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For the eagle-watchers
Jackie and Shadow seem to be preparing a new nest. Here is the site of the live Webcam. Some members like to observe for a break in their routine. Livestream - Friends of Big Bear Valley https://share.google/Y8pyvVpGQPuUXhFar Here is an article about the pair. 2026 nesting season underway for Big Bear’s famed bald eagles –…
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Convincing person with dementia to go to parents' memorial
My parent with dementia had their parents both recently pass away in close proximity of each other. There will be a memorial service at an informal venue. My parent is local to the memorial celebration. My parent with dementia visited her parents regularly in the past year when she moved close to them to go to memory care.…
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Notice to police or first responders
Does anyone know if there is a program or something to alert first responders that the person at home has dementia? This afternoon my husband flagged down the police for no reason. I was on my way home from work and his aide had already left. Apparently they were in the neighborhood and he went out our front door and…
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Incontinence pants
just saw an ad on line for Dryment incontinence pants. Anyone know about these, are they all they say they are ? Thanks for your input!
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Physical Aggression
What if he does hit me? Do I call 911? Do I call my son? Do I leave the house? Do I lock myself in the bathroom? What do I do?
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Can’t communicate
My wife is in later stages Alzheimer’s and can’t communicate properly anymore. She speaks to me and I can’t understand what she wants. Likewise she struggles to make sense of anything I say. How do you cope with this? It’s exhausting.
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Just Curious
Don't know what stage my DH is but quite frequently he will look at me and ask where his uncle is or if he went home or if he went to bed already. His uncle died long before I met my DH and we have been married almost 40 years. I know who he's talking about. I usually just answer him that I'm not sure or yes he's already…
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Geographic infusion discussions
My husband had been diagnosed with Mild Cognitive Impairment and we are being advised to begin infusion treatment. The challenge is that we are snowbirds living half a year in Florida and the other half up north. Has anyone had experience navigating this type of situation where the 18 month treatment is coordinated between…
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Continued follow up after diagnosis
DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have you all done?
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What do you do for self-care?
My DH received his alz diagnosis 5 mo ago. He is no longer driving but manages most of his ADL’s & putters around our small farm. Most of my caregiving at this point is around appointments, finances, cooking, groceries, mostly typical household things. I can be away from home altho I try to spend as much time here as…
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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What You Took From Me
Dear Friends, I wrote this on July 9, 2025: There is a beautiful woman here making dinner for us. She asked me how my day went today. The kitchen smells so good with dinner on the stove. She put her arm around me and gave me a kiss. It is so nice to have a wonderful wife who really loves me and is here to support me…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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4.5 years in caregiving
It’s been 4.5 years since my dad died and I became caregiver for my mom. At this point we’ve fallen into a rhythm (of sorts), she’s settled in MC, but it’s sad and hard and financially scary and I feel sorry for myself. Almost all of my free time on weekends goes to her. I feel guilty for even complaining. I dread seeing…
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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I'm new here. My 66 year old wife has Alzheimer's. It's rough!
My wife was recently diagnosed with Alzheimer's but it seems fairly advanced. She was prescribed Rexulti to curb her agitation and sundowning that seems to help but she still falls back into "Who are you. I'm not married to you. Why are you here." What a awful disease this is! It's really tough being a caregiver for my…
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New diagnosis
Hi all, my DW was recently diagnosed with Alzheimer’s at 68 y.o. We are both in disbelief due to the way this has been handled. The APRN who has been the contact for this has only been out of school for 2 years. Yes, she had a PET scan showing the presence of amyloid plaques. No Tau tangles. Some slight decline such as…
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How To Prepare for the End
Hospice ordered a hospital bed and a wheelchair for my DW today. Her progression has been so rapid all through her disease, that I imagine she will be bed bound by the end of January. Who knows if she'll plateau or keep her breakneck pace. It has gotten me thinking more concretely about her end of life and how I might be…
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Caring for my mom
Hi, I'm 58 yrs old and been caring for my mom and dad full time for the last 3 and a half yrs. Mom has alzheimers and dad had dementia. We lost him 2 and a half years ago. I seriously dont know how I've done it, not lost my mind that is, this is very hard, probably the hardest thing I've ever been through as I'm writing…
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memory care and travels for me
I still have my husband at home after an abortive 2 weeks placement when I brought him home because we were both so sad. I still plan to place him since at some point he will be chair bound (really bad knees, bad balance, and firmly in stage 6). One reason for doing so is not being trapped in my house, especially in a hot…
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Suggestions on making the move to MC
My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…
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Cognitive test.
My wife is at Fast stage 6D/E. I just received a letter from her doctors saying she lacks the ability to make her own decision. This is hard to take in and process. it's final she will never be coming home again. I've mentally known it, but until you get the formal letter it didn't really feel real. At this point it's just…
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Son of an Elderly Father with Alzheimers
Hi, My father was diagnosed with alzheimers in August of 2025. Its been really rough mentally and emotionally. It's hard to watch my mom struggle with my dad. It sucks that the Dad that I known and love is no longer the person I know. What have you done to cope with this change in your life?
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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Dealing with verbal abuse?
I’m caring for my 85 yo husband. As far as I can determine he is moderately affected: able to do adls, able to walk slowly due to chf. Short term memory gone—less than 10 minutes. Orientation limited. Does walk alone around the block. However, his personality has changed. He has always been explosive when angry but…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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My Attitude is Getting Worse
My wife and I will have been married 62 years in March. Throughout our marriage, we've had our up's and down's - so much so that we're now to the point of having lost the spark that generated the fire so many years ago. Her mother had Alzheimer's and the fear of the disease has prompted my wife to ask me several times if…
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Home Dementia Specialist for Mind-Stimulating Work
Hello. I am finding more and more that my DH can not entertain/challenge himself when I'm not there to schedule things for him. Has anyone ever hired a specialist to come to the house to do work that stimulates the mind? Kind of like a tutor? My DH is in the early stages of Alzheimer's and I don't want to ask him to go to…
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Moved Mom In
We moved my mom in a week ago that has dementia. I wish I could say it’s been a wonderful process, but it has not. It has been awful. She continually every day wants to call her brothers to come and get her and take her home she that we are in Florida when we actually are in Ohio. She keeps saying she wants her brothers to…