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Searching for a baby?
My mom has started exhibiting a new symptom: she is unsure where a baby is and is desperate to find it. She even wanders outside to look in our tool shed! She cannot be consoled or redirected. My dad and I do what we can to intervene but we end up just going along with it until her delusion subsides. My question to this…
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Another night on the couch
My DW in the evening is wanting to go home so I drive her in a loop of 3 miles back home. Then she needs to go to bed by herself. Says she can’t have men in the house. Of course I encourage her that I’m here to keep her safe and watch over the place which is fine sometimes. There is a LOT of discussion, usually taking an…
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Resources
If you are not familiar with Neal K. Shah and the web site careyaya.org, you might want to check him and the site out. I have found many very good tips and explanations which are helpful. Neal K Shah is on Facebook and posts regularly. You can find his many YouTube videos at: https://www.youtube.com/%40nealkshah His…
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New to Discussion Group
I am new to this discussion board; I really need to vent just a little. I have worked with many PWD in long term facilities but having a BIL staying with us at home is so much different. He was in a nursing home in Georgia, and his sister was the one who placed him and was responsible for him at that time. She passed and…
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How to tell DH that I’m getting help
Greetings everyone. Sorry for the long post. My DH is in mid stage Alzheimer’s. We’ve been doing ok so far. I haven’t brought in any help, but I know I have to now. He doesn’t need assistance dressing, bathing or bathroom. He has a lot of trouble speaking, using the correct words for his thoughts and can’t complete a…
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House Arrest
It's been a long time since I've posted or visited. It's four years since since I quit working full time. Husband is progressing. He is still continent and feeds himself but can't do much else expect walk within the house and up the driveway; anything else exhausts him. He is very happy. He is driving everyone crazy with…
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When to reconsider Memory Care?
I've written a few times before about my mother's difficulty adjusting to the memory care facility and a worry we placed her into one too early. In the past the recommendation was to wait longer for her to adjust. We're at the ten week point and I'm still struggling. On the positive side: my father was her primary…
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Alzheimer's Quirk?
The person whom I assist who has Alzheimer's has a quirk that I am wondering whether is Alzheimer's-related. I go for walks with them, and when they spot something on the ground, they pick it up and take it home. Some things they have spotted are a hair tie, a nickel, a small velcro strap, etc. Recently, they spotted a…
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Frequent short naps
Lately, my wife (who is in midstage Alzheimer’s disease) has been taking frequent short naps all through the day. She’ll go to bed and snooze for 10 - 30 minutes, then get up and play solitaire on her iPad for a while, then go back to bed, and repeat all day. Sometimes she comes downstairs after a cat-nap and immediately…
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New here...
Hello, My mom has moderate Alzheimers though we've seen noticeable decline every few months. She is very suspicious of everyone. If she can't find something she's convinced someone has stolen it. She's unfit to drive per her neurologist though she thinks she's fine. She has no concept of what day it is and we've realized…
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How to answer, "I need to go home."
My DW almost every day says, "I need to go home." I tell her you are home and that everything is fine and you are safe. She replies with, "No, I need to go home." I'm wondering if anyone else has experienced this and has any suggestions. Thank you.
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UPDATE - July 14th - Cancer update and thoughts & prayers appreciated...
