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Cereal ..... Again
HWD is reaching the stage where he will wander off during a meal, and he is starting to lose weight. So foods that hold up (no cereal for him) to long meals and high calorie snacks are prominent in our house. But for me, by the time I have him in bed (if I can keep him up until 6:30 that's a win) I'm too tired to make a…
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Did I Over React?
Hello All - I haven't posted here for several months but wanted to check in as I got such great advice last time. My DH had a massive shift in personality last year that lasted for about 10 months. He became angry, with explosive outbursts and was emotionally unstable. I became very concerned that it was some form of…
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Driving
How do I begin the conversation with my DH who is beginning to show signs of driving incompetence. He rooms over to the lane beside him and straddles the lane lines, he hits the brakes abruptly when he gets in a close situation or even when pulling out of our driveway and sends me forward without my seatbelt on yet even…
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In need of guidance
My DH has a caregiver come twice a week to take some of the pressure off of me. The agency which we get them from had a 5 star rating and I always only read the bad ratings…which they didnt have. The problem is the agency doesnt let us know when the caregiver calls out for whatever reason or if they are sending anyone…
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From Spouse to Nurse
I've seen many here who are further down the road than me and my DW, who mention how moving mentally from spouse to nurse or captain helped the caregiver find a different set of patience and ability to manage. I feel like I could use that more in my approach, but how in the world did that finally click with you all? Early…
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They really have no idea!!
My DW has had EOAD for a little over two years now. I am finally realizing that my family and friends have no idea what we are going through. I welcomed their wanting to help with suggestions or articles they found to help us. As my DW’s symptoms have advanced, everyone has given their opinion on placing my DW in MC. I…
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Medical Marijuana: Anyone w/ experience?
I've been on the regular caregiver's board, but likely should have been here. I'm a 69-year-old man.. My Mom was 91. I was her primary caregiver for two years. She passed two days ago. My heart literally hurts. It's the dull hurt one has during extreme sadness, located just a little left of the center of the chest. She was…
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Financial questions related to care
Hello. I'm sure this comes across as ignorant. I'm not, and probably just looking for affirmation of my expectations, but if anyone has any feedback - without judgement please - I would appreciate it. DH has been diagnosed at age 62. I work very part time. Young teens. House is not paid for and definitely don't have even…
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Thoughts
Is it common for late stage Alzheimer’s patients to just suddenly lose the ability to walk? Like one day pacing the house on her own and then the next day the legs just giving out. Hospice doctor says it is just progression, I don’t know if it’s progression or an infection or am I just in denial?
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Learning to be patient.
Hi, I'm 74 and my wife is 76. How does everyone learn to hold their tung? My wife has had Vascular Dementia for almost 2 years. She contently for what day it is. Our Daughter is now making up her pills. I have to dress her am/pm. Help her shower, bathroom needs. I'm now cooking all meals. I have hired a person to clean the…
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Federal Alzheimer's Research Defunded
The Roy Blunt Alzheimer's research center at the National Institutes of Health has had its budget slashed as part of the ongoing random cost-cutting program. The center does research on what now-retired Senator Blunt (R - MO) called "our most expensive disease."
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New to this group
Hello, I'm new to this group and Just looking for support I guess. My husband has been recently diagnosed with what the doctors are calling "Alzheimer's-Like" dementia. He's due to have NeuroPsych testing in late May. So maybe we'll have more answers after that about his condition. He's been having memory difficulties for…
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Pill frustration
My PWD is on donepezil and mematine and has been doing really well with managing the doses in morning and at dinner. We set up a system that has worked with these as well as the other Rx meds she takes. Then after some dental work the dentist Rx’d an antibiotic that is a different dosage schedule. The amount of confusion…
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What is the function of a neurologist after Alz diagnosis
I have searched for this topic and can't find anything related. My question, more exactly, is what can a neuologist do for my DH other than prescribe varioius meds or give him experimental meds? We have been through the non invasive meds and DH has had a reaction to each. We will not do the newer intravenious meds. So, is…
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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Blood Test for Alzheimer’s
My DH has a test last week- Quest Ptau 181. It came back at 1.19 where anything higher than 1.07 indicates Alzheimer’s. Was wondering if anyone else has experience with this test?
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Rx question for the medical folks...
DH has knee arthritis, pain in the knee and back from his back, and now apparently arthritis in both his feet. The foot pain seems to be even worse than the other and sometimes so bad he can barely walk. The ortho doc prescribed a compounded cream for the knee, and several months later the podiatrist has prescribed a…
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Alzheimer et placement
Bonjour, Mon mari est atteint de démences diverses dont alzheimer, il est gir2. Je travaille encore et il est seul à la maison et passe son temps dehors à m'attendre. Quand je suis à la maison il me suit partout. Il ne sait plus se laver, s'habiller, manger et a dû mal à aller au toilettes seul. Je culpabilise à l'idée de…
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Understanding the number system ?
Hi, I see numbers discussed like 5-6. Are theses years or stages of disease? Thanks , Sandi
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Same meals
My DH who is 45 ye EOA. He is stage 6 transition to stage 7. He is starting to not like lots of foods he used to love. Is this normal? He will eat cereal, pb and j, chips, salad (sometimes) or meat sandwich It is also hit or miss if he will eat anything in a day. Or skme days he will graze all day on chips and trail mix.…
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Kisunla
I am interested in hearing from someone who has experience with Kisunla infusions. Thanks! Didi
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New to group and majorly overwhelmed
woof1980 She/her/hers / Ella Member Posts: 1 MemberFebruary 23 edited February 23 I'm trying to care for my grandmother from about 5 hours away. Her memory is declining quickly. I'm the only family to help her. I do have an aunt that lives 20 minutes away from her but my grandmother only trusts her so much and my aunt…
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How to tell your teenagers
my DH was just diagnosed with EO at 57…we have three teenage kids (20, 19 and 17). Any recommendations on how to tell them?
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Just need to talk to my friends (202)
Iris, cutting ice is a really important chore when it's freezing, otherwise either the cows won't have water or they'll walk out on the ice and break through into the icy water and freeze. I remember Charles cutting ice on the pond and when he would cut a big piece he would slide it under the unbroken ice. Usually would…
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ECT
Docs are suggesting electroconvulsive therapy. I’m old school and I don’t hear any news flashes. Concerned but cautious about going to Oregon for treatment.
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Geno test showed AD4 EO
Don't have a diagnosis yet but I do have some symptoms like sometimes I think I see things that aren't there and sometimes when I'm driving I forget where I'm going even though it's only for a minute or two. Are these early signs of AD4? just wondering with somebody else's experience I am 54 female.
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Congestion
I am wondering how all of you handle your LO when they are congested and can no longer blow their nose?
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Memory card financing
hi community, just wanted to get advice on how to finance your DH staying at a memory care facility. Does insurance cover that?
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Steps to take legally
Caring for DH. Have wills and standard forms. What do I do in case I pass first. dH unable to carry on. Legally should I change titles now, rewrite my will, move finances immediately to sons? Will currently states goes first to spouse, should i change that? Worried.
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NIH funding update- the truth…
I saw a post on social media this week that there were cuts being made at the NIH. My husband died in August from Alzheimer's and I have been fighting cancer since 2017 so this worried me greatly. Also my daughter works for a major cancer hospital that receives funding for cancer research So I decided to look into it…