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Continual Grief: I Miss My Mom
I visited my mom again today at her skilled nursing facility. She was diagnosed with Alzheimer's disease in 2018 (she had probably been experiencing it since the early 2010s, in reality), and I made the gut-wrenching decision to place her into an SNF in 2021. She's currently experiencing late-stage Alzheimer's. She has…
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Prayers appreciated
Hi my name is Charity and for the last 4 years I have been the live in sole cargiver for my daughter in laws aunt and was for her uncle before he passed. I have worked in Healthcare for 28 years and memory care and dementia have been the majority part of my career. I never thought of how hard it would be to become the live…
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How much is too much?
My DH is in early to mid step 5. I still work and he is at home by himself all day. I recently installed cameras so I could keep an eye on him. I’ve noticed he sleeps a lot. Today he told me he had slept most of the day and he doesn’t understand why. He’s wondering if there is something physically wrong with him. Should I…
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Never know when something will trigger profound grief...
I went to get a band-aid for my finger and found this. As my husband's dementia progressed, he couldn't remember the word for Band-Aids. So he took them out of the box and put them in this zip-lock bag and wrote BAND-AIDs on it…. I found myself with tears coming down my cheeks. Such a small thing but such a sadness… I know…
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New here...finally reaching for help!
Hi! I am new here, I was finally getting so lost and frustrated, that I needed to reach out for help. I am a caregiver to my mom (74) with Alzheimer's. I am still trying to figure out which stage she is in. After reading through the many discussions I feel like she is probably moderately severe (5). She lives with me, but…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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Mom has become aggressive and mean
My mom fell and broke her hip a little over 4 weeks ago. She had early dementia with confusion for the past couple of years, but since the surgery/anesthesia her dementia has dramatically changed. She will become highly agitated and say incredibly mean and hateful things which is not my mom at all. She has been in the…
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New member
I’ve been following this forum for some time now & finally figured out how to join. Having the real experts so handy with experience & suggestions is a Godsent help! My DW is 75 and been declining for about 5 years. Have to help her with about everything, but happy to do it after 51 years married. Biggest challenge us how…
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Memory care question
Has anyone ever had your MC facility ask you to spend the night with your LO? Mom fell. She went to hospital and is ok but sore. They gave her some meds but MC wants someone with her in case she tries to get up overnight. Something doesn’t seem right
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Not Political... but for Texas voters on the forums
On the Texas ballot this November is Texas Proposition 14 which establishes the Dementia Prevention and Research Institute of Texas using $3 billion from general funds. The amendment would task the institute with researching causes, means of prevention, and treatments for dementia and dementia related diseases such as…
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Desperate for Help
My mom has been recently diagnosed with rapidly progressive Alzheimer’s. She lives in Louisiana with my brother and SIL and I live in Maryland. Any tips or suggestions on caring for her from afar? Because I’m really close to having her come to meet me up here.
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shingles vaccine
A study, in Wales, found that the zoster vaccine reduced the probability of a new dementia diagnosis by approximately one-fifth over a seven-year follow-up period. https://www.nature.com/articles/s41586-025-08800-x The Zoster vaccine in the United States is no longer available, and has been replaced by the two dose…
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General housekeeping, found a little money
I took over responsibility for bills a year or so ago, credit cards and all. We have various loyalty accounts from banks, from credit cards, and from traveling, points with American Airlines, Southwest, etc. Over the past year I have combined/closed various accounts. Closed a checking account at a bank we no longer use.…
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Falling
In the last six days my dad has fallen 4 times and landed in the ER 4 times. it is always when he is getting out of bed in the morning. He is in AL and he has a UTI at the moment. The facility keeps telling me they have him but they clearly don’t. I believe his weakness is temporary and caused by UTI but we cannot be in…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with suspected dementia
Hi. I'm new here. I'm a granddaughter caring for a grandfather with suspected dementia. He has a lot of the symptoms of dementia, but hasn't been diagnosed yet. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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Suicidal
Has anyone had there parent with dementia have them become suicidal after they went into nursing home? My mom is apparently talking about suicide but I don't think she would do it. I think she is just miserable being in a nursing home with progressive dementia.
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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Falsely accused of elder abuse
My husband and I help care for his mom who lives in an assisted living facility and has dementia that seems to be progressing more rapidly. Over the past five years since we have been helping her, she has been sharing some increasingly bizarre stories about members of her community. In the past couple of years, I have been…
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Driving Restored?
I'm very frustrated because the doctor told my DH (58) with EOAD that he should stop all driving until he could take a driving test to certify that he is still capable. We'd been going along our daily routine just fine with me driving him daily to the gym and grocery store (as he likes to get 1 item at a time). The day…
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Care home wants more meds because of aggression
My DH has late-stage early-onset Alzheimer’s with aphasia. For his safety and because I work full time, we had to move him to memory care 10 months ago. Before moving he would sometimes strike out at our home caregiver. In memory care he became aggressive when exit seeking and during grooming. We tried medication but ended…
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Emotionally and Mentally Exhausted
Hi everyone, it took me a little while to go ahead and type this ‘new discussion’, hopefully I am doing it correctly. My 78 year old mom was finally diagnosed with moderate dementia last week. My siblings and I knew she had some memory delays, especially after my dad passed a few years ago. I didn’t realize it was bad…
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Transition to wheelchair
has anyone dealt with transition to a wheelchair? Mom has started falling but refuses to stay in or use wheelchair. What do we do?
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Hot Spots - Wound Care
Hello everyone - Question…. Both my Mom and Dad are under Hospice care, both are in Broda Chairs or in bed, unable to walk or stand. Hospice is treating both of them for wounds. My dad has "mushy heels" I am told, they are putting plates on the bottom of his feet and elevating his feet in his Broda chair as well as using a…
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Memory Care Week 1
DH has been in memory care one week now. Biggest issue is his combativeness when being changed, which was a huge problem for me when he was home, as it is for many of you I’m sure. He’s also difficult to redirect when he’s doing something he shouldn’t, like taking a woman’s shoes from her room. Med adjustments are being…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…