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Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Scan, Ankle Brachial, and Heart Monitor. The initial discussion with the doctor is Dementia. Also, what are the common…
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Genetic Testing
Is an order for genetic testing routine for those diagnosed with AZ?
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What were your first symptoms?
I am curious what the early symptoms those here experienced? Long-term or short-term memory loss? decrease in ability to focus? Any other mental symptoms? Any physical symptoms? Were the symptoms constant? or episodic/occasional? I have had episodes of extreme foggy-brainess over the past 5 years along with a loss of…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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Recent Alz dx -not coping well
Hello, Last year both of my parents passed from Alzheimer's. One month after my father's passing I was dx with Alz. My neuro believes I've had it for aprox 2 yrs. Brain shrinkage of both sides of my brain and amaloyd plaques in the frontal areas. All confirmed with MRI and PET scan. Issues are not too troubling nor are…
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Confabulation, anxiety, depression
Moving on into the reality of DH's ALZ. For upwards of a month DH has seemed to be normal and, admittedly, I allowed myself to become somewhat lulled (is that a word?)into my own denial. What I failed to see was that his constant itch was most likely anxiety, that his calling hid brother more often was his attempt to a…
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A Most Sincere Thank You
I don’t think I ever got so many Happy Birthday wishes before in my life, so thank you so very much. I ended up going to a MLB game since I love baseball. It was 74 degrees, sunny and I got to share it with 28000 other people. It went extra innings. We lost but it was a glorious day, until found out DS left my DH alone…
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Seroquel - Anything I Should Know?
Finally was able to get my husband to a doctor for a complete physical. Turns out he's as physically heathly as he can be for a 78 year old. To help with anxiety and sleep issues, Dr has prescribed Seroquel - 12.5mg / per day to start. I can go up if needed. What has everyone's experience been? Good? Bad? Anything I should…
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Rehab versus hospice
My 91 year old Mom is somewhere between late stage 5 and early stage 6. She was fairly stable for the past year, but I (and her caregivers in memory care) saw a precipitous decline over the past couple of months. She has completely lost her appetite and is eating very little. Even her former favorite sweets have no appeal.…
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Sorry, Another Stupid Question
I’m sorry for being so needy today….My birthday is tomorrow and I was wondering if I could spend it alone without any adverse reactions for him. After the 911 incident I just wanted to be alone, but not if he’s affected adversely. His wayward son said he would come over. Thanks
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new member
I am new here. My DH was diagnosed with dementia 3 yrs ago How do you know what stage of the disease he is currently in?
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Help
I am 55 years old this year my fiancé is 56. He had a very rough life. His family tried killing him a lot when he was a child so he has a lot of anger built up so he became a very bad drug addict and an alcoholic very bad, his clean of drugs For nine years now and clean of alcohol for two years very proud of him in all…
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Caregiver using public bathroom, husband wanders off
My mom is the caregiver and she takes my dad, who has middle stage alzheimer's, to walmart. He follows her around the aisles. If my mom has to go to the bathroom, she doesn't know what to do with him. She has told him to stay with the cart, but she never knows if he'll still be there when she comes out of the bathroom.…
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Sundowning now all day
My DW has been sundowning for quite a while but this past week it seems to start up each morning. She goes to bed crying and wakes up crying. I can calm her down most times and get her redirected but next thing I know she is crying again. When I ask her what’s going on, she says she doesn’t know anything and doesn’t want…
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Driving
So, Dad's been living with Vascular Dementia and the beginnings of Alzheimers since 2023. HIs short term memory is gone and his ability to cook is gone as well. With me myself and I as his POA, I pay his bills( I provoide him with his junk mail and solicitations) which he syas h e has to pay and sits it in a pile. When he…
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From Maybe to Reality 3
Family had a big birthday party for DH (ALZ). I was afraid that it would be too much for him but he had the time of his life and at age 90, he danced every dance. The only think that I noticed was when 2 of the grandsons came over to the house before the party and spent time alone with him. He was telling some of his life…
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Trying to think ahead
What type of documentation does the Police Dept need to show that a spouse has dementia? Does taking the med bottles as proof meet this requirement? Just thinking ahead …just in case.
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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911 saga
Does anyone have a suggestion for getting DH to the neurologist? I called to get an official letter from DH neurologist but they said he hasn’t been seen in 11months and he needs to be reevaluated. I explained I needed some documentation for the police. So she fit us in on Monday, but should I tell him the appointment is…
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New Journey Caregiving for friend-former spouse with Vascular Dementia
I can't believe that I am now a caregiver to my ex-husband, who has no other family member, who was diagnosed with vascular dementia. Back in 2022 I thought something was a little off with his memory but just thought it had to do with normal aging. But back in January 2025 something drastically changed. He was not making…
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Did I Give Up Too Soon?
Following a violent outburst (mom attacked her in home caregiver) when she had a UTI, I made the difficult decision to place mom in MC. Tomorrow will be 2 weeks. She is more lucid than the other residents in her MC, but 'loops' verbally a lot, and it is clear that there's significant decline within the past 3 months. I am…
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Dealing with the 'loss' of my mother
Hi all. Very new to this. My mother (57) has just been officially diagnosed with early onset Alzheimer's. We've been noticing it for the past 2 years, but only recently has she been given a diagnosis. Unfortunately, because of her age, it's progressing pretty rapidly. I'm pretty young (24) and just had my first daughter 2…
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Has anyone had to make the decision for their parent to move to assisted living?
Hi. I'm new here. My mom has been living w/dementia and officially diagnosed with Alzheimer's a few months ago. She lives alone in her own home but my sister who lives nearby has supposed to have been helping her out with routine things. (Sister lives 10 minutes away, is not working, is health care proxy and primary POA.)…
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Long distance caregiver
I am trying to care for my eldest brother who was diagnosed with dementia and June of 2024. And right now it's May 5th of 2025. And it has escalated so quickly I mean the progression of it has really taken off like a wildfire. I live in Tennessee he lives in Ohio and I'm constantly racing to Ohio check on him to make sure…
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Picking Skin
There is a big fancy word called Dermatillomanina which is a OCD thing of picking one's on skin. My spouse picks her arms over and over and over. They bleed. It is messy and it is frustrating. The Doc raised the antidepressant but it didn't help. Just curious if anyone else has had this issue and any luck of how to control…
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At My Wits End
At 830 tonight, my DH called the paramedics on me. So I’m in my locked bedroom and I hear footsteps…. 2 paramedics and 2 policemen are banging on my bedroom door. I’m shaking so bad I can’t even type. He told them I’m not taking my medicine ( I only take one blood pressure pill and a Zyrtec for allergies ). They were…
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Where do you find support?
I am caring for my mom who is only 74. She had an episode that resulted with her moving in with us while we get her into someplace more appropriate for her needs. Since coming to our home she has improved in many ways. Through this experience, I find that I am struggling to understand her diagnosis. The way that her…
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My mom refuses help
My mother has been in decline for about 10 years, probably, but we’ve only just started to notice major decline in the last few years. My mother refuses to get diagnosed and has been very stubborn with regard to accepting help from anyone other than her husband. And even with him she pushes back. Self-care has deteriorated…
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Any spouse caregivers of Alz patient with teens in the house?
This is my first post. My DH was diagnosed with Alzheimer's in February with APOE3/APOE4 variant. He has had two Kisluna infusions. I am 56 and he is 70, and we are both still working, though he will not be as actively working now. We have a 10th grader at home. She knows about the diagnosis. I am so worried about her and…