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Confusion Over Moms Death
This morning at breakfast my Dad asked me where Mom was. My Mom passed away almost two months ago. She was cremated and we spread her ashes in one of her favorite parks. I reminded him of where we spread her ashes, A few hours later I was walking into the dining room and my Dad looks up at me and said "I thought you were…
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Not knowing what the next moment brings-
Hello again, Ok. My DW's UTI test came back as negative. Wife seems to be getting worse by the day. 3 months ago she'd forget who I was for a hot second, then correct herself. This last week, she is waking up not knowing who I am and not liking me. Immediately jumping out of bed in a crisis. This morning it was she needed…
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Struggling
I posted back in April about my mother and struggling then. My Dad had also had hip surgery and everything spiraled out of control. Anyway things did calm down once my Dad recovered and was able to better manage the concept of working with my mother instead of against her Alzheimer's. However things have of course…
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Dental Checkups & Dementia Milestones
I hit another milestone today, and the guilt is real even though intellectually I know the culprit is dementia… Since moving my dad to MC two years ago, I have taken him out to my dentist for 6-month routine care. An appointment was scheduled for tomorrow, already rescheduled from a canceled appt in May. After thinking…
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Should I tell my mom that one of her best friends has died?
Even typing this out, I’m wondering if the answer is no. I apologize. I couldn’t find a specific thread for this. Mom is in MC, and moderate. She can leave the facility, but not very easily. She loves outings. I live out of town, but plan to travel for the service which is next week. I had planned to tell her the day…
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Need advice on “Where is my Husband?”
Good morning. Since last November my wife now in stage 6 I believe has not known me as her husband. I’m a good friend. She is always asking where is My Mike. She will get rather agitated when she can’t find out where he is or when he is coming home. I comfort her and tell her I will certainly help. I make up a false text…
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Other illnesses
Over the last 2 1/2 my DW spent 6 days in the ER/hospital with severe GI issues. This is new and add to her A fib, vision, mobility and, naturally, Alzheimer's. When she was discharged yesterday she was placed on a low residue diet in anticipation of an endoscopy/colonoscopy procedure - no or extremely low fiber intake.…
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DH's cruel and angry outbursts
Today was so horrible. My DH has Alzheimer's. This morning began with him thinking that is Mom was still alive (she's been gone for 20 years) and that I was moving in and trying to take over her house. No matter how gently I tried to tell him that it was mine and his home, the angrier he became. I don't believe he would…
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Having a hard time adjusting
My SO was diagnosed last year with EOAD, after I noticed changes in him..he would get confused and frustrated when trying to complete difficult tasks, he was not remembering how to get to stores that he infrequently visited, and I could see forgetfulness and diminished desire to do much. He is receiving Kisunla treatments…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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UTIs
My mother is in a long term care facility. She has a diagnosis of dementia and has a history of frequent UTIs. Her most recent UTI left her in a very aggressive state, kicking, yelling, threatening and even walking out of the facility, crossing the parking lot in the rain. She received oral antibiotics and is now back to…
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Hospice - an unexpected save
Last summer both of my parents were diagnosed with dementia. My mother’s is clearer (slowly progressing Alzheimers), my father’s seemed to come out of nowhere - and with a vengeance. Though my dad was diagnosed with moderate dementia, he refused additional testing. What turned out to be a lifesaver is that prior to the…
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Caregiver Log Book
I have a dear cousin who has been suffering from dementia for some time. Whenever I visit I’m always struck by the level of care and compassion exemplified by his caregivers and it makes me think…are there resources out there to help caregivers? I came across this caregiver log book and wanted to share it because it’s a…
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mechanisms for coping with frustrating moments
How do people emotionally cope with periodic moments of frustration? Thanks so much
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Mom - Anosognosia & Alzheimer’s with extreme manifestation of Combative Delusional Dementia
She’s still fully communicative, conversational, fully independent, and absolutely convinced that she is completely healthy. She also truly believes that my step-dad, my wife, and I (her only child / 62 yr old son) are all part of a conspiracy effort to have her committed to a mental care facility but has no idea why. She…
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First time home respite caretaker
