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Travel
My DH is about 5 years into it now, he was a very active, intelligent man. Now he mostly sleeps and watches TV. We have always traveled to Arizona from Mn. to avoid the harsh winters. We did share the driving but now of course, I do all of it. But Im worried how he will do on 4-5 days of travel and motels. I've read that…
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New to Alzheimer's
Hello all thank you for providing a network of caregivers to help guide others through this horrible disease. My grandfather was officially diagnosed over a year ago with Alzheimer's. I am his MPOA and am new to all of this. I am just wondering if anyone has any advice on the following. He has UHC Medicare Advantage and I…
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Alzheimer's Screening and Prevention (ASAP) Act introduced in Congress
Saw this and thought I would share. It's a start and hopefully will lead to much more. https://www.alz.org/news/2025/house-introduces-bipartisan-legislation-asap-act-alzheimers-screening
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ER visit, then more decline??
Yesterday I had to call 911 as my mom passed out and gasped for breath as she was trying to enter the bathroom. She said she couldn’t straighten her back, so I got a chair behind her so she could sit and then she loss consciousness. In the ER she was treated for hypotension and dehydration. A cat scan (? stroke) was…
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Adolescent Behavior
My DH who I think is in beginning to mid stage 5 acts like a 12 year old. I work full time but when I get home the constant wise cracks and jokes begin. We can’t have any kind of conversation or watch tv because he is constantly trying to make funny wisecracks and sexual innuendo’s. Anyone else experience this?
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In home care for parent- does not want help.. Los Banos, california
hi everyone, my mom is sliding quickly with memory and mobility issues. Still wants to cook and take care of inside of house. Memory problems are getting worse by week.. does not see this.. refuses care outside house. Need someone to come in periodically… where do I start? Thank you everyone
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Heart Breaking
I can’t get over how sweet and normal my DH seems. Sitting watching Love Actually for the 3rd time this season, laughing really enjoying the antics of ‘Miss Dunkin Donuts etc, having a curried egg sandwich for lunch and then he tries to say something and the words won’t form, I try to have a conversation with him and he…
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Clinginess
Hello all- I was going to reply to another post from a few days ago because she specifically mentioned the increase in unwanted opinions from her DH and so this is related, but also I am kind of thinking perhaps a precursor to shadowing maybe? Want to see what you guys think and what your experience has been. Anyway, my DH…
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Mom is about to be homeless, how do we decide what to do?
Hi, my mom was diagnosed with ALZ just about a year ago, but we had been noticing decline for about a year before that. She has progressed significantly and now I believe is in early Stage 5, but with some characteristics from the later stages. She has been living with her partner (long term relationship, not married, they…
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Showtiming Is Fascinating
My husband (56 with EOA) recently had a 4-week hospital stay due to Ulcerative Colitis, which led to blood clots and malnutrition. He is currently at home. He can barely walk. He eats maybe 500 calories a day. He argues with me about taking his medications every single morning. He did the same thing in the hospital and had…
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Beautiful video… they are always with us..
My step daughter sent me this today. She lost her Dad (my husband) August 2024 and is fighting breast cancer. Please pray for her. 🙏🩷💜https://www.facebook.com/share/r/1H4g5iJ38G/?mibextid=wwXIfr
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Moving to a Care home.
My DW is being moved to a care home. She constantly screams at me. She has been in the hospital for 5 days now. Tomorrow she will be moved to a care home. Today I got her bed etc. moved to the care home. Tomorrow the hospital will move her to the care home. I'm so tired, drained and hurt. She spent most of the day…
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A new task, self catheterizing my husband
I knew when the urologist informed my husband he needed to learn how to self cath, that meant me. The list of skills I have acquired as a caregiver gets longer and longer. It never crossed my mind this would be in my future. I have now done it successfully 8 times. Enlarged prostate with frequent UTIs and reduced ability…
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Merry Christmas?
