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Our last mile
*posting in spouse/partner forum too Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct.…
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Mom is at peace now
My mom has ended her journey with dementia. She became ill last week at her memory care facility and ended up in the hospital for 5 days. They did as much as they could without going to extreme measures. Probably more than she would have wanted. They made her comfortable and she passed quickly and peacefully. I didn't post…
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Not eating food
Hello I am from India My grandmother has dementia she forget daily tasks but remember family members. Now she is not able to eat food Md difficulty in walking while standing she rejects to walk.She prefers to sleep only as much as. Kindly suggest me how can i make here to. Regain eating and walking activities
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Trying to understand the crying/sobing
Every time one of her kids visits her at the memory care (every 2 days ) , she is lying on her bed crying and often sobing.. It take at least 15 minutes to console her (she does not know why she is crying ) and then everything is ok , and she is in a good mood when we leave . Is she really in a turmoil or is it the brain…
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Haven't spoken to aunt in months with dementia
I live out of state. Aunt has dementia and incontinence. She has family who live closer. My cousin was good about giving me updates on my aunt when she wanted me to come and take over. Since I drilled that that was impossible, I rarely hear from her. I sent cousin a text asking how she was doing. She hasn't responded. Aunt…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Cooking doesn’t get much easier
Super Easy Mexican Chicken 1 can cheddar cheese soup 1 can cream of chicken soup 1 can chicken breast small or large can (I don’t see much difference) 1 can Rotel tomatoes 1 small can diced green chilis Flour tortillas About 4 oz. Mexican cheese Mix first 5 ingredients together Lightly spray PAM in 8X8 or 9X9 baking dish…
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Journey's end
Fellow travellers on the dementia journey: for most of the last 17 years I have been a sporadic visitor here. Apologies for being out of touch so often. I have always found this place to be a great source of support on my caregiving journey and I am grateful to so many friends whose location and names I will never know.…
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Your humor for the day...
I posted a few days ago a question about men's briefs and it was suggested that I purchase male "guards" as a way to combat the beginning urinary issues….several people answered, and then, today, we had this new turn of events. I thought folks might enjoy…. Well, a chuckle for those who answered my initial question…..DH…
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Transition to MC Planning
We have had a really tough couple of weeks leading to a MC move decision. I am looking for insights from those who have done the MC placement. I think I have a fiblet that could work for the transition - I am not well, too fatigued and I have to go in for tests and likely TCU and the medical folks arranged for him to be at…
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Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Scan, Ankle Brachial, and Heart Monitor. The initial discussion with the doctor is Dementia. Also, what are the common…
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Picking at skin
please help! My husband was diagnosed with Lewy Body dementia. He picks at his arms, face, hands, ears and legs. Today he picked at his hands from morning to night. I can’t keep him preoccupied long enough to stop. I put bandages on him but he takes them off. I’m at a loss and he’s getting more and more open areas…
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Taking the car keys
Hi - I'm new and this is my first post here. My 86 yo dad has been diagnosed with Alzheimer's and dementia and was told not to drive by his Neurologist at the time of diagnosis a couple of weeks ago. I took the key fobs but he found the backup manual keys. I am trying to avoid a confrontation when I take the remaining keys…
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Feel Lost, Need Advice with Mom's Dementia/Alzheimers, Living and Depression
Mom was diagnosed 3 years ago with dementia. We believe she is about 5 - 6 years into it though. She also has severe depression, diagnosed 30 years ago. She is in an AL, but absolutely hates the place. This is her 4th home in 3 years, and the smallest so far (IL, AL, MC, AL). She is again in a severe depression, they seem…
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Are PWD capable of any kind of understanding of consequences?
My DH is probably in stage 5. Recently he has been accusing me of having a boyfriend and going out on dates when I am not visiting him. He is very crude in his description of what I am doing with this boyfriend, and does not believe any of my assurances that this is not true. I can't seem to get him off the subject and he…
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Defeated
My LO is borderline late moderate early late stage. A scan for a separate ailment shows what is most likely cancer. As upset as I've been part of me doesn't know why as the Alzheimer's is terminal in a sense. I'm alone and am crushed.
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From Maybe to Reality
This past week, I poured out my feelings of guilt about being impatient with my DH to our pastor. Ignore any lack of compassion for the caretaker here, I wasn't looking for that. The entireity (sp?) of his response was who was treating him, was it a local doctor and how I needed to take him into the nearest large city to…
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Try to keep control in the very early stages
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Incontinent briefs
I ordered 3 pair of incontinent briefs for DH, trying to find an interim solution for the drips and dribbles. I am pleased with the quality but surprised by one thing…the width of the crotch. I wondered if anyone considered this: the crotch from edge to edge is over 6" wide, exactly between the legs. Surely that is going…
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It’s Time to Get Help In the House
Hi Everyone- it’s time for me to begin to have some help here at the house. My wife will hate it but I can’t safely leave her alone anymore. Ugh! I have several options that I know of, and they go from high end to “not sure”. $48/hr to $15. Highly credentialed to more of a crap shoot (which this whole thing feels like no…
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Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition 9 Have not I commanded you? Be strong, vigorous, and very…
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Looking to connect first time . New
Hi names Tom , caregiver for wife , she has Alzheimer little over 3 years , middle stage and struggling . We both are . Finally reaching out . I am turning 80 in May , this is the hardest thing I have ever done in my life . And saddest . Married 63 years , who would have guessed . Don't know what else say right now , but…
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Now I have time to be sad
I hope this is not inappropriate. My very, very elderly LO is safe now and in a steady decline. The analogy I use is that mentally and physically it is like a train slowly pulling away. But I tell myself that she is well looked after and treated with respect and affection at her MC. She still seems to know me and is not…
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Delusions of Persecution -- What to do?
Brand new here, so I apologize if this has been covered before elsewhere, but I'm at my wit's end. My mother has been living in the early stages of Alzheimer's for a few years now (forgetting things, no short term memory, having more and more trouble completing thoughts). Just recently my Dad had a (minor) stroke and was…
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Clogging Toilet
Good Morning! My father keeps clogging toilet - I believe he is flushing too much toilet paper down toilet. Any advice for this?
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Scared and unsure
Iam so new to all this I apologize I just don’t know where to turn. My husband is showing signs of memory loss and it’s scary. I’ve got him to go to his pcp but I have no idea what is ahead. Iam having anxiety attacks and can’t seem to function well myself. This is a hell. I am just reaching out because I have no one to…
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Thank you all!
In my last post, I told how DH had the car key. That night, he left the key in the car while he was packing to go home, again. He asked me if I had the key, I reminded him that he had it last, but I knew the key must be in the car if the doors were unlocked. So, I told him I would help him look and sat in the driver seat.…
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New here and overwhelmed
Hello I am currently caring for my husband and am overwhelmed. The Doctor just confirmed he is in the early stages. Presented some approaches to dealing with this including the infusions. I shared this with my husband today and he didn't express much interest. Said it sounded like it wasn't safe and just not worth it. I am…
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Not taking it well...
Hi, I am totally new to this...writing and my husband behavior. I also have a hard time with sharing about our life but my daughter told me...mom find some group for your self I can't help you. My husband developed sings of dementia last year in february which we didn't noticed right away. It has been getting slowly…
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Car Keys
I have kept the car keys away from DH for several months now. Just now, he was verbally abusive and aggressive about the key fob that I had. He badgered and threatened until I gave them to him. I am so afraid he will drive off now. Though he just went to the garage and came back in. What do you do in these circumstances?