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Hearing, Yes or No?
It is too late for my dear wife as she left us a few weeks ago. As I often sit and think back over our path down the difficult road of AD, things pop into my head that I wish I had known or at least considered at the start. One of those topics is the subject of how much the suffering person can hear and also understand,…
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Similar ?
I’m in my 40s, unemployed due to disability, and living with my 93-year-old adopted mother, who is in the late stages of vascular dementia. I don’t have children, friends, or a partner, so she is truly all I have. It’s painful and frightening to watch her decline, and I often feel crushed by the thought of what life will…
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Father getting worse
I have an 82 year old father who is diagnosed. He has recently undergone chemo and radiation. He has gotten increasingly delusional and agitated. We have been associating it with the drugs. But he is so angry and lost. He cannot have a conversation now and is extremely abusive about things that do not exist. Is this normal…
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Rapid decline since moving to assisted living/memory care
Hi! My dad was being cared for by his partner of 5 years. She recently needed surgery and we moved him to assisted living / memory care facility. He has been there for a week and we have noticed a rapid decline in his mobility (was walking with a walker) but now spending more time in a wheelchair. He has no prior history…
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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attend a wedding?
Looking for your thoughts. My DW of 40 years is well into her late stages. Right now her stage consists of constant jabbering and pacing. It's even gotten to the point where she does it when we go to a restaurant or other places. Her niece is getting married in a couple weeks and of course we have invitations. I already…
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CCRC forcing LO move from independent to MC
My LO with VD lives in a CCRC in an independent home with 24 hour care. On waitlist for MC. My sister and I took her for “lunch” when opening came up. We decided not to place her in MC and continue with 24 hr care. CCRC has called us in for meeting saying they are concerned with LO’s safety. CCRC says she has to move to MC…
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New Job Offer & Whether To Move
I’m from NY and moved me and mom to Florida four years ago. I applied to a nationwide job and the NY office interviewed me During interview they said: we have offices in Manhattan, Suffolk, and Newburgh. Which do you prefer. They also asked if I preferred to be transferred to recruiting for the Miami office. I said…
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Need Reassurance
Mom had to go to the hospital on Monday because of pain in her hip and couldn’t get out of bed. She did not have a break but has a high grade tear in her hamstring and complete tear in one of her butt muscles. She has mid level Alzheimer’s and that is making things 100 times worse. Every time the nurses move her leg she…
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Feeling useless.
My Dh has ad and vd. Here lately he has been so moody. He'll say he's bored and when I ask were he would like to go or what he would like to do,his answer is "I don't know what it would be. " if I make something to eat healthy hardly eats. Today I ask him if he wanted to go out for lunch,he said he wasn't hungry. An hour…
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Hospice and the Just Right Mattress
Hello. Caring for a loved one brings so many learning curves. For those who are dealing with so many questions and so few answers, don't give up! My mother is in late stages and has a bed from hospice that allows air circulation. Unfortunately, half of the inflatable "tube," every other one, has deflated. My siblings and I…
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Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
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From the NYT: How Older People Are Reaping Brain Benefits From New Tech
A gifted link to the article— https://www.nytimes.com/2025/08/09/health/technology-cognition-older-people.html?unlocked_article_code=1.nk8.Wxst.AdgH546VpONN&smid=url-share
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Anyone RV Camping?
Here’s the thing. Right now DH with ALZ has short term memory loss and needs detailed instructions to do tasks. But he actually is functioning pretty well. We love camping and I have been trying to decide if we should just go for it and see how it goes. We desperately need to put fun into our lives while we still can. I…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Sleeping or lack there of
My mother has been only averaging 2-4 hours a night. We’ve tried Melatonin and Zzzquil for extended periods and both don’t seem to work. Does anyone have any better solutions that have been helpful? Fyi she hates tea (we tried the sleepy time and Chamomile). I was debating on consulting her doctor on trying low dose…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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Cymbalta
my wife was always on 30mg a day Nurologist up to 60mg twice a day for depression, anyone have good results
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Ready to throw the towel in
Brief update: Dad was diagnosed 3+ years ago with VD and onset Alz. He has now been in ASL for 6 months and discussions are being made for the move toward MC. I'm his POA. I've posted about his 2 sisters resisting any directives made by me and they have been sent a cease and desist letter 3 months ago but, still manage to…
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Elderly Aunt....Recent Diagnosis and Home Care Challenges
Hi All, I could use some perspective/guidance/support on our current situation. My sister and I have noticed for some time that our aunt has memory issues, plus a host of other challenges. She has no kids of her own. She was not caring for herself (skipping or cancelling dr apts, not taking or refilling meds, not…
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Stage 4
I have posted before and your responses are appreciated. We are 83 and 84 and my wife has ALZ. We are about 6 years down this road and my best guess is that she is in Stage 4. She is a wonderful person and doesn't realize she is sick. She is happy. However, she is totally dependent on me. I make all decisions, plan…
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pre loss grief
Interesting Article Understanding family members’ grief for a living loved one Study looks at factors that influence pre-loss grief May 10th, 2021 The symptoms of grief people feel for a loved one facing a life-limiting illness fluctuate over time, a new study found – suggesting that individuals can adjust to their…
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Should I or not
My DW is in stage 5/6 of her journey. Her mother has been put into a hospice house for end of life comfort care. She is close to her mother and still recognizes her mother but probably has no idea what is happening to her. I’m torn between taking her to see her mother or not. If I do take her, how will this affect her…
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New diagnosis but extreme condition
Hello everyone, I truly hope and pray for each one of you who is either dealing with this disease personally or has a loved one affected by such a painful condition. I sincerely wish for your strength and that your difficult journey becomes easier. I can relate to your struggles; my mother was diagnosed with dementia last…
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Not Sure What To Do -- Feeling Overwhelmed and Trapped
Hi Again, I care for my mom who has Alzheimer's dementia. She is somewhat independent (own apartment) but can't do grocery shopping, pay bills, remember to take the dog out, go to doctor appointments, etc. I do all of these things for her. I feel absolutely trapped. I used to not only travel often, but also live abroad and…
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Our experience with MC respite
Sept 1, I took my DH /alz stage 6 to a memory care facility for a 30 day respite . I wanted to rest and declutter . I told him the doctor wanted to monitor his medications and he said OK. The only opening was a shared room with a gentlemen with a lot of personal belongings . My DH insisted those items were his and…
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Adult Daycare?
Do any adult children caring for parents use adult daycare? In the past year my dad has lost 25 pounds and his memory is rapidly declining. Excessive outbursts anger. Also experiencing fatigue and anxiety. My mom manages this with my help. It has been effecting my mom to be the constant security blanket for him. Do others…