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Cleaning their bunn?
Is it easier to clean their bottom with them standing or sitting? Sitting, meaning still on the commode. Thanks
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Struggling with Healthcare
Hello, I am new to posting. I live in Chicago with my mom who suffers from late onset Alzheimer’s. She was diagnosed in 2016 after showing signs of hallucination. She is now 88. My questions are; Is there advocacy to turn to when you feel lost with healthcare providers. If she is ill they treat symptoms only and send you…
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Microaspirations
Anyone know much about microaspirations in late stage Alzheimer’s? Dad developed a wet cough a few weeks ago. Doctors said it was microaspirations, which is the next phase in decline, but now the caregiver is saying his cough is gone. Do the coughs come and go? I kinda figured once they started, they just continued?
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Mother with AD has Anxiety
I am new here. My mother was just diagnosed with Alzheimer's in August; but I think she has been struggling for longer than that. She is on Aricept and says that it helps her feel less in a fog. She is still living alone; but I am doing her bills for her. However, she is worrying about EVERYTHING. She makes lists in her…
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How to Help with Mother's Aggression - Newly Admitted to Memory Care Facility After Broken Hip
HI all, Im so grateful for everyone here and the support everyone provides. My mother has been admitted to a memory care facility within the last month or so after breaking her hip, having surgery, and living at a rehabilitation center for a month. She had previously been aggressive and yelling in situation where she was…
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Fabricated memories affecting caregiving
Hello! I care for my 87 year old MIL w Parkinson's related dementia that's slowly progressing these last 3 years. She was in a home last year for a broken hip, and about 2 months after returning from the home, she started telling me about remembering times that since being home, I'd dropped her. This memory flash (which…
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Incontinence Diapers
Not knowing of any other brand I got my OH to use Depends at the onset which was 7 months ago. I recently found out about Always. My question is which one is better or are they basically the same.
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CBD to help manage symptoms
Any one have experience with CBD to help manage anxiety and agitation in your loved ones?
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Another reason to watch the PWD's finances: the IRS
It is hard, messy and sometimes relationship impacting to step in to take control of your loved ones finances -using DPOA or guardianship. People say things like " want them to be independent as long as possible " etc. Heard a caller on a radio show -grandmother with dementia lost 500k to a phone scammer who said her…
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Nonstop Singing
Hello I am new to the group. Been caring for my DH with vascular dementia for about 3 years. Recently he has started singing and humming non stop. Sometimes I can drown it out but other times it is very un-nerving. He attends an adult day service program twice a week where he has also started the nonstop singing. Any…
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Slipped right into Stage 7
At the beginning of October my husband lived in a memory care, could walk on his own, feed himself, and say several words, sometimes even a whole sentence. He was partially incontinent. His agitation/aggression landed him in a Geri-psych unit, and during his time there, he had aspiration pneumonia. After that, he gradually…
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How to help my mom: she forgets that she went to the bathroom (#2) only a few hours after going
Hi everyone! My mom is almost 83, and in great health, but her memory is not the same over the past year. Over the past few weeks, my mom keeps on thinking that she is constipated, and that she hasn't passed a bowel movement in two days. I explain to her that she did so earlier, and it still doesn't register. She continues…
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Holiday celebrations
Hello Friends, My DH is moderate - late stage ALZ. He is not oriented to date/place/time, he is basically non-verbal. He is very unsteady on his feet. He requires help in the bathroom. He recognizes family when he sees faces, but I’m not sure if he knows our names. I am struggling with depression and dread the upcoming…
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Mom is consumed with sadness...
My 58-year old mom with early-onset Alzheimers lives with me. She has been with me now for a year and a half. Her type of dementia effects her visual comprehension first and foremost, which prevents her from doing any of the things she enjoys. She can see, but she doesn't understand what she is looking at. Lately, she has…
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Just Diagnosed with AD
Good Morning, New to this group. I was just diagnosed with AD (early stage). I am 60 and I still function at a high level. Because I can function at a high level, it is very difficult to accept this. My biggest fear is that of the unknown. How long am I going to be able function at this level? When will the debilitating…
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Care Givers and Spouse Online Communication
Looking for an easy way for our two care givers and myself to share daily information regarding the experiences with my wife. Would like to be able to privately post information such as meals consumed, surprises, issues, helpful tips, questions among the group, etc. Has anyone used an app or program they might suggest?
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Seloquel
I am new here. My mother was diagnosed with ES VD in August. She has been prescribed Seloquel which is very concerning to me. Based on the info I have been able to gather, she does not have any behavior issues that would warrant being prescribed this drug. She is docile, but has had some anxiety and sadness in the…
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Activities for Mom, middle stage alzheimers
My mom gets bored and starts roaming around the house. We are trying to find some activities, but it's difficult. She doesn't comprehend games real well, like solitaire or anything like that on phones/tablets/computers, she doesn't like puzzles, and she is showing signs that she can't comprehend things like words and…
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Three Years in Memory Care
Today marks 3 years since I placed DW in Memory Care. I have been blessed as DW acclimated immediately to MC & has been happy and well cared for there. This morning I made her blueberry pancakes and brought them to her for breakfast. At this point she needs to be hand fed and no longer communicates but since she cleaned…
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Alzheimer’s-Posterior Cortical Atrophy
I also posted this on Caring for Spouse page. Don’t remember if I posted this already but I recently realized symptoms my husband had early on several years way before diagnosis. He complained of dry eyes but I think he just couldn’t describe what he was seeing. He also had difficulty spelling common words and doing simple…
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Caring for dad
Hello, I am at a loss for words as to how to handle my father with dementia. He was diagnosed over a year ago and was holding up ok for awhile but it has taken a turn for the worse. Recently, he has become very aggressive and has become physical with his family. I had to call 911 this week because we just couldn't handle…
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Hospital bed time. Moving really fast
I added an Update in the comments I got a call tonight from the AL nurse. Mom rolled out of bed tonight. Since this counts as a fall ( in my opinion), it’s three falls in 9 days. The AL nurse had previously told hospice that mom didn’t need a hospital bed as her platform twin bed raises and lowers at the head and feet. I…
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The Long Goodbye is Over
My dear husband passed away early Monday morning. He was at home and with me and our two children. He was diagnosed 3 1/2 years ago and had been slowly progressing over time. He was always cheerful and I am so thankful for that and for all of the support that we had. About three weeks ago, he was becoming so weak that we…
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Did the SLUMS test....outcome....Dementia
Hello, I really don't feel like I belong here bc I don't know all the big test names that everyone else seems to know, but I'm scared and looking for ppl who understand. I've had a brain MRI that came back as normal, But I knew in my heart that something is majorly wrong with my memory, so I requested to have a cognitive…
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Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account executive/community liaison for a hospice company, where I have learned so much already. My grandmother also has dementia, so I…
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New member
Just signed up today! Hope to get a better understanding of what is yet to come.
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How to respond
My LO has recently taken a large turn for the worst. I am 12 years his junior and still work full time but have homecare during the day. It is getting much more difficult at nights. He keeps asking every ten minutes for me to take him home or he needs to go home. I say ok lets go and a lot of times I will drive around the…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…