This week was the first time that we had a respite caretaker here at the house. DH is somewhere around stage 4 and for the most part is "just fine", but I know for a fact that if there was an emergency he would not know what to do (he has already proven that to me). I was apprehensive that he would say something like "I…
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Behavioral ups and downs
Unfortunately my mother’s Alzheimer’s has made her generally very snappy, angry, and anxious but then she’ll dip into periods of sadness/depression/quietness. The past couple days she’s been up and talkative and active, like her old self, which I am enjoying while it lasts. I know that as things progress there can be…
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Venting, again
This is my therapy, I come just to vent a lot. People here can relate. I am in my second year with my mother's dementia. Hers came on very suddenly so we didn't deal with the denial. She is sometimes very cognizant that something is very wrong. Currently she is miserable. She has osteoarthritis and neuralgia. There is…
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First Caregiver
I’ve been reading about and actually longing for any kind from anyone …. respite….. Today, my very first caregiver came over but I messed the whole thing up. She was nice, friendly and I believe more than capable. My DH liked her and when I came home they were still out. The last thing my husband said to me when I asked…
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Moderate Urinary Incontinence Management
Hello friends, Dad (79) is in an assisted living, not full nursing home. He really likes it there and our goal is he can stay there as long as possible. Urinary incontinence is happening more, but he can still get to the bathroom or be reminded to go and it's ok. The facility doesn't have a person who would help with that.…
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My mother - Monitoring her and also finding part-time support
Hi everyone. Thank you to anyone who has time to read my long introduction: Four years ago my husband, young-adult child, and I moved in next door to my mother, who had been diagnosed with MCI around 2016, I think. She has not been diagnosed yet with AD, because she won't get the PET scan. However, she seems to be…
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An act of kindness
Recently I had an electrician out to give me an estimate on several things. Very nice guy. Quite. It was really more than I had planned to spend so after a little back and forth I just said ok. I don’t think he had gotten a good look at my wife (stage 7b) when he came to do the estimate. When he came to do the work it was…
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Goldilocks or The Princess and the Pea
Sometimes we just have to find the humor in some of the ridiculousness this disease causes. The saga we have gone through with my mom surrounding her bed is just so off the wall, it's funny. She has complained about her various beds for years and years, blaming her back pain on every single one of them. She got a new…
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Newly diagnosed LO
I will be looking discussions and participating for information and support. I have looked at a few discussions and have noticed the stages mentioned. Is this something that my wife's Dr. would evaluate? We have known that she has had memory problems for some time, but she also has MS, so diagnosis has been difficult. Her…
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Anniversary
My DW and I are married 48 years today. Sadly, I know that it will pass with little recognition. Yesterday, when I mentioned it, she said it can’t be because she’s not that old. I sat here this morning with my coffee and read the poem posted by Groovy’s Girl. It made me cry today. Such a terrible disease.
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Grief counseling for folks with dementia
I’m mom’s caregiver. Dad died in June and he was her caregiver until he got sick in Feb. Mom had one grief counseling session and wants more. The hospice facility dad was with offers 3 free sessions. I want mom to have more. They don’t do private pay. We have another session coming up in a couple of weeks, but Mom is in…
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Emotionally draining
For the last 4.5 years I’ve tried convincing my mom to see a doctor because I was concerned. She is unable to see her symptoms. It took behind the scenes convincing my stepdad that she was a getting worse for over a year and him finally noticing to get us to the point that we had an appointment with a geriatric doctor this…
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Longevity Health Plan of Michigan VS. Molina Advantage (both Medicare Plans)
Has anyone here been approached by a Longevity representative regarding switching from Molina Advantage to the Longevity health plan? Looking for any advice pertaining to the pros/cons of this matter. Thank you, Megan
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Moving my mom in
My mom was starting to show signs of Alzheimer’s but she refused to admit it. I was doing all the work when she needed help or forgot things and finally had to step back for a few months so my brothers would step up. Now they see how bad it is and after a 2 am phone call they see she should not be living alone. The only…
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Not showering vent and feeling very guilty
Sunday is going to Church day for my Mother-in-Law which became my responsibility since my husband has a standing group bike ride. She has progressively not been showering. Her last shower was 1 week ago before church (I was able to convince her that day). Today I couldn't. She smells of urine and also had bowel…