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First my DH, now my mother
As many of you know, my DH, Roger, died January 21. I was just beginning to come to terms with his death when I was dealt another blow this week, only 6-1/2 weeks after his death. My mother, who for the past 14 mos. was in memory care in our hometown 1000 miles away, died Friday afternoon (March 7). On February 24, she had…
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Help! Transition to hospice too soon resulted in $6K bill at SNF
My father has been in a SNF for nearly 3 months following a hip fracture. He's frail and the ordeal has advanced his dementia to severe. The rehab facility doctor has been recommending hospice transition for some time. I was able to get him accepted at the MC place where my mother now resides on a hospice basis. This has…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Vascular Dementia
Hello, I’m new to this group.. my husband 75 years old was diagnosed this past Dec 2024 of Vascular Dementia after having a MRI for memory loss.. last November he started not recognizing me or knowing my name, or where he was living, or how he got here, in which we have been married since 1982 & lived in the same residence…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Necessity of a diagnosis
When we went to the neurologist and they did a 20 minute test on him and said that he’s in the normal range. That upsets me when we feel like we gained nothing and yet I know what’s going on at home. And then I think what’s the purpose of getting a diagnosis when all they’re gonna do is throw meds at him that aren’t very…
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REM Sleep Behavior Disorder/Lewy Body?
Hello! I am new to this message board and would love to get involved with this community. I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand,…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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A Cautionary Tale: Details Emerging About Hackman's Death
I'll put a trigger warning here. This is difficult reading. It has been determined that Gene Hackman died from cardiovascular disease and Alzheimer's a full week after his wife succumbed to Hantavirus. She was among the oft quoted 1/3 of caregivers who died before their LO. Friends describe his wife as fit, healthy and 3…
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Signs of changes...subtle or not??
Hello. My DH recently scored a 22/30 on MOCA. I don't see much change in that from months ago. I am seeing subtle things that are different and was wondering if anyone has any wisdom to share on what they may mean as far as progression. He is in the process of filing for FMLA/DI due to cognitive decline and the anxiety at…
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Forgot his age
A week ago DH knew he is 83. Today he thinks he is 60. He asked me how old I am. We happen to be the same age. He said he can’t believe he is 83. I told him it is ok he can be any age he wants to be and then asked him what age he would like to be. He responded age 3 because I wet my pants and other people can take care of…
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How to find a good live in caregiver?
Hi. After a fall and surgery, my mom, who suffers with dementia, requires 24/7 care. Where is the best place to search for a live-in caregiver? Care.com, carelinx.com, Indeed or elsewhere? I'm worried about being able to find the right person— someone reliable, kind and experienced. Thank you for your help.
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DH keeps coming out of his room naked!
My DH is in memory care, and at night especially, he comes out of his room naked. The staff will take him back to his room and put clothes on him, but he will do it again a short time later. I have noticed he is more anxious and agitated lately, but he has a heart condition that makes him unable to take the normal drugs…
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How to best poop in a diaper in bed
What is the best way for someone bedridden to take a poop? FIL feels the urge to poop, but can’t seem to go in bed. He has disposable underwear on. Should he Lay on his side? Lay the bed completely flat or elevate the torso?
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Our Last Mile
Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct. And he was thought for sure to be in…
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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New Here…
Hello all, I joined this page on behalf of my husband he was diagnosed with Alzheimer’s at the age of 54. I am currently his caregiver and plan on being by his side through this entire process. We are located in California and would love to talk and seek advice from other families with such early onset. I have spent…
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First post
My DH always wants to “go home”. When I ask where, of course he says his childhood home. It is so exhausting to try to distract him from that thought. He goes to bed saying it and wakes up saying it. He begs and pleads with me to take him there. Constantly, p l e a s e! I can’t take him anywhere without arranging for…
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I did what I said I wouldn’t
After 60 years of marriage and in year 15 of caregiving I always have said I would never wipe my DH’s royal hiney. That never day came with you know what on the bathroom floors, toilet seat, etc. and on his royal hiney. After cleaning it up -including the royal hiney-I believe I deserve a super duper big gold star on my…
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New to Alzheimer's
Hi! I am new to this site. My mom was diagnosed with Alzheimer's. My dad is her primary caregiver. My brother and I try to help the best we can right now as we have our families to take care of. My brother helps a little more cuz he lives next door. My family and I live an hour away. We try to get out there when we can. My…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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Mom wants to keep dad at home.
My dad has been in AL under hospice care for 4.5 months. Mom keeps saying that she can take care of Dad at home because she can't afford it. The only thing that's holding her back is that she can't change my dad if he poops on himself. He is double incontinent. She doesn't have the strength to turn him over. She has…
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New to forums...I really, REALLY hate this disease
52 y/o male taking care of my 76 y/o mother who got diagnosed around 2 years ago. Following a stroke my mom had, my wife and I moved our family to a more affordable town so I could move her in and care for her. I didn't know at the time that she was at the beginnings of AD. We noticed some strange behaviors but chalked it…
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Leqembi - medic alert bracelet
What are people putting on medical alert bracelets for LOs on Leqembi so that they aren't given an anti-coagulation drug accidentally? I'm wondering what words are best to convey this in a small space.
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Anyone experience a bone spur
My DH had an open sore between his toe. It healed but on his follow-up appt, his podiatrist took x-rays and saw two bone spurs. He suggested surgery to remove them, but he also said with the Alzheimer’s to deal with, we may want to do nothing. However, if the sore comes back, he’ll have 2 problems to deal with - an open…
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Alz/ Dementia diagnoses 12 years
I'm new to this discussion, but I'm thankful that I can connect to individuals that understand my situation. My husband was diagnosed with Dementia 12 years ago. Until May 2024, he was able to stay home while I continued to work. He is now in a facility with other patients. It's like a big family. I'm at peace knowing that…
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What Have I Done?!?
DH suddenly started having severe leg and knee pain yesterday. Of course, I couldn’t get an appointment with any kind of doctor for almost two weeks. He was able to get to the car, so I drove him to the ER. They ran a bunch of tests, gave him morphine, couldn’t find anything wrong and sent him home. Within 5 minutes of…
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Looking for a zoom call
I’m looking for the sign up information for the zoom call for adult children
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Newly diagnosed
Hi, This is my first time here. My mom Was diagnosed with mixed dementia today and it's been so hard to wrap my head around it. I'm so sad about the diagnosis and sad for her.
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Home care
DH diagnosed with vascular dementia 5 years ago is “progressing” in this horrible disease. He has difficulty walking due to major back issues short term memory deteriorating only leaves the house with me. I am looking into home care from some agencies nearby for companionship maybe 6 hrs a week and give me some time. What…