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Sleeping more
Just a quick question my DH 78 years old VD 6 or 7 non verbal with Aphasia is sleeping more and more particularly during the day is this a sign of further decline. He is only on high blood pressure medication. What are the signs he is reliant on me 24/7.
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Affairs, Divorce, and Dodging a Bullet
Very long post alert. I only come to you all because even if your situation isn’t like mine, I know I will get wise (and hopefully not too brutal) counsel from the other travelers on this journey. I am 64, still working - now 2 jobs. My DH is 63 yo and is: ◦ not diagnosed with dementia ◦ Has multiple health issues…
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Brain Honey
Just watched a video by Bill Gates extolling the benefits of a product called Brain Honey. He claimed it could reverse the effects of dementia in even stage 7 victims. At the end, he was selling a 6 month supply for about $300.00. I see it's on Amazon for under $90.00 for a 5 month supply. Has anyone tried this??? I know,…
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EOAD WHO SMOKES
My LO is 65 who was just diagnosed this past year. He has CAD/PAD/PACEMAKER/DM2. So basically, a mess physically before even being diagnosed with ALZ. He just started smoking a year ago on a daily basis. Before that it was basically just a pack a month. Now his VASC doctor is really pushing for him to stop smoking. I…
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Send me good luck!
I'm transferring my parents to another memory care across the country this so I can monitor her care closer. I'm nervous about all the logistics and praying the airport isn't a disaster zone. And of course we have the actual drop off which I'm praying is ok. And then there is the weight of being solely responsible for a…
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I Feel I’m loosing my mind…
My aunt has dementia I care for her she has no kids. My mother just got diagnosed on top f this last week ( she’s in denial) I’m the only daughter I care for her as well . My husband is terminal ( multiple myeloma and chronic lymphocytic leukemia) I need advice , tips… ideas I’m in a whirlwind I can’t loose control I’ve…
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Hospitalization
My mom (87YO) in MC tried to escape yesterday. She was severely agitated and combative with the staff (pushing the doctor and squaring up against nurses and people trying to help her). My sister and I were called to see if we could come by to try to de-escalate the situation. Long story short…we couldn't (In fact I think…
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My DH is in early stages and I live far from family
My DH is 67 diagnosis MCI due to Alzheimer's. From the scale provided by someone on this site I would say he is stage 3. I live in South Carolina and my kids as well as his brother all live in upstate NY. My daughter a NP wants me to move back. I'm not totally against the idea but am not sure when would be the right time.…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Interested to know what Elder Law Attorney provides
My 69 yr old DH (I am 69 as well) was diagnosed last fall with ALZ. Guessing he’s in stage 3 with some stage 4 like unable to take care of finances, which in our marriage has always been my domain. Six or so yrs ago, we completed our wills, durable powers of attorney, a revocable living trust, etc. I am still his person…
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My Bestie
My best friend has developed delusions and very confused/rambling speech. No stroke or neurological issues. Her mom had Alzheimers. I'm at a loss as to how to support her through this journey. Her husband, who has dementia says she is "just fine". Any wisdom out there for an outsider?
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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VRBO VS Hotel
I know our traveling days are winding down but DH wants to go see his father in Florida. All his family live in Florida. I think it will be ok because we have family all around. The only change is his father is now in assisted living so we can no longer stay in his house when visiting. DH was very familiar with the house.…
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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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Taking away beloved pets
My mom, with mid-stage alz, is currently in an Assisted Living Facility. We placed her there because she is extremely attached to her 2 dogs, and pets aren't allowed in memory care. We were trying to ease the transition so we chose AL. We have been here a week and it is painfully obvious she won't be able to function in…
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Newly Diagnosed Physician
I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was given disability benefits. I am fortunate to have had that option but despite all my expertise the process of getting a definitive…
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Information on Alzheimer’s drug therapies
https://www.brightfocus.org/resource/fda-approved-alzheimers-therapies/?lb=off&utm_campaign=fy26_adr_2603_stewardship_ea3&utm_medium=email&_hsenc=p2ANqtz-9_nkdjBJkPvm4VWCnPwnGjONHFAekf_gU1RC8UsDiBDIWDn_G4y-QM7fD0lpzB1nHZPoC3QwY5H1IBL1aQ5G3R3pyUYljmyARdkFx47haZTfFbvhw&_hsmi=411116446&utm_content=donor&utm_source=engagementTh…
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…
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Sleeping 12 hours a night
DH was diagnosed two years ago, but has likely been impacted for 6 years. He was quite accomplished, so he was able to “cover” for many of symptoms as he declined. While ALZ runs in his family (grandfather, father, aunt, uncle, but not his brothers - yet) DH was able to make it to age 60+ without symptoms. For most of our…
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Lip-smacking, teeth-chomping turned out to be seizures
I want to share something I’ve recently learned that might help others… Seizures are much more common in PWD than many of us realize, and they often don’t look like the typical “convulsive” seizures we think of or see in the movies. They can be very subtle—things like brief confusion, staring spells, or small repetitive…
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Asking for car incessantly!!!
DH has been asking for his car every day multiple times a day non stop and it’s driving me crazy! We told him it’s being fixed .. he doesn’t believe us, I change the subject works for a bit then ask again. Continues to call our 3 children and lately the grandchildren asking for his car! It’s been almost a year! Help how do…
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Financial Ruin
My mom has Alzheimer's and is in memory care, and we are running out of money. At the same time, my dad is quickly declining with dementia. They do not qualify for Medicaid. What does a person do when they can't afford care and nothing is available?
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My husband passed at home March 18
It was a long journey with my husband. He is finally set free from this horrible disease. My wish came true to keep him home until the end. My whole life was taking care of him and a deep void is something I have to get through. I never posted here much but I needed this outlet to say he is not with me anymore. Such mixed…
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I think I’m losing it
Lately I find myself wondering if it’s my DW that has Alz or is it me. I find myself thinking that it’s me that put the frying pan in the freezer or that I’m the one that can’t remember where anything is. It’s actually kind of disturbing. Is this a thing?
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Recs and encourgament
My mom is newly diagnosed with Alzheimer’s at 62. The wait to see a neurologist is 7 months so we are reliant on her PCP. My father is sadly in denial or just needs more time to accept the situation. There are three adult children, two of which live in town. Sadly it feels like symptom wise, she has stepped off a cliff and…
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My DW is now refusing to take her evening medications.
Usually on queue, my DW will take her medications in the morning and in the evening. Today, I gave her the medications for the night, and she refused to take them. No matter what I tried, she would not take them. Her medications cannot be crushed and added to food (that's another story). It's very frustrating. What is a…
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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Latest from 2026 Alzheimer’s International Conference
https://www.brightfocus.org/news/breaking-news-dispatch-alzheimers-oral-therapies-prevention-strategies-and-targeted-treatments-emerge/
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Refusing to go to the the doctor
I went to town today with DH. While at lunch, I mentioned going shopping while we're in the city Monday. He asked why we would be in the city. I told him he had an appointment with the brain doctor. He shook his head & said, "I'm not going." I said you promised the doctor you would come back in a year. He said, "I don't…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support