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Childhood Resentments Bubbling Up Caring for Mom
Hey there, new caregiver for Mom who was diagnosed in February of 2026 and has been having issues starting 2020. I just moved across the country to be with her, and while she thinks that this is temporary while she has Lacanemab infusions I am realizing that this is going to be a long-term caregiving situation. I hope you…
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Balancing Independence and Safety
My mother was diagnosed with early-onset Alzheimer's last August at age 65 and is scheduled to begin Kisunla infusions in July. We are hopeful the treatment will help slow progression, but in the meantime we're struggling to balance her independence with her safety. For those who have been through this, how did you…
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planning for memory care - Oregon vs. California
New member here, this is my second post. I have read through many posts, and I want to say thanks to all of you for compassionately sharing your struggles and experiences, they are most helpful. I am now clear that my DH needs memory care, for his safety and for my wellbeing. He has moderately severe dementia, bladder…
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Seperating married couple
I'm not sure if anyone has experience with this. My sister and I are my mothers DPOA and we have documentation from 2 physicians stating she is no longer competent to manage her affairs. Unfortunately, my stepfather and his son have done some very underhanded things ( family drama) to the point 3 attorneys we consulted…
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Plan B
I realized what plan B meant today. I went to urgent care for an asthma exacerbation. When they called my name I stood up and for some weird reason my right leg buckled and I was on the floor. I broke my fibula near my ankle and my 5th metatarsal. I totally freaked out everyone in the waiting room including the staff.I was…
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bank statements causing problems
My mom used to always take her bank statements and financial records and create this complicated spreadsheets. Once she moved into AL, I take care of all her finances, and I have been working hard to ensure her statements are not mailed to her— NOT because I don't want her to see her income and expenses, but because she…
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Glucosamine
Important news about taking glucosamine: https://www.sciencedaily.com/releases/2026/06/260610003044.htm
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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One more time
Just thought I'd drop in to say "Hi", and share a little story about what's been going on with me. Seventeen days will mark four years since DW passed. Yes, there is life after dementia. Following is a little story some may find worth reading. Feel free to skip this post anytime. I'm not even sure why I'm sharing it. About…
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credit card
We are looking for ideas for a credit card for my dad. He needs a low limit. He has given his card number out to phone scams Currently we took his card away, but he needs something.
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Guilt
Does anyone feel from guilt, feeling like somehow our loved one wouldn't be an Alz sufferer if we'd done things differently in our lives, not hurtful things but just maybe taken different paths in life overall, provided better, etc.? Thx HK
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Just starting the journey
My DW has dementia and I will be the primary caregiver. We have been married 52 years and I am at a loss as to what to do, how to start, what to do or not do.
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DW Doesn't Understand Questions
I'm really fighting hard to help DW to understand the questions shes required to answer prior to her annual physical exam. I.e. The form asks "Over the last two weeks, how often have you been bothered by any of the following problems?", and then comes a list of potential problems like "Feeling down, depressed, or hopeless"…
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"typical" behavior
We periodically check in with DW PCP and have regular visits from our palliative care nurse. DW's behavior has changed quite a bit as the disease progresses. However, it seems no matter what behavior I describe, the response from the medical professionals is always the same, "that is typical". Sleeps all the time or cannot…
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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Coping When Loved One Remembers Things Wrong
Hi everyone, I wanted to share something that’s weighing on me after my recent visit with my husband. I spent a few hours with him yesterday at the nursing home, and while things went smoothly during lunch, he became anxious and started exit-seeking after. The toughest part is how his memories of these visits sometimes get…
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Non Stop Talking
My DW has not stopped talking since we came home from shopping at 1 pm today. When there is a slight pause she streams all kinds of accusations at me whch I deny as calmly as I can. She rants about people watching us or people stealing money she claims she has hidden. There is or has been a variety of caustic topiics…
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In need of advice on having a certified caregiver come in
Hello all. It has been a minute since I have written here on the forum. I want to be more active here, but I am more so often on the Reddit forums. To preface, I am 21 years old and still living at home. Currently on Summer break and just got a new job that I am starting Monday. Mom has Alzheimers, dad and I are primary…
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To choose or not to choose
I'm recently diagnosed positive for early stage Alzheimer. Currently I am taking a prescription to help with some memory issues. My Neurologist wants me to decide on one of two intravenous medicine. I am not crazy about the possible side affects. I would like to hear from someone who is on this one and of any side affects.
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Hoping to Start an Ongoing Conversation Space for Those Living with Dementia
Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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I need your empathy and suggestions.
New to this. DW has cognitive issues and is being diagnosed over next 2 months. Most times I am able to deal with this and we still have many good times together. But there are many times when this is so frustrating for both of us and very depressing for me. Walking outside or into another room sometimes relieves the…
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Did I do the right thing?
There was a notice in the mail that my LO would have to take a driver's exam in order to continue to hold her driver's license. In the report it stated quite clearly this is a result of her Alzheimer's diagnosis. My LO is in total denial, and any mention of Alzheimer's can become a trigger for agitated and aggressive…
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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Traveling Internationally With Dementia, Wandering Concerns, and Medical Alert Bracelet Recommendati
My dad is taking my mom to Mexico for stem cell treatment related to her dementia. He is going alone as her sole support person/caregiver. i’ve tried everything I could to try to stop this trip from happening not only does the procedure scare me with a alone. This is something that my dad is determined to do. My mom is a…
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How to cope with early onset decline of my sister long distance
Hi. I live in AZ, my sister and her family in WI. For some time she has had memory issues. She was only diagnosed 2 mths ago and is 66. Last weekend my nephew told me she is in decline, not eating, and is now in her own world. .I am going back to WI shortly. Personally I am crushed. As a nurse I know the support they need.…
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At home activities
Would like to receive any suggestions for an activity my husband can do with moderate ALZ.
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questions
My grandma has dementia and needs help doing things. She has been wanting moved every 5 mins to her chair and bed. She keep saying she don’t no what’s wrong and can’t see her dog in front of her everything is on repeat for her. How do I confront her or help her? Trying to not get upset but it’s hard
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Turning the corner
My last post, about mom's progression, was five days ago. Things have taken a huge downturn since then. She is eating nothing, sleeping 99% of the day, opens her eyes to my voice (sometimes) but no longer reacts with recognition. No speech or sound. MC staff got her to the table this morning but she just slumped sideways…
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Roommates kids bringing in stuff for mom
My mom is a hoarder! She lives in a nursing home with a roommate she really likes. It is almost impossible to get anything out of her room. My brother gave her popcorn in a tin for Christmas-she wants to keep the tin, she even saves empty single serve chip bags (no idea what that’s about), she saves all the cups they give…