Update - surgery July 8th went well. I'm home recuperating. I live with my daughter & son-in-law. Thank God for family. Thank you for your thoughts and prayers. I really appreciate them. Love & hugs to all. Just wanted to check in. I haven't been online as much lately. I finished my radiation for Angiosarcoma recurrence…
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Spouse w moderate alz and vd money management
hello. This is my first post. I have been caring for my husband for a few years. His brain woke up after many episodes of jeopardy lol he has had adjustments of meds and his brain received more blood flow. This is great. He can joke and discuss things. He started reading again and connecting online. Here is my problem. He…
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New /but on the recieveing
I knew it was out there 30yrs of giving care recognizing and being supportive now it's my turn. Not very good at receiving help how strange and forthcoming is that? Ok enough of me here's the low down ,married I take it seriously well it started with the drinking and than the falling down than drinking let up to just 2- 3…
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More changes
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What can I expect for my Mom
Hello All, My Mom was diagnosed with Alzheimer's a few years back and has been getting worse. She was just diagnosed with lung cancer and we are looking into treatments/options to take. So my dilemma is, what is quality of life in the up coming few years? Any thoughts on how long till she is unable to care for herself, or…
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Shoe Recommendations for Shuffling/Gait problems
My father recently began shuffling more when he walks which is making him more of a fall risk. I recently bought him a new pair of Sketchers slip in sneakers but with the shuffling he keeps catching the front of his foot when he walks and it is tripping him up. His SNF just recently introduced a walker to him, which he is…
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Jewlery
Any recommendations on jewlery tracker I can get my mom to wear that can’t come off?
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Update on my “plan B”
In my last post I stated I broke my ankle and had NO plan B. Turns out I broke my tibia, fibula and 5th metatarsal and now have a cast to my knee. Absolutely NO weight bearing and No driving. So it’s been a fast course in asking for and receiving help. I looked into home health but no return phone calls but seems I may…
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A Different Perspective Today
Almost nine months since I lost my DW to this nightmare disease. Deep in grief now and hard to see a way out of it. Day to day, it is all I can do for now. And then, as I was reflecting on my situation and that of so many others on this forum, a new view of my situation emerged. I hate being where I am without my DW. But,…
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Memory
My DH has had major short term memory loss. I have realized that it has been about 20 years he has lost. Recently he asked how my Mom was doing. She has passed 25 years ago in a car crash. He then asked if I talked to my sister “Teri”. My sister is Carol. Teri is his ex- wife’s sister. He hasn’t talked to her in maybe 40…
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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New here...
Only child caring for 90 YO Mom. Started with neuro last year, and he diagnosed dementia. Didn't really tell much info. She'd had several episodes of people spying on her, trying to break in, etc. We put up cameras, etc and that seemed to stop that kind of thing. That let us know there were things indicative of something…
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For those of us who feel guilty from time to time
This video has really helped me:
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Mother is seeing insects at night
I am new here. My mother was diagnosed 5 years ago and does fairly well considering. She has recently started hallucinating seeing insects flying on her ceiling at night, and even when she first wakes up. She says they disappear when I come in or she starts getting up. I mentioned it to her neuro after the first event, but…
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Centiloid Score
My SO had a brain scan last fall and I just found out the other day that the Centiloid Score was 147.5. I hadn't heard of this score before and the limited research I have done doesn't sound good. Anyone here familiar with this? TIA
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Shoe Recommendations Shuffling
My father recently began shuffling more when he walks which is making him more of a fall risk. I recently bought him a new pair of Sketchers slip in sneakers but with the shuffling he keeps catching the front of his foot when he walks and it is tripping him up. His SNF just recently introduced a walker to him, which he is…
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PWD easily startled
I find that a mid-stage PWD is easily startled recently. If I appear in their path if they are walking, a PWD is startled and surprised. A quick web search shows it's common as their vision and processing ability deteriorates. It's not clear what type of caregiver action can avoid this. One suggestion is to approach…
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From the NYT: The Pain of Caring for a Parent Who Abused You
Gifted link. C&P into your browser. https://www.nytimes.com/2026/06/15/magazine/elder-care-parent-abuse.html?unlocked_article_code=1.qVA.g6x3.dCf7rxwmWlbP&smid=url-share
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Wearing Depends
My 79 y/o brother has MS and Alzheimer's. He's experiencing urinary and bowel incontinence and refuses to wear Depends. He doesn't wear underwear because it slows down his ability to use the toilet. (He can barely stand and transfer from wheelchair to the commode, requiring a pole for support. Has anyone found a solution…