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41 years today
My DW. I’ve never met any of you guys personally. But I feel a friendship with all of you deeper than most people I know. This site has been a lifesaver.
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Do I Have to Accept His Version of Reality?
My DH was recently diagnosed with Alzheimer's. His mother passed away 30 years ago after a long difficult battle with dementia, and he is depressed about his diagnosis given his previous involvement in his mother's care. He was managing pretty well with the original 2024 diagnosis of mild cognitive impairment, but this…
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Bad visits are just so disappointing
I would say about 1/3 of my visits to see my parent in the hospital are very poor though I shouldn't complain because she is never mad at me which is a blessing. It's just so disappointing to have a terrible visit because the drive is terrible, a geriatric psychiatric unit is just not an easy place to be even a well run…
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Mom lives across the country & has early stage of dementia
Mother lives across the country and insist she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly and she meets the criteria of loss memory for the early stage.…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Durable POA
My mom and stepdad have a document titled durable power of attorney. However, in the document itself, it says that one of them have to die for the other to have the power. Both parents have dementia. Does the fact that it’s a durable pile attorney give the secondary power of attorney’s access
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My mom has EOAD… need advice/support
Hi People, I have never had the courage to ask this question of the health professionals, I feel disloyal even asking it, and every time I have to verbalise my family’s situation, I burst into tears, but here goes. My mom was diagnosed almost 4 years ago at 46 years old during my freshman year of college, she still lives…
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Regarding donepezil and memantine
DW was prescribed donepezil and memanine upon her diagnosis several years back. My understanding is that this is a pretty common drug regiment for those diagnosed with ALZ. DW is in stage 6 and it is quite the effort to get her to take her pills each day. My question for those whose PWD used either or both of these drugs.…
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Cross country move advice
We are moving to NC to be closer to family. DH has a cognitive disorder, likely VD from 3 previous strokes. His memory is surprisingly good but executive function skills are compromised by vascular disease. I've decided to move us from CA to NC, a very daunting task given 40 yrs of accumulated possessions. I've been going…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning. I had a general dread of what the future could hold but maintained hope that we could still find a way…
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Patient care
Hey guys im new here but j have been working with dementia patients for almost while now. However last year i took a full time caregiving shift and would like to know if anyone else has or is experiencing this. So its two caregivers, when the morning caregiver leaves and i come in my patient starts asking for sweets and…
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How to handle hurtful lies
How do I handle my mother making up extremely hurtful lies about people? I can handle lies about minor things but she will say her car was "stolen from her" (my best friend's son bought it). She also told me that my cousin couldn't have children because she'd had an abortion in the past. When I ask how she knows this, she…
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Help needed - dealing with delusions
My Mom is 91 y/o, living alone, with dementia/Alz. She is convinced that her neighbor is getting into her condo and "ruining my Mom's Life!" Anything that is missing, marked or newly noticed by my Mom is her neighbor's doing. Over time, we have added 3 deadbolts on her front door and a motion camera in her foyer (which has…
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Grupo de apoyo, dónde encontrarlo y cómo unirme
Hola, mi mamá tiene Alzheimer y bueno ha resultado ena enfermedad bastante desafiante. Pensé que me estaba preparando lo suficiente, pero realmente entre la teoría y la práctica hay definitivamente un componente emocional que no tenía contemplado. Me gustaría poder formar parte de algún grupo virtual que tenga reuniones…
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Dad newly diagnosed
hello everyone! My dad was diagnosed with Alzheimer’s last September 2025. He’s still very functional on his own, but I’m definitely noticing changes. One big question I have is is it common for people with Alzheimer’s to withdraw socially? My dad has never been one to be outgoing at family events but lately he leaves…
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In home care
I think the time has finally come for my mom to get in home care. She cant toilet anymore without someone wiping her. However, the thought of someone else cleaning my mom makes me cringe and I don't know how she will react. How did you get past this to hire someone ? Ugj this is so so depressing!!!!! Yesterday was her 79th…
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It was a great day, until it wasn't
The majority of the day was exceptional. I took my DW out for breakfast and she ate well. We returned home shortly thereafter. We then relaxed and talked for a bit. Her mother is coming up to visit in a week and that cheers her up. We talked about her last job, which she excelled at. Truly, she did. She worked for Kirkland…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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Loss of mobility
My DW seems to have suddenly lost her mobility. She had been a little slow moving around but now she's in a wheelchair. She can get in and out of the chair very slowly but can only take a couple steps. Just wondering if others have seen this. I'm sure this is a sign of the disease progressing.
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Anosognosia, suggestions?
My mom moved into AL yesterday and is slowly realizing that most people around her have some kind of ailment. She is so annoyed by all the attention from the nursing staff and is saying things like “They’re acting like I am here for a medical reason” and “What have you got me into?” I know you can’t rationalize with…
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Hello, I'm New Here
I signed up here last December, but I haven't made any posts yet. Thank you for all of the posts so many of you have made! My husband was diagnosed with Alzheimer's and cerebral amyloid angiopathy (CAA) in November of 2025. He had symptoms starting in 2020, and was diagnosed with mild cognitive impairment at that time.…
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Has anyone used out-of-pocket AD biomarker blood tests (p-tau217, amyloid blood test)
Posting on behalf of a family in Virginia dealing with a frustrating situation. My friend's father is showing clear functional decline in daily life — the family has noticed definite changes — but his screaning test(maybe MoCA?) came back normal. Because of that result, his doctor is refusing to order further workup like…
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Wife Slow to Move her Mom
My FIL passed away at the beginning of January. He was the sole caretaker for my MIL. They live in a very rural area. He never had her officially diagnosed. Now my wife and I are living with my MIL who according to her PCP has moderate to advanced dementia. As you all know, some days are just infuriating. She will obsess…
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New to this disease
My husband was diagnosed with dementia about 6 months ago and I feel so lost. We've been married for 23 years, this is a second marriage for both of us. All of my family is halfway across the country, so I feel very much alone in this journey. He has one daughter who is very caring and concerned but she lives a ways from…
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Trying new drug for delusions, paranoia...Olanzapine-5mg
We started on Olanzapine over a week ago and it has been helping with the delusions and paranoia. Better mood. The 2nd week started and he dozes off in his chair often. He seems confused at times and memory not good. There are a lot of side effects with this drug. So even though it has helped, I am worried about his…
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Depressed and venting
My DW is getting worse fast. She doesn’t remember what happened five minutes ago. Plus, she’s understandably depressed. I’m at a loss to help her mood so I’m depressed, too, and just want to sit in bed and watch TV to wind us both down. I don’t expect miracles. Just venting here. I appreciate the group.
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I have EO alzheimer's
It took forever to accept this diagnosis. My family has always held me to very high standards. Along with the diagnosis they all stopped contacting me. I have begged anyone even my husband to come talk to my doctor during my appointments. They all tell me this is my problem. My doctor thinks I need to find alternative…
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Early onset Alzheimer's
This diagnosis is so difficult. How do you go on from this? And how do you do it alone? My heart goes out to anyone with this disease. I knew it from many years ago that there was a problem, But doctors always told me, it's just stress, Take this, you'll feel better. So many doctors, so many years later. I am so happy that…
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Early onset Alzheimer's 56 Female i need others to help navigate please
My Diagnoises was October 2025. My SSD was approved. Now that is completed and my career of 30 years is over, i sit here still in shock. I am not sure what to do now. Help I need others like me to talk to. I am a mother of 4 grown children and 4 bio grandchildren. I am also a wife to a loving husband who has taken on so…