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Today is our anniversary
DH doesn't remember that it is. I have not mentioned it. He was always the one to remember the dates of everything. Just makes me sad.
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VD and Panic attacks, Fear
My mom has VD and I feel like she is entering another stage of disease. Lately she has been having daily panic attacks and is fearful of many things. I called her today and she was breathing heavily because she said she saw a racoon (which I think was a squirrel) and was scared that it was going to come into the house. She…
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DPOA and Guardianship?
Has anyone here ever had to pursue guardianship despite having a durable POA? For more background the medical POA is springing (it was the only option the CELA offered to us). This summer my DH refused a move from a hospital stay to rehab and I was not legally able to override his decision since he has a springing health…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Just want to apologize
One of our members sent me a PM telling me about M1's partner passing, so I decided to stop by for a short visit. You have given me support and shared your stories with me when I needed it. Thank you for that. My wife has been gone for 2 years and almost 5 months now. But now I feel as though it is in my best interest to…
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How many broken TVs is the limit?
DH gets peeved some nights if I ask him to brush his teeth and he gets worked up if his phone charger is not cooperating & this has led to an eruption of him throwing his phone on a few occasions. Last time he broke the TV. Time before just missed my head. He threw it tonight & I have not checked the TV for damage…just…
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Just some thoughts
Just left my DW and she is sleeping more in her geri chair. She is digressing. I saw that blank look in her eyes and I know more of that will come. She reached for my face and caressed my face with a small tear in her eye. I don't know what that tear ment but I know she is growing weary of this long struggle. I don't know…
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Alzheimer's?
My wife has been diagnosed with dementia, probably Alzheimer's. We have been down this road for about 6 years now. Her memory is very bad but otherwise she has not changed. We lead a fairly normal life with me directing all of her activities. Is it possible she has something other than Alzheimer's? Anyone else having this…
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When it rains it pours - for real
I’m unloading. I need to get this out of me. My DH is probably stage a 4 or 5. Holds great conversations and reads, but his ability to process information is mod/severe. I don’t understand how both occur at the same time. His speech therapist gives paperwork where he has to complete questions such as: name a cold dessert…
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Support groups
Hi. I live in an area that is very rural. Traveling an hour or so to a support group location is not an option. Is there online support groups available?
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Lawrence Welk
Today being Saturday, I had nothing for my DW to watch . So was channel surfing and accidentally I tuned to PBS a channel I don’t normally watch . Lawerence Welk was on and guess what . My DW loved the show remembering quite a few of the songs and most importantly enjoyed seeing the pretty lady singers all “dolled up “ and…
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Rough Week
A couple of weeks ago I went to my dermatologist for my annual skin check. She said a small mole on my back had changed color since last year and she removed it. I found out this week that it was a melanoma. She said it was early…in situ. She is going to have to take additional tissue to make sure to get all of it. I'm so…
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HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Guilt
This cannot be a new subject, although a quick search didn't yield what I was looking for. I am 84, have leukemia. My DH is in ES to MS ALZ and is 89. Several of our children have been doing research on new treatments to slow this down. At least once a week, I'll get a text . or a phone call …"Mom, I read about…" I makes…
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Where to find help
My wife has been diagnosed with MCI by the neurology department at Mayo Clinic. She functions normally in day-to-day activities: cooking, driving, personal care, and interaction with others. What's missing is the memory of recent events: times scheduled for events, meetings, community events. According to the tests, some…
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Ok - Need advice and suggestions multiple languages
I’ve become my mom’s full time care taker a few months ago. I sold my house, remodeled their basement and moved in to stay with her. My mom was my best friend we had fun together and did mostly everything together. She is 78 and we’ve been fighting this crappy disease for 4 years; unfortunately she is getting worse.…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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What stage and how long will it last?
I know every one is different but just wondering what stage and how long will this last. MY DH has gone from being angry and obsessed about driving to wanting sex all the time. He will not leave me alone and is always asking me if we are husband and wife. When he doesnt get his way he sulks and make comments under his…
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Facing the move to memory care
I have made the decision to move my DH who has late stage Alzheimer's to a small residential memory care home. He will be moving on November 12. The physicality and relentless needs of his care have simply become too much for me to bear. I have no idea how to face this move or make it a lighter burden for either of us.…
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Urinary Incontinence/retention
My brother lives with me and is struggling with urinary retention. He has Alzheimer's and Down Syndrome. One option that has been mentioned as a solution is a Suprapubic Catheter. Does anyone have experience with this?
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…
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Medicare GUIDE program
8 year program to provide help- hopefully a good start & will expand . 2 links below.
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Hospice at Home and Private Aide
Does anyone hospice at home but hired an aide to help? I am deciding what the best course of action is. It is less expensive to hire a live in and have hospice come to my home…I'm worried it will still be too much for me to handle. My mom is frail and is recovering from broken bones due to a fall. She is in pain, no longer…
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…
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Time change
My husband is so confused and upset about the time change today. He just doesn’t understand when I explain it to him. He thinks something is going on that is bad, something is doing this to him. I thought things were going better the last 2-3 days, now this. Guess that’s the way it is. Will I ever get used to this?
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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NY Times: Can Crosswords and Games Prevent Dementia?
Gifted link good for 30 days. Can Crosswords and Games Prevent Dementia? Experts say the answer is a puzzle. https://www.nytimes.com/2024/10/30/well/mind/dementia-brain-training-puzzles.html?unlocked_article_code=1.WU4.wf9A.a9CM36TJzQcw&smid=url-share Main take away: Perhaps Dr. Gandy summed up the debate best: “I don’t…
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My DH has lost his dentures
We are in our second year since diagnosis (probably 4 years since onset), and are somewhere in the fifth-sixth stage of ALZ. He has stopped wanting to take his denture out when we go to bed, so we have been cleaning it in the morning. Sometime last night he took it out and has misplaced it. I have looked everywhere for it,…
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Interesting (and untimely) legal lesson about cremation: should I have just lied and told them we w
I hope this might be helpful to someone else, for me it's been a huge headache and unnecessary firedrill on an already fraught Friday afternoon. And importantly, something that neither my memory care contacts nor the hospice social workers were aware of. And that the cremation company didn't catch until this afternoon,…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…