My DH is Stage 6, mostly cognitive age 4. He was diagnosed 4 years ago. Because he was an athlete, he is very physically strong. He still has joy for our dogs, loves to eat, and mostly easy going. Until he's not. I took him to cut down a Christmas Tree as I want to give him a nice Christmas. His family have not stepped up…
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Learning to grieve
My mom was officially diagnosed with early onset Alzheimers in January, although she has been showing symptoms for quite some time now. My mom and I have always had a close, yet complicated relationship as she was a single parent and she had a hard time "letting go" of her baby. Back in August, she had ended up with strep…
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Libre3 insulin system
Greetings - My husband is 81 and was diagnosed with Alzheimer's as well as vascular dementia about 5 years ago. He has very brittle diabetes and has just been upgraded from the Libre2 to the Libre3, which is different in many ways. The sensors look like little buttons and have a small part that goes under his skin. He's…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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Intimacy and guilt
My DH (probably late stage 4 or into stage 5?) makes comments and wants to be intimate alot! I on the otherhand have not wanted to for some time, just no desire. I feel guilty for not being intimate with him, but just can not bring myself to. DH has always had a higher drive than me. I keep thinking this will probably get…
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Moved exes in together
My 87y FIL, Alan, has mild dementia and has just gotten a pacemaker . 86y MIL, Sue, has Alzheimers...diagnosed 3 yrs ago. They are divorced (50+ yrs) but friends. Sue lived independently until 6 months ago, then moved in with her brother, 6 hours away. She's miserable and misses her family...and we miss her. Alan lived…
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My Mom passed away October 5th 2025
Hello, I dreaded the day I would be on this side of the discussion title. It's been two months and I am in unbelievable physical pain, I resigned from a easy job, am in debt, no insurance, searching for a new religion, I have fear, terrible anxiety, had a few panic attacks, am confused, hated people and do not trust…
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rough day w dad in MC "Get me out of here!"
Hi community, Dad was pretty agitated today during our visit. Redirecting was not working, so I had to cut my visit short. I'm wondering what I am missing or if you all have more ideas for me to consider. Here's some context plus what I'm seeing lately. He tells me that he just has to get out of there. Over and over. I…
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Hubby in memory care the nurse?
hubby in MC one month and 12 days. His reasoning skills are impaired. He cannot understand he can come home sometimes but has to go back there. Today he cried about going home and I cried too. I just couldn’t stand seeing him this way. One of the nurses or maybe she’s an aide said he’s cries all the time. That I should…
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Sticker for vehicle…
I saw this and realized it would help if you have a passenger in your car who has dementia. If there is an accident, this would be important. Also put something in your car or phone in case of emergency so they could contact a secondary caregiver. Anyone have their loved one wear a medical alert bracelet? I’m not sure my…
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Early onset support group in Illinois
My spouse has early onset Alzheimer's . We live in Elgin Illinois and I was wondering if there are any support groups that meet maybe weekly in the Northern Illinois area. I feel like it would help greatly if she could meet with others who have reduced memories in a small group setting. They have a memory cafe here that…
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How to answer if your DH says he is dying.
My DH is in the late stages of dementia. He has difficulty swallowing, and has lost nearly 40 lbs. He is wheelchair bound, sleeping a lot, and is double incontinent. During this Christmas season, the MC facility where is lives is having a lot of entertainment come in. Their performances are mostly Christmas music. He…
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Early onset Alheimer
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Caring for parents - Long distance
New here, live out of state of my parents. Dad is over 90, now in a long term care facility for almost a year. Recently formally diagnosed with Alzheimer’s. Mentally he continues to deteriorate but for the moment he seems medically stable otherwise. My concern now is my mom, approx 90. She is having fairly severe short…
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Trouble lifting
I am brand new to this online discussion board. It’s been a hard longer years caring for my parents. My 92 yr old dad insists on keeping mom at home and we have paid caretakers for my mom who is 88 with late stage dementia. Just recently in the last two weeks she is no longer able to walk with her walker stand alone and…
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Mom is still Transitioning
This means dieing and it's been two days and she hasn't passed away yet. What should I be doing, while waiting. I am sick, tired, exhausted, and emotionally drained. But can't sleep. I was thinking about calling my family but they are feeling the same. I went to church and prayed. I have my cross next to me just waiting…
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Any Heterozygotes on Donanemab?
Got my APOE results back and I am E3/E4. Waiting for my next appt with the NP to discuss next steps. I know that E4/E4 is pretty much a no go for Donanemab. E3/E4 is supposedly 50% less chance of ARIA, but still a risk. My Centiloid is 144. So, lots of existing plaques. Donanemab is for clearing those. Lecanemab is for…