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Just Sharing
It's been about 4 months since I've been on this forum. With the start of our 9th year since ALZ diagnosis, I just felt like I needed to share. I apologize for rambling. I recognize that everyone's journey is unique, so you may be able to relate or you may not. But I'm sure, as caregivers for your loved ones, you…
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stem cell therapy
Hello everyone: I'm considering stem cell therapy. I'm wondering if anyone has gone down this path or know anything about it. I've researched it, but I think its pretty new in Alz treatment. thanks Pam
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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Taking car from dad
We have been trying to take the keys from my dad, not happening. He lost his keys, but remembered that my mom had a set so he took hers. He carries them with him even at home and will not let us have them back. When we tried to hide them he became furious and very agitated, the anger in his eyes is real and he looks like…
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Sleep too much?
My mother’s sleep patterns have changed over the month. She previously would sleep 9-10 and nap once during the day. Now, she goes to bed as early as 5pm and sleeps until 11am AND naps from about 1-4pm. It can change day by day, but she is just constantly sleeping. She’ll eat breakfast but that’s the only meal. No…
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How do I get him to accept respite care
I need respite but he refuses to go. What to do?
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Feeling too responsible for my 101-year old dad with dementia
Hi! I am new here and this is my first post. My 101.5 year old father lives in his own home and has 4-5 different caregivers who provide 24-hour care. I would say he has moderately high dementia in that he is sometimes very confused, sleeps a lot, can't remember what day it is, etc. He walks with a walker, can converse…
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How to move forward?
Hi there. My mom was formally diagnosed 2 years ago, though we as a family have noticed she has been progressing more quickly than before for the past few months. Unfortunately, her dad, who also has Alzheimer's and lives in a memory home, needed to be set up with hospice care last week. This has caused an even further…
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reasoning
when logic fails https://www.facebook.com/reel/1219377039793212
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Ideas? Traveling and getting alone time.
My DH was diagnosed 1 1/2 years ago with Alz. Early to mid stage 5 is my best guess. He is still able to care for himself and do small projects and tasks around the house. Although he doesn't like to talk about it, he is very much aware that he is progressing. In April we are taking a 2 week trip to Japan to visit my…
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New to this whole thing
My husband was just diagnosed 4 months ago and we have been spending most of our time learning and trying to find every way we can do full progression or trying to get into clinical trials, we had so many plans. So many dreams.he is 62 and I will be 62 in the summer And after years together, we finally got married this…
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How do we get any sleep?
Mom has not yet been diagnosed with dementia but has an appt to see a vascular neurologist in May. She has small vessel disease in her brain and infarcts have been seen in frontal and corona radiata areas. Nights are horrible at our house. She isn't able to sleep and wants me to stay awake to make sure she is safe even if…
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When is it time to stop Rivastigamine?
Friends, Dad is stage FAST 6/d, or prox. Had a big memory decline in the last month. Can't do any part of showering unassisted, can't remember where his room is in small care home. Tam Cummings (?) said something to the effect that the acetylcholine meds have benefit but also just make the worse stages longer. My words,…
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When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
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Hospice/burned out.
My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…
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OVERLOADED WITH INFORMATION / NEWLY DIAGNOSED
My husband was recently diagnosed at age 64 with EOAD. It has been 6 months since diagnosis, and I will say it is very overwhelming. Sometimes I just have to stay off the internet / social media. I feel like 98% is all negative. I am just surviving the now. And trying to be present and accept the now. Everything is…
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Help with phone
My 83 year old dad is in the mid to late stages of dementia. Most days he has difficulty operating his iPhone. Are there any phones for seniors/dementia patients that would be easier for him to navigate?
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Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…
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Hallucinations
New to the forum. Excited to have a resource like this. My wife has early onset Alzheimer's. Her life is so disrupted by another person that she believes lives with us. She believes that this person steals and eats her food, steals and drinks her drinks, sleeps in the bed with us, wears her clothes, and on and on. She…
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Figetting
My DW is in stage 5/6 and will not sit still. Is there any medication that will calm her down.I have constantly follow her around and it's exhausting!
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Need to say no
I asked this in another discussion but came here due to the recent loss of my husband just a month ago. I am frozen right now with grief and am not ready to socialize. A cousin asked me to lunch tomorrow (we are not that close), as he is passing thru my area, and I said yes, but now I really don't want to go. And my…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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father
My father has a detailed advance directive for his health. It states if he has less than 6 months to live all interventions should stop. He is on hospice now and whether he will live 6 months, no one knows. Will he live a year? I don't think so. Question: He is on insulin for type 2. I'm struggling to have them stop this…
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Venting - In Law refuse to move into Memory Care
Three years ago, we added a 600 sq ft apartment to the back of our house for my in-laws. My MIL had started wandering and going to neighbors’ houses saying there was a strange man in her house. (It was my FIL). They sold their house to help pay for the addition to our home. My MIL has advanced AD and is now giving the…
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Bible Verse to Lift You Up 2/17/26
THANK YOU, LORD! Psalm 34:9-10 New International Version 9 Fear the Lord, you his holy people, for those who fear him lack nothing. 10 The lions may grow weak and hungry, but those who seek the Lord lack no good thing. me: Life can be the pits; it can be confusing and hurting. Yet The Holy Spirit whispers encouragement and…
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Caregiving from afar
Hi there, I am new to this group and new to the dementia journey with my mom. My father passed away right before Christmas, and now she is alone in their home. I live 2.5 hours away, and my only other sibling is 5 hours away from her. Mom has been showing signs of dementia for about 2 years, but has really declined over…
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Looking for advice ..
DH has VD from previous strokes and poor CV health. We have Kaiser Senior Advantage and supplemental insurance from his work. He is an army vet but never signed up for VA medical after separation. I would like to get him signed up for VA medical, not necessarily for drs visits or meds, but down the road as he progresses he…
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Trying to leave the house
My DW who is 67 years old is in stage 5 with some aspects into stage 6. I have my daughter at home to help me so I can run errands from time to time. Just about every time I leave (only for a hour or less) my DW wants to leave the house. My daughter tries to prevent her from leaving but then my DW gets aggressive towards…
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My patient is diagnosed with Dementia
Hi, I am a licensed Practical Nurse, the business owner for a caregiving service called ' Divine Home Care Services in Jamaica 🇯🇲. One of my patient has short term memory loss and Sundown Syndrome. She loves to eat snacks and not cook food but she's calm and kind. She gets confused when the sun sets. Time confusion & where…