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When to correct?
Seeking soem conventional wisdom on when and how to "correct" my wife of 48 years. She is mid stages of Alzheimer's and is now most happy talking about her early years of growing up. I try not to "correct" most things but am wondering what to say when she questions who I am, how long we have lived in our home. She believes…
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My DH has passed on
I lost my DH about 2 weeks ago but it still seems unreal. How long before I stop rushing through the grocery store because I can't be away more than a few minutes? When will I finally sleep through the night instead waking multiple times because he needs help? I am grateful that we never reached the point of moving him to…
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Taking advantage of an old post
If you are struggling, or just want to be ahead of the game, check out this post I started in Oct. 2023. It's about a free online 5 day course for caregivers, and the links all seem to be working. Take advantage while you can.
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Recent diagnosis of LBD
I am new to this disease and have fears and questions of what my reality will look like and a sense of urgency to get all my end of life plans and make sure I have all things including legal affairs in order. And I have fears as well. I have found many things that describe situations from the caregiver side. I appreciate…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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Obsession with winter clothes
While my mom has finally adjusted to her new home in AL, and is actually doing a million times better than I could have ever hoped, she is obsessed with going back to her house to get her winter clothes. She knows is summer and she understands it's nearly 100 degrees outside, but she keeps telling me she has to have her…
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Official diagnosis & Medications
Is a official diagnosis needed to start taking medication (Aricept) to slow down memory loss? Mri showed brain atrophy more accelerated for age than should be & chronic vessel ischemic changes. Memory loss & behaviors are declining also Neurologist prescribed Aricept but can't be started without official diagnosis which…
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I need help making a decision about supplementing food intake in late stage 6 DH
My DH is in late stage 6 dementia. He is almost non-verbal, double incontinent, in a wheelchair and unable to do anything for himself without assistance. He has been moved from a MC facility to skilled nursing because he requires so much help. He has to be fed, but he eats well and taps his finger when he is ready for…
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Mum accusing me of stealing
My mum is accusing me of stealing various things which is obviously very upsetting. She doesn't want me to go to her house any more, is nasty to me when I speak to her and convinced I'm a theft, which is hard because I go to visit, take her and my dad out and now can't support my dad .Any suggestions ? X
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Guardianship
I am the middle child, and the only girl. My mom has appointed me POA for both health and financial. Of course there has to one sibling that will not play by the rules, my oldest brother. He has recently purchased a vehicle in my mothers name. She didn't know what the heck was going on when I asked her about it and neither…
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where do I go for help
my DW is starting to become more aggressive, angry sometimes. There are times I have felt like calling the police but I don't want to do that. Should I call a crisis center instead when she becomes violent and angry? Also, any suggestions on who to reach out to for adult day care centers etc.?? TIA
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The money is gone!
Mom has been in Al for a year and a half. When we moved her in they said they accepted Medicaid waiver. I was never told family would need to pay the remaining. Partly my fault, I should have asked better questions. The facility is not what I had hoped it would be and I’m not sure how much longer she could safely stay…
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Palliative Care
Has anyone on this forum used Palliative Care? Was it helpful? My DH has unspecified Dementia, Bipolar disorder, ADHD, and hoarding. He lives in a very small assisted living. He is ambulatory, can shower and shave himself. He is often confused with delusions and hallucinations.
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Constant Falling
My Mother broke her hip a little over a year ago. Since that time, she now requires a walker as she has a significant limp from breaking her hip. She has also had repeated falls. Since she has broken her hip, she has fallen and broken her collarbone, then fell and broke her shoulder, and recently fell and busted her head…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Nevermind
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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Problems with some staff at the facility
I am new to the forum. I will try not to rattle on. My mom is in the early stages of Alzheimers. She is living in an assisted living facility in our close knit community. Being close knit, I knew most of the workers there and they were friendly, all except for one. We will call her Sara. When I heard Sara worked there I…
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Mom Recently Diagnosed
Hello! My mom was diagnosed in June with early onset ALZ. We had suspicions and they were confirmed, but it still hard to accept. She and my father live down the street from me. My dad has Parkinson's and she is his main caregiver. I help take them to doctor's appointments, often cook meals, do yardwork, help with finances…
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Dad with zero short term memory in nursing home
My dad has zero short term memory and just got put in a nursing home. He is desparate to get out and see family members visiting every day. Bottom line is I get 10-15 phone calls every day stating he is miserable and needs to see a family member. I can't visit every day because I am over an hour away. I just feel guilty…
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Leqembi
Just feeling blue this morning. Neurologist offered Leqembi infusions to DH with ALZ. DH is 90. It's 18 months of every other week infustions that will only delay the inevitble by months, not years, and if he does't have a brain hemmorage or stroke there are high odds of migranes and other side effects. We opted not to do…
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I Miss A Real Wife
Did that title grab your attention? This will be a somewhat long, therapeutic post. I have been married to my dear wife for 26 years, with nearly seven of those years in the dementia/caregiving scenario. Fully one quarter of my marriage has been overshadowed by dementia. I miss having a real wife. We had just 19 years…
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How normal is it?
How normal is it to have someone go from mid to late stage 5 back to a 1 or 2 for what I think has actually been weeks now? My DH is almost himself. Though I'm grateful, I'm trying to figure out what I'm dealing with. His mother died of dementia. His sister was DX'd with EO 3 years ago, given a 4 year prognosis, took the…
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Sundowners
Could this be sundowning? My DH was married to his first wife for 23 years. We have been married 32 years. This last week, in the evening only, he keeps telling me that he knows he divorced his first wife, but then asks me - did I ever remarry or do I have girlfriends? I’m wondering if this is part of sundowning because it…
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New to this
Greetings all. I thank you in advance for being here. Just over a year ago my dh of 48 years came home from routine Dr appointment with memory loss dx. For months we both questioned it. But in this moment I see that it was correct. Several weeks ago we had a difficult thing happen in our family. Significant enough to cause…
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Going on nine years
I am outside of my church that I go to every time I see my mom at the nursing home. It's the only way I can see her and not want to escape into my old ways of addiction. She has a rash now on her face and head. I know when I kissed her, hugged her and prayed with her she opened her eyes. She used to hum when I saw her,at…
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My DW isolating herself
My wife was recently diagnosed with AZD- following a rapid change in her behaviors and moods. Since her diagnosis a month and a half ago, she has increasingly removed herself from any social interaction (including with myself, our children, grandchildren and close friends by lying in bed and refusing to get up. When she…
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Long overdue update
It's been a long time since I have posted on this forum. Not sure if I belong here any longer but I can't find another forum that even comes close to fitting our situation. For a quick recap my DH has had cognitive issues for over a decade, due to TIA's, white matter disease and an autoimmune disease. Significant history…
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Hiccups
My dad has been diagnosed with both Alzheimer’s and Lewy Body dementia. One problem we are running into is that he always has the hiccups. It has been going on for almost 8 months. Medications do not work. Neurologists said not real tested to disease and primary says it does. In the meantime nobody is looking into the…
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Dementia Cruises/Vacations
When I searched this topic, I came up with a thread from a few years ago. Has anyone had recent experience with a travel company that takes specialized trips for PWD and their caregiver?