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Caring for My Dad (65, Alzheimer’s) — Looking for Guidance
Hi everyone, My dad is 65 and has Alzheimer’s. He’s still in good spirits, but his abilities are getting more limited. He can’t really make meals anymore beyond grabbing something simple, and he needs reminders and some help with personal care like shaving and showering. His speech and understanding are also very limited.…
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Positive experience with Palliative Care
First I would like to thank all of the wonderful knowledgeable people on this platform that have helped me over the last couple months since I started visiting and learning from everyone. My husband was diagnosed 6 years ago with Mild Cognitive Impairment. Eighteen months later, during Covid, he was diagnosed with Multiple…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Focus on the Now, the Positive, the Moments
My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…
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Rehoming
How do I help my mother understand she is living with me now and can no longer go home?
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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When do you call hospice?
I know my DH is not there yet but he is very advanced and progressing very quickly. He is not bed ridden and my intent is to keep him home but are there signs to look for as far as calling hospice. I'm sorry if this seems like a stupid question but I am curious to know how and when others handled this. Thanks to all of you.
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Looking for a support group
Hello, my DH has EO and is only in his 40's. Does anybody know of any support groups I can join. To help me?
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Using or borrowing person with incapacitated persons car
I am my parents with dementia poa and they are officially incapacitated and in memory care. I am cleaning out condo. We're donating most stuff, shipping other stuff. she has a nearly new nice car. She has said "take my car. It's new and very safe." can I legally take her car for my personal use in a different state than…
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New to this site and need advice
my DH was diagnosed 2 years ago with MCI due to Alzheimer’s and has been progressing so likely now moving into middle stage. He is on lots of meds including the newest transfusion treatments that he receives every 2 weeks. He can still do daily tasks and drives short distances. We are in Greece for a 12 days cruise as I…
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No clue where we are in AD
My DH was diagnosed this summer with AD. I knew the last couple of years things weren't right, but he thought it was his bipolar issues. The neuro we saw just explained to us what AD is and what it does physically to the brain and then said he had to start Donepezil and take IV treatments. (He has not started the IV…
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New to group - in MCI stage of AD
Good morning! I’m recently diagnosed with MCI of AD. Prior to my diagnosis, my husband didn’t notice anything, but I knew something was wrong. I mentioned my memory difficulties to my internist and she did a test in her office that I passed with flying colors. When I continued to have difficulties a year later with…
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When did Hospice accept your LO?
DH has been declining rapidly for the past two months. We have been housebound for six weeks because he could not remember how to get in/out of the car. He cannot walk anymore and has been in a wheelchair in the house for the past two weeks. He sleeps 14-16 hours per day. He is now 100% incontinent, but I am with him 24/7…
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Caregiver and After
My dear wife fell asleep the last time about 5 weeks ago after having endured years of this disease. She was diagnosed with MCI 8 years ago and her progression was moderate until about 2 years ago when it kicked into high gear and moved much more rapidly. Being her primary caregiver for all that time, with limited help…
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Father keeps asking where my mother is...
I'm sure this has been addressed many times previously, but I just signed up today. So I'll ask. I moved my 85-year-old parents into a personal care facility 4 months ago. My mother needed the extra care, but my father was fine even though he was in the throes of dementia. My mother passed away after 3 weeks in the…
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POINTER Study to Modify Lifestyle to support Brain Health
Yesterday the Alzheimer's Association issued a press release about the results from the POINTER study. I happened to be in attendance at the Alzheimer's Association International Conference (AAIC) in Toronto, where a presenter shows the impressive results from the study. Also, a participant in the study spoke about her…
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Dealing with BM Clean up!
Being straightforward and honest here so …DH had a BM accident. After he took his clothes off and sat on his bed with his dirty bum he did get in the shower. Went in to get his clothes and bedspread to wash and almost got sick from the awful smell! I had to leave his room. I felt bad for asking him to bring the stuff down…
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Just a curious observation
DH has severe aphasia to where most of the time I have no idea what he’s trying to say - he can’t come up with the right words. But lately he’s been talking with numbers a lot. Like “where is the 30-50” or “that will be 30 thousand” or counting the number of traffic lights when we’re stopped at a red light. Just a…
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Looking for ideas to a rather specific situation re: mom obsessing
Hi - We moved my mom into AL back in May. She has moderate mid-stage AD and, although she had been living in her own home until then, I had started living with her part time because she was afraid at night and starting to struggle with keeping up the house, etc. The facility we chose has a step up program called "Bridges"…
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Support Groups for DH
Hello Again - I have found so much support for me, as a spouse of a DH, but not so much for my husband, or for the both of us to attend. He is still at a stage where he might benefit from others' perspectives. Mostly, I'm looking for outside validation for things like driving… Warmly, —CydS
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Losing patience
My brother who has power of attorney just brought documents for my mother to sign to receive some payouts from life insurance and the military. Since yesterday afternoon she believes that she got a deposit and has been pestering me about paperwork. I suffer chronic illness. I provided care for my stepdad as he died of…
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My wife forgot her brother died in 2019
I know others have experienced this situation and I wondered if you have any advice for me. My wife told me last week today she was worried about her brother because she had not heard from him in awhile. I wasn’t sure how to respond—I didn’t want to say he was fine—but when I reminded her that he passed away she was…
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Read this- For MCI or early stage Alzheimer’s- slows progression
https://alzres.biomedcentral.com/articles/10.1186/s13195-024-01482-z
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Read this- for MCI or early stage slowing progression
Results based on Dr. Dean Ornish’s 9 week virtual program. You meet online twice a week with caregiver. Program might be covered by insurance if your loved one has cardiac issues. The program is for cardiac patients, but has now started to treat early stage MCI and early stage Alzheimer’s. I am looking into this program…
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Respite
I have been so fortunate. One of my DWs sisters has been coming up every couple of weeks to offer me respite. I just had two lovely nights away and I loved every minute of it, as I can feel that I’m coming to the end of my rope. My DW missed me like crazy when I was gone. Had a nice little reunion and then right back to…
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Seroquel
Based on posts I’ve read on here, I asked my husband‘s neurologist for Seroquel to help with sleep and behavior. I’d like to know from others experiences how long it took for the medication to work? How long before a noticeable difference was noticed? The main thing that I’m hoping for is successful sleep through the…
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Looking for someone to help me launch Support Grouo.
I am the Pastor/Chaplain for Holbrook Acworth. I am looking for someone to help me facilitate a monthly support group at our location.
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Combativeness and Agitation Out of Control
My DH was diagnosed with dementia 15 years ago and his decline has been very gradual but very definite. He's been in memory care for a year, cannot communicate and doesn't understand when I ask him to stand up, sit down, take a sip, etc. He is also incontinent. He is extremely combative and agitated with memory care staff…
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Anosognosia Is Overwhelming Me
I know my DH cannot help having Anosognosia as part of his Alzheimers but WOW is it taking a toll on me. I JUST NEED TO VENT. NO ADVICE PLEASE. I have always been a person who is grounded in facts and science. Now I must try to shift my core personality to accommodate my DH’s lack of understanding of either of these as it…
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Helping Mom Get Help
Hello! This is my first post here and I’m glad to have found this group. Mom is is assisted living and will soon be transitioning to memory care. There’s a lot to that which I will unpack later. My immediate focus is that I have added showering and dressing support to her care list. She can physically do both, but doesn’t…