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Using Lequembi infusions
Hi- just wanted to connect with anyone who is using Lequembi. DH has had three bi monthly infusioNs to date and one MRI, which showed no abnormal brain bleeds. Seems to be tolerating it well. Our understanding is that it can’t replace current memory loss, but it can dissolve existing plaque and help prevent more from…
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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ALZ Talk: Opening the Door to New Alzheimer's Treatments
On April 2, Elizabeth Edgerly, PhD, Senior Director of Care & Support Programs and Services interviewed Christopher Weber, PhD, Director of Global Sciences Initiatives. They are both with the Alzheimer's Association, and I have personally met both of them through my role as an Early-Stage Advisor. I've found Dr. Edgerly…
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visiting MC facilities
I'm going to have to start visiting MC Facilities and was wondering about dropping by unannounced vs making an appointment. The glossy ads all look so wonderful and the reviews give a different picture, so was thinking that it might be better to just stop in, so that it is not staged. Anyone have experience with this?
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New to group
This is my first posting to the group. My DH was recently diagnost with Alzheimer's. It's not too bad right now, but he is also a Diabetic and a Kidnery receipient. He takes so many medications now wtih anti-rejection drugs I'm not sure how any new drugs will affect everything. Has anyone had any experience with Diabeties…
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Anyone Living in Assisted Care with LO?
As I continue my research on possible future options to meet my DH’s needs (and mine), I would like to hear your experiences if you or someone you know has lived in assisted care as a couple —-one healthy and one with ALZ. Some care facilities allow this and some don’t in our area. But, as you know, the real information…
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MC Cost
I often hear that a plan B must be explored when the time comes that I cannot provide the care my DW needs. I have looked into a memory care facility and the cost for this is astronomical….$586.00 a day. My financial situation does not qualify for Medicaid so this would completely bankrupt us in a very short period of…
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I need advice - My husband with dementia keeps scissors for 'protection'
My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…
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Hospice/burned out.
My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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Fear-based refusal to walk
A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…
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Managing incontinence
Hello all- does anyone have advice on ideas for getting urine odor out of bedding and clothing. My dad is incontinent of urine mostly and despite washing everything daily there always seems to be a lingering ammonia odor. Any advice of what can be used besides regular detergent to help!!??
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Family Dynamics while caring for Alzheimer’s
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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How common is elopement?
my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…
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Dealing with Alzheimer’s and family dynamics
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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communication
LEAP is a particular method of communication where listening and collaboration are prioritized that has been utilized both in mental health and non-mental health diplomatic discussions. The purpose of LEAP is not to establish facts or to talk someone out of what they believe. Rather, it is to listen at a deep level and to…
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Adult Daycare Adjustment
I’ve been reading the post for a while but, this is my first time posting myself. My DW of 48 years has been diagnosed with dementia for several years now. She is moderate level, probably stage 5 some 6 on the AD scale. I can no longer leave her alone and have been trying to get her to go to Adult Daycare for a few days a…
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Moving my mom to a new memory care tomorrow
so I'm on the process of moving my mom to a new memory care in a different state so she can be by me, her daughter and POA. This whole process is throwing me for a loop. She complained non stop about her old memory care and was highly un engaged and isolated. She talked frequently about moving out to be by me. So the day…
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Is this normal for Alzheimer's
my parent has major delusions and hallucinations. It started out mild back in maybe October and now is rampant. She now literally has imaginary people in her life and tells us all about these few people and has full conversations with them and also has conversations in the air with real people who are not present. one of…
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Is behavior issues already starting
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My first post.
I hope I'm doing this correctly, I'm not very tech savvy. We live in Washington state. My DH was diagnosed with MCI a year ago. But before that, we went and did a research study on alzheimers. He tested positive for the p-tau protein but chose not to participate in the study. His mother died from alzheimers and we've…
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FB Cure Scams
Just need to hear how you have handled your loved ones when he/she comes to you touting this new "cure" that Bill Gates, or Elon Musk, or Phil Donahue, or some other celebrity has discovered. My sister is constantly coming to tell us if this cures and wants to buy the honey or gummy that gets rid of Alzheimers. These fake…
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Is your LO on O2? Have you changed providers?
Bless this community, having a hard time today. 2 questions: Does anyone have experience with an Inogen-like portable concentrator that's continuous flow? What about liquid ogygen? Or another otion besides the clunky green tanks? He's on 4 liters and is in a care home, but not 24 hour nuring care. And, I HATE Preferred…
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wanting to go home/validation
https://www.facebook.com/reel/1172167977204030
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Physical Violence
And today I found out my mom is actually getting physically violent with my father when he presses her on something. I'm back at my parents for the week. I thought it was just screaming when he suggests getting help in but actual hitting as well? The worst part of all of this is that most of the time she is acting fine and…
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Two Months
I posted this on the regular caregiver thread by accident. I'm so used to going to that particular part of this board. Anyway. Here it is. I just needed to get it out. Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite…
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3 weeks tomorrow since husband passed
The quiet , the lack of activity. I had no time to think before he passed away. Now my mind is flooded with thoughts. Taking care of an alzheimer spouse is so hard and the abrupt end is really something else to deal with. My life was consumed for 10 years. Once never thought what the end would actually be
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Anyone have advice about power outage?? and Life in General?? My first post.
Today our home lost power for no apparent reason.. Maybe car hit a pole.. maybe lightning? I don't know.. but my parents, mostly my mom with Alz COULD NOT understand that I couldn't call someone and just have it fixed. It was out for about an hour and the complete off the chain conversation had me completely dumbfounded?!?…