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How to keep DH occupied
My DH can still dress himself, feed himself and do a few other basics like emptying the trash but much of the day he spends sleeping because he has nothing else to do. He can’t use his computer much, has little interest in current events, doesn’t read much and has never been a TV watcher. He can’t work the TV controls even…
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MMES test
Finally got my mom to her doctor, discussed with the doctor first our concerns about her confusion and memory loss, they gave her the MMES test — and she scored a 24 out of 30, which is just below "normal." Our experience with her is that she is much worse than this. She has been struggling for a long time with dates,…
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Having trouble with Mom
Hi, I'm new to the Alzheimer's world, as my mom was just diagnosed. The doctor wants her to have a brain MRI and she is giving me a hard time about scheduling the appointment. My dad and I took my mom to the doctor last week to be diagnosed and at that time, both of my parents were fine with the idea of the MRI. Now my mom…
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Mom was just screened for dementia
Hello I am very new to all of this and am reaching out for support. My mom who is 83 was just screened for dementia in the doctors office. She failed the test - was not able to draw the clock or remember the words. My dad is her caregiver and now cooks all meals and is starting to manage her medications and doctor apts. on…
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In my early 60s. At the beginning of this ..
Hi, Are any of you out there going through what I am? Very mild symptoms, waiting for complete diagnosis. Anxious and frustrated.
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Rationales for PT for late stage in MC?
My dad in MC is sleeping most of the time. I recently had a care meeting with the facility director. When I mentioned in passing that he is seeming weaker, she said that maybe PT would help. I said, “Huh, maybe,” and we went on to other things. Fast forward a week, and I am getting email from a PT agency affiliated with…
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Testing, testing, and more testing
I am so impressed with mom's neurology team. It is a large practice. She saw the neurologist in December. She ordered the neuro-psych exam. Unfortunately, they are so backlogged, their testing couldn't be done before end of March. I requested to be put on their "1st cancelation list" to get an earlier appointment if…
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South Florida “Board and Care” Small Memory Care Facility
Hi, I was wondering if anyone has resources about “board and care” small group facilities in South Florida, particularly in the Delray Beach and Boca Raton area. Thank you so much.
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Unsure of how to proceed
i am my 76 year old grandmother’s only family and caregiver. She lost her husband (my pop) 5 years and and her son (my dad) 30 years ago. She has always been hyper independent and very successful. Last year she noticed some changes in her memory and sought treatment from a neurologist. In September she scored a 21/30 on…
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How to find people to stay with DH when I need to go out
Hubby was diagnosed recently with mid stage Alzheimer’s. He needs 24 hour supervision, and though friends have said to let them know if I need anything, I find it hard to ask for help. Most aren’t available during the week, so I have left him alone to run an errand or go to an appointment, usually not for more than an…
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After 10+ years on this message board, I wanted to share my Mom's obituary.
February 18, 2026 My Mom died this afternoon in the bedroom of the old family home where she has lived for the past 62 years. It was peaceful and all four of her children were with her. My Mom has navigated the complex maze of Alzheimer's dementia for the past 12 years. After her diagnosis we put together a team to help…
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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Sundowners so bad/ wild women please help.
Hello, My mother came to live with me just a week and a half before Christmas. She was on a memory pill, but while she was in rehab they took her off of it. They said it wasn't know longer helping her. So when she was supposed to have her follow up with her Dr once she got out, she had to see a NP instead. So I wrote him a…
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Not want to go out
What is the best way to get your Alz’s aunt to go to the doctor when she doesn’t like him and says she isn’t going but you have an appointment?
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Fmla or mental health disability leave from work
has anyone taken a leave from work to help their loved one get situated into a care environment? I'm contemplating taking a leave from work to do this and it would either be fmla (partially paid by the state if I qualify) or mental health disability (paid through company disability insurance). I'm really overwhelmed trying…
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Long term Care Insurance
I’m looking for info on long term care insurance. Will I be able to purchase it for my husband if he has been diagnosed with dementia? How much does Medicare cover for in home assistance? How much does it cover if he needs to be in a memory care facility at some point? Is this kind of insurance worth the expense? Thanks…
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There is no 29th day!
Hey yall!! Life Has had it's ups and downs. I lost my loving partner (Luis) of 6 years on Novemebr 29th to EOA, he was 46. December anniversary sucked!!!! It was a Monday. Luckily I was in the position at work that keeps you the busiest so I didnt have to think about him being gone. And thanks goodness for my anti-anxiety…
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Dressing and Laundry
My DW has a very had time dressing. She will put 2 (and sometimes 3) tops/blouses/sweaters, wear pants and a dress at the same time; put her clothes inside out, and/or front and back reversed; you name it, it's all a mess. And the worst part is she will not let me help her fix it after I tell her. She wears earrings that…
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I was Angry and then tears (Venting)
Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I…
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what do I do
what do expect for my wife who is 78 hears old with alzheimer's, severe RA, bed-ridden and on hospice. WHAT can I do for her, beyond my daily visits. I don't even know what or who to ask.
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Just need to talk to my friends (215)
Happy February! I'm glad January is over. Maybe February will be a better month for weather and everything else. Only six more weeks until Spring. Almost time to order caladiums. Hopefully, the daffodils are okay after the freezing weather we have had this past week.
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Mixed Dementia Care Partner - I am new here
Good morning, I just found this resource and decided to reach out with my situation. My DH has a dementia diagnosis, not confirmed via MRI or bloodwork, but neuropsychological testing revealed "likely mixed dementia, due to vascular and alzheimer's". He has an aneurysm clip that is not MRI compatible. The neurologist says…
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Changes with food behaviours
Hello community, I wanted to see if anyone had observed a similar situation: since a couple of months, my dad (FTD-Parkinson, not Alzheimer, advanced stage) is spitting most food we propose to him that are salty, including those that he used to love. We thought it might be for his teeth (as he has some issues) but if we…
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88yo mother
88yo mother in memory care after a broken hip. 88yo dad living home alone visits every dad about 7-8 hours. Mom with her dementia blames him for her circumstances and he gets angry and frustrated, blows up and storms out of the facility despite the fact we tell him constantly she cant help what she saying and talking to…
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How to handle selling the toys
Hi. I am new to all of this. My DH has been diagnosed with moderate to severe LBD. We live in the country and he has many toys. I have all the keys to the toys but it is almost a daily game of asking if he can use the John Deere to move the snow or another piece of equipment. I know I will need to sell the toys, but do I…
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A bit of humor
My DH (mid-stage AD + Parkinsonism) now often struggles to name things. The other night he was standing at the kitchen sink, when this conversation ensued: Him: Did you put the pill in the whirlpool? Me: The whirlpool? What do you mean? (Thinking). Oh, do you mean did I put the soap pod in the dishwasher? That was indeed…
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Bible Verse to Lift You Up 2/28/26
Psalm 5:3 WAITING EXPECTANTLY New Living Translation Listen to my voice in the morning, Lord. Each morning I bring my requests to you and wait expectantly. HOLY SPIRIT, please continue to help me think Your thoughts so I remain strong on the inside, so I am able to serve and glorify Jesus as a loving caregiver. In His name…
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What stage he’s at?
as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…
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New Here - Spouse with Young Onset
Hi all, I'm new here. My wife was formally diagnosed at the ripe young age of 51 this past December. I, myself, am her 34 year old wife. I just wanted to come in here and say hi and kind of vent to folks who may know. These past 2 years of confusion and emotional and financial upheaval have been incredibly difficult to…