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Parkinson's Dementia really accellerating fast - alarmingly fast
Hi. So my mom was first diagnosed with Parkinson's over 20 years ago. She's 85. Around 2018-2019 my dad began talking to me about it more. But he didn't let on how hard he was working. In August 2019 dad died very suddenly and everyone was completely shocked. We quickly moved mom to an assisted living with her sister sort…
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Brilliant Analogy
This really resonated with me. https://www.facebook.com/reel/1101251472572052 HB
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New and looking for resources
Hi. I just joined this group today, I'm not sure if I'm the intended demographic as I'm not the primary caregiver for my loved ones with Alzheimer's and dementia but I have been struggling with the grief and looking for support. If anyone knows a better group please let me know! My grandfather has late stage Alzheimer's…
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Another sad day in this journey
Today I took my DW to the BMV to turn in her license and get a State ID. I went in thinking it was just another item on my checklist. I wasn't prepared for my reaction when I compared her bright eyes and warm smile on her old license to the blank stare on her new ID. It really highlighted what's happened in the last 3…
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Feeling guilty when out
I’m fortunate to be able to have hired help with my wife. I usually have someone here from around noon to 4 most days. I really feel guilty when I leave to have lunch with a friend or just to go do errands. I can no longer take her anywhere and get out of the car with her although I try to make sure she gets at least one…
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Cognitive Impairment Changes
Hi. This is my first post. It's been two years since I noticed significant changes with my DH. He is 79; I am 66. I am in great health. We've been together 37 years so I recognize what is normal with him. He has been diagnosed with MCI (Nov 2024 even though I noticed changes four years ago), but significant changes after…
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Noticing changes
I'm only a month into my diagnosis. I had a conversation with my granddaughter today and mentioned to her that I feel like I will notice when changes happen. She thought that might be a good conversation here. Have any of you noticed changes in yourself as the disease progressed?
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Navigating Long Distance
Good evening. I am new to this site; just searched for Alzheimer's support groups and this showed up. A little (moderately long) background: My mother is in a memory care facility in Washington state. My sister holds ALL of my mother's powers of attorney. My sister and I have been estranged for more than 15 years. For…
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Newly diagnosed Early Onset Alzheimer's
I'm new here. Just diagnosed at age 54. Looking for answers on my outlook of life (longevity). I keep reading that if I am diagnosed EO, my life expectancy is short, how short?
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Alzheimer's dimensia COURSES
Hi Are there any courses within my area? Please let me know via email Thank you Zip code 46947 Marta Curtean Kelly
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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Living in Germany with Alzheimers
Hi, This is my first time of posting. I went looking for a support group for people living in Berlin who were English speakers living with AD and clicked up the discussion tab and ended here -- but I am feeling perhaps I am not in Germany anymore? I would love to find someone else who I could talk to about dealing with AD…
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Moving Caregivers Around in MC?
The MCF where my father lives has several discrete areas (“neighborhoods”), with a set of rooms, laundry, and dining room. These areas are not arranged by level of care; rooms are luck of the draw when moving in (whatever is open). Caregivers are assigned to one of the areas during a shift; nurses supervise two areas…
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UTI and enlarged prostate
DH is early stage 6 and is currently being treated for a UTI, today will be day 4 of antibiotics after doc visit, a fall at midnight, EMS and later a trip to the ER to rule out injury and determine if any blockage in urinary tract. He was not admitted to hospital. It's a long story with more details that I wont share here…
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What do you think caused it?
I am certain every one of you has asked this question: what caused this to happen to my loved one. I have different thoughts at different times. But if I had to pick one guess I am going to say statins. Although correlation is not causation it’s hard to ignore the uptick in statin use with the uptick of dementia over the…
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A good book recommendation?
I like reading (caregiver for family) and I am looking for a book to help a spouse with best tips, coping suggestions for DH who is angry often, and she is fearful of getting hit again. Alz stage 4, he is currently (temporarily) removed from home -
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Living with Alz what will happen to me ?
My LO family member living with me now wants a book to read about his disease (alz stage 4) so tomorrow we are visiting the library, if you can recommend a book for him (not for the caregiver) - we have a lot of conversations- and understands the stages etc encouraging reading would help him.
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Experiences with Seroquel to curb delusions
Hi! I've written many times about the step we took to move my mother into a MC in April and her struggles to adjust to the environment. My initial worries were that it was too early as she had times when things were manageable, the problem was that the delusions ramped up very quickly and were extreme (e.g. felt she was…
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Caring for a parent
My Mom move to an assisted living in May for mild cognitive impairment. She was forgetting her meds and was finding it difficult to balance her check book. I really wanted her to move in with me, but she insisted on her independence which I respect. She was worried she’d be forced to move off campus when the time came to…
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sexual behavior
My DH is now constantly thinking about sex. Follows me around and asks to be intimate. Even if we have been intimate he forgets and gets angry if i try to redirect him. Tries to leave the house to find someone to have sex with. His doctor has increased his meds because he was having dementia psychosis. That has improved. I…
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Guide does not provide respite care benefits for patients with mild dementia
My husband has mild dementia, and I am his caregiver. Recently, I applied for the Guide program because I was interested in the respite care benefit. I was approved, but it was only in the onboarding meeting that I learned that the respite care benefit is only available for patients with moderate dementia. I was pretty…
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Happiness Turns To Sadness
In a past life my DH and I spent years sailing around the Whitsundays and along the east coast of Australia. After DH was diagnosed with VD and aphasia I didn’t think we would ever sail again, but we have found Sailability, a wonderful organisation made up with the kindest and most understanding members. I am on the…
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Cleaning out mom's room
So tomorrow will be two weeks since my mom's death. Her MC director, while very kind with condolences, is pushing gently for me to get her room cleaned out so that they can paint and prepare it for a new resident. When I pointed out that mom was paid up for this month (and I was out of town for the first week after her…
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Stay or Go
Hello. I'm sorry for all of your loss and I'm about to be joining you soon. My mother is in the end stages in a nursing facility far away. I'm long distance. My dad is there with her. Last time I saw her was late Feb of this year and a few more times on video calls when she was eating well and looking pretty healthy and ok…
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Does anyone experience this
I try to take my DH out to do things, like listen to music, a movie, dinner, grandkid’s ball games.It is such a project, he asks the same questions over and over even though it is a place we have been many ,many times. By the time we are ready to go, I feel like I don’t want to go because once we get there I have to tell…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Engagement problem
I am having trouble getting DW to engage in any activities throughout the day. In the morning and right after the afternoon potty break, she will sort/shuffle her papers and talk for about an hour to an hour and a half. Then sits down and really is inactive in the between times. She used to work in an office environment…
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Time shifting
DH in middle stage of ALZ: lately he has had several episodes of time shifting, not the day or time, but in years. For example: last week he told our daughter that he had lost a few pounds (not) and could finally fit into the khaki pants he wore when he got out of the army. In reality, that was 70 years and 25 pounds ago.…
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Compassion Fatigue
Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]
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Adult day care
My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.