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Adult Daycare?
Do any adult children caring for parents use adult daycare? In the past year my dad has lost 25 pounds and his memory is rapidly declining. Excessive outbursts anger. Also experiencing fatigue and anxiety. My mom manages this with my help. It has been effecting my mom to be the constant security blanket for him. Do others…
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Visual issues related to Alz
Hi - my wife has some issues seeing, but it's not necessarily related to her vision. Sounds strange, I know, but it's like a connection/comprehension of what's in front of her. Is this common?
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A Smack of Reality
I have been struggling so much with getting my thin skin hit by complaints from my DW in Stage 6. I realize that so much of it comes from me still carrying denial that this is really happening. Imagine that. Denial still after nearly 7 years when she's also clearly now in Stage 6. The smack of that reality really hit me…
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Some info on elder law attorney fees
An excerpt from Forbes magazine that came across my feed. Hiring An Elder Law Attorney Sorry, scroll back to slide 1 of 7 to start article.
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Blood test results - concerned
Received my blood test results last week and they seem concerning to myself and my husband. Haven’t heard from the NP to discuss the results. I called and left a message - feeling frustrated Phospho-Tau(217), P plau217, P 0.313 pg/mL High REFERENCE VALUE Negative: ≤ 0.185 pg/mL Intermediate: 0.186-0.324 pg/mL Positive: ≥…
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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Mental illness and memory care
Hi all! I'm facing a decision about increasing my mother's level of care, and I'm getting very different messages from professionals. I'd appreciate any advice or input you have about what questions to ask or factors to consider. My mother has longstanding mental illness with various diagnoses that features an explosive…
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Sleep
Briefly, my DW was diagnosed in 2019 and is well on her way into the journey. Non verbal (except jabbering all day long, assistance with everything, etc.). So we entered a new phase a few months ago of my DW not sleeping through the night. She has been on lexapro almost from the beginning and risperidone shortly…
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Bidet Toilet Seat
Has anyone tried a bidet toilet seat with their PWD? I have been thinking of getting a non-electric one (HWD can't use remotes or anything other than an on/off button). I was going to get one for my bathroom and then, if he can figure out how to use it, eventually install one in his. He is still continent, but that could…
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memory care bail out
Well I thought I had done it. I placed my DH, probably early stage 6, in a local memory care facility. I had looked at every likely place and decided this one was the best. No health department citations, many many positive reviews. Chickens and bunnies. I had visited 4 times. It has lots of activities, though I knew he…
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Long term care
I am new to the forum. I woke up a week or so ago and was just researching things on ALZ, and came across various discussions. My husband is from a large family (20 siblings and 7 children), and dementia runs in his family. I had some idea what was ahead when he began to have cognitive issues, but I was optimistic that we…
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NYS CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)
Anyone live in New York and get the CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)? I am thinking of moving back to NYC with my PWD because I suspect rates and services through Medicaid there might be greater than what we hav ein rural Mass. Please share what you know. Thanks. PS we have a place to live so no…
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Mom and Stepdad diagnosed with dementia, Mom and 1 sibling in Denial
This is my first post. I feel overwhelmed. My mom has always been very selfish, conniving, and manipulative. There are 4 kids; sibling R is the golden child (we know it, she knows it). Several months ago mom and her husband were involved in several scams that they carefully hid from us. According to their bank records they…
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Relative and Finance Issues
Thank you for the responses! I really appreciate the advice and support!
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Newly Diagnosed Parent with Dementia - Feel Stressed and Overwhelmed
My 80 year old mother was diagnosed with early Dementia earlier this year. She is also bipolar (diagnosed 30 years ago). It has become very difficult lately as she thinks she does not have dementia - she has forgotten the diagnosis from her neurologist. She told me yesterday her psychiatrist told her she doesn't have it.…
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Mom 89 has alz dementia is having anger and agression
Mom was diagnosed about a year ago and is now having anger and agression issues. She's taking medication for the moods but its not cutting it. She has good minute and bad minutes and back to good again. I was going to say good days but felt that wasnt correct. I believe she is still capable to shower and take care of her…
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Meeting with friends?
My DW and I are traveling in our RV and find ourselves close to a couple who we first met over 50 years ago. He and I worked together, our kids were the same ages and attended school together. Although we live two states apart now and have for 25 yearswe have visited in person every few years stayed in touch online. The…
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New to this. DH with MCI due to AD
Hello. I'm so glad I found this support. My DH, 66 yo, was diagnosed with MCI due to AD in July 2025. I noticed ST memory loss for about 5 months prior, had his PCP do a MOCA where he scored 24/30 which led to Neurologist, PET (significant beta-amyloid plaque), pTau .33. He failed Aricept due to GI issues; is now on…
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Mother rejected from two memory care facilities
My mother was rejected from two memory care facilities.Because she did not want to stay there and wanted to go home. We're running out of options and we're not able to get her the care she needs. She is staying in a mental health facility, and they're wanting to discharge her. We are unable to care for her. We don't know…
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Odd Behavior
My DH was diagnosed with MCI about 3 1/2 years ago. He has never officially been diagnosed with AD or Dementia although it is clear that he has it. I estimate he is probably in the middle stages of Dementia. He began several months ago when we would be out in a store he would walk up to some stranger and ask them to either…
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Caring for My Dad (65, Alzheimer’s) — Looking for Guidance
Hi everyone, My dad is 65 and has Alzheimer’s. He’s still in good spirits, but his abilities are getting more limited. He can’t really make meals anymore beyond grabbing something simple, and he needs reminders and some help with personal care like shaving and showering. His speech and understanding are also very limited.…
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Positive experience with Palliative Care
First I would like to thank all of the wonderful knowledgeable people on this platform that have helped me over the last couple months since I started visiting and learning from everyone. My husband was diagnosed 6 years ago with Mild Cognitive Impairment. Eighteen months later, during Covid, he was diagnosed with Multiple…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Rehoming
How do I help my mother understand she is living with me now and can no longer go home?
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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When do you call hospice?
I know my DH is not there yet but he is very advanced and progressing very quickly. He is not bed ridden and my intent is to keep him home but are there signs to look for as far as calling hospice. I'm sorry if this seems like a stupid question but I am curious to know how and when others handled this. Thanks to all of you.
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Looking for a support group
Hello, my DH has EO and is only in his 40's. Does anybody know of any support groups I can join. To help me?
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Using or borrowing person with incapacitated persons car
I am my parents with dementia poa and they are officially incapacitated and in memory care. I am cleaning out condo. We're donating most stuff, shipping other stuff. she has a nearly new nice car. She has said "take my car. It's new and very safe." can I legally take her car for my personal use in a different state than…
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New to this site and need advice
my DH was diagnosed 2 years ago with MCI due to Alzheimer’s and has been progressing so likely now moving into middle stage. He is on lots of meds including the newest transfusion treatments that he receives every 2 weeks. He can still do daily tasks and drives short distances. We are in Greece for a 12 days cruise as I…
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No clue where we are in AD
My DH was diagnosed this summer with AD. I knew the last couple of years things weren't right, but he thought it was his bipolar issues. The neuro we saw just explained to us what AD is and what it does physically to the brain and then said he had to start Donepezil and take IV treatments. (He has not started the IV…