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processing/ grief support, not lots of people to relate to
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Significant other
Hi, I need advice on how to approach this situation with my dad who has dementia. His girlfriend of 12 years that has been living with him, will now be moving out of state because she has health issues and will be cared for by her son that lives in another state. She’s been hospitalized the last 6 weeks and I have been my…
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Worst Week of My Life-Rant
This has been the worst week of my life. DH died Tuesday night. That was understandably difficult, but bearable. Wednesday, my car started making a loud noise when I apply the brakes. Thursday I cleaned out his room at the ALF. It was very emotionally difficult. Thursday night the motherboard in my furnace failed. Living…
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Mom refuses to take medication and has become very aggressive....
Hello! My mother is 69 yrs old. She was diagosed with Alzheimer's about 3 years ago. She was considered to be mild/moderate at the beginning of 2024 but I feel like there has been some progression. I am her primary and only caregiver. For about a month or so she has been refusing to take her medication. I've tried…
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Ftdcaregiver1
@FTDCaregiver1 I saw your comment (on a different discussion ) about losing your loved one this week. Just wanted to tell you I was sorry for your loss.
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Moving Dad to a New Facility
I have never posted here, but just need to get this out. I have done 99.9% of the caregiving for my dad who is now mid to late stage. He is in Assisted Living, but the facility he is in provides very little assistance. I think they may be understaffed but it's just not working out. This past weekend, I spent 5 hours with…
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Televising Without Sound
My DH will sit by the hour and watch television without the sound turned on. Has anyone else had this experience?
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Me, I am living with it!
Anybody that has ES and is talking about it, instead of me hearing what we are putting people through. Hearing it through a care givers lens is depressing. I am struggling with how to process it myself. Thanks Anybody ES age 53?
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Concerned,not sure where to go from here
My mother has dementia and I think it is in her last stage. I was wondering if I could find some information to see where we are at. I know that everyone is different in regards to what symptoms/behaviors they go through to determine what stage they are at, but just starting this week, actually, about 2 days now, she will…
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Bumbly words in communication
Dad is really at a point now where his words are intelligible choppy and i often cannot even tell what he is saying. I have to guess at everything and I can tell by how he looks at me, that I have gotten it wrong. How frustrating it must be for him. Does anyone have tips on how you coped with this in your lo...maybe you…
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Do the specific loops stop?
My mother (88), just a couple months into AL (who really should be in MC, and likely will be transitioned soon), has incessant looping (like many of our LOs do). There are several topics, but one is that she wants her 2 credit cards back, along with her driver’s license and $25 cash, all of which she supposedly gave me for…
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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End stage - mom
Hi. My mom has been non verbal for the last year or so. She is end stage. Puréed food, bed/chair bound, help with everything. The past few visits she’s been trying to say something. It’s just weird. Anyone have this happen? I am not sure what to do, if anything. TIA
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Need Advice - Elder Abuse
Hi all, I need some help. My parent was diagnosed with alz last year, it is moderate to severe based on my perception. I don't know that the doctor ever told us what stage they were. They have a partner who is significantly younger (almost 30 years difference) than them who they've been with for maybe 2 years or more (both…
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I’m angry and resentful!
The past few weeks I have been angry! I’m angry at my husband for having a disease he didn’t ask for I’m angry at myself for losing it and being frustrated and thinking I have a handle on things and realizing I don’t! I’ve been very short tempered and sad. Both of which I’m not!Our marriage has been one where he was never…
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God’s promises
My SIL sent me this and I thought I’d share it. I especially liked the thoughts in the first paragraph. I hope the picture is readable.
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My journey so far
Here’s my story. About 2 years ago I began to notice changes in my husband’s memory and behavior. We were big outdoor enthusiasts, travelers and longtime birders and my husband loved photography. He began to complain about his binoculars and camera, they were not working he said and replaced them. I discovered he wasn’t…
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Fatal fall
My Dad, 89, with VD, has so many fractures due to several falls in the past 2 years. He fractured his spine, humerus, elbow, hip and pelvis. He's completely bed bound, double incontinent, needs to be fed, and he's kept comfortable with pain pills (narco, morphine). He is under hospice care in assisted living. He still has…
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Reaching my stress level point
Hi- I am a caregiver for my two parents living in one household. One has mild cognitive impairment and the other has low to moderate dementia. I have been caring for them for the past year. My issue is that my mother has become increasingly worse in the past couple of weeks. She can't seem to remember how to do any tasks…
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Ten Depends a Day?
My dad recently transitioned to memory care from assisted living. After he moved, we noticed he is using 9-10 Depends a day. A caregiver there noticed that he is wearing three pair at a time. I have gently asked about how he uses Depends. "What may be going on, to cause a burn rate of 10 a day?" His replies are defensive,…
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How to Know if Skilled Nursing Center/Nursing Home is Better than MC
Mom ended up in a skilled nursing center for rehab about 4 months ago.We didn't bring her back home because we felt it safer for her at the center. Each wing has a nurse, doctors and PA's, dentist, xrays, etc. are available there if necessary. Since she's been there she has become too weak to walk and is in a wheelchair…
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Scared to be alone
I don’t know what to say anymore when my mom says ‘I’m lonely. When are you coming back? Promise?’ I see her in MC almost every day. I know that she is scared bc she understands to some degree that she is losing her mind and afraid of what’s to come. Today she said to me ‘I’m really going to miss you. I’m running out of…
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PWD needs to go into AL, says she wants to, but won't cooperate.
I have DPOA, and I'm my PWD's only remaining kin. Once a very prim and proper woman, she now yells verbal abuse at me regularly and even curses sometimes - completely opposite her former behavior. We had toured a facility last year, and first she said she liked it, then later she said absolutely not. Recently, she's been…
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New skills
My wife was a home maker so she did all most all the cooking and cleaning, then about 3 years ago I was doing all the house work. I bought her some new pants and just yesterday I figured out how to thread the sewing machine and hem her pants up. No big deal but I never thought about doing all those things. My wife is in MC…
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feeling lost and depressed
Hello everyone, I feel like I need to vent a little bit. I can't talk to my family because I don't want them to be sad. They are feeling worried already. I'm feeling very depressed and wondering what I should do. I'm on antidepressants and meds to help me sleep because I've been having trouble with that lately. I'm feeling…
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And so it begins....
My mom just shit on the floor. Completely missed the toilet. I am trying to get her medical insurance figured out but it's been difficult to get through to social services. We can't afford a house cleaner and we can't afford a full-time caregiver. I am a single mom and a student. I don't have time for this. I guess I just…
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New here, looking for support
My mom has been on a steady cognitive decline over the past 2 years after a big fall and some medications she was placed on. We have not been given the diagnosis of Dementia due to the fact that she will not get tested and gets extremely angry when it is suggested. (She has always had anger issues and does not let anyone…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Talking merciless nonsense
Why when we are in company does my OH, who is moderate/severe stage of dementia, not utter a word, but when he is with me or his sons, he talks relentlessly. Nothing makes sense. All day long he wants to go home, Within seconds of me telling him we are home he starts again. i've tried every way suggested to distract him…