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Sibling Disagreement on Care
My 85-year-old mother was diagnosed with dementia 7 years ago. My older father insisted on caring for her and hiding how bad things were from my sister and me. We started 4 years ago to try to get him to consider in-home care or assisted living. He finally agreed and they moved into a lovely community in October. However,…
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Hello …
caregiver for mom (plus mom of 4, wife, 2dogs, 1cat a turtle … and a partridge in a pear tree … anyway … YES … my mom is always cold doesn’t matter what time of year the house is at a constant 76* … so WE dress for that temperature ALL year round … we figured out her comfort zone and we adjust.
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Follow up on “Can’t Sleep” post
Me …miss needy here again. I am still really struggling so I got an appointment with my Dr for this afternoon. Since the Geri Psych appointment with DH isn’t until Mar 9, I figured I need to help myself before that before I collapse. I can only get 2-3 hours of sleep but not because he wakes me. I just can’t sleep. I can’t…
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End-of-Life care and Hospice
Hi everyone, I’m Jayla 🤍 I’m a mama to 5—2 of my own and 3 bonus babies—and I’m new here. I’ve worked in home health and end-of-life care for the last 12 years, and I’m currently pursuing nursing school. Even with all that experience, nothing fully prepares you for doing this for someone you love. I don’t share my story…
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Feelings Without Memory in Alzheimer Disease
In a previous post, I mentioned the book Grace for the Unexpected Journey (Barr, 2018). It's a 60-day devotional for caregivers of people w/dementia. Today's message (Day 42: Feelings and Moments) included information about a research study (Guzmán-Vélez et al., 2014). This study, Feelings Without Memory in Alzheimer…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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How do you tell them ?
My DW just had a brain MRI. I got the results online and the stand out impression was disproportionately prominent volume loss in the mesial lobes, especially on the left ,as may be seen with Alzheimer's disease and other dementias. I haven't told her yet and not sure how to or if I should. Please share any discussions you…
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Weight Loss Question
DH with ALZ is in mild stage with some moderate stage crossover behaviors. I am concerned about a 12 pound weight loss on his already thin body. He eats as he always has. His appetite is good but this weight has just dropped off over several months. PC doc seems unconcerned (I am seeking another PC). The only thing I can…
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My DW is always hot, then cold, then cold, then hot. Repeat...
I was wondering if anyone else has experienced this phenomenon. My DW is always complaining about being too cold. I then turn up the thermostat, and she then complains that she's too hot. So, I turn the thermostat back down. The process repeats and the hot and cold complaints are less than a minute or two of each other.
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He gave up his license!
DH's driver's license expired on his birthday at the end of January. He has been compliant with not driving after the kids and I expressed concerns six months ago and he failed an evaluation set up by his neurologist but still believes that "He deserves one more chance until something happens." I had been dreading taking…
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Valentine's Day when it feels more arrows than wings
Came across a touching article about VDay as a caregiver. Posted on a site with a lot of politics & has a religious bent so I'm not posting the link, but easy to find . Just search for "When you’re carrying the love alone on Valentine’s Day Peter Rosenberg" {hugs to everyone}
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Toughen Up Buttercup!
I offer this mostly in jest but with a bit of personal truth also. Over the years raising three daughters with my dear wife, she was always the one with superhuman intuition. She knew what our daughters were thinking or plotting before they did and would often be able to intercept their actions. If she did not stop them,…
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Recomendacion para un Geriatrico doctor que hable español en los angeles county?
