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Memory Friendly Phone
does anyone have a recommendation for a phone? I’ve looked at a brand called Raz. It looks good online but would love everyone’s input/experience. thank you
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Early Onset
Hi, I am 59 years old and was just diagnosed with early onset Alzheimer's. To say the least I am devastated. Lots and lots of ugly crying. I am trying to get my hands around all of this, so many things to do and so many questions? Has anyone ever been on a clinical trial? What was it like? I have started taking…
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No idea what to do next…
Hello, my name is Sandy and I am turning 51 years old this coming spring. I have not actually been diagnosed with early onset Alzheimer’s or dementia, but I am in need of help in knowing whether I should accept what my neurologist is telling me or if I should be more aggressive in figuring all this out on my own. A little…
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Diagnosis questions
I mentioned in my first thread that I'm not a primary caregiver for my MIL, but I want to try to be informed and helpful when I do interact with her. What I'm curious about is the diagnosis of dementia, from a qualified medical professional. My sister-in-law has medical power-of-attorney for my MIL, and she and her husband…
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How to handle long distance Mother
First time poster here. My Mom lives in NV I live in MO. For the last 3 years it seems my Mom has signs and symptoms of dementia. No diagnosis and my Mom will not go to a doctor for anything. She is fit, healthy, active but it is clear her cognitive abilities are intermittently affected by “dementia?” She takes no…
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Safeguard your sanctuary
Because he snores, jerks, and rolls over on to me, I sleep in a windowless room in the basement. In trying to engage my husband in a task I asked him to help me clean the light fixtures in the basement (holding the screws, wiping the inside of the fixtures, etc.) Now he states that he never knew about this room and insists…
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Aphasia
My poor DW. Her aphasia is now to the point where she really, really struggles to get a full sentence out. Many of her "sentences" are just a mix of random words, but she really thinks she's telling me things. Her frustration is growing and now she thinks I'm not understanding on purpose or not listening to her. I had done…
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visiting assisted living facilities
Hopefully DH will be able to stay home through most of this journey, he is fully stage 5 and moving towards stage 6. I visited one memory care and want to see a few more, for "just in case." The first one, I made an appointment, DH is not aware of this and I don't plan to take him to any. But I'm wondering how a visit goes…
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MIL Needs Help But Has No Official Diagnosis - We Need Doctor to Come to Her
My MIL regularly does not recognize her family, has no short term memory and appears to be creating false memories, no longer knows how to do things like use a phone, is frequently hostile, thinks people live in her house, has wandered, no longer wants to bathe - I could go on and on - the problem is that she has always…
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Norovirus at assisted living
My mom had norovirus but no longer has symptoms, but her whole facility is on lockdown and she is really confused and decompensating fast (being isolated). We are being told to stay away, and I have kids myself, so I'm trying to decide if it is safe enough to go over and try to at least find her remote, find her phone, put…
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Hypersexuality
Its been a long time since I've posted, but his hypersexuality is much worse. He is not angry, or mean, or delusional, just talks about sex non stop. The only thing that makes me feel better is that I have caregivers who aren't nt phased by it, having seen it a million times. It makes me feel like I'm in a more normal world
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California Fires
I pray to God that none of our dear Members are affected by these horrific fires. We have enough on our plates without having to contend with this. What a way to start 2025
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How to handle leaving DH at MC
My DH has severe Alzheimer's and LBD and I anticipate moving him to MC in the near future. My question is—specifically—what to say to him, how to handle the day of the move. A few day ago, I saw a discussion on this site where the author attached a written description of how he handled it but of course I can't find the…
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Separating Mom & Dad
Hi y'all. My sister and I are navigating next steps for Mom and Dad. They both have ALZ. Mom is much further along in her journey, she is 80. Dad is 87. They are both in AL but Mom's needs have grown significantly and Dad prevents the caregivers from coming in due to privacy and pride. His sense of logic is dwindling and…
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New to site & need support
Over the last several months, my HCP’s have diagnosed me with Mild Cognitive Impairment, Parkinson’s Disease, and/or Vascular Dementia/AD. I’m cognizant all these overlap within the domain of neurodegenerative disorders. Treatment for PD with levodopa/carbidopa has significantly improved my leg spasticity and ataxia but…
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I’m impossible
This morning DH wanted to go back to bed after breakfast. I reminded him to brush his teeth first. He said he would do it when he got up. I said no, do it now or you will forget and I will too. He said you are impossible and I agreed with him. He said you are getting more impossible all the time and I agreed saying I…
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Put Mom in MC - Feeling Guilty
Yesterday I pur my 89 year old Mother in MC. I am feeling so guilty, like I failed her. I got her there under the guise of meeting a friend, then I just left her. I had ask the staff while preparing her room about leaving phones and tablets for her, they said leave it. Last evening my mom start posting things on Facebook…
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A Local Nightmare
This was in the news not far from me. A woman was found wandering near 2 very busy streets in a primarily residential (mostly single-family homes) area. It's interesting that she seems dressed for the weather.
