-
Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
-
Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
-
Just a rambling vent...
Mom started a fire in a microwave this morning. That was after Dad missed her walking out the door last night and she showed up in the garage where my husband and I were talking….scared the crap out of me as she can barely walk! Back to this a.m., I thought I smelled something funny this morning when she came out of their…
-
Spouse Wants to start arguing
1st time to post. My spouse has mild mix dementia. I am basically her only support. She can go couple of days fine but the sundown gets really hold of her. Spouse wants to argue about almost everything. I try to remove myself to another room, she still confronts me. Now she is locking herself in our bedroom. I can easily…
-
Have no where to go with my feelings so
Very long post. I have been wanting to write this message for a long time but always get stuck with wondering how best to describe my situation. Saying up front, there is no answer for my issues with my DH, I just think it would be helpful to know if anyone else has had experience with this, or even wondering if I am…
-
New to the group
Hi there my name is Nicole I am new to this group. I have been living/taking care of my 71 year old father for four years now. I am in the process of trying to sell his home to afford a memory care. I need to get my life back I have kids i still work 36 hours a week. This has been incredibly challenging. I do it all in my…
-
I moved my DW to memory care today
The move in went ok. I told her I needed surgery on my leg and rehab after. She understood but I could tell she was suspicious that it was a permanent move. We have been together since I was 20 years old. It absolutely killed me to leave her there. I know she feels abandoned and afraid. This is the worst day of my life. I…
-
When to transition to full time caregiver?
Hi! I just joined this online support group and have spent almost an hour with the discussions before deciding to post my own discussion. My DH was diagnosed with CAA in 2022 and had mini strokes after a heart surgery late last year. He recovered well from that surgery and all diagnostic tests this year have been ok…
-
We need some suggestions to prevent boredom
Hello, I am new to the group. My mom came to live with my husband and I about three months ago. She has never really had any hobbies, so she currently has nothing to help her pass the time. When she gets bored, she gets nervous and starts pacing. We have tried word find puzzels, puzzels, coloring etc but nothing really…
-
Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
-
Giving gifts to external caregivers
Just wondering if anyone gives Christmas gifts to your caregivers? We have one that comes in a couple of times a week. My DH is not at the stage yet where he needs a lot of on hands care except making sure he eats a good lunch but she is still there to support him. She does take care of things around the house while she is…
-
Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene. His PET scans showed elevated levels of tau. He was part of the phase 3 trial for Aducanumab, he developed ARIA and was in…
-
Shrinking world
Caring for DW. Currently in stage 4 and some 5 conditions. This is more of a release and venting for me than a question. The longer this goes on the smaller the world becomes. Over the years friends family become more distant. Partly because you're no longer able do the things that we used to. It's even to the point that…
-
I need advice or someone to talk to. How did/do you manage what helps?
Earlier this year my father who is a 64 year old veteran was diagnosed with early onset dementia. It’s been very difficult for me. I feel so alone and kinda almost ready to give up but I know I can’t do that. We have been in the hospital for over a month. waiting for a memory care unit at the va to let us know when he can…
-
Very sorry
Hi y’all. I have not been reading or writing lately. I wish everyone love, mercy, understanding, acceptance and peace on their journey. My wife and I are not doing well on ours. She is in stage seven, stuck in a bed or Jerry chair mumbling and not eating. She looks very unhappy and suffering. I don’t want to be a widower…
-
reframe my thinking?
Hello community, I think I need a reframe for my thinking. Taking some time away from visiting my dad due to his anxiety and agitation. He has been in MC here closer to me for about a month. I've stayed away for a week and half previously and am currently in the midst of another week away. I keep thinking that he is…
-
How to handle son’s death
My wife is at stage 5/6. We found out yesterday her 52 year old son ( my step son) was found dead in his car 1500 miles away. He struggled with alcoholism and drug abuse and was homeless for the past four years living in his car. He refused all help to get him off the streets and into recovery. He has had very little…
-
Art back and Depression in Loved one
So my Father had a fall, a slightl slump to the floor really. They sent him to the Emergancy room at the hospital, He checked out fine. He had been in his memory care facility for 1 month, so they want to get him checked out. He is in a very dark depression. Some of this preceded my Mother’s death in September, but the…
-
Mom's Name on Deed, Remove or Not?
