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Long term concerns
Is anyone else in the US watching news stories and getting more and more concerned about the state of affairs outside of your situation that affect your situation? All this talk about Medicare and Medicade cuts, stock market dumps, getting rid of the FDIC, etc. It’s already stressful to be a caregiver. We already worry…
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An ugly discussion about poop!
Sorry, everyone, but I have a question about poop. My husband is in a memory care facility. Lately, his bowel movements have been very soft, and impossible for him to pass all of it while he is on the toilet. He is unable to wipe himself, so he ends up with poop everywhere. He doesn't tell staff when he has to go, so they…
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Day 10
Day 10. Doing laundry. I tried to sort the clothes and came to the black sweater I wore to the visitation and funeral. I can still smell the scents of the people who hugged me and showed me such love. I held it close and cried like a baby. Then I carefully folded it and put it away unwashed. It seems that now that the…
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Should I take DH to out of state wedding?
Our grandson’s wedding is planned for late March out of state and I’m struggling with whether or not to attempt the trip. Our choice is a 5 hour drive or flying (direct, non-stop). DH is wheelchair bound, incontinent and has major balance issues. He’s in moderate (maybe late stage 5) range. He recognizes family members, is…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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Hold it all in and Boom along comes red licorice
It was the red licorice fight. My DH ate all of my red licorice. So rude! Not just any red licorice, but the bag my son gave me for Christmas. It was a leftover childhood memory of his to relive. I was shocked it was gone, and more so, i felt disrespected. A string had been crossed. “I couldn’t control myself,” my DH…
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Long-distance Caregiver for mother with AZ
Hello, my 80-year-old mother seems to be declining more rapidly this year (she was diagnosed in 2020 wit AZ). She lives in NYC and I moved to Boston,MA, in July from Los Angeles, CA, partly to be closer to her to make caregiving easier. She is very challenging, however, and I often feel lost as to what she needs because…
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Accusations - how to handle
Hi all, I’m new to this forum. I read many posts from others and felt this is a safe place to ask my question. My Mom is beginning stage dementia and has been accusing me of something. Everyone in our family knows it isn’t true and so do all of her friends. My question is - what do I do when she accuses me? I’m not a liar,…
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Reading comments
I can’t seem to see people’s full messages? It doesn’t open, how do I see a full message what people have written please?
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Need advice about my mom with Dementia
Hi, my mom is 74 years old and has moderately severe multi infarct dementia. She lives alone with her two little dogs. In the past few months, she has declined and I fear she is not safe to live by herself anymore, but, she is also verbally aggressive and mean. She has told me she will not go to an "old folks" home. I have…
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They give her the phone daily!
My MIL has alz and moved into a MC facility a few months ago. It was a rough start with her getting acclimated there. She had an issue w/ her meds and became rather violent w/ staff. She was also constantly packing her things and going into others' rooms taking things. It's gotten better. I think they figured out her meds…
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Best medication to help symptoms?
Learning from someone else's experience is invaluable. Just curious what is the best medication and what benefits did you see? Thanks Again!
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Why do i feel the need to be right?
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When to make the move to AL or MC?
My mother is 82 and in the mid stage of Alzheimers disease, losing everything, can't find anything, squirreling away anything of value because she thinks that someone is stealing from her, only eating one meal a day (because she is not hungry and doesn't want to gain weight), getting confused with paying bills, missing…
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Hi .. I’m new to the Discussion part
I am the caregiver for my husband. He has been diagnosed with likely Vascular Dementia and some Alzheimer’s plaques also. We did participate in a Clinical Trial for Eli Lily’s newest plaque destroying drug til it was discovered that he had more than moderate (not quite to extensive, but close) White Matter Disease. He was…
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Hungry!
For the past few weeks, DH has been hungry. All. The. Time. After he finishes a meal, he’s asking what else can he have. He’s wanting to snack incessantly, even in the middle of the night if he wakes up to use the bathroom. In 2024, he lost a lot of boatload of weight not wanting to eat. Now he’s gained 10 lbs since the…
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Way to long and now he is gone
Hello all, it has been way to long since I have posted or even been on this site. It was just too hard. I enrolled my DH into hospice the end of Sept. basically because of dramatic weight loss. He went from 175lbs in April to 145lbs in Sept. They have a hospice respice center with 10 beds where you loved ones can go for 5…
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Easy ways to help loved ones understand
My husband has Alzheimer’s. How do you tell a loved one with Alzheimer’s that family members of theirs have died a long time ago. Do you lie and change the subject? Do you tell the truth? I really need some help with this thank you.
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How to diagnose Dementia vs Alzheimers?
What are the steps to take when you start noticing memory, confusion, fear, sleeplessness etc. Thanks so much!
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My Mother has Passed and I Want to Say Thank You
Hello, I have never posted on here before, but I have been reading posts since October when my mother with ALZ fell and broke her hip (at probably stage 5/6, at the time…though my brother and I did not know that), which moved her out of my brother's home and into MC. Our mother was a phenomenal woman and our best friend…
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hello I am new to the group
I am asking for help for anyone who would know how I could go about this. My husband has been diagnosed for 6 years but was in a fog for 3 years before that before we go the diagnosis. He is moderate to severe state, cannot drive, dress himself, walks with walker and not good at that, has trouble with speech. He was a…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Touring memory care - Plan B
I visited two memory care places and it is difficult for me to think about placing my DH. Both places stressed that no one is ever ready to place their love one. Just don’t wait too long before he has declined to the point where he will not be accepted. Not sure what stage that would be. My.DH can still care for himself,…
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A long road ahead…
I just joined this discussion group. I had a difficult night with my mom. It started five years ago when I begged my mom to see a neurologist. After reading the report from the neurologist, and hearing what I had told him from my experiences with her, my mom hand wrote a three page letter firing the neurologist because “he…
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Primary Care partner having trouble getting sibling help
New to all of this, and just looking for some support. Mom (75f) been on cognitive decline for several years and recently diagnosed with dementia. I (43F) have recently moved back home to help care for both her and Dad (80M). It can be A LOT. I'm having a hard time controlling my frustration with a siblings who just can't…
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Xmas decorations everywhere...
Just need to vent - my DH was diagnosed recently with MCI although I believe that he is further along and we will be getting further evaluation. In the meantime, I am really struggling with his "organization" skills and insistence that he does not need help. DH has always taken great pride each year in setting up full size…
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Expectations of Employed Caregivers
My wife is stage 5-6 AD and at home. She is mobile, can communicate, although usually not correctly, still uses utensils to eat, is not incontinent, enjoys social time with others (not so much with me but that is not unexpected), exhibits confusion, anxiety and agitation. Medication has helped with the agitation and…
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Leqembi?
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.
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Sad caregiver
I am sure blue. I work so hard to stay cheerful, keep my spouse occupied and happy. I can never meet his needs, I am always a step behind.
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Delusions or Dreams
I'm not sure if what my DH is having are delusions or something else. The episodes seem to occur after sleep or a nap. I think that he is having very vivid dreams and when he wakes up instead of realizing that he has had a dream he incorporates the dream into his waking stage. For instance the other morning he woke up…