-
Not sure how to feel
The last week of February my DH and myself tested positive for covid. Two weeks later we tested negative and his symptoms seem to have went away, but on the 19th of March we took him to the ER for a totally different issue when they found he has pneumonia and spent 3 days in the hospital. They said he tested positive for…
-
Interesting observation
The nurse who evaluated my LO for hospice made an interesting observataion. He watched my LO's hands and asked if he had ever been screened for autism. ( I don't remember the exact wording, but he was very tactful) Later, he told me it looked like stimming behavoir, which is common with autism. My LO has no history of…
-
Wanting to go outside all the time
I am my DH primary caregiver and he can no longer be left alone. In the past few months I feel that so many things are changing. Since the weather is getting nicer he has started to say "I just want to go in the yard for a few minutes" . He comes back in 5 minutes and does not leave the property. But then he does it over…
-
Hi I'm 10 second Louie!!
So if you have ever seen the movie 50 first dates with Adam Sandler I am currently living with "10 second Tom" this weekend. For those who have not seen the movie it starts Drew Barrymore as a young girl who was in car accident and has brain trauma. This trauma caused it so that her brain resets every night and she relives…
-
MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
-
Feels Like a Lose-Lose
We moved my 82-year-old stage 3-4 Alzheimer’s mom from an independent living place near me to an urban assisted living place while she was on a trip last week. She is very angry and refuses to let us stay when we visit. She says she is being surveilled and kept prisoner (she can walk out anytime she wants, she just has to…
-
Talking about someone in the 3rd person while speaking to them
We suspect my 89-year-old mother is progressing from early- to mid-stage dementia but don't have a diagnosis yet. Recently, there have been a couple of instances where she's referred to the person she's speaking to in the third person. Like telling her granddaughter, Lauren, about "the basket that Lauren made" or telling…
-
Not adapting well to memory care
My mom who has stage 4 Alzheimer's moved to memory care a couple of months ago. She went to memory care after living with family for a few months after she could no longer live alone any more. She doesn't seem to be doing well after 2 months. I'm confident that this is the best memory care place within 1 hour of my…
-
Struggling to Cope
Hi everyone. I'm 27 years old and two years ago my father was diagnosed with Alzheimer's. Things have been going really smooth. Up until the last few months. He's progressed somewhat quickly and I had a really jarring experience with him yesterday. He's been having conversations with himself which I just let him do, but…
-
Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
-
New Here - Caregiver Fatigue
Hi all. I’m a caregiver for my Mom who was diagnosed with slow progression Alzheimer’s but has since sped up. She can still maintain her daily hygiene, knows to eat, etc. Prior to being formally diagnosed, I was living out of state with my husband and then college bound son. I decided that it was best I moved, temporarily,…
-
Delusional talking
-
Looking for advice on parent who wants to travel but can’t
My mom’s sister recently passed. She lived 2000 miles away from us and had no kin. I need to travel to help handle the estate, etc. My mom keeps insisting she’s going and I have to explain that she can’t travel. She gets disoriented in her own home and needs supervision 24/7. As much as I wish I could take her with me,…
-
MCI Diagnosis
My DH has been diagnosed with MCI after a fairly brief evaluation from a neurologist (with review of his MRI and bloowork). It appears that this is an umbrella term that could mean any number of things, so I'm confused about his actual diagnosis. I'm contemplating getting a more detailed neuropsych evaluation but hear that…
-
Support
My mother is in a nursing home, funds are low, and my income isn't enough to help. I hate the idea of selling the house and I feel like I've betrayed her, as she's always upset when I go to visit. But at the same time, feel my care to live with her would not be enough. I really wish I could just bring her home and be…
-
Advice on Deed
I need to get some advice from you folks on what to do with our home deed. The deed is in both my and my DW name. It is also included in our Trust. I will probably need to sell house to help defray the costs of MC some day. When and if we get to that day, my DW will probably not be able to sigh any documents. I do have a…
-
How to move from assisted living to memory care
My mom has been living in AL almost 2 years after difficult move out to California from Michigan. She did well the first year, but then AL decided to renovate and the disruption triggered fear. She’s 77 years old and was diagnosed with likely dementia, has aphasia and recently has been having auditory hallucinations. She’s…
-
Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
-
stability issues at toilet
DH is becoming more unstable in general, he hasn't fallen much -yet- but I'm looking for suggestions using the toilet. He is trying to see if he can pee sitting down, but standing is such an ingrained habit it may not be workable. He needs something to hold onto whether he sits or stands. I have heard the suggestion to put…
-
My Mom
My Mom is 65 and showing all the signs of dementia. Her biggest one is she thinks her loving husband of 35 years is cheating on her. She’s making his life miserable. She’s always accusing him and being nasty. She refuses to even talk about the fact that she might have something wrong with her and won’t go to the doctors.…
-
Age 59 early onset with a six year
My husband (currently separated) is in the early stages of being diagnosed. There is a months long wait to get into a neurologist to get an official diagnosis. Meanwhile, I’m now a 41 year old single mom to six year old. His undiagnosed symptoms have caused financial ruin for our family. He isn’t able to work and is…
-
Hospice assessment
I'm ready to have my husband assessed for hospice. He doesn't meet all the criteria on the checklist, but I've been encouraged to have a home assessment. Any tips for those of you that have done this? I plan to tell him it's an assessment for insurance coverage, without mentioning the word hospice. Anything I should be…
-
Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
-
Diagnosis for dementia?
My mother was recently discharged from the hospital after having an episode of some sort and falling. She stayed in the hospital for 2 weeks and she was experiencing dementia symptoms pretty bad. Her memory has been fading gradually over the past 6 years or so. The doctors were worried about it and tried to get an MRI but…
-
Comparing Clinical Care in Boston
Hello, I'm from the Boston area and new to the discussion. I am wondering if anyone has gotten recent care for a loved one at either Boston Center for Memory (BCM) or Mass General Hospital's Memory Disorders Division? My 82-year old mother has mild ALZ but will probably NOT choose to pursue anti-amyloid treatments…
-
Caregiver-only groups in DFW?
Anyone in North Texas know about groups for caregivers?
-
Cardio surgery and Quality of life
For context, my dad had two valve replacements many years ago that seem to have been a factor in his dementia. The valve in his first surgery was crushed by scar tissue so his case was written in medical journal and the cardiology department at Vanderbilt (which is local to us) is really invested in his care. About a month…
-
Homecare
I’d like to get a caretaker come over twice a week for a few hours. Where do I begin to search? And hubby likes sleeping until 10:30 or so. Therefore I should have the person over when he’s up and about? Thx
-
Caring for spouse
my DH has EO dementia. He has an alcohol use disorder. He has guns as we live in the country and have chickens. He is 82 and I’m 83. I at a loss as to how to deal with everything and my family is worried about his gun use against me in his mental condition. I need help.
-
Transitioning to AL
My mom is in a community with IL, AL, and MC. She’s been in IL there for 2 years and it’s time to transition to AL. We know she will eventually need MC too. Any tips on easing the transition when it’s in the same community? In a way it should be easier due to the familiar environment, but there’s also a feeling of being…