Hi there...my mother is in Stage 5 of Dementia and lives with me. Both of our names are on the Deed to the house...can anyone lend advice if I should take her name off the Deed? Somewhere down the line I have been told that if she does need to go into a nursing home, they could take the house.
-
Loss of social media = loss of community
Hi, I'm wondering if anyone else is experiencing this: In the years before my dad was diagnosed and began showing symptoms of Alzheimers, he became a social media power user. He's an artist, and he began posting to Flickr and instagram, establishing strong bonds and connections with artists all over the world. His decline…
-
What does Ptau 712 mean for Lecanemab?
Hello. My mother was diagnosed earlier this year with MCI and we just got to a neurologist last week. Her Ptau 712 came out at 1.7. I am having a hard time understanding this except that it is an "abnormal" score — but from what I can tell online it seems quite high. Can anyone offer any perspective here? Do people stop…
-
Christmas gifts
Mom is in AL. She hoards and we have not taken her to the store for the last 3 months because she insists on buying things she doesn’t need. She is finally just starting to tell me if she needs something vs telling me I need to take her to the store. She is mid stage and insists on independence. She loves Christmas and…
-
Support for a couple living with Alzheimer's
I see groups for the person with Alzheimer's and groups for caregivers. Are there groups for support for the couple going through that? Thank you.
-
Morning brain fog solutions please?
Hi everyone. I’m new to this forum and this condition of my DH who has been waking up at 3:00 AM (regardless if we sleep at 9 PM or 1 AM) for the past 2 days and very confused. Today, he didn’t even recognize me. He went back to sleep after half an hour and wanted to go to bed in the guest room but I somehow managed to…
-
Feeling Happily Empowered
It’s not often that I feel empowered these days. My DH has VD stage 6 we have sleepless nights wandering around the house, Christmas shopping sprees ha ha that take hours slowly shuffling from store to store hand in hand (which I do love) BUT yesterday we had a new tv delivered, my idea Christmas gift to us. Good idea…
-
Moving Dad to a New Facility
I have never posted here, but just need to get this out. I have done 99.9% of the caregiving for my dad who is now mid to late stage. He is in Assisted Living, but the facility he is in provides very little assistance. I think they may be understaffed but it's just not working out. This past weekend, I spent 5 hours with…
-
Grinding of Teeth
My DW has been diagnosed with Alz for 8 years. She is currently in stage 4. She just started grinding her teeth during awake hours. I am afraid she might do permanent damage to her teeth. She visited her dentist to reattach a crown. Her dentist was no help. Has anyone else run into this problem?
-
support for having a parent with dementia
hello! i’m not sure if this is the right place for this, but i’m just looking for support and guidance in my current situation. i’m 20 years old, and my mom received a dementia diagnosis a few years ago, during my high school years, after persistent memory issues. as anticipated, years after this diagnosis, her mental…
-
Supporting DH and 93 year old mom - Advice?
I have a 68 year old DH with probably stage 5/6 ALZ - in MC for 5 months due to agitation, aggression, not sleeping and constant issues with trying to get out of the house. I'm going through that intense sadness of being without my partner of 46 years and so grateful to all of you who understand the emotions, loneliness…
-
First Waking Thought
My first waking thought nearly every morning is “Oh no! Another day”! I know I am depressed. I am a high functioning depressive right now. I do everything I need to do in our daily lives and take care of DH in all the ways he needs me. I am not perfect but I am here learning and adapting. Meanwhile, I am trying everything…