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New Life
Hello. I’m 43 and was diagnosed with dementia two weeks ago. Still doing mri to test this word I don’t remember and that word I don’t remember. Just wondering if anyone else has had this problem start this early in life. At this point I feel alone with all this.
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Does insurance company need to know
Reviewing Renewal on house and auto insurance and just wondering if I have to inform the auto insurance that husband has dementia and is no longer driving? By law do I have to do this? We still have his car but he doesn’t drive . Tks for your input
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Medication for Anxiety
Our neurologist has prescribed Quetiapine for anxiety as a once per day med at bedtime. I crush and mix the pill into my DW evening food at she refuses to take a pill. Sometimes the 25MG dosage works well and we can get a good night's sleep. Our neurologist has now prescribed a 50MG dosage in an effort to improve the…
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statins, pros and cons?
I tried to search for an old conversation on this, but didn't find one; feel free to redirect me if this has been discussed before. A few years ago, the provider in Geriatrics put my partner on a statin because her cholesterol was something like 240. The next time she saw her primary, they took her off the statin. I was…
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First appointment - what should I ask?
Looking back on what you now know, what should I - the caretaker - ask the neurologist at the first appointment? What do you wish you had asked? My wife is 61 with a father and grandmother who had AD. She had a blood test last week with a positive for tau (whatever?) and a ct scan that was “not terrible” (upon brief review…
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Altzheimer
My DW(85) has recently been diagnosed with this terrible disease…she is still able to function fairly well. My daily routine is looking for articles she has misplaced but the most frustrating thing to deal with is the delusions. It is very difficult for me to respond to things like "when are the other people coming for…
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Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
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FREE access to e-books/audiobooks about dementia (including "The 36-Hour Day")
I have been using OverDrive for years. OverDrive allows library card holders to borrow digital content (e-books, audiobooks, magazines) for free. I read or listen to them via the Libby app. (Libby is a free mobile app developed by OverDrive.) Today, I learned that anyone can sign up for the Dementia Australia library and…
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Rehab to Memory Care
Hello, my mom is 77 and has advanced dementia. She has been living in memory care since this past March. She had lived alone for 20 years but was getting progressively worse, then couldn't stand up, ended up in the hospital last Jan. Then rehab for 2 months where she got better physically. The Dr's there thought she needed…
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Yes, I'm still around
Most of you will not recognize my name because my wife passed 3 1/2 years ago, and I rarely get on here much anymore. I hope everyone could make the most of the situation for Christmas. There may be a ray of "hope for this dreaded disease. It's not here yet, but the news is encouraging.…
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My mother
My mom has dementia and extreme aphasia (trouble with speaking/words). I have a tough time dealing with active grief around certain things like forgetting it’s my birthday and other life events. Wha suggestions do you have?
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DW's wallet and losing her purse
Two times now my DW has misplaced her purse. After the first time I placed an Apple fob in her purse to locate it. She has credit cards, a debit card, her driver's license (but she doesn't drive anymore), her Medicare cards, and a checkbook. She is used to carrying her purse with her everywhere. Has anyone had any…
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communication
https://www.facebook.com/reel/776766741094996
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New dementia diagnosis and questions on surgery
My 72 yo DH was diagnosed last year with mild Alzheimer’s, moderate vascular dementia and Frontal lobe atrophy. In 2004, he had stage 4 lung cancer and 2005 brain tumor removed and whole brain radiation. He has CoPd. It took us 16 months to see a neurologist, she wanted to put him on Leqimbi for the AZ but his MRI showed…
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I need advice please
My DH (64) is mid stage 5 dementia. We live about 20 miles out of town in the country. I still work full time in town Monday thru Friday. He no longer drives and is at home alone while I work. I have installed cameras so I can check on him visually throughout the day. In the last few months his short term memory has become…
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Morose Valentine
sad today because my DW of course doesn’t know it’s Valentine’s Day and also because it’s dawning on me I can no longer do many of the things I used to enjoy. Feeling a little imprisoned in my own home. Just needed to vent and say these things. I didn’t want to vent to family and friends and bring them down today.
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A new kind of charity?
Wouldn’t it be nice if there were a charitable organization that helped caregivers who may be financially unable to afford part time help. I mean there’s meals on wheels types of things out there I suppose. But it seems that dementia is reaching epidemic proportions these days. There’s a lot of different charities out…
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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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New To The Group
Hello All - I am taking care of my 80 year old mother who was officially diagnosed with Alzheimer's last year. She has lived with my wife and I since 2024. She has had noticeable behaviors since 2022 when our dad passed away. Mom has progressed to the point where it is not safe to leave her home alone for extended periods…
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Heroes Behind The Curtain
I posted this a while back in the section for those of us who have lost a loved one. I remain active here and there. As I read so many posts here, especially from those new into this world Dementia has thrust upon you, I thought I would share it here. No one wants this role and only those who have to take on the role of…
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Sad progression
Life is rough but I'm getting by. I'm lucky to have my daughter at home to help. From where my DW was 6 months ago to now is striking. I have to help her get her clothes lined up to wear. I need to remind her to shower. I am administering her medications. Today while I was out only 30 minutes at Home Depot my daughter…
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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Valentines Day
I just want to wish all caregivers a Happy Valentines Day. Although for me, as I am sure it is for most of us, it is not quite the same as in the past.
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The caregiving doesn't end with placement in MC.
My DH has been in MC for about 1 1/2 weeks at one of the only standalone mc facilities in my city, which happens to be near my home. I keep reading that caregiving doesn't end with placement and that is so true. When I go to visit him, with a day or so off between visits, he is inevitably lying on the bed (he doesn't…
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Would my LO be better off in Assisted Living/Memory Care?
I am curious in getting the thoughts of from other caregivers on the above question. My spouse is currently classified and moderate/borderline severe dementia. She is still able to perform most of the ADLs. While I can currently care for her at home I am wondering if she would be better served with the higher level of…
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How to assume the "parent role" with your parent
Both my parent with dementia and I are having a hard time with me assuming a more caretaker role. My parent is on the younger side for midstage dementia—early 70s and was an independent successful woman who lived states away from family for the past two decades. She rarely asked anyone for anything and also didn't get very…
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A Spark of Joy and Repeat TV Shows
i just want to share my spark of joy. From necessity good things can happen. I was feeling so very flat and sad a bit indulgent and I was also feeling defeated and tired. We are involved with Sailability an all inclusive sailing group. When the opportunity came up to get my power boat licence, enabling me to legally drive…
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Sending someone in memory care to inpatient behavioral health
So my parent increasingly has been having delusions and consequently was aggressively exit seeking this morning. The memory care is on the ground floor and the hallway doors to the outside actually do open if one presses on them for 30 seconds. She refused to come back inside. As I understand it she went outside to both…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Something Good Happened.
I’ve known my husband has Alzheimer’s for quite a few years, but recently was told he has mixed dementia Alzheimer’s/vascular. Even though he hasn’t smoked in years, the damage was done. He has phone contact with 3 siblings. One brother lives an hour away with his wife. We have not seen them in 12 years and her name was…