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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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Dad very likely has dementia, but Mom terrified to "tell on him"
My sister and I live in Washington, with our parents in Arizona. We don't see them often. Recently, my mom has told us some troubling stories of his memory lapses, weird ideas, not understanding distance and time, etc. She is trying to get him diagnosed, but he gets angry very easily and she is terrified of upsetting him.…
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Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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Asked to move from Memory Care Facility
My gal is 70, 5ft, 115lbs and mobile, she was diagnosed MCI 2018 and progressed to Alzheimer's her memory and cognitive issues became too much for me and she has been in a Memory Care Facility for 8 weeks. She did not adjust well and after 3 weeks they sent her to a Psych Hospital where they put her on some pretty serious…
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accept help
How to get DW to accept help with personal hygiene?
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Recommendations of Videos to watch
We are bracing ourself for a long haul ;) would love recommendations on Videos my family and I could watch to help us understand this incredibly destabilizing disease so far I watched a few videos from Teepa Snow , good but not very well filmed ..
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Looking for therapist or support for son caring for his mom with Alzheimer's in NYC
Greetings, I am the primary caregiver for my mother who has Alzheimer's we live in NYC. I am having a hard time finding a therapist who knows how to support me through this process and finding support in general. This is my first time on this post. Thanks
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She walked out
Tonight she packed a bag and went to stay at her daughters. I am hoping this is the beginning of our “official separation” and that she will go into assisted living. I’ve known for sometime that this is what I’ve wanted, but did not have the courage to have the necessary conversation or take the necessary action.…
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Next?
Mom has a brain hemorrhage and is in critical condition at a local hospital. She is going to die before my dad. He has step 7 vascular dementia and he will accept the fact that Mom died? Geeze, both parents with life threatening conditions. I'm medical POA and need to make the ultimate decision. This is so hard.
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Sleeping excessive amounts
my dh is 83 with late onset dementia and Alzheimer’s. He is sleeping soundly from midnight until I wake him up about 3 in the afternoon. No behaviors issues. Should I let him sleep that long??
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Here's what helped us <3
Hi everyone. We recently lost my Dad after many years with Alzheimers. I wanted to share what helped us, in case it can help someone else! 1. Check to see if in home hospice care is available to your loved one - it might be available sooner than you think. The criteria for in home hospice care are kind of complicated. In…
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eye exam for late stage
My DW used to wear contact lenses. After EO ALZ diagnosis, she switched to wearing eyeglasses. Her prescription has expired. It is a matter of time before she breaks her current glasses. We barely made it through her last eye exam which was 2 years ago. How are people managing vision care and eye exams in the later stages?
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Family Visit
Our beautiful son, daughter-in-law and two young grandchildren are visiting next week. Staying elsewhere but I'm a stressed wreck already. Our son and wife are the nicest, kindest couple but this situation with his dad (VD and aphasia) is hard for anyone to comprehend, understand and cope with. He knows that his dad is not…
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Looking for any advice
Hi everyone! My Dad has been diagnosed with Alzheimer’s for almost two years now. However we did notice things for a few years before his diagnosis. At first it was very slow and it seems like since March of this year he has rapidly gone down. He still lives at home and is currently with Palliative Care and Home Health. We…
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book recommendation-Bella - The Little Furry Chiweenie Who Saved Our Lives:
I follow this man on X. Michael Whelan. He is a cancer survivor & is now caring for his wife Rebecca who has Parkinson's. To cope, he writes. He just published a book called "Bella ~ The Little Furry Chiweenie Who Saved Our Lives: An Inspirational Story About Love, Resilience, and Healing." It's for anyone going through an…
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Palliative and hospice care podcast
This is a very informative podcast about palliative and hospice care. Delete is not allowed. https://peterattiamd.com/bjmillerandbridgetsumser/?utm_source=podcast-feed&utm_medium=referral&utm_campaign=250623-pod-bjmillerandbridgetsumser&utm_content=250623-pod-bjmillerandbridgetsumser-podfeed
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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The Cavalry didn't come......
Last week, my DH had a mini-stroke. He has been declining quite rapidly, and the stroke made his decline even more significant. I have been struggling with all of the emotions surrounding a loved one who is dying such a sad, prolonged death. I broke down completely, and cried out for help from my DH's brother, and his…
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Communication/mis-communication frustrations
My husband with FTD, early stages, sometimes brings up a topic and I'l respond in a normal way, mild and "neither here nor there." Yet he'll take it as an attack of some kind and respond in an angry tone as if I've created an argument, or as if we're in an unpleasant debate about something. When this happens I leave the…
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Ivermectin for dementia
Has anyone heard about ivermectin for treating dementia? My sister told me about reading that it was very helpful but my searches only show that ivermectin does not help dementia. Thanks
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The anger issue
My DW’s dementia is progressing to the point where she will need to move out of our home to a MC facility. She gets increasingly angry with everything, and I can’t imagine how she will handle the move. Will the anger subside as her dementia continues progresses? Can medication help?
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Denied Hospice
For quite a while now, my mother has been declining cognitively. It isn't a steep decline but steady enough that I often notice things she used to do for herself that she no longer does. Also, Mom had two "spells" in the last four months where she spaced out, went cold and clammy with a low BP and low heart rate. Both…
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Vascular Dementia diagnosis
hi, I’ve been around here awhile. My LO (hubby) was diagnosed with Alzheimer’s 5 years ago although he has had clear symptoms for 8 years. I didn’t realize this at the time, but two years ago he had a heart attack which is most likely due to his vascular issues. We had an MRI two weeks ago to get this conclusive diagnosis.…
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Seroquel and Lorazepam
My DH had his doctor appt this week. The doctor added Lorazepam (for anxious episodes) to be taken as needed. He told me not to give his Seroquel (he takes 50mg am and pm) and Lorazepam at the same time or he would be extremely drowsy. Is anyone else’s LO on both of these meds? How far after the Seroquel do you give the…
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Recent diagnosis and vision trouble
My dad was just recently diagnosed with early onset Alzheimer's at age 63. While his memory is a little spotty, the toughest thing he's been dealing with is an increasing loss of vision that they believe is being caused by some small bleeds in the occipital lobe of his brain. He is still almost completely self-sufficient,…
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Meet N Greet
Hello, We are Scotty and Rachel. Married for 41 years. Rachel has been diagnosed with Mild Dimentia. We are new to this community and look forward to interacting , supporting and sharing. Our journey started about 3 years ago. With trial and error we have been coping on our own. Now that we have a community, we know we are…
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Bathing Assistance Issue
My 91 year old mother-in-law has lived in an apartment under my house for 8 years. She has always been very easy going and still often is for the most part. She has been experiencing memory issues for a couple years, but her memory has declined significantly since January. She was diagnosed with early stage Alzheimer's in…
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Brief & informative
This is a short piece written for nurses which I thought was very helpful for caregivers. When you look at your face in the mirror, you recognize your skin, your eyes, your imperfections, and your smile, because it’s you. But could you imagine looking at your reflection one day and having no idea who you were? It’s one of…