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Discussion List
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not sure of next step
wife was diagnosed with frontal lobe 2.5 years ago. thought i could handle this myself today she said I wish *** this is the breaking point for me. absolutely overwhelmed where do i go?
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Dad concerning behavior
my dad has Alzheimer’s and vd. He is currently living with me for the past two months. He is not happy about it and frequently upset that he feels he should be able to live in his own home. Last week we spent time in a rental cottage boating swimming with my children and grandchildren. I believe that that he had a great…
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Science Friday: What can moments of lucidity teach us about Alzheimer’s?
I found this to be an interesting interview. No solutions presented, but presents what is being researched. Podcast description: Watching a loved one with Alzheimer’s or dementia slowly lose their cognitive abilities can be heartbreaking. While the person you once knew seems to be slipping away, sometimes people with…
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Changing role as spouse with husband in full-time care
I am wrestling with how to be a spouse when my husband is in full-time care. He still recognizes me, though I know that one day he won't. I feel like I am in an odd space between married and widowed. After caring for him 24/7, I have time now for exercise class, impromptu dinner with friends, shopping without rushing, and…
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later stages and dental treatment
DW is stage 6. Her last routine visit to our dentist was in February. She could not comply with basic instructions and we were unable to get her teeth cleaned. Fortunately her check up prior to that was successful and no issues were identified. Yesterday while eating, a crown fell off one of her molars. I saved the crown…
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New to This...
I am new to caring for someone with Alzheimers. My dad was recently diagnosed and he is only 63. In April, his job required him to complete a "fitness for duty" exam by their occ. health doctor. Needless to say, he is no longer working. He drives very little, just around town to the same places he has been visiting for…
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Would love to hear tips/tricks from people caring for parent with Mild Alzheimers that also drinks
Dad was recently diagnosed with Alzheimers, its in the beginning stages. He's recently had his driving privileges revoked based on diagnosis by his doctor reporting. He is also an almost daily drinker, Id say 4x per week. His drinking, even when he only has one or two cocktails makes his symptoms so much worse eg: unsteady…
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Will not take a shower, bath is not available
My DW will not take a shower. Any thought on how to get to shower?
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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Assisted Living Paperwork Q’s
Present address vs permanent - does it matter? My Mom has been at our home since February. We have never updated her address for anything. I vaguely recall a discussion about Social Security designated payee. Is it necessary to have one? Why or why not? I would like to receive all statements and bills at my address. Her…
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Partner not handling my deterioration well
I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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So much guilt.
My mother passed away on June 15 20216. I would go see my mom every day. I would take her out of memory care and into the assisted living side. We would have dinner in the restaurant there or go play bingo or go to the movie theatre. It was really hard to keep that up but I did it. She started to not want to go out and…
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Saturday was a “normal” day so to speak
I don’t know what caused it but my DH seemed to be his old self. He spoke to me all day, without making accusations or getting angry. We carried on conversations as if nothing was wrong. It was a very rainy day here with tornado and severe thunderstorm warnings. I decided to make zucchini nut bread. DH came into the…
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Key loss "Frustangry"
Dad once again lost his lanyard with his attached key. I received a call from his caregiver's agency that he was overly agitated and both angry and frustrated. They recommended that I get out to him asap. I called him to get some more info or hopes of bringing him down a couple of notches. I spoke to his Friday caregiver…
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Me blowing up
The issue I'm having is the anger toward my wife. She has early to early mid Frontal Temporal Dementia. She can still stay and do most daily things by herself, including meals, meds, toilet, etc, therefore I am in and out of the house most of the day. Problem is that she will ask me a question on how to do something,…
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Just a vent….
You might remember I broke my foot in June and was in a non weight bearing cast for almost 8 weeks. This morning I had an early followup orthopedic visit with X-rays. My alarm was set to go off @ 6:30. In a panic I awoke @ 8:15, couldn’t find my phone and had clearly missed my appointment. DH had my phone and said “it was…
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The struggles when living in a very rural location - have you been there?
Just a little backstory to start…..My 70 yo DH was formally diagnosed with ALZ about a yr ago. His dr doesn’t think identifying stage is all that important. But in looking at the dbat, I would say he most definitely falls into stage 4 with a couple of things in stage 5. He probably can’t tell me the day of the week but…
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Disability denial - finding legal support
Hello, I am age 64, diagnosed with early onset Alzheimers. I did go on regular Social Security recently. We were encouraged to apply for the SSDI - as I am no longer able to work in my field - and also am declining in my ability to remember complex details and instructions. SSDI denied the claim, which we want to appeal -…
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Today is the day
We meet with a neurologist to try and determine if my DH has dementia and what stage he’s in. DH has been in cognitive decline for at least five years. I know no answers will be forthcoming today. I’m sure testing will be forthcoming. I am beyond frustrated with my DH and this disease. Last night I returned home to my DH…
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Paranoid mother
My mother has mid stage dementia and loses things constantly. She is now saying my adult children are stealing from her. She has accused enough of the family of stealing that now I’m the only one left to take care of her and my dad. I don’t know what to do. She cries cuz nobody will come visit but this is why
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Mental illness and memory care
Hi all! I'm facing a decision about increasing my mother's level of care, and I'm getting very different messages from professionals. I'd appreciate any advice or input you have about what questions to ask or factors to consider. My mother has longstanding mental illness with various diagnoses that features an explosive…
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the drugs to buy to treat urinary incontinence of my mum
mumis 89 with alzeihmer disease, memory loss and urinary incontinence that recently started. looking for safe drugs to help her without affecting her bladder.
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DW beginning Lecanemab in about 2 weeks
My DW has mild symptoms and will begin infusions soon. We are both anxious and would appreciate any information from others who may be able to tell us about their experiences with this treatment or where we may be able to find personal stories. Many thanks!
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first time posting
Hello, my DH was diagnosed with Alzheimer's about a year ago. He still cares for himself (dressing, bathing) but is dependent on me for everything else (tv remote, financial, meals, everything, constantly asking questions). He has not driven in over a year but still insists he wants to renew his license. He does not seem…
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New to ALZ Site - Caring for LO With Dementia
New here to the community, caring for a parent with severe dementia and their spouse. LO had a serious fall a few weeks ago, resulting in a brain bleed. Another fall or progression led to acute/chronic bilateral brain bleeds. LO had urgent brain surgery to alleviate this. Spouse is finally waking up to the fact that LO w/D…
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Confronting Denial
My Dad has FTD with limited mobility. My Mom is his primary caregiver, but she is still in denial and hasn't fully accepted the diagnosis and the situation. She is holding onto how she wants or envisioned things would be in their retirement years rather than adapting and trying to make the best of a very difficult reality.…
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DH just diagnosed
We see the neurologists this week. Pet scan came back positive for Alzheimer’s. DH is in denial. I think it is early. He forgets names and recent conversations. Just wondering when he should stop driving and I hear about stages. How many stages are there. He is 71 and has heart disease. He works out four times oler week…
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caring for an estranged grandmother with rapidly progressing alzheimers, no POA and....
Caring for an estranged grandmother with rapidly progressing Alzheimer’s, no POA, and an immediate need for 24/7 supervision I’m reaching out because my family has been thrown into a rapidly escalating situation, and we need advice from people familiar with the gap between realizing someone needs 24/7 care and actually…
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When Persistent Fatigue Is More Than Just Tiredness: Understanding Physical Debility
Feeling drained after a busy week, several nights of poor sleep, or an intense period of work is common. In many cases, adequate rest allows energy and concentration to return fairly quickly. The situation deserves more attention when low energy keeps returning, familiar activities become harder to complete, and rest no…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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