Welcome to ALZConnected! You are not alone.

Aa my husband transitioned to stage 7, I decided to visit this discussion, as I expect to lose him soon. Then I realized, I lost him years ago. My helpful, funny, kind husband disappeared years ago. Loving someone with dementia means losing them, slowly.

I knew where the path ended, the outcome never in doubt, but after so many years with my purpose being to care for my dear wife how do I find any purpose in going on? After 60 years together, with the last 10 or so caring for her as she suffered AD, my singular goal was to provide her care to keep her at home as she…

It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…

Hello, this is my first time to post on this platform. I wonder if anyone has dealt with this situation. Mom has vascular dementia. She was diagnosed in 2022. Since then she has lived at home alone, and then at assisted living for 3 years, and now she is living with me and my husband. We have lived in this home for 23…

Happy September! My DH who is older than I am, was diagnosed with dementia about 2 years ago. I'm wondering if anyone out there has done/tried the 'divorce on paper only' to get DH on Medicaid?

My DH will be having his trial day at adult day care. I have done a lot of research on centers in our area, and we choose one we both like. We visited together and had a really nice time. He even talked about it for a few days after our visit, saying how nice the people were and how it was a nice place. Does anyone have…

My wife needs assistance to get out of bed, showered, and dressed. She is suffering from mid stage O(or later) FTD and recovering from a broken femur. I hired an excellent service to send home healthcare workers to hep her in the morning and to assist in the afternoon to get her to the dining room in our retirement…

DW and I were in a rather tolerable routine in our home for most of the spring and summer. She was generally pleasant and as cooperative as I could expect. I took a week of respite at the end of July and DW was cared for by other family members. I am sure they did the best they could, but it was clear things were happening…

Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…

Hi - I am the significant other of someone who is starting to show rapidly increasing cognitive impairment. Since he is not my husband and we do not live together, I don't have much control over finding help for him. He claims to not remember the frequent conversations we've had about the increasing anxiety and agitation…

My SO was admitted to a memory care facility about 3 mths ago In talking to staff I am told my SO spends the majority of their time sitting in their room either watching TV or just staring at the walls . When I ask what is done to encourage them to engage in activities I am told its up to them to decide if they want to…

We live in a ranch home on a hill. My husband has FTD and is getting unsteady on his feet. We have to climb a set of stairs no matter which way we enter the home. The most gradual incline is from the driveway to the back porch and in through the kitchen. However the patio is made of large stones, two levels, uneven and…

My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…

Many of you know that I lost my husband to Alzheimer's August 12, 2024 and that I had to place him in memory care due to my cancer diagnosis. I just finished my 2nd round of chemo, 5 weeks of radiation and my 2nd major surgery. Due to my cancer treatment I haven't been able to visit my sister who was diagnosed with…

Hi. Not even really sure what I’m asking for. I guess someone to tell me everything will be okay. I’ve been taking care of my mom part time for years. As of 3 weeks ago, I have had to work with her spouse around the clock since my last time at work. It’d take a year to write everything that is going on but she is past the…

I think the time has finally come for my mom to get in home care. She cant toilet anymore without someone wiping her. However, the thought of someone else cleaning my mom makes me cringe and I don't know how she will react. How did you get past this to hire someone ? Ugj this is so so depressing!!!!! Yesterday was her 79th…

My husband has been diagnosed with early Alzheimer's. I am looking for a support group to discuss stages of this disease/actions that I can apply to my own situation Thank you

My HWD has suddenly remembered going to 'my lawyer' and signing a bunch of papers that he didn't understand. Now he thinks that the atty and I are trying to steal his money and he wants to have the 'paperwork' voided and be in charge of it himself. His PCP is switching him from quetiapine to rexulti and he has become even…

My 89-year-old father was diagnosed with Alzheimer's 6 months ago. He reserves all his anger, paranoia and hurtful words for my mother (caregiver). No one else sees/hears it. I am learning that he did this on a smaller scale for a lot of years but mom never told me until now because it has been amplified due to the…

My mom has lost control of her bowels at least 5 times over the past 2 weeks. I feel like she is in much too early of a stage of dementia (we believe Stage 4) for this to be due to her disease. Does anyone else have experience with this happening at mid-stage AD? I'm trying to get her in to the doctor at AL to make sure…

I have a soon-to-be 87 year old mother who is clearly somewhere down the path of Alzheimer's. I could bang out 30-40 paragraphs full of details but I won't do that to you. Right now, my primary question is how do you provide help for someone who not only refuses to accept help, but will automatically cut anyone out of…

My DW seems to have suddenly lost her mobility. She had been a little slow moving around but now she's in a wheelchair. She can get in and out of the chair very slowly but can only take a couple steps. Just wondering if others have seen this. I'm sure this is a sign of the disease progressing.

My 62 YO brother was just diagnosed with EOA. The neuro's office said they must apply for a clinical trial to get Leqembi treatment because he is <65. Has anyone else <65 started Leqembi outside of clinical trials?

My mother in law was recently diagnosed with dementia, although she has had symptoms for awhile. We got her out of a bad living situation and have her living in our apartment complex so we can come over and help her with dinner and caring for her dog. She hasn’t progressed to a point where she isn’t able to take care of…

I am very new to this journey. In the past month, my DH has become so hateful, angry and strikes out at me saying the most hateful and hurtful things. We are going to see a neurologist this upcoming Friday. DH has been forgetful for a while but the latest behavior came on very quickly. DH has two children who could give a…

My mother has Alzheimer's and continues to drink alcohol daily. We're concerned about how it may be affecting her condition and safety. Has anyone successfully helped a parent with dementia reduce or stop drinking? What worked, and what didn't? Any advice would be appreciated.

Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…

I want to be able to monitor my DH when I work,which is only 4hrs 2 or 3 days a week, otherwise he is always with me. So if any one has one what kind? I really need it simple to connect to my phone:)

Morning, it's August, my second least favorite month. It just sounds.hot but this morning the weather is wonderful. May get up to 90 today but right now it's 70 with a nice, North wind. Feels wonderful but the heat returns next week. Good morning, Ron. Hope things are well with you today. Waiting for Bryon and his cousin…

I'm sitting here in my basement home office (aka "the dungeon", adjacent to the washing machine and dryer) at 5:30 am central time…shaking with anger and grief at all of the above. I guess I brought it on myself, being the go-to person for planning vacations, running errands, loaning money to my spendthrift sister, and…