating life alone. However,…
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Flameless kitchen
I saw a TV show on a flameless kitchen — where a gas rangetop was removed since it was a danger to a child who liked to fiddle with the knobs, and that forced the parent to keep an eye on it constantly. They instead relied on a multi-cooker (like an Instant Pot) along with a counter-top oven (a combo microwave / toaster…