-
Gene Hackman's death
This is a sobering story for caregivers. We have to think about what would happen if something terrible happened to us, who would care for our loved one with dementia? Do you have anyone who checks on you regularly? I heard of one case in which the wife caregiver had a serious fall and broke something. She couldn't get to…
-
And now cancer along with everything else
We have just been told that DH has renal cell carcinoma. We have a visit with a specialist in a few weeks. I really just want to know what the prognosis is for his cancer. He has many other health issues in addition to Alzheimer's, so I do not expect there to be a cancer treatment that would be warranted. I want him to be…
-
feeling sadness and panic and heartbreak seeing my mom like this
She was failing at home, seeing things, getting a bit dangerous, not able to care for herself etc so we were lucky to get her in a home. She has not liked it, tried to escape, fought a little bit to get out, but then got weaker so not as mobile. She has been going downhill so fast. She is weak and crying and moaning. They…
-
medicaid
I am currently in the process of getting medicaid for my mom. She got approved and got the card; however we now need to set up a pooled trust. Do people do this on their own, or does everyone hire a lawyer?
-
Husband
I’m new here and desperately hopeful I can connect. It’s been about 7 years for my husband diagnoses and lately he is sleeping a lot, has trouble finding words and forgetting almost immediately. Not sure where to turn for information on his progression. Thank you in advance
-
new to group
My DH was diagnosed 3 years ago with VD, he also has diabetes..When I look back, I know it started sooner. He is progressing and I am facing new challenges like driving, of course I have the keys but everyday he will ask.
-
Had to step back
Long story short, I live long distance from an aunt with dementia. She has family who live near. When it was discovered aunt had dementia, family expected me to take care of aunt. Move in and handle everything. Everything was dire. The family didn't want aunt alone for a second. I did what I could and explained I couldn't…
-
New-ish diagnosis
My father has been diagnosed with MS ALZ and it is clear that the disease is progressing rapidly. What do folks do when the families cannot afford in home care or facility care? His insurances only will cover certain things. He cannot be home alone anymore. Any tips/advice would be appreciated so much we are desperate 😔
-
Leqembi infusions
We're looking into getting my DW on Leqembi infusions. Can anyone using this Med tell me if it works or causes more harm?
-
AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, ideas, and support." Along those lines, one idea would be for those interested in Alzheimer's research is to attend the…
-
Rapid Progression
The progression of Alzheimer’s can jump suddenly. My wife was diagnosed in July 2016. Her rate of decline stayed fairly steady until last December. In memory care, she walked 12 to 18 hours a day, she could feed herself, and she talked a lot of word salad. In the middle of December she was hospitalized with a urinary tract…
-
Showers
My DW believes that she showers often but does not. Gets super offended when I mention it. Any thoughts on how to approach the topic?
-
Grand tour
On My lunch break today went and visited the possible facility for my bf (45yo eoa, stage 6). I cried my whole drive there kept it together while walking up to the office then when asked how i could be helped the tears just fell. I did manage to get my words out. The lady who does the admissions was on lunch. Then as I was…
-
Hygiene and related matters
looking for ideas about how to get my wife to wash her hair (or let me do it) and clip her nails. Once I can get that far I will move on to getting her to shower (am having shower chair and grip bars installed this week). She also refuses to let me bring in a physical therapist, even though she can barely walk up stairs…
-
Changing diapers
My dad is double incontinent. Mom wants to move Dad from Al back to home where she can take care of him. One big obstacle is trying to change his diaper when he is bed bound due to multiple fractures on his entire right side. Is there a way to change him without hurting him and how to roll him onto his side? Maybe I could…
-
Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
-
What do you do when you visit your loved one in MC?
I'm asking because there are times when I leave the MC feeling rather holow inside. Our son was here this week and he said he wished he could do something with his dad besides play rummy. He wanted to do something that would be meaningful for him. I understood since I have the same feelings at times. When I visit, we hug…
-
how to shave a man?
DH has macular degeneration plus Alz, its increasingly hard for him to complete a really nice shave. He mostly only shaves once a week, that is OK, his whiskers are not thick and would never be a good beard. I'm looking for tips to help him and eventually take over the weekly cleanup. He uses basic razors, some of them…
-
Overwhelmed
New to this discussion and hopeful for some assistance/direction, words of wisdom….my husband was recently diagnosed with EOAD, with lvppa variant. Went to 3 neurologists. Told he is in mild stage. Scored 19, 20 on MOCA. Had a silent stroke but don't know when….cognitive and some immediate memory issues prompted PCP visit…
-
Everything Relying on a HATS (Healthy Aging Transition Services) Assessment????
I'm new to this group and have found the information very helpful. In January, I moved my 75-year-old sister from Florida, where she had lived for 47 years, to central Indiana. Before the move, I was aware of her memory and vision issues, but now, two months later, her cognitive abilities and vision seem to have declined…
-
New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely shared our diagnosis. We are reading all we can about proper nutrition for dementia. We are active in National Senior Games…
-
How to make the move from home to a facility.
Hi i am 39yo caring for my bf who is 45yo EOA. He has speech aphasia and i can understand him. The dr say he is stage 6 transitioning to stage 7. He is fully in depends now and sometimes tells me when he has to pee. He recently in the evenings (sundowning) has been saying "i need to go to school" i say he can go in the…
-
New here
1. What is a DH? 2. I the husband is caring for wife
-
First my DH, now my mother
As many of you know, my DH, Roger, died January 21. I was just beginning to come to terms with his death when I was dealt another blow this week, only 6-1/2 weeks after his death. My mother, who for the past 14 mos. was in memory care in our hometown 1000 miles away, died Friday afternoon (March 7). On February 24, she had…
-
Help! Transition to hospice too soon resulted in $6K bill at SNF
My father has been in a SNF for nearly 3 months following a hip fracture. He's frail and the ordeal has advanced his dementia to severe. The rehab facility doctor has been recommending hospice transition for some time. I was able to get him accepted at the MC place where my mother now resides on a hospice basis. This has…
-
Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
-
Vascular Dementia
Hello, I’m new to this group.. my husband 75 years old was diagnosed this past Dec 2024 of Vascular Dementia after having a MRI for memory loss.. last November he started not recognizing me or knowing my name, or where he was living, or how he got here, in which we have been married since 1982 & lived in the same residence…
-
Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
-
Necessity of a diagnosis
When we went to the neurologist and they did a 20 minute test on him and said that he’s in the normal range. That upsets me when we feel like we gained nothing and yet I know what’s going on at home. And then I think what’s the purpose of getting a diagnosis when all they’re gonna do is throw meds at him that aren’t very…
-
REM Sleep Behavior Disorder/Lewy Body?
Hello! I am new to this message board and would love to get involved with this community. I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand,…