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Feeling nauseous, sweating, shaking
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Awareness and denial in those with A/D
My situation is that my mother-in-law has some level of dementia, whether it's early or later stage I have no idea. My wife and I live 3 hours away from my MIL and we visit regularly to try to help support her and the family members that live very nearby, and deal with her every day. Because we are so far away, we don't…
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Need tips for keeping DW in her home as this progresses.
We are clearly in the stage now where I cannot do this in our home by myself. I have set up paid companion care 3 days a week, 5 hours per shift. I think I can also get some help from family for a few hours a week. I am continuing to look at placement and make sure I am educated and prepared if it comes to that. We live in…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Dad not adjusted to care home
My dad has vascular dementia, blood cancer and a head injury. He is wheelchair bound and earlier this year we had to put him into nursing care. Dad is verbally abusive to staff and keeps trying to get out of his chair and bed as he hates the nursing home.The family shares visits so we all get a break. We all feel upset and…
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Caregiver webinar
Michael Ellenbogen sent me this caregiving seminar to share on Alzconnected. We are excited to announce our upcoming webinar, Bridging Care: Training Providers to Integrate Family Caregivers into the Healthcare Team! We will explore real-life caregiving experiences, and introduce the “Caregivers As Partners in Care Teams”…
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What's the worst that could happen?
Setting the scene: My mother has three pieces of property, a springing POA and a stubborn streak the size of Jupiter. She is currently between showing signs between stages 4-6 of dementia (not my first rodeo with the disease). It will not be long before she needs supervision. Issue #1: She refuses to see a doctor. Issue…
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Shuffling and Gait Changes
How many of you have observed your LOs developing shuffling and stiff gaits. My DH has recently experienced an acceleration of these symptoms. I suspect he is transitioning from 5 to6.
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New obsessive behavior
My 94 yr old mom with dementia has always enjoyed listening to music, especially the music of her youth. She sings along often, remembering the lyrics. I have searched for and found about 25 CDs of very old music that she enjoys. In the last couple of months, she has started clapping with the music instead of singing. It…
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EOAD and Amyloid PET Scan
DH just saw a new neurologist and she is trying to get an amyloid PET scan for confirmation of EOAD or FTD. MMSE is showing he is in stage 2 with mild dementia. No longer in the MCI category. Have any of you had the scan? Did your commercial insurance plan cover it? The doctor said it will reveal EOAD so we can talk about…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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I don’t know what I’m doing
Hello, I am 25 years old. My mom (58) was diagnosed with early onset alzheimer’s recently. She was originally diagnosed with FTD last year, but due to genetic testing that discovered she has 2 copies of the APOE4 gene, her neurologist changed her diagnosis to EOA. Both her parents passed in the last few years from…
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Ethics of car buying
We put my parents in memory care months ago. Dad has a relatively new used car, while my car is getting old. I want to buy his car, in fact family and neighbors have told me I should. I am Dad's POA, so bill of sale will be between me as POA and me as me. Check will go from my account to parents' account which I use to pay…
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Driving
My friend has an at home caregiver. She has not driven her car in four months. The aide or I take care of the driving. She had a dead battery which we fixed. Now she wants to drive it, just around the corner. I suggested I drive. She did not want that. She wants to drive with me..I do not want to be in the car with her.…
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Service dog
My wife was diagnosed about 3 weeks ago with Mild Cognitive Impairment with Alzheimer's pathology. She's 64 years old and I'm 54. I don't remember who brought it up, but the idea of having a service dog was discussed. My wife has pretty much always had a dog. Right now we have a 13 year old American pit bull and a 2&1/2…
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literally impossible mom
Hello. This is my first time here so please let me know if I'm the right group. I'm looking for advise and or to hear from other people regarding my impossible mom. I don't want to type out the whole story unless I'm in the right group. Is this where I would tell my story and see who has input, similar problems ?
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Should we proceed with testing
my husband has mci(22 score on Moca). We went to neurophysiologist and he ordered a in-depth test. My husband has severe sleep apnea that took almost a year to correct. He was having 36 episodes per night. The neuro wants the test because of that and his low score. my husband feels conflicted to get a diagnosis it just…
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traveling with spouse with dementia- beginning stages
Husband has posterior cortical atrophy so forgets things easily, has no peripheral vision. But we love to travel. Considering the Caribbean to escape MN winter. We love to walk together. Plan to stay in one place from approx march 3-10. any ideas? thanks. Lois
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What do you need to provide for a live-in caretaker?
I am considering hiring a live-in caretaker for my father. I am having trouble finding much information about what sort of living environment you need to provide for the caretaker. Any guidance would be appreciated. To provide some context, my father's house is not in good repair. I would not want to live there but my…
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Getting support for my dad who is my mom's full-time caregiver
Hello, first post here, hoping to get some different perspectives. My mom was diagnosed with early onset alzheimer's nearly 8 years ago (I think) right around 60 years old, though she likely could have been diagnosed earlier, she had been showing symptoms for a few years at that point. My dad has always promised her he…
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looking for advice for "chattering"
For a few weeks now, it has been non stop repetitive nonsense coming from my DW combined with the intense shadowing which means she is rarely more than an arm's length away. I know ALZ is not a mental illness, but that is certainly how it looks and feels. I get to listen to her lose her mind in real time, non stop. Nothing…
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Any tips for a caregiver to work out?
I’ve tried 5 caregivers. Every time, my DH (stage 6) likes them the first day, after that doesn’t want them around. Follows me everywhere very agitated. I’m tired and need help. Caregiver # 6 is starting Monday. So far she is the best I’ve seen, a CNA, works in hospice lots of experience. Very passionate about her work,…
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Suggestions for remaining patient with a parent?
Hello, I'm new here so here's a little introduction before my question: my 87-year-old mother has dementia after several years of living with MCI. My sister lives close by and handles my parents' finances and a lot of other tasks that are too much for them. I live on the opposite coast and do what I can from here, and I…
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first visit to memory care
I made my first visit today to see my DW in memory care. She's been there just over a week. I was advised to stay about an hour and to arrange a signal with the staff so I could excuse myself "to go to the bathroom" and leave. It was hard and terribly sad to see her. DW said over and over, "I miss you so much." She asked…
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Jay Leno caring for wife with dementia
https://www.foxnews.com/entertainment/jay-leno-stands-marriage-vows-faces-challenges-caring-wife-suffering-dementia
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Help! In need of a break
Hi, I am a new caregiver. About 2 months in, my husband and I took over care of his mother from another state, living with us now in our home. She was so much worse than we were led to believe. She needs to be watched 24/7 and we are well aware that it will only get worse from here. We are looking for some kind of…
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Won’t let me help clean him up
This is not a nice topic, but you all know how it is in this forum. 😉 DH is at the point where he isn’t cleaning his behind well after using the toilet. We both have always closed the door when we used the bathroom throughout our long marriage. So now when I knock on the door and ask if I can come in or if he needs any…
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Long Geri-Psych Stay!
At the end of last month/beginning of this month, I posted that DH had a complete mental breakdown at his rehab center, where he was recovering from a fractured tibia. He was transferred to the local ER. Here's the update: After 2 days in the ER, on April 2, he was transferred to an inpatient Geri Psych facility. He's…
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Mom Making Up Stories
HELP! My mom has dementia. I don't know what type, because her primary doctor has been treating her for "memory" issues for several years. She began with taking donepezil and now memantine has been added. She is also on an anti-depressant and mood stabilizer. She knows all her family, so that hasn't been an issue. However,…