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Please, I need some advice…
My DH who is wheelchair bound due to instability has become very disoriented early (3, 4, 5 am) in the mornings and becomes trapped in some work loop where he insists he HAS to get up right then and get to office to deal with some kind of critical situations. I’m not supposed to get him out of bed by myself for safety…
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Struggling with a dilemma
My husband was diagnosed with MCI 7 yrs ago, has had 3 strokes, CV disease and many health conditions related to that. Dr switched him to palliative care 2 yrs ago. Cognitive testing revealed likely VD from strokes but cognitive decline has been slower than physical decline. The grandsons are growing up in NC without us…
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Alternatives to MC for later stage Alzheimer’s
We recently checked my mother into an MC and are very happy with the activities. But I still wish she were home with us. She still knows all of us. She just gets very confused at times and we took the step because she was having terrible delusions. They seem to have subsided, likely due to all they added activity in her…
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How to inform your parent of major home maintenance plans
Does anyone have advice on how to inform a parent about major necessary home repairs? My siblings and I live out-of-state from my mom. While she still lives independently, she has trouble with executive function, particularly finding and hiring people to do home maintenance. Her roof is old and is in a state of total…
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Father in hospital, begging me to set him free
This is my first post here. My dad was diagnosed with Alzheimer's disease 3 years ago, and I have been his caregiver ever since. I am his sole caregiver, and we have no family nearby. He had declined to the point recently where I began arranging a room in a nearby memory care facility for him. The weekend before his…
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Entering the fun new phase of paranoia
My mom has been in AL for just over 2 weeks. She finally had her doctor's appointment there with the doctor on staff to establish her as a new patient. It was a very painless exam, he just wanted to go over her medications and he could not have been nicer — she complained about how one of her pills is not delivered to her…
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Need resources & ideas
Hi, My dad was diagnosed with Dementia in October of 2025 but it has progressed rapidly and he is living in an unsafe situation at home. He falls frequently at night, has hallucinations and can be very agitated and aggressive. My mom is is caretaker and is with him 24/7. I’m extremely worried about her health and well…
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Guilt and Obligation
Not sure why this posted twice but I can't delete so please reply to the other post.
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Parent in MC Talking about Dying
My dad, now 92, has been in MC for almost two years and is in stages 5-6. He is a generally optimistic person. In the past two weeks he has begun telling me, matter of factly, that he will be dying soon. I have tried different responses, depending on the situation, such as: (1) “Since you are human, you will die someday,…
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Life After
Going on nine months now since the loss of my DW last August, 2025. It is a life I never wanted, feared ever having to live and hate every minute of every day without her. I knew that this disease scares many people and leaves them uncomfortable in the presence of one in the latter stages especially. I saw it with others.…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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Hospital stay for medication adjustment?
Hello, all. My DW has been in skilled nursing care for several months. She has later-stage Alzheimers but also physical limitations — needs help with eating, toileting, walking on 24/7 basis. She became more agitated and combative in recent weeks so SNC staff said she needed to go to hospital psych unit for medication…
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Things have calmed down
So I made a few posts here earlier this month about my mom and how my parents were struggling. I think we've gotten past the crisis point that occurred - my dad has said he's doing a lot better at keeping things calm at home with my mom. I do think at least some of the worst of what was going on was due to my dad's hip…
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Mom doesnt listen
My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…
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Lorazepam/Ativan taken daily???
My husband has developed a periodic urgency about the need to get to school to administer a test (college professor for 30 years) and becomes very agitated that I’m not helping him do that. The hospice nurse recommended I give him a dose of Lorazepam to calm him down. I’ve done this now twice and both times he sleeps for…
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Anyone able to keep alzheimer spouse home until death
I have been trying to find anyone with experience keeping spouse at home with help of hospice until the end. My husband is finishing up stage 6 right now. And so far I have been sole caregiver with no outside help. He is 71 can still walk. Can eat on his own like a 2 year old. I have to shower and dress him. He just had…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Mother lives across country and has early stage dementia
Mother lives across the country and insists she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly, and she meets the criteria of loss of memory for the early…
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overnight pullups advice for incontinence
Hello wonderful people, I was wondering if anyone has advice for a brand of overnight pull-ups that is the most absorbent. Lately my LO often soaks through even the brands that say they hold the most liquid. He does sleep over 12 hours sometimes, so i know that would be a challenge for any product. Our family has tried…
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How fast does Zoloft work?
My mom is 83yo, in mild to moderate Alzheimers. I don't know which stage exactly, just that she has plaque on several parts of her brain. The neurologist says her stage is dependent on her behavior and abilities. She's been taking donepezil for about 2 months now. Took 6 weeks to get her to 10mg. She has been getting…
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Moving my mom - which is best
My mom was told she has Alzheimer’s about 2 weeks ago. I think it is early. We have noticed trouble with remembering she has told us something and I know it took her 2 hours to pay a bill not remembering whether she had told us something call the bank or call the credit card company. My friend, who is currently helping…
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No Appetite
My mom hasn’t been eating or drinking for a few weeks. We brought her to ER for IV fluids and the PT recommended a rehab facility to get her eating, drinking, and moving again. Great plan except that she has no appetite and everything tastes bad to her. Even foods she loves. She is excited to eat it and then stops after a…
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Wedding anniversary...
I might already know the answer to this question, but I thought I would put it out here. My DW's wedding anniversary is next week Wednesday. On most days I'm her best friend and "where is my husband?". Do I potentially stir the pot or just let our anniversary pass going unrecognized? It's sad. I'm leaning toward it going…
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Downsizing
My wife has had Alzheimer's for 8 years and is now in Stage 6. Care giving is difficult, can't even remember when the difficult part started. My plan has been to keep her at home as long as possible since I think she would be happiest in a familiar environment and my undivided attention has got to be better that what…
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Just venting
Yesterday was not a good day for my DW….It was a total delusional day. she thought there was people in the house, her dead sister, father, mother and our sons who live in another state. when no one has been here. She has been started on a new medication which seems to have very little effect, but it is early. She got up…
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Bedridden mother w/dental issues
Hello. I care for my 89 year old mother who has severe Alzheimer's and has been bedridden since falling and breaking her hip in February of last year. She has visiting hospice nurses twice a week, and (by the grace of God) is doing well, overall for her circumstances. My Mom has a full upper partial, which had previously…
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My DW's mom was going to visit, and then couldn't.
My DW's mom has Alzheimer's also. She is 88 but she is not as advanced as my DW. My DW's stepdad attempted to drive my DW's mom from Florida to visit my DW here in Indiana. They got as far as Tennessee and had to turn around. My DW's mom got confused and agitated and insisted on going home. I have read that it's nearly…
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To Pee or not to Pee
I thought I was prepared for the day my DW would become incontinent. A couple of weeks ago I woke up to my DW laying in bed unclothed. Apparently she wet the bed and then took off her clothes and went back to sleep. I got everything cleaned up. I had bought pull ups last month, so I removed all her underware and replaced…
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The end is near.
Apri 9th I fell the end is near. They have padded bandages on her elbows now because she sits in a wheelchair all day and can't move. They try to move her hands and she won't let them. I fear she has given up. They told me today, that they have started turning her every two hours to prevent her from getting any more bed…
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Help me please
I am so burned out and feeling alone. My husband is 86 yrs old and I am 73. Been married for 43 years. The regular doctor says he has dementia or Alzheimer’s . He now refuses to go to any doctor or to receive any help from hospice or anyone. He has mood swings very often which plays on me and my wellbeing. Not to get in…