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A Strange Existence
This is just a reflection and a rave on life in this difficult zone. My day consists of wondering what can i do to occupy DH’s day. I have lots of interests and projects but most have been put on the backburner to accommodate my darling DH. Even DH now asks what day is it and what are we doing today. For the last few years…
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New Diagnosis
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My mom believes deceased spouse has returned to earth
Has anyone experienced this? My mom has dementia. My dad died a year ago today. For the past 8-9 months my mom has believed that he came back to earth and is now healed. However, she also thinks that he is cheating on her with a lady she can see out her memory home window (there are duplexes for senior living outside her…
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What do you do when DH is in a bad mood/depressed?
Thismorning started out just fine and we were both chipper. Outside talking about the garden and what to plant in it. I asked him what he'd like to do today. He mentioned perhaps planting some seeds in the garden. Sominutes later I brought in some secs I had and asked him if he'd like to plant any of these. I was met with…
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In denial
My LO was recently diagnosed with Alzheimer's. The family was not surprised. She is however in denial and continually states she doesn't have Alzheimer's. I understand this is quite common; however, I am wondering at what point, or will she ever recognize that she does have Alzheimer's. Since the diagnosis it hasn't been…
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It's never too early to prepare for Stage 8
Prepare now for Stage 8 My wife is currently in Stage 7 and is still physically healthy. However, I know that it can change at any time. Some time ago I started planning for what needs to be done before and after she dies. She has a paid funeral plan in place; the funeral home will take care of all the details. All I will…
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caregiver all my life.
I read the posts on here and so far, they make me fear the future. I know what's ahead but hearing everyone's reality and stories makes it so more real. I started life as a caregiver to 4 of my brothers. They had muscular dystrophy and I at age 12 started taking care of them. I was the oldest of 7 so my mom needed my help.…
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Handling transition to memory care
Hello. New here and writing on behalf of my father. He and I moved our mother to memory care last week. She is able to understand that she no longer lives in the same place as her husband. She is generally pleasant with me, her daughter, but when my father visits, she spends the whole time angry at him for "dumping" her.…
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First post, DW with EOAD
Hello everyone, this is my first post. My DW was diagnosed with EOAD in the spring of 2025 at the age of 59. Symptoms started at least 5 years prior, but we really saw changes in late 2024. We went through a whirlwind of changes last year getting a diagnosis, retiring, ST & LT disability, SSDI approval, selling cars,…
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Caring for FIL after death of MIL
My FIL was DX'd 2 years ago, at the time my MIL was his caregiver and after the DX, he stopped driving, she took away his cellphone and computer and basically directed everything he did. As with a lot of octogenarians they are very private about their health/finances, so other than being told he had dementia nothing else…
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Progress…
My Mom has been living with us since late February after my Dad was hospitalized and passed away. My mom had been diagnosed with Alzheimer’s and MCI in April 2024. She has progressed well beyond MCI and, per her PCP, is no longer safe to live independently, drive, etc. At her PCP visit, her Dr strongly encouraged her to…
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Seeking thoughts on timing for MC
I've been the sole caregiver for my 79-yr-old DW for almost five years. (I now have aides two mornings a week.) She has ALZ and vascular dementia, probably now in late stage 5 / early 6. The past six months have seen a sizable deterioration. There may be "silent seizures" involved. She is still fairly healthy physically,…
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forgetting how to use electronics in staging
I feel really dumb asking this, but this is my first rodeo with ALZ… A couple of weeks ago DH was standing in front of the microwave punching a lot of buttons and when I asked him if he needed help, he said that he forgot how to use it. Since then, no problem. Yesterday, he forgot that his IPad has a volume button. He has…
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Aggression
My dad was diagnosed with Alz 5 years ago and is 83. My mom is the main caregiver as I live 3 hours away. I am planning to move to help her at home. My dad is prone to verbal outbursts with my mom only, is VERY focused on having money and struggles with judgement. What advice do you have to help deal with aggressive…
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Semax
Hello. Has anyone used Semax for early stages of dementia? I heard good things about it for the brain, just wanted to know if anyone has any experience. TIA!
