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Hiccups
My dad has been diagnosed with both Alzheimer’s and Lewy Body dementia. One problem we are running into is that he always has the hiccups. It has been going on for almost 8 months. Medications do not work. Neurologists said not real tested to disease and primary says it does. In the meantime nobody is looking into the…
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Dementia Cruises/Vacations
When I searched this topic, I came up with a thread from a few years ago. Has anyone had recent experience with a travel company that takes specialized trips for PWD and their caregiver?
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writing to you all here helps so much
Hello dear community, It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time?…
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Mom fell!
My mom fell a few days ago (was using her walker just like she always does) and it was right after she woke up to take her dog out so she was probably a bit groggy and it looks like she either lost her balance or her knee buckled but she went smack down on our sidewalk leading up to our door and fractured her pelvis in 3…
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DH now in MC - give it time-update
I moved my DH into MC late May. He is early stage 6. I got him there by saying our hardwood floors were being refinished and we are staying in a hotel. The first 6 weeks were absolutely awful. Highs and lows but mainly lows. He went from being continent to incontinent. He refused to eat. DH went from going in and out of…
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New to this disease
Hello everyone, I am not too sure what I'm seeking here, maybe a place to vent my frustrations, maybe advice or a friendly sentiment of I'm not alone in this journey. My father was diagnosed over three years ago with Dementia and Alzheimer's disease. His wife did an amazing job of hiding it from everyone until that was no…
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From the NYT: I’m Losing My Memory. Why Is My Husband Being Insensitive About It?
I thought this was a sensitive reminder of how emotional intelligence remains in dementia/memory loss. I liked, too, that the experience of the spouse was also explored. It should be a gifted link.…
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Seizures, are they part of the journey?
My DH, just turned 56, diagnosed with FD and EOAD, has had what I thought were dizzy spells. He's had 5 in the last 12 days. He's aware and alerts me to what's happening, they last about 15 minutes and his arms shake with exaggerated motion. The doctor thinks they are seizures and has ordered a CT scan. Is this normal,…
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life after memory care?
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DW Seizure
My DW who has been living with ALZ for 7 years (64 yr) had a seizure last week ( first one) about 9:30 AM in the morning. The seizure lasted about a min and to see your wife in convulsions was really shocking for me to and called 911. The EMT checked her out and although she was out of it all her vitals were ok and did not…
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Thinks she is in a new room at MC
Having her room moved has been a theme with mom for a while (even in AL) but does anyone know why after I get her a shower, she routinely thinks we are now in a different room? It is like going in the shower changes her whole perspective.
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Sister is having trouble utilizing bathroom
My sister recently went into MC, 1 month, and she is not using the bathroom but peeing in a trash can. She also does not bath properly so she smells. when the help assists with the shower my sister will only get wet and then get out. My local sister planned a meeting with the facility to see what we can do about my…
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Who am I?
Just thoughts … Year 5 since DH was diagnosed with vascular dementia. Looking back I realize how naive I was. Not knowing what to expect, what to ask, how to help him, how to help myself. And not surprisingly I still don’t know much! There are no answers! You think you’ve got it and then bam everything changes! I know that…
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Medication Dispensers
Hi friends. I’m looking for guidance on locked and timed medication dispensers. My Dad was diagnosed with Alzheimer’s a year and a half ago. He’s still living independently, and fortunately we live in the house right next door. He takes medication three times a day and I’ve been delivering his medication to him for…
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Another dementia milestone - Mom is moving to memory care
It was just 2 years ago that my mother was officially diagnosed with dementia at age 94. I'd estimate she was early stage 4 at the time. A few months later, in October, I made my first post on this forum feeling guilty for "pulling one over" on my mom by conspiring to have the doctor tell her to stop driving. She's been…
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Sundowning - Changes when new people arrive
Hi, my 80 yr mom seems to be having some severe sundowing with Agitation and hallucinations . On the worst nights, we have gone to intervene for my step dad. When my husband walks in (or EMS or police) she seems to snap back into reality and becomes herself again. Is this normal?
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Sundowning???
my LO has been on the phone all day now until late at night talking to his buddies from years ago 🤔He has never done this before. It’s almost 9 PM and he’s still talking, I’m confused!
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How can I utilize the medical system to physically move mom to a facility
I am an unable to sleep regarding my mom's dementia and steady decline. It has been deemed by the neurologist provider, that she needs a higher level of care which I have known for sometime now. I am a nurse, but, am the daughter in this situation. My brother has been staying nights with her for over 2 months now but still…
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Hospice care
MC just called. Long story short, reviewing progression, they want to put her on hospice care. It’s hard for me to not feel this is it. They explained it just means she’ll get. A lot more care. Thoughts?
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Newly diagnosed
I’m 54 and was diagnosed formally 3 weeks ago. Having a tough time dealing with it, but I’ getting help, have lots of support and understand that all these emotions are pretty normal. I had my first Leqembi infusion last week and am hoping that helps. I am just not sure what to expect in the near term and could use some…
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A helllful
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Lost
I'm new to these discussions and I feel completely lost. My DH has become increasingly detached from reality. He doesn't know me at all. He thinks I am mean, even though I do everything for him. He daily wants to "go home" even though we are at home. Has anyone else had this experience?
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Wife has stocks in her name
my wife has some securities in her name, what can be done if you don’t want to sell just now, can you have transfer to my name or what to do??
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Tests and medications
Here is a philosophical question for everyone to ponder. As healthy human beings, we all do what we can to insure as long of a life that we can have. We eat right, we exercise, we take supplements. We do all the tests that is required by our age group like mammograms, colonoscopies, and so forth. We get flu vaccinations,…
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…