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Sundowning is torture
My DW is suffering from FTD and is likely past the halfway mark of progression, as if that means anything. Most, but not all mornings she is cooperative with our caretakers and accepts her morning shower and getting up, dressed, and moved into our living area. The afternoon and evenings present the rough spot in her day.…
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Time Marches On
I get mad at time as it marches on, seemingly forgetting that something devastating happened on June 26th. It never slowed down once to take notice. It just keeps marching on—day by day, moment by moment—keeping track of the days without him. Constantly reminding me: It’s been this long since I heard his voice. This long…
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Open to any and all suggestions!
Hi everyone, I’m looking for advice from others who have been through this with a parent or loved one with Alzheimer’s. My mother-in-law, Diane, was recently diagnosed with Alzheimer’s after extensive neuropsychological testing. She is still very capable in many ways, but has significant short- and long-term memory…
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Mother refuses to go to memory care appointment for diagnosis
My mother has been showing obvious signs of some sort of cognitive decline over the last year though may have been dealing with it for longer. She is very good at hiding it because she is quite socially skilled. We had to move my father out of the house they shared and into independent living because she was getting very…
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Thank you
Although this is my first time posting, I have been following this board since the beginning of the year. My husband was officially diagnosed with EOA in January 2022. I was his full time caregiver at home while working from home FT - not easy, and not something that I would recommend to others. This board was such a…
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40hz light therapy
Good morning. I recently saw an article on light therapy and helping with mood and memory. Has anyone tried a 40hz lamp? My mother has advanced Alzheimer’s, but was thinking if it helped her mood that would even be beneficial. Also any supplements that have been helpful? Thanks in advance!
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Sleep issues
My DH is 66 and was diagnosed last year with AD. The dr. said staging wasn't important and different with everyone, so I don't know where he really is right now. We are seeing a new neurologist Aug 7. Lately, his moods are up and down and his sleep is really off. He may sleep 3 or 4 hours and then want to nap all…
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Anger Issues
My sister was diagnosed with dementia in April of 2024. She has recently become very angry with her daughter and myself. It seems that whatever we do it is not right. She doesn’t give us a chance to explain when she misunderstands what the conversation is about. She continues to talk over you and says we don’t hear or…
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He is now bedridden
My DH became totally bedridden a couple of days ago. He can't support his body anymore or sit up in the wheelchair. I asked the nurse what I could do to know if he tries to get out of the bed since he would wind up on the floor. She ordered a bed alarm. So the bed alarm is pretty cool. It looks like a long heating pad that…
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I'm clueless, get frustrated, worried and and and and....
Hi, this is the first time I've come here. I'm looking for some tactics to deal with a few situations. My wife of 31 years has been diagnosed with early onset Alz. She's 69, I'm 62. Aside from the sadness of accepting the life I thought we'd have when I retire in a few years, I'm struggling with some specific issues she…
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Feeling like I'm a target
My brother is home most of the day when he is on days off, I come home from work and my hubby (has mixed dementia with Alzheimer's) and the minute I come thru the door my hubby instantly is talking to me with major disrespect and Moves his upper body back and forth at me. My brother said my hubby doesn't do this all day…
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Lack of energy
My wife is 83 with Alzheimer's and recently she has no energy at all and wants to sleep all the time. Is there something I can do. Joe
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New to the community
I'm looking for support as my husband was just diagnosed with PCA it's early yet but we knew it was coming but I've never had experience with this type of situation so any advice will be greatly appreciated and anyone who is local to me is more then welcome to reach out to me if you need a friend in the community that you…
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Plan to Improve Care for Dementia Patients in Hospitals
Michael Ellenbogen, who is a strong advocate for people with dementia and who has dementia himself, has worked with dementia experts to develop a plan to improve the care of dementia patients in hospitals. You can read more about it in the following link.…
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Notary for Power of Attorney in Pennsylvania - Questions
Loved one has dementia. Some days are more lucid than others. They need someone to handle their affairs though. Loved one has not paid property taxes or filed tax returns in a couple of years. We just paid their property tax for them (5K) although they have the assets to do this themself. The social worker at the memory…
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Bed ridden, never happy, VD
New here. My mother has VD. Broke her femur in May, nursing home in June. She is in physical therapy but doesn't remember her sessions. It's like starting over every day. My visits are filled with her tears, wanting to die, etc. I have stopped going every other day because she doesn't know/remember if I was there. Wearing…
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so how long does it take to get into care!!!
Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…
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mother, 86 years with dementia
My mother is now blaming my daughter for missing items in her home, trouble she is having with her computer and constantly threatening punishment if these issues are not resolved. She gets very agitated and cannot process. She lives alone in the midwest and her family is on the east coast. I am trying to figure out how to…
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Help
I need some advice regarding my parents and how I can best support them. My mom has Alzheimer’s, and as a result, my dad has had to pick up much of the slack around the house. He is 92 and I can see that he is wearing out. I have offered to help as much as I can by grocery shopping, preparing meals, running errands, and…
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Memory Care Challenges
Hi Everyone, My DM has been in MC for about five months after her AL said they couldn't manage her eloping and sundowning episodes any longer. Overall, the MC facility is nice, most of the staff really love my DM so I'd say it is a 6-7 on a scale of 10. The usual issues with lots of turnover which is frustrating. My mom…
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not sure of next step
wife was diagnosed with frontal lobe 2.5 years ago. thought i could handle this myself today she said I wish *** this is the breaking point for me. absolutely overwhelmed where do i go?
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Dad concerning behavior
my dad has Alzheimer’s and vd. He is currently living with me for the past two months. He is not happy about it and frequently upset that he feels he should be able to live in his own home. Last week we spent time in a rental cottage boating swimming with my children and grandchildren. I believe that that he had a great…
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Science Friday: What can moments of lucidity teach us about Alzheimer’s?
I found this to be an interesting interview. No solutions presented, but presents what is being researched. Podcast description: Watching a loved one with Alzheimer’s or dementia slowly lose their cognitive abilities can be heartbreaking. While the person you once knew seems to be slipping away, sometimes people with…
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Changing role as spouse with husband in full-time care
I am wrestling with how to be a spouse when my husband is in full-time care. He still recognizes me, though I know that one day he won't. I feel like I am in an odd space between married and widowed. After caring for him 24/7, I have time now for exercise class, impromptu dinner with friends, shopping without rushing, and…
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later stages and dental treatment
DW is stage 6. Her last routine visit to our dentist was in February. She could not comply with basic instructions and we were unable to get her teeth cleaned. Fortunately her check up prior to that was successful and no issues were identified. Yesterday while eating, a crown fell off one of her molars. I saved the crown…
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New to This...
I am new to caring for someone with Alzheimers. My dad was recently diagnosed and he is only 63. In April, his job required him to complete a "fitness for duty" exam by their occ. health doctor. Needless to say, he is no longer working. He drives very little, just around town to the same places he has been visiting for…
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Would love to hear tips/tricks from people caring for parent with Mild Alzheimers that also drinks
Dad was recently diagnosed with Alzheimers, its in the beginning stages. He's recently had his driving privileges revoked based on diagnosis by his doctor reporting. He is also an almost daily drinker, Id say 4x per week. His drinking, even when he only has one or two cocktails makes his symptoms so much worse eg: unsteady…
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Will not take a shower, bath is not available
My DW will not take a shower. Any thought on how to get to shower?
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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Assisted Living Paperwork Q’s
Present address vs permanent - does it matter? My Mom has been at our home since February. We have never updated her address for anything. I vaguely recall a discussion about Social Security designated payee. Is it necessary to have one? Why or why not? I would like to receive all statements and bills at my address. Her…