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Another step in progression
Mom's MC had an event for residents and families tonight. They had dinner out on the courtyard, grilled hibachi style meat and veggies, nice music in the background. It was well planned and most residents seemed to enjoy it. It was suddenly evident to me that my mom is now one of the more advanced dementia residents there.…
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Nearing the end
My husband is on the cusp of stage 7 and the fear of what that looks like from the outside looking in can at times be truly terrifying. I'm learning to live in the moment and not to deal too much on what's to come. It's really hard when everything seems to be status quo and then you look up and realize he can no longer do…
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2 years in since crisis mode
Dear Community, Thinking of you all this morning and the support you've so graciously given here. Today I am reflecting and processing. Some days are for surviving. Some days are for crying. Some days are blurs of exhaustion and overwhelm and confusion and grasping for hope and help. Today is not those days for me. Today I…
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Mom describing eerie sense of loneliness
One reason my mom decided on her own that she was ready to move to AL was that when she was living at home alone, she was feeling extreme loneliness in the evenings. She described it as something very eerie—just a weird sense of being all by herself in silence. She would sometimes describe feeling like her deceased mother…
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Night time bed wetting
My mom wears a diaper all the time but recently we are having issues with her wetting the bed at night.
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Grieving Together
I have seen and read many sources which describe how families as groups, large or small or even as individuals, get together to talk about the loved one lost. Some do it with everyone sharing stories, some funny, some not. Just wondering if anyone has used a technique similar to help grieve and find a way forward. Again, I…
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Giving up on skills
DW was diagnosed with EO in late 2021. She was probably late stage 4 at the time. We are now early stage 6. In the early stages, seeing DW lose skills was hard. I found myself pushing on her, trying to coach her in remembering how to use the washing machine, dishwasher, or where the clean clothes get put away. Later it…
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Mom and assisted living
We recently moved my Mom to an assisted living facility where she has her own apartment and was able to bring her dog with her. She was diagnose with alzheimers. She is calling us constantly, as many as 20 times in a day. She crys and says she wants to go home. It's not possible for her to live in her home any longer…
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Burner Phone, Google Voice . . . Self-Care
I'm new to this group, just over a week in and it has been a life saver to me. I feel I have found "my people'. Thank you ! My mom in early-mid stage Alz is in AL without leveled support. I live half mile down the road; she texts and calls me constantly, I'm her "person"; often she is demanding or in "need" even though it…
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Anger is grief speaking up
As someone walking through dementia and Alzheimer's with my own family, I keep thinking about a line I recently heard: "Anger is grief speaking up." If we want something to change in the next 20 years, we have to speak up…now. Alzheimer's is often approached as, "See a neurologist and wait." But Alzheimer's is not just a…
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Dentist
Hi My husband has Alzheimers and I'm looking for a dentist that is patient and kind when handling someone with Alzheimers. I live in the Lincoln RI area. Any referrals would be much appreciated. Darlene
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Medicare GUIDE Program & local help
In addition to the information on the GUIDE Program I posted about a month ago, I got a call yesterday that we are eligible for 19 four hour increments of respite care per year, from July 1 to June 30. This means up until this June 30th, I can use all 19 segments. The next step is an in-home assessment. After that the…
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PTau 217
Hi everyone… my name is Jason and I am new to this group. Just a little background… My mother was diagnosed with Alzheimer’s a few years ago. So partially due to that fact, coupled with the feeling that I am struggling with recently learned tasks and names, I decided to have a pTau 217 blood test done. I got the results…
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Top three
Just wondering what phrase ( besides I love you) you all use the most with your LO with dementia. Here’s my top 3: You hungry? What are you breaking? ( when I hear something crash in another room) Watch your head! (as she walks with her eyes half closed and head down) Hey, it’s Friday night
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My heart is broken
Here I am again unable to sleep because my mom has said I hate you, get out of here, you won’t give me my meds. I’ve devoted my life to her. Given up my own. It’s hard to wrap my head around this and I’m so burned out and depressed. I can’t find my footing or my hope. I really need someone to talk to who is going through…