Hola, mi mama (75) ayer fue diagnosticada con alzheimer's. Esta en las primeras etapas y el hipocampo apenas se esta agrandando. Tengo muchas preguntas pero no se ni donde empezar. Vivimos en los angeles, yo vivo con mi esposo y mi hermana mayor. Mi mama vive sola a 5min de nuestro apartamento y la visitamos diario. No…
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grupos en espanol
entre a esta pagina esperando encontrar ayuda ya que actualmente llevo 5 meses cuidando a mi suegra y el proceso ha sido en verdad muy difil, tengo ,uchas preguntas y muchas dudas sobre como ayudarla y sobre todo a mi esposo y su familia, espero encontrar ayuda
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Anger problems
do anger issues always come with dementia? I feel so bad- husband getting angry at the dog over nothing- this morning hes on the phone yelling at soliciters.- calling them back over and over to harass them . I cant say anything to him he will blow up at me
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How to file complaints with memory care
I'm super angry about a decision made by the head administrator of the memory care my mom is at. I think it was a terrible decision but probably doubtful that it was legally negligent. In any case when the whole crisis of the situation resolves I want you to file complaints with the board of health as well as corporate.…
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First MC visit in a week
Today was the day I finally got to visit my DH in MC, a week after his placement. There were many scenarios playing in my head about how he would respond to me, but I never dreamed of the situation I encountered. One of the issues I had at home with him is that he would only let me do his personal care, which got to be…
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Stage 8
My vibrant, joyful, beautiful Suze passed peacefully last night. True to the fighter in her, she fought for 11 days without food or drink, giving a frustrated growl with her last breath. She finally let go to be free from this mean, mean disease, but she wasn’t happy about it. Ha! She was the love of my life. I’ll miss her…
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MCF/Hospice Care - Standard Comfort Pack Medications
Hello, Mom has been in a MCF for almost 3 yrs now. I consider her cognitive decline has her in late stages of dementia. She is up and around with a walker, speaks with lots of word salad and eats generally well. She has been on hospice, a partnered hospice connected with the facility, since 10/2024 at a time when mom's…
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First time posting.
I posted this in the general area but think I probably should have posted it here instead I’ve been lurking around for a while, but my kids suggested I actually post in hopes of finding others who are going through the same or similar thing My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment…
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Can't sleep
I can't seem to sleep trying to wrap my head around the almost daily changes my DH is having with this disease. For the past 2 wks he had to be wheeled from the living room to the bathroom to the bedroom or he would fall. For the last two days he's been back to walking fine but is unable to understand or communicate. Went…
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What to do?
My DW is 70 and I am 67. My DW has Alzheimers. Currently she has forgotten owr 32 years of marriage. At least she still recognizes me. She at times thinks she is still in high school. I don't know where to start or whe r e to go. I am disabled with mobility issues. I can no longer keep up our house. I fix our food,normally…
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Thank you for baring your souls
Sometimes I take a break from reading posts on here, because the feeling of dread can be overwhelming. There's so much to fear of what is to come… Just when we think it can't get any worse, it does. I'm sure you know that feeling. My heart breaks for each and every caregiver on here and it cuts deep sometimes. The grief I…
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Still With the Guilt
My DW passed away two nights ago. I had said goodbye to so many parts of our relationship already, but her actually being gone is the worst feeling I've ever had. I have been crying about never seeing her again, but find myself struggling with the devastation I feel at knowing I'll never look in those beautiful, twinkling…
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Learning to be patient.
Hi, I'm 74 and my wife is 76. How does everyone learn to hold their tung? My wife has had Vascular Dementia for almost 2 years. She contently for what day it is. Our Daughter is now making up her pills. I have to dress her am/pm. Help her shower, bathroom needs. I'm now cooking all meals. I have hired a person to clean the…
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Incontinence bed pads
DH fell and is in rehab. He was continent before the fall, but I want to be prepared for when he comes home. I am currently looking at bed pads - both washable and disposable. Does anyone have a recommendation?
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Religious Caregivers
I was wondering if anyone could suggest some pertinent Bible verses, psalms readings. I have so many Bibles from my Mom and Grandma and 10 years of Catholic School. Just trying to find comfort in written words. Thank You.
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Is there any benefit of getting mom to a specialist for her COPD at this point?
Mom is 87 and in MC for over one year. She has dementia, COPD and newly diagnosed early-stage heart failure. She also recently is on oxygen for her COPD. In addition to all of that, she has limited mobility from a recent fall in memory care where she broke a hip and is now getting around in a wheelchair and shuffling her…
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hearing aids
DH's fall has affected his hearing. My son suggested we get him one of the over the counter hearing aids until I can get him onto the ENT and audiologist. Has anyone bought one of these that they are satisfied with? Any recommendations?