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This disease has made it impossible to _______
Any one of us could fill in the blank, this disease has made it impossible to_________. I have many answers for that blank, but my current answer would be, to dress my DH. Putting on and taking off shirts, especially over the head has become impossible. He fights it, and having a contracted left hand plastered to his belly…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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First Time I Couldn’t Wake Dad Up
My dad is in MC (stage 6, age 92) and has been sleeping more and more this whole year. He is almost always in bed asleep when I visit in the late afternoons. I am told he is often up for a few hours in the mornings. I work full time and cannot visit weekend mornings either. Usually he wakes up when I arrive, and I get him…
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Technology Question
Hi all, I am lucky enough to still work and have part time care at home. DH has lost the ability to use his phone (no executive functioning). At the beginning of the year I purchased a Memory Board to set up reminders (that I had fed the dog, that I would be home at X time, etc.). For the first few months he checked it…
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…
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Mom making dementia/ALZ assessment spreadsheets
My mom, (mild-mod ALZ), (AL w/no leveled support) loves making spreadsheets on Google Sheets. I have access to her acct and review it daily to see what she is up to. She makes lots of lists and writes letters to companies and friends and it is a good look into what she's thinking. One spreadsheet she makes is copying and…
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Sad realization
We are visiting our grandchildren and yesterday while playing games with my DH and 4 year old grand daughter I realized she got the rules quicker than her grandfather. She kept saying, “It’s ok, and your color is red and mine is blue etc. while playing Candy Land. He could not keep the pieces straight or match the colors.…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Just another day
I took my DW out shopping for a new pair of sneakers, found a pair she loved. The next day we were going out and she wore the new sneakers and raved about them. When we got home she put them back in the box and placed them on the couch. The next morning I noticed the sneakers were gone from the couch but didn't say…
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Mushrooms
My son, always holding hope found this article in the NY Post. I don’t discount the possibility of magic mushrooms providing temporary lucidity. Would love to see your thoughts. https://nypost.com/2026/06/04/health/alzheimers-patient-recovers-speech-continence-and-memory-with-this-drug/
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Shock at seeing the reality of dementia
Our local library held its first Memory Cafe yesterday…for caretakers of people with dementia and their partner. My DH is in early Stage 4 and seems "normal" most of the time. There were several people there who were quite advanced in dementia. Although I have read everything about dementia and watched numerous videos, I…
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Over 80 at time of diagnosis
Has anyone had a LO who was diagnosed after 80 and if so do you feel like their age advanced the dementia timeline?
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massage or facials for ALZ moms
Do any of you have any experience with your LO getting a massage or a facial at a spa? I was gifted an hour massage, followed by an hour facial today. It was heaven and I couldn't help thinking, during the facial, if my mom could have a facial and enjoy it. I'm not sure she ever has had one (professionally). I know that as…
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Room to Room
We have a bathroom that’s got two doors, one from the hallway and one from the kitchen. You can literally walk into bathroom from hall, go through it and exit on the kitchen side and walk around back to hallway and complete the circle. Well that’s what my DW with EOAD has been doing literally for the past hour or so. It’s…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Sleeping in everything
He's wanting to wear his glasses and sneakers to bed. The glasses press into his skin and irritate it if he does keep them on in the night. He has very oily skin so it builds up under the glasses as well. The sneakers aren't bothering his skin right now but I do worry that they may contribute to pressure sores in the…
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Insults
DH just told me that the truck that just drove by us has a picture of me on it! It was a pork truck with a big fat pig on the side! It hurt but I let it go. Looking at my grandsons HS graduation's pictures and DH said wow Look at those bags under your eyes! Cried and walked outside! Do not tell me it’s the dementia he has…
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Will My Marriage Just Vanish?
This is just a therapeutic post on my part. My wife and I were married 30 years ago, and we have lived in the same house the entire time. Our 30th anniversary came and went with no fanfare, as she has not understood any significant dates for over a decade. Dementia has destroyed ten and a half years of our marriage. As…
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Dilemma about Memory Care
I have two questions: First, almost universally the memory care facilities I have visited say you should place your person sooner rather than later. I wonder what the evidence is for this, or whether it's easier for them to have less impaired people. What I see, almost everywhere, is people who are mostly pretty far along…
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New to this site & in distress
My DW of 55 years was diagnosed with AZ, VD, LB in December of 2025. She has a wide range of health issues, which I have helped her handle for our entire marriage, The latest issue that I have struggled to deal with is her diabetic control. She has been a diabetic since she was 12YO. She has had an insulin pump for nearly…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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shaky departure on a low staff day for dad's memory care plus recent "unwitnessed" injuries
Hello all, Dad really wanted to come with me today as I was leaving. He hasn't done that for a while, so I was out of practice. It was also a very low staff day today. For instance, I had to ring the doorbell three times (with long wait periods in between) for someone to come let me in. So I know there's a pretty good…
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Resentment
I’m finding it difficult to “do all things with great love”. My DH is really unable to follow through on any request, “put the screwdrivers away” “take out the trash” “put in a new trash bag” “feed the dogs”because he can’t hold onto the thought long enough to complete it. He used to be able to follow a one step direction…
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might b helpful for extra support for a loved one
i just rang 0330 053 2617 and got through to a company I believe called Kinly who were simply wonderful and felt I must share with anyone looking after someone with alzheimers. i saw it on the mirror this morning that the supermarket Iceland are involved in something where you can check for free if there’s any extra…
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Medicare Coverage
Can anyone share what their Medicare provider covers for in home care and memory care assisted living
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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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A poem
To When You Used to Know Me Living in this painful present, My days are overcast. Watching you disappear, Grieving the loss of all that’s passed. I can’t bring back our yesterdays Or share my memory. I can’t take your hand and lead you back to when you used to know me. When I lay you down beside me And think about…
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Moving out of state and need to chg Medicare Plans
We are moving to NC from CA and must select a new medicare plan. We currently have a MC advantage plan but have heard switching to original medicare at this point, since we are able to switch with the move, might be the right choice. I believe there is no health qualifications to switch during this time. DH has VD with a…
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Explaining the Concept of Time
First, thank you to all who generously contribute to this space. I’ve been benefiting from your wisdom for some time even though I’d found it hard to bring myself to post. I was wondering if anyone had any suggestions on how to deal with the confusion regarding time. My DH is in the moderate to severe stage. I calculate…