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Guardianship case
I just want to ask if anyone had any experiences with winning a guardianship case. My DH with mild vascular dementia got served on Friday with a petition case of guardianship from daughter. I have durable POA for financial/property and POA for health care. Our court appearance is scheduled on February 4th. Any advice will…
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Timeline
Took my mom to her appointment on Thursday and we were given an estimate of how long we have with her and I just don’t believe it. She still walks and talks. Yes, she needs care with showing and toileting and only sometimes how to eat. But has so much personality still. Has anyone ever got an estimate and how accurate was…
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Recently Widowed Dad With Mild Dementia
Hey Folks, I'm new to the forum. It was recommended to me by a help line here in Michigan. My dad has had 2 strokes within the past 10 years and this has resulted in some mild dementia. It comes and goes, but he's usually fairly sharp. It manifests itself in strange ways like hygiene, eating mannerisms and a bit of…
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My dad has dementia and my mom who was his caregiver justpassed away.
I am struggling to support my dad who has dementia and is declining. My mom was his caregiver and she recently passed away after a 4 year bout with Pancreatic Cancer. My dad keeps forgetting she died and my brother and I have to retell him over and over. He gets very distraught but then eventually forgets again. He asks…
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Female spouse w/young kids looking for mom in similar situation?
I'd love to find a caregiver like myself to exchange texts with, like our own mini support group. This is likely too specific, but ideally it would be a woman whose partner is in the early stages of Alzheimer's (like, very very early stages where most people can't tell) and whose kids are still living at home (our kids are…
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peeing on furniture
my brother has a special spot where he likes to sit and/or nap. Recently though, I noticed that he has been sitting where I like to sit. This morning I noticed that there is a distinct wet spot between the cushions where I am sitting. I put my hand down there, and indeed, it was wet, and when i smelled my fingers, it was…
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Excessive Talking/ Social Cues
I am still waiting for the doctors appt. to try and get a diagnosis. My question my DH is totally clueless when it comes to social cues. He doesn’t know when people are wanting to speak, or wanting him to stop speaking. Another behavior I notice is excessive talking. I mean excessive, he will call someone and talk…
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Feel like I’m becoming reclusive
Out of necessity, DH is stage 6. It’s just too hard to do things with him. He won’t tolerate caregivers so it’s mostly all on me except for family helping at times. Won’t go to day care. Just going to the grocery store alone is rare. Taking him out in public is hard because his speech is garbled and he tries to talk to…
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If you can’t beat ‘em, join ‘em
I was so frustrated and angry today trying to do chores but having to follow DH around and “babysit” etc. I broke all the rules this morning—argued, corrected, over explained, got mad. Got some stuff done then decided that I’d rather give in and relax than ruminate or come on here to complain. About to take a little nap on…
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Communication is gone
By reading the posts I can tell my situation is maybe unusual-? My DH is stage 6, I’m sole caregiver. His speech for over a year has been jumbled, made up words. (Aphasia?) He’ll talk quite a bit but there is no way to understand him. And when I ask him questions (Do you have to go to the bathroom?) his response is not yes…
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How many years did or has your loved one lived in a facility?
I was told that a typical stay in memory care is 2-3 years. This surprised me because this would indicate that either people are coming from assisted living or somehow families are caring for their loved ones at home. Granted the cost of assisted living and memory care is so high so any care option is hard. I wonder…
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Dad removes depends during night
Hi, I am new to this. My father is dealing with dementia. He's 80 years old. My mom is 82. I live here with them. What's brought me here is that I'm looking for any suggestions. My dad, during the night is removing his Depends briefs. This is something new as of this week. They will be on the floor or nightstand. My mom is…