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Showers
My DW believes that she showers often but does not. Gets super offended when I mention it. Any thoughts on how to approach the topic?
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Grand tour
On My lunch break today went and visited the possible facility for my bf (45yo eoa, stage 6). I cried my whole drive there kept it together while walking up to the office then when asked how i could be helped the tears just fell. I did manage to get my words out. The lady who does the admissions was on lunch. Then as I was…
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Hygiene and related matters
looking for ideas about how to get my wife to wash her hair (or let me do it) and clip her nails. Once I can get that far I will move on to getting her to shower (am having shower chair and grip bars installed this week). She also refuses to let me bring in a physical therapist, even though she can barely walk up stairs…
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Changing diapers
My dad is double incontinent. Mom wants to move Dad from Al back to home where she can take care of him. One big obstacle is trying to change his diaper when he is bed bound due to multiple fractures on his entire right side. Is there a way to change him without hurting him and how to roll him onto his side? Maybe I could…
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Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
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What do you do when you visit your loved one in MC?
I'm asking because there are times when I leave the MC feeling rather holow inside. Our son was here this week and he said he wished he could do something with his dad besides play rummy. He wanted to do something that would be meaningful for him. I understood since I have the same feelings at times. When I visit, we hug…
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how to shave a man?
DH has macular degeneration plus Alz, its increasingly hard for him to complete a really nice shave. He mostly only shaves once a week, that is OK, his whiskers are not thick and would never be a good beard. I'm looking for tips to help him and eventually take over the weekly cleanup. He uses basic razors, some of them…
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Overwhelmed
New to this discussion and hopeful for some assistance/direction, words of wisdom….my husband was recently diagnosed with EOAD, with lvppa variant. Went to 3 neurologists. Told he is in mild stage. Scored 19, 20 on MOCA. Had a silent stroke but don't know when….cognitive and some immediate memory issues prompted PCP visit…
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Everything Relying on a HATS (Healthy Aging Transition Services) Assessment????
I'm new to this group and have found the information very helpful. In January, I moved my 75-year-old sister from Florida, where she had lived for 47 years, to central Indiana. Before the move, I was aware of her memory and vision issues, but now, two months later, her cognitive abilities and vision seem to have declined…
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New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely shared our diagnosis. We are reading all we can about proper nutrition for dementia. We are active in National Senior Games…
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How to make the move from home to a facility.
Hi i am 39yo caring for my bf who is 45yo EOA. He has speech aphasia and i can understand him. The dr say he is stage 6 transitioning to stage 7. He is fully in depends now and sometimes tells me when he has to pee. He recently in the evenings (sundowning) has been saying "i need to go to school" i say he can go in the…
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New here
1. What is a DH? 2. I the husband is caring for wife
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First my DH, now my mother
As many of you know, my DH, Roger, died January 21. I was just beginning to come to terms with his death when I was dealt another blow this week, only 6-1/2 weeks after his death. My mother, who for the past 14 mos. was in memory care in our hometown 1000 miles away, died Friday afternoon (March 7). On February 24, she had…
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Help! Transition to hospice too soon resulted in $6K bill at SNF
My father has been in a SNF for nearly 3 months following a hip fracture. He's frail and the ordeal has advanced his dementia to severe. The rehab facility doctor has been recommending hospice transition for some time. I was able to get him accepted at the MC place where my mother now resides on a hospice basis. This has…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Vascular Dementia
Hello, I’m new to this group.. my husband 75 years old was diagnosed this past Dec 2024 of Vascular Dementia after having a MRI for memory loss.. last November he started not recognizing me or knowing my name, or where he was living, or how he got here, in which we have been married since 1982 & lived in the same residence…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Necessity of a diagnosis
When we went to the neurologist and they did a 20 minute test on him and said that he’s in the normal range. That upsets me when we feel like we gained nothing and yet I know what’s going on at home. And then I think what’s the purpose of getting a diagnosis when all they’re gonna do is throw meds at him that aren’t very…
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REM Sleep Behavior Disorder/Lewy Body?
Hello! I am new to this message board and would love to get involved with this community. I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand,…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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A Cautionary Tale: Details Emerging About Hackman's Death
I'll put a trigger warning here. This is difficult reading. It has been determined that Gene Hackman died from cardiovascular disease and Alzheimer's a full week after his wife succumbed to Hantavirus. She was among the oft quoted 1/3 of caregivers who died before their LO. Friends describe his wife as fit, healthy and 3…
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Signs of changes...subtle or not??
Hello. My DH recently scored a 22/30 on MOCA. I don't see much change in that from months ago. I am seeing subtle things that are different and was wondering if anyone has any wisdom to share on what they may mean as far as progression. He is in the process of filing for FMLA/DI due to cognitive decline and the anxiety at…
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Forgot his age
A week ago DH knew he is 83. Today he thinks he is 60. He asked me how old I am. We happen to be the same age. He said he can’t believe he is 83. I told him it is ok he can be any age he wants to be and then asked him what age he would like to be. He responded age 3 because I wet my pants and other people can take care of…
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How to find a good live in caregiver?
Hi. After a fall and surgery, my mom, who suffers with dementia, requires 24/7 care. Where is the best place to search for a live-in caregiver? Care.com, carelinx.com, Indeed or elsewhere? I'm worried about being able to find the right person— someone reliable, kind and experienced. Thank you for your help.
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DH keeps coming out of his room naked!
My DH is in memory care, and at night especially, he comes out of his room naked. The staff will take him back to his room and put clothes on him, but he will do it again a short time later. I have noticed he is more anxious and agitated lately, but he has a heart condition that makes him unable to take the normal drugs…
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How to best poop in a diaper in bed
What is the best way for someone bedridden to take a poop? FIL feels the urge to poop, but can’t seem to go in bed. He has disposable underwear on. Should he Lay on his side? Lay the bed completely flat or elevate the torso?
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Our Last Mile
Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct. And he was thought for sure to be in…
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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New Here…
Hello all, I joined this page on behalf of my husband he was diagnosed with Alzheimer’s at the age of 54. I am currently his caregiver and plan on being by his side through this entire process. We are located in California and would love to talk and seek advice from other families with such early onset. I have spent…
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First post
My DH always wants to “go home”. When I ask where, of course he says his childhood home. It is so exhausting to try to distract him from that thought. He goes to bed saying it and wakes up saying it. He begs and pleads with me to take him there. Constantly, p l e a s e! I can’t take him anywhere without arranging for…