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We need guidance 🙏
We moved my MIL (83alz) out of her state and into our home in a different state 9 months ago. She is mid-late stage and still physically capable. She obsesses over 2 specific things and we haven’t been able to redirect or stop it. 1- she thinks she needs to go to the bathroom constantly. She goes back and forth from one…
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Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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I have EO alzheimer's
It took forever to accept this diagnosis. My family has always held me to very high standards. Along with the diagnosis they all stopped contacting me. I have begged anyone even my husband to come talk to my doctor during my appointments. They all tell me this is my problem. My doctor thinks I need to find alternative…
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Project Lifesaver- free gps tracking watch
https://projectlifesaver.org/ Project Lifesavers is part of local sheriff’s offices. They give out free gps tacking watches to Alzheimer’s and dementia patients. They will take information on your loved one in the event he or she is lost.
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Facebook Alzheimer/Dementia Group
I am curious if members here are aware of the Facebook group titled "Alzheimer's/Dementia Help & Support Group". A I have noted in other posts, I only learned about this forum later in my wife's condition but found it, and continue to do so, extremely helpful. Not being active at all on social media until very recently and…
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
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Frustrated and overwhelmed
This is my first post. I am not tech savvy. I am so frustrated and overwhelmed with my husband. I try to be patient but I find myself getting mad at him and it isn’t fair.my heart knows this but in the moment I lash out. I am in NH and can’t seem to find a local support group that I can attend in person. I do think if I…
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Which ID cards need to be with PWD
Which ID cards (like medical insurance card, state issued ID) ought to be in the PWD's residence for easy access? Likewise to be with person when going outside. Today, prior to a medical appointment, they were all gone, along with wallet. I asked, and PWD denied owning a wallet, cash or any ID. Fortunately, the medical…
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Hearing, Yes or No?
It is too late for my dear wife as she left us a few weeks ago. As I often sit and think back over our path down the difficult road of AD, things pop into my head that I wish I had known or at least considered at the start. One of those topics is the subject of how much the suffering person can hear and also understand,…
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Similar ?
I’m in my 40s, unemployed due to disability, and living with my 93-year-old adopted mother, who is in the late stages of vascular dementia. I don’t have children, friends, or a partner, so she is truly all I have. It’s painful and frightening to watch her decline, and I often feel crushed by the thought of what life will…
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Father getting worse
I have an 82 year old father who is diagnosed. He has recently undergone chemo and radiation. He has gotten increasingly delusional and agitated. We have been associating it with the drugs. But he is so angry and lost. He cannot have a conversation now and is extremely abusive about things that do not exist. Is this normal…
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Rapid decline since moving to assisted living/memory care
Hi! My dad was being cared for by his partner of 5 years. She recently needed surgery and we moved him to assisted living / memory care facility. He has been there for a week and we have noticed a rapid decline in his mobility (was walking with a walker) but now spending more time in a wheelchair. He has no prior history…
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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attend a wedding?
Looking for your thoughts. My DW of 40 years is well into her late stages. Right now her stage consists of constant jabbering and pacing. It's even gotten to the point where she does it when we go to a restaurant or other places. Her niece is getting married in a couple weeks and of course we have invitations. I already…
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CCRC forcing LO move from independent to MC
My LO with VD lives in a CCRC in an independent home with 24 hour care. On waitlist for MC. My sister and I took her for “lunch” when opening came up. We decided not to place her in MC and continue with 24 hr care. CCRC has called us in for meeting saying they are concerned with LO’s safety. CCRC says she has to move to MC…
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New Job Offer & Whether To Move
I’m from NY and moved me and mom to Florida four years ago. I applied to a nationwide job and the NY office interviewed me During interview they said: we have offices in Manhattan, Suffolk, and Newburgh. Which do you prefer. They also asked if I preferred to be transferred to recruiting for the Miami office. I said…
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Need Reassurance
Mom had to go to the hospital on Monday because of pain in her hip and couldn’t get out of bed. She did not have a break but has a high grade tear in her hamstring and complete tear in one of her butt muscles. She has mid level Alzheimer’s and that is making things 100 times worse. Every time the nurses move her leg she…
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Feeling useless.
My Dh has ad and vd. Here lately he has been so moody. He'll say he's bored and when I ask were he would like to go or what he would like to do,his answer is "I don't know what it would be. " if I make something to eat healthy hardly eats. Today I ask him if he wanted to go out for lunch,he said he wasn't hungry. An hour…
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Hospice and the Just Right Mattress
Hello. Caring for a loved one brings so many learning curves. For those who are dealing with so many questions and so few answers, don't give up! My mother is in late stages and has a bed from hospice that allows air circulation. Unfortunately, half of the inflatable "tube," every other one, has deflated. My siblings and I…
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Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
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From the NYT: How Older People Are Reaping Brain Benefits From New Tech
A gifted link to the article— https://www.nytimes.com/2025/08/09/health/technology-cognition-older-people.html?unlocked_article_code=1.nk8.Wxst.AdgH546VpONN&smid=url-share
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Anyone RV Camping?
Here’s the thing. Right now DH with ALZ has short term memory loss and needs detailed instructions to do tasks. But he actually is functioning pretty well. We love camping and I have been trying to decide if we should just go for it and see how it goes. We desperately need to put fun into our lives while we still can. I…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Sleeping or lack there of
My mother has been only averaging 2-4 hours a night. We’ve tried Melatonin and Zzzquil for extended periods and both don’t seem to work. Does anyone have any better solutions that have been helpful? Fyi she hates tea (we tried the sleepy time and Chamomile). I was debating on consulting her doctor on trying low dose…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?