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Stage 7a- need to know if possible to keep them home
My 78 DH has Aliz and dx 2017 MC, he is progressing has anyone kept their LO home until the end. He is still going to day care 3 days a week ,will be 2 years in Oct. When is Hospice available ? I have been doing everything myself, he has had no showers since Jan but he lets me wash him . Bladder incontinent some BM ,…
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Time to move Mom
I am new here. My sister and I have been dealing with my mom's Alzheimer's for about 2 years now. We have tried to get both parents to move to assisted living with zero success. They are both incredibly stubborn. To make an all too familiar long story short, it is time for mom to go into Memory Care. Any advice to making…
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How to motivate your AD spouse to do things that will help her.
My AD spouse isn’t self-motivated. I have made dot papers for her to complete with her name, address, phone number… I am continually helping her navigate her phone and texting… I am helping everyday to work the tv remote… she was a music director so I have enlarged music for her to sing with(words only)… I write our day’s…
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New to the group
Hi everyone. I’m new to this group and have been reading so many heartbreaking stories. My husband is 71 and was diagnosed 2 years ago with FTD. We moved him to a memory care facility a month ago. He’s very restless at night and rearranges furniture in the commons area, removes artwork from walls, takes things from other…
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Eating stuff
My DW is in stage 5/6 of Alzheimer's. Lately she has been eating all kinds of things. She ate all of her toothpaste from the tube, orange and lemon peels and whole tomatoes like an apple. Has anyone else seen this?
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Cared For Grandparents and Now Mother
Hello! I helped my mom care for her parents as they suffered with dementia and Alzheimer's for several years before they passed. It was physically, mentally and emotionally difficult on both of us and traumatizing for my mom especially. Now, 4ish years since her dad passed, my 60 y/o mom is showing her own signs. She's…
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Where has my husband gone? Loss…
I find myself asking that question often. He’s here physically, but he is not the man that he was when I married him. I feel so sad today. Yet it doesn’t bother him as much since he doesn’t even realize how much he’s changed. he’s inside the grocery store while I’m waiting in the car because I just don’t have the patience…
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Stepping in on finances
Hello, My DH was diagnosed about 1 1/2 year ago. With meds (Donepezil), he seemed to be on an even keel for about six months, we upped the dosage some, but he is now declining again. We mostly keep our finances separate. I have begun to worry that he will spend on extraneous things (he recently placed an order for a new…
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Overwhelmed
My husband recently diagnosed with early onset Alzheimer's (63) and caring for aging parents. I am feeling very overwhelmed and sad and just all the feelings. I am really glad I found this group. I feel like I need somewhere to go to talk about what's happening and this seems like a safe place. I've already read some of…
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Service dog
UPDATE 8/1/25: it’s been about 15 months since my post about looking into getting a service dog for my wife. Today, we received an invitation offering us a trained service dog from EENP! My wife is at a stage in her diagnosis where she can still drive and has just mild cognitive impairment. So now is the best time for her…
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Where do I go from here?
My mother was diagnosed 1.5 years ago with ALZ. She lives at home with her boyfriend of 15+ years and has lived there for about 8 years. She has gone off for a walk twice now within the last 4 months. The first time she walked 4 miles to her sisters house. The second time she was angry, left the house, seems to have been…
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I've been away for a while and need to talk
Since I was last on this site, we moved to a smaller townhouse 1 1/2 away from that awful town. He did ok with the move. I'll just skip to now. he had 2 seizures a month ago in which the hospital labeled as "fainting" yet put him on antiseizure meds. he is going to get an ultrasound on his carotid artery, then and EEG. he…
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Overwhelmed caregiver.
My mom just got diagnosed with frontotemporal dementia 6month ago. Sometimes she will be her normal self then she someone I don’t recognize. Someday I can get her to take her medication with no problem then another day she resist. I’m having hard time keeping the house clean because she leaves things everywhere and brings…
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Becoming a personal care surrogate
Hi! I am brand new to this group and so appreciate the networking with others who are navigating the care of a parent with Alzheimer’s. I’ve been trying to be proactive about this. My brother and I hired an elder law attorney. We established power of attorney for my brother and Healthcare proxy for both. He and I work…
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Great News on Treatment Advance
This made my day! This will not cure my DH, but it gives me great hope for my children and grandchildren. Medical research matters! Thank you to the devoted scientists at Harvard who have been working on this for ten years. Hopefully, tes5ing will commence very shortly.…
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Walking Through Dementia With My Brother
These past few months have been some of the hardest of my life. My brother’s dementia symptoms keeps increasing, and it’s heartbreaking watching someone I love so deeply change in ways I never imagined. The last time I saw him, I watch pieces of him slowly slip away his memory, his spark, the conversations we used to…
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Deaf Only Child, Struggles with guidance..
hello amazing caregivers, This may be a long post, which I am typing as I think and go. Please bear with me as I do so. mum was DX with vascular dementia on Presidents’ Day this year. Hubs and I suspected it longer than that, as she is stubborn to seek medical help. This is a tough situation and subject to share. Mum…
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How do you assess your spouse
My Dh is c/o light headless and chest discomfort. Im retired nurse so I've done all the steps. BP is fine heartrate is fine no further symptoms. Up walking around like nothing wrong. Was at er last week for back pain. Found nothing that would cause it. Given his meds for BP baby aspirin. Will cont to monitor him,but it…
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Dealing with my feelings of resentment
I'm married to a man who was verbally abusive to me during the first 10-15 years of our marriage. When I tried to leave, he begged me to stay. I regret staying, expecially because of my children. We've now been married 40 years and we really don't have what I would call a close relationship. I had to pull away when he was…
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Seroquel / Quetiapine Dr. prescribed
In reading the posts here about this drug, it appears that it is given for those that are not sleeping at night. It was prescribed to my DH for hallucinations. The man does not have trouble sleeping at all. Just a few episodes when he had too much coffee or has had long naps during the day. Is this something that will work…
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Evacuating in an Emergency
Greetings. When the Guadalupe River recently flooded, the police ordered everyone on my street to evacuate. It was a very scary experience. Here are some lessons I learned: It could happen to anyone at anytime Follow the directives of the authorities Be calm and be firm with your PWD Know where to go and how to get there…
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Joining with a thank you
Hello, After a few months of reading and searching this site, I have decided to join to thank those who have posted advice. You have been a lifeline, and I hope that my experiences can be helpful to others here. DH (77) was fully independent, driving, paying his own bills, and living a good life a year ago. Looking back, I…
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Hoping he will forget me
Wondering if my DH forgets me, will things be better? It’s an awful thing to say, I know especially with all our circumstances. But, I’m faltering, fading and losing all hope. From the moment he sees me in the morning till bedtime, he insults me. I fix all 3 meals from scratch and the moment the food is put in front of…
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Is it my imagination?
Does it /did it ever seem to feel like, look like the PWD was almost your imagination? The cycles, the moods, the feeling that the old DH is back? (I'm still pretty new to this journey.)
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combative at night
Hi, I'm new to this group. We have no diagnosis but I am starting to wonder what is going on. My husband is a different person at night, usually after 10 pm He becomes defiant, combative, and says things that are just typical of his normal behavior. Is this Sundowning? Thanks
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Dementia Friendsgiving
This looks like a good event (via Michael Ellenbogen): Save the Date for Dementia Friendsgiving! Save November 18, 11:00 AM–3:00 PM ET for Dementia Friendly America’s inaugural Dementia Friendsgiving! We’re giving thanks for people and organizations from every corner of the dementia-friendly movement. Sign up to find out…
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Selling the House DH doesn't understand
I have power of attorney Can I sell the house without him and use my power of attorney to do so. Also how can I get him into a memory home if he won't go. His outbursts and violence are